adult consumer survey · 2018-05-02 · adult consumer survey highlights ... presentation of...

Adult Consumer Survey

2016-17 Final Report

National Core Indicators™

2

Human Services Research Institute (HSRI)

2336 Massachusetts Avenue

Cambridge, MA 02140

National Association of State Directors

of Developmental Disabilities Services (NASDDDS)

301 N Fairfax Street

Suite 101

Alexandria, VA 22314-2633

5/2/2018

Please email [email protected] with questions

mailto:[email protected]


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List of Abbreviations Used in This Report

CIP – Core Indicators Project

CMS – Centers for Medicare & Medicaid Services

HCBS – Home and Community-Based Services

HSRI – Human Services Research Institute

N – Number of respondents

NASDDDS – National Association of State Directors of Developmental Disabilities Services


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Table of Contents

Adult Consumer Survey Highlights ......................................................................................... i

I. Results ............................................................................................................................... 1

Survey Administration .......................................................................................................... 2

Survey Development ............................................................................................................ 2

Organization of the Survey ........................................................................................................................................................... 2

Presentation of Demographics ............................................................................................. 4

Demographic Characteristics of Respondents ....................................................................... 5

Table 1. Age ¥ ....................................................................................................................................................................................................... 6

Table 2. Age Group ............................................................................................................................................................................................. 7 Table 3. Gender .................................................................................................................................................................................................... 8

Table 4. Marital Status ...................................................................................................................................................................................... 9 Table 5. Race ....................................................................................................................................................................................................... 10 Table 6. Residential Designation ˇ ............................................................................................................................................................. 11 Table 7. Type of Residence – Institutional Setting ............................................................................................................................. 12 Table 8. Type of Residence – Group Residential Setting ................................................................................................................. 13 Table 9. Type of Residence – Other Home Settings ........................................................................................................................... 14

Table 10. Length of Time at Current Residence .................................................................................................................................. 15 Table 11. Person's residence owned or controlled by provider agency .................................................................................. 16 Table 12. Person is named on the lease .................................................................................................................................................. 17

Table 13. Person owns home ....................................................................................................................................................................... 18 Table 14. Has ID Diagnosis ........................................................................................................................................................................... 19 Table 15. Level of ID (if the person has an ID diagnosis) ¥ ............................................................................................................ 20 Table 16. Mood, Anxiety, Behavior, Psychotic, and Other Mental Illness ∞ ........................................................................... 21 Table 17. Other Disabilities ∞ ..................................................................................................................................................................... 22

Table 18. Other Disabilities (continued) ∞ ........................................................................................................................................... 23 Table 19. Health Conditions ∞ .................................................................................................................................................................... 24 Table 20. Health Conditions (continued) ∞ .......................................................................................................................................... 25 Table 21. Preferred Means of Communication .................................................................................................................................... 26 Table 22. Primary Language ........................................................................................................................................................................ 27 Table 23. Mobility ¥ ......................................................................................................................................................................................... 28 Table 24. Support Needed to Manage Self-Injurious Behavior ¥ ................................................................................................ 29 Table 25. Support Needed to Manage Disruptive Behavior ¥ ....................................................................................................... 30 Table 26. Support Needed to Manage Destructive Behavior ¥ .................................................................................................... 31 Table 27. Level of Guardianship ................................................................................................................................................................. 32 Table 28. Guardian’s Relationship to Person ....................................................................................................................................... 33

Core Indicator Outcomes and Comparisons Across States .................................................. 34

Figure A. Number of people in each type of residence ..................................................................................................................... 36

Choice and Decision-Making ............................................................................................... 38

Table 29. Chose or had some input in choosing where they live if not living in the family home (‘person made the choice’ and ‘person had some input’ responses; adjusted variable; proxy respondents were allowed for this question)^39 Table 30. Chose or had some input in choosing their housemates if not living in the family home, or chose to live alone (adjusted variable; ‘person made the choice’ and ‘person had some input’ responses; proxy respondents were allowed for this question) ^ ........................................................................................................................................................................................... 40


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Table 31. Chose or had some help in choosing where they work (adjusted variable; among those determined to have a paid community job; ‘person made the choice’ and ‘person had help making the choice’ responses; proxy respondents were allowed for this question) ^ ............................................................................................................................................................. 41

Table 32. Chose or had some input in choosing where they go during the day (adjusted variable; ‘person made the choice’ and ‘person had some input’ responses; proxy respondents were allowed for this question) ^.................. 42 Table 33. Chose staff or were aware they could request to change staff (adjusted variable; ‘chose staff’ and ‘staff were assigned but can be changed if requested by person’ responses; proxy respondents were allowed for this question) ^ ................................................................................................................................................................................................................................... 43 Table 34. Decides or has help deciding their daily schedule (adjusted variable; ‘person decides’ and ‘person has help deciding’ responses; proxy respondents were allowed for this question) ^ ......................................................................... 44 Table 35. Decides or has help deciding how to spend free time (adjusted variable; ‘person decides’ and ‘person has help deciding’ responses; proxy respondents were allowed for this question) ^ ......................................................................... 45 Table 36. Chooses, has help choosing what to buy or has set limits on what to buy with their spending money (adjusted variable; ‘person chooses’ or ‘person has help choosing what to buy, or has set limits [such as can buy small items, but not big items’] responses; proxy respondents were allowed for this question) ^ .............................................................. 46 Table 37. Life Decisions Scale (adjusted variable) ** ^ .................................................................................................................... 47 Table 38. Everyday Choices Scale (adjusted variable) ** ^ ............................................................................................................ 48 Table 39. Can change their case manager/service coordinator if wants to (‘yes’ responses only; proxy respondents were allowed for this question) º .......................................................................................................................................................................... 50

Work .................................................................................................................................. 51

Table 40. Has a paid job in the community (‘yes’ responses only’; information may have been obtained through state records) ................................................................................................................................................................................................................. 53 Table 41. Type of paid community job (information may have been obtained through state records) .................... 55 Table 42. Average number of biweekly hours by type of community job (information may have been obtained through state records) ...................................................................................................................................................................................................... 57 Table 43. Average biweekly gross wages by type of community job (information may have been obtained through state records) ................................................................................................................................................................................................................. 59 Table 44. Average biweekly hourly wage by type of community job (information may have been obtained through state records) ^ ............................................................................................................................................................................................................. 61 Table 45. Length of employment in current paid community job (shown in months; information may have been obtained through state records) ................................................................................................................................................................ 63 Table 46. Receives paid time off (for example, paid vacation and/or sick time) from their paid community job (information may have been obtained through state records) .................................................................................................... 65 Table 47. Four most common job industries (among those reported to have a job in the community; information may have been obtained through state records) ∞ .................................................................................................................................... 67 Table 48. Does not have paid community job, and would like a job in the community (‘yes’ responses only) ...... 69 Table 49. Has community employment as a goal in their service plan (information may have been obtained through state records) ...................................................................................................................................................................................................... 71 Table 50. Takes classes, training or does something to get a job or do better at current job (‘yes’ responses only)73 Table 51. Attends a day program or workshop (‘yes’ responses only) .................................................................................... 75 Table 52. Volunteers (‘yes’ responses only) ......................................................................................................................................... 77

Self-Determination ............................................................................................................. 78

Table 53. Using a self-directed supports option (‘yes’ responses only; information may have been obtained through state records) ...................................................................................................................................................................................................... 80 Table 54. People who make decisions or have input in making decisions for how budget for services is used (among those using a self-direction option; proxy respondents were allowed for this question) ............................................... 82 Table 55. Hires and manages staff (among those using a self-direction option and who participate in making decisions about how to use budget; ‘yes’ responses only; proxy respondents were allowed for this question) ....................... 84 Table 56. Can make changes to individual budget/services if needed (among those using a self-direction option and who participate in making decisions about how to use budget; ‘yes’ responses only; proxy respondents were allowed for this question) ............................................................................................................................................................................................................... 86 Table 57. Has enough help deciding how to use their individual budget/services (among those using a self-direction option and who participate in making decisions about how to use budget; ‘yes’ responses only; proxy respondents were allowed for this question) ............................................................................................................................................................................. 88


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Table 58. Gets information about how much money is left in budget/services (among those using a self-direction option and who participate in making decisions about how to use budget; ‘yes’ responses only; proxy respondents were allowed for this question) ............................................................................................................................................................................. 90

Table 59. Information about budget/services is easy to understand (among those using a self-direction option and who participate in making decisions about how to use budget and who receive information about how much money is left in budget/services; ‘yes’ responses only; proxy respondents were allowed for this question) ........................................ 92 Table 60. Frequency of budget/services information or updates (among those using a self-direction option and who participate in making decisions about how to use budget; proxy respondents were allowed for this question) º94

Community Inclusion, Participation and Leisure ................................................................. 95

Table 61. Went out shopping at least once in the past month (proxy respondents were allowed for this question) ................................................................................................................................................................................................................................... 97 Table 62. Went out on errands at least once in the past month (proxy respondents were allowed for this question) ................................................................................................................................................................................................................................... 99 Table 63. Went out for entertainment at least once in the past month (proxy respondents were allowed for this question) ............................................................................................................................................................................................................ 101 Table 64. Went out to eat at least once in the past month (proxy respondents were allowed for this question)103 Table 65. Went out to religious service or spiritual practice at least once in the past month (proxy respondents were allowed for this question) .......................................................................................................................................................................... 105 Table 66. Participated as a member in a community group (proxy respondents were allowed for this question)107 Table 67. Went on vacation in the past year (proxy respondents were allowed for this question)......................... 109 Table 68. Community Inclusion Scale **.............................................................................................................................................. 110 Table 69. Able to go out and do the things likes to do in the community (‘yes’ responses only) .............................. 112 Table 70. Able to go out and do the things likes to do in the community as often as wants to (‘yes’ responses only) ................................................................................................................................................................................................................................ 114 Table 71. Has enough things to do when at home (‘yes’ responses only) ............................................................................ 116

Relationships .................................................................................................................... 117

Table 72. Has friends who are not staff or family members (‘yes, has friends who are not staff or family’ responses only) ................................................................................................................................................................................................................................ 119 Table 73. Has best friend (may be staff or family); (‘yes’ responses only) º ....................................................................... 121

Table 74. Wants help to meet or keep in contact with friends (‘yes’ and ‘maybe’ responses) .................................. 123 Table 75. Has friends (may be staff or family) and can see them when wants to (‘yes’ responses only) .............. 125 Table 76. Reasons cannot see friends (if sometimes or often unable to see friends) º ∞ ............................................ 127 Table 77. Has other ways of talking, chatting or communicating with friends when cannot see them (‘yes’ responses only) ..................................................................................................................................................................................................................... 129 Table 78. Can see and communicate with their family when they want (among those who do not live in the family home; ‘yes, sees family whenever wants, or chooses not to see family’ responses only) º ........................................................ 131 Table 79. Often feels lonely (‘yes, often’ responses only)ˇ .......................................................................................................... 133 Table 80. Can go on a date or is married or living with partner (‘yes, can date or is married or living with partner’ responses only) .............................................................................................................................................................................................. 135

Satisfaction ....................................................................................................................... 136

Table 81. Likes home or where lives (‘yes’ responses only) ...................................................................................................... 138 Table 82. Wants to live somewhere else (‘yes’ responses only) ˇ ............................................................................................ 140 Table 83. Has a paid job in the community and likes job (‘yes’ responses only) .............................................................. 142 Table 84. Has a paid job in the community and wants to work somewhere else (‘yes’ responses only) ............... 144 Table 85. Attends a day program or workshop and wants to go more, less, or the same amount of time º ......... 146 Table 86. Services and Supports help person live a good life (‘yes’ responses only) ...................................................... 148

Service Coordination ........................................................................................................ 149

Table 87. Met case manager/service coordinator (‘yes’ responses only) ............................................................................ 151 Table 88. Case manager/service coordinator asks person what s/he wants (‘yes’ responses only) ....................... 153 Table 89. Able to contact case manager/service coordinator when wants (‘yes’ responses only) .......................... 155


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Table 90. Took part in last service planning meeting, or had the opportunity but chose not to (‘yes’ and ‘had opportunity, but chose not to’ responses) .......................................................................................................................................... 157 Table 91. Understood what was talked about at last service planning meeting (if attended last planning meeting; ‘yes’ responses only) .............................................................................................................................................................................................. 159 Table 92. Last service planning meeting included people that the person wanted to be there (if attended last planning meeting; ‘yes’ responses only) ................................................................................................................................................................. 161 Table 93. Person was able to choose services they get as part of service plan (‘yes’ responses only) ................... 163 Table 94. Staff come and leave when they are supposed to (‘yes’ responses only) ......................................................... 165

Access............................................................................................................................... 166

Table 95. Has a way to get places needs to go (‘yes, almost always’ responses only) .................................................... 168 Table 96. Able to get places when wants to do something outside of home (‘yes, almost always’ responses only)170 Table 97. Staff have right training to meet person’s needs (proxy respondents who were not staff were allowed for this question; ‘yes’ responses only) º ............................................................................................................................................................ 172 Table 98. Additional services needed (proxy respondents were allowed for this question) ∞ ................................. 174 Table 99. Additional services needed (continued; proxy respondents were allowed for this question) ∞ ......... 175 Table 100. Additional services needed (continued; proxy respondents were allowed for this question) ∞....... 176

Health .............................................................................................................................. 177

Table 101. Has a primary care doctor or practitioner (information may have been obtained through state records; ‘yes’ responses only) .............................................................................................................................................................................................. 179 Table 102. In poor health (proxy respondents were allowed for this question; ‘poor health’ responses only) ˇ181 Table 103. Had a complete physical exam in the past year (‘in the past year’ responses only; information may have been obtained through state records) ............................................................................................................................................................. 183 Table 104. Had a dental exam in the past year (‘within the past six months’ and ‘within the past year’ responses; information may have been obtained through state records)................................................................................................... 185 Table 105. Had an eye exam in the past year (‘within the past year’ responses only; information may have been obtained through state records) ................................................................................................................................................................................. 187 Table 106. Had a hearing test in the past five years (‘within the past five years’ responses only; information may have been obtained through state records) .................................................................................................................................................. 189 Table 107. Had a Pap test in the past three years (among women 21 and older; ‘within the past year’, ‘within the past two years’ and ‘within the past three years’ responses; information may have been obtained through state records) º ................................................................................................................................................................................................................................ 191 Table 108. Had a mammogram test in the past two years (among women age 40 and over; ‘past year’ and ‘past two years’ responses; information may have been obtained through state records) ............................................................. 193 Table 109. Last colorectal cancer screening (among people age 50 and over; information may have been obtained through state records) º ∞ ........................................................................................................................................................................ 195 Table 110. Had a flu vaccine in the past year (‘yes’ responses only; information may have been obtained through state records) .............................................................................................................................................................................................................. 197

Medications...................................................................................................................... 198

Table 111. Takes at least one medication for mood, anxiety, psychotic disorder and/or behavioral challenge (information may have been obtained through state records) ................................................................................................. 200 Table 112. Takes medication for mood, anxiety, and/or psychotic disorders (information may have been obtained through state records) ................................................................................................................................................................................. 202

Table 113. Number of medications taken for at least one of the following: mood disorders, anxiety, or psychotic disorders (information may have been obtained through state records)............................................................................ 204 Table 114. Takes medication for behavior challenges (information may have been obtained through state records) ................................................................................................................................................................................................................................ 206 Table 115. Number of medications taken for behavior challenges (information may have been obtained through state records) .............................................................................................................................................................................................................. 208 Table 116. Has a behavior plan (information may have been obtained through state records) ............................... 210 Table 117. Has a behavior plan (among those who take medication for a behavior challenge; information may have been obtained through state records) ............................................................................................................................................................. 212


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Wellness ........................................................................................................................... 213

Table 118. Exercises or does physical activity at least 3 times per week (‘yes, sometimes [1-2 times a week]’ and ‘yes, regularly [at least 3 times a week]’ responses; proxy respondents were allowed for this question) ..................... 215 Table 119. Body Mass Index (BMI) category (BMI calculated using data on weight and height; information may have been obtained through state records) .................................................................................................................................................. 217 Table 120. Uses nicotine or tobacco products (‘yes’ responses only; information may have been obtained through state records) ˇ ........................................................................................................................................................................................................... 219

Respect and Rights ........................................................................................................... 220

Table 121. Has a key to the home (‘yes’ responses only; proxy respondents were allowed for this question) º222 Table 122. People (who do not live in the home) let person know before entering home (‘yes’ responses only)224 Table 123. Can lock bedroom (‘yes’ responses only; proxy respondents were allowed for this question) .......... 226 Table 124. People let person know before entering person’s bedroom (‘yes’ responses only) ................................. 228

Table 125. Others read mail without asking (‘yes, mail/email is read without permission’ responses only) ˇ .. 230 Table 126. Can use phone and internet when wants (‘yes, can use anytime, either independently or with assistance’ responses only) .............................................................................................................................................................................................. 232 Table 127. Can be alone with friends or visitors at home (‘yes, can be alone with friends or visitors’ responses only) ................................................................................................................................................................................................................................ 234 Table 128. There are rules about having friends or visitors at home (‘there are rules against having friends or visitors in your home’ responses only) º ˇ ................................................................................................................................................................ 236 Table 129. Has a place to be alone in the home (‘yes’ responses only) ................................................................................. 238

Table 130. Staff treat person with respect (‘yes – all staff, always’ responses only) ...................................................... 240 Table 131. Has attended a self-advocacy group, meeting, conference or event or had the opportunity and chose not to (‘yes’ and ‘had the opportunity but chose not to participate’ responses; proxy respondents were allowed for this question) ............................................................................................................................................................................................................ 242 Table 132. Has voted in local, state, or federal election, or had the opportunity and chose not to (‘yes’ and ‘had the opportunity to register or vote but chose not to’ responses; proxy respondents were allowed for this question)244

Safety ............................................................................................................................... 245

Table 133. There is at least one place where the person feels afraid or scared (in home, day program, work, walking in the community, in transport, or other place) ˇ ................................................................................................................................. 247 Table 134. Have someone to go to for help if they ever feel scared (‘yes’ responses only) ......................................... 249

Adult Consumer Survey Highlights


Adult Consumer Survey Results 2016-17| 1

I. Results

This section briefly describes the structure of the survey instrument and presents the results of the most recent

data collection cycle.



Survey Administration

Thirty-eight states and the District of Columbia administered the Adult Consumer Survey in 2016-17 and

submitted valid samples for analysis: Alabama (AL), Arkansas (AR), Colorado (CO), Connecticut (CT),

Delaware (DE), District of Columbia (DC), Florida (FL), Georgia (GA), Hawaii (HI), Idaho (ID), Illinois (IL),

Indiana (IN), Kansas (KS), Kentucky (KY), Louisiana (LA), Maine (ME), Michigan (MI), Minnesota (MN),

Mississippi (MS), Missouri (MO), Nebraska (NE), Nevada (NV), New Hampshire (NH), New Jersey (NJ),

New York (NY), North Carolina (NC), Ohio (OH), Oklahoma (OK), Oregon (OR), Pennsylvania (PA), Rhode

Island (RI), South Dakota (SD), Tennessee (TN), Texas (TX), Utah (UT), Vermont (VT), Virginia (VA),

Wisconsin (WI), and Wyoming (WY).

Together, they collected survey responses and information from a total of 21,625 individuals.

Survey Development

The Adult Consumer Survey was initially developed by a technical advisory subcommittee for the

purpose of collecting information directly from individuals with intellectual/developmental disabilities

and their families or advocates. Many questions were drawn from survey instruments in use in the field;

others were developed specifically for NCI. NCI staff routinely test and refine the instrument based on

feedback from surveyors.

Most participating states use the basic survey tool developed by the project. However, some states opt to

incorporate additional survey questions to look more deeply at specific issues. The addition of

supplementary questions is typically done after a state participates in NCI for at least a year and

establishes baseline results.

Organization of the Survey

The Adult Consumer Survey consists of a pre-survey form, three distinct survey sections, and a surveyor

feedback form. Each is described below.

Pre-Survey Information: This form has questions that help the surveyor prepare for the meeting as well

as assist the surveyor in administering the survey questions. Pre-Survey information is not included in

the analysis by HSRI and thus not included in this report; it is for interviewer use only.

Background Information: This section consists of questions about demographics, residence, health,

employment status, and services and supports. Data is generally collected from state records, case

managers, or a combination of both.



Section I: This section attempts to determine the individual’s level of satisfaction and opinions. It may

only be completed through a direct meeting with the individual.

Section II: This section contains questions that are answered by a direct meeting with the individual

when possible. If the person is unable to respond, a proxy who knows the person well may be used. Case

managers or service coordinators are not allowed to respond to these questions on the individual’s

behalf.

Surveyor Feedback Sheet: This form is used to record information such as the length of the NCI meeting

with the individual and any problematic questions encountered.



Presentation of Demographics

The following section details the demographic profile of respondents to the 2016-17 Adult Consumer

Survey. Tables display demographic results listed alphabetically by state.

States receive an ‘n/a’ designation in table presentations for a survey item if fewer than 20 people

responded; however, their data are included in the NCI Average.

IMPORTANT NOTE ON CHANGES TO REPORTING: In previous years, the NCI average was calculated

as the simple arithmetic mean of all state means (an approach known as “average of averages”). This

year, the approach has been enhanced to take into account the relative numbers of people receiving

services through participating states’ systems. Beginning this year, the NCI averages contained in

this report are “weighted” means; their calculations reflect the relative population sizes of

participating states, as well as the sample sizes. See more about weighting in the Methodology section.

In addition, the TX sample has been weighted for disproportionate sampling of their populations

receiving services from Managed Care Organizations, and those not receiving services from Managed

Care Organizations. See more about weighting in the Methodology section.

Please note that MN’s sample is not weighted.



Demographic Characteristics of Respondents

This section presents descriptive information on the respondents surveyed.

Important Note on Missing Data:

For several states, survey items in the Background Information section (including certain items related to

Demographics, Health, Medication, and Wellness) had a large amount of missing data or data recorded as

“don’t know.” Where 25% or more of a state’s sample had “don’t know” or missing responses, we used an

asterisk (*) to indicate that state’s data should be interpreted with caution.

The quantity of missing data can be a result of several factors. We do not know whether the data are

missing systematically or randomly; for example, are data missing across the board for those in a specific

waiver population in a given state? If so, the resulting data are not representative of the entire sample or

population. We advise caution when examining data that are indicated as having high rates of “missing”

or “don’t know” responses. Please note that the NCI average reflects the average of data that were

reported to HSRI and may not be reflective of the service population across the country.



Table 1. Age ¥

State Mean Min Max Standard Deviation

Median N

AL 46 18 86 14 45 387

AR 41 18 83 14 38 396

CO 42 18 83 16 39 397

CT 45 19 88 17 43 368

DE 47 19 94 16 47 407

DC 48 20 90 15 50 392

FL 38 18 83 14 36 768

GA 41 19 82 13 39 456

HI 43 19 91 17 41 402

ID 35 18 86 14 31 411

IL 42 19 80 14 39 375

IN 40 18 90 15 38 741

KS 40 18 82 15 36 388

KY 40 18 77 14 38 425

LA 43 19 82 15 42 415

ME 47 18 93 18 46 397

MI 44 18 83 16 46 505

MN 44 18 105 16 42 2,199

MS 43 21 79 13 42 412

MO 44 19 90 15 43 400

NE 39 18 83 15 35 399

NV 38 18 76 13 36 433

NH 39 21 85 14 36 408

NJ 45 20 85 15 44 398

NY 42 18 89 16 40 529

NC 37 19 84 15 33 721

OH 41 18 97 16 38 698

OK 44 18 83 13 42 400

OR 40 19 83 15 38 411

PA 43 19 91 16 41 692

RI 43 21 86 16 40 361

SD 43 19 86 16 40 342

TN 48 19 88 16 49 494

TX 43 18 86 14 41 2,034

UT 39 19 82 14 36 411

VT 42 19 86 15 39 328

VA 45 19 99 16 45 798

WI 39 19 90 16 34 558

WY 40 19 79 15 38 326

NCI Average 42 18 105 16 40 21,382

¥ Item is used for risk adjustment



Table 2. Age Group

State 18-22 23-34 35-54 55-74 75 and older Unknown N

AL 3% 24% 45% 27% 2% 0% 387

AR 8% 30% 41% 18% 1% 1% 401

CO 13% 27% 35% 22% 2% 1% 403

CT 6% 29% 32% 28% 4% 1% 372

DE 4% 24% 36% 32% 4% 0% 409

DC 2% 24% 36% 35% 3% 1% 395

FL 11% 34% 38% 15% 0% 2% 781

GA 1% 37% 44% 16% 1% 1% 462

HI 9% 30% 32% 25% 2% 1% 406

ID 19% 38% 31% 12% 0% 0% 412

IL 3% 37% 37% 21% 1% 1% 379

IN 14% 27% 37% 20% 1% 0% 742

KS 9% 34% 32% 19% 1% 4% 404

KY 9% 34% 38% 18% 1% 0% 427

LA 8% 25% 45% 20% 2% 0% 415

ME 8% 21% 34% 31% 6% 1% 400

MI 8% 27% 34% 30% 1% 0% 505

MN 8% 28% 34% 27% 3% 0% 2,199

MS 3% 25% 49% 19% 1% 1% 418

MO 6% 26% 42% 24% 2% 0% 400

NE 10% 39% 33% 16% 2% 0% 402

NV 7% 40% 40% 12% 0% 1% 437

NH 4% 42% 34% 17% 1% 1% 412

NJ 3% 29% 36% 28% 3% 1% 402

NY 11% 32% 31% 24% 2% 0% 530

NC 14% 39% 34% 12% 1% 0% 723

OH 11% 31% 34% 22% 2% 1% 704

OK 4% 27% 46% 23% 1% 0% 400

OR 9% 35% 36% 17% 2% 0% 412

PA 8% 30% 35% 23% 3% 2% 708

RI 3% 37% 32% 24% 3% 1% 366

SD 7% 32% 36% 22% 3% 0% 342

TN 4% 22% 35% 34% 3% 0% 496

TX 1% 37% 42% 18% 2% 1% 2,064

UT 11% 35% 38% 14% 2% 1% 416

VT 5% 36% 38% 18% 2% 0% 328

VA 6% 26% 35% 28% 4% 0% 802

WI 11% 40% 28% 19% 3% 0% 559

WY 10% 32% 33% 23% 1% 1% 328

NCI Average 8% 31% 35% 22% 2% 1% 21,548



Table 3. Gender

State Male Female Other N

AL 58% 42% 0.0% 385

AR 59% 41% 0.3% 396

CO 61% 39% 0.0% 402

CT 59% 41% 0.0% 367

DE 59% 41% 0.0% 402

DC 64% 36% 0.0% 392

FL 58% 42% 0.0% 771

GA 61% 39% 0.0% 457

HI 59% 41% 0.0% 404

ID 56% 44% 0.0% 412

IL 55% 45% 0.0% 376

IN 61% 39% 0.0% 740

KS 57% 43% 0.0% 391

KY 59% 41% 0.0% 425

LA 54% 46% 0.0% 409

ME 57% 43% 0.0% 397

MI 56% 44% 0.0% 505

MN 56% 44% 0.0% 2,199

MS 57% 43% 0.0% 418

MO 54% 45% 0.3% 396

NE 62% 38% 0.0% 402

NV 53% 47% 0.0% 433

NH 62% 38% 0.0% 407

NJ 58% 42% 0.0% 395

NY 62% 38% 0.0% 527

NC 60% 40% 0.0% 720

OH 57% 43% 0.0% 699

OK 55% 45% 0.0% 400

OR 59% 41% 0.0% 409

PA 56% 44% 0.0% 689

RI 56% 44% 0.3% 364

SD 57% 43% 0.0% 341

TN 57% 43% 0.0% 494

TX 60% 40% 0.1% 2,060

UT 60% 40% 0.0% 414

VT 61% 39% 0.0% 328

VA 60% 40% 0.0% 801

WI 56% 44% 0.0% 555

WY 56% 44% 0.0% 326

NCI Average 58% 42% 0.0% 21,408



Table 4. Marital Status

State Single, Never

Married Married Single, Married

in the Past Don't Know N

AL 97% 2% 1% 0% 385

AR 93% 3% 4% 0% 395

CO 93% 2% 5% 0% 402

CT 97% 1% 2% 0% 366

DE 99% 0% 0% 0% 401

DC 98% 0% 0% 1% 386

FL 98% 1% 1% 0% 762

GA 97% 2% 1% 0% 453

HI 97% 1% 1% 0% 403

ID 96% 1% 2% 0% 412

IL 96% 2% 2% 0% 377

IN 94% 3% 3% 0% 737

KS 95% 2% 4% 0% 390

KY 96% 1% 2% 0% 423

LA 96% 1% 2% 0% 415

ME 94% 2% 4% 1% 396

MI 96% 1% 2% 0% 504

MN 96% 2% 2% 0% 2,042

MS 97% 1% 2% 0% 408

MO 96% 0% 3% 1% 400

NE 92% 2% 6% 1% 398

NV 95% 1% 2% 2% 413

NH 92% 3% 4% 1% 405

NJ 98% 1% 0% 0% 402

NY 96% 2% 2% 0% 528

NC 97% 1% 2% 0% 720

OH 95% 1% 3% 1% 697

OK 96% 1% 3% 0% 400

OR 83% 4% 4% 9% 412

PA 94% 2% 2% 1% 681

RI 97% 2% 1% 0% 362

SD 95% 1% 4% 0% 342

TN 96% 0% 2% 1% 489

TX 96% 1% 2% 1% 2,061

UT 93% 2% 4% 0% 414

VT 95% 1% 4% 0% 328

VA 95% 0% 3% 2% 797

WI* 64% 3% 4% 29% 559

WY 86% 5% 8% 0% 325

NCI Average 94% 2% 2% 2% 21,190

*State had a large number of “don’t knows” and missing data (at least 25%)



Table 5. Race

State

American Indian or

Alaska Native Asian

Black or African

American Pacific

Islander White Hispanic or Latino Other

Two or More

Don't Know N

AL 0% 0% 41% 0% 58% 1% 0% 0% 0% 386

AR 0% 1% 20% 0% 76% 0% 2% 1% 0% 396

CO 1% 1% 2% 1% 46% 0% 38% 0% 13% 391

CT 0% 1% 11% 0% 75% 8% 2% 1% 2% 370

DE 0% 0% 29% 0% 67% 2% 0% 0% 1% 403

DC 0% 0% 88% 0% 8% 2% 2% 0% 1% 392

FL 1% 1% 26% 0% 54% 16% 1% 1% 1% 764

GA 0% 1% 44% 0% 52% 1% 1% 0% 0% 455

HI 0% 40% 1% 13% 18% 2% 4% 20% 0% 402

ID 1% 0% 1% 0% 85% 6% 1% 3% 3% 412

IL 0% 2% 24% 0% 63% 7% 0% 4% 0% 378

IN 0% 0% 10% 0% 86% 1% 0% 1% 1% 736

KS 1% 1% 12% 0% 80% 4% 1% 2% 1% 388

KY 0% 0% 8% 0% 89% 0% 1% 1% 1% 427

LA 1% 0% 37% 0% 61% 1% 0% 0% 0% 415

ME 0% 1% 1% 0% 95% 0% 0% 1% 2% 391

MI 1% 1% 17% 0% 76% 1% 2% 1% 1% 505

MN 2% 1% 3% 0% 91% 0% 0% 2% 1% 2,199

MS 0% 0% 50% 0% 47% 0% 0% 2% 0% 418

MO 0% 0% 15% 0% 83% 1% 0% 1% 0% 398

NE 4% 2% 6% 0% 79% 5% 0% 4% 1% 401

NV 1% 4% 15% 0% 64% 11% 1% 1% 1% 429

NH 1% 0% 2% 0% 93% 1% 1% 0% 1% 405

NJ 1% 2% 21% 1% 67% 6% 2% 0% 1% 393

NY 0% 1% 19% 0% 61% 14% 2% 2% 1% 529

NC 1% 1% 35% 0% 60% 2% 1% 0% 1% 721

OH 1% 0% 17% 0% 77% 2% 1% 1% 1% 700

OK 9% 0% 13% 0% 74% 1% 0% 1% 0% 400

OR 1% 1% 3% 0% 87% 4% 1% 0% 2% 411

PA 0% 0% 11% 0% 83% 3% 1% 1% 1% 684

RI 0% 1% 7% 0% 81% 7% 2% 1% 1% 362

SD 11% 1% 1% 0% 84% 1% 1% 1% 0% 340

TN 1% 0% 22% 0% 74% 0% 1% 1% 0% 493

TX 0% 1% 20% 0% 52% 21% 1% 2% 2% 2,064

UT 2% 1% 3% 0% 83% 7% 1% 1% 1% 412

VT 1% 2% 0% 0% 96% 0% 0% 1% 1% 327

VA 0% 3% 27% 0% 61% 1% 1% 1% 6% 802

WI 1% 1% 4% 0% 89% 2% 0% 2% 2% 559

WY 4% 0% 2% 0% 90% 4% 0% 1% 0% 327

NCI Average 1% 1% 16% 0% 72% 6% 1% 1% 1% 21,385



Table 6. Residential Designation ˇ

State Metropolitan Micropolitan Rural Small Town N

AL 77% 9% 5% 9% 386

AR* 65% 19% 3% 14% 189

CO 82% 7% 0% 10% 403

CT 95% 4% 1% 0% 339

DE 78% 17% 0% 5% 364

DC* 100% 0% 0% 0% 296

FL 95% 2% 0% 2% 686

GA 79% 10% 2% 9% 430

HI 78% 17% 3% 2% 403

ID 78% 16% 3% 4% 411

IL 82% 10% 1% 7% 362

IN 73% 18% 3% 6% 740

KS 46% 38% 6% 10% 345

KY 38% 39% 5% 18% 375

LA 87% 7% 0% 6% 415

ME 40% 20% 22% 19% 399

MI 78% 10% 6% 6% 504

MN 44% 27% 7% 21% 2,199

MS 56% 35% 4% 4% 418

MO 60% 19% 7% 15% 400

NE 58% 23% 5% 14% 398

NV 97% 3% 0% 0% 427

NH 62% 20% 7% 12% 390

NJ 98% 2% 0% 0% 378

NY 86% 8% 3% 3% 504

NC 66% 25% 3% 6% 721

OH 77% 15% 1% 7% 628

OK 49% 35% 5% 11% 400

OR* 53% 42% 1% 4% 134

PA 78% 14% 3% 6% 625

RI 100% 0% 0% 0% 352

SD 45% 40% 6% 9% 333

TN 68% 19% 2% 11% 478

TX 83% 14% 0% 2% 2,051

UT 84% 9% 2% 5% 359

VT 10% 19% 34% 38% 328

VA 82% 7% 5% 5% 802

WI 61% 17% 8% 14% 544

WY 30% 41% 7% 23% 286

NCI Average 74% 15% 4% 8% 20,202

ˇInformation based on residential designation defined by the USDA: http://www.ers.usda.gov/data-products/rural-urban-commuting-area-codes.aspx *State had a large number of “don’t knows” and missing data (at least 25%)

http://www.ers.usda.gov/data-products/rural-urban-commuting-area-codes.aspx

http://www.ers.usda.gov/data-products/rural-urban-commuting-area-codes.aspx



Table 7. Type of Residence – Institutional Setting

State

ICF/IID (4-6 Residents

with Disabilities)

ICF/IID (7-15 Residents

with Disabilities)

ICF/IID (16 or More

Residents with Disabilities)

Nursing Facility

Other Specialized Institutional

Facility N

AL 0% 0% 0% 0% 0% 386

AR 0% 0% 0% 0% 0% 400 CO 1% 0% 0% 1% 0% 374 CT 1% 2% 7% 1% 0% 370

DE 0% 0% 0% 0% 0% 409

DC 17% 0% 0% 0% 0% 389

FL 0% 0% 0% 0% 0% 781

GA 0% 0% 0% 0% 0% 455

HI 0% 0% 0% 0% 0% 403

ID 0% 0% 0% 0% 0% 412

IL 0% 0% 0% 0% 1% 378

IN 0% 0% 0% 0% 0% 742

KS 0% 0% 0% 0% 0% 387

KY 0% 0% 1% 0% 0% 424

LA 14% 10% 6% 0% 0% 412 ME 0% 2% 0% 1% 1% 398

MI 0% 0% 0% 0% 0% 503

MN 4% 2% 2% 1% 0% 2,199

MS 0% 0% 0% 0% 0% 415

MO 0% 0% 0% 0% 1% 399

NE 1% 0% 0% 2% 3% 401

NV 0% 0% 0% 0% 0% 422

NH 0% 0% 0% 0% 0% 399

NJ 0% 0% 0% 0% 0% 398

NY 1% 3% 1% 0% 1% 526

NC 2% 0% 7% 0% 0% 720

OH 2% 4% 6% 2% 0% 698 OK 0% 0% 0% 0% 0% 400

OR 0% 0% 0% 0% 0% 411

PA 2% 1% 2% 2% 1% 687

RI 0% 0% 0% 0% 0% 363

SD 0% 0% 2% 0% 0% 342

TN 1% 0% 0% 0% 1% 489

TX 7% 2% 7% 0% 0% 2,064

UT 0% 0% 6% 0% 0% 416

VT 0% 0% 0% 0% 0% 801

VA 1% 2% 1% 6% 0% 328

WI 0% 0% 0% 0% 0% 558

WY 0% 0% 0% 0% 0% 326 NCI Average 2% 2% 2% 1% 0% 21,385



Table 8. Type of Residence – Group Residential Setting

State

Group Living Setting

(2-3 People With Disabilities)


(4-6 People With Disabilities)


(7-15 People With Disabilities) N

AL 33% 11% 7% 386

AR 2% 2% 9% 400

CO 8% 8% 3% 374

CT 10% 23% 4% 370

DE 44% 42% 0% 409

DC 37% 4% 0% 389

FL 1% 24% 3% 781

GA 15% 10% 0% 455

HI 1% 13% 0% 403

ID 0% 0% 0% 412

IL 4% 23% 15% 378

IN 0% 0% 0% 742

KS 14% 23% 8% 387

KY 30% 1% 1% 424

LA 0% 0% 0% 412

ME 20% 15% 2% 398

MI 6% 28% 7% 503

MN 0% 53% 0% 2,199

MS 11% 9% 5% 415

MO 9% 13% 6% 399

NE 10% 10% 3% 401

NV 18% 24% 0% 422

NH 7% 3% 1% 399

NJ 13% 34% 3% 398

NY 5% 15% 20% 526

NC 7% 11% 0% 720

OH 8% 9% 2% 698

OK 32% 10% 4% 400

OR 13% 17% 1% 411

PA 19% 7% 1% 687

RI 8% 24% 2% 363

SD 3% 17% 19% 342

TN 25% 4% 3% 489

TX 12% 16% 0% 2,064

UT 17% 10% 2% 416

VT 3% 3% 0% 801

VA 7% 32% 4% 328

WI 4% 9% 3% 558

WY 13% 15% 3% 326

NCI Average 8% 18% 5% 21,385



Table 9. Type of Residence – Other Home Settings

State

Own Home or

Apartment

Parent or Relative's

Home

Foster Care or Host Home (2 or

More People With a Disability)

