my name is bill peacock and i represent polio australia. as a survivor of polio with the late...

Post on 30-Dec-2015

220 Views

Category:

Documents

1 Downloads

Preview:

Click to see full reader

TRANSCRIPT

My name is Bill Peacock and I represent Polio Australia.

As a survivor of Polio with the Late Effects of Polio/Post Polio Syndrome (LEoP/PPS)

I am making representation to Rotary on behalf of Polio Australia as the Financial Support is urgently

needed so that Polio Australia can continue to provide much needed support to the survivors of

Polio.

Mary Port RehabilitationFairfield infectious Hospital

Bill Peacock 8 years 1953

Polio August 1950born 17-12-1945

Australia experienced waves of polio epidemics throughout the 20th century. However, with the introduction of the Salk and Sabin vaccines, polio was an uncommon infection in Australia by the early 1960s. Thankfully, Australia is now free of new cases of polio, although years after contracting the infection, increasing numbers of Australia’s 400,000 polio survivors are developing a range of new symptoms, collectively identified as the Late Effects of Polio or Post-Polio Syndrome (LEoP/PPS).

Dr Nancy Frick &

Dr Richard Bruno

Fighting the Late Effects of Polio.Australia and its endeavours supporting the survivors.

BUT DID YOU KNOW?

• Approximately 400,000 Australians who survived the polio epidemics of the 20th century are still living, with varying degrees of residual disability, and a growing number are now struggling with polio’s debilitating late effects.

5

Support Polio Australia's work by donating online today!Join us on Facebook and Twitter too!

www.polioaustralia.org.au

A need for Financial Support for the Survivors of Polio through Polio Australia and Rotary.

Post Polio Syndrome

“We’re Still Here”

POLIO SURVIVORS IN AUSTRALIA

POLIO AUSTRALIA and

ROTARY INTERNATIONAL Districts and Clubs in Australia

7

increasing numbers of Australia’s 400,000 polio survivors are developing a range of new symptoms, collectively identified as the Late Effects of Polio or Post-Polio Syndrome (LEoP/PPS).

Most of those affected by LEoP/PPS are now over 50 years of age, limiting this potentially debilitating disease to an ageing – and therefore finite – population. However, it is clear that its origins date back several decades.

• Polio Australia warmly acknowledges the great work achieved by Rotary International and the Bill & Melinda Gates Foundation through its PolioPlus Program in helping eradicate the incidence of poliomyelitis throughout the world.

• Who would have thought 20 years ago that the world would be virtually free of polio?

ROTARY INTERNATIONAL’S POLIOPLUS PROGRAM

9

THE LATE EFFECTS OF POLIO

• Over the last 20 years much attention has been drawn to the development of new, previously unrecognised symptoms which affect people who had previously reached a stable level of recovery after the acute disease.

10

POLIO … FORGOTTENBUT NOT GONE!

• In recognition of the need for support for those experiencing the late effects of polio, Post-Polio Networks were established in all Australian states in the late 80’s and early 90’s.

• These groups continue to provide information and support services on a voluntary basis to large numbers of their peers and health professionals, generally without the benefit of any government or public funding.

11

POLIO AUSTRALIA

• Polio Australia was established in 2008 and is committed to standardising quality information and service provision across Australia, thereby ensuring that polio survivors have access to appropriate health care and the support required to maintain independence and make informed lifestyle choices.

• Its National Patron is Dr John Tierney OAM PhD, Federal Senator for NSW 1991-2005.

12

ROTARY AUSTRALIA AND POLIO

• Rotary Australia has a long history from the early 20th century in helping establish community organisations determined to support Australian children and adults living with the effects of polio.

13

WHERE IT ALL STARTED

• In 1925 the Rotary Club of Sydney sent one of its Directors, Mr B R Gelling, to the USA to examine the support Rotary was providing polio survivors.

• There he was introduced by Paul Harris (Rotary’s founder) to Mr Edgar ‘Daddy’ Allen who had recently established the National Society for Crippled Children.

• Paul Harris and Edgar Allen were fellow Rotarians and close friends and in the early 1930s framed the Declaration of Rights of Crippled Children.

14

Paul Harris

Edgar Allen

Polio Epidemics• Paul Harris became the Patron

of the National Crippled Children’s Society and for the rest of his life maintained a keen interest in the support of polio survivors.

