john wilbanks & stephen friend partnering for cures: standardized informed consent 2011-11-08
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John Wilbanks & Stephen Friend, Nov 7-8, 2011. Partnering for Cures: Standardized Informed Consent, New York, NY
TRANSCRIPT
PORTABLE LEGAL CONSENT
John Wilbanks
“one more thing”
what‘s missing?
network effects.
how do we get there?
standards, legal and technical.
start with the patient.
patient-driven data collection.
in the beginning, there was consent.
simple. weak. standardized. open.
simple. weak. standardized. open.
simple. weak. standardized. open.
simple. weak. standardized. open.
http://weconsent.us
@wilbanks jtw@del-fi.org
supported by: Sage Bionetworks
Ewing Marion Kauffman Foundation Lybba.org
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