Foster Care, Host Home, or Shared Living

(1 Person With a Disability) Homeless Other

Don't Know N

AL 11% 37% 0% 0% 0% 0% 0% 386

AR 43% 36% 1% 4% 0% 3% 0% 400

CO 13% 45% 12% 9% 1% 1% 0% 374

CT 19% 31% 2% 2% 0% 0% 0% 370

DE 4% 0% 2% 8% 0% 0% 0% 409 DC 18% 21% 1% 1% 0% 0% 0% 389

FL 18% 54% 0% 0% 0% 0% 0% 781

GA 13% 47% 11% 3% 0% 0% 0% 455

HI 6% 50% 26% 3% 0% 0% 0% 403

ID 37% 50% 0% 0% 0% 10% 2% 412

IL 11% 44% 1% 1% 0% 0% 0% 378

IN 29% 67% 3% 1% 0% 0% 0% 742

KS 26% 24% 1% 2% 0% 0% 1% 387

KY 11% 42% 7% 5% 0% 0% 0% 424

LA 25% 44% 0% 0% 0% 0% 0% 412

ME 21% 25% 5% 8% 0% 1% 0% 398

MI 25% 29% 3% 0% 0% 0% 0% 503 MN 11% 22% 3% 0% 0% 0% 3% 2,199

MS 26% 46% 0% 0% 0% 0% 0% 415

MO 56% 10% 4% 2% 0% 0% 0% 399

NE 14% 42% 5% 9% 0% 0% 2% 401

NV 22% 32% 1% 2% 0% 0% 1% 422

NH 14% 38% 13% 22% 0% 0% 0% 399

NJ 11% 33% 5% 1% 1% 0% 0% 398

NY 12% 38% 1% 0% 0% 2% 0% 526

NC 5% 57% 4% 5% 0% 1% 0% 720

OH 23% 43% 1% 0% 0% 0% 0% 698

OK 22% 28% 1% 4% 0% 0% 0% 400

OR 18% 30% 15% 2% 0% 1% 2% 411 PA 13% 46% 1% 3% 0% 2% 0% 687

RI 17% 42% 1% 5% 0% 0% 1% 363

SD 36% 22% 0% 0% 0% 0% 1% 342

TN 32% 28% 2% 1% 0% 1% 0% 489

TX 8% 41% 3% 3% 0% 0% 0% 2,064

UT 17% 42% 3% 4% 0% 0% 0% 416

VT 16% 29% 16% 32% 1% 1% 0% 801

VA 6% 29% 5% 5% 0% 0% 0% 328

WI 27% 44% 1% 1% 0% 8% 4% 558

WY 31% 33% 2% 3% 0% 0% 0% 326

NCI Average 17% 39% 3% 2% 0% 1% 1% 21,385



Table 10. Length of Time at Current Residence

State Less Than 1

Year 1-3 Years 3-5 Years Over 5 Years Don't Know N

AL 7% 18% 13% 61% 1% 385

AR 11% 19% 12% 53% 5% 393

CO 11% 21% 10% 57% 0% 401

CT 9% 16% 10% 63% 2% 367

DE 9% 29% 18% 40% 5% 398

DC* 3% 4% 1% 43% 49% 380

FL 11% 18% 13% 58% 1% 769

GA 7% 18% 10% 61% 3% 451

HI 4% 6% 6% 82% 2% 401

ID 15% 19% 11% 54% 1% 409

IL 8% 16% 13% 59% 5% 376

IN 12% 11% 8% 67% 2% 731

KS 14% 24% 14% 43% 5% 388

KY 15% 21% 11% 46% 8% 419

LA 5% 12% 12% 64% 7% 408

ME 12% 18% 15% 54% 2% 388

MI 10% 19% 13% 53% 4% 502

MN 8% 12% 11% 67% 2% 2,036

MS 9% 18% 11% 58% 4% 409

MO 14% 19% 16% 49% 2% 399

NE 8% 18% 17% 56% 2% 400

NV 9% 28% 13% 45% 5% 415

NH 14% 21% 10% 52% 2% 394

NJ 3% 10% 11% 73% 2% 392

NY 8% 13% 9% 65% 5% 523

NC 6% 14% 8% 68% 4% 714

OH 12% 14% 10% 57% 7% 689

OK 12% 22% 10% 56% 0% 400

OR 9% 20% 11% 54% 6% 412

PA 9% 18% 9% 56% 7% 683

RI 6% 14% 9% 65% 6% 360

SD 10% 25% 11% 43% 11% 333

TN 12% 24% 15% 44% 5% 473

TX 7% 14% 11% 64% 4% 2,060

UT 12% 18% 8% 60% 2% 407

VT 16% 23% 9% 51% 1% 328

VA 7% 17% 12% 57% 6% 794

WI* 6% 11% 10% 43% 30% 555

WY 14% 21% 12% 50% 2% 323

NCI Average 9% 15% 11% 59% 5% 21,065




Table 11. Person's residence owned or controlled by provider agency

State Yes No Don't Know N

AL 55% 44% 1% 385

AR 28% 68% 4% 394

CO 42% 57% 1% 369

CT 47% 52% 1% 358

DE 94% 5% 0% 406

DC 70% 28% 2% 382

FL 28% 72% 0% 762

GA 36% 64% 1% 450

HI 32% 62% 6% 395

ID 16% 77% 7% 408

IL 43% 54% 3% 373

IN 6% 93% 1% 742

KS 51% 46% 3% 382

KY 44% 54% 2% 415

LA 25% 73% 2% 395

ME 50% 46% 4% 395

MI 38% 58% 4% 501

MN* 0% 0% 100% 2,199

MS 35% 59% 6% 415

MO 36% 59% 5% 399

NE 41% 56% 3% 397

NV 43% 56% 2% 418

NH 46% 52% 2% 395

NJ 54% 42% 4% 395

NY 46% 49% 6% 523

NC 32% 64% 5% 716

OH 26% 70% 5% 694

OK 27% 73% 0% 400

OR 40% 43% 16% 412

PA 40% 55% 5% 662

RI 36% 60% 4% 357

SD 45% 53% 2% 337

TN 41% 55% 4% 485

TX 41% 52% 6% 2,015

UT 36% 63% 1% 414

VT 28% 71% 1% 328

VA 64% 34% 3% 785

WI* 2% 15% 83% 557

WY 39% 60% 1% 318

NCI Average 33% 49% 18% 21,133




Table 12. Person is named on the lease

State Named on Lease

or Deed

Named on Other Legally Enforceable

Rental Agreement No Don't Know N AL 29% 3% 53% 16% 384

AR 30% 11% 50% 9% 391

CO 9% 3% 72% 16% 369

CT 18% 1% 69% 12% 363

DE 2% 0% 90% 8% 406

DC 1% 0% 93% 6% 389

FL 20% 1% 76% 3% 765

GA 17% 5% 73% 6% 451

HI 3% 2% 92% 4% 397

ID 33% 21% 41% 5% 407

IL 11% 1% 78% 10% 376

IN 21% 1% 76% 2% 739 KS 32% 16% 34% 17% 385 KY 7% 4% 78% 11% 423

LA 16% 2% 71% 11% 409

ME 17% 5% 69% 9% 389

MI 19% 5% 61% 15% 498

MN 11% 2% 84% 3% 2,039

MS 23% 10% 52% 15% 409

MO 43% 3% 39% 15% 399

NE* 11% 8% 54% 27% 400

NV 19% 1% 70% 9% 412

NH 8% 2% 86% 4% 393

NJ 3% 1% 93% 3% 391

NY 11% 2% 76% 12% 515 NC 6% 1% 85% 8% 712

OH 25% 4% 57% 14% 694

OK 42% 24% 34% 0% 400

OR* 0% 0% 0% 100% 409

PA 9% 2% 70% 19% 676

RI 17% 2% 65% 16% 358

SD 36% 6% 43% 16% 340

TN 35% 3% 42% 19% 487

TX 7% 3% 84% 7% 2,055

UT 11% 4% 76% 8% 410

VT 11% 2% 87% 1% 328

VA 7% 6% 72% 14% 795 WI* 5% 0% 8% 87% 556

WY 43% 3% 48% 6% 321

NCI Average 14% 3% 67% 16% 21,040




Table 13. Person owns home


AL 1% 96% 3% 384

AR 4% 95% 1% 392

CO 2% 95% 3% 372

CT 1% 97% 2% 364

DE 0% 99% 1% 394

DC 0% 99% 1% 388

FL 3% 97% 0% 760

GA 3% 96% 1% 450

HI 0% 97% 3% 396

ID 2% 98% 0% 408

IL 2% 93% 5% 375

IN 1% 98% 1% 735

KS 3% 96% 1% 387

KY 1% 97% 2% 421

LA 4% 91% 6% 411

ME 6% 94% 1% 386

MI 3% 96% 2% 498

MN 1% 98% 0% 2,036

MS 3% 87% 10% 415

MO 2% 97% 1% 398

NE 1% 93% 6% 397

NV 2% 96% 2% 421

NH 1% 98% 1% 396

NJ 1% 98% 1% 393

NY 1% 97% 2% 524

NC 1% 97% 2% 711

OH 1% 95% 3% 691

OK 2% 98% 0% 400

OR* 0% 0% 100% 410

PA 1% 96% 3% 679

RI 2% 94% 4% 358

SD 1% 99% 1% 339

TN 4% 94% 2% 483

TX 2% 96% 2% 2,058

UT 1% 98% 0% 411

VT 1% 98% 0% 328

VA 2% 93% 5% 798

WI* 1% 13% 86% 557

WY 6% 93% 1% 321

NCI Average 2% 90% 8% 21,045




Table 14. Has ID Diagnosis


AL 99% 1% 0% 387

AR 91% 8% 1% 395

CO 98% 2% 0% 391

CT 99% 1% 0% 370

DE 94% 2% 3% 402

DC 98% 2% 0% 389

FL 86% 14% 1% 772

GA 98% 2% 0% 456

HI 97% 3% 0% 406

ID 100% 0% 0% 412

IL 97% 3% 0% 376

IN 92% 6% 2% 738

KS 96% 4% 1% 392

KY 93% 6% 1% 414

LA 91% 8% 1% 415

ME 94% 5% 1% 395

MI 92% 7% 1% 505

MN 100% 0% 0% 2,199

MS 91% 0% 9% 412

MO 87% 13% 1% 400

NE 97% 2% 1% 399

NV 93% 7% 0% 431

NH 78% 21% 0% 408

NJ 91% 7% 2% 395

NY 94% 5% 2% 528

NC 95% 4% 1% 722

OH 88% 10% 2% 697

OK 100% 0% 0% 400

OR 80% 14% 7% 412

PA 99% 0% 0% 682

RI 93% 3% 4% 363

SD 88% 9% 3% 337

TN 99% 1% 0% 490

TX 95% 3% 3% 2,061

UT 92% 8% 1% 408

VT 90% 9% 1% 328

VA 92% 7% 1% 799

WI 95% 0% 5% 555

WY 85% 15% 0% 325

NCI Average 94% 5% 1% 21,366



Table 15. Level of ID (if the person has an ID diagnosis) ¥

State Mild Moderate Severe Profound Unspecified N

AL 32% 49% 13% 6% 0% 382

AR 39% 33% 13% 7% 7% 355

CO 27% 24% 8% 4% 38% 343

CT 53% 27% 13% 7% 0% 367

DE 42% 24% 18% 12% 5% 370

DC 24% 30% 20% 23% 3% 381

FL 28% 43% 14% 7% 8% 652

GA 29% 35% 16% 9% 11% 445

HI 17% 45% 17% 19% 2% 391

ID 19% 18% 10% 5% 48% 408

IL 45% 28% 15% 11% 1% 364

IN 58% 23% 9% 6% 4% 680

KS 45% 26% 8% 9% 11% 370

KY 47% 31% 10% 5% 6% 382

LA 39% 27% 15% 15% 4% 376

ME 46% 32% 11% 9% 2% 365

MI 35% 30% 17% 11% 7% 462

MN 42% 28% 14% 9% 8% 2,199

MS 42% 28% 15% 15% 0% 374

MO 39% 24% 20% 9% 7% 346

NE 31% 45% 11% 6% 6% 385

NV 55% 22% 13% 6% 5% 397

NH 52% 26% 7% 2% 12% 318

NJ 28% 27% 14% 7% 24% 348

NY 42% 30% 12% 12% 4% 493

NC 26% 38% 20% 13% 4% 677

OH 44% 30% 13% 8% 4% 607

OK 43% 22% 15% 20% 1% 400

OR 63% 24% 9% 5% 0% 328

PA 47% 29% 12% 8% 4% 675

RI 30% 27% 14% 9% 20% 334

SD 57% 26% 6% 7% 4% 296

TN 31% 30% 12% 13% 15% 470

TX 38% 31% 14% 13% 5% 1,931

UT 44% 23% 14% 15% 4% 370

VT 56% 28% 7% 3% 7% 296

VA 30% 35% 18% 15% 2% 695

WI 0% 0% 0% 0% 99% 528

WY 53% 32% 9% 2% 4% 274

NCI Average 39% 29% 13% 9% 10% 19,834




Table 16. Mood, Anxiety, Behavior, Psychotic, and Other Mental Illness ∞

State Mood Disorder Anxiety Disorder Behavior

Challenges Psychotic

Disorder

Other Mental Illness or

Psychiatric Diagnosis

AL 32% 20% 20% 23% 9%

AR 35% 23% 26% 13% 10% CO 9% 6% 13% 2% 0% CT 37% 33% 42% 14% 12%

DE 41% 32% 47% 17% 12%

DC 30% 24% 40% 25% 9%

FL 25% 23% 23% 12% 4%

GA 26% 21% 27% 17% 12%

HI 11% 6% 6% 9% 7%

ID 32% 26% 12% 8% 1%

IL 30% 21% 24% 12% 8%

IN 20% 22% 24% 5% 2%

KS 50% 39% 44% 16% 15%

KY 35% 24% 34% 13% 15%

LA 34% 21% 32% 16% 9% ME 33% 32% 30% 9% 11%

MI 33% 21% 27% 13% 14%

MN 9% 7% 24% 3% 19%

MS 28% 20% 18% 13% 9%

MO 40% 27% 27% 16% 7%

NE 23% 31% 26% 6% 10%

NV 32% 24% 16% 13% 8%

NH 35% 34% 32% 5% 13%

NJ 27% 25% 20% 15% 9%

NY 25% 26% 34% 13% 13%

NC 26% 23% 34% 12% 13%

OH 32% 26% 25% 12% 14% OK 45% 29% 33% 16% 9%

OR^ 0% 0% 0% 0% 0%

PA 34% 24% 26% 10% 9%

RI 37% 42% 39% 9% 12%

SD 34% 26% 25% 11% 17%

TN 45% 37% 45% 20% 16%

TX 36% 25% 30% 15% 17%

UT 45% 38% 46% 8% 9%

VT 41% 43% 31% 10% 11%

VA 30% 22% 33% 13% 9%

WI 24% 29% 36% 4% 17%

WY 38% 22% 17% 10% 9% NCI Average 27% 23% 28% 11% 12%

∞Categories are not mutually exclusive and N may differ by category; therefore, N is not shown ^Data for OR were not available in state records



Table 17. Other Disabilities ∞

State Autism Spectrum Disorder

Cerebral Palsy Brain Injury Seizure Disorder Chemical Dependency

AL 6% 14% 2% 28% 1%

AR 13% 19% 8% 24% 2%

CO 12% 14% 2% 28% 0%

CT 18% 14% 3% 25% 2%

DE 16% 13% 3% 26% 1%

DC 15% 19% 1% 29% 0%

FL 16% 21% 3% 28% 0%

GA 13% 14% 1% 31% 0%

HI 15% 13% 1% 32% 1%

ID 25% 13% 5% 23% 0%

IL 18% 13% 3% 23% 1%

IN 20% 13% 3% 23% 1%

KS 25% 17% 3% 33% 1%

KY 19% 16% 4% 30% 1%

LA 14% 16% 7% 34% 1%

ME 18% 7% 6% 26% 2%

MI 20% 15% 3% 21% 2%

MN 13% 12% 1% 15% 0%

MS 8% 14% 4% 28% 1%

MO 20% 15% 4% 30% 1%

NE 22% 15% 4% 24% 2%

NV 19% 13% 4% 30% 1%

NH 21% 11% 14% 26% 3%

NJ 30% 23% 8% 32% 2%

NY 23% 14% 5% 27% 2%

NC 27% 20% 5% 36% 1%

OH 17% 15% 5% 31% 1%

OK 13% 22% 4% 41% 2%

OR 18% 10% 2% 15% 0%

PA 15% 13% 3% 28% 1%

RI 19% 17% 5% 30% 1%

SD 18% 15% 7% 30% 3%

TN 16% 18% 6% 36% 1%

TX 18% 16% 9% 30% 2%

UT 20% 14% 5% 32% 2%

VT 24% 12% 3% 21% 2%

VA 19% 16% 5% 31% 2%

WI 18% 17% 10% 28% 2%

WY 15% 13% 12% 29% 3%

NCI Average 18% 15% 4% 26% 1%

∞Categories are not mutually exclusive and N may differ by category; therefore, N is not shown



Table 18. Other Disabilities (continued) ∞

State Down

Syndrome Prader-

Willi

Fetal Alcohol

Syndrome Limited or No Vision

Severe or Profound

Hearing Loss

Other Disabilities,

Not Listed No Other

Disabilities AL 6% 0% 1% 8% 3% 8% 15%

AR 8% 1% 1% 6% 7% 24% 4%

CO 12% 0% 0% 6% 5% 42% 0%

CT 10% 1% 2% 9% 7% 28% 3%

DE 5% 1% 2% 12% 9% 25% 1%

DC 7% 0% 1% 7% 10% 6% 2%

FL 9% 1% 1% 9% 2% 7% 4%

GA 12% 0% 1% 5% 4% 9% 10%

HI 14% 0% 0% 5% 5% 26% 14%

ID 11% 1% 3% 4% 4% 88% 0%

IL 9% 1% 1% 5% 5% 21% 6%

IN 8% 0% 1% 9% 7% 11% 15% KS 14% 0% 2% 8% 7% 30% 4% KY 9% 0% 0% 9% 6% 24% 4%

LA 9% 0% 0% 13% 6% 22% 2%

ME 11% 1% 1% 14% 9% 26% 9%

MI 8% 1% 2% 8% 5% 26% 10%

MN 6% 1% 1% 16% 4% 0% 0%

MS 8% 1% 0% 6% 7% 25% 3%

MO 8% 1% 0% 9% 8% 24% 6%

NE 12% 1% 3% 7% 6% 17% 8%

NV 9% 1% 3% 8% 3% 28% 4%

NH 13% 0% 1% 9% 5% 33% 2%

NJ 14% 0% 0% 10% 5% 20% 2%

NY 10% 1% 2% 9% 8% 24% 6% NC 9% 1% 1% 15% 7% 30% 3%

OH 10% 0% 1% 12% 9% 25% 6%

OK 10% 1% 1% 41% 12% 20% 3%

OR 4% 0% 1% 0% 0% 2% 50%

PA 12% 1% 1% 11% 9% 21% 7%

RI 13% 1% 1% 10% 8% 38% 4%

SD 7% 0% 2% 10% 7% 19% 6%

TN 9% 1% 1% 10% 9% 35% 0%

TX 11% 1% 1% 12% 9% 46% 4%

UT 10% 0% 1% 12% 4% 16% 3%

VT 10% 1% 0% 7% 6% 24% 9%

VA 6% 2% 1% 12% 7% 20% 4% WI 13% 0% 0% 3% 3% 0% 0%

WY 9% 1% 1% 10% 5% 16% 9%

NCI Average 10% 1% 1% 10% 6% 19% 6%

∞Categories are not mutually exclusive and N may differ by category; therefore, N is not shown



Table 19. Health Conditions ∞

State Cardiovascular

Disease Diabetes Cancer High Blood

Pressure High Cholesterol

AL 3% 18% 2% 35% 22%

AR 5% 11% 1% 23% 16%

CO 7% 9% 5% 19% 16%

CT 13% 9% 5% 24% 28%

DE 7% 15% 3% 20% 19%

DC 4% 12% 1% 33% 16%

FL 4% 8% 2% 20% 17%

GA 7% 10% 1% 27% 17%

HI 2% 9% 1% 16% 19%

ID 2% 7% 1% 10% 5%

IL 5% 8% 2% 15% 10%

IN 5% 8% 1% 20% 19%

KS 16% 18% 1% 25% 26%

KY 7% 17% 3% 23% 20%

LA 7% 13% 0% 29% 22%

ME 9% 13% 6% 18% 17%

MI 7% 11% 2% 20% 17%

MN 7% 8% 3% 18% 16%

MS 6% 15% 2% 28% 16%

MO 6% 13% 2% 25% 16%

NE 9% 9% 3% 16% 16%

NV 7% 14% 2% 16% 10%

NH 7% 13% 2% 13% 18%

NJ 9% 13% 3% 23% 20%

NY 8% 11% 4% 18% 18%

NC 6% 13% 1% 22% 17%

OH 11% 11% 2% 23% 16%

OK 2% 14% 1% 34% 30%

OR^ 0% 0% 0% 0% 0%

PA 10% 10% 3% 20% 20%

RI 11% 14% 5% 20% 21%

SD 7% 12% 2% 14% 12%

TN 12% 18% 4% 30% 33%

TX 12% 13% 2% 22% 21%

UT 7% 11% 2% 13% 14%

VT 5% 10% 3% 17% 21%

VA 6% 13% 2% 23% 19%

WI 5% 10% 3% 18% 14%

WY 6% 10% 3% 16% 12%

NCI Average 7% 11% 3% 20% 17%




Table 20. Health Conditions (continued) ∞

State Dysphagia Pressure

Ulcers Alzheimer's Oral Health or

Dental Problems Sleep Apnea Other Health

Conditions

AL 1% 1% 2% 5% 5% 39%

AR 5% 2% 4% 8% 9% 35%

CO 9% 2% 3% 6% 14% 59%

CT 14% 1% 2% 11% 7% 53%

DE 13% 2% 6% 5% 6% 44%

DC 6% 0% 1% 1% 2% 44%

FL 3% 1% 1% 2% 2% 20%

GA 4% 0% 1% 2% 4% 33%

HI 4% 0% 1% 1% 2% 55%

ID 1% 0% 1% 0% 0% 60%

IL 4% 0% 2% 1% 5% 38%

IN 9% 1% 1% 3% 7% 32%

KS 7% 2% 4% 8% 7% 36%

KY 8% 2% 3% 4% 9% 41%

LA 7% 2% 3% 5% 8% 53%

ME 10% 2% 5% 7% 8% 35%

MI 9% 3% 3% 7% 7% 46%

MN 13% 3% 5% 10% 11% 27%

MS 3% 0% 1% 6% 3% 33%

MO 9% 1% 4% 6% 6% 46%

NE 10% 1% 5% 6% 3% 34%

NV 1% 1% 2% 2% 2% 56%

NH 6% 1% 2% 5% 9% 40%

NJ 6% 1% 2% 5% 4% 47%

NY 7% 1% 5% 6% 9% 33%

NC 7% 2% 2% 6% 9% 43%

OH 6% 2% 3% 5% 7% 39%

OK 15% 0% 6% 19% 7% 82%

OR^ 0% 0% 0% 0% 0% 0%

PA 9% 2% 4% 7% 6% 38%

RI 13% 2% 4% 7% 9% 46%

SD 8% 2% 4% 2% 9% 42%

TN 17% 5% 7% 9% 12% 65%

TX 8% 1% 3% 11% 8% 69%

UT 11% 3% 2% 7% 12% 35%

VT 7% 1% 3% 8% 9% 45%

VA 8% 2% 3% 6% 6% 42%

WI 1% 0% 2% 2% 2% 0%

WY 4% 2% 4% 4% 9% 31%

NCI Average 7% 2% 3% 6% 7% 36%




Table 21. Preferred Means of Communication

State Spoken Gestures Sign

Language Communication

Device Other Don't Know N

AL 92% 7% 0% 1% 1% 0% 385

AR 83% 13% 1% 0% 3% 1% 400

CO 80% 16% 2% 1% 0% 0% 402

CT 86% 8% 2% 1% 3% 1% 368

DE 74% 18% 1% 1% 4% 2% 408

DC 73% 17% 2% 2% 2% 4% 390

FL 74% 24% 1% 1% 1% 0% 761

GA 75% 22% 2% 0% 1% 0% 455

HI 65% 28% 3% 0% 3% 0% 403

ID 88% 8% 2% 0% 1% 0% 409

IL 82% 14% 3% 1% 1% 0% 377

IN 86% 10% 2% 1% 1% 0% 741

KS 82% 14% 0% 1% 3% 1% 390

KY 82% 13% 1% 0% 4% 0% 425

LA 77% 20% 0% 0% 2% 0% 415

ME 84% 11% 1% 1% 3% 0% 397

MI 77% 19% 1% 0% 3% 1% 504

MN 76% 12% 9% 2% 0% 0% 2,199

MS 84% 15% 0% 0% 1% 0% 408

MO 74% 22% 2% 1% 1% 0% 400

NE 81% 8% 1% 6% 3% 1% 398

NV 86% 10% 1% 1% 2% 0% 428

NH 87% 7% 1% 2% 3% 0% 403

NJ 70% 23% 1% 2% 5% 1% 399

NY 79% 15% 1% 1% 2% 1% 526

NC 74% 21% 1% 0% 2% 0% 722

OH 81% 12% 2% 1% 3% 1% 698

OK 70% 27% 2% 0% 0% 0% 400

OR 79% 13% 2% 1% 4% 1% 412

PA 79% 15% 1% 1% 3% 1% 677

RI 84% 11% 0% 1% 4% 0% 359

SD 87% 9% 1% 0% 3% 0% 340

TN 75% 22% 1% 1% 1% 0% 490

TX 74% 15% 1% 1% 6% 3% 2,062

UT 77% 18% 1% 0% 2% 0% 413

VT 86% 7% 2% 4% 2% 0% 328

VA 69% 25% 1% 1% 1% 2% 800

WI 78% 11% 1% 1% 2% 8% 558

WY 87% 10% 1% 2% 1% 0% 326

NCI Average 78% 15% 2% 1% 2% 1% 21,376



Table 22. Primary Language

State English Other N

AL 100% 0% 382

AR 97% 3% 397

CO 99% 1% 391

CT 96% 4% 362

DE 99% 1% 401

DC 98% 2% 383

FL 91% 9% 747

GA 99% 1% 454

HI 97% 3% 399

ID 97% 3% 408

IL 97% 3% 372

IN 99% 1% 728

KS 99% 1% 387

KY 99% 1% 421

LA 100% 0% 401

ME 96% 4% 394

MI 97% 3% 503

MN 99% 1% 2,199

MS 100% 0% 412

MO 100% 0% 394

NE 99% 1% 398

NV 97% 3% 409

NH 100% 0% 400

NJ 99% 1% 390

NY 92% 8% 523

NC 98% 2% 719

OH 98% 2% 689

OK 100% 0% 400

OR 98% 2% 408

PA 99% 1% 667

RI 97% 3% 356

SD 100% 0% 340

TN 99% 1% 483

TX 93% 7% 2,055

UT 98% 2% 411

VT 99% 1% 325

VA 98% 2% 797

WI 99% 1% 556

WY 99% 1% 325

NCI Average 97% 3% 21,186



Table 23. Mobility ¥

State Moves Self

Without Aids

Moves Self With Aids or Uses

Wheelchair Independently Non-Ambulatory Don't Know N

AL 84% 12% 4% 0% 384

AR 76% 14% 11% 0% 397 CO 76% 16% 8% 0% 402 CT 79% 13% 9% 0% 368

DE 74% 16% 9% 1% 405

DC 77% 13% 6% 4% 390

FL 76% 12% 12% 0% 760

GA 85% 9% 6% 0% 455

HI 71% 15% 14% 0% 403

ID 87% 9% 4% 0% 410

IL 83% 12% 4% 0% 375

IN 87% 8% 5% 0% 739

KS 78% 12% 9% 0% 394

KY 80% 12% 8% 0% 426

LA 71% 19% 11% 0% 414 ME 77% 17% 6% 0% 398

MI 71% 19% 10% 0% 505

MN 76% 16% 8% 0% 2,042

MS 81% 11% 8% 0% 409

MO 74% 17% 10% 0% 399

NE 77% 13% 9% 1% 402

NV 88% 10% 2% 1% 427

NH 78% 15% 7% 0% 403

NJ 78% 13% 9% 0% 396

NY 80% 13% 7% 0% 528

NC 74% 12% 14% 0% 723

OH 78% 15% 7% 1% 699 OK 75% 14% 12% 0% 400

OR 75% 12% 11% 2% 409

PA 75% 16% 10% 0% 685

RI 76% 15% 9% 0% 361

SD 77% 17% 6% 0% 342

TN 67% 18% 14% 1% 491

TX 74% 16% 9% 1% 2,063

UT 71% 16% 13% 0% 415

VT 84% 12% 4% 0% 328

VA 65% 19% 12% 4% 801

WI 69% 27% 1% 3% 559

WY 80% 14% 5% 0% 326 NCI Average 77% 15% 8% 0% 21,233




Table 24. Support Needed to Manage Self-Injurious Behavior ¥

State None Some Extensive Don't Know N

AL 87% 11% 1% 0% 385

AR 74% 19% 6% 1% 396

CO 71% 20% 8% 1% 370

CT 70% 24% 5% 0% 370

DE 64% 26% 8% 2% 403

DC 70% 21% 7% 2% 389

FL 83% 12% 4% 0% 765

GA 86% 12% 2% 0% 458

HI 71% 19% 10% 0% 400

ID 77% 16% 6% 0% 406

IL 80% 15% 4% 1% 372

IN 87% 10% 2% 1% 734

KS 47% 39% 13% 1% 389

KY 75% 20% 4% 1% 423

LA 75% 19% 5% 1% 410

ME 76% 20% 3% 1% 396

MI 77% 17% 5% 1% 501

MN 67% 24% 9% 0% 2,199

MS 90% 7% 1% 1% 415

MO 78% 18% 4% 1% 398

NE 82% 10% 3% 5% 399

NV 80% 16% 3% 1% 422

NH 76% 21% 2% 1% 393

NJ 81% 14% 3% 2% 385

NY 74% 18% 4% 4% 513

NC 70% 23% 6% 2% 719

OH 79% 16% 3% 2% 685

OK 79% 17% 4% 0% 400

OR 66% 16% 6% 12% 410

PA 78% 16% 4% 3% 673

RI 69% 20% 9% 2% 356

SD 79% 17% 3% 1% 339

TN 68% 22% 9% 1% 488

TX 82% 13% 3% 2% 2,059

UT 64% 28% 8% 0% 404

VT 75% 22% 4% 0% 328

VA 65% 22% 7% 7% 798

WI 63% 15% 4% 19% 557

WY 88% 10% 2% 0% 315

NCI Average 75% 18% 5% 3% 21,222




Table 25. Support Needed to Manage Disruptive Behavior ¥


AL 75% 22% 2% 1% 385

AR 60% 30% 10% 1% 395

CO 48% 37% 12% 2% 372

CT 44% 44% 12% 0% 363

DE 39% 48% 12% 1% 406

DC 62% 29% 7% 2% 390

FL 73% 20% 6% 0% 764

GA 78% 20% 3% 0% 455

HI 60% 30% 10% 0% 402

ID 64% 26% 10% 1% 408

IL 62% 33% 5% 1% 372

IN 78% 19% 3% 1% 735

KS 22% 44% 33% 1% 387

KY 60% 33% 5% 2% 420

LA 59% 34% 6% 1% 411

ME 62% 32% 6% 0% 395

MI 60% 30% 9% 1% 503

MN 54% 34% 11% 0% 2,199

MS 86% 10% 2% 2% 415

MO 63% 28% 8% 1% 399

NE 60% 26% 9% 5% 400

NV 65% 31% 3% 1% 423

NH 62% 31% 7% 0% 395

NJ 75% 20% 3% 2% 389

NY 64% 26% 6% 3% 518

NC 52% 37% 10% 1% 714

OH 67% 25% 6% 3% 688

OK 77% 19% 5% 0% 400

OR 50% 29% 10% 12% 410

PA 66% 26% 4% 3% 677

RI 51% 32% 16% 1% 352

SD 63% 32% 4% 1% 339

TN 57% 31% 12% 1% 487

TX 70% 23% 5% 2% 2,064

UT 42% 45% 13% 0% 402

VT 58% 33% 9% 0% 328

VA 46% 37% 10% 7% 800

WI* 58% 3% 1% 37% 557

WY 68% 27% 5% 0% 320

NCI Average 62% 27% 7% 3% 21,239

¥ Item is used for risk adjustment *State had a large number of “don’t knows” and missing data (at least 25%)



Table 26. Support Needed to Manage Destructive Behavior ¥


AL 77% 19% 4% 1% 387

AR 73% 21% 5% 1% 395

CO 62% 27% 9% 2% 372

CT 63% 29% 8% 0% 367

DE 56% 35% 7% 2% 404

DC 62% 28% 8% 2% 390

FL 82% 12% 5% 0% 765

GA 86% 12% 2% 0% 454

HI 70% 22% 8% 0% 401

ID 77% 18% 5% 0% 408

IL 71% 25% 4% 1% 370

IN 87% 11% 2% 1% 731

KS 42% 38% 19% 1% 385

KY 71% 22% 5% 3% 420

LA 72% 22% 4% 1% 410

ME 74% 22% 4% 0% 389

MI 73% 21% 5% 1% 502

MN 58% 31% 11% 0% 2,199

MS 90% 5% 2% 2% 415

MO 72% 21% 6% 1% 397

NE 69% 19% 7% 5% 397

NV 77% 19% 3% 1% 418

NH 76% 20% 4% 0% 397

NJ 81% 14% 3% 2% 387

NY 75% 17% 6% 3% 519

NC 68% 24% 6% 1% 710

OH 77% 16% 4% 2% 687

OK 84% 13% 3% 0% 400

OR 62% 19% 7% 12% 409

PA 77% 18% 3% 2% 677

RI 63% 22% 14% 1% 353

SD 76% 19% 4% 1% 336

TN 64% 27% 8% 0% 487

TX 79% 16% 3% 2% 2,061

UT 60% 28% 12% 0% 401

VT 70% 23% 6% 0% 328

VA 63% 24% 6% 7% 798

WI* 59% 3% 1% 38% 557

WY 82% 16% 3% 0% 319

NCI Average 72% 19% 6% 3% 21,202

¥ Item is used for risk adjustment *State had a large number of “don’t knows” and missing data (at least 25%)



Table 27. Level of Guardianship

State None Limited

Guardianship Full

Guardian

Has Guardian, but Unable to

Distinguish Level Don’t Know N

AL 74% 4% 19% 1% 2% 387

AR 44% 4% 49% 3% 0% 398

CO 44% 4% 48% 2% 1% 401

CT 21% 10% 69% 0% 0% 367

DE 78% 8% 13% 0% 0% 407

DC 23% 31% 33% 7% 7% 392

FL 67% 13% 19% 1% 1% 761

GA 83% 0% 16% 1% 0% 457

HI 27% 3% 67% 2% 1% 402

ID 42% 0% 0% 58% 0% 412

IL 29% 5% 66% 1% 0% 377

IN 51% 2% 45% 2% 1% 739

KS 31% 3% 65% 2% 0% 391

KY 30% 3% 66% 0% 0% 426

LA 90% 1% 8% 0% 1% 415

ME 27% 5% 67% 0% 0% 395

MI 24% 16% 58% 2% 0% 505

MN 13% 0% 0% 84% 3% 2,199

MS 65% 10% 14% 11% 0% 412

MO 21% 2% 77% 1% 0% 400

NE 14% 7% 71% 7% 2% 402

NV 64% 2% 34% 0% 0% 426

NH 24% 7% 68% 1% 0% 405

NJ 37% 8% 52% 1% 1% 395

NY 49% 5% 31% 6% 8% 530

NC 26% 7% 65% 2% 0% 721

OH 50% 13% 33% 2% 1% 701

OK 38% 2% 60% 0% 0% 400

OR 74% 1% 19% 1% 5% 410

PA 78% 3% 12% 1% 5% 687

RI 66% 5% 26% 0% 2% 361

SD 34% 3% 61% 2% 0% 338

TN 45% 15% 35% 4% 1% 485

TX 49% 5% 43% 2% 1% 2,063

UT 54% 11% 31% 4% 0% 413

VT 22% 3% 74% 0% 0% 328

VA 59% 4% 32% 2% 3% 802

WIˇ 17% 16% 50% 9% 9% 559

WY 33% 6% 61% 0% 0% 327

NCI Average 44% 6% 35% 12% 3% 21,396

ˇState review of this report revealed that the percent of respondents with guardians may be overstated



Table 28. Guardian’s Relationship to Person

State Family Friend

Employee of State or

Guardianship Agency Other Don't Know N

AL 74% 3% 4% 10% 9% 100

AR 77% 6% 5% 6% 5% 219 CO 83% 4% 8% 1% 4% 224 CT 76% 10% 6% 6% 1% 284

DE 57% 3% 37% 0% 2% 87

DC 45% 0% 10% 27% 18% 298

FL 87% 2% 9% 0% 2% 254

GA 88% 1% 9% 0% 1% 77

HI 68% 1% 27% 2% 2% 294

ID 92% 3% 5% 0% 1% 236

IL 85% 2% 9% 2% 2% 265

IN 95% 1% 1% 1% 3% 363

KS 77% 5% 9% 7% 1% 267

KY 64% 4% 28% 3% 1% 299

LA 79% 0% 5% 5% 12% 43 ME 60% 2% 34% 2% 2% 286

MI 60% 4% 28% 6% 1% 379

MN 74% 1% 18% 1% 7% 1,777

MS 93% 4% 2% 1% 0% 112

MO 59% 1% 34% 5% 1% 314

NE 85% 3% 8% 0% 4% 342

NV 65% 2% 32% 0% 1% 152

NH 73% 1% 24% 2% 1% 302

NJ 77% 2% 19% 0% 2% 247

NY 72% 1% 5% 3% 19% 265

NC 81% 1% 10% 4% 3% 531

OH 67% 1% 22% 6% 3% 347 OK 84% 4% 4% 8% 0% 247

OR 69% 0% 8% 1% 23% 106

PA 69% 1% 4% 1% 25% 147

RI 92% 1% 0% 1% 7% 119

SD 88% 2% 10% 0% 0% 220

TN 81% 3% 13% 2% 1% 257

TX 86% 1% 8% 1% 4% 1,040

UT 91% 0% 8% 0% 1% 190

VT 69% 5% 25% 1% 0% 255

VA 69% 2% 15% 6% 8% 322

WI* 60% 2% 3% 1% 33% 463

WY 81% 8% 8% 2% 1% 218 NCI Average 74% 2% 13% 3% 9% 11,948




Core Indicator Outcomes and Comparisons Across States

The following section provides outcome data for the Adult Consumer Survey. Outcome results are

presented in subsections that correspond with the Adult Consumer Survey domains. Charts illustrate un-

collapsed averages for all unadjusted indicators. 1 Corresponding tables show collapsed data broken out

by state and include the weighted NCI Average as well as the number of respondents by state and in total.

Tables are formatted so that all states are listed in descending order of percentage and are categorized as

statistically significantly above the NCI Average, within the range of the NCI Average, and significantly

below the NCI Average. Risk-adjusted indicators are noted in text with the table. Notably, significance

testing was not performed for risk-adjusted indicators and state results are simply presented in

descending order.

The tables also break out average results for each state by the type of residence: ICF/IID or other

institutional settings, group residence, own home, parent/relative’s home, foster or host home.

Significance testing was not performed on the breakouts by residence, and the number of people in each

residential setting is often too small to allow for valid state-to-state comparisons. For the same reason, in

many cases statistically valid conclusions cannot be drawn about differences between residence types.

