ambassador briefing may 13, 2015. welcome! laura keivel manager of grassroots advocacy thank you for...
TRANSCRIPT
Ambassador BriefingMay 13, 2015
Welcome!
Laura Keivel Manager of Grassroots Advocacy
Thank you for joining the call and participating in the Ambassador
Program!
Agenda• Social Media Presentation
• Walk to Cure Arthritis Update
• State and Federal Updates
• May Activity
• Housekeeping
Social Media and
Advocacy
Social Media and Advocacy
Morgan Griffith Senior Director, Web and Interactive Strategy
Sample Arthritis Awareness Month Messaging - Twitter:
• ~300,000 babies, kids & teens have #arthritis or a rheumatic condition? http://blog.arthritis.org/news/arthritis-awareness-month/ #ArthritisAwarenessMonth
• Arthritis & related conditions account for $156+ billion annually in lost wages & expenses http://blog.arthritis.org/news/arthritis-awareness-month/ #ArthritisAwarenessMonth
• .@insertrepnamehere in honor of #ArthritisAwarenessMonth, please support the #arthritis community by joining the Arthritis Caucus!
• .@insertrepnamehere there are 50 million+ reasons to join the #Arthritis Caucus, we need your help! http://blog.arthritis.org/news/arthritis-awareness-month/
Sample Arthritis Awareness Month Messaging -
Facebook:• May is National Arthritis Awareness Month! 1 in every 5 adults, 300,000 children & countless families are affected by arthritis. It accounts of $156 billion annually in lost wages and medical expenses. http://blog.arthritis.org/news/arthritis-awareness-month/
• @RepNameHere May is National Arthritis Awareness Month and we need your help! 1 in every 5 adults, 300,000 children & countless families are affected by arthritis. It accounts of $156 billion annually in lost wages and medical expenses. Please support the arthritis community by joining the Arthritis Caucus!
Sample Arthritis Awareness Month Imagery to Share:
Will be posted/available at: http://www2.arthritis.org/advocatelaunchtoolkit
Social MediaWhy is social media and advocacy
important?• Great way to share your story and raise
awareness• Strength in numbers
– 30 comments– 10 comments
• Ability to have a conversation with constituents• Facebook is #1, Twitter #2, Instagram #3 with
members of Congress• Ability for anything to go viral
Social MediaHow to engage on social media:1. Post a picture and tag your elected officials2. Make it relevant! Photos at Walk to Cure
Arthritis, at the state capitol, Jingle Bell Run, at the doctor, show them your YES!
3. Use the Arthritis Foundation Advocacy hashtag to interact with other advocates #AdvocateforArthritis
4. Tag your friends!
Social media is not only fun, but an important way to communicate
Questions?
Hit #6 to unmute your line
Walk to Cure
Arthritis Update
• Over 200 Advocates signed up so far• Over 100 note cards completed
We Need More Help!Two Options:
Option 1• Invite your Representative to your local Walk to Cure Arthritis• Collect note cards from WTCA attendees• Deliver note cards to appropriate Representative (if they do not attend
WTCA) and send the names and contact info to AF staffOption 2• Collect 5 notecards from your friends and family (yourself included!)• Deliver or mail them to the appropriate Representative and send the
names and contact info to AF staff
Walk to Cure Arthritis Update
State and Federal Updates
Mark Guimond, Director of State Legislative Affairs
Success in GeorgiaGeorgia Governor Nathan Deal signed a bill allowing
interchangeable biologic products making medication more accessible for people in Georgia
Thank you to Ambassador Kerry Tucker for testifying!
Success in TennesseeBiosimilar law passed – thank you
Ambassadors!
New Caucus Members81 members of the Arthritis Caucus – 45 to
go!• Rep. Charles Rangel (D-NY)• Rep. Joe Kennedy (D-MA)• Rep. Bob Goodlatte (R-VA)• Rep. Jared Huffman (D-CA)• Sen. Tom Carper (D-DE)• Rep. Jeff Merkley (D-OR)• Rep. Sean Maloney (D-NY)• Rep. David Jolly (R-FL)• Rep. Swalwell (D-CA)• Rep. Pitts (R-PA)• Rep. Franks (R-AZ)
Please be sure to thank your member if they are a new member of the Caucus!
If your Members of Congress are not members of the Caucus, please ask them
to join!
Patients’ Access to Treatments Act Update
• 70 cosponsors as of 5/12/15• 57 Democrat and 13 Republican
Please ask your Representative to cosponsor the legislation!
H.R. 1859
Ensuring Children’s Access to Specialty Care Act of 2015
• Introduced by Rep. Chris Collins (R-NY) and Rep. Joe Courtney (D-CT) on April 16
• Address the shortage of pediatric rheumatologists• 1 cosponsor so far• We are working with coalitions on the bill and we’ll
keep you updated
Questions?
Hit #6 to unmute your line
May Ambassador
Activity
May is Arthritis Month
May is a time to educate your elected officials about arthritis and the impact is has on your life.
May Ambassador Activity
First Option• Use social media to raise awareness about
Arthritis Month• You can use Facebook, Twitter, Instagram,
etc.• Please have a minimum of 5 postings total
(not per platform)• Report the dates of your postings in the
Reporting Center
Sample MessagesFacebook and Instagram• May is National Arthritis Awareness Month! 1 in every 5
adults, 300,000 children & countless families are affected by arthritis. It accounts of $156 billion annually in lost wages and medical expenses. http://blog.arthritis.org/news/arthritis-awareness-month/
• @RepNameHere May is National Arthritis Awareness Month and we need your help! 1 in every 5 adults, 300,000 children & countless families are affected by arthritis. It accounts of $156 billion annually in lost wages and medical expenses. Please support the arthritis community by joining the Arthritis Caucus!
Feel free to use the imagery from Morgan – will be placed on the Ambassador webpage
Sample MessagesTwitter – limit 140 charactes• ~300,000 babies, kids & teens have #arthritis or a
rheumatic condition? http://blog.arthritis.org/news/arthritis-awareness-month/ #ArthritisAwarenessMonth
• Arthritis & related conditions account for $156+ billion annually in lost wages & expenses http://blog.arthritis.org/news/arthritis-awareness-month/ #ArthritisAwarenessMonth
• .@insertrepnamehere in honor of #ArthritisAwarenessMonth, please support the #arthritis community by joining the Arthritis Caucus!
• .@insertrepnamehere there are 50 million+ reasons to join the #Arthritis Caucus, we need your help! http://blog.arthritis.org/news/arthritis-awareness-month/
May Ambassador ActivitySecond OptionSend your governor a letter about Arthritis Month and the impact arthritis has on your state• Sample letter and arthritis prevalence data are
available on the Ambassador webpage• Please include a few sentences of your personal
story• The goal is to raise awareness of arthritis• Please contact Laura Keivel if you are unable to
locate your governor’s contact information • Report the date your sent the letter and
please let us know if you receive a response
Due Dates
• April’s Ambassador activity is due July 15
• May’s Ambassador activity is due June 1
Housekeeping
Website Updates
Due to website reconstruction, updates were currently
unavailable• Bonus assignments may be reported
on • Ambassador Commitment Form
available now and due July 15• Toolkit is posted• Recordings can be posted
July Ambassador Briefing
The next Ambassador Briefing is Wednesday, July 8th at 3:00 PM
Eastern
Our Signature EventAugust Recess Activity
Thank you for joining the briefing!
Please contact Laura Keivel for any questions