maximizing the social impact of cancer registry data
Post on 25-Feb-2016
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Maximizing the social impactof cancer registry data
“Putting timely, accurate and complete cancer statistics in the hands of citizens with powerful displays and data formats that enable people with different backgrounds to understand them
is one of the most important contributions SEER has made”
Barbara Rimer, DrPH, 2003
How can we do better? • Broader goals
• New audiences
• Information design
• Technology and tools
• Strategic, proactive approach
This project • Design & test new displays of cancer data
• Propose best practices• Share with cancer registry community
APRC Team
Stakeholders
• SEER• OCE• HCIRB• ACS• Cancer registries
Meeting objectives
• Important data stories• Priority audiences• Outcome of interest• Products and tools
Structure of the day
• Short orientations• Full group discussion• Small group activities• Consensus and next steps
Communication effects:What are they and how do we get them?
Doing this well could improve… • Social norms
• Motivation to act
• Demand for services• Knowledge & awareness
• Perceptions, beliefs & attitudes
Friemuth & Quinn (2004) Am J Public Hlth
Unintended consequences? • Confusion
• Unwarranted fear
• Erroneous conclusions
Improving chances of success • exposure
• attention• understanding• elaboration• integration
McGuire, 1989; Petty & Cacioppo, 1981
Attention
Attention
Understanding
Understanding
Understanding
Elaboration & Integration • Relevance & identity
• Personal
• Demographic• Geographic
• Self-referential thinking
“Unit of identity”
“Unit of identity”
“Unit of identity”
Source Message Channel Receiver Effect
Basic communication model
Source Message Channel Receiver Effect
Basic communication model
Cancer registry
data
Source Message Channel Receiver Effect
Basic communication model
Cancer registry
data
Activity 1
Source Message Channel Receiver Effect
Basic communication model
Cancer registry
data
Activity 1
Activities 2-3
Activities 2-3
Source Message Channel Receiver Effect
Basic communication model
Cancer registry
data
Activity 1
Activities 2-3
Activities 2-3
Activity 4
Engaging self-referential thinking – important, indicate what stimulates it
More motivated to process deeply when information is perceived as relevant
Add communication models
Demography vs. GeographyUnits of identify: geographic (slide of town sign; Baltimore map)How heterogeneous is the unit of identity?Identity include demographics too – who is Hispanic?Example: “If you’re a man over 50…”
How do we do this? Local (geographic) Demographic, ContextFacilitate understanding with: standardized formsMeaningful context: social math
Identity – unit of identity/place
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