This information is provided for states’ internal purposes and should not be used to compare one state

with another. If a state had fewer than 20 people in a residence type with valid responses to a given

indicator, the outcome breakout by that residence type for that particular indicator is not reported.

Figure A below presents, by state, the number of people surveyed in each residence type.

For all outcomes, states receive an ‘n/a’ designation in table presentations for a survey item if fewer than

20 people responded; however, their data are included in the NCI Average.

Note on Significance: Statistical significance depends on both the amount by which a state differs from

the average for a given item and the state’s sample size for that item. So, you may see instances where

State A’s difference from the average is larger than State B’s, but State B is shown as significantly different

from the average whereas State A is not. The larger the sample size of a state, the smaller the difference

needs to be for it to be statistically significant.

1 See Appendix B for more information on how data are collapsed and Appendix D for un-collapsed and unadjusted data by state



IMPORTANT NOTE ON CHANGES TO REPORTING: In previous years, the NCI average was calculated

as the simple arithmetic mean of all state means (an approach known as “average of averages”). This

year, the approach has been enhanced to take into account the relative numbers of people receiving

services through participating states’ systems. Beginning this year, the NCI averages contained in

this report are “weighted” means; their calculations reflect the relative population sizes of

participating states, as well as the sample sizes. See more about weighting in the Methodology section.

Please note that MN’s sample is not weighted.



Figure A. Number of people in each type of residence2

State

ICF/IID and Other Institutional

Settings

Community-based Group Residential

Settings Own Home or

Apartment

Parent's or Relative's

Home Foster Care or

Host Home

AL 0 198 43 143 1 AR 2 51 172 145 19 CO 5 70 50 167 77 CT 37 134 70 113 14 DE 0 352 16 1 38 DC 68 159 69 83 9 FL 0 218 138 420 2 GA 1 114 61 214 63 HI 0 57 26 200 118 ID 0 0 154 207 0 IL 2 158 41 168 7 IN 0 3 213 500 26 KS 0 177 100 94 11 KY 8 138 48 176 52 LA 125 0 104 181 2 ME 12 148 84 100 49 MI 0 209 127 148 17 MN 186 1,155 233 483 71 MS 6 104 109 192 1 MO 2 112 223 39 22 NE 23 90 56 167 58 NV 2 177 93 134 12 NH 3 45 56 153 141 NJ 1 198 43 130 20 NY 32 209 63 202 7 NC 64 137 33 413 69 OH 96 127 163 299 11 OK 0 181 89 111 19 OR 0 131 74 123 71 PA 55 183 92 313 29 RI 0 124 63 153 20 SD 8 132 124 75 0 TN 14 160 155 138 17 TX 923 368 122 596 54 UT 24 119 72 174 26 VT 0 19 53 94 157 VA 89 349 51 231 75 WI 2 84 149 246 12 WY 0 101 100 108 16 Total 1,790 6,491 3,732 7,634 1,413

2 Unweighted counts



Choice and Decision-Making

People make choices about their lives and are actively engaged in planning their services and supports.

The Adult Consumer Survey includes nine choice items that correspond to the Choice indicator; all but

one item, “Chose Case Manager” (Table 39), were risk-adjusted. Outcome adjustment or “risk

adjustment” is a statistical process used to control for differences in the individual characteristics of

people who completed the NCI Survey across states. For a more robust description of risk adjustment see

the Data Analysis section of Part II of the 2016-17 ACS National Report.

Two Choice composite scale scores were produced by adding and averaging Choice items. The Life

Decisions scale (Table 37) refers to choice of: residence, work, day activity, staff, and roommates. The

Everyday Choices scale (Table 38) refers to choice of: daily schedule, how to spend money, and free time

activities. Both scales were risk-adjusted. For more information on development of scales see the Data

Analysis section of Part II of the 2016-17 ACS National Report.



Table 29. Chose or had some input in choosing where they live if not living in the family home (‘person made the choice’ and ‘person had some input’ responses; adjusted variable; proxy respondents were allowed for this question)^

State Overall in

State (Adjusted)

N (observed)

ICF/IID and Other Instit. Settings

Group Residence

Own Home

Parent/ Relative

Foster or Host

AL 48% 235 n/a 45% 60% -- n/a

AR 67% 221 n/a 66% 64% -- n/a

CO 59% 189 n/a 46% 71% -- 66%

CT 45% 226 22% 36% 60% -- n/a

DE 57% 309 n/a 56% n/a -- 63%

DC 37% 267 25% 36% 47% -- n/a

FL 67% 325 n/a 58% 85% -- n/a

GA 70% 209 n/a 65% 77% -- 75%

HI 28% 182 n/a 33% 44% -- 18%

ID 66% 122 n/a n/a 65% -- n/a

IL 55% 170 n/a 51% 71% -- n/a

IN 67% 215 n/a n/a 66% -- 75%

KS 70% 273 n/a 64% 84% -- n/a

KY 62% 232 n/a 56% 88% -- 68%

LA 61% 205 49% n/a 79% -- n/a

ME 64% 249 n/a 58% 82% -- 69%

MI 46% 329 n/a 38% 60% -- n/a

MN 46% 1,361 45% 43% 69% -- 45%

MS 50% 188 n/a 46% 55% -- n/a

MO 50% 331 n/a 30% 60% -- 49%

NE 58% 198 n/a 42% 77% -- 80%

NV 51% 244 n/a 52% 52% -- n/a

NH 59% 227 n/a 48% 84% -- 58%

NJ 30% 227 n/a 27% 62% -- n/a

NY 49% 287 35% 44% 89% -- n/a

NC 54% 274 40% 50% 73% -- 64%

OH 56% 356 43% 52% 71% -- n/a

OK 50% 278 n/a 43% 63% -- n/a

OR 46% 245 n/a 44% 64% -- 38%

PA 53% 294 31% 50% 68% -- 71%

RI 63% 180 n/a 60% 72% -- n/a

SD 59% 233 n/a 61% 62% -- n/a

TN 64% 298 n/a 66% 57% -- n/a

TX 33% 884 29% 21% 41% -- 45%

UT 59% 218 59% 52% 70% -- 66%

VT 57% 220 n/a n/a 81% -- 54%

VA 61% 510 48% 62% 78% -- 71%

WY 63% 202 n/a 55% 74% -- n/a

NCI Average 53% 11,213 36% 48% 67% -- 57%

^Results for WI are not shown as data to conduct risk adjustment were not available in state records



Table 30. Chose or had some input in choosing their housemates if not living in the family home, or chose to live alone (adjusted variable; ‘person made the choice’ and ‘person had some input’ responses; proxy respondents were allowed for this question) ^

State Overall in

State (Adjusted)

N (observed)


Group Residence

Own Home

Parent/ Relative

Foster or Host

AL 26% 236 n/a 18% 68% -- n/a

AR 58% 217 n/a 27% 67% -- n/a

CO 54% 185 n/a 36% 77% -- 59%

CT 36% 213 21% 24% 61% -- n/a

DE 67% 316 n/a 67% n/a -- 71%

DC 34% 269 18% 31% 52% -- n/a

FL 56% 321 n/a 40% 88% -- n/a

GA 57% 212 n/a 42% 87% -- 66%

HI 24% 182 n/a 30% n/a -- 11%

ID 56% 117 n/a n/a 57% -- n/a

IL 41% 175 n/a 32% 83% -- n/a

IN 59% 210 n/a n/a 59% -- 60%

KS 59% 269 n/a 48% 83% -- n/a

KY 33% 234 n/a 24% 57% -- 36%

LA 56% 198 39% n/a 83% -- n/a

ME 49% 251 n/a 36% 77% -- 69%

MI 29% 326 n/a 14% 55% -- n/a

MN 23% 1,387 23% 14% 80% -- 12%

MS 50% 185 n/a 43% 61% -- n/a

MO 44% 330 n/a 25% 53% -- 52%

NE 56% 209 42% 39% 74% -- 76%

NV 47% 249 n/a 40% 64% -- n/a

NH 49% 230 n/a 20% 87% -- 51%

NJ 19% 223 n/a 18% 55% -- n/a

NY 36% 291 24% 28% 79% -- n/a

NC 40% 266 14% 36% n/a -- 52%

OH 43% 359 22% 30% 68% -- n/a

OK 44% 279 n/a 38% 60% -- n/a

OR 40% 255 n/a 28% 86% -- 24%

PA 40% 300 13% 29% 73% -- 75%

RI 50% 176 n/a 37% 78% -- n/a

SD 48% 212 n/a 36% 68% -- n/a

TN 59% 290 n/a 60% 53% -- n/a

TX 21% 868 14% 11% 61% -- n/a

UT 54% 211 58% 42% 76% -- 60%

VT 37% 191 n/a n/a 76% -- 31%

VA 30% 513 15% 24% 74% -- 55%

WY 56% 201 n/a 37% 84% -- n/a

NCI Average 40% 11,156 20% 30% 69% -- 45% ^Results for WI are not shown as data to conduct risk adjustment were not available in state records



Table 31. Chose or had some help in choosing where they work (adjusted variable; among those determined to have a paid community job; ‘person made the choice’ and ‘person had help making the choice’ responses; proxy respondents were allowed for this question) ^

State Overall in

State (Adjusted)

N (observed)


Group Residence

Own Home

Parent/ Relative

Foster or Host

AL 92% 24 n/a n/a n/a n/a n/a

AR 84% 29 n/a n/a n/a n/a n/a

CO 82% 62 n/a n/a n/a 66% n/a

CT 76% 129 n/a 62% 73% 82% n/a

DE 85% 75 n/a 84% n/a n/a n/a

DC 97% 24 n/a n/a n/a n/a n/a

FL 93% 67 n/a n/a 88% 100% n/a

GA 98% 62 n/a n/a 100% 97% n/a

HI 73% 34 n/a n/a n/a 83% n/a

ID 86% 80 n/a n/a 92% 84% n/a

IL 93% 31 n/a n/a n/a n/a n/a

IN 91% 126 n/a n/a 90% 92% n/a

KS 98% 55 n/a n/a 96% n/a n/a

KY 96% 32 n/a n/a n/a n/a n/a

LA 96% 62 n/a n/a 100% 95% n/a

ME 93% 70 n/a 95% n/a 100% n/a

MI 81% 48 n/a n/a n/a n/a n/a

MN 81% 627 n/a 76% 87% 88% 69%

MS 74% 70 n/a n/a 77% n/a n/a

MO 100% 31 n/a n/a 100% n/a n/a

NE 89% 105 n/a n/a 97% 88% n/a

NV 78% 53 n/a n/a 79% n/a n/a

NH 84% 145 n/a n/a 90% 78% 90%

NJ 73% 22 n/a n/a n/a n/a n/a

NY 83% 76 n/a n/a 84% 81% n/a

NC 87% 60 n/a n/a n/a 85% n/a

OH 90% 131 n/a n/a 94% 87% n/a

OK 83% 66 n/a 83% n/a n/a n/a

OR 69% 57 n/a n/a n/a n/a n/a

PA 87% 94 n/a n/a 90% 87% n/a

RI 85% 75 n/a n/a 95% 79% n/a

SD 95% 85 n/a n/a 98% n/a n/a

TN 91% 62 n/a 95% 84% n/a n/a

TX 84% 70 89% n/a n/a 81% n/a

UT 90% 79 n/a n/a 93% 93% n/a

VT 86% 129 n/a n/a 90% 83% 85%

VA 94% 48 n/a 93% n/a n/a n/a

WY 95% 100 n/a n/a 97% 96% n/a

NCI Average 86% 3,195 84% 82% 89% 86% 84% ^Results for WI are not shown as data to conduct risk adjustment were not available in state records



Table 32. Chose or had some input in choosing where they go during the day (adjusted variable; ‘person made the choice’ and ‘person had some input’ responses; proxy respondents were allowed for this question) ^

State Overall in

State (Adjusted)

N (observed)


Group Residence

Own Home

Parent/ Relative

Foster or Host

AL 52% 340 n/a 53% 65% 47% n/a

AR 65% 243 n/a 65% 72% 51% n/a

CO 64% 308 n/a 51% 81% 64% 73%

CT 59% 277 68% 50% 72% 61% n/a

DE 63% 238 n/a 64% n/a n/a 64%

DC 42% 350 25% 41% 50% 45% n/a

FL 81% 497 n/a 74% 96% 82% n/a

GA 81% 385 n/a 72% 97% 81% 84%

HI 41% 339 n/a 33% 89% 49% 12%

ID 75% 231 n/a n/a 74% 73% n/a

IL 67% 292 n/a 64% 79% 68% n/a

IN 62% 418 n/a n/a 67% 58% n/a

KS 79% 363 n/a 76% 84% 82% n/a

KY 71% 340 n/a 65% 76% 74% 75%

LA 65% 230 57% n/a 75% 70% n/a

ME 69% 227 n/a 64% 76% 75% 68%

MI 62% 318 n/a 57% 71% 65% n/a

MN 55% 1,233 49% 53% 73% 56% 56%

MS 50% 300 n/a 53% 61% 43% n/a

MO 74% 271 n/a 60% 85% 67% n/a

NE 69% 342 52% 73% 75% 65% 82%

NV 59% 324 n/a 58% 51% 60% n/a

NH 71% 318 n/a 78% 78% 68% 68%

NJ 38% 366 n/a 39% 41% 37% n/a

NY 57% 409 56% 56% 82% 55% n/a

NC 58% 433 74% 53% n/a 56% 55%

OH 63% 488 48% 64% 78% 62% n/a

OK 57% 149 n/a 52% 75% 56% n/a

OR 59% 173 n/a 48% 85% 74% 57%

PA 65% 484 55% 62% 84% 63% 87%

RI 64% 296 n/a 65% 82% 57% n/a

SD 75% 240 n/a 65% 90% 92% n/a

TN 80% 275 n/a 75% 82% 80% n/a

TX 45% 1,183 49% 28% 62% 44% 70%

UT 70% 314 95% 69% 86% 60% 64%

VT 73% 82 n/a n/a n/a 75% 64%

VA 65% 540 67% 68% 71% 57% 74%

WY 71% 262 n/a 62% 90% 68% n/a

NCI Average 62% 13,878 53% 58% 76% 62% 63%




Table 33. Chose staff or were aware they could request to change staff (adjusted variable; ‘chose staff’ and ‘staff were assigned but can be changed if requested by person’ responses; proxy respondents were allowed for this question) ^

State Overall in

State (Adjusted)

N (observed)


Group Residence

Own Home

Parent/ Relative

Foster or Host

AL 76% 353 n/a 72% 97% 78% n/a

AR 84% 367 n/a 93% 95% 67% n/a

CO 75% 337 n/a 59% 84% 81% 79%

CT 49% 302 58% 41% 67% 44% n/a

DE 83% 346 n/a 84% n/a n/a 72%

DC 42% 374 25% 47% 46% 39% n/a

FL 79% 661 n/a 77% 88% 76% n/a

GA 75% 430 n/a 77% 85% 72% 70%

HI 39% 322 n/a 31% 69% 51% 15%

ID 74% 303 n/a n/a 67% 81% n/a

IL 66% 313 n/a 62% 74% 69% n/a

IN 83% 623 n/a n/a 87% 81% 89%

KS 94% 362 n/a 96% 92% 90% n/a

KY 32% 400 n/a 16% 37% 47% 22%

LA 82% 372 71% n/a 93% 84% n/a

ME 92% 352 n/a 90% 94% 91% 93%

MI 52% 417 n/a 43% 60% 63% n/a

MN 46% 1,851 51% 37% 64% 56% 41%

MS 71% 371 n/a 70% 76% 69% n/a

MO 77% 374 n/a 68% 85% 66% n/a

NE 64% 342 60% 70% 55% 56% 77%

NV 83% 363 n/a 82% 96% 77% n/a

NH 70% 371 n/a 37% 73% 82% 71%

NJ 47% 329 n/a 49% 37% 54% n/a

NY 57% 432 53% 55% 76% 56% n/a

NC 59% 589 40% 50% 71% 64% 61%

OH 67% 539 55% 61% 79% 69% n/a

OK 82% 360 n/a 93% 94% 52% n/a

OR 55% 344 n/a 47% 82% 63% 38%

PA 58% 546 45% 52% 65% 63% 62%

RI 71% 304 n/a 73% 77% 67% n/a

SD 71% 250 n/a 65% 79% 95% n/a

TN 90% 461 n/a 88% 93% 88% n/a

TX 35% 1,165 23% 23% 61% 39% 42%

UT 75% 370 97% 83% 80% 61% 75%

VT 73% 243 n/a n/a 74% 74% 75%

VA 59% 745 43% 59% 71% 65% 57%

WY 65% 299 n/a 55% 76% 66% n/a

NCI Average 64% 17,282 40% 59% 78% 66% 60%




Table 34. Decides or has help deciding their daily schedule (adjusted variable; ‘person decides’ and ‘person has help deciding’ responses; proxy respondents were allowed for this question) ^

State Overall in

State (Adjusted)

N (observed)


Group Residence

Own Home

Parent/ Relative

Foster or Host

AL 92% 381 n/a 90% 97% 94% n/a

AR 85% 383 n/a 84% 88% 81% n/a

CO 85% 375 n/a 84% 100% 81% 87%

CT 76% 343 81% 69% 89% 74% n/a

DE 87% 377 n/a 86% n/a n/a 91%

DC 70% 384 64% 72% 70% 72% n/a

FL 91% 735 n/a 91% 94% 90% n/a

GA 96% 432 n/a 97% 97% 94% 97%

HI 60% 399 n/a 43% 86% 70% 36%

ID 87% 406 n/a n/a 87% 86% n/a

IL 82% 358 n/a 84% 100% 79% n/a

IN 91% 719 n/a n/a 96% 90% 86%

KS 84% 385 n/a 80% 90% 87% n/a

KY 94% 410 n/a 94% 97% 90% 98%

LA 85% 404 75% n/a 93% 89% n/a

ME 90% 394 n/a 87% 98% 93% 89%

MI 84% 498 n/a 80% 97% 85% n/a

MN 87% 2,029 82% 88% 99% 85% 82%

MS 78% 404 n/a 73% 84% 78% n/a

MO 92% 392 n/a 88% 96% 90% 95%

NE 88% 383 81% 82% 86% 88% 98%

NV 85% 419 n/a 83% 88% 85% n/a

NH 81% 400 n/a 73% 79% 83% 83%

NJ 75% 394 n/a 72% 85% 78% 69%

NY 80% 517 80% 82% 100% 75% n/a

NC 81% 632 88% 74% 96% 81% 80%

OH 85% 666 84% 85% 89% 84% n/a

OK 80% 397 n/a 76% 84% 86% n/a

OR 84% 402 n/a 83% 97% 83% 84%

PA 85% 680 85% 84% 94% 83% 87%

RI 81% 324 n/a 79% 89% 82% n/a

SD 87% 288 n/a 84% 95% 89% n/a

TN 86% 471 n/a 84% 85% 87% n/a

TX 67% 1,421 61% 54% 89% 68% 78%

UT 83% 391 87% 88% 96% 75% 92%

VT 89% 325 n/a n/a 96% 89% 88%

VA 84% 793 78% 86% 86% 84% 88%

WY 85% 309 n/a 82% 90% 86% n/a

NCI Average 83% 19,420 72% 82% 92% 83% 82%




Table 35. Decides or has help deciding how to spend free time (adjusted variable; ‘person decides’ and ‘person has help deciding’ responses; proxy respondents were allowed for this question) ^

State Overall in

State (Adjusted)

N (observed)


Group Residence

Own Home

Parent/ Relative

Foster or Host

AL 96% 379 n/a 95% 96% 98% n/a

AR 91% 384 n/a 97% 92% 90% n/a

CO 89% 401 n/a 87% 100% 89% 93%

CT 87% 351 94% 83% 89% 87% n/a

DE 94% 377 n/a 94% n/a n/a 94%

DC 71% 393 58% 72% 78% 73% n/a

FL 95% 735 n/a 94% 99% 94% n/a

GA 97% 438 n/a 98% 97% 97% 97%

HI 68% 394 n/a 40% 94% 78% 56%

ID 96% 404 n/a n/a 95% 97% n/a

IL 91% 356 n/a 89% 94% 93% n/a

IN 97% 719 n/a n/a 98% 96% 100%

KS 92% 384 n/a 88% 95% 93% n/a

KY 97% 414 n/a 94% 100% 98% 100%

LA 93% 403 90% n/a 97% 94% n/a

ME 97% 394 n/a 95% 100% 99% 94%

MI 94% 498 n/a 95% 97% 93% n/a

MN 94% 2,027 92% 95% 99% 91% 93%

MS 87% 403 n/a 88% 87% 86% n/a

MO 95% 391 n/a 93% 96% 91% 100%

NE 95% 389 97% 92% 97% 94% 100%

NV 92% 415 n/a 94% 91% 92% n/a

NH 93% 394 n/a 90% 93% 95% 93%

NJ 85% 392 n/a 86% 92% 84% 74%

NY 90% 520 96% 92% 100% 85% n/a

NC 92% 628 97% 92% 100% 90% 90%

OH 93% 661 91% 92% 96% 92% n/a

OK 95% 398 n/a 95% 95% 93% n/a

OR 93% 404 n/a 93% 97% 93% 88%

PA 92% 682 93% 90% 95% 92% 91%

RI 90% 334 n/a 92% 94% 86% 100%

SD 92% 287 n/a 91% 96% 89% n/a

TN 96% 475 n/a 99% 93% 96% n/a

TX 85% 1,418 88% 84% 93% 81% 86%

UT 94% 392 97% 94% 97% 92% 96%

VT 94% 322 n/a n/a 95% 97% 94%

VA 94% 791 93% 94% 87% 94% 95%

WY 91% 315 n/a 89% 95% 90% n/a

NCI Average 92% 19,462 89% 92% 95% 91% 90%




Table 36. Chooses, has help choosing what to buy or has set limits on what to buy with their spending money (adjusted variable; ‘person chooses’ or ‘person has help choosing what to buy, or has set limits [such as can buy small items, but not big items’] responses; proxy respondents were allowed for this question) ^

State Overall in

State (Adjusted)

N (observed)


Group Residence

Own Home

Parent/ Relative

Foster or Host

AL 91% 381 n/a 91% 86% 93% n/a

AR 89% 387 n/a 95% 92% 86% n/a

CO 80% 397 n/a 83% 86% 76% 81%

CT 84% 341 90% 82% 88% 82% n/a

DE 88% 371 n/a 88% n/a n/a 97%

DC 54% 388 48% 55% 58% 47% n/a

FL 85% 722 n/a 89% 90% 81% n/a

GA 98% 437 n/a 98% 100% 97% 99%

HI 69% 398 n/a 55% 93% 79% 49%

ID 94% 405 n/a n/a 94% 93% n/a

IL 88% 362 n/a 89% 87% 86% n/a

IN 89% 715 n/a n/a 91% 88% 95%

KS 95% 381 n/a 98% 96% 91% n/a

KY 96% 413 n/a 95% 100% 94% 95%

LA 89% 401 86% n/a 96% 87% n/a

ME 93% 389 n/a 92% 93% 96% 90%

MI 89% 499 n/a 88% 91% 88% n/a

MN 89% 2,019 91% 89% 96% 85% 89%

MS 84% 399 n/a 93% 87% 81% n/a

MO 88% 396 n/a 89% 90% 79% 85%

NE 88% 377 82% 90% 84% 88% 91%

NV 84% 406 n/a 85% 84% 84% n/a

NH 87% 397 n/a 92% 86% 86% 88%

NJ 80% 389 n/a 81% 89% 77% 74%

NY 86% 515 85% 91% 96% 78% n/a

NC 90% 625 98% 96% 89% 87% 87%

OH 89% 653 90% 91% 91% 86% n/a

OK 88% 397 n/a 90% 85% 89% n/a

OR 89% 407 n/a 92% 100% 84% 87%

PA 90% 670 87% 92% 92% 89% 90%

RI 87% 318 n/a 92% 87% 83% 93%

SD 89% 286 n/a 88% 95% 88% n/a

TN 86% 470 n/a 89% 84% 84% n/a

TX 83% 1,387 87% 84% 87% 78% 93%

UT 86% 390 95% 88% 95% 81% 92%

VT 87% 321 n/a n/a 100% 90% 85%

VA 90% 789 89% 94% 90% 86% 90%

WY 90% 314 n/a 91% 94% 87% n/a

NCI Average 87% 19,312 87% 88% 91% 85% 85% ^Results for WI are not shown as data to conduct risk adjustment were not available in state records



Table 37. Life Decisions Scale (adjusted variable) ** ^

State Overall in

State (Adjusted)

N (observed)


Group Residence

Own Home

Parent/ Relative

Foster or Host

AL 64% 358 n/a 52% 76% 80% n/a

AR 75% 379 n/a 70% 78% 70% n/a

CO 76% 383 n/a 56% 81% 83% 78%

CT 57% 348 54% 45% 70% 62% n/a

DE 77% 387 n/a 78% n/a n/a 74%

DC 45% 389 35% 44% 54% 47% n/a

FL 76% 710 n/a 65% 85% 79% n/a

GA 77% 442 n/a 69% 83% 80% 76%

HI 49% 360 n/a 36% 67% 66% 26%

ID 77% 356 n/a n/a 68% 85% n/a

IL 69% 348 n/a 58% 77% 78% n/a

IN 79% 692 n/a n/a 74% 81% 82%

KS 84% 387 n/a 77% 88% 95% n/a

KY 53% 411 n/a 43% 64% 58% 52%

LA 77% 395 59% n/a 88% 84% n/a

ME 79% 381 n/a 70% 86% 88% 84%

MI 55% 463 n/a 41% 65% 72% n/a

MN 51% 1,973 48% 41% 74% 64% 42%

MS 68% 395 n/a 59% 67% 74% n/a

MO 66% 393 n/a 50% 74% 75% 58%

NE 68% 375 49% 61% 74% 67% 82%

NV 71% 409 n/a 66% 74% 80% n/a

NH 72% 397 n/a 49% 80% 80% 67%

NJ 48% 363 n/a 41% 55% 64% 25%

NY 59% 489 47% 51% 78% 66% n/a

NC 65% 616 50% 54% 76% 71% 65%

OH 68% 630 49% 56% 76% 75% n/a

OK 65% 375 n/a 63% 77% 61% n/a

OR 57% 376 n/a 48% 77% 67% 39%

PA 64% 633 42% 54% 75% 71% 77%

RI 71% 333 n/a 65% 79% 72% 70%

SD 70% 288 n/a 63% 75% 85% n/a

TN 82% 471 n/a 79% 77% 91% n/a

TX 45% 1,303 33% 25% 60% 53% 62%

UT 72% 388 85% 68% 79% 69% 70%

VT 66% 322 n/a n/a 78% 78% 58%

VA 62% 772 45% 58% 77% 73% 66%

WY 70% 316 n/a 60% 79% 72% n/a

NCI Average 64% 18,806 43% 54% 75% 73% 61%

**For more information on development of scales see the beginning of this section or the Data Analysis section of Part II of the 2016-17 ACS National Report ^Results for WI are not shown as data to conduct risk adjustment were not available in state records



Table 38. Everyday Choices Scale (adjusted variable) ** ^

State Overall in

State (Adjusted)

N (observed)


Group Residence

Own Home

Parent/ Relative

Foster or Host

AL 92% 385 n/a 92% 92% 94% n/a

AR 88% 393 n/a 92% 90% 85% n/a

CO 85% 402 n/a 84% 91% 83% 87%

CT 83% 356 91% 78% 88% 82% n/a

DE 90% 384 n/a 89% n/a n/a 94%

DC 62% 395 49% 64% 70% 62% n/a

FL 90% 744 n/a 91% 92% 88% n/a

GA 97% 445 n/a 100% 93% 97% 100%

HI 61% 406 n/a 43% 90% 74% 41%

ID 93% 410 n/a n/a 92% 92% n/a

IL 87% 369 n/a 87% 90% 85% n/a

IN 91% 731 n/a n/a 92% 91% 92%

KS 90% 394 n/a 89% 92% 91% n/a

KY 94% 419 n/a 95% 95% 93% 95%

LA 89% 409 82% n/a 95% 90% n/a

ME 92% 397 n/a 91% 93% 95% 92%

MI 89% 501 n/a 88% 92% 88% n/a

MN 90% 2,039 90% 91% 92% 87% 88%

MS 82% 407 n/a 85% 85% 80% n/a

MO 92% 399 n/a 90% 93% 86% 93%

NE 90% 396 89% 88% 88% 90% 97%

NV 87% 430 n/a 87% 87% 87% n/a

NH 87% 401 n/a 85% 86% 87% 88%

NJ 80% 398 n/a 79% 88% 79% 72%

NY 85% 526 85% 89% 93% 80% n/a

NC 88% 640 102% 87% 92% 86% 85%

OH 89% 669 88% 89% 90% 87% n/a

OK 88% 399 n/a 87% 88% 89% n/a

OR 89% 412 n/a 90% 92% 87% 87%

PA 89% 690 89% 89% 90% 88% 89%

RI 86% 341 n/a 88% 89% 83% 90%

SD 89% 294 n/a 88% 90% 88% n/a

TN 90% 476 n/a 91% 88% 89% n/a

TX 76% 1,431 76% 71% 89% 75% 86%

UT 88% 401 100% 90% 93% 81% 94%

VT 89% 327 n/a n/a 91% 90% 88%

VA 90% 799 87% 92% 87% 88% 92%

WY 88% 319 n/a 87% 89% 87% n/a

NCI Average 87% 19,734 82% 88% 90% 86% 85%

**For more information on development of scales see the Data Analysis section of Part II of the 2016-17 ACS National Report ^Results for WI are not shown as data to conduct risk adjustment were not available in state records



Table 39. Can change their case manager/service coordinator if wants to (‘yes’ responses only; proxy respondents were allowed for this question) º

Significantly Above NCI Average

State Overall in State

N ICF/IID and Other Instit. Settings

Group Residence

Own Home Parent/ Relative

Foster or Host

TN 98% 454 n/a 99% 99% 97% n/a IN 95% 666 n/a n/a 95% 95% 91% KS 95% 329 n/a 94% 93% 97% n/a FL 94% 684 n/a 88% 98% 95% n/a KY 94% 380 n/a 93% 91% 95% 96% WI 94% 473 n/a 90% 96% 94% n/a ID 93% 348 n/a n/a 89% 94% n/a NH 92% 321 n/a 92% 92% 91% 93% SD 92% 245 n/a 92% 91% 92% n/a NY 92% 465 81% 91% 98% 92% n/a OR 91% 335 n/a 90% 92% 96% 84% AR 91% 354 n/a 93% 88% 93% n/a

Within Average Range



Group Residence


Foster or Host

OK 90% 359 n/a 90% 87% 95% n/a OH 90% 571 67% 96% 91% 93% n/a GA 89% 339 n/a 90% 90% 89% 88% ME 88% 328 n/a 82% 93% 89% 95% MO 88% 332 n/a 86% 87% 100% n/a WY 88% 297 n/a 84% 96% 85% n/a VT 88% 271 n/a n/a 85% 90% 89% MI 88% 419 n/a 84% 90% 90% n/a UT 87% 366 33% 90% 97% 89% 92% HI 87% 341 n/a 94% n/a 83% 93% NV 87% 356 n/a 84% 92% 92% n/a NCI Average 87% 16,774 70% 83% 91% 89% 85% NE 86% 211 n/a 85% 88% 86% 91% RI 86% 247 n/a 81% 94% 89% n/a CO 86% 341 n/a 82% 87% 91% 84% LA 85% 343 82% n/a 85% 86% n/a MS 82% 268 n/a 84% 82% 83% n/a NC 82% 488 22% 81% 83% 91% 89%

Significantly Below NCI Average



Group Residence


Foster or Host

TX 81% 1,202 71% 77% 94% 84% 81% MN 81% 1,520 71% 80% 87% 84% 66% AL 81% 359 n/a 81% 88% 78% n/a PA 80% 526 89% 75% 78% 80% 92% VA 79% 687 44% 79% 81% 87% 78% DE 77% 292 n/a 79% n/a n/a 66% IL 72% 277 n/a 61% 82% 79% n/a CT 70% 274 38% 68% 77% 75% n/a NJ 65% 342 n/a 55% 72% 83% n/a DC 53% 364 37% 55% 59% 57% n/a

ºQuestion changed from previous years



Work

People have support to find and maintain community integrated employment.

NCI reports on three types of community jobs:

1. Individual job without publicly funded supports—an individual job in which the person does not

receive state or other funded supports;

2. Individual job with publicly funded supports—an individual job in which the person receives state

or other funded supports; and

3. Group-supported—a job that takes part in an integrated setting but is done with a group of

individuals with disabilities (e.g., work crew). Group-supported jobs may or may not receive

publicly funded supports.

For several states, survey items pertaining to paid community employment had a large amount of missing

data or data recorded as “don’t know.” Items that include states’ results for which 25% or more of their

sample were missing data (or reported as “don’t know”) are indicated with an asterisk (*).


missing systematically or randomly; for example, are the data missing across the board for those in a

specific waiver population in a given state? If so, the resulting data are not representative of the entire

sample or population. We advise caution when examining data that are indicated as having high rates of

“missing” or “don’t know” responses. Please note that the NCI average reflects the average of data that

were reported to HSRI and may not be reflective of the service population across the country.



Table 40. Has a paid job in the community (‘yes’ responses only’; information may have been obtained through state records)




Group Residence


Foster or Host

CT 45% 327 19% 33% 57% 54% n/a

VT 41% 328 n/a n/a 49% 54% 34%

NH 39% 383 n/a 19% 54% 46% 33%

MN 35% 2,023 19% 32% 64% 33% 38%

WY 34% 318 n/a 17% 47% 41% n/a

SD 33% 332 n/a 12% 56% 37% n/a

NE 30% 377 n/a 21% 72% 24% 28%

RI 27% 328 n/a 14% 46% 28% n/a OH 25% 650 4% 12% 34% 32% n/a




Group Residence


Foster or Host

ME 24% 386 n/a 20% 30% 32% 16% WI 24% 540 n/a 13% 31% 26% n/a UT 23% 410 8% 18% 46% 18% 38% OK 21% 400 n/a 29% 24% 8% n/a MS 21% 408 n/a 22% 39% 11% n/a CO 21% 366 n/a 23% 38% 19% 11% DE 21% 405 n/a 19% n/a n/a 24% LA 20% 404 12% n/a 32% 20% n/a ID 20% 407 n/a n/a 18% 21% n/a PA 20% 607 6% 9% 30% 25% 12% NCI Average 19% 19,970 8% 14% 32% 19% 18% NV 18% 402 n/a 11% 37% 18% n/a KS 18% 361 n/a 15% 29% 13% n/a IN 18% 737 n/a n/a 23% 16% 8% TN 18% 479 n/a 19% 18% 16% n/a GA 16% 453 n/a 6% 36% 17% 8% NY 16% 497 3% 8% 42% 19% n/a




Group Residence


Foster or Host

MI 14% 480 n/a 8% 20% 17% n/a NC 13% 668 2% 14% 28% 11% 20% KY 12% 412 n/a 11% 13% 10% 18% IL 10% 362 n/a 6% 30% 9% n/a HI 10% 393 n/a 5% 24% 14% 3% VA 10% 791 1% 12% 22% 8% 8% FL 10% 759 n/a 3% 24% 8% n/a DC 9% 380 2% 8% 22% 7% n/a TX 9% 1,958 8% 8% 22% 9% 6% NJ* 9% 280 n/a 8% 17% 5% n/a AR 8% 385 n/a 8% 13% 4% n/a MO 8% 392 n/a 4% 11% 8% 0% AL 8% 382 n/a 8% 7% 8% n/a




Table 41. Type of paid community job (information may have been obtained through state records)

State

Individual Job With Publicly

Funded Supports

Individual Job Without Publicly

Funded Supports Individual

Job N

Group Job With or Without Publicly

Funded Supports Group Job N AL 14% 39% 28 31% 29 AR 19% 65% 26 10% 31 CO 40% 17% 75 43% 75 CT 21% 9% 129 71% 140 DE 63% 13% 52 17% 78 DC 69% 23% 13 3% 33 FL 42% 54% 69 6% 72 GA 64% 14% 70 23% 74 HI 33% 26% 27 18% 38 ID 29% 57% 68 13% 80 IL 17% 62% 29 17% 36 IN 29% 61% 124 9% 132 KS 34% 41% 59 32% 56 KY 40% 57% 42 2% 42 LA 9% 47% 43 58% 50 ME 59% 35% 78 6% 81 MI 27% 22% 55 57% 61 MN 25% 33% 613 41% 701 MS 39% 49% 76 24% 82 MO 24% 52% 25 23% 30 NE 52% 23% 104 26% 109 NV 10% 23% 70 69% 70 NH 64% 26% 141 12% 143 NJ 22% 6% 18 46% 24 NY 31% 60% 58 13% 70 NC 58% 32% 72 13% 71 OH 42% 22% 149 43% 148 OK 27% 18% 84 55% 84 PA 43% 35% 97 24% 106 RI 56% 22% 73 22% 77 SD 35% 34% 80 28% 102 TN 55% 21% 67 33% 80 TX 20% 65% 157 17% 168 UT 47% 28% 90 27% 92 VT 87% 13% 136 n/a n/a VA 23% 14% 74 67% 78 WI 54% 24% 85 16% 118 WY 22% 66% 97 13% 105 NCI Average 35% 36% 3353 30% 3,566



Table 42. Average number of biweekly hours by type of community job (information may have been obtained through state records)

State Individual Job With Publicly Funded

Supports


Funded Supports


Funded Supports

CO 18.6 n/a 22.3

CT 24.8 n/a 30.6*

DE 30.3 n/a n/a

FL 31.1 21.6 n/a

GA 29.9 n/a n/a

ID 19.4 22.8 n/a

IN 32.2* 32.0* n/a*

KS n/a 21.9 n/a*

KY n/a 15.0 n/a

LA n/a n/a 39.8

ME 10.9 21.5 n/a*

MI n/a n/a 25.6

MN 33.5 35.2 37.4

MS 27.5 24.7 n/a*

NE 19.9 27.8 15.9

NV n/a n/a 32.6

NH 15.0 22.5 n/a

NY n/a 33.2 n/a

NC 16.8 20.5 n/a

OH 40.7 29.5 29.3

OK 28.2 n/a 38.4

PA 33.2 28.7 n/a*

RI 16.7 n/a n/a*

SD 22.9 30.3 n/a

TN 21.1 n/a n/a*

TX 20.5 28.4 20.2*

UT 18.8 21.2 30.4

VT 19.7 n/a n/a

VA n/a n/a 30.3*

WI 28.9* n/a* n/a*

WY 24.5 29.0 n/a

NCI Average 28.1 30.3 29.9 *State had a large number of “don’t knows” and missing data (at least 25%)



Table 43. Average biweekly gross wages by type of community job (information may have been obtained through state records)


Supports


Funded Supports


Funded Supports

CO $200.08 n/a $142.20*

CT $279.84 n/a $198.87*

DE $255.82 n/a n/a

FL $273.88 $221.47 n/a

GA $217.21* n/a n/a

ID n/a $167.77* n/a*

IN $227.07* $272.77* n/a*

LA n/a n/a* $202.61

ME $135.15* n/a* n/a*

MI n/a n/a $144.23*

MN $250.68* $300.35 $168.94*

NE $199.81 $263.32 $133.52

NV n/a n/a $197.26

NH $136.38* $210.13* n/a

NY n/a $380.86 n/a*

NC $141.20 n/a n/a*

OH $383.14* $233.72* $209.17*

OK $226.68 n/a $211.07

PA $251.22* n/a* n/a*

RI $156.69 n/a n/a*

TN $191.14* n/a n/a*

TX n/a* $218.70* n/a*

UT $175.88 $185.95 $185.04*

VT $201.91 n/a n/a

VA n/a* n/a* $152.91*

WY $226.65 $294.48 n/a

NCI Average $241.37* $287.49* $169.59*




Table 44. Average biweekly hourly wage by type of community job (information may have been obtained through state records) ^