• On his return to Australia Mr Gelling reported to the Rotary Club of Sydney, whose members in 1928 conducted an extensive door knock and survey of most Sydney residences in order to gain some idea of the numbers of Australian families who had already been affected by the polio epidemics.

15

Concerned Citizens• In December 1929 the Rotary Club of Sydney

convened a meeting of ‘concerned citizens’ in the Sydney Town Hall and as a result the New South Wales Society for Crippled Children was established.

• The then President of Sydney Rotary Club, Sir Henry Braddon, became the first President of the fledgling New South Wales Society for Crippled Children and a number of the Club’s Directors served on the Society’s Board for a number of years.

16

Crippled Children Societies• In fact, of the seven state wide community organisations

around Australia once known as “Crippled Children Societies”, six were established by Rotary.

17

Yooralla

A VISION FOR THE FUTURE

• Financial support from Rotary Clubs Around Australia

• Partnerships to encourage financial support for Polio Australia so it can continue• To establish education, learning and development• Medial Profession and Health Care Professional

knowledge of the research and treatment of the late effects of polio and post polio syndrome

• Government and non-government training organisation awareness and liaison.

• Communication and Support mechanisms for individuals as persons with a disability.

18

WHAT WE DO

• Polio Australia receives no government funding in meeting the cost of providing information and support services to polio survivors, which includes: – running annual Polio Health and Wellness Retreats– hosting the website and Australian Polio Register– producing monthly and quarterly publications– developing resources for polio survivors and their health

professionals– lobbying Federal Government to improve health services

for polio survivors– and much more . . .

19

Polio Health & Wellness Retreats

20

Feldenkrais

Orthotics

Continence Issues Trade Display Mah Jong

Hydrotherapy

Lobbying Government

21Julia Gillard, PM The Hon Greg Hunt, MP

The Hon Christopher Pyne, MP

Parliament House, Canberra – “We’re Still Here!” Campaign October 2012

THE STRATEGIC PLAN• Polio Australia’s Strategic Plan for 2012 – 2014 is:

• Priority 1: CAPACITY BUILDING – securing a stable income stream to support PA and our key program areas into the future

• Priority 2: EDUCATION - Promoting enhanced knowledge and management of the Late Effects of Polio across the Health and Community Sectors

• Priority 3: HEALTH SERVICE PROMOTION – Lobbying and advocating for recognition of and appropriate service provision for Australia’s polio survivors

• Priority 4: COLLABORATION – Working with and supporting state – based Polio Networks by producing resources and standardising polio information for use by the Networks and their members

22

PARTNERING WITH AUSTRALIA’S POLIO SURVIVORS

• The costs of providing these services is approximately $200,000 per annum.

• Polio Australia is seeking partnerships with Rotary Clubs around Australia to rekindle our links and to help raise the funds necessary to ensure these much needed (and otherwise unprovided) services are able to continue.

23

POLIO AUSTRALIA

Representing polio survivors throughout Australia

Suite 119C/89 High Street Kew Vic 3011

PO Box 500 Kew East Vic 3012office@polioaustralia.org.auwww.polioaustralia.org.au

24

Post Polio Syndrome

“We’re Still Here”

• Financial Support• Rotary Involvement • Fund Raising activity for Polio Australia

Monthly 6 Monthly Yearly

Communication Polio Australia Representatives and Local Rotary Clubs in Queensland

PUBLICATIONS.

Polio Australia manage the contact with the Polio Survivors and the Health Care Professionals involved in the treatment of the Later Effects of Polio (LEoP) and Post Polio Syndrome by generating information and professional publications.

The most recent publication for Health Care Professionals

The Late Effects of Polio MANAGING MUSCLES

AND MOBILITYClinical Practice for Health Care Professional .

Support Polio Australia's work by donating online today!Join us on Facebook and Twitter too!

www.polioaustralia.org.auTHE ONLY WAY FORWARD FOR THE SURVIVORS OF POLIO ARE THE KEY WORK CARRIED OUT BY POLIO AUSTRALIA AND WITH THE HELP OF ROTARY AUSTRALIA.

PLEASE CONDISER OUR PLIGHT ALONG WITH THE “ END POLIO NOW” CAMPAIGN WITH ROTARY INTERNATIONAL.

William (Bill) Peacock OAM40 Warrigal Street BELLARA QUEENSLAND 4507Telephone: 0403686998Email: wpeacock658@gmail.com

top related