on the ground, health policy in action (noelle sisk, beth kessler)

Oregon Consortium of Family Networks

Changing demographics Dwindling budgets, including Family Support Work force can’t keep up with demand

Families are and will continue to be the primary source of support for kids with IDD throughout the lifespan Families must receive support so they have the capacity

to provide it

Why Family Networks?Trajectory

System Life Full Life in Community

Rela

tions

hip

Visio

nEm

pow

erm

ent

“I had specialists, I had therapists, I had family… I just needed another mom!”

Oregon Consortium of Family Networks

Families of children with IDD have opportunities to enhance their sense of empowerment to support child with disability – envision a beautiful future participate in community – sense of self outside of disability

Communities have opportunities to enhance their sense of empowerment to support and engage families with children with IDD

Medical

ServicesSchool

Presume Competence! No Stretch = No Growth

Dignity Of Risk

Start With A Vision For the Future

• Use a Person-centered Planning approach to discover: • Vision for the future• Strengths, gifts, and capacities• What works/what doesn’t work

• Person-centered planning challenges us to look at the Person and think beyond immediate concerns and disability.

PCP

CRITICAL ELEMENT TO CARE COORDINATION: KNOW THE CHILD/FAMILIES NORTH STAR…

•What is your goal?•What is your dream?•High expectations•Presume competence•If we don’t teach our children to dream, who will?

• Collaborating in quality measurement and improvement activities across the state;

• Supporting evidence-guided quality activities in clinical practices;

• Incorporating the patient and family voice into quality efforts; and

• Informing policies that support optimal health and development for all children and youth.

OREGON PEDIATRIC IMPROVEMENT PARTNERSHIP ~ OPIP

Empowerment + Partnership = CODSN

Dianna’s Story

Oregon Consortium of Family NetworksOregon Council on Developmental Disabilities

Oregon Consortium of Family Networks &Oregon Council on Developmental Disabilities

OCFN & OCDD Partnership• OCFN represents, and can access thousands of families and community partners around the state

• OCFN families have a different vision for the future

Questions??