Supports


Funded Supports


Funded Supports

CO $10.34 n/a $7.55

CT $12.87 n/a $7.42*

DE $8.64 n/a n/a

FL $9.73 $10.31 n/a

GA $8.77* n/a n/a

ID n/a $8.87* n/a

IN $7.93* $8.82* n/a

LA n/a n/a $5.06

ME $11.04* n/a n/a

MI n/a n/a $6.87*

MN $7.62* $8.81 $4.95*

NE $9.90 $9.86 $8.85

NV n/a n/a $6.35

NH $9.38* $9.54* n/a

NY n/a $12.04 n/a

NC $8.94* n/a n/a

OH $9.35* $8.62* $8.04*

OK $7.95 n/a $5.40

PA $9.22* n/a n/a

RI $9.89 n/a n/a

TN $8.40* n/a n/a

TX n/a $8.38* n/a

UT $9.87 $8.23 $6.16*

VT $10.31 n/a n/a

VA n/a n/a $5.19*

WY $9.37 $9.56 n/a

NCI Average $9.45* $9.75* $6.65* ^Reported hourly wages above $50/hour were not included *State had a large number of “don’t knows” and missing data (at least 25%)



Table 45. Length of employment in current paid community job (shown in months; information may have been obtained through state records)

Average Months N

AL 54.6 26

AR 65.1 27

CO 68.9 63

CT* 87.4 97

DE* 60.4 33

FL 75.8 68

GA 72.3 58

ID 64.6 79

IL* 57.8 28

IN 105.6 124

KS 55.0 53

KY 41.7 40

LA* 102.1 36

ME 81.3 70

MI 61.6 57

MN 102.6 684

MS* 77.5 59

MO 62.3 26

NE 50.7 100

NV 49.4 62

NH 58.7 139

NY 60.6 65

NC 58.1 67

OH 53.9 123

OK 68.9 83

PA* 72.3 86

RI 68.1 82

SD 57.8 87

TN* 43.4 61

TX 74.9 158

UT 62.6 88

VT 64.5 135

VA 59.1 63

WY 48.0 95

NCI Average 75.2 3,166




Table 46. Receives paid time off (for example, paid vacation and/or sick time) from their paid community job (information may have been obtained through state records)




Group Residence


Foster or Host

CT* 58% 89 n/a 54% 68% 60% n/a

OH* 43% 113 n/a n/a 58% 43% n/a




Group Residence


Foster or Host

RI 32% 71 n/a n/a 32% 32% n/a DE* 31% 35 n/a 24% n/a n/a n/a

MS* 31% 58 n/a n/a 36% n/a n/a

LA 31% 42 n/a n/a n/a n/a n/a

SD* 31% 72 n/a n/a 33% n/a n/a

NY* 29% 58 n/a n/a 39% 24% n/a

FL 28% 64 n/a n/a 34% 24% n/a

TN* 28% 43 n/a n/a n/a n/a n/a

MN 27% 647 10% 23% 44% 25% 33%

NCI Average 27% 2,906 17% 20% 37% 25% 24%

GA 27% 63 n/a n/a n/a 29% n/a

KS 26% 53 n/a 20% 38% n/a n/a MI 25% 51 n/a n/a n/a n/a n/a

CO 25% 59 n/a n/a n/a 27% n/a

PA* 25% 79 n/a n/a n/a 26% n/a

WY 25% 88 n/a n/a 30% 25% n/a

ID 24% 78 n/a n/a 20% 21% n/a

IN 23% 122 n/a n/a 24% 23% n/a

ME 23% 71 n/a 35% n/a 10% n/a

KY* 19% 36 n/a n/a n/a n/a n/a

AR 19% 26 n/a n/a n/a n/a n/a


VA* 18% 56 n/a 14% n/a n/a n/a IL* 17% 24 n/a n/a n/a n/a n/a

NV 16% 63 n/a n/a 33% 5% n/a




Group Residence


Foster or Host

TX 17% 139 21% 25% n/a 1% n/a

OK 16% 83 n/a 24% 5% n/a n/a

NH 14% 132 n/a n/a 13% 16% 12%

VT 12% 131 n/a n/a 13% 12% 11% NE 9% 91 n/a n/a 11% 11% n/a

NC 6% 63 n/a n/a n/a 3% n/a

UT 6% 84 n/a 0% 14% 0% n/a




Table 47. Four most common job industries (among those reported to have a job in the community; information may have been obtained through state records) ∞

State Food Preparation Cleaning Retail Job Assembly N

AL 36% 29% 14% 7% 28

AR 28% 24% 17% 0% 29

CO 21% 29% 27% 15% 66

CT 12% 32% 18% 7% 130

DE 23% 27% 5% 3% 66

DC 3% 9% 12% 0% 34

FL 24% 15% 38% 0% 71

GA 17% 44% 17% 8% 71

HI 24% 5% 14% 0% 37

IL 27% 19% 16% 8% 37

IN 34% 20% 27% 7% 131

KS 30% 20% 25% 10% 61

KY 34% 26% 21% 4% 47

LA 12% 30% 13% 0% 69

ME 20% 34% 27% 4% 92

MI 13% 36% 13% 10% 61

MN 17% 34% 8% 21% 702

MO 35% 39% 13% 3% 31

NE 26% 19% 30% 8% 108

NV 17% 54% 4% 6% 72

NH 24% 34% 26% 3% 149

NJ 26% 32% 16% 0% 19

NY 16% 27% 25% 5% 73

NC 35% 30% 12% 2% 81

OH 22% 31% 12% 13% 156

OK 10% 59% 8% 10% 83

PA 32% 28% 14% 11% 109

RI 26% 26% 17% 2% 88

SD 22% 28% 14% 7% 110

TN 29% 36% 13% 11% 72

TX 48% 22% 20% 7% 171

UT 27% 30% 12% 6% 93

VT 18% 35% 21% 7% 136

VA 15% 27% 19% 16% 74

WI 17% 32% 1% 4% 113

WY 18% 27% 31% 6% 106

NCI Average 21% 30% 16% 10% 3,576 ∞ Categories are not mutually exclusive



Table 48. Does not have paid community job, and would like a job in the community (‘yes’ responses only)




Group Residence


Foster or Host

NH 71% 140 n/a 64% 71% 83% 64% DE 68% 154 n/a 65% n/a n/a n/a RI 63% 117 n/a 65% 50% 71% n/a DC 62% 91 n/a 62% 48% 80% n/a ME 61% 192 n/a 72% 54% 68% 45% MI 57% 190 n/a 60% 51% 58% n/a




Group Residence


Foster or Host

NJ 55% 96 n/a 61% n/a 43% n/a NC 54% 211 n/a 56% n/a 56% 61% AL 53% 305 n/a 56% 57% 49% n/a SD 52% 111 n/a 57% 39% n/a n/a AR 51% 222 n/a 75% 53% 43% n/a CT 51% 92 n/a 48% n/a 67% n/a ID 51% 228 n/a n/a 56% 46% n/a IL 51% 156 n/a 42% 57% 56% n/a VT 50% 144 n/a n/a 44% 59% 48% WI 50% 185 n/a 55% 47% 51% n/a MS 49% 173 n/a 57% 44% 44% n/a NV 49% 200 n/a 51% 48% 44% n/a NE 48% 168 n/a 29% n/a 67% 39% MN 47% 466 37% 50% 44% 47% n/a UT 47% 109 n/a 63% 38% 31% n/a OK 46% 121 n/a 53% 28% 50% n/a NCI Average 46% 8,311 44% 49% 42% 45% 43% TX 46% 1,052 51% 52% 48% 41% 31% NY 45% 221 n/a 44% 31% 49% n/a WY 45% 125 n/a 53% 33% 54% n/a MO 44% 189 n/a 51% 40% n/a n/a VA 44% 349 18% 58% 32% 41% 35% GA 43% 194 n/a 44% 39% 41% 50% OH 43% 239 43% 31% 51% 44% n/a KS 42% 156 n/a 52% 30% 36% n/a PA 40% 234 n/a 40% 36% 45% n/a IN 40% 390 n/a n/a 41% 40% n/a LA 38% 180 53% n/a 31% 32% n/a FL 39% 353 n/a 53% 30% 34% n/a




Group Residence


Foster or Host

HI 35% 135 n/a n/a n/a 40% 30% TN 34% 227 n/a 45% 44% 20% n/a CO 34% 160 n/a 24% 20% 41% 36% KY 30% 236 n/a 30% 41% 27% 26%



Table 49. Has community employment as a goal in their service plan (information may have been obtained through state records)




Group Residence


Foster or Host

NE 73% 345 n/a 69% 73% 73% 83% RI 72% 352 n/a 63% 66% 81% 75% VT 48% 327 n/a n/a 58% 61% 43% NH 46% 392 n/a 41% 57% 47% 42% ID* 44% 265 n/a n/a 47% 43% n/a MN 43% 1,894 16% 38% 67% 50% 41% MS 40% 401 n/a 43% 64% 26% n/a OH 39% 662 22% 20% 48% 48% n/a DE 38% 366 n/a 36% n/a n/a 38% SD 37% 322 n/a 25% 52% 39% n/a WI 36% 477 n/a 28% 41% 38% n/a DC 35% 333 14% 39% 38% 42% n/a ME 35% 386 n/a 32% 41% 44% 27%




Group Residence


Foster or Host

CT 35% 363 3% 24% 43% 50% n/a WY 33% 311 n/a 27% 37% 40% n/a UT 33% 410 13% 32% 53% 25% 56% TN 33% 478 n/a 34% 35% 31% n/a OK 29% 400 n/a 32% 33% 20% n/a NCI Average 28% 19,673 16% 22% 41% 30% 27% PA 27% 654 4% 21% 36% 34% 11% KS 27% 374 n/a 21% 39% 28% n/a NY 26% 492 10% 14% 50% 35% n/a AL 26% 377 n/a 29% 31% 20% n/a LA 25% 394 25% n/a 31% 23% n/a MI 24% 492 n/a 21% 32% 23% n/a




Group Residence


Foster or Host

VA 23% 750 1% 26% 43% 20% 25% CO 22% 365 n/a 26% 33% 19% 19% NV 22% 393 n/a 11% 41% 25% n/a IN 21% 717 n/a n/a 28% 19% 8% FL 21% 749 n/a 15% 36% 19% n/a NJ 20% 377 n/a 10% 38% 30% n/a MO 20% 392 n/a 9% 24% 21% 29% NC 19% 695 6% 25% 29% 17% 27% AR 19% 367 n/a 23% 25% 12% n/a TX 19% 1,977 24% 15% 36% 17% 16% HI 19% 399 n/a 9% 52% 22% 11% KY 18% 411 n/a 17% 23% 17% 23% IL 16% 358 n/a 14% 22% 16% n/a GA 16% 456 n/a 7% 34% 17% 13%




Table 50. Takes classes, training or does something to get a job or do better at current job (‘yes’ responses only)




Group Residence


Foster or Host

DC 44% 137 n/a 46% 40% 43% n/a UT 37% 241 n/a 36% 29% 39% n/a CO 34% 288 n/a 32% 22% 32% 45% RI 32% 247 n/a 37% 23% 36% n/a GA 31% 265 n/a 30% 31% 34% 31% AR 31% 295 n/a 38% 35% 23% n/a AL 31% 346 n/a 26% 29% 38% n/a NE 30% 335 n/a 14% 32% 39% 25% TX 30% 1,377 40% 37% 24% 22% 36%




Group Residence


Foster or Host

IL 27% 251 n/a 20% 22% 35% n/a SD 26% 239 n/a 30% 18% 45% n/a MS 25% 276 n/a 23% 33% 17% n/a MI 23% 315 n/a 20% 22% 27% n/a MN 22% 1,371 17% 22% 15% 32% 15% FL 22% 451 n/a 22% 16% 24% n/a NCI Average 21% 13,992 18% 20% 17% 24% 21% OR 21% 291 n/a 14% 23% 31% 12% HI 21% 188 n/a 24% 25% 22% 19% NY 21% 341 n/a 18% 20% 27% n/a DE 21% 229 n/a 20% n/a n/a 27% CT 20% 261 n/a 21% 14% 24% n/a NJ 20% 207 n/a 15% 17% 37% n/a LA 20% 278 21% n/a 16% 21% n/a ID 20% 310 n/a n/a 15% 23% n/a NC 19% 355 n/a 25% 11% 16% 17% OH 18% 477 17% 17% 13% 23% n/a ME 18% 309 n/a 17% 14% 27% 16% WI 17% 361 n/a 14% 18% 19% n/a NH 17% 309 n/a 17% 20% 18% 16% WY 16% 233 n/a 14% 14% 22% n/a NV 16% 316 n/a 16% 10% 23% n/a




Group Residence


Foster or Host

PA 16% 447 0% 19% 16% 16% 20% KS 15% 248 n/a 19% 14% 5% n/a VA 15% 440 7% 17% 2% 20% 12% TN 13% 345 n/a 18% 15% 7% n/a IN 12% 575 n/a n/a 13% 13% n/a MO 11% 248 n/a 14% 7% n/a n/a VT 10% 267 n/a n/a 11% 14% 9% OK 9% 223 n/a 8% 5% 13% n/a KY 7% 300 n/a 7% 6% 8% 9%



Table 51. Attends a day program or workshop (‘yes’ responses only)




Group Residence


Foster or Host

AL 93% 347 n/a 91% 90% 97% n/a NJ 91% 209 n/a 93% 77% 95% n/a DC 82% 141 n/a 85% 71% 90% n/a KS 80% 276 n/a 95% 67% 68% n/a IL 80% 265 n/a 95% 50% 75% n/a GA 77% 280 n/a 83% 62% 81% 82% MS 76% 284 n/a 92% 63% 74% n/a DE 76% 249 n/a 77% n/a n/a 87% TX 74% 1,459 90% 95% 45% 61% 76% NE 73% 370 n/a 85% 47% 67% 94% RI 73% 251 n/a 90% 54% 74% n/a KY 72% 303 n/a 94% 53% 51% 87% NV 71% 324 n/a 85% 57% 67% n/a CO 68% 296 n/a 87% 41% 67% 82% HI 68% 209 n/a 86% 35% 66% 83% ME 66% 333 n/a 74% 52% 69% 76%




Group Residence


Foster or Host

UT 66% 268 n/a 79% 54% 60% n/a VA 65% 480 27% 82% 44% 59% 59% OH 63% 501 81% 84% 54% 56% n/a NY 62% 349 n/a 88% 18% 50% n/a NC 60% 372 75% 78% 43% 45% 80% NH 60% 321 n/a 63% 43% 59% 67% NCI Average 59% 14,578 77% 78% 38% 55% 68% AR 58% 300 n/a 88% 55% 45% n/a PA 57% 470 40% 76% 33% 56% 76% CT 56% 276 n/a 72% 29% 55% n/a SD 56% 253 n/a 80% 39% 41% n/a IN 55% 587 n/a n/a 50% 57% n/a LA 55% 293 89% n/a 38% 45% n/a WY 54% 235 n/a 91% 39% 38% n/a




Group Residence


Foster or Host

MN 51% 1,399 65% 63% 26% 40% 56% MI 51% 323 n/a 59% 38% 56% n/a MO 51% 256 n/a 63% 46% n/a n/a FL 45% 461 n/a 65% 29% 42% n/a OK 42% 228 n/a 53% 26% 35% n/a WI 41% 362 n/a 53% 26% 46% n/a TN 40% 351 n/a 45% 30% 49% n/a ID 40% 321 n/a n/a 19% 47% n/a OR 32% 300 n/a 54% 15% 22% 38% VT* 21% 276 n/a n/a 21% 31% 15%

*Results for VT only include those who reported attending a ‘center-based’ setting and do not include those who reported participating in integrated community supports.



Table 52. Volunteers (‘yes’ responses only)




Group Residence


Foster or Host

NH 51% 322 n/a 36% 39% 59% 53% NC 46% 365 n/a 48% 37% 50% 52% NE 44% 324 n/a 41% 36% 45% 61% NY 43% 344 n/a 45% 33% 46% n/a VA 42% 453 15% 45% 28% 48% 48% ME 41% 319 n/a 42% 34% 48% 38%




Group Residence


Foster or Host

NJ 43% 209 n/a 39% 31% 62% n/a HI 41% 204 n/a 41% 30% 44% 41% SD 40% 254 n/a 44% 32% 54% n/a UT 39% 251 n/a 36% 31% 42% n/a ID 38% 316 n/a n/a 27% 45% n/a AR 38% 294 n/a 26% 38% 42% n/a GA 38% 273 n/a 33% 38% 42% 32% RI 37% 250 n/a 38% 31% 42% n/a AL 35% 348 n/a 36% 22% 38% n/a IL 35% 254 n/a 30% 32% 39% n/a WI 35% 359 n/a 26% 36% 43% n/a CT 34% 267 n/a 36% 33% 43% n/a MI 34% 315 n/a 26% 36% 46% n/a WY 34% 233 n/a 36% 32% 38% n/a NCI Average 34% 14,189 20% 33% 28% 40% 35% DC 33% 136 n/a 33% 33% 41% n/a IN 33% 579 n/a n/a 24% 36% n/a TX 32% 1,392 32% 30% 24% 35% 37% VT 32% 271 n/a n/a 23% 38% 33% MN 31% 1,385 19% 30% 27% 42% 34% CO 30% 292 n/a 17% 28% 40% 30% OR 30% 293 n/a 26% 28% 42% 23% KS 29% 279 n/a 36% 22% 27% n/a DE 29% 229 n/a 26% n/a n/a 54% MO 29% 250 n/a 36% 21% n/a n/a PA 28% 458 10% 19% 19% 36% 33% FL 28% 451 n/a 24% 29% 30% n/a




Group Residence


Foster or Host

TN 26% 349 n/a 30% 26% 22% n/a OH 26% 479 14% 25% 17% 33% n/a OK 25% 218 n/a 26% 19% 29% n/a LA 25% 282 15% n/a 22% 34% n/a MS 24% 279 n/a 20% 29% 25% n/a NV 24% 315 n/a 27% 11% 34% n/a KY 12% 298 n/a 7% 0% 23% 9%



Self-Determination

People have authority and are supported to direct and manage their own services.



Table 53. Using a self-directed supports option (‘yes’ responses only; information may have been obtained through state records)




Group Residence


Foster or Host

WI** 70% 178 n/a n/a 66% 83% n/a

OR 44% 412 n/a 4% 66% 94% 7%

NH 29% 361 n/a 3% 38% 54% 7%

IL 27% 359 n/a 1% 35% 51% n/a

NJ 27% 381 n/a 2% 32% 63% n/a

KY 25% 415 n/a 0% 26% 52% 0%

ID 24% 412 n/a n/a 5% 40% n/a

UT 24% 403 0% 1% 10% 51% 0% FL 20% 752 n/a 0% 13% 33% n/a

KS 19% 379 n/a 1% 11% 61% n/a

HI 18% 399 n/a 4% 15% 29% 7%

MI 17% 493 n/a 2% 25% 33% n/a

VA 16% 759 1% 3% 22% 45% 1%




Group Residence


Foster or Host

RI 13% 342 n/a 0% 13% 25% n/a CT 13% 366 0% 1% 25% 25% n/a NCI Average 11% 20,346 2% 1% 12% 21% 2% AR 10% 382 n/a 8% 13% 8% n/a VT 9% 324 n/a n/a 2% 28% 1% PA 9% 650 4% 1% 7% 16% 0%




Group Residence


Foster or Host

TX 8% 1,896 9% 6% 11% 8% 2% TN 7% 460 n/a 1% 3% 21% n/a WY 7% 321 n/a 1% 7% 14% n/a SD 6% 305 n/a 1% 3% 21% n/a MN 6% 2,199 0% 1% 4% 22% 0% NY 5% 511 0% 0% 8% 11% n/a LA 5% 408 0% n/a 4% 10% n/a MO 3% 398 n/a 0% 1% 26% 0% GA 3% 455 n/a 0% 7% 4% 0% OH 2% 646 1% 2% 5% 0% n/a OK 1% 400 n/a 0% 0% 5% n/a NE 1% 336 n/a 1% 2% 1% 4% NC 1% 705 0% 0% 0% 1% 1% AL 1% 384 n/a 0% 2% 1% n/a CO 0% 403 n/a 0% 0% 0% 0% DE 0% 403 n/a 0% n/a n/a 0% DC 0% 391 0% 0% 0% 0% n/a IN 0% 729 n/a n/a 0% 0% 0% ME 0% 388 n/a 0% 0% 0% 0% MS 0% 418 n/a 0% 0% 0% n/a NV 0% 423 n/a 0% 0% 0% n/a

**State review of this report revealed that the data missing may not be missing randomly, and results should be viewed with caution



Table 54. People who make decisions or have input in making decisions for how budget for services is used (among those using a self-direction option; proxy respondents were allowed for this question)

State Individual Individual and Family or Friends

Family Member or Friends

Case Manager or Other State

Employee

N

CT 9% 37% 49% 6% 35

FL 8% 37% 55% 1% 143

HI 4% 13% 69% 13% 67

ID 6% 41% 41% 11% 94

IL 8% 36% 54% 2% 50

KS 4% 42% 54% 0% 24

KY 1% 17% 73% 8% 71

MI 10% 39% 36% 16% 70

MN 6% 37% 52% 5% 82

NH 7% 45% 43% 5% 86

NJ 0% 33% 65% 2% 83

NY 13% 70% 13% 4% 23

OR 23% 28% 32% 17% 100

PA 10% 43% 43% 5% 21

RI 5% 46% 44% 5% 41

TN 13% 30% 52% 4% 23

TX 11% 60% 21% 8% 53

UT 6% 19% 72% 3% 72

VT 5% 19% 76% 0% 21

WI 6% 18% 70% 6% 118

NCI Average 9% 36% 48% 7% 1,361



Table 55. Hires and manages staff (among those using a self-direction option and who participate in making decisions about how to use budget; ‘yes’ responses only; proxy respondents were allowed for this question)

Significantly Above Average



Group Residence


Foster or Host

FL 86% 103 n/a n/a n/a 87% n/a




Group Residence


Foster or Host

RI 87% 23 n/a n/a n/a n/a n/a MI 87% 45 n/a n/a n/a 89% n/a OR 86% 78 n/a n/a 80% 90% n/a NY 85% 20 n/a n/a n/a n/a n/a UT 82% 50 n/a n/a n/a 84% n/a CT 80% 30 n/a n/a n/a n/a n/a MN 80% 49 n/a n/a n/a 79% n/a NH 79% 76 n/a n/a n/a 78% n/a NCI Average 77% 893 33% 21% 78% 77% 38% ID 75% 52 n/a n/a n/a 78% n/a IL 72% 36 n/a n/a n/a 68% n/a HI 60% 20 n/a n/a n/a n/a n/a




Group Residence


Foster or Host

WI 63% 94 n/a n/a n/a 63% n/a TX 45% 40 4% n/a n/a n/a n/a NJ 33% 40 n/a n/a n/a 31% n/a



Table 56. Can make changes to individual budget/services if needed (among those using a self-direction option and who participate in making decisions about how to use budget; ‘yes’ responses only; proxy respondents were allowed for this question)




Group Residence


Foster or Host

TX 99% 41 95% n/a n/a n/a n/a FL 91% 104 n/a n/a n/a 90% n/a




Group Residence


Foster or Host

UT 92% 50 n/a n/a n/a 93% n/a OR 90% 83 n/a n/a 96% 87% n/a NY 90% 20 n/a n/a n/a n/a n/a IL 89% 36 n/a n/a n/a 86% n/a WI 87% 99 n/a n/a 95% 84% n/a NCI Average 83% 915 88% 67% 86% 83% 70% MN 82% 49 n/a n/a n/a 81% n/a NH 82% 76 n/a n/a n/a 76% n/a CT 81% 26 n/a n/a n/a n/a n/a ID 78% 60 n/a n/a n/a 83% n/a RI 73% 22 n/a n/a n/a n/a n/a NJ 71% 45 n/a n/a n/a 76% n/a HI 60% 20 n/a n/a n/a n/a n/a




Group Residence


Foster or Host

MI 59% 46 n/a n/a n/a 59% n/a



Table 57. Has enough help deciding how to use their individual budget/services (among those using a self-direction option and who participate in making decisions about how to use budget; ‘yes’ responses only; proxy respondents were allowed for this question)




Group Residence


Foster or Host

IL 100% 34 n/a n/a n/a 100% n/a




Group Residence


Foster or Host

TX 97% 41 100% n/a n/a n/a n/a CT 96% 26 n/a n/a n/a n/a n/a FL 94% 105 n/a n/a n/a 93% n/a MN 92% 50 n/a n/a n/a 91% n/a MI 91% 46 n/a n/a n/a 86% n/a ID 90% 60 n/a n/a n/a 89% n/a NCI Average 89% 918 100% 80% 92% 89% 94%

RI 88% 24 n/a n/a n/a n/a n/a WI 87% 101 n/a n/a 90% 85% n/a UT 86% 49 n/a n/a n/a 84% n/a OR 85% 82 n/a n/a 76% 88% n/a NH 84% 77 n/a n/a n/a 83% n/a




Group Residence


Foster or Host

NJ 63% 46 n/a n/a n/a n/a n/a



Table 58. Gets information about how much money is left in budget/services (among those using a self-direction option and who participate in making decisions about how to use budget; ‘yes’ responses only; proxy respondents were allowed for this question)




Group Residence


Foster or Host

IL 97% 33 n/a n/a n/a 100% n/a WI 94% 102 n/a n/a 100% 92% n/a




Group Residence


Foster or Host

FL 91% 102 n/a n/a n/a 92% n/a MN 90% 51 n/a n/a n/a 93% n/a NY 90% 20 n/a n/a n/a n/a n/a NH 89% 73 n/a n/a n/a 85% n/a RI 87% 23 n/a n/a n/a n/a n/a ID 86% 59 n/a n/a n/a 87% n/a NCI Average 84% 902 100% 80% 80% 85% 100%

UT 84% 50 n/a n/a n/a n/a 16%

TX 83% 41 n/a n/a n/a n/a 18%

MI 80% 46 n/a n/a n/a n/a 20%

CT 72% 29 n/a n/a n/a n/a 26%




Group Residence


Foster or Host

OR 61% 80 n/a n/a 38% 71% n/a NJ 57% 42 n/a n/a n/a 56% n/a



Table 59. Information about budget/services is easy to understand (among those using a self-direction option and who participate in making decisions about how to use budget and who receive information about how much money is left in budget/services; ‘yes’ responses only; proxy respondents were allowed for this question)




Group Residence


Foster or Host

IL 91% 32 n/a n/a n/a 88% n/a




Group Residence


Foster or Host

TX 90% 34 95% n/a n/a n/a n/a MN 87% 46 n/a n/a n/a 88% n/a ID 85% 54 n/a n/a n/a 90% n/a FL 83% 94 n/a n/a n/a 85% n/a NH 81% 67 n/a n/a n/a 80% n/a CT 79% 24 n/a n/a n/a n/a n/a OR 79% 52 n/a n/a n/a 78% n/a NCI Average 75% 797 63% 48% 75% 74% 100% WI 70% 96 n/a n/a 60% 70% n/a MI 67% 39 n/a n/a n/a 65% n/a NY 65% 20 n/a n/a n/a n/a n/a UT 64% 44 n/a n/a n/a 59% n/a NJ 58% 38 n/a n/a n/a 67% n/a



Table 60. Frequency of budget/services information or updates (among those using a self-direction option and who participate in making decisions about how to use budget; proxy respondents were allowed for this question) º

At Least Every Three Months

About Twice a Year

Once a Year or Less

N

CT 86% 10% 5% 21

FL 95% 4% 1% 94

ID 90% 2% 8% 52

IL 83% 17% 0% 30

MI 76% 11% 14% 37

MN 89% 11% 0% 44

NH 82% 12% 6% 65

NJ 61% 11% 29% 28

OR 53% 8% 39% 49

TX 72% 7% 20% 34

UT 98% 2% 0% 42

WI 97% 1% 2% 90

NCI Average 85% 6% 9% 731 ºNew question in 2016-17



Community Inclusion, Participation and Leisure

People have support to participate in everyday community activities.

One Community Inclusion composite scale score was produced by adding four of the items: the number

of times the person went shopping, on errands, for entertainment, and out to eat. For more information

on the development of scales, see the Data Analysis section of Part II of the 2016-17 ACS National Report.



Table 61. Went out shopping at least once in the past month (proxy respondents were allowed for this question)




Group Residence


Foster or Host

GA 98% 436 n/a 97% 100% 97% 100%

WY 97% 316 n/a 96% 100% 96% n/a

SD 97% 288 n/a 93% 100% 100% n/a

NH 95% 399 n/a 95% 98% 97% 94%

KY 95% 421 n/a 94% 96% 97% 96%

ID 95% 406 n/a n/a 95% 94% n/a

IN 95% 715 n/a n/a 96% 94% 96%

RI 94% 338 n/a 92% 97% 95% n/a

AR 94% 384 n/a 94% 96% 91% n/a ME 94% 395 n/a 94% 98% 97% 94%

IL 94% 363 n/a 91% 98% 95% n/a




Group Residence


Foster or Host

HI 93% 403 n/a 91% 96% 95% 90%

CT 93% 354 86% 92% 97% 94% n/a

KS 92% 381 n/a 90% 94% 93% n/a

MN 92% 1996 86% 92% 98% 92% 97% PA 92% 662 78% 93% 98% 92% 96%

MO 92% 397 n/a 88% 95% 82% 100%

TN 92% 470 n/a 92% 95% 88% n/a

OR 92% 408 n/a 90% 97% 94% 87%

NJ 91% 387 n/a 91% 93% 91% n/a

OK 91% 395 n/a 89% 95% 92% n/a

FL 91% 750 n/a 87% 96% 91% n/a

MS 91% 402 n/a 98% 97% 83% n/a

NY 91% 520 81% 89% 98% 91% n/a

VT 90% 324 n/a n/a 98% 89% 88%

NCI Average 90% 19,939 76% 89% 94% 91% 92% DC 90% 362 92% 87% 95% 91% n/a

NC 90% 629 71% 93% 85% 91% 94%

OH 89% 661 79% 89% 92% 91% n/a

NV 89% 416 n/a 89% 92% 87% n/a

WI 88% 546 n/a 83% 92% 90% n/a

UT 88% 398 54% 90% 99% 86% 100%




Group Residence


Foster or Host

TX 88% 1,381 77% 81% 92% 93% 96%

MI 86% 495 n/a 78% 91% 93% n/a

VA 86% 794 40% 93% 88% 86% 99%

AL 85% 380 n/a 82% 84% 89% n/a

DE 83% 373 n/a 82% n/a n/a 88%

LA 81% 401 67% n/a 88% 86% n/a

NE 74% 391 48% 61% 94% 72% 91%

CO 40% 402 n/a 26% 4% 51% 53%



Table 62. Went out on errands at least once in the past month (proxy respondents were allowed for this question)




Group Residence


Foster or Host

KY 95% 420 n/a 93% 98% 95% 100% VT 95% 313 n/a n/a 96% 93% 95% DE 95% 366 n/a 95% n/a n/a 94% CT 94% 353 77% 95% 97% 95% n/a WY 94% 300 n/a 91% 93% 95% n/a RI 93% 327 n/a 94% 92% 93% n/a PA 93% 651 74% 97% 98% 92% 96% NH 93% 395 n/a 93% 96% 90% 94% SD 93% 284 n/a 91% 95% 98% n/a OK 92% 400 n/a 92% 96% 92% n/a AR 92% 380 n/a 98% 92% 89% n/a ID 91% 397 n/a n/a 92% 93% n/a




Group Residence


Foster or Host

NJ 91% 379 n/a 95% 93% 81% n/a IL 90% 354 n/a 89% 95% 91% n/a OR 90% 404 n/a 89% 93% 93% 86% TN 90% 473 n/a 94% 93% 82% n/a NY 89% 513 78% 92% 90% 88% n/a MN 89% 1,989 80% 90% 94% 86% 94% OH 88% 657 76% 89% 92% 89% n/a TX 88% 1,400 80% 83% 96% 91% 95% NCI Average 88% 19,761 75% 89% 90% 87% 89% TX 88% 1,400 80% 83% 96% 91% 95% NC 87% 624 59% 94% 88% 90% 86% ME 87% 392 n/a 88% 82% 88% 92% DC 87% 364 86% 82% 90% 96% n/a KS 85% 375 n/a 82% 86% 88% n/a WI 84% 544 n/a 77% 87% 88% n/a MI 84% 492 n/a 80% 85% 89% n/a UT 84% 393 50% 84% 90% 85% 92% MO 84% 392 n/a 85% 86% 68% 91% LA 83% 407 77% n/a 89% 84% n/a MS 83% 399 n/a 89% 89% 75% n/a




Group Residence


Foster or Host

FL 84% 747 n/a 83% 90% 82% n/a IN 84% 704 n/a n/a 83% 83% 96% VA 83% 789 44% 87% 90% 86% 95% AL 82% 384 n/a 81% 91% 82% n/a NV 82% 402 n/a 84% 87% 79% n/a GA 81% 409 n/a 86% 86% 74% 87% NE 81% 393 65% 78% 96% 78% 86% CO 75% 399 n/a 56% 82% 79% 76% HI 56% 397 n/a 44% 96% 68% 33%



Table 63. Went out for entertainment at least once in the past month (proxy respondents were allowed for this question)




Group Residence


Foster or Host

DC 88% 385 83% 89% 87% 90% n/a KY 87% 421 n/a 89% 89% 86% 90% WY 87% 315 n/a 93% 76% 91% n/a TN 87% 474 n/a 90% 90% 79% n/a NJ 87% 388 n/a 92% 79% 82% 85% TX 86% 1,410 88% 86% 81% 85% 97% OK 86% 391 n/a 84% 90% 84% n/a GA 85% 424 n/a 87% 91% 82% 85% SD 85% 284 n/a 88% 81% 86% n/a NV 84% 413 n/a 83% 78% 91% n/a OR 83% 399 n/a 86% 77% 84% 83% KS 83% 374 n/a 82% 81% 84% n/a UT 82% 393 54% 87% 75% 83% 96% MN 82% 2,010 69% 83% 80% 85% 79%




Group Residence


Foster or Host

CT 82% 352 80% 84% 77% 81% n/a AR 81% 386 n/a 87% 82% 78% n/a MO 80% 394 n/a 77% 82% 76% 82% RI 80% 330 n/a 79% 76% 83% 80% FL 80% 753 n/a 87% 81% 76% n/a NE 80% 393 83% 81% 84% 75% 86% ID 79% 405 n/a n/a 73% 83% n/a OH 78% 653 75% 84% 70% 82% n/a IL 78% 354 n/a 74% 77% 82% n/a NCI Average 77% 19,928 70% 79% 71% 78% 83% AL 76% 384 n/a 74% 77% 77% n/a PA 75% 665 69% 80% 72% 73% 89% CO 75% 399 n/a 67% 66% 80% 80% DE 75% 377 n/a 76% n/a n/a 67% NH 75% 396 n/a 70% 73% 82% 69% VA 74% 793 34% 85% 73% 68% 85% NC 73% 633 78% 81% 55% 69% 81% IN 72% 717 n/a n/a 68% 74% 81% HI 72% 394 n/a 69% 76% 77% 64%




Group Residence


Foster or Host

WI 71% 543 n/a 72% 65% 76% n/a LA 70% 405 65% n/a 72% 74% n/a NY 70% 516 61% 73% 51% 74% n/a MI 70% 493 n/a 65% 62% 82% n/a MS 68% 400 n/a 80% 65% 63% n/a VT 62% 319 n/a n/a 40% 67% 66% ME 56% 393 n/a 59% 48% 59% 57%



Table 64. Went out to eat at least once in the past month (proxy respondents were allowed for this question)




Group Residence


Foster or Host

GA 95% 443 n/a 94% 97% 95% 100% RI 94% 327 n/a 93% 95% 94% 100% WY 94% 316 n/a 92% 93% 95% n/a IL 93% 360 n/a 91% 100% 93% n/a AL 93% 385 n/a 93% 93% 92% n/a HI 93% 397 n/a 91% 92% 92% 94% ID 92% 409 n/a n/a 87% 95% n/a KY 92% 420 n/a 90% 93% 92% 96% TN 91% 473 n/a 88% 93% 93% n/a NH 91% 399 n/a 91% 79% 95% 90% PA 90% 671 67% 96% 90% 90% 96% IN 90% 719 n/a n/a 88% 90% 92%




Group Residence


Foster or Host

KS 90% 387 n/a 88% 94% 89% n/a OK 89% 397 n/a 86% 91% 94% n/a MN 89% 2,015 81% 89% 92% 91% 88% SD 89% 278 n/a 86% 88% 98% n/a AR 89% 384 n/a 92% 90% 84% n/a CT 88% 356 75% 85% 93% 94% n/a CO 88% 399 n/a 70% 86% 95% 92% OH 88% 657 80% 91% 90% 88% n/a MO 88% 399 n/a 86% 91% 72% 95% NJ 88% 382 n/a 90% 88% 84% 90% VT 88% 321 n/a n/a 79% 90% 90%

NC 88% 631 83% 89% 73% 87% 97%

UT 87% 393 58% 94% 91% 84% 96% FL 87% 751 n/a 89% 86% 86% n/a NV 86% 420 n/a 87% 85% 90% n/a NCI Average 86% 20,011 72% 87% 88% 87% 93% WI 85% 546 n/a 84% 82% 89% n/a LA 85% 407 81% n/a 84% 88% n/a OR 85% 402 n/a 88% 87% 84% 81% MS 85% 404 n/a 95% 82% 80% n/a VA 85% 795 37% 92% 92% 85% 96% ME 83% 393 n/a 83% 82% 91% 82% DC 83% 383 66% 82% 90% 88% n/a DE 82% 379 n/a 83% n/a n/a 70%




Group Residence


Foster or Host

TX 84% 1,404 70% 84% 87% 87% 94% MI 81% 499 n/a 79% 80% 83% n/a NY 79% 520 63% 82% 89% 78% n/a NE 77% 390 59% 59% 93% 79% 86%



Table 65. Went out to religious service or spiritual practice at least once in the past month (proxy respondents were allowed for this question)




Group Residence


Foster or Host

GA 72% 412 n/a 65% 71% 74% 78% MS 68% 402 n/a 78% 66% 65% n/a DC 67% 331 65% 63% 71% 71% n/a AL 66% 377 n/a 56% 67% 79% n/a NC 64% 636 59% 63% 55% 65% 66% TX 60% 1,379 65% 49% 75% 62% 57% LA 58% 406 59% n/a 53% 60% n/a TN 57% 468 n/a 51% 55% 66% n/a KS 56% 349 n/a 49% 56% 65% n/a AR 53% 377 n/a 59% 54% 47% n/a IN 51% 718 n/a n/a 46% 52% 58%




