fetal alcohol canadian expertise (face) research roundtable international fas day - sept 2002

Fetal Alcohol Canadian Expertise (FACE)

Research RoundtableInternational FAS Day - Sept

2002

Christine A. Loock, MD, FRCPCChristine A. Loock, MD, FRCPC

Associate Professor, UBCAssociate Professor, UBC

CCSA Board & FAS NAC CCSA Board & FAS NAC Member, BC FAS Provincial Member, BC FAS Provincial

Medical Consultant, Medical Consultant,

The Pediatrician’s Dilemma

Pediatrician

Today’s Goals for Today’s Goals for Research Roundtable Research Roundtable

Overview of current Canadian FAS research Overview of current Canadian FAS research (Awareness, At-Risk , Affected, Basic Science)(Awareness, At-Risk , Affected, Basic Science)

Discuss trends in nomenclature (“FASD”)Discuss trends in nomenclature (“FASD”) Interventions for women at riskInterventions for women at risk Standardizing FAS diagnosis and reporting (Health Standardizing FAS diagnosis and reporting (Health

Canada)Canada) – TelediagnosisTelediagnosis– BC’s HSR (Vital Statistics); UW DPN 4 Digit CodeBC’s HSR (Vital Statistics); UW DPN 4 Digit Code ; ; – Education and Training : UBC Curricula; Education and Training : UBC Curricula;

Provincial Initiatives; March of Dimes CD ROM Provincial Initiatives; March of Dimes CD ROM trainingtraining

Basic Science : Anti-oxidants; Meconium ScreeningBasic Science : Anti-oxidants; Meconium Screening BC Initiatives and RecapBC Initiatives and Recap

YELLOW POINT

Take Home PointsTake Home Points

My role in closing today’s My role in closing today’s Roundtable: Roundtable: – Stand Up, Speak up, Shut upStand Up, Speak up, Shut up

IT TAKES A COMMUNITY :IT TAKES A COMMUNITY :– Every child needs a familyEvery child needs a family– Every mom needs a momEvery mom needs a mom– Every person needs a communityEvery person needs a community

Guiding PrinciplesGuiding PrinciplesRespectRespectUnderstandingUnderstandingCompassionCompassionHopeHope

Common

Expensive

Preventable

Bottom Line

FETAL ALCOHOL SPECTRUM FETAL ALCOHOL SPECTRUM DISORDERDISORDER

Fetal Alcohol Syndrome (FAS)Fetal Alcohol Syndrome (FAS)

BrainBrain GrowthGrowth

Facial featuresFacial features“Fetal Alcohol Effects” (FAE) = Partial FAS & Alcohol

Related Neurodevelopmental Disorder (ARND)

Research Intervention

Prevention requires Coordination

Education & Training

AWARENESS (primary)

AFFECTED (tertiary)

AT-RISK (secondary)

PREVENTION STRATAGIES

The Scream,

Edvard Munch

In the beginning (of our FAS work )

~ Early 1990’s

Who is at risk?

“If you drink, don’t

screw: or if you screw, don’t

drink!

MOD~ 1996”

Or if you do, please

use effective

contraception!

CL 2002from

Time 2002

Henri de Toulouse-Lautrec ~1895

Who’s at higher risk?: Who’s at higher risk?: Remember the “10 P’s” !Remember the “10 P’s” !

povertypoverty poor prenatal carepoor prenatal care poor nutrition and healthpoor nutrition and health poly-drug usepoly-drug use prostitution (sex trade) prostitution (sex trade) parent, partner, peer problems (A&D) parent, partner, peer problems (A&D) psychiatric concerns ( mood, anxiety, psychiatric concerns ( mood, anxiety,

thought disorders)thought disorders) prior abuse (childhood sexual+/- physical)prior abuse (childhood sexual+/- physical)

““Mother – Baby Diad”Mother – Baby Diad”

Issues around Issues around “Mothering” and “Mothering” and Substance AbuseSubstance Abuse

AWARENESSAFFECTED

AT-RISK

ACCOUNTABILITY

Guiding PrinciplesGuiding PrinciplesRespectRespectUnderstandingUnderstandingCompassionCompassionHopeHope

Common

Expensive

Preventable

Bottom Line

YWCA Crabtree Corner, Downtown Eastside