healthcare diy it's personal 10-7-12 body 20 san francisco jane sarasohn-kahn
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THINK-Health
Healthcare DIY: It’s Personal
Jane Sarasohn-Kahn, MA (Econ.), MHSA THINK-Health and Health Populi blog
Body 2.0 San Francisco, 7 October 2012
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THINK-Health
• Health = health care
• Meet The Parents: Participatory Patients v1.0 and v1.5
• Meet Their Daughter, Jane, v2.0
• Meet Your Personal Health Ecosystem.
The Journey Toward Healthcare DIY
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THINK-Health
Listen to Dr. Benjamin, Surgeon General
• “We can't look at health in isolation. It's not just in the doctor's office.
• “It's got to be where we live, we work, we play, we pray.”
3 Source: Surgeon general discusses health and community, Los Angeles Times, March 13, 2011
THINK-Health
Meet Polly, Participatory Patient, v 1.0 (1971-1979)
• 1971: Diagnosed with lymphocytic leukemia
• Six month prognosis • Treatment: radiation and blood
transfusions • Close relationship with
Internist/Hematologist • Social network (offline) • Key relationship: Richard, the school
librarian • Information seeking behavior: Index
Medicus via microfiche (no Internet!) • Food=health: Adelle Davis, Let’s Get
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THINK-Health
Meet Chuck, Participatory Patient, v 1.5 (1966-2007)
• 1937: Diagnosed with high blood pressure • 1966: Diagnosed with Type 2 Diabetes • Dieted per doctor’s instructions; lost
weight, managed diabetes via diet & exercise, no insulin until 2005
• A+ patient: collegial with doctors, adhered to Rx therapies
• Remarried 1982, becoming “parent” of a dog (therapeutic relationship!)
• Resilient social network (offline and online) • Lifelong history of heart disease:
pacemaker, quintuple bypass • Worked full-time until 84 YO; developed
CHF • 2-year revolving door to ER until his death.
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THINK-Health
What’s changed since Polly & Chuck’s versions of participatory health?
• We’re learning to be health consumers • The New 2nd Opinion: checking Internet pre- and
post-physician visit and diagnosis • Adopting mobile phones and tablets • Acting like food = health • Using social networks for health • Learning to partner with clinicians • > Participating in health Body 2.0.
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THINK-Health
DIY Health
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THINK-Health 15
Meet Jane, Body 2.0 via HealthcareDIY
Source: Jane’s personal health ecosystem, adapted from Institute for the Future work on Ecosystems of Wellbeing
THINK-Health
JSK Cholesterol, 2/11-1/12
Test Feb 2011 Jan 2012 Limits Lipid Panel Cholesterol, Total 188 178 100-199 Triglycerides 177 48 0-149 HDL Cholesterol 49 72 >39 Comment – According to ATP-III Guidelines, HDL-C >59 mg/dL is considered a negative risk factor for CHD (chronic heart disease). VLDL Cholesterol 10 mg/dL 5-40 LDL Cholesterol 96 mg/dL 0-99
Source: Jane’s PHR
THINK-Health
1. Find safe, decent health care
2. Communicate with health care professionals
3. Organize health care 4. Pay for health care 5. Make good treatment
decisions
6. Participate in treatment 7. Promote health 8. Get preventive health care 9. Plan for the end of life 10. Seek health knowledge.
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The 10 Commandments of Health Engagement Thou Shalt…
Source: Snapshot of People’s Engagement in Their Health Care, Center for Advancing Health, May 2010
THINK-Health
Jane Sarasohn-Kahn, MA (Econ.), MHSA Health Economist and Management Consultant THINK-Health jane@think-health.com www.think-health.com www.healthpopuli.com Blog @healthythinker on Twitter
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