Group Residence


Foster or Host

NE 52% 393 38% 27% 55% 67% 46% UT 52% 395 54% 33% 42% 65% 81% IL 51% 345 n/a 45% 54% 58% n/a ID 50% 408 n/a n/a 39% 58% n/a FL 50% 740 n/a 50% 51% 49% n/a VA 49% 782 28% 53% 52% 47% 60% SD 48% 283 n/a 43% 47% 64% n/a MN 47% 2,024 35% 48% 47% 50% 42% OK 46% 398 n/a 39% 49% 52% n/a MO 46% 394 n/a 47% 46% 38% 50% NCI Average 45% 19,757 44% 41% 43% 50% 50% PA 44% 652 39% 34% 43% 50% 59% NJ 43% 373 n/a 42% 43% 44% n/a CO 42% 401 n/a 26% 44% 46% 52% WY 42% 318 n/a 34% 48% 44% n/a OH 42% 654 31% 40% 42% 46% n/a WI 40% 549 n/a 38% 36% 45% n/a




Group Residence


Foster or Host

NY 39% 513 39% 35% 32% 43% n/a DE 39% 381 n/a 38% n/a n/a 52% MI 38% 496 n/a 28% 38% 47% n/a RI 37% 319 n/a 29% 44% 40% 30% CT 36% 346 52% 28% 32% 43% n/a NV 32% 402 n/a 23% 32% 39% n/a OR 31% 408 n/a 27% 34% 37% 28% NH 30% 398 n/a 35% 25% 26% 31% ME 30% 396 n/a 32% 36% 31% 14% HI 30% 398 n/a 18% 48% 35% 21% KY 29% 416 n/a 26% 22% 27% 42%

VT 22% 320 n/a n/a 11% 31% 23%



Table 66. Participated as a member in a community group (proxy respondents were allowed for this question)




Group Residence


Foster or Host

GA 51% 430 n/a 51% 59% 50% 49% KS 50% 326 n/a 57% 48% 39% n/a UT 50% 392 33% 49% 37% 56% 64% CT 47% 348 36% 48% 46% 47% n/a FL 46% 746 n/a 47% 52% 43% n/a MN 43% 2,011 31% 44% 45% 43% 43% RI 42% 326 n/a 47% 40% 40% n/a IL 42% 348 n/a 45% 44% 38% n/a PA 41% 652 22% 35% 43% 47% 58% VA 41% 784 20% 44% 43% 40% 58%




Group Residence


Foster or Host

ID 39% 405 n/a n/a 28% 47% n/a SD 39% 278 n/a 31% 42% 56% n/a MO 38% 395 n/a 30% 45% 18% 48% NC 38% 629 19% 40% 39% 38% 49% NH 38% 399 n/a 39% 39% 36% 36% NJ 36% 387 n/a 32% 41% 42% 20% NV 36% 417 n/a 40% 33% 36% n/a AR 36% 359 n/a 40% 34% 32% n/a MS 35% 397 n/a 34% 35% 36% n/a NCI Average 34% 19,778 23% 31% 36% 37% 36% DC 34% 373 32% 31% 42% 40% n/a TX 33% 1,384 23% 24% 50% 36% 58% IN 33% 710 n/a n/a 32% 34% 24% NE 33% 393 23% 18% 45% 39% 30% WY 33% 311 n/a 30% 38% 33% n/a WI 32% 552 n/a 26% 33% 34% n/a MI 30% 498 n/a 21% 34% 38% n/a HI 30% 395 n/a 23% 60% 34% 18% OR 29% 407 n/a 17% 37% 38% 28% LA 28% 401 20% n/a 31% 34% n/a




Group Residence


Foster or Host

OH 29% 661 21% 29% 24% 36% n/a NY 26% 519 22% 19% 33% 29% n/a OK 26% 399 n/a 25% 25% 30% n/a TN 25% 471 n/a 23% 20% 30% n/a CO 25% 394 n/a 14% 24% 28% 28% ME 23% 392 n/a 17% 37% 24% 23% AL 16% 380 n/a 9% 23% 22% n/a VT 15% 317 n/a n/a 15% 20% 14% DE 13% 376 n/a 13% n/a n/a 3% KY 12% 416 n/a 9% 13% 15% 12%



Table 67. Went on vacation in the past year (proxy respondents were allowed for this question)




Group Residence


Foster or Host

DC 81% 367 97% 79% 75% 75% n/a ID 63% 408 n/a n/a 42% 77% n/a WY 62% 317 n/a 52% 55% 74% n/a UT 59% 392 13% 46% 67% 69% 76% NH 58% 396 n/a 27% 61% 65% 59% OR 57% 407 n/a 48% 49% 70% 65% NC 57% 622 23% 47% 56% 65% 70% WI 57% 548 n/a 42% 53% 69% n/a VT 56% 322 n/a n/a 46% 62% 58% CO 54% 400 n/a 42% 46% 65% 49% CT 54% 354 49% 51% 51% 61% n/a SD 54% 278 n/a 45% 55% 82% n/a ME 52% 393 n/a 46% 47% 66% 61%




Group Residence


Foster or Host

IL 49% 358 n/a 36% 46% 61% n/a AR 49% 382 n/a 50% 43% 51% n/a MN 48% 2,015 34% 48% 49% 55% 61% IN 48% 722 n/a n/a 33% 54% 72% MS 48% 398 n/a 39% 49% 51% n/a PA 48% 670 14% 39% 35% 61% 72% VA 47% 786 9% 46% 53% 53% 77% FL 47% 758 n/a 44% 36% 52% n/a NJ 47% 386 n/a 38% 37% 60% 70% NCI Average 45% 19,898 23% 39% 39% 56% 60% TX 44% 1,391 22% 27% 50% 59% 55% RI 44% 323 n/a 36% 42% 50% n/a GA 43% 414 n/a 26% 50% 50% 49% OH 43% 664 17% 42% 38% 54% n/a NV 42% 418 n/a 33% 40% 55% n/a NY 40% 514 17% 37% 29% 50% n/a




Group Residence


Foster or Host

MI 38% 494 n/a 23% 34% 63% n/a AL 38% 382 n/a 36% 33% 43% n/a NE 37% 397 18% 18% 38% 46% 47% KS 36% 378 n/a 28% 36% 48% n/a OK 36% 398 n/a 27% 29% 52% n/a LA 35% 403 24% n/a 32% 43% n/a DE 34% 373 n/a 33% n/a n/a 41% MO 33% 386 n/a 30% 31% 41% 55% TN 31% 465 n/a 29% 28% 39% n/a HI 30% 402 n/a 11% 44% 45% 10% KY 27% 417 n/a 27% 9% 30% 33%



Table 68. Community Inclusion Scale **




Group Residence


Foster or Host

WY 93% 320 n/a 93% 91% 94% n/a KY 92% 421 n/a 92% 94% 92% 96% SD 91% 297 n/a 90% 91% 95% n/a GA 90% 447 n/a 91% 94% 88% 93% RI 90% 343 n/a 89% 90% 91% 93% TN 90% 480 n/a 91% 93% 85% n/a ID 90% 410 n/a n/a 86% 91% n/a OK 89% 400 n/a 87% 93% 90% n/a CT 89% 358 80% 89% 91% 91% n/a NJ 89% 396 n/a 92% 88% 85% 91% IL 89% 368 n/a 87% 92% 90% n/a AR 89% 392 n/a 93% 90% 85% n/a NH 88% 402 n/a 87% 87% 91% 87% MN 88% 2038 79% 88% 91% 89% 90% PA 87% 686 71% 92% 89% 87% 95%




Group Residence


Foster or Host

KS 88% 396 n/a 86% 88% 89% n/a DC 86% 395 82% 85% 90% 90% n/a TX 86% 1,429 79% 83% 89% 89% 96% MO 86% 399 n/a 84% 88% 75% 92% OH 86% 669 78% 88% 86% 87% n/a UT 85% 406 54% 88% 89% 85% 96% FL 85% 763 n/a 86% 88% 84% n/a NCI Average 85% 20,319 n/a 86% 86% 86% 89% NV 85% 431 n/a 85% 85% 86% n/a IN 85% 727 n/a n/a 84% 85% 91% NC 84% 638 73% 89% 75% 84% 90% AL 84% 385 n/a 83% 86% 85% n/a VT 84% 327 n/a n/a 79% 85% 85% DE 83% 386 n/a 84% n/a n/a 80% WI 82% 551 n/a 79% 81% 85% n/a NV 85% 431 n/a 85% 85% 86% n/a




Group Residence


Foster or Host

NY 82% 525 71% 84% 82% 82% n/a VA 82% 800 39% 89% 86% 81% 94% MS 82% 408 n/a 90% 83% 75% n/a ME 80% 398 n/a 81% 77% 84% 81% MI 80% 501 n/a 75% 80% 86% n/a LA 80% 409 73% n/a 83% 83% n/a HI 78% 406 n/a 74% 88% 83% 70% NE 78% 398 64% 70% 91% 76% 87% CO 69% 402 n/a 55% 60% 76% 75%

** For more information on development of scales see the beginning of this section or the Data Analysis section of Part II of the 2016-17 ACS National Report.



Table 69. Able to go out and do the things likes to do in the community (‘yes’ responses only)




Group Residence


Foster or Host

DC 96% 140 n/a 97% 93% 97% n/a PA 94% 447 80% 92% 99% 94% 90% KY 93% 300 n/a 92% 89% 96% 91% OK 92% 210 n/a 89% 94% 96% n/a IN 92% 584 n/a n/a 89% 93% n/a ME 91% 318 n/a 89% 87% 95% 94% AR 91% 289 n/a 83% 91% 92% n/a




Group Residence


Foster or Host

NJ 89% 213 n/a 90% 89% 85% n/a OH 88% 493 79% 89% 87% 91% n/a TN 88% 348 n/a 87% 84% 93% n/a MN 87% 1,400 80% 88% 88% 86% 84% GA 87% 270 n/a 89% 95% 84% 90% RI 87% 247 n/a 88% 85% 89% n/a IL 87% 261 n/a 84% 92% 87% n/a NY 87% 342 n/a 85% 86% 91% n/a NC 86% 369 75% 86% 71% 89% 91% MS 86% 276 n/a 87% 86% 83% n/a WI 86% 346 n/a 83% 85% 91% n/a MO 86% 247 n/a 70% 89% n/a n/a

FL 86% 451 n/a 78% 84% 91% n/a

CT 86% 278 n/a 86% 85% 84% n/a NCI Average 86% 14,130 75% 84% 86% 89% 85% UT 85% 251 n/a 78% 92% 88% n/a DE 85% 230 n/a 85% n/a n/a 83% OR 85% 281 n/a 83% 83% 92% 81% VA 85% 462 34% 88% 83% 92% 93% SD 85% 259 n/a 84% 84% 93% n/a LA 84% 288 85% n/a 80% 87% n/a HI 84% 185 n/a 90% 83% 85% 68% KS 82% 271 n/a 77% 81% 90% n/a MI 82% 310 n/a 74% 84% 87% n/a WY 80% 235 n/a 70% 89% 83% n/a




Group Residence


Foster or Host

TX 81% 1,380 78% 79% 82% 82% 89% ID 80% 316 n/a n/a 72% 84% n/a NV 79% 318 n/a 72% 81% 84% n/a NH 78% 326 n/a 75% 78% 86% 70% AL 76% 344 n/a 75% 83% 76% n/a VT 75% 233 n/a n/a 69% 75% 76% NE 73% 323 n/a 62% 85% 72% 79% CO 69% 289 n/a 54% 76% 68% 77%



Table 70. Able to go out and do the things likes to do in the community as often as wants to (‘yes’ responses only)




Group Residence


Foster or Host

KY 93% 294 n/a 90% 88% 97% 93% DC 90% 137 n/a 88% 93% 93% n/a PA 89% 418 n/a 90% 93% 88% n/a TN 87% 339 n/a 86% 84% 91% n/a IL 87% 246 n/a 83% 82% 91% n/a IN 86% 547 n/a n/a 88% 85% n/a CT 84% 261 n/a 90% 85% 80% n/a FL 84% 421 n/a 72% 85% 90% n/a




Group Residence


Foster or Host

MS 83% 261 n/a 80% 82% 86% n/a NJ 83% 197 n/a 85% 69% 82% n/a GA 82% 256 n/a 83% 85% 81% 79% KS 81% 253 n/a 73% 81% 96% n/a NY 81% 318 n/a 80% 77% 84% n/a MO 81% 229 n/a 68% 83% n/a n/a VA 80% 417 65% 78% 90% 85% 75% TX 80% 1,246 75% 76% 78% 83% 83% LA 79% 278 72% n/a 80% 83% n/a RI 79% 234 n/a 88% 74% 76% n/a HI 79% 170 n/a 85% 83% 80% 67% NV 79% 283 n/a 76% 84% 83% n/a OK 79% 203 n/a 79% 77% 81% n/a UT 79% 228 n/a 75% 82% 80% n/a AR 78% 279 n/a 72% 79% 80% n/a NCI Average 78% 13,150 70% 76% 77% 81% 76% MN 77% 1,320 71% 77% 78% 79% 76% NC 76% 343 n/a 78% 67% 80% 73% OH 75% 456 59% 79% 72% 78% n/a SD 75% 239 n/a 71% 79% 82% n/a




Group Residence


Foster or Host

ID 71% 290 n/a n/a 63% 78% n/a CO 69% 272 n/a 58% 69% 75% 79% WY 69% 219 n/a 57% 76% 71% n/a MI 68% 285 n/a 58% 70% 73% n/a DE 67% 215 n/a 65% n/a n/a 68% WI 67% 321 n/a 66% 70% 72% n/a NE 65% 273 n/a 63% 73% 58% 81% OR 63% 259 n/a 57% 66% 67% 65% VT 60% 219 n/a n/a 60% 63% 58% NH 55% 303 n/a 56% 54% 57% 55% ME 48% 297 n/a 45% 59% 51% 28% AL 47% 324 n/a 45% 37% 51% n/a



Table 71. Has enough things to do when at home (‘yes’ responses only)




Group Residence


Foster or Host

KY 95% 301 n/a 90% 94% 98% 96% IN 92% 584 n/a n/a 91% 93% n/a VA 91% 459 74% 90% 90% 94% 98% WI 89% 354 n/a 85% 92% 90% n/a PA 88% 459 80% 88% 87% 89% 95%




Group Residence


Foster or Host

TN 88% 350 n/a 85% 87% 92% n/a DC 87% 140 n/a 87% 90% 86% n/a CT 87% 275 n/a 84% 85% 92% n/a NH 86% 322 n/a 80% 91% 92% 81% UT 86% 257 n/a 86% 84% 89% n/a FL 86% 453 n/a 73% 92% 90% n/a MN 86% 1,407 78% 86% 88% 87% 88% KS 86% 279 n/a 82% 85% 93% n/a WY 85% 236 n/a 81% 86% 90% n/a MS 85% 285 n/a 80% 86% 90% n/a OK 85% 212 n/a 84% 76% 96% n/a IL 85% 261 n/a 79% 92% 86% n/a TX 84% 1,389 82% 79% 83% 88% 92% NY 84% 350 n/a 83% 92% 86% n/a GA 84% 273 n/a 80% 91% 84% 81% NCI Average 84% 14,267 75% 81% 86% 87% 85% NC 83% 368 80% 81% 93% 84% 84% LA 83% 289 86% n/a 80% 84% n/a OH 83% 492 68% 82% 82% 87% n/a SD 83% 259 n/a 81% 86% 85% n/a RI 83% 249 n/a 84% 87% 80% n/a ID 82% 322 n/a n/a 75% 85% n/a AR 82% 296 n/a 76% 83% 80% n/a MI 82% 319 n/a 79% 79% 87% n/a HI 81% 194 n/a 75% 83% 86% 68% MO 81% 242 n/a 72% 83% n/a n/a NJ 77% 210 n/a 75% 74% 81% n/a




Group Residence


Foster or Host

OR 76% 290 n/a 69% 76% 83% 73% NV 73% 315 n/a 68% 71% 78% n/a CO 73% 292 n/a 47% 74% 79% 86% NE 72% 331 n/a 71% 85% 65% 87% AL 71% 346 n/a 69% 73% 73% n/a ME 70% 316 n/a 63% 67% 78% 85% VT 69% 261 n/a n/a 71% 65% 71% DE 57% 230 n/a 55% n/a n/a 67%



Relationships

People have friends and relationships.



Table 72. Has friends who are not staff or family members (‘yes, has friends who are not staff or family’ responses only)




Group Residence


Foster or Host

AL 92% 346 n/a 89% 98% 93% n/a ME 89% 314 n/a 91% 88% 92% 82% TN 88% 344 n/a 91% 89% 84% n/a IL 86% 265 n/a 82% 95% 88% n/a OH 84% 496 75% 89% 80% 88% n/a KS 84% 276 n/a 86% 79% 92% n/a NJ 84% 212 n/a 83% 89% 84% n/a GA 83% 266 n/a 73% 89% 87% 77% WI 83% 356 n/a 78% 83% 83% n/a MN 82% 1,403 75% 80% 88% 84% 84%




Group Residence


Foster or Host

SD 81% 259 n/a 75% 85% 83% n/a ID 81% 323 n/a n/a 78% 81% n/a VA 81% 470 69% 86% 91% 74% 84% MO 81% 249 n/a 83% 82% n/a n/a WY 81% 232 n/a 79% 75% 90% n/a LA 80% 294 88% n/a 77% 78% n/a AR 80% 293 n/a 75% 88% 71% n/a DC 80% 138 n/a 83% 80% 69% n/a RI 79% 249 n/a 77% 76% 80% n/a PA 79% 464 71% 74% 85% 78% 85% IN 78% 590 n/a n/a 77% 78% n/a OR 77% 300 n/a 83% 75% 78% 69% NCI Average 77% 14,388 70% 74% 82% 79% 75% NC 76% 372 65% 74% 82% 77% 73% MS 76% 285 n/a 73% 80% 76% n/a NH 76% 322 n/a 71% 87% 77% 67% FL 76% 455 n/a 71% 81% 75% n/a CO 76% 294 n/a 68% 82% 73% 77% HI 75% 207 n/a 85% 79% 73% 77% UT 75% 261 n/a 78% 66% 75% n/a VT 74% 260 n/a n/a 92% 77% 65% MI 71% 322 n/a 64% 72% 77% n/a DE 70% 242 n/a 70% n/a n/a 79% OK 70% 220 n/a 64% 74% 75% n/a




Group Residence


Foster or Host

TX 72% 1,415 75% 67% 81% 72% 68% NE 70% 349 n/a 53% 87% 77% 67% CT 70% 278 n/a 66% 80% 70% n/a NY 69% 351 n/a 63% 85% 72% n/a KY 66% 300 n/a 48% 78% 79% 62% NV 65% 316 n/a 54% 76% 67% n/a



Table 73. Has best friend (may be staff or family); (‘yes’ responses only) º




Group Residence


Foster or Host

AL 84% 346 n/a 83% 83% 88% n/a SD 82% 253 n/a 80% 83% 83% n/a RI 82% 241 n/a 83% 83% 80% n/a UT 81% 252 n/a 81% 83% 78% n/a AR 80% 288 n/a 88% 85% 70% n/a MS 79% 281 n/a 82% 79% 78% n/a PA 79% 434 71% 82% 84% 76% 85% OH 79% 482 71% 82% 76% 82% n/a




Group Residence


Foster or Host

DE 79% 236 n/a 80% n/a n/a 83% IL 78% 259 n/a 82% 82% 74% n/a WY 77% 226 n/a 83% 76% 73% n/a GA 77% 264 n/a 71% 83% 77% 77% OK 76% 217 n/a 76% 75% 79% n/a ME 75% 293 n/a 75% 77% 73% 79% MN 75% 1,372 74% 74% 71% 81% 77% DC 75% 139 n/a 76% 80% 66% n/a WI 75% 351 n/a 71% 70% 79% n/a FL 75% 428 n/a 76% 71% 76% n/a MO 74% 234 n/a 65% 75% n/a n/a NJ 74% 208 n/a 75% 69% 75% n/a TX 74% 1,401 81% 72% 76% 73% 68% VA 74% 443 50% 78% 86% 70% 73% IN 72% 551 n/a n/a 71% 72% n/a NH 72% 309 n/a 62% 74% 73% 71% OR 72% 291 n/a 82% 70% 74% 58% KS 72% 269 n/a 77% 64% 71% n/a NCI Average 72% 13,962 69% 71% 73% 73% 71% KY 71% 293 n/a 61% 77% 80% 69% HI 70% 203 n/a 71% 79% 70% 64% MI 70% 307 n/a 67% 69% 72% n/a CT 70% 273 n/a 66% 78% 64% n/a CO 70% 291 n/a 58% 63% 72% 82% NC 69% 367 n/a 76% 75% 63% 70% LA 68% 291 76% n/a 64% 67% n/a NV 68% 304 n/a 65% 71% 71% n/a NE 68% 321 n/a 59% 75% 69% 71% TN 67% 332 n/a 77% 70% 60% n/a ID 65% 314 n/a n/a 61% 64% n/a




Group Residence


Foster or Host

VT 64% 253 n/a n/a 70% 62% 62% NY 60% 345 n/a 53% 74% 63% n/a

º New question in 2016-17 (item was used in tools prior to 2015-16)



Table 74. Wants help to meet or keep in contact with friends (‘yes’ and ‘maybe’ responses)




Group Residence


Foster or Host

NV 62% 309 n/a 69% 56% 61% n/a DE 60% 220 n/a 60% n/a n/a 70% RI 58% 238 n/a 64% 48% 60% n/a OK 57% 201 n/a 59% 57% 54% n/a NH 54% 306 n/a 65% 31% 58% 58% DC 54% 140 n/a 56% 54% 50% n/a UT 53% 245 n/a 62% 54% 45% n/a NE 53% 310 n/a 37% 49% 61% 64% AL 52% 340 n/a 55% 51% 48% n/a NC 51% 352 n/a 52% 57% 47% 60% CO 51% 288 n/a 57% 28% 54% 62% OR 50% 272 n/a 60% 36% 45% 61% ID 50% 309 n/a n/a 49% 48% n/a TX 49% 1,279 61% 54% 27% 46% 54%




Group Residence


Foster or Host

SD 48% 243 n/a 60% 37% 53% n/a HI 47% 166 n/a 41% 35% 52% n/a MI 47% 298 n/a 43% 51% 45% n/a IL 45% 258 n/a 53% 30% 41% n/a LA 44% 279 48% n/a 39% 45% n/a NJ 42% 199 n/a 39% 50% 43% n/a IN 42% 551 n/a n/a 43% 42% n/a VA 41% 434 46% 46% 31% 37% 33% NCI Average 41% 13,524 44% 46% 34% 40% 45% ME 41% 282 n/a 48% 33% 36% 42% CT 41% 266 n/a 46% 28% 38% n/a NY 41% 328 n/a 49% 23% 41% n/a OH 40% 473 41% 57% 37% 36% n/a WY 38% 220 n/a 61% 31% 28% n/a AR 38% 283 n/a 42% 35% 38% n/a FL 38% 426 n/a 39% 37% 38% n/a WI 36% 333 n/a 48% 33% 36% n/a GA 36% 255 n/a 46% 29% 32% 52% MS 35% 274 n/a 29% 36% 39% n/a VT 35% 248 n/a n/a 24% 32% 38% KS 35% 272 n/a 41% 28% 34% n/a MO 34% 226 n/a 37% 32% n/a n/a




Group Residence


Foster or Host

MN 36% 1,334 41% 39% 26% 39% 34% TN 29% 345 n/a 39% 27% 22% n/a PA 26% 424 n/a 28% 20% 29% n/a KY 18% 298 n/a 18% 11% 23% 13%



Table 75. Has friends (may be staff or family) and can see them when wants to (‘yes’ responses only)




Group Residence


Foster or Host

KY 94% 295 n/a 94% 94% 93% 93% MS 87% 268 n/a 89% 89% 83% n/a TN 87% 333 n/a 90% 87% 85% n/a PA 87% 394 n/a 91% 88% 83% n/a IN 85% 522 n/a n/a 83% 85% n/a




Group Residence


Foster or Host

DC 86% 121 n/a 87% 86% 82% n/a IL 84% 245 n/a 88% 87% 79% n/a VA 84% 403 70% 85% 90% 85% 81% AR 83% 263 n/a 87% 79% 88% n/a SD 83% 237 n/a 84% 86% 76% n/a KS 83% 262 n/a 80% 84% 91% n/a NJ 82% 182 n/a 84% 80% 83% n/a RI 82% 230 n/a 88% 87% 76% n/a HI 82% 175 n/a 82% 78% 83% 74% OH 82% 437 68% 83% 81% 83% n/a LA 82% 261 86% n/a 83% 79% n/a GA 81% 247 n/a 74% 89% 82% 75% MN 81% 1,282 83% 83% 83% 77% 72% FL 81% 403 n/a 68% 86% 84% n/a UT 81% 242 n/a 74% 84% 84% n/a OK 80% 194 n/a 78% 90% 76% n/a MO 80% 212 n/a 80% 83% n/a n/a WY 80% 220 n/a 75% 89% 71% n/a NCI Average 79% 12,632 80% 79% 81% 79% 75% CT 79% 233 n/a 79% 82% 78% n/a NY 78% 264 n/a 75% 87% 75% n/a DE 77% 202 n/a 79% n/a n/a 57% NC 76% 317 n/a 78% 76% 71% 81% OR 75% 253 n/a 77% 66% 80% 70% WI 74% 320 n/a 74% 76% 78% n/a AL 73% 325 n/a 73% 88% 69% n/a CO 72% 265 n/a 64% 80% 71% 79%




Group Residence


Foster or Host

TX 76% 1,140 81% 74% 63% 79% 73% NV 71% 266 n/a 65% 79% 69% n/a MI 70% 268 n/a 67% 74% 69% n/a ID 65% 289 n/a n/a 57% 71% n/a NE 62% 304 n/a 62% 66% 56% 72%

NH 59% 294 n/a 48% 70% 59% 55% VT 56% 208 n/a n/a 59% 56% 55% ME 55% 256 n/a 58% 55% 50% 62%



Table 76. Reasons cannot see friends (if sometimes or often unable to see friends) º ∞

Lack of Transportation

Lack of Support

Staff

Rules or Restrictions

About Seeing Friends

Money or Cost of

Going Out

Difficulty Finding

Time Other N

AL 10% 3% 0% 4% 16% 1% 345

AR 5% 1% 0% 1% 6% 2% 297

CO 10% 3% 3% 5% 13% 5% 296

CT 7% 3% 2% 1% 5% 3% 276

DE 8% 5% 3% 1% 9% 3% 240

DC 5% 1% 1% 5% 1% 140

FL 9% 3% 0% 1% 5% 1% 462

GA 6% 3% 1% 2% 4% 3% 278

HI 3% 2% 2% 1% 4% 4% 217

ID 13% 2% 6% 2% 10% 7% 324

IL 6% 1% 1% 1% 1% 3% 271

IN 5% 1% 1% 7% 1% 592

KS 4% 3% 1% 1% 1% 4% 279

KY 3% 1% 1% 1% 2% 1% 300

LA 7% 2% 2% 2% 2% 5% 289

ME 13% 9% 2% 5% 20% 4% 327

MI 11% 4% 1% 1% 10% 2% 315

MN 8% 3% 2% 2% 6% 3% 1,418

MS 6% 4% 2% 2% 5% 1% 284

MO 5% 2% 4% 2% 3% 2% 255

NE 24% 9% 8% 14% 12% 5% 373

NV 6% 3% 4% 3% 8% 6% 328

NH 17% 6% 3% 2% 13% 9% 326

NJ 3% 0% 1% 0% 2% 2% 212

NY 7% 2% 3% 2% 5% 3% 354

NC 7% 1% 2% 0% 4% 5% 381

OH 6% 1% 0% 1% 5% 4% 502

OK 6% 1% 2% 0% 3% 7% 215

OR 10% 3% 2% 2% 9% 7% 309

PA 3% 1% 1% 0% 3% 3% 467

RI 9% 4% 2% 2% 5% 2% 251

SD 6% 2% 0% 2% 5% 4% 257

TN 3% 1% 1% 1% 9% 1% 366

TX 7% 2% 1% 1% 6% 5% 1,363

UT 6% 3% 3% 1% 3% 5% 266

VT 7% 2% 1% 1% 18% 6% 288

VA 6% 2% 1% 1% 3% 2% 490

WI 7% 1% 1% 1% 9% 8% 368

WY 5% 2% 1% 2% 6% 5% 238

NCI Average 7% 2% 2% 1% 6% 3% 14,559

ºAnalysis of this question changed from previous years; results are only reported for only those who reported sometimes

or often being unable to see friends ∞Categories are not mutually exclusive



Table 77. Has other ways of talking, chatting or communicating with friends when cannot see them (‘yes’ responses only)




Group Residence


Foster or Host

KS 91% 256 n/a 90% 95% 88% n/a AL 89% 326 n/a 88% 98% 87% n/a FL 88% 406 n/a 82% 95% 88% n/a OK 88% 192 n/a 86% 96% 85% n/a UT 88% 240 n/a 83% 88% 92% n/a MO 88% 204 n/a 80% 90% n/a n/a LA 88% 256 85% n/a 92% 86% n/a




Group Residence


Foster or Host

SD 87% 244 n/a 85% 88% 88% n/a RI 86% 223 n/a 82% 92% 85% n/a WI 85% 316 n/a 82% 91% 81% n/a NY 85% 265 n/a 79% 96% 83% n/a PA 84% 393 n/a 79% 92% 84% n/a IN 84% 504 n/a n/a 90% 81% n/a DC 84% 122 n/a 86% 81% 86% n/a MN 83% 1,285 72% 81% 94% 83% 78% GA 82% 245 n/a 76% 91% 81% 81% NV 82% 277 n/a 74% 90% 85% n/a CT 82% 228 n/a 76% 94% 84% n/a MS 82% 270 n/a 83% 93% 69% n/a NCI Average 82% 12,599 79% 78% 90% 81% 72% IL 81% 242 n/a 77% 92% 81% n/a OR 81% 257 n/a 81% 84% 82% 76% WY 81% 213 n/a 74% 90% 79% n/a DE 81% 197 n/a 81% n/a n/a 80% OH 81% 446 75% 76% 88% 80% n/a NH 81% 295 n/a 79% 86% 81% 77% KY 80% 291 n/a 79% 89% 82% 68% AR 79% 266 n/a 79% 85% 71% n/a TN 77% 331 n/a 82% 82% 67% n/a ID 76% 291 n/a n/a 84% 73% n/a MI 75% 279 n/a 71% 80% 77% n/a NJ 75% 178 n/a 69% 84% 83% n/a




Group Residence


Foster or Host

VA 76% 401 66% 78% 85% 72% 71% TX 75% 1,124 78% 69% 88% 75% 75% VT 73% 213 n/a n/a 80% 78% 67% NC 73% 314 n/a 76% 88% 72% 63% ME 71% 277 n/a 72% 82% 68% 59% CO 69% 269 n/a 56% 80% 70% 62% HI 66% 176 n/a 48% 91% 67% 59% NE 64% 287 n/a 43% 85% 66% 73%



Table 78. Can see and communicate with their family when they want (among those who do not live in the family home; ‘yes, sees family whenever wants, or chooses not to see family’ responses only) º




Group Residence


Foster or Host

MS 90% 170 n/a 89% 91% -- n/a IN 89% 196 n/a n/a 89% -- n/a TN 88% 214 n/a 86% 90% -- n/a MN 87% 1,029 84% 88% 88% -- 85% WI 87% 151 n/a 89% 87% -- n/a MO 86% 207 n/a 86% 89% -- n/a




Group Residence


Foster or Host

GA 86% 118 n/a 81% 94% -- 79% NV 86% 209 n/a 83% 92% -- n/a PA 86% 171 n/a 85% 86% -- n/a RI 86% 141 n/a 83% 85% -- n/a OK 84% 150 n/a 85% 84% -- n/a AR 84% 181 n/a 88% 82% -- n/a DC 83% 100 n/a 82% 83% -- n/a OH 83% 246 83% 88% 80% -- n/a CT 83% 168 n/a 82% 89% -- n/a UT 83% 167 n/a 81% 81% -- n/a DE 82% 225 n/a 81% n/a -- 86% KS 82% 196 n/a 80% 88% -- n/a SD 81% 207 n/a 83% 80% -- n/a WY 81% 169 n/a 79% 82% -- n/a NH 80% 197 n/a 74% 88% -- 78% NCI Average 80% 8,479 77% 78% 84% -- 73% OR 79% 190 n/a 80% 84% -- 73% VA 79% 312 76% 81% 84% -- 68% TX 79% 924 80% 74% 89% -- 84% NJ 79% 136 n/a 80% 83% -- n/a NC 77% 179 n/a 72% 92% -- 70% NY 77% 187 n/a 75% 85% -- n/a IL 77% 143 n/a 75% 86% -- n/a ID 77% 111 n/a n/a 77% -- n/a FL 76% 223 n/a 68% 84% -- n/a LA 75% 155 74% n/a 75% -- n/a MI 73% 210 n/a 71% 77% -- n/a CO 72% 146 n/a 62% 83% -- 71%




Group Residence


Foster or Host

AL 70% 208 n/a 68% 78% -- n/a VT 62% 160 n/a n/a 70% -- 59% ME 58% 183 n/a 58% 63% -- n/a HI 58% 66 n/a 65% 62% -- 48% NE 56% 154 n/a 51% 65% -- 63% KY 52% 180 n/a 48% 51% -- 64%

ºAnalysis for this question changed from previous years – no longer applicable for people living in family home (this may affect overall score and result in a lower N than in previous years)



Table 79. Often feels lonely (‘yes, often’ responses only)ˇ




Group Residence


Foster or Host

DE 17% 231 n/a 15% n/a n/a 26% NH 16% 322 n/a 20% 17% 12% 17% OR 16% 290 n/a 25% 14% 9% 12% WY 15% 232 n/a 29% 11% 10% n/a OK 15% 213 n/a 16% 18% 9% n/a WI 14% 350 n/a 15% 12% 12% n/a NV 14% 307 n/a 18% 13% 10% n/a UT 14% 250 n/a 19% 14% 9% n/a MI 14% 302 n/a 16% 17% 4% n/a OH 13% 485 21% 11% 15% 11% n/a CO 13% 291 n/a 25% 12% 8% 11% AL 12% 345 n/a 14% 8% 12% n/a TX 12% 1,365 13% 20% 11% 9% 5% RI 12% 245 n/a 14% 13% 7% n/a IL 12% 258 n/a 15% 11% 10% n/a NE 12% 311 n/a 16% 12% 9% 9% NY 12% 344 n/a 11% 8% 14% n/a KS 11% 275 n/a 13% 8% 14% n/a MS 11% 283 n/a 11% 11% 10% n/a NCI Average 11% 14,010 14% 13% 11% 9% 10%

IN 11% 577 n/a n/a 10% 11% n/a ME 11% 311 n/a 18% 13% 3% 3% DC 11% 142 n/a 7% 7% 14% n/a CT 10% 267 n/a 11% 8% 9% n/a LA 10% 289 11% n/a 11% 10% n/a MN 10% 1,384 17% 11% 9% 5% 8% SD 10% 253 n/a 14% 9% 5% n/a ID 10% 319 n/a n/a 13% 8% n/a TN 9% 347 n/a 10% 14% 4% n/a VT 9% 251 n/a n/a 12% 6% 10% NC 9% 363 n/a 13% 0% 9% 4% AR 9% 296 n/a 7% 11% 7% n/a GA 9% 269 n/a 16% 7% 9% 0% HI 8% 191 n/a 0% 8% 10% 11% NJ 8% 203 n/a 12% 6% 2% n/a VA 8% 445 23% 6% 10% 6% 7% MO 8% 226 n/a 10% 7% n/a n/a




Group Residence


Foster or Host

FL 7% 446 n/a 7% 8% 6% n/a PA 5% 433 n/a 5% 1% 7% n/a KY 3% 299 n/a 4% 3% 4% 0%

ˇA lower average indicates a lower percentage of people report often feeling lonely



Table 80. Can go on a date or is married or living with partner (‘yes, can date or is married or living with partner’ responses only)




Group Residence


Foster or Host

VT 89% 191 n/a n/a 95% 86% 88% TN 86% 250 n/a 89% 84% 83% n/a OR 86% 252 n/a 88% 94% 78% 78% NH 84% 293 n/a 81% 90% 79% 86% GA 83% 240 n/a 80% 90% 82% 75% PA 82% 347 n/a 88% 91% 78% n/a ME 82% 179 n/a 70% 92% 83% n/a OH 81% 416 56% 80% 90% 78% n/a KS 80% 252 n/a 76% 93% 73% n/a AL 80% 332 n/a 85% 90% 69% n/a MN 79% 1,099 69% 78% 91% 73% 71%




Group Residence


Foster or Host

SD 79% 214 n/a 72% 88% 72% n/a OK 78% 197 n/a 72% 89% 78% n/a MO 77% 190 n/a 64% 81% n/a n/a IN 76% 441 n/a n/a 80% 72% n/a UT 75% 225 n/a 76% 87% 68% n/a FL 75% 341 n/a 65% 87% 72% n/a ID 75% 224 n/a n/a 72% 76% n/a RI 75% 220 n/a 70% 87% 68% n/a WI 74% 293 n/a 63% 83% 70% n/a WY 73% 203 n/a 61% 84% 68% n/a NCI Average 73% 11,410 59% 69% 85% 69% 69% NE 72% 254 n/a 72% 83% 65% 82% LA 70% 236 69% n/a 79% 64% n/a NY 70% 268 n/a 62% 90% 71% n/a IL 69% 213 n/a 69% 81% 66% n/a MI 68% 252 n/a 53% 78% 72% n/a AR 67% 248 n/a 65% 78% 51% n/a MS 67% 218 n/a 62% 84% 51% n/a DC 65% 128 n/a 68% 71% 56% n/a




Group Residence


Foster or Host

VA 66% 372 41% 70% 75% 62% 68% NC 62% 309 n/a 63% 78% 62% 61% TX 60% 1,071 65% 60% 78% 53% 73% DE 60% 204 n/a 61% n/a n/a 52% NJ 59% 162 n/a 62% 76% 45% n/a CO 57% 244 n/a 40% 81% 44% 69% HI 56% 108 n/a n/a n/a 55% n/a KY 56% 223 n/a 42% 80% 59% 55% NV 56% 282 n/a 53% 61% 53% n/a CT 54% 219 n/a 47% 83% 47% n/a



Satisfaction

People are satisfied with the services and supports they receive.



Table 81. Likes home or where lives (‘yes’ responses only)




Group Residence


Foster or Host

IN 96% 593 n/a n/a 93% 97% n/a KY 96% 302 n/a 90% 100% 100% 93%

TN 94% 351 n/a 91% 92% 100% n/a NC 94% 376 n/a 85% 96% 99% 100% TX 92% 1,529 85% 86% 87% 98% 100%




Group Residence


Foster or Host

HI 92% 212 n/a 86% 79% 97% 91% GA 92% 280 n/a 86% 95% 92% 97% RI 92% 252 n/a 88% 87% 98% n/a ID 92% 323 n/a n/a 88% 95% n/a AR 92% 295 n/a 86% 87% 98% n/a PA 91% 466 86% 83% 86% 95% n/a LA 91% 299 89% n/a 88% 95% n/a MS 91% 286 n/a 89% 88% 98% n/a VT 91% 294 n/a n/a 79% 98% 91% WY 91% 237 n/a 85% 91% 94% n/a NJ 91% 215 n/a 84% 94% 100% n/a DC 90% 142 n/a 85% 95% 90% n/a CT 90% 280 n/a 89% 83% 98% n/a NCI Average 90% 14,793 82% 85% 88% 95% 95% MO 89% 257 n/a 86% 90% n/a n/a OH 89% 503 77% 87% 87% 94% n/a

VA 89% 492 73% 87% 91% 94% 100%

OR 89% 309 n/a 89% 85% 94% 91%

FL 89% 464 n/a 79% 84% 97% n/a UT 89% 266 n/a 85% 88% 92% n/a WI 89% 368 n/a 84% 91% 94% n/a IL 89% 270 n/a 85% 87% 94% n/a CO 89% 296 n/a 85% 78% 92% 98% NE 88% 371 n/a 82% 92% 88% 98% KS 88% 285 n/a 82% 90% 95% n/a NY 88% 351 n/a 84% 87% 92% n/a OK 88% 232 n/a 80% 90% 98% n/a MI 88% 322 n/a 83% 85% 98% n/a MN 88% 1,419 83% 86% 90% 94% 88% AL 87% 348 n/a 80% 90% 96% n/a NH 87% 326 n/a 78% 81% 92% 86% SD 85% 259 n/a 85% 83% 95% n/a




Group Residence


Foster or Host

NV 84% 329 n/a 78% 84% 94% n/a ME 84% 330 n/a 79% 77% 93% 97%

DE 83% 264 n/a 83% n/a n/a 88%



Table 82. Wants to live somewhere else (‘yes’ responses only) ˇ




Group Residence


Foster or Host

DE 42% 252 n/a 43% n/a n/a 35% LA 40% 264 53% n/a 40% 32% n/a OK 37% 224 n/a 48% 29% 30% n/a NV 37% 322 n/a 48% 34% 29% n/a

SD 36% 249 n/a 42% 32% 25% n/a UT 35% 262 n/a 46% 28% 30% n/a OR 34% 297 n/a 27% 47% 31% 29%




Group Residence


Foster or Host

AR 34% 291 n/a 48% 35% 28% n/a MI 33% 314 n/a 38% 30% 32% n/a ID 33% 319 n/a n/a 43% 28% n/a WI 31% 355 n/a 41% 28% 26% n/a OH 30% 485 38% 28% 32% 29% n/a NJ 29% 212 n/a 35% 31% 15% n/a VA 28% 454 44% 33% 24% 23% 10% ME 28% 324 n/a 30% 32% 26% 23% DC 28% 140 n/a 40% 12% 29% n/a IL 27% 259 n/a 37% 24% 19% n/a WY 27% 235 n/a 30% 26% 28% n/a IN 27% 575 n/a n/a 28% 27% n/a MO 27% 251 n/a 41% 25% n/a n/a RI 27% 240 n/a 34% 23% 22% n/a

NC 27% 368 n/a 35% 22% 23% 15%

NE 27% 346 n/a 30% 21% 31% 21% NCI Average 26% 14,273 37% 30% 28% 22% 17% MN 26% 1,360 31% 28% 23% 23% 20% CT 26% 277 n/a 26% 34% 19% n/a VT 26% 276 n/a n/a 30% 29% 22% NY 25% 338 n/a 25% 30% 25% n/a AL 25% 346 n/a 30% 10% 25% n/a NH 25% 318 n/a 39% 15% 20% 29% MS 23% 280 n/a 30% 21% 16% n/a FL 22% 460 n/a 37% 23% 12% n/a KS 20% 279 n/a 28% 16% 12% n/a




Group Residence


Foster or Host

TX 23% 1,443 41% 26% 32% 15% 13% CO 20% 292 n/a 30% 28% 13% 11% PA 20% 455 25% 28% 21% 17% 0% GA 19% 271 n/a 29% 25% 16% 6%

HI 18% 195 n/a 16% 9% 21% 21% TN 16% 349 n/a 22% 23% 5% n/a KY 10% 296 n/a 19% 6% 5% 7%

ˇA lower average indicates a lower percentage of people report wanting to live somewhere else



Table 83. Has a paid job in the community and likes job (‘yes’ responses only)




Group Residence


Foster or Host

KY 100% 36 n/a n/a n/a n/a n/a WI 98% 94 n/a n/a 95% 100% n/a VA 98% 46 n/a 100% n/a n/a n/a TN 97% 63 n/a 96% 100% n/a n/a




Group Residence


Foster or Host

HI 97% 33 n/a n/a n/a 100% n/a MO 97% 31 n/a n/a 100% n/a n/a IL 96% 28 n/a n/a n/a n/a n/a OK 96% 51 n/a 97% n/a n/a n/a KS 96% 49 n/a n/a 96% n/a n/a


LA 95% 56 n/a n/a 90% 100% n/a

NC 94% 54 n/a n/a n/a 95% n/a

IN 94% 123 n/a n/a 89% 97% n/a VT 94% 132 n/a n/a 81% 96% 98% SD 94% 82 n/a n/a 94% n/a n/a PA 93% 89 n/a n/a 83% 98% n/a GA 93% 58 n/a n/a 90% 93% n/a AR 93% 28 n/a n/a n/a n/a n/a RI 92% 76 n/a n/a 92% 97% n/a MS 92% 61 n/a n/a 88% n/a n/a DC 92% 24 n/a n/a n/a n/a n/a CT 91% 117 n/a 93% 82% 98% n/a OH 91% 116 n/a n/a 88% 92% n/a MI 91% 45 n/a n/a 80% n/a n/a TX 91% 150 95% 100% n/a 94% n/a CO 90% 59 n/a n/a n/a 88% n/a NE 90% 108 n/a n/a 89% 97% n/a NCI Average 90% 3,138 93% 91% 85% 92% 90% WY 89% 95 n/a n/a 89% 85% n/a FL 89% 65 n/a n/a 93% 83% n/a MN 89% 535 n/a 88% 86% 94% 90% DE 89% 80 n/a 87% n/a n/a n/a OR 88% 50 n/a n/a n/a n/a n/a

NH 86% 131 n/a n/a 79% 88% 87%

ME 86% 77 n/a 88% n/a 78% n/a

NV 86% 49 n/a n/a 70% n/a n/a

ID 86% 69 n/a n/a 96% 81% n/a UT 86% 69 n/a n/a 89% n/a n/a NY 78% 74 n/a n/a 68% 82% n/a



Table 84. Has a paid job in the community and wants to work somewhere else (‘yes’ responses only)




Group Residence


Foster or Host

NV 43% 49 n/a n/a 55% n/a n/a OK 42% 50 n/a 45% n/a n/a n/a DE 40% 80 n/a 39% n/a n/a n/a OR 36% 47 n/a n/a n/a n/a n/a UT 35% 69 n/a n/a 36% n/a n/a LA 34% 56 n/a n/a 29% 35% n/a NY 34% 71 n/a n/a 35% 29% n/a ID 32% 69 n/a n/a 20% 36% n/a VT 31% 125 n/a n/a 42% 28% 31% NH 30% 124 n/a n/a 39% 26% 26% MS 30% 61 n/a n/a 36% n/a n/a CT 29% 117 n/a 35% 31% 19% n/a WI 29% 94 n/a n/a 38% 15% n/a

OH 28% 116 n/a n/a 33% 25% n/a

VA 28% 46 n/a 30% n/a n/a n/a MN 28% 514 n/a 29% 24% 29% 24% NCI Average 28% 3,054 26% 32% 30% 24% 27% WY 26% 93 n/a n/a 22% 28% n/a TN 26% 62 n/a 35% n/a n/a n/a TX 26% 144 25% 34% n/a 29% n/a IN 25% 122 n/a n/a 29% 23% n/a MI 25% 44 n/a n/a 30% n/a n/a ME 25% 73 n/a 5% n/a 30% n/a

RI 24% 75 n/a n/a 29% 14% n/a

FL 24% 63 n/a n/a 28% 21% n/a

NC 24% 51 n/a n/a n/a 20% n/a

GA 23% 57 n/a n/a 24% 24% n/a IL 22% 27 n/a n/a n/a n/a n/a NE 22% 105 n/a n/a 31% 19% n/a AR 21% 28 n/a n/a n/a n/a n/a SD 21% 81 n/a n/a 23% n/a n/a CO 21% 58 n/a n/a n/a 32% n/a PA 18% 82 n/a n/a 29% 13% n/a MO 18% 28 n/a n/a 10% n/a n/a DC 17% 23 n/a n/a n/a n/a n/a KS 17% 47 n/a n/a 25% n/a n/a HI 15% 33 n/a n/a n/a 17% n/a AL 14% 22 n/a n/a n/a n/a n/a




Group Residence


Foster or Host

KY 6% 35 n/a n/a n/a n/a n/a



Table 85. Attends a day program or workshop and wants to go more, less, or the same amount of time º

Does Not Want to Spend Time There More Time

Same Amount of Time Less Time N

AL 2% 16% 70% 12% 321

AR 1% 19% 64% 16% 166

CO 4% 28% 60% 8% 198

CT 3% 25% 66% 6% 139

DE 9% 31% 42% 18% 181

DC 1% 42% 52% 5% 113

FL 2% 7% 84% 7% 198

GA 0% 4% 83% 13% 201

HI 0% 25% 69% 6% 128

ID 4% 19% 66% 11% 122

IL 2% 26% 60% 12% 202

IN 1% 16% 70% 13% 306

KS 1% 13% 66% 20% 204

KY 0% 4% 83% 12% 217

LA 6% 18% 63% 14% 145

ME 0% 12% 78% 9% 213

MI 5% 19% 64% 12% 154

MN 3% 20% 63% 14% 682

MS 3% 24% 60% 12% 205

MO 2% 10% 80% 8% 120

NE 5% 7% 69% 19% 234

NV 2% 28% 54% 15% 216

NH 0% 30% 59% 11% 190

NJ 2% 23% 64% 12% 182

NY 3% 10% 79% 7% 203

NC 4% 24% 62% 10% 210

OH 2% 20% 67% 11% 297

OK 6% 19% 54% 21% 90

OR 1% 27% 56% 15% 84

PA 2% 17% 75% 6% 250

RI 1% 25% 63% 11% 179

SD 3% 15% 64% 19% 135

TN 0% 17% 77% 7% 137

TX 4% 23% 59% 14% 1,047

UT 6% 20% 64% 10% 161

VT** 4% 21% 70% 5% 56

VA 3% 13% 77% 7% 285

WI 3% 27% 56% 14% 149

WY 2% 16% 60% 22% 122

NCI Average 3% 18% 69% 11% 8,442

º Question changed from previous years **Results for VT only include those who reported attending a ‘center-based’ setting and do not include those who reported participating in integrated community supports.



Table 86. Services and Supports help person live a good life (‘yes’ responses only)




Group Residence


Foster or Host

TN 98% 350 n/a 98% 97% 99% n/a IN 96% 574 n/a n/a 94% 97% n/a AL 95% 346 n/a 94% 100% 95% n/a KY 94% 299 n/a 91% 86% 99% 96% AR 94% 295 n/a 93% 91% 99% n/a NC 94% 366 95% 90% 96% 95% 96% TX 94% 1,360 92% 94% 96% 93% 98%




Group Residence


Foster or Host

MS 94% 281 n/a 96% 98% 93% n/a GA 94% 269 n/a 91% 91% 96% 97% OH 93% 485 88% 96% 92% 93% n/a MO 93% 242 n/a 80% 96% n/a n/a WI 93% 350 n/a 87% 94% 97% n/a CT 93% 275 n/a 93% 92% 92% n/a RI 93% 246 n/a 95% 89% 94% n/a MN 92% 1,391 89% 93% 90% 93% 96% HI 92% 189 n/a 87% 96% 92% 93% UT 92% 251 n/a 89% 92% 97% n/a FL 92% 450 n/a 90% 94% 92% n/a PA 92% 442 n/a 96% 92% 89% n/a VA 92% 457 73% 93% 93% 92% 98% IL 92% 259 n/a 93% 85% 93% n/a OK 91% 213 n/a 88% 93% 96% n/a

NCI Average 90% 14,098 88% 90% 89% 91% 93% KS 90% 265 n/a 89% 87% 94% n/a NH 90% 324 n/a 86% 85% 96% 86% NJ 90% 211 n/a 89% 89% 93% n/a WY 89% 237 n/a 87% 92% 91% n/a DC 89% 141 n/a 90% 95% 83% n/a

LA 89% 289 91% n/a 89% 88% n/a

SD 89% 254 n/a 88% 89% 93% n/a

VT 89% 236 n/a n/a 88% 89% 86% DE 88% 227 n/a 88% n/a n/a 88% ID 88% 314 n/a n/a 88% 86% n/a MI 87% 314 n/a 89% 84% 88% n/a ME 87% 309 n/a 86% 91% 88% 91% OR 87% 289 n/a 90% 84% 86% 88% NV 85% 311 n/a 86% 81% 88% n/a




Group Residence


Foster or Host

NY 85% 349 n/a 86% 80% 87% n/a CO 78% 291 n/a 69% 78% 76% 93%

NE 77% 347 n/a 75% 88% 70% 88%



Service Coordination

Service coordinators are accessible, responsive, and support the person’s participation in service planning.



Table 87. Met case manager/service coordinator (‘yes’ responses only)




Group Residence


Foster or Host

TN 100% 342 n/a 100% 99% 100% n/a VT 99% 259 n/a n/a 100% 99% 99% WY 99% 233 n/a 99% 99% 100% n/a FL 99% 461 n/a 99% 99% 99% n/a KS 99% 277 n/a 98% 99% 100% n/a UT 99% 258 n/a 100% 100% 98% n/a KY 99% 300 n/a 100% 100% 99% 93% PA 98% 451 n/a 97% 99% 98% 95% AL 98% 346 n/a 98% 100% 96% n/a ME 98% 302 n/a 96% 99% 99% 100% WI 97% 349 n/a 96% 98% 99% n/a




Group Residence


Foster or Host

LA 97% 275 95% n/a 98% 98% n/a NE 97% 365 100% 98% 98% 95% 100% MI 97% 314 n/a 97% 96% 98% n/a MO 97% 241 n/a 93% 97% n/a n/a IN 96% 564 n/a n/a 94% 97% n/a OR 96% 279 n/a 96% 95% 96% 96% NH 95% 321 n/a 94% 91% 95% 98% NCI Average 95% 13,985 92% 95% 96% 95% 97% TX 95% 1,371 96% 95% 92% 96% 94% CT 95% 278 n/a 94% 95% 97% n/a NC 95% 314 n/a 95% 100% 94% 95% GA 94% 266 n/a 98% 95% 92% 97% VA 94% 458 82% 93% 98% 98% 98% IL 94% 260 n/a 91% 100% 95% n/a ID 94% 309 n/a n/a 94% 93% n/a AR 94% 290 n/a 97% 91% 98% n/a OH 94% 481 94% 95% 94% 92% n/a MN 94% 1,377 90% 95% 92% 94% 100% NY 94% 346 n/a 94% 100% 92% n/a RI 93% 230 n/a 92% 93% 95% n/a SD 93% 249 n/a 92% 94% 89% n/a DC 92% 141 n/a 95% 90% 93% n/a MS 92% 259 n/a 85% 96% 93% n/a OK 92% 209 n/a 96% 94% 85% n/a CO 91% 289 n/a 96% 94% 86% 98%




Group Residence


Foster or Host

NV 90% 315 n/a 88% 96% 91% n/a DE 90% 214 n/a 89% n/a n/a 90% NJ 89% 201 n/a 90% 89% 86% n/a HI 85% 191 n/a 70% 90% 88% 86%



Table 88. Case manager/service coordinator asks person what s/he wants (‘yes’ responses only)




Group Residence


Foster or Host

TN 98% 340 n/a 98% 97% 99% n/a FL 97% 453 n/a 94% 97% 99% n/a IN 96% 536 n/a n/a 95% 97% n/a KY 94% 296 n/a 95% 97% 94% 91% LA 94% 270 89% n/a 93% 98% n/a AL 94% 339 n/a 94% 98% 91% n/a PA 92% 417 n/a 90% 96% 92% 86%




Group Residence


Foster or Host

AR 91% 286 n/a 93% 88% 92% n/a VA 91% 434 77% 93% 93% 90% 90% RI 89% 221 n/a 94% 89% 87% n/a UT 89% 241 n/a 88% 90% 88% n/a IL 88% 251 n/a 87% 84% 92% n/a MO 88% 226 n/a 74% 92% n/a n/a CT 88% 259 n/a 88% 88% 92% n/a GA 88% 249 n/a 88% 89% 89% 86% NC 88% 304 n/a 89% 95% 85% 85% NCI Average 88% 13,210 83% 87% 87% 90% 83% TX 88% 1,319 86% 89% 90% 90% 68% OH 88% 447 76% 91% 85% 90% n/a WY 88% 235 n/a 92% 87% 83% n/a MS 87% 247 n/a 82% 94% 84% n/a ID 87% 294 n/a n/a 82% 90% n/a NY 86% 323 n/a 85% 87% 88% n/a NJ 86% 188 n/a 86% 82% 89% n/a KS 86% 270 n/a 86% 85% 83% n/a WI 85% 331 n/a 86% 79% 89% n/a CO 85% 269 n/a 82% 79% 86% 90% NE 84% 308 n/a 85% 87% 83% 89% MI 84% 306 n/a 88% 81% 86% n/a MN 84% 1,294 77% 83% 81% 91% 87% DC 84% 137 n/a 90% 79% 79% n/a SD 83% 234 n/a 85% 83% 77% n/a HI 80% 161 n/a n/a 67% 83% n/a




Group Residence


Foster or Host

OR 81% 251 n/a 72% 78% 90% 83% ME 80% 284 n/a 79% 78% 87% 71% OK 80% 190 n/a 84% 75% 78% n/a NH 78% 294 n/a 82% 74% 77% 80% DE 76% 187 n/a 78% n/a n/a n/a VT 76% 231 n/a n/a 74% 80% 72% NV 75% 288 n/a 77% 70% 77% n/a



Table 89. Able to contact case manager/service coordinator when wants (‘yes’ responses only)




Group Residence


Foster or Host

IN 97% 498 n/a n/a 96% 98% n/a TN 95% 335 n/a 96% 94% 97% n/a AR 94% 286 n/a 98% 94% 94% n/a KY 94% 299 n/a 92% 97% 95% 91% FL 92% 434 n/a 87% 93% 95% n/a WI 92% 332 n/a 85% 93% 93% n/a




Group Residence


Foster or Host

RI 92% 216 n/a 93% 96% 86% n/a LA 91% 262 91% n/a 85% 95% n/a PA 90% 341 n/a 85% 94% 91% n/a OK 90% 195 n/a 91% 87% 92% n/a NE 89% 259 n/a 90% 87% 89% 92% MN 89% 1,186 82% 88% 91% 91% 85% UT 88% 242 n/a 88% 94% 86% n/a CO 88% 262 n/a 80% 85% 88% 98% IL 88% 235 n/a 86% 89% 89% n/a OH 88% 447 82% 96% 86% 87% n/a NC 88% 296 n/a 90% 90% 85% 90% SD 88% 233 n/a 83% 94% 86% n/a NCI Average 87% 12,593 85% 84% 90% 89% 84% ME 87% 218 n/a 84% 87% 91% 86% MS 86% 218 n/a 72% 91% 92% n/a NY 86% 311 n/a 81% 95% 87% n/a TX 86% 1,323 83% 85% 88% 87% 85% ID 86% 296 n/a n/a 85% 85% n/a NJ 85% 175 n/a 82% 84% 90% n/a OR 84% 257 n/a 84% 84% 87% 81% CT 84% 252 n/a 82% 88% 84% n/a WY 84% 225 n/a 82% 88% 81% n/a MO 83% 209 n/a 74% 84% n/a n/a KS 83% 268 n/a 76% 92% 81% n/a AL 83% 336 n/a 78% 95% 85% n/a MI 82% 293 n/a 77% 84% 86% n/a GA 82% 213 n/a 94% 76% 82% 86% HI 81% 150 n/a n/a 83% 85% n/a DC 81% 137 n/a 90% 83% 68% n/a




Group Residence


Foster or Host

NH 81% 289 n/a 86% 90% 78% 79% VA 79% 422 83% 80% 80% 81% 68% VT 78% 190 n/a n/a 86% 84% 70% NV 74% 288 n/a 74% 82% 66% n/a DE 67% 165 n/a 67% n/a n/a n/a



Table 90. Took part in last service planning meeting, or had the opportunity but chose not to (‘yes’ and ‘had opportunity, but chose not to’ responses)




Group Residence


Foster or Host

KY 100% 287 n/a 100% 100% 99% 100% GA 100% 257 n/a 98% 100% 100% 100% LA 100% 249 98% n/a 100% 100% n/a FL 100% 426 n/a 99% 100% 99% n/a NE 99% 278 n/a 100% 100% 99% 97% PA 99% 374 n/a 99% 97% 100% n/a




Group Residence


Foster or Host

NH 99% 265 n/a 100% 98% 99% 100% ME 99% 256 n/a 100% 99% 99% 100% IL 99% 251 n/a 99% 100% 99% n/a WY 99% 217 n/a 100% 99% 98% n/a NJ 99% 186 n/a 100% 100% 98% n/a AR 99% 246 n/a 97% 98% 100% n/a MO 99% 224 n/a 98% 99% n/a n/a AL 99% 338 n/a 99% 100% 97% n/a OK 98% 198 n/a 99% 98% 98% n/a SD 98% 189 n/a 100% 99% 97% n/a CT 98% 245 n/a 99% 100% 97% n/a DC 98% 120 n/a 96% 100% 100% n/a TN 98% 334 n/a 99% 99% 98% n/a NCI Average 98% 11,911 97% 98% 98% 98% 99% NY 98% 286 n/a 98% 98% 97% n/a WI 98% 322 n/a 98% 98% 98% n/a MN 98% 1,145 97% 97% 98% 100% 100% OR 98% 227 n/a 97% 97% 98% 100% VA 98% 400 82% 99% 97% 99% 100% RI 98% 210 n/a 97% 96% 100% n/a OH 97% 423 97% 99% 98% 96% n/a NC 97% 277 n/a 97% n/a 98% 97% KS 97% 262 n/a 97% 98% 95% n/a UT 97% 220 n/a 97% 98% 96% n/a NV 97% 250 n/a 97% 96% 98% n/a MI 97% 276 n/a 97% 99% 94% n/a IN 97% 501 n/a n/a 98% 96% n/a ID 97% 265 n/a n/a 95% 98% n/a MS 97% 176 n/a 95% 98% 96% n/a HI 96% 156 n/a n/a n/a 97% n/a VT 96% 172 n/a n/a 92% 100% 96% CO 96% 257 n/a 92% 100% 95% 100% DE 95% 128 n/a 94% n/a n/a n/a




Group Residence


Foster or Host

TX 96% 1,018 96% 94% 97% 96% 97%



Table 91. Understood what was talked about at last service planning meeting (if attended last planning meeting; ‘yes’ responses only)




Group Residence


Foster or Host

KY 93% 277 n/a 92% 97% 95% 89% AL 92% 333 n/a 91% 98% 91% n/a LA 91% 241 92% n/a 91% 92% n/a FL 91% 417 n/a 90% 94% 90% n/a GA 90% 244 n/a 85% 92% 89% 90% NY 88% 276 n/a 84% 98% 88% n/a




Group Residence


Foster or Host

IL 88% 247 n/a 91% 89% 86% n/a UT 88% 208 n/a 93% 89% 85% n/a NJ 87% 180 n/a 88% 88% 89% n/a SD 86% 182 n/a 86% 90% 83% n/a NC 86% 255 n/a 84% n/a 85% 92% DE 86% 104 n/a 85% n/a n/a n/a RI 85% 197 n/a 83% 96% 78% n/a AR 85% 240 n/a 86% 93% 73% n/a MO 84% 211 n/a 86% 84% n/a n/a PA 84% 358 n/a 75% 91% 88% n/a IN 83% 472 n/a n/a 88% 81% n/a VA 83% 379 83% 89% 84% 77% 70% NCI Average 83% 11,188 78% 81% 88% 82% 78% CT 83% 233 n/a 80% 92% 84% n/a TN 83% 312 n/a 86% 86% 78% n/a MN 83% 1,076 72% 82% 89% 83% 71% NE 82% 261 n/a 85% 88% 81% 91% NV 82% 231 n/a 82% 82% 77% n/a OR 82% 202 n/a 72% 93% 79% 80% KS 82% 251 n/a 84% 84% 71% n/a NH 79% 258 n/a 88% 85% 76% 77% OH 79% 399 76% 73% 84% 78% n/a WY 79% 210 n/a 81% 92% 65% n/a VT 79% 161 n/a n/a 83% 78% 78% MS 75% 163 n/a 74% 91% 56% n/a OK 75% 185 n/a 67% 88% 76% n/a DC 75% 116 n/a 71% 78% 88% n/a




Group Residence


Foster or Host

ME 76% 249 n/a 70% 77% 79% 76% ID 75% 244 n/a n/a 76% 73% n/a WI 75% 306 n/a 70% 80% 71% n/a MI 73% 258 n/a 60% 83% 73% n/a CO 72% 225 n/a 77% 76% 70% 71% TX 68% 915 71% 57% 81% 68% 80% HI 63% 112 n/a n/a n/a 61% n/a



Table 92. Last service planning meeting included people that the person wanted to be there (if attended last planning meeting; ‘yes’ responses only)




Group Residence


Foster or Host

GA 97% 248 n/a 95% 98% 97% 93% KY 97% 276 n/a 93% 97% 100% 97% MN 96% 1,078 98% 95% 98% 97% 97%




Group Residence


Foster or Host

MS 97% 165 n/a 94% 100% 96% n/a TN 96% 314 n/a 98% 93% 98% n/a SD 96% 180 n/a 96% 98% 94% n/a FL 96% 414 n/a 92% 95% 98% n/a IN 96% 469 n/a n/a 96% 95% n/a AL 95% 329 n/a 97% 98% 92% n/a PA 95% 359 n/a 89% 98% 96% n/a WI 95% 310 n/a 91% 93% 98% n/a ID 95% 243 n/a n/a 92% 98% n/a KS 95% 248 n/a 91% 96% 98% n/a VA 94% 380 91% 94% 92% 97% 95% CT 94% 234 n/a 92% 92% 97% n/a TX 94% 904 91% 90% 95% 96% 100% MO 94% 209 n/a 89% 96% n/a n/a LA 94% 242 88% n/a 96% 96% n/a IL 94% 241 n/a 94% 89% 96% n/a NCI Average 94% 11,151 90% 92% 94% 95% 95% OH 93% 389 85% 94% 89% 97% n/a NE 93% 263 n/a 90% 93% 95% 97% NC 93% 257 n/a 90% n/a 93% 95% RI 93% 201 n/a 93% 96% 92% n/a NY 92% 266 n/a 92% 96% 91% n/a NJ 92% 175 n/a 94% 86% 89% n/a MI 91% 259 n/a 89% 92% 93% n/a CO 91% 224 n/a 83% 90% 92% 97% OR 91% 207 n/a 84% 87% 98% 94% WY 90% 206 n/a 93% 90% 87% n/a ME 90% 245 n/a 86% 91% 94% 96% NH 90% 255 n/a 79% 89% 93% 91% UT 90% 207 n/a 93% 87% 91% n/a AR 90% 235 n/a 85% 86% 97% n/a NV 89% 236 n/a 87% 90% 91% n/a HI 88% 109 n/a n/a n/a 90% n/a DC 85% 115 n/a 80% 88% 88% n/a




Group Residence


Foster or Host

OK 87% 193 n/a 86% 85% 92% n/a VT 82% 156 n/a n/a 91% 85% 75% DE 75% 110 n/a 72% n/a n/a n/a



Table 93. Person was able to choose services they get as part of service plan (‘yes’ responses only)




Group Residence


Foster or Host

FL 91% 423 n/a 86% 97% 91% n/a UT 90% 212 n/a 92% 85% 91% n/a KY 89% 288 n/a 85% 91% 94% 81% ME 88% 225 n/a 83% 92% 90% 90% GA 88% 246 n/a 90% 96% 86% 87% LA 87% 243 81% n/a 91% 88% n/a VA 82% 385 60% 86% 90% 76% 90% TN 82% 346 n/a 88% 81% 79% n/a




Group Residence


Foster or Host

RI 81% 205 n/a 77% 94% 79% n/a PA 81% 346 n/a 72% 91% 81% n/a AR 80% 249 n/a 81% 88% 71% n/a KS 79% 261 n/a 77% 81% 76% n/a OH 79% 403 86% 80% 82% 76% n/a CT 79% 234 n/a 80% 86% 76% n/a MO 78% 197 n/a 64% 83% n/a n/a OR 77% 203 n/a 71% 83% 84% 66% ID 77% 259 n/a n/a 75% 75% n/a IN 77% 476 n/a n/a 80% 75% n/a OK 77% 193 n/a 75% 81% 76% n/a DE 77% 115 n/a 75% n/a n/a n/a AL 76% 341 n/a 77% 80% 73% n/a MS 76% 173 n/a 72% 81% 75% n/a NCI Average 76% 11,445 71% 72% 83% 75% 71% IL 76% 246 n/a 75% 86% 72% n/a SD 75% 193 n/a 74% 76% 72% n/a WY 75% 217 n/a 72% 83% 68% n/a DC 74% 122 n/a 66% 91% 72% n/a NC 73% 251 n/a 76% n/a 72% 81% NY 73% 276 n/a 74% 89% 65% n/a WI 73% 292 n/a 59% 74% 78% n/a NV 72% 239 n/a 73% 74% 68% n/a MI 71% 273 n/a 61% 74% 76% n/a




Group Residence


Foster or Host

MN 70% 1,074 61% 67% 82% 69% 64% NE 67% 270 n/a 58% 77% 68% 74% NJ 64% 177 n/a 59% 67% 71% n/a NH 64% 254 n/a n/a 77% 64% 58% VT 63% 169 n/a n/a 74% 64% 56% TX 63% 973 57% 51% 77% 69% 55% CO 60% 261 n/a 52% 62% 59% 67% HI 51% 135 n/a n/a 57% 56% n/a



Table 94. Staff come and leave when they are supposed to (‘yes’ responses only)




Group Residence


Foster or Host

TN 98% 343 n/a 100% 97% 97% n/a MS 98% 265 n/a 98% 98% 98% n/a AR 97% 278 n/a 100% 95% 96% n/a NC 97% 317 n/a 94% 96% 97% 100% FL 95% 406 n/a 96% 95% 95% n/a




Group Residence


Foster or Host

KY 95% 287 n/a 96% 97% 96% 91% LA 95% 263 92% n/a 97% 96% n/a ID 95% 245 n/a n/a 94% 96% n/a IN 95% 484 n/a n/a 94% 96% n/a IL 95% 234 n/a 93% 94% 98% n/a PA 95% 331 n/a 92% 96% 94% n/a AL 94% 301 n/a 93% 100% 94% n/a DC 94% 131 n/a 92% 100% 92% n/a ME 94% 270 n/a 93% 94% 97% 97% CT 94% 236 n/a 92% 97% 92% n/a RI 93% 227 n/a 96% 93% 92% n/a MN 93% 1,244 90% 93% 93% 95% 87% MO 93% 218 n/a 88% 93% n/a n/a OH 93% 380 89% 96% 92% 91% n/a NCI Average 93% 12,186 90% 92% 92% 94% 94% OK 93% 188 n/a 93% 89% 97% n/a OR 92% 222 n/a 91% 87% 100% 92% MI 92% 261 n/a 94% 88% 98% n/a UT 92% 239 n/a 89% 92% 94% n/a NY 92% 271 n/a 90% 93% 92% n/a HI 91% 149 n/a 95% 95% 85% 100% VA 91% 420 76% 92% 88% 92% 100% TX 91% 1,091 86% 88% 91% 95% 100% WY 91% 216 n/a 90% 91% 89% n/a NH 91% 301 n/a 86% 92% 93% 89% WI 91% 244 n/a 91% 91% 90% n/a SD 90% 221 n/a 92% 87% 97% n/a VT 90% 208 n/a n/a 82% 97% 90% GA 89% 254 n/a 93% 91% 85% 96% DE 89% 204 n/a 89% n/a n/a n/a CO 89% 247 n/a 86% 96% 86% 88% KS 88% 248 n/a 82% 95% 90% n/a NV 88% 259 n/a 88% 85% 87% n/a




Group Residence


Foster or Host

NJ 85% 187 n/a 84% 72% 96% n/a NE 83% 296 n/a 75% 87% 84% 85%



Access

Publicly funded services are readily available to individuals who need and qualify for them.



Table 95. Has a way to get places needs to go (‘yes, almost always’ responses only)




Group Residence


Foster or Host

OK 98% 209 n/a 100% 95% 96% n/a AR 97% 294 n/a 98% 95% 99% n/a ME 97% 315 n/a 98% 95% 96% 100% TN 97% 349 n/a 98% 97% 95% n/a MN 96% 1,412 96% 98% 93% 94% 100% WI 96% 355 n/a 96% 94% 98% n/a IN 96% 579 n/a n/a 95% 97% n/a VT 96% 257 n/a n/a 94% 96% 98% PA 96% 456 n/a 97% 99% 94% 100%




Group Residence


Foster or Host

DE 96% 225 n/a 95% n/a n/a 100% VA 95% 458 82% 96% 95% 95% 100% CT 95% 277 n/a 94% 95% 96% n/a TX 94% 1,390 94% 95% 92% 94% 97% OH 94% 492 90% 100% 90% 96% n/a RI 94% 242 n/a 96% 95% 93% n/a MS 94% 285 n/a 97% 94% 90% n/a NV 94% 314 n/a 96% 88% 96% n/a NY 94% 351 n/a 92% 97% 95% n/a UT 94% 254 n/a 92% 97% 92% n/a NC 94% 373 100% 94% 81% 92% 100% HI 94% 202 n/a 92% 92% 95% 90% SD 93% 255 n/a 94% 94% 88% n/a OR 93% 280 n/a 95% 92% 96% 87% ID 93% 321 n/a n/a 88% 96% n/a NH 93% 323 n/a 80% 93% 95% 94% NCI Average 93% 14,243 90% 93% 92% 94% 95% MO 92% 242 n/a 87% 94% n/a n/a KS 92% 276 n/a 89% 92% 97% n/a KY 91% 300 n/a 86% 89% 96% 91% WY 91% 229 n/a 86% 93% 92% n/a LA 91% 289 88% n/a 94% 90% n/a AL 90% 345 n/a 93% 88% 86% n/a CO 89% 296 n/a 77% 86% 90% 98% GA 88% 267 n/a 87% 95% 87% 87%




Group Residence


Foster or Host

FL 88% 455 n/a 85% 87% 90% n/a MI 87% 322 n/a 85% 84% 92% n/a NJ 86% 211 n/a 87% 78% 91% n/a DC 82% 140 n/a 85% 76% 86% n/a IL 81% 260 n/a 75% 82% 85% n/a NE 75% 343 n/a 82% 71% 68% 90%



Table 96. Able to get places when wants to do something outside of home (‘yes, almost always’ responses only)




Group Residence


Foster or Host

TN 95% 351 n/a 93% 97% 95% n/a PA 92% 453 n/a 96% 94% 90% 90% KY 91% 297 n/a 88% 86% 97% 87% IN 90% 575 n/a n/a 86% 92% n/a HI 90% 195 n/a 92% 83% 91% 88%




Group Residence


Foster or Host

OK 89% 208 n/a 88% 91% 89% n/a MO 88% 241 n/a 76% 91% n/a n/a OH 87% 493 75% 92% 83% 89% n/a UT 87% 252 n/a 79% 94% 90% n/a MN 86% 1,405 88% 89% 84% 85% 78% WI 86% 346 n/a 89% 81% 89% n/a AL 86% 342 n/a 87% 88% 83% n/a AR 85% 295 n/a 80% 85% 85% n/a LA 85% 288 78% n/a 86% 88% n/a CT 85% 280 n/a 87% 85% 84% n/a VA 85% 455 38% 87% 90% 88% 95% NY 85% 350 n/a 82% 85% 88% n/a TX 84% 1,359 82% 78% 82% 88% 85% NC 84% 368 85% 74% 73% 87% 98% SD 84% 250 n/a 85% 87% 74% n/a OK 89% 208 n/a 88% 91% 89% n/a NCI Average 84% 14,108 75% 82% 82% 86% 85% DE 83% 219 n/a 85% n/a n/a 67% WY 81% 237 n/a 74% 86% 83% n/a MS 81% 280 n/a 77% 84% 82% n/a ID 81% 322 n/a n/a 73% 89% n/a FL 81% 453 n/a 73% 81% 85% n/a OR 80% 282 n/a 78% 75% 85% 83% KS 80% 272 n/a 73% 82% 89% n/a NJ 80% 212 n/a 81% 72% 80% n/a GA 79% 262 n/a 77% 85% 78% 79% RI 79% 247 n/a 79% 78% 79% n/a NV 79% 309 n/a 80% 79% 77% n/a DC 76% 136 n/a 80% 74% 79% n/a




Group Residence


Foster or Host

MI 75% 315 n/a 69% 74% 83% n/a CO 75% 291 n/a 62% 76% 76% 82% IL 73% 260 n/a 67% 67% 79% n/a VT 68% 239 n/a n/a 61% 69% 69% NH 66% 320 n/a n/a 69% 69% 64% ME 66% 311 n/a 68% 65% 72% 67% NE 55% 338 n/a 54% 52% 52% 71%



Table 97. Staff have right training to meet person’s needs (proxy respondents who were not staff were allowed for this question; ‘yes’ responses only) º




Group Residence


Foster or Host

TN 97% 354 n/a 98% 96% 97% n/a AR 96% 284 n/a 97% 95% 97% n/a DC 95% 141 n/a 92% 98% 97% n/a AL 95% 309 n/a 94% 97% 95% n/a KY 94% 323 n/a 92% 95% 98% 88% IL 94% 242 n/a 93% 94% 96% n/a LA 94% 293 92% n/a 94% 95% n/a OH 93% 426 84% 95% 93% 95% n/a GA 93% 272 n/a 88% 96% 95% 90% PA 93% 408 91% 90% 95% 93% n/a




Group Residence


Foster or Host

KS 93% 283 n/a 91% 95% 90% n/a OK 92% 211 n/a 93% 92% 90% n/a ME 92% 274 n/a 94% 95% 90% 93% IN 92% 580 n/a n/a 89% 92% n/a FL 91% 571 n/a 87% 94% 92% n/a RI 91% 209 n/a 92% 95% 88% n/a MO 91% 225 n/a 83% 92% 93% n/a VT 90% 210 n/a n/a 86% 94% 89% MI 90% 295 n/a 91% 90% 88% n/a UT 90% 293 n/a 84% 86% 95% 95% WY 90% 261 n/a 82% 96% 89% n/a MN 90% 1,410 84% 89% 90% 91% 94% MS 89% 368 n/a 89% 94% 87% n/a CT 89% 243 n/a 83% 97% 89% n/a NCI Average 89% 13,356 85% 88% 90% 90% 94% NC 89% 465 n/a 91% 74% 88% 96% NH 88% 320 n/a 80% 81% 90% 91% TX 88% 585 92% 85% 91% 88% n/a VA 88% 526 61% 92% 94% 87% 95% SD 88% 195 n/a 89% 84% 97% n/a NJ 87% 194 n/a 90% 67% 91% n/a WI 85% 383 n/a 84% 84% 91% n/a DE 85% 192 n/a 84% n/a n/a n/a NY 84% 310 n/a 83% 89% 84% n/a HI 84% 200 n/a n/a 92% 82% n/a OR 83% 252 n/a 86% 85% 78% 89%




Group Residence


Foster or Host

NV 80% 317 n/a 75% 81% 83% n/a ID 78% 324 n/a n/a 80% 77% n/a CO 74% 325 n/a 71% 70% 73% 88% NE 73% 283 n/a 68% 83% 67% 95%

ºAnalysis for this question changed from previous years, no longer including staff who served as proxy (this may affect overall score and result in a lower N than in previous years)



Table 98. Additional services needed (proxy respondents were allowed for this question) ∞


or Case Management

Respite or Family

Support Transportation

Assistance Finding,

Maintaining or Changing Jobs

Day Services (Not

Employment) N

AL 1% 2% 5% 18% 1% 313

AR 2% 4% 7% 9% 1% 383

CO 12% 17% 21% 16% 11% 399

CT 4% 7% 12% 12% 6% 331

DE 41% 22% 22% 36% 18% 311

DC 0% 0% 3% 3% 2% 391

FL 0% 3% 5% 5% 3% 723

GA 0% 2% 1% 3% 1% 414

HI 14% 25% 16% 12% 11% 398

ID 12% 28% 35% 29% 18% 349

IL 2% 2% 7% 9% 4% 369

IN 0% 5% 6% 3% 3% 628

KS 0% 1% 1% 2% 1% 380

KY 0% 2% 5% 4% 1% 418

LA 2% 2% 7% 8% 4% 402

ME 1% 5% 8% 20% 3% 367

MI 10% 11% 19% 16% 6% 486

MN 3% 5% 12% 11% 6% 1,843

MS 7% 13% 14% 18% 9% 399

MO 0% 1% 3% 6% 3% 390

NE 4% 27% 41% 40% 18% 396

NV 13% 14% 25% 25% 13% 404

NH 4% 18% 27% 36% 8% 390

NJ 8% 6% 10% 5% 5% 350

NY 10% 12% 11% 18% 11% 521

NC 8% 19% 13% 15% 9% 621

OH 6% 10% 13% 15% 7% 654

OK 1% 4% 7% 3% 3% 398

OR 8% 6% 19% 20% 13% 409

PA 2% 7% 10% 11% 4% 646

RI 4% 14% 17% 22% 11% 311

SD 3% 5% 10% 9% 4% 282

TN 2% 5% 2% 7% 6% 475

TX 5% 9% 10% 7% 6% 1,435

UT 1% 7% 6% 6% 2% 392

VT 6% 10% 9% 11% 14% 324

VA 3% 8% 10% 10% 8% 785

WI 9% 17% 24% 17% 9% 529

WY 7% 5% 10% 10% 7% 302

NCI Average 5% 9% 12% 13% 7% 19,318

∞Categories are not mutually exclusive



Table 99. Additional services needed (continued; proxy respondents were allowed for this question) ∞

Education or Training

Health Care Coordination

Dental Care Coordination

Assistance Finding,

Maintaining or Changing

Housing Residential

Support Services N AL 0% 1% 3% 10% 2% 313

AR 7% 2% 5% 3% 2% 383

CO 20% 10% 9% 9% 8% 399

CT 12% 6% 6% 7% 7% 331

DE 34% 13% 13% 16% 9% 311

DC 2% 1% 1% 1% 0% 391

FL 2% 2% 5% 2% 1% 723

GA 2% 2% 3% 1% 1% 414

HI 15% 13% 17% 5% 15% 398

ID 33% 14% 19% 10% 11% 349

IL 3% 4% 4% 5% 2% 369

IN 3% 1% 1% 1% 5% 628

KS 0% 1% 0% 1% 1% 380

KY 1% 1% 1% 2% 1% 418

LA 7% 4% 7% 5% 9% 402

ME 17% 0% 2% 10% 3% 367

MI 13% 10% 14% 8% 8% 486

MN 9% 5% 6% 6% 3% 1,843

MS 22% 7% 12% 4% 7% 399

MO 3% 1% 3% 1% 1% 390

NE 23% 5% 6% 32% 39% 396

NV 25% 16% 20% 19% 15% 404

NH 31% 5% 8% 12% 5% 390

NJ 6% 6% 6% 5% 7% 350

NY 13% 7% 6% 12% 8% 521

NC 15% 7% 7% 7% 5% 621

OH 15% 4% 7% 9% 6% 654

OK 2% 1% 2% 1% 4% 398

OR 21% 11% 12% 11% 8% 409

PA 8% 2% 4% 6% 4% 646

RI 25% 10% 10% 7% 8% 311

SD 6% 3% 3% 4% 5% 282

TN 5% 0% 0% 3% 0% 475

TX 9% 6% 6% 2% 5% 1,435

UT 7% 2% 4% 4% 2% 392

VT 5% 2% 3% 4% 2% 324

VA 8% 4% 17% 5% 5% 785

WI 22% 7% 17% 13% 10% 529

WY 7% 8% 9% 5% 8% 302

NCI Average 11% 5% 7% 7% 6% 19,318




Table 100. Additional services needed (continued; proxy respondents were allowed for this question) ∞

Social or Relationships

Issues or Meeting People

Communication Technology

Environmental Adaptations

Benefits and Insurance Info Other N

AL 3% 1% 1% 0% 0% 313

AR 4% 2% 4% 0% 9% 383

CO 19% 11% 11% 11% 10% 399

CT 12% 5% 5% 5% 6% 331

DE 29% 10% 6% 19% 14% 311

DC 1% 0% 0% 0% 7% 391

FL 4% 2% 2% 1% 8% 723

GA 1% 1% 1% 1% 2% 414

HI 17% 15% 7% 13% 9% 398

ID 32% 12% 16% 20% 13% 349

IL 5% 5% 1% 3% 10% 369

IN 4% 1% 1% 1% 5% 628

KS 2% 1% 1% 0% 3% 380

KY 2% 1% 1% 1% 2% 418

LA 7% 2% 7% 2% 12% 402

ME 24% 7% 2% 1% 34% 367

MI 14% 10% 8% 6% 6% 486

MN 8% 3% 3% 4% 3% 1,843

MS 8% 8% 7% 14% 5% 399

MO 4% 3% 3% 0% 6% 390

NE 36% 9% 7% 5% 6% 396

NV 20% 5% 7% 12% 15% 404

NH 33% 7% 7% 7% 24% 390

NJ 7% 3% 3% 5% 5% 350

NY 15% 5% 4% 11% 11% 521

NC 13% 13% 8% 8% 18% 621

OH 14% 7% 8% 7% 6% 654

OK 4% 2% 4% 1% 13% 398

OR 18% 4% 4% 13% 11% 409

PA 9% 5% 2% 2% 6% 646

RI 21% 16% 6% 7% 9% 311

SD 10% 4% 1% 4% 5% 282

TN 4% 2% 2% 0% 15% 475

TX 6% 6% 8% 8% 9% 1,435

UT 5% 5% 4% 3% 5% 392

VT 8% 2% 1% 0% 2% 324

VA 11% 10% 7% 6% 7% 785

WI 22% 12% 7% 12% 13% 529

WY 6% 4% 2% 5% 6% 302

NCI Average 11% 5% 4% 6% 8% 19,318




Health

People secure needed health services.



Health) had a large amount of missing data or data recorded as “don’t know.” Items that include states’

results for which 25% or more of their sample were missing data (or reported as “don’t know”) are

indicated with an asterisk (*).





“missing” or “don’t know” responses.



Table 101. Has a primary care doctor or practitioner (information may have been obtained through state records; ‘yes’ responses only)




Group Residence


Foster or Host

DC 100% 379 100% 100% 100% 100% n/a ID 100% 410 n/a n/a 100% 100% n/a TN 99% 487 n/a 100% 98% 100% n/a DE 99% 387 n/a 99% n/a n/a 100% AL 99% 384 n/a 99% 100% 99% n/a MO 99% 398 n/a 100% 99% 95% 100% CO 99% 372 n/a 100% 98% 99% 99% CT 99% 369 100% 99% 100% 98% n/a




Group Residence


Foster or Host

VT 99% 328 n/a n/a 98% 99% 99% UT 99% 400 100% 99% 97% 99% 100% VA 99% 775 100% 98% 98% 98% 100% NH 99% 400 n/a 100% 100% 99% 96% OK 99% 400 n/a 99% 98% 98% n/a HI 99% 400 n/a 98% 96% 98% 99% NJ 98% 398 n/a 98% 98% 99% n/a WY 98% 326 n/a 99% 99% 97% n/a MI 98% 503 n/a 100% 98% 96% n/a NC 98% 713 98% 98% 100% 98% 99% FL 98% 761 n/a 99% 100% 97% n/a TX 98% 2,028 99% 99% 97% 98% 96% IL 98% 372 n/a 99% 98% 98% n/a LA 98% 412 98% n/a 97% 98% n/a RI 98% 351 n/a 98% 95% 98% 100% NY 98% 526 97% 98% 97% 98% n/a KS 98% 384 n/a 97% 98% 100% n/a NCI Average 98% 20,449 98% 98% 97% 97% 98% NE 97% 389 96% 99% 95% 97% 100% IN 97% 734 n/a n/a 96% 98% 96% ME 97% 396 n/a 99% 95% 95% 100% KY 97% 417 n/a 96% 96% 98% 96% OH 97% 669 98% 100% 95% 96% n/a AR 97% 396 n/a 96% 96% 98% n/a GA 97% 449 n/a 99% 97% 95% 100% MN 97% 2,026 98% 97% 93% 98% 97% PA 97% 680 96% 96% 99% 96% 100% SD 96% 334 n/a 98% 96% 93% n/a NV 96% 419 n/a 96% 93% 96% n/a OR 95% 397 n/a 99% 97% 90% 96% WI* 89% 80 n/a n/a 97% 86% n/a




Group Residence


Foster or Host

MS 94% 400 n/a 98% 97% 90% n/a *State had a large number of “don’t knows” and missing data (at least 25%)



Table 102. In poor health (proxy respondents were allowed for this question; ‘poor health’ responses only) ˇ




Group Residence


Foster or Host

NE 12% 392 26% 18% 11% 7% 13% KY 12% 420 n/a 9% 13% 14% 6% ID 7% 408 n/a n/a 8% 6% n/a




Group Residence


Foster or Host

CO 6% 402 n/a 17% 6% 2% 4% OK 6% 397 n/a 4% 6% 8% n/a VT 5% 318 n/a n/a 6% 2% 6% WY 4% 315 n/a 5% 6% 1% n/a DE 4% 378 n/a 4% n/a n/a 6% UT 4% 399 4% 4% 6% 4% 0% WI 4% 552 n/a 2% 7% 3% n/a OH 4% 663 7% 4% 7% 2% n/a MS 3% 403 n/a 3% 4% 3% n/a LA 3% 407 2% n/a 1% 6% n/a NV 3% 422 n/a 4% 4% 2% n/a OR 3% 407 n/a 5% 3% 1% 6% VA 3% 796 9% 2% 2% 3% 1% KS 3% 388 n/a 2% 4% 3% n/a RI 3% 331 n/a 2% 5% 3% n/a MN 3% 2,015 7% 2% 3% 2% 6% SD 3% 285 n/a 4% 2% 2% n/a FL 3% 755 n/a 4% 6% 1% n/a NCI Average 3% 20,080 5% 3% 3% 2% 3% NH 3% 397 n/a 5% 4% 1% 4% AR 3% 383 n/a 2% 3% 3% n/a CT 3% 355 5% 2% 3% 2% n/a TX 2% 1,414 3% 1% 1% 3% 3% NC 2% 637 2% 2% 6% 3% 0% MI 2% 494 n/a 2% 2% 2% n/a PA 2% 678 6% 3% 2% 1% 0% IL 2% 365 n/a 1% 2% 3% n/a ME 2% 387 n/a 2% 1% 1% 2% MO 2% 391 n/a 1% 2% 3% 0% IN 2% 726 n/a n/a 2% 2% 4% NY 2% 522 0% 1% 0% 3% n/a HI 1% 402 n/a 2% 4% 2% 1% TN 1% 475 n/a 1% 1% 1% n/a




Group Residence


Foster or Host

GA 1% 442 n/a 2% 3% 1% 0% AL 1% 382 n/a 1% 2% 1% n/a DC 1% 387 2% 1% 1% 0% n/a NJ 1% 390 n/a 2% 0% 0% n/a

ˇ A lower average indicates a lower percentage of people reported being in poor health



Table 103. Had a complete physical exam in the past year (‘in the past year’ responses only; information may have been obtained through state records)




Group Residence


Foster or Host

OK 97% 400 n/a 98% 97% 96% n/a AR 96% 379 n/a 100% 95% 96% n/a LA 96% 398 99% n/a 95% 95% n/a AL 96% 382 n/a 97% 98% 94% n/a SD 96% 312 n/a 96% 98% 90% n/a MO 95% 386 n/a 97% 98% 78% 95% RI 95% 317 n/a 97% 91% 95% n/a PA 93% 657 96% 97% 89% 91% 100% CT 93% 339 100% 99% 92% 84% n/a FL 93% 755 n/a 95% 94% 91% n/a TX 93% 1,933 97% 97% 87% 89% 91% KY 92% 394 n/a 96% 91% 88% 94% NH 92% 390 n/a 93% 85% 88% 98% NJ 91% 387 n/a 90% 86% 94% n/a UT 90% 376 100% 95% 84% 88% 96% NC 90% 672 97% 96% 94% 85% 98% MI 90% 459 n/a 94% 88% 86% n/a




Group Residence


Foster or Host

WI* 92% 72 n/a n/a 97% 83% n/a TN 89% 474 n/a 92% 89% 86% n/a GA 89% 437 n/a 90% 87% 89% 92% IN 89% 708 n/a n/a 91% 88% 92% ME 89% 390 n/a 94% 84% 81% 94% OH 88% 547 99% 96% 86% 80% n/a CO 88% 350 n/a 91% 87% 88% 85% NV 88% 409 n/a 92% 90% 81% n/a NY 87% 479 94% 96% 72% 79% n/a NCI Average 86% 19,438 91% 90% 84% 82% 91% OR 85% 386 n/a 94% 79% 76% 94% DE 85% 388 n/a 85% n/a n/a 81% VT 84% 322 n/a n/a 72% 79% 90% IL 84% 352 n/a 91% 82% 77% n/a VA 83% 748 96% 86% 73% 73% 88% MS 82% 359 n/a 87% 84% 79% n/a KS 81% 362 n/a 84% 87% 66% n/a




Group Residence


Foster or Host

WY 78% 320 n/a 88% 72% 73% n/a NE 78% 365 81% 76% 72% 77% 84% HI 77% 396 n/a 82% 70% 73% 81% DC 76% 376 81% 81% 43% 87% n/a MN 61% 2,009 61% 71% 52% 40% 64% ID* 50% 253 n/a n/a 58% 47% n/a




Table 104. Had a dental exam in the past year (‘within the past six months’ and ‘within the past year’ responses; information may have been obtained through state records)




Group Residence


Foster or Host

SD 96% 304 n/a 98% 97% 90% n/a CT 95% 330 100% 99% 90% 91% n/a DE 95% 372 n/a 96% n/a n/a 87% RI* 93% 273 n/a 95% 94% 91% n/a TX 92% 1,947 98% 98% 89% 87% 93% NJ 90% 376 n/a 93% 83% 89% n/a TN 88% 459 n/a 93% 88% 81% n/a KY 87% 360 n/a 97% 84% 76% 90% MO 86% 372 n/a 87% 92% 52% 86% PA 86% 582 91% 96% 77% 79% 96%




Group Residence


Foster or Host

NY 84% 424 97% 91% 76% 73% n/a IN 84% 702 n/a n/a 83% 85% 76% NC 84% 649 97% 91% 83% 80% 83% FL 83% 738 n/a 91% 83% 78% n/a AR 82% 301 n/a 84% 86% 74% n/a ID 82% 390 n/a n/a 78% 83% n/a VT 82% 304 n/a n/a 73% 76% 86% NCI Average 81% 18,435 95% 87% 78% 74% 84% OH* 81% 488 98% 90% 77% 71% n/a KS 80% 326 n/a 82% 82% 72% n/a UT 79% 334 87% 85% 77% 74% 83% AL 79% 337 n/a 91% 87% 58% n/a OK 79% 399 n/a 81% 82% 72% n/a NE 79% 344 n/a 83% 73% 75% 91% GA 79% 403 n/a 85% 79% 72% 87% OR 78% 378 n/a 80% 86% 69% 85% WY 77% 320 n/a 79% 69% 81% n/a DC 77% 320 76% 83% 54% 87% n/a IL 76% 305 n/a 89% 69% 59% n/a WI* 73% 71 n/a n/a 73% 74% n/a




Group Residence


Foster or Host

MN 76% 2,087 90% 83% 65% 57% 79% NH 75% 348 n/a 74% 64% 80% 74% LA 75% 322 97% n/a 65% 59% n/a MI* 73% 377 n/a 71% 78% 75% n/a ME 73% 361 n/a 77% 67% 69% 80% NV 71% 360 n/a 76% 64% 68% n/a CO 70% 325 n/a 82% 63% 61% 78% VA 66% 635 88% 67% 55% 61% 68% MS 61% 347 n/a 70% 64% 54% n/a HI 56% 365 n/a 73% n/a 54% 49%




Table 105. Had an eye exam in the past year (‘within the past year’ responses only; information may have been obtained through state records)




Group Residence


Foster or Host

SD 78% 289 n/a 83% 77% 70% n/a NJ 73% 314 n/a 79% 74% 60% n/a AR* 72% 253 n/a 81% 79% 55% n/a MO 71% 360 n/a 76% 74% 44% 67% NY* 71% 390 93% 82% 55% 60% n/a KY* 71% 308 n/a 87% 73% 46% 77% PA* 71% 513 79% 82% 68% 57% 88% RI* 70% 231 n/a 75% 77% 58% n/a TX 68% 1,812 80% 78% 64% 57% 67% TN 68% 397 n/a 70% 74% 58% n/a




Group Residence


Foster or Host

LA* 67% 295 91% n/a 64% 44% n/a CO 66% 318 n/a 76% 76% 62% 54% DC* 64% 169 78% 61% 64% 61% n/a CT* 63% 274 65% 64% 67% 47% n/a WY 62% 309 n/a 66% 58% 57% n/a OK 61% 387 n/a 74% 61% 40% n/a GA* 61% 327 n/a 62% 65% 55% 68% KS 61% 305 n/a 62% 74% 46% n/a NCI Average 61% 16,438 79% 69% 58% 50% 62% DE 60% 329 n/a 61% n/a n/a 51% NV* 60% 318 n/a 64% 59% 55% n/a IL* 60% 275 n/a 76% 57% 36% n/a MN 60% 1,933 72% 65% 55% 40% 63% VA* 55% 422 79% 60% 66% 37% 54% ID 55% 380 n/a n/a 62% 49% n/a UT* 54% 211 40% 57% 74% 41% n/a AL 54% 318 n/a 58% 66% 41% n/a WI* 50% 64 n/a n/a 42% 48% n/a




Group Residence


Foster or Host

OH* 53% 430 75% 54% 43% 49% n/a IN 53% 674 n/a n/a 59% 50% 63% MS 53% 362 n/a 72% 64% 38% n/a NC 50% 551 55% 61% 67% 45% 47% OR 49% 350 n/a 60% 40% 45% 50% FL 46% 704 n/a 55% 48% 41% n/a MI* 44% 312 n/a 44% 48% 41% n/a VT 44% 256 n/a n/a 50% 33% 46% HI* 43% 301 n/a 43% 40% 45% 39% ME 42% 354 n/a 33% 44% 48% 54% NH 42% 321 n/a 36% 34% 38% 50% NE^ 35% 322 n/a 36% 28% 35% 44%

*State had a large number of “don’t knows” and missing data (at least 25%) ^NE collected data on the number of respondents that had a visit with a vision specialist



Table 106. Had a hearing test in the past five years (‘within the past five years’ responses only; information may have been obtained through state records)




Group Residence


Foster or Host

DC* 95% 128 95% 96% n/a n/a n/a TN* 87% 346 n/a 88% 91% 77% n/a PA* 86% 338 93% 93% 82% 77% 90% CT* 81% 181 97% 92% 68% 32% n/a DE* 78% 124 n/a 79% n/a n/a n/a NY* 76% 349 96% 88% 43% 64% n/a IL* 71% 200 n/a 79% n/a 57% n/a




Group Residence


Foster or Host

CO* 66% 183 n/a 57% 64% 66% 77% AL* 66% 177 n/a 76% 48% 57% n/a KY* 64% 179 n/a 76% 55% 50% 74% OH* 64% 320 88% 73% 58% 47% n/a LA* 64% 214 78% n/a 59% 46% n/a UT* 62% 138 100% 58% 70% 51% n/a TX 61% 1,637 96% 76% 27% 41% 39% HI* 61% 245 n/a 58% n/a 67% 51%

NCI Average* 59% 12,052 87% 70% 49% 47% 53% AR* 58% 168 n/a n/a 68% 43% n/a SD* 57% 174 n/a 61% 54% 51% n/a MN* 57% 1,125 76% 56% 49% 55% 41% VT* 55% 152 n/a n/a 35% 67% 56% RI* 54% 156 n/a 67% 47% 39% n/a KS* 53% 143 n/a 52% 56% 51% n/a GA* 52% 249 n/a 65% 38% 47% 56% MO* 52% 254 n/a 60% 52% 27% n/a WI* 46% 61 n/a n/a 58% 29% n/a




Group Residence


Foster or Host

MI* 49% 215 n/a 50% 56% 45% n/a ME* 49% 205 n/a 52% 47% 45% 53% NJ* 44% 239 n/a 62% 54% 21% n/a NC* 43% 401 65% 51% 60% 36% 46% FL* 42% 564 n/a 49% 38% 41% n/a VA* 42% 267 79% 43% n/a 26% 36% WY* 38% 206 n/a 36% 34% 38% n/a NH* 37% 252 n/a 37% 36% 33% 42% NV* 37% 237 n/a 43% 28% 38% n/a OK 36% 360 n/a 39% 46% 25% n/a MS 34% 341 n/a 31% 34% 37% n/a OR* 34% 288 n/a 46% 32% 23% 43% IN 34% 614 n/a n/a 35% 32% 52% ID 32% 335 n/a n/a 30% 34% n/a NE*^ 26% 287 n/a 28% 31% 21% 31%

*State had a large number of “don’t knows” and missing data (at least 25%) ^NE collected data on the number of respondents that had a visit with a hearing specialist



Table 107. Had a Pap test in the past three years (among women 21 and older; ‘within the past year’, ‘within the past two years’ and ‘within the past three years’ responses; information may have been obtained through state records) º




Group Residence


Foster or Host

DE 92% 106 n/a 91% n/a n/a n/a DC* 89% 46 n/a n/a n/a n/a n/a LA 80% 114 80% n/a 93% 70% n/a NJ 79% 113 n/a 91% n/a 59% n/a PA 78% 153 n/a 88% 83% 64% n/a CT 77% 82 n/a 80% n/a n/a n/a AL 76% 118 n/a 86% n/a 57% n/a




Group Residence


Foster or Host

GA 72% 124 n/a 71% 86% 68% 67% KY 72% 74 n/a 82% n/a 45% n/a MO 70% 142 n/a 56% 79% n/a n/a NY 70% 121 n/a 82% 68% 44% n/a OH 70% 140 72% 74% 79% 58% n/a IL 69% 87 n/a 70% n/a 65% n/a CO 69% 67 n/a 73% n/a 58% n/a AR 68% 82 n/a n/a 78% 41% n/a NV 68% 108 n/a 63% 87% 55% n/a TX 65% 679 77% 80% 72% 49% n/a RI 64% 89 n/a 74% 83% 29% n/a

NH 64% 110 n/a n/a n/a 50% 70% NCI Average 63% 5,410 69% 68% 73% 49% 65% TN 63% 118 n/a 67% 77% 55% n/a HI 61% 113 n/a n/a n/a 45% 67% WY 60% 104 n/a 68% 74% 34% n/a SD 59% 91 n/a 49% 77% n/a n/a OR* 57% 54 n/a n/a n/a n/a n/a VT* 57% 93 n/a n/a 75% n/a 58% FL 56% 278 n/a 72% 79% 41% n/a MI 56% 115 n/a 56% 63% 50% n/a MS 56% 144 n/a 62% 79% 38% n/a VA 55% 137 n/a 62% n/a 40% n/a ME 54% 87 n/a 50% 84% n/a n/a UT 53% 62 n/a 68% n/a 30% n/a KS 51% 93 n/a 49% 52% n/a n/a




Group Residence


Foster or Host

NC 53% 186 75% 65% n/a 36% n/a IN 51% 195 n/a n/a 69% 41% n/a MN 47% 576 32% 43% 63% 55% n/a OK 45% 168 n/a 47% 49% 37% n/a ID 44% 132 n/a n/a 54% 34% n/a NE 36% 106 n/a 42% 50% 29% n/a

ºAnalysis for this question changed from previous years, no longer including women under 21 (this may affect overall score and result in a lower N than in previous years) *State had a large number of “don’t knows” and missing data (at least 25%)



Table 108. Had a mammogram test in the past two years (among women age 40 and over; ‘past year’ and ‘past two years’ responses; information may have been obtained through state records)




Group Residence


Foster or Host

CT 94% 63 n/a 97% n/a n/a n/a DE 89% 73 n/a 89% n/a n/a n/a PA 87% 113 n/a 95% n/a 67% n/a




Group Residence


Foster or Host

DC 86% 37 n/a n/a n/a n/a n/a LA 86% 66 97% n/a 85% n/a n/a NY 86% 73 n/a 85% n/a n/a n/a SD 86% 58 n/a 79% 96% n/a n/a AL 84% 79 n/a 93% n/a 68% n/a RI 83% 53 n/a 81% n/a n/a n/a IL 83% 58 n/a 86% n/a n/a n/a NJ 82% 76 n/a 87% n/a n/a n/a NV 81% 62 n/a 78% 88% n/a n/a

FL 79% 113 n/a 82% 89% 68% n/a

TX 79% 385 86% 89% 75% 59% n/a TN 77% 84 n/a 71% 77% n/a n/a NCI Average 77% 3,287 82% 80% 78% 60% 78% NH 77% 43 n/a n/a n/a n/a 77% GA 77% 73 n/a 86% n/a 71% n/a MO 77% 94 n/a 79% 81% n/a n/a ME 74% 70 n/a 71% 85% n/a n/a OH 74% 88 83% 79% 65% n/a n/a MN 74% 446 61% 74% 80% n/a n/a VT 73% 60 n/a n/a n/a n/a 69% AR 71% 52 n/a n/a 62% n/a n/a CO 71% 34 n/a n/a n/a n/a n/a UT 70% 37 n/a n/a n/a n/a n/a MS 69% 84 n/a 80% 93% 39% n/a KY 69% 42 n/a n/a n/a n/a n/a MI 68% 88 n/a 67% 74% n/a n/a VA 68% 100 n/a 80% n/a n/a n/a OK 67% 102 n/a 67% 70% n/a n/a OR 67% 27 n/a n/a n/a n/a n/a KS 63% 54 n/a 60% 67% n/a n/a ID 57% 44 n/a n/a n/a n/a n/a




Group Residence


Foster or Host

NC 61% 85 48% 78% n/a 54% n/a IN 59% 111 n/a n/a 72% 54% n/a HI 59% 61 n/a n/a n/a n/a 58% WY 57% 49 n/a n/a 67% n/a n/a NE 39% 49 n/a n/a n/a n/a n/a



Table 109. Last colorectal cancer screening (among people age 50 and over; information may have been obtained through state records) º ∞

Colonoscopy in the Past 10

Years

Flexible Sigmoidoscopy in the past 5 years, and

Fecal Occult Blood Test in the Past 3 Years

Fecal Occult Blood Test in the Past Year

Never Had Exam or

Screening N

AL 41% 1% 0% 17% 153

AR 25% 2% 2% 19% 106

CO 20% 0% 3% 11% 119

CT 62% 2% 7% 1% 151

DE 38% 1% 0% 2% 183

DC 31% 0% 0% 1% 200

FL 45% 2% 1% 28% 182

GA 28% 0% 0% 27% 125

HI 14% 1% 7% 23% 147

ID 31% 0% 3% 27% 75

IL 28% 2% 3% 15% 115

IN 35% 1% 2% 34% 220

KS 27% 3% 3% 19% 117

KY 18% 1% 2% 15% 121

LA 26% 2% 1% 20% 127

ME 34% 1% 3% 18% 173

MI 31% 1% 3% 24% 207

MN 48% 0% 2% 0% 841

MS 37% 2% 1% 29% 136

MO 53% 5% 8% 19% 150

NE 27% 5% 1% 32% 96

NV 23% 2% 2% 35% 82

NH 53% 4% 1% 25% 102

NJ 51% 2% 1% 8% 155

NY 55% 1% 3% 6% 185

NC 40% 1% 3% 17% 156

OH 33% 3% 6% 8% 216

OK 47% 1% 1% 38% 137

OR 22% 0% 2% 8% 116

PA 28% 2% 1% 6% 237

RI 48% 2% 5% 3% 128

SD 46% 3% 1% 11% 116

TN 35% 3% 3% 10% 221

TX 39% 3% 4% 22% 679

UT 30% 0% 1% 10% 90

VT 51% 3% 2% 22% 109

VA 25% 2% 2% 15% 326

WI 2% 0% 1% 1% 157

WY 35% 0% 0% 19% 100

NCI Average 38% 1% 3% 12% 7,056

ºQuestion changed from previous years – response options and screening schedules changed ∞Categories are not mutually exclusive



Table 110. Had a flu vaccine in the past year (‘yes’ responses only; information may have been obtained through state records)




Group Residence


Foster or Host

DE* 94% 247 n/a 95% n/a n/a 87% CT* 92% 231 97% 98% 94% 66% n/a MO* 92% 354 n/a 96% 91% 78% n/a RI* 90% 271 n/a 97% 94% 80% n/a UT* 89% 218 100% 94% 89% 80% n/a SD* 87% 253 n/a 91% 86% 78% n/a VA* 85% 516 97% 92% 83% 63% 90% NJ* 84% 257 n/a 90% 68% 80% n/a KS* 83% 293 n/a 86% 84% 76% n/a ME* 83% 281 n/a 93% 77% 68% 89% AR* 83% 284 n/a 98% 84% 76% n/a NY* 82% 358 100% 95% 66% 65% n/a




Group Residence


Foster or Host

OH* 81% 354 97% 88% 77% 65% n/a TN* 80% 303 n/a 86% 80% 74% n/a PA* 79% 339 92% 87% 81% 66% 75% LA* 79% 248 93% n/a 73% 60% n/a TX 77% 1,743 97% 87% 70% 61% 77% VT 76% 248 n/a n/a 67% 73% 81% CO 76% 393 n/a 87% 76% 68% 87% KY* 76% 232 n/a 81% 77% 68% 82% NCI Average* 76% 13,650 96% 87% 73% 61% 80% NH* 75% 289 n/a 83% 68% 66% 84% OK 75% 397 n/a 85% 72% 60% n/a MI* 75% 321 n/a 85% 73% 55% n/a AL* 73% 265 n/a 82% 78% 58% n/a IL* 72% 218 n/a 81% n/a 58% n/a WY 72% 267 n/a 88% 67% 60% n/a WI* 71% 72 n/a n/a 79% 50% n/a NE 71% 312 n/a 78% 66% 67% 69% OR 71% 380 n/a 86% 68% 54% 79% HI* 68% 238 n/a 86% n/a 59% 75%




Group Residence


Foster or Host

NC* 69% 534 97% 92% 71% 55% 81% GA* 69% 366 n/a 71% 72% 67% 71% MS 66% 390 n/a 85% 66% 54% n/a IN 60% 700 n/a n/a 63% 58% 60% FL 58% 689 n/a 69% 66% 51% n/a ID 58% 393 n/a n/a 58% 53% n/a NV* 50% 277 n/a 55% 39% 50% n/a DC* 43% 119 51% 49% n/a n/a n/a




Medications

Medications are managed effectively and appropriately.



Medication) had a large amount of missing data or data recorded as “don’t know.” Items that include

states’ results for which 25% or more of their sample were missing data (or reported as “don’t know”)

are indicated with an asterisk (*).








Table 111. Takes at least one medication for mood, anxiety, psychotic disorder and/or behavioral challenge (information may have been obtained through state records)




Group Residence


Foster or Host

DE 70% 369 n/a 71% n/a n/a 62% MO 69% 393 n/a 65% 77% 24% 82% OK 64% 400 n/a 77% 70% 41% n/a KS 64% 381 n/a 74% 67% 34% n/a TN 62% 446 n/a 69% 70% 43% n/a UT 62% 401 75% 84% 63% 43% 70% VA 62% 748 55% 69% 63% 50% 68% MI 59% 493 n/a 67% 65% 44% n/a




Group Residence


Foster or Host

WI 62% 66 n/a n/a 57% 54% n/a RI 59% 326 n/a 85% 51% 35% n/a NH 58% 389 n/a 84% 44% 44% 71% SD 58% 311 n/a 73% 54% 30% n/a AR 57% 381 n/a 65% 65% 41% n/a KY 57% 385 n/a 73% 66% 35% 72% VT 56% 325 n/a n/a 58% 43% 59% CT 56% 359 64% 69% 51% 43% n/a NV 54% 393 n/a 73% 49% 32% n/a AL 54% 377 n/a 73% 51% 27% n/a NC 53% 704 58% 75% 52% 41% 75% LA 52% 403 68% n/a 58% 39% n/a NCI Average 52% 19,075 64% 67% 53% 35% 62% MN 52% 1,993 55% 59% 44% 36% 50% TX 51% 1,970 59% 69% 42% 36% 60% ME 51% 372 n/a 64% 50% 30% 48% CO 51% 366 n/a 81% 39% 37% 57% NY 50% 490 81% 66% 39% 32% n/a DC 50% 368 63% 59% 59% 15% n/a GA 50% 444 n/a 73% 42% 31% 83% WY 50% 318 n/a 64% 54% 34% n/a MS 50% 408 n/a 55% 52% 42% n/a NJ 49% 394 n/a 67% 43% 29% 30% IL 49% 364 n/a 69% 45% 29% n/a OH 49% 648 61% 72% 54% 32% n/a PA 48% 653 61% 63% 48% 34% 61% NE 46% 363 52% 62% 36% 40% 43%




Group Residence


Foster or Host

FL 46% 749 n/a 71% 43% 33% n/a IN 43% 729 n/a n/a 50% 37% 77% HI 34% 396 n/a 39% 38% 24% 48%



Table 112. Takes medication for mood, anxiety, and/or psychotic disorders (information may have been obtained through state records)




Group Residence


Foster or Host

DE 65% 361 n/a 67% n/a n/a 54% MO 64% 395 n/a 61% 71% 21% 77% UT 60% 403 75% 83% 63% 39% 70% KS 60% 387 n/a 72% 64% 31% n/a TN 59% 445 n/a 68% 66% 40% n/a VA 57% 752 51% 64% 61% 46% 64% OK 57% 400 n/a 70% 63% 34% n/a NH 57% 389 n/a 84% 44% 43% 68% RI 56% 332 n/a 80% 49% 33% n/a MI 56% 493 n/a 63% 64% 39% n/a




Group Residence


Foster or Host

WI* 60% 67 n/a n/a 54% 52% n/a VT 54% 325 n/a n/a 56% 37% 59% SD 54% 312 n/a 68% 53% 25% n/a AR 53% 382 n/a 63% 64% 34% n/a KY 53% 392 n/a 69% 63% 30% 70% CT 52% 363 62% 65% 47% 39% n/a AL 52% 380 n/a 71% 51% 26% n/a NV 51% 393 n/a 69% 48% 29% n/a WY 49% 319 n/a 64% 54% 30% n/a MS 49% 412 n/a 54% 51% 41% n/a LA 48% 407 63% n/a 56% 35% n/a CO 48% 365 n/a 80% 35% 35% 55% NC 48% 705 52% 73% 52% 35% 67% NCI Average 48% 19,163 58% 63% 50% 32% 58% TX 48% 1,971 55% 65% 41% 33% 55% MN 48% 1,999 49% 54% 43% 32% 45% ME 48% 380 n/a 59% 49% 29% 44% OH 46% 648 57% 71% 50% 30% n/a GA 46% 444 n/a 67% 37% 28% 78% IL 46% 371 n/a 65% 43% 27% n/a NJ 45% 393 n/a 62% 43% 25% 30% NY 45% 495 69% 59% 39% 29% n/a PA 45% 660 56% 61% 48% 31% 61% DC 45% 369 52% 53% 55% 12% n/a




Group Residence


Foster or Host

NE 41% 370 45% 59% 34% 32% 39% FL 40% 754 n/a 64% 40% 29% n/a IN 39% 729 n/a n/a 45% 34% 73% HI 24% 401 n/a 25% 36% 18% 31%




Table 113. Number of medications taken for at least one of the following: mood disorders, anxiety, or psychotic disorders (information may have been obtained through state records)

1-2 Medications

3-4 Medications

5-10 Medications

11 or more Medications N

AL 63% 28% 9% 0% 194

AR 70% 26% 4% 0% 196

CO 68% 25% 7% 0% 168

CT 76% 23% 1% 0% 180

DE 71% 25% 4% 0% 219

DC 90% 8% 2% 0% 123

FL 79% 18% 2% 0% 295

GA 55% 35% 8% 1% 202

HI 68% 29% 3% 0% 93

IL 71% 28% 1% 0% 167

IN 83% 14% 3% 0% 279

KS 64% 27% 9% 0% 222

KY 68% 27% 5% 0% 193

LA 65% 29% 6% 1% 195

ME 76% 20% 4% 0% 163

MI 68% 25% 8% 0% 261

MN 68% 25% 6% 1% 912

MS 67% 24% 9% 0% 200

MO 63% 27% 10% 0% 246

NE 81% 17% 1% 0% 145

NV 72% 22% 6% 0% 189

NH 70% 25% 4% 0% 216

NJ 65% 29% 7% 0% 175

NY 70% 25% 5% 0% 204

NC 61% 33% 6% 0% 329

OH 67% 30% 3% 0% 264

OK 60% 31% 9% 0% 229

PA 63% 32% 4% 0% 283

RI 69% 28% 3% 0% 172

SD 70% 22% 7% 0% 149

TN* 72% 23% 5% 1% 184

TX 57% 29% 13% 2% 913

UT 60% 34% 6% 0% 238

VT 66% 27% 7% 0% 174

VA 65% 28% 7% 0% 417

WI* 51% 33% 15% 0% 39

WY 81% 16% 3% 0% 156

NCI Average 68% 26% 6% 0% 8,984




Table 114. Takes medication for behavior challenges (information may have been obtained through state records)




Group Residence


Foster or Host

DE 48% 360 n/a 49% n/a n/a 40% DC 41% 355 51% 51% 43% 10% n/a UT 33% 402 43% 50% 24% 23% 40% AR 33% 384 n/a 36% 38% 23% n/a NC 32% 696 52% 42% 24% 24% 47%




Group Residence


Foster or Host

OK 31% 400 n/a 39% 35% 14% n/a RI 31% 327 n/a 57% 11% 16% n/a KS 31% 376 n/a 38% 28% 17% n/a NV 30% 389 n/a 47% 23% 14% n/a WI* 30% 66 n/a n/a 32% 29% n/a IL 30% 365 n/a 47% 5% 18% n/a CT 30% 356 61% 41% 19% 13% n/a NY 30% 483 71% 45% 5% 14% n/a VA 29% 744 24% 33% 22% 26% 32% MO 29% 388 n/a 26% 34% 8% 32% MI 29% 490 n/a 41% 19% 21% n/a TN 27% 424 n/a 26% 42% 15% n/a NE 27% 361 25% 48% 12% 23% 20% VT 26% 325 n/a n/a 25% 20% 26% MN 26% 1,978 37% 30% 14% 20% 21% NCI Average 25% 18,968 42% 37% 17% 15% 29% TX 25% 1,974 34% 35% 17% 15% 33% LA 25% 398 40% n/a 19% 18% n/a NJ 24% 392 n/a 37% 10% 13% 5% CO 24% 361 n/a 45% 10% 16% 30% MS 23% 398 n/a 31% 30% 13% n/a AL 21% 376 n/a 34% 9% 6% n/a KY 21% 385 n/a 24% 18% 16% 29% NH 20% 391 n/a 24% 15% 17% 23%




Group Residence


Foster or Host

FL 20% 754 n/a 39% 11% 13% n/a SD 19% 307 n/a 31% 10% 10% n/a ME 19% 369 n/a 26% 17% 9% 17% OH 19% 642 35% 26% 17% 11% n/a HI 18% 396 n/a 21% 4% 11% 34% PA 17% 656 24% 27% 12% 10% 26% GA 16% 453 n/a 28% 10% 8% 26% IN 16% 726 n/a n/a 21% 13% 19% WY 14% 321 n/a 21% 8% 11% n/a




Table 115. Number of medications taken for behavior challenges (information may have been obtained through state records)

1-2 Medications

3-4 Medications

5-10 Medications

11 or more Medications N

AL 78% 18% 4% 0% 76

AR 75% 23% 2% 0% 120

CO 75% 20% 5% 0% 81

CT 79% 20% 1% 0% 101

DE 75% 22% 3% 0% 155

DC 91% 7% 2% 0% 104

FL 83% 15% 2% 0% 144

GA 62% 27% 8% 3% 71

HI 72% 17% 11% 0% 72

IL 75% 24% 1% 0% 108

IN 85% 13% 2% 0% 114

KS 56% 34% 10% 0% 108

KY 81% 18% 1% 0% 73

LA 73% 23% 4% 0% 93

ME 78% 17% 5% 0% 63

MI 77% 19% 4% 0% 129

MN 82% 15% 2% 1% 500

MS 65% 29% 5% 0% 92

MO 88% 9% 3% 0% 110

NE 83% 16% 1% 0% 96

NV 76% 18% 6% 0% 114

NH 82% 17% 1% 0% 72

NJ 72% 23% 5% 0% 93

NY 79% 17% 4% 0% 133

NC 72% 25% 4% 0% 219

OH 81% 17% 3% 0% 109

OK 77% 19% 4% 0% 124

PA 72% 25% 3% 0% 106

RI 73% 22% 5% 0% 93

SD 76% 16% 8% 0% 50

TN 82% 13% 5% 0% 84

TX 72% 21% 7% 1% 511

UT 72% 23% 5% 0% 132

VT 76% 19% 5% 0% 85

VA 83% 15% 2% 0% 212

WY 80% 18% 2% 0% 44

NCI Average 77% 19% 4% 0% 4,609



Table 116. Has a behavior plan (information may have been obtained through state records)




Group Residence


Foster or Host

DE 66% 394 n/a 68% n/a n/a 56% KS 57% 383 n/a 69% 61% 26% n/a DC 45% 365 57% 53% 51% 15% n/a CT 44% 363 68% 74% 24% 14% n/a AR 44% 394 n/a 48% 54% 25% n/a NV 41% 397 n/a 66% 27% 18% n/a OK 37% 400 n/a 52% 40% 11% n/a UT 37% 411 67% 71% 27% 14% 42% VT 37% 326 n/a n/a 42% 16% 45% IL 37% 368 n/a 67% 10% 12% n/a NY 34% 508 81% 57% 5% 12% n/a IN 34% 727 n/a n/a 44% 30% 27% RI 34% 352 n/a 65% 15% 17% n/a MN 33% 1,974 44% 42% 9% 21% 24%




Group Residence


Foster or Host

CO 32% 362 n/a 76% 18% 9% 49% WI* 30% 67 n/a n/a 29% 25% n/a NE 28% 359 n/a 49% 17% 21% 25% TX 28% 2,004 52% 46% 8% 10% 22% PA 27% 673 32% 54% 18% 12% 50% KY 27% 421 n/a 40% 19% 13% 42% NCI Average 27% 19,734 54% 45% 16% 12% 31% WY 25% 324 n/a 35% 21% 17% n/a SD 24% 329 n/a 40% 13% 10% n/a OR 24% 322 n/a 40% 10% 8% 31% HI 23% 401 n/a 40% 15% 13% 32% LA 23% 408 59% n/a 13% 4% n/a TN 22% 482 n/a 23% 34% 9% n/a




Group Residence


Foster or Host

VA 22% 757 43% 24% 20% 12% 25% AL 21% 382 n/a 38% 9% 2% n/a MI 21% 500 n/a 33% 15% 10% n/a NC 19% 714 66% 26% 6% 10% 25% FL 16% 762 n/a 40% 6% 7% n/a NH 15% 401 n/a 33% 9% 4% 23% MO 15% 393 n/a 9% 19% 5% 18% NJ 14% 387 n/a 24% 5% 5% 10% OH 10% 684 44% 14% 4% 1% n/a ME 9% 389 n/a 16% 6% 4% 4% GA 8% 450 n/a 23% 3% 2% 5% MS 2% 401 n/a 2% 6% 1% n/a




Table 117. Has a behavior plan (among those who take medication for a behavior challenge; information may have been obtained through state records)




Group Residence


Foster or Host

DE 96% 170 n/a 95% n/a n/a n/a DC 96% 144 100% 94% 100% n/a n/a AR 92% 125 n/a n/a 95% 80% n/a KS 91% 115 n/a 95% 96% n/a n/a NE 85% 91 n/a 92% n/a 74% n/a CT 84% 102 95% 98% n/a n/a n/a NV 81% 115 n/a 89% n/a n/a n/a NY 79% 141 100% 88% n/a 28% n/a MN 74% 492 90% 79% 38% 59% n/a




Group Residence


Foster or Host

IL 77% 108 n/a 93% n/a 38% n/a RI 77% 98 n/a 89% n/a n/a n/a UT 70% 132 n/a 91% n/a 38% n/a SD 70% 56 n/a 78% n/a n/a n/a IN 69% 114 n/a n/a 79% 64% n/a AL 69% 78 n/a 77% n/a n/a n/a VT 69% 84 n/a n/a n/a n/a 76% PA 68% 108 n/a 91% n/a 20% n/a CO 66% 82 n/a 93% n/a 24% 86% TX 65% 530 92% 76% n/a 34% n/a KY 65% 80 n/a 90% n/a 40% n/a

NCI Average 65% 4,784 89% 77% 50% 36% 60% OK 65% 124 n/a 73% 61% n/a n/a FL 58% 149 n/a 74% n/a 39% n/a LA 54% 98 85% n/a n/a 13% n/a WY 50% 44 n/a 43% n/a n/a n/a




Group Residence


Foster or Host

MI 51% 141 n/a 60% 50% 33% n/a HI 50% 72 n/a n/a n/a 15% 59% VA 49% 216 n/a 49% n/a 38% 54% TN 48% 116 n/a 44% 58% n/a n/a NH 44% 78 n/a n/a n/a 20% 50% NC 43% 221 94% 51% n/a 26% 33% NJ 43% 91 n/a 43% n/a n/a n/a OH 36% 117 72% 46% 12% 10% n/a ME 33% 67 n/a 46% n/a n/a n/a GA 32% 71 n/a 45% n/a n/a n/a MO 32% 111 n/a 30% 32% n/a n/a MS 7% 84 n/a 7% 14% 0% n/a



Wellness

People are supported to maintain healthy habits.



Wellness) had a large amount of missing data or data recorded as “don’t know.” Items that include states’

results for which 25% or more of their sample were missing data (or reported as “don’t know”) are

indicated with an asterisk (*).








Table 118. Exercises or does physical activity at least 3 times per week (‘yes, sometimes [1-2 times a week]’ and ‘yes, regularly [at least 3 times a week]’ responses; proxy respondents were allowed for this question)




Group Residence


Foster or Host

HI 96% 401 n/a 96% 100% 95% 96% DC 95% 393 97% 94% 97% 96% n/a NH 87% 399 n/a 86% 91% 86% 86% NC 87% 634 81% 90% 88% 86% 93% IL 86% 364 n/a 87% 83% 86% n/a KS 85% 379 n/a 80% 86% 93% n/a SD 85% 284 n/a 76% 87% 100% n/a UT 85% 401 92% 79% 96% 82% 92% GA 85% 446 n/a 82% 87% 86% 82% AL 84% 384 n/a 80% 91% 88% n/a TN 84% 473 n/a 80% 87% 87% n/a CT 83% 358 71% 84% 78% 85% n/a




Group Residence


Foster or Host

WY 82% 317 n/a 73% 88% 86% n/a ID 80% 402 n/a n/a 79% 81% n/a MN 80% 2,025 68% 82% 78% 80% 87% NJ 80% 393 n/a 78% 81% 82% n/a RI 79% 336 n/a 83% 76% 79% 85% TX 79% 1,416 72% 76% 70% 82% 85% WI 78% 546 n/a 81% 76% 78% n/a ME 78% 392 n/a 70% 84% 87% 81% NV 77% 422 n/a 78% 80% 76% n/a NY 76% 520 66% 74% 73% 79% n/a NCI Average 77% 20,089 68% 76% 77% 77% 80% OH 75% 659 64% 72% 73% 81% n/a PA 74% 671 64% 75% 77% 73% 81% DE 73% 377 n/a 72% n/a n/a 79% VA 73% 795 51% 77% 72% 75% 83% MI 73% 494 n/a 67% 81% 74% n/a MO 73% 394 n/a 69% 75% 64% 86% OR 73% 401 n/a 66% 75% 76% 79% FL 72% 757 n/a 76% 80% 68% n/a NE 72% 392 55% 73% 80% 72% 71% CO 71% 399 n/a 60% 78% 74% 73% LA 71% 408 75% n/a 74% 67% n/a




Group Residence


Foster or Host

IN 72% 722 n/a n/a 70% 72% 73% OK 70% 399 n/a 67% 83% 68% n/a AR 70% 391 n/a 58% 74% 71% n/a VT 69% 325 n/a n/a 72% 76% 62% MS 64% 401 n/a 78% 72% 52% n/a KY 45% 419 n/a 41% 31% 46% 62%



Table 119. Body Mass Index (BMI) category (BMI calculated using data on weight and height; information may have been obtained through state records)

Underweight Healthy Overweight Obese N

AL 6% 23% 25% 45% 385

AR 4% 24% 26% 46% 385

CO 5% 35% 31% 29% 378

CT* 4% 33% 29% 33% 236

DE 4% 34% 27% 35% 367

DC 7% 34% 30% 28% 348

FL 7% 34% 31% 28% 631

GA 5% 28% 32% 36% 374

HI 9% 38% 23% 30% 396

ID 6% 30% 29% 35% 329

IL 7% 34% 23% 36% 351

IN 6% 28% 27% 38% 697

KS 3% 23% 34% 41% 341

KY 5% 21% 26% 48% 391

LA 6% 32% 27% 35% 377

ME 3% 30% 34% 32% 307

MI 6% 29% 28% 38% 453

MN 4% 32% 31% 33% 1,758

MS 6% 22% 29% 42% 313

MO 5% 32% 27% 36% 369

NE 5% 51% 22% 23% 374

NV 5% 31% 31% 34% 394

NH 3% 26% 31% 40% 350

NJ* 7% 27% 34% 32% 279

NY 4% 34% 31% 32% 462

NC 8% 33% 26% 32% 619

OH* 4% 28% 29% 38% 480

OK 6% 32% 23% 39% 400

OR 5% 29% 33% 34% 343

PA* 6% 32% 26% 36% 396

RI 6% 28% 27% 38% 324

SD 3% 27% 26% 44% 315

TN 6% 29% 28% 37% 414

TX 6% 30% 27% 36% 1,879

UT 8% 34% 26% 33% 396

VT 4% 30% 29% 37% 326

VA* 4% 30% 30% 36% 572

WI* 8% 22% 27% 42% 59

WY 9% 36% 26% 29% 327

NCI Average 5% 31% 29% 35% 17,895




Table 120. Uses nicotine or tobacco products (‘yes’ responses only; information may have been obtained through state records) ˇ




Group Residence


Foster or Host

KY 13% 406 n/a 19% 22% 5% 15% CO 12% 398 n/a 17% 28% 4% 9% VT 11% 325 n/a n/a 25% 3% 12%




Group Residence


Foster or Host

WY 10% 316 n/a 11% 18% 5% n/a OR 10% 386 n/a 11% 15% 4% 11% WI* 10% 371 n/a 13% 22% 1% n/a MO 9% 393 n/a 4% 11% 3% 14% KS 9% 375 n/a 11% 12% 1% n/a SD 8% 333 n/a 5% 14% 5% n/a NH 8% 394 n/a 9% 15% 3% 12% TN 8% 480 n/a 4% 12% 5% n/a LA 8% 377 16% n/a 8% 2% n/a AL 8% 381 n/a 11% 9% 3% n/a AR 8% 386 n/a 8% 12% 4% n/a OH 8% 653 7% 6% 19% 3% n/a UT 8% 412 4% 12% 15% 2% 8% OK 7% 400 n/a 10% 10% 1% n/a DE 7% 387 n/a 8% n/a n/a 0% MI 7% 495 n/a 7% 9% 5% n/a NCI Average 6% 20,333 8% 7% 13% 3% 8%

TX 6% 2,008 8% 10% 10% 2% 8% MN 6% 2,034 6% 6% 12% 3% 7% NE 6% 352 n/a 7% 10% 8% 0% GA 6% 447 n/a 5% 16% 3% 6% NY 6% 505 10% 5% 16% 2% n/a ID 6% 409 n/a n/a 9% 3% n/a ME 6% 388 n/a 8% 11% 1% 2% MS 6% 408 n/a 3% 15% 2% n/a VA 5% 740 2% 7% 8% 4% 3% IN 5% 725 n/a n/a 12% 3% 4% CT 5% 365 11% 3% 12% 1% n/a NJ 5% 385 n/a 5% 12% 2% 10% IL 5% 353 n/a 5% 8% 2% n/a NC 5% 705 10% 10% 3% 2% 6% FL 5% 749 n/a 6% 14% 1% n/a PA 5% 639 4% 4% 13% 3% 0% NV 4% 400 n/a 4% 9% 2% n/a DC 4% 330 2% 5% 10% 0% n/a




Group Residence


Foster or Host

RI 2% 351 n/a 2% 7% 1% n/a HI 2% 372 n/a 4% 10% 1% 1%

ˇA lower average indicates a lower percentage of people using tobacco products *State had a large number of “don’t knows” and missing data (at least 25%)



Respect and Rights

People receive the same respect and protections as others in the community.



Table 121. Has a key to the home (‘yes’ responses only; proxy respondents were allowed for this question) º




Group Residence


Foster or Host

SD 69% 286 n/a 43% 97% 77% n/a

AR 68% 378 n/a 69% 82% 51% n/a

NE 68% 386 19% 54% 88% 71% 79%

AL 66% 374 n/a 58% 93% 69% n/a

DE 65% 382 n/a 64% n/a n/a 64%

ME 64% 393 n/a 53% 84% 70% 48%

NV 61% 411 n/a 42% 84% 67% n/a

IN 59% 724 n/a n/a 76% 53% 35%

WY 59% 312 n/a 43% 87% 47% n/a NH 57% 395 n/a 25% 91% 70% 40%

WI 57% 549 n/a 34% 82% 55% n/a

FL 56% 735 n/a 49% 87% 50% n/a

KS 56% 377 n/a 41% 87% 52% n/a

ID 54% 403 n/a n/a 62% 53% n/a

MS 53% 405 n/a 45% 79% 43% n/a

OH 53% 665 11% 31% 79% 63% n/a




Group Residence


Foster or Host

RI 52% 330 n/a 25% 94% 55% n/a

OR 48% 403 n/a 23% 96% 57% 32%

TN 47% 473 n/a 47% 47% 48% n/a

NCI Average 46% 19,927 13% 28% 81% 52% 34%

DC 46% 372 29% 50% 61% 43% n/a

VT 45% 322 n/a n/a 87% 63% 24%

PA 45% 669 6% 20% 83% 57% 39%

CT 45% 356 0% 24% 93% 58% n/a

NY 45% 520 22% 28% 90% 54% n/a

CO 44% 401 n/a 10% 92% 50% 35% KY 44% 412 n/a 29% 73% 48% 47%

UT 44% 385 0% 35% 78% 41% 52%

LA 42% 402 9% n/a 77% 45% n/a

GA 41% 415 n/a 10% 93% 50% 22%

IL 40% 361 n/a 16% 98% 52% n/a




Group Residence


Foster or Host

VA 41% 789 15% 40% 84% 46% 36% MN 41% 2,023 16% 30% 96% 48% 34%

MI 39% 499 n/a 13% 70% 53% n/a

OK 39% 399 n/a 28% 65% 36% n/a

NC 38% 637 19% 34% 82% 40% 36%

MO 35% 393 n/a 18% 45% 29% 27%

TX 32% 1,402 7% 11% 74% 46% 26%

NJ 30% 393 n/a 20% 72% 31% 15%

HI 28% 396 n/a 13% 79% 40% 3%

º Question changed from previous years – response options changed



Table 122. People (who do not live in the home) let person know before entering home (‘yes’ responses only)




Group Residence


Foster or Host

KY 97% 298 n/a 96% 100% 97% 93%

TN 96% 350 n/a 95% 95% 98% n/a

FL 95% 451 n/a 91% 97% 96% n/a

WI 94% 358 n/a 94% 95% 95% n/a

IN 94% 578 n/a n/a 97% 93% n/a

MN 94% 1,378 89% 93% 93% 96% 94%

TX 93% 1,408 90% 92% 93% 95% 84%




Group Residence


Foster or Host

PA 93% 447 n/a 94% 92% 95% 100%

OH 93% 489 92% 94% 91% 93% n/a

MI 93% 314 n/a 89% 92% 99% n/a

AR 92% 293 n/a 87% 93% 91% n/a

IL 92% 259 n/a 88% 95% 93% n/a

OR 91% 300 n/a 87% 92% 96% 90%

OK 90% 230 n/a 90% 84% 95% n/a

NC 90% 365 75% 90% 100% 90% 100% NCI Average 90% 14,217 80% 88% 93% 92% 92%

HI 90% 195 n/a 79% 100% 90% 92%

CT 90% 277 n/a 86% 95% 93% n/a

NH 90% 314 n/a 78% 92% 92% 92%

DC 90% 141 n/a 92% 83% 93% n/a

RI 90% 248 n/a 87% 93% 92% n/a

AL 90% 346 n/a 90% 90% 89% n/a

UT 89% 258 n/a 83% 92% 94% n/a

MS 89% 285 n/a 90% 87% 90% n/a

VA 89% 457 68% 86% 93% 95% 96%

NE 89% 316 n/a 74% 94% 91% 93% ID 88% 319 n/a n/a 84% 93% n/a

SD 88% 259 n/a 88% 85% 98% n/a

NV 88% 306 n/a 84% 90% 89% n/a

WY 87% 231 n/a 83% 88% 92% n/a

KS 87% 278 n/a 83% 89% 92% n/a

MO 87% 248 n/a 76% 90% n/a n/a

GA 86% 263 n/a 80% 89% 85% 93%

NY 86% 349 n/a 82% 98% 85% n/a

NJ 86% 209 n/a 82% 75% 96% n/a

CO 85% 289 n/a 68% 94% 89% 81%




Group Residence


Foster or Host

DE 83% 238 n/a 83% n/a n/a 91%

VT 81% 273 n/a n/a 94% 84% 78%

ME 81% 317 n/a 73% 96% 78% 94%

LA 78% 283 77% n/a 76% 80% n/a



Table 123. Can lock bedroom (‘yes’ responses only; proxy respondents were allowed for this question)




Group Residence


Foster or Host

KY 75% 389 n/a 76% 75% 74% 84%

GA 73% 394 n/a 70% 90% 71% 72%

FL 70% 702 n/a 66% 88% 66% n/a

AR 68% 348 n/a 89% 76% 53% n/a

AL 67% 359 n/a 68% 78% 62% n/a

OR 62% 377 n/a 80% 66% 32% 78%

MS 62% 384 n/a 71% 77% 48% n/a

SD 61% 229 n/a 57% 75% 50% n/a

DE 58% 370 n/a 58% n/a n/a 63% KS 56% 351 n/a 62% 62% 41% n/a

WY 55% 277 n/a 62% 61% 41% n/a

NV 54% 354 n/a 50% 70% 51% n/a

VA 54% 770 14% 61% 64% 46% 74%

TN 53% 462 n/a 59% 54% 47% n/a

IN 53% 679 n/a n/a 60% 50% 48%




Group Residence


Foster or Host

NE 50% 356 24% 39% 82% 48% 60%

IL 49% 340 n/a 41% 84% 48% n/a

NC 48% 624 27% 60% 70% 44% 52%

ID 47% 384 n/a n/a 52% 48% n/a

UT 47% 367 33% 55% 64% 36% 56%

NCI Average 46% 18,511 18% 46% 59% 46% 51%

MN 45% 1,859 32% 49% 60% 35% 49%

PA 45% 589 11% 40% 64% 50% 45%

CT 45% 315 19% 39% 71% 47% n/a

MO 44% 368 n/a 31% 53% 29% 62%

OH 42% 629 20% 43% 46% 47% n/a NJ 41% 350 n/a 43% 47% 35% n/a




Group Residence


Foster or Host

OK 40% 391 n/a 47% 34% 34% n/a

NY 40% 497 10% 36% 63% 43% n/a

WI 40% 482 n/a 46% 46% 34% n/a

LA 38% 395 20% n/a 60% 40% n/a

NH 38% 361 n/a 38% 50% 37% 36% HI 38% 388 n/a 32% 71% 49% 15%

TX 37% 1,236 14% 28% 61% 46% 46%

ME 37% 328 n/a 37% 58% 29% 29%

RI 36% 306 n/a 25% 63% 37% n/a

VT 36% 284 n/a n/a 48% 28% 37%

CO 36% 369 n/a 35% 46% 32% 38%

MI 35% 473 n/a 31% 40% 36% n/a

DC 22% 375 5% 24% 35% 22% n/a



Table 124. People let person know before entering person’s bedroom (‘yes’ responses only)




Group Residence


Foster or Host

KY 93% 300 n/a 91% 97% 95% 89% GA 91% 267 n/a 93% 94% 90% 91% FL 90% 442 n/a 83% 95% 92% n/a PA 90% 430 n/a 88% 94% 90% n/a MN 88% 1,321 90% 87% 93% 85% 92%




Group Residence


Foster or Host

HI 89% 192 n/a 88% 100% 85% 90% RI 88% 236 n/a 93% 94% 80% n/a VA 87% 466 67% 87% 93% 87% 95% MO 86% 240 n/a 65% 91% n/a n/a DC 86% 140 n/a 78% 93% 86% n/a ID 85% 292 n/a n/a 83% 86% n/a CT 85% 270 n/a 79% 98% 86% n/a NV 85% 306 n/a 88% 88% 77% n/a OK 85% 214 n/a 83% 86% 86% n/a UT 85% 252 n/a 80% 88% 85% n/a WY 84% 224 n/a 82% 89% 78% n/a NCI Average 84% 13,804 77% 82% 89% 82% 84% IN 84% 521 n/a n/a 88% 82% n/a AL 84% 343 n/a 79% 98% 84% n/a AR 84% 294 n/a 76% 84% 84% n/a MI 83% 308 n/a 82% 85% 84% n/a NC 83% 367 85% 88% 89% 78% 93% OH 83% 463 81% 90% 86% 79% n/a TN 83% 353 n/a 81% 89% 82% n/a CO 83% 280 n/a 74% 88% 81% 86% NH 83% 301 n/a 78% 93% 80% 85% LA 83% 289 71% n/a 87% 88% n/a OR 82% 279 n/a 80% 94% 82% 74% IL 82% 260 n/a 83% 89% 78% n/a MS 82% 274 n/a 84% 83% 79% n/a WI 82% 344 n/a 81% 84% 79% n/a NE 81% 308 n/a 78% 86% 79% 93% NJ 81% 203 n/a 82% 88% 81% n/a NY 81% 332 n/a 78% 92% 80% n/a SD 79% 229 n/a 84% 77% 72% n/a DE 78% 245 n/a 76% n/a n/a 86%




Group Residence


Foster or Host

TX 79% 1,424 79% 78% 89% 78% 74% ME 76% 293 n/a 81% 92% 65% 69% KS 73% 270 n/a 71% 79% 61% n/a VT 72% 232 n/a n/a 71% 59% 80%



Table 125. Others read mail without asking (‘yes, mail/email is read without permission’ responses only) ˇ




Group Residence


Foster or Host

DC 25% 103 n/a 24% 25% n/a n/a UT 23% 230 n/a 25% 19% 26% n/a IL 22% 227 n/a 17% 18% 25% n/a NY 19% 303 n/a 16% 10% 26% n/a




Group Residence


Foster or Host

NJ 19% 187 n/a 14% 18% 21% n/a CT 18% 233 n/a 21% 7% 23% n/a NE 18% 268 n/a 17% 10% 22% 13% TX 15% 1,182 12% 15% 10% 18% 22% DE 15% 198 n/a 14% n/a n/a 25% RI 15% 234 n/a 20% 14% 12% n/a OH 15% 462 22% 7% 12% 18% n/a VA 14% 414 8% 17% 10% 14% 10% WI 14% 330 n/a 14% 17% 13% n/a NC 13% 335 n/a 14% 7% 15% 10% WY 13% 220 n/a 14% 8% 16% n/a NCI Average 13% 12,843 17% 12% 10% 16% 13% IN 13% 566 n/a n/a 12% 13% n/a NV 12% 283 n/a 16% 9% 13% n/a GA 12% 243 n/a 13% 17% 12% 4% AR 12% 276 n/a 15% 8% 13% n/a KS 12% 252 n/a 19% 7% 9% n/a MO 12% 216 n/a 15% 10% n/a n/a OR 12% 273 n/a 15% 9% 10% 17% OK 12% 206 n/a 16% 11% 6% n/a AL 12% 301 n/a 8% 3% 19% n/a ID 11% 258 n/a n/a 14% 10% n/a FL 11% 398 n/a 11% 11% 10% n/a MI 10% 288 n/a 12% 10% 11% n/a NH 9% 303 n/a 14% 6% 11% 7% HI 9% 145 n/a n/a 9% 11% n/a SD 9% 247 n/a 8% 4% 26% n/a




Group Residence


Foster or Host

PA 8% 418 n/a 7% 5% 10% 15% LA 8% 282 10% n/a 7% 8% n/a KY 8% 296 n/a 7% 8% 7% 11% MN 7% 1,308 9% 8% 3% 9% 10% MS 7% 268 n/a 9% 2% 9% n/a CO 6% 243 n/a 10% 0% 8% 6% ME 3% 296 n/a 3% 3% 4% 0% VT 2% 245 n/a n/a 2% 0% 3% TN 1% 306 n/a 2% 1% 0% n/a

ˇ A lower average indicates a lower percentage of people report others open mail or email without asking



Table 126. Can use phone and internet when wants (‘yes, can use anytime, either independently or with assistance’ responses only)




Group Residence


Foster or Host

OH 94% 467 86% 95% 96% 94% n/a




Group Residence


Foster or Host

DC 95% 133 n/a 97% 95% 92% n/a KY 94% 300 n/a 90% 100% 95% 93% AR 93% 273 n/a 95% 94% 96% n/a WI 93% 337 n/a 87% 95% 94% n/a MN 92% 1,355 93% 91% 95% 93% 88% NY 92% 328 n/a 91% 97% 95% n/a GA 92% 260 n/a 91% 93% 94% 87% KS 92% 249 n/a 94% 89% 91% n/a CO 92% 261 n/a 90% 96% 88% 95% MS 92% 260 n/a 92% 98% 86% n/a IL 91% 246 n/a 89% 97% 91% n/a VA 91% 436 97% 93% 93% 88% 83% MI 91% 290 n/a 83% 97% 94% n/a PA 91% 420 n/a 93% 90% 91% n/a OK 91% 209 n/a 85% 96% 94% n/a LA 91% 283 83% n/a 96% 92% n/a NCI Average 91% 13,390 84% 89% 94% 91% 86% IN 91% 546 n/a n/a 94% 89% n/a SD 90% 251 n/a 87% 92% 95% n/a RI 90% 240 n/a 89% 90% 94% n/a NC 90% 356 n/a 93% 89% 91% 88% OR 90% 280 n/a 89% 99% 84% 85% TN 90% 308 n/a 96% 89% 86% n/a ID 89% 292 n/a n/a 88% 92% n/a MO 89% 232 n/a 88% 90% n/a n/a AL 89% 338 n/a 88% 98% 88% n/a NV 89% 308 n/a 83% 95% 92% n/a NH 89% 316 n/a 73% 96% 89% 90% HI 88% 165 n/a 86% 100% 86% n/a FL 88% 432 n/a 87% 87% 88% n/a NJ 87% 197 n/a 87% 91% 88% n/a CT 87% 242 n/a 81% 95% 86% n/a WY 87% 233 n/a 77% 96% 83% n/a




Group Residence


Foster or Host

TX 88% 1,265 89% 80% 95% 90% 87% ME 85% 279 n/a 79% 88% 86% 93% VT 84% 250 n/a n/a 94% 85% 79% UT 83% 246 n/a 79% 94% 81% n/a DE 77% 220 n/a 76% n/a n/a 76% NE 68% 287 n/a 52% 92% 63% 76%



Table 127. Can be alone with friends or visitors at home (‘yes, can be alone with friends or visitors’ responses only)




Group Residence


Foster or Host

GA 93% 236 n/a 89% 98% 90% 100% KY 91% 294 n/a 87% 100% 93% 86% PA 90% 402 n/a 87% 92% 91% n/a VA 89% 431 97% 90% 90% 86% 86% TN 89% 344 n/a 91% 82% 95% n/a MI 88% 281 n/a 87% 92% 85% n/a




Group Residence


Foster or Host

SD 88% 247 n/a 78% 96% 89% n/a OH 87% 443 91% 80% 92% 85% n/a AL 86% 324 n/a 90% 90% 80% n/a KS 86% 257 n/a 82% 94% 81% n/a MO 86% 220 n/a 85% 87% n/a n/a DC 86% 131 n/a 88% 93% 76% n/a WI 86% 318 n/a 87% 87% 84% n/a FL 86% 411 n/a 80% 96% 84% n/a MS 86% 270 n/a 89% 94% 74% n/a NY 86% 308 n/a 81% 96% 86% n/a ME 85% 233 n/a 84% 87% 85% 86% MN 85% 1,302 90% 80% 97% 85% 80% OK 84% 191 n/a 76% 89% 91% n/a NCI Average 83% 12,754 82% 80% 91% 81% 79% WY 83% 221 n/a 74% 91% 77% n/a CO 83% 249 n/a 82% 93% 79% 82% RI 82% 233 n/a 76% 89% 82% n/a AR 81% 267 n/a 83% 80% 82% n/a UT 80% 243 n/a 67% 94% 86% n/a OR 80% 251 n/a 74% 92% 78% 72% ID 79% 272 n/a n/a 75% 81% n/a NH 79% 295 n/a 79% 96% 74% 75% IL 79% 241 n/a 73% 100% 77% n/a HI 78% 138 n/a n/a 100% 73% n/a




Group Residence


Foster or Host

TX 80% 1,274 80% 80% 89% 76% 85% CT 75% 240 n/a 73% 88% 63% n/a NC 74% 341 n/a 77% 89% 70% 73% NV 74% 272 n/a 65% 90% 68% n/a LA 73% 273 78% n/a 82% 64% n/a VT 71% 157 n/a n/a 89% 60% 68% NJ 69% 175 n/a 67% 97% 56% n/a DE 68% 200 n/a 70% n/a n/a 67% IN 67% 527 n/a n/a 75% 62% n/a NE 64% 242 n/a 47% 92% 57% 65%



Table 128. There are rules about having friends or visitors at home (‘yes’ responses only) º ˇ




Group Residence


Foster or Host

NE 65% 248 n/a 76% 29% 77% 59% DE 57% 176 n/a 60% n/a n/a n/a NJ 53% 172 n/a 60% 33% 53% n/a NV 52% 275 n/a 67% 35% 55% n/a NC 52% 312 n/a 63% 35% 49% 45% CO 49% 245 n/a 61% 15% 57% 58% TX 49% 1,219 64% 57% 27% 45% 44% MS 44% 263 n/a 58% 40% 39% n/a ID 44% 264 n/a n/a 39% 45% n/a IN 43% 502 n/a n/a 32% 48% n/a




Group Residence


Foster or Host

HI 45% 132 n/a n/a 45% 48% n/a AR 42% 257 n/a 44% 42% 42% n/a OK 41% 186 n/a 51% 23% 48% n/a LA 41% 263 55% n/a 19% 46% n/a CT 40% 221 n/a 49% 23% 47% n/a NH 39% 282 n/a 50% 16% 41% 45% NY 39% 301 n/a 45% 15% 41% n/a OR 38% 240 n/a 38% 25% 40% 57% VT 38% 151 n/a n/a 17% 38% 54% DC 38% 130 n/a 37% 35% 50% n/a UT 38% 237 n/a 51% 20% 33% n/a WY 37% 215 n/a 65% 22% 38% n/a RI 37% 223 n/a 39% 13% 52% n/a MI 37% 267 n/a 45% 28% 34% n/a MN 35% 1,261 34% 40% 21% 36% 40% NCI Average 35% 12,308 45% 41% 21% 37% 44% IL 35% 231 n/a 38% 22% 36% n/a SD 34% 232 n/a 46% 23% 42% n/a KS 33% 255 n/a 43% 17% 31% n/a OH 32% 425 39% 37% 20% 37% n/a VA 31% 406 19% 37% 28% 33% 17%




Group Residence


Foster or Host

PA 25% 386 n/a 22% 16% 29% n/a WI 25% 303 n/a 23% 20% 30% n/a TN 25% 339 n/a 34% 23% 19% n/a MO 23% 215 n/a 19% 24% n/a n/a FL 18% 396 n/a 25% 6% 22% n/a ME 18% 229 n/a 28% 16% 14% 10% KY 13% 292 n/a 14% 3% 15% 19% AL 13% 324 n/a 7% 10% 21% n/a GA 10% 233 n/a 17% 8% 10% 8%

ºQuestion changed from previous years – response options changed ˇA lower average indicates a lower percentage of people report rules about having friends or visitors at home



Table 129. Has a place to be alone in the home (‘yes’ responses only)




Group Residence


Foster or Host

GA 100% 273 n/a 98% 100% 100% 100% TN 99% 366 n/a 98% 97% 100% n/a AL 99% 344 n/a 97% 100% 100% n/a PA 98% 464 n/a 99% 100% 98% n/a IN 98% 588 n/a n/a 99% 97% n/a MN 98% 1,391 99% 98% 99% 98% 98% OH 98% 488 93% 99% 98% 98% n/a




Group Residence


Foster or Host

VT 98% 277 n/a n/a 98% 95% 100% WI 98% 361 n/a 94% 97% 100% n/a UT 98% 263 n/a 94% 100% 99% n/a AR 98% 295 n/a 95% 99% 96% n/a CO 97% 294 n/a 94% 98% 97% 100% SD 97% 256 n/a 99% 97% 98% n/a MO 97% 254 n/a 92% 99% n/a n/a ME 97% 320 n/a 99% 99% 97% 100% MS 97% 281 n/a 97% 99% 96% n/a WY 97% 237 n/a 97% 98% 95% n/a OR 97% 304 n/a 99% 97% 93% 98% KS 96% 283 n/a 98% 97% 92% n/a FL 96% 455 n/a 94% 99% 96% n/a NV 96% 320 n/a 95% 99% 95% n/a LA 96% 293 94% n/a 99% 96% n/a NCI Average 96% 14,404 91% 95% 98% 96% 97% CT 96% 282 n/a 94% 98% 97% n/a NH 96% 322 n/a 97% 100% 92% 96% NC 95% 371 95% 93% 96% 97% 96% KY 95% 300 n/a 94% 92% 99% 91% ID 95% 319 n/a n/a 95% 95% n/a TX 95% 1,436 86% 97% 97% 96% 97% VA 95% 471 63% 98% 100% 97% 96% OK 95% 226 n/a 96% 90% 97% n/a NE 95% 317 n/a 82% 100% 98% 98% RI 94% 248 n/a 91% 98% 93% n/a IL 94% 261 n/a 92% 100% 94% n/a MI 94% 321 n/a 88% 98% 96% n/a HI 94% 200 n/a 88% 91% 96% 90% NJ 93% 207 n/a 90% 94% 98% n/a DE 93% 235 n/a 92% n/a n/a 96% NY 93% 343 n/a 91% 98% 93% n/a DC 92% 138 n/a 91% 93% 97% n/a



Table 130. Staff treat person with respect (‘yes – all staff, always’ responses only)




Group Residence


Foster or Host

TN 98% 355 n/a 97% 97% 100% n/a AR 98% 272 n/a 97% 98% 99% n/a GA 97% 273 n/a 94% 95% 99% 100% PA 96% 373 n/a 94% 95% 97% n/a MS 96% 269 n/a 96% 94% 98% n/a IN 96% 504 n/a n/a 92% 97% n/a KY 96% 289 n/a 95% 94% 97% 93%




Group Residence


Foster or Host

DC 95% 133 n/a 92% 97% 100% n/a NC 95% 329 n/a 91% 96% 98% 95% OH 94% 389 87% 94% 94% 96% n/a AL 94% 311 n/a 92% 97% 96% n/a VA 94% 438 70% 96% 90% 96% 100% IL 94% 241 n/a 91% 91% 97% n/a OK 94% 192 n/a 91% 96% 97% n/a TX 93% 1,172 92% 91% 94% 95% 100% LA 93% 266 84% n/a 95% 98% n/a CT 93% 256 n/a 92% 90% 97% n/a FL 92% 413 n/a 85% 94% 97% n/a HI 92% 157 n/a 91% 91% 93% 93% NCI Average 92% 12,802 86% 90% 92% 96% 92% RI 92% 241 n/a 92% 92% 94% n/a MN 92% 1,325 94% 91% 93% 95% 92% ID 92% 266 n/a n/a 86% 97% n/a NH 91% 309 n/a 89% 90% 94% 88% CO 91% 253 n/a 81% 93% 93% 94% UT 90% 248 n/a 89% 87% 97% n/a NY 90% 277 n/a 89% 95% 92% n/a MI 90% 268 n/a 85% 88% 100% n/a MO 89% 237 n/a 84% 91% n/a n/a VT 89% 221 n/a n/a 84% 93% 90% WI 89% 274 n/a 94% 86% 92% n/a OR 89% 246 n/a 87% 87% 96% 84% KS 89% 257 n/a 82% 94% 92% n/a ME 88% 283 n/a 86% 88% 90% 94% NJ 88% 197 n/a 86% 75% 100% n/a WY 88% 218 n/a 84% 89% 91% n/a NV 87% 276 n/a 85% 89% 92% n/a




Group Residence


Foster or Host

DE 86% 224 n/a 86% n/a n/a 82% SD 84% 229 n/a 86% 81% 86% n/a NE 81% 321 75% 74% 83% 84% 88%



Table 131. Has attended a self-advocacy group, meeting, conference or event or had the opportunity and chose not to (‘yes’ and ‘had the opportunity but chose not to participate’ responses; proxy respondents were allowed for this question)




Group Residence


Foster or Host

VT 49% 319 n/a n/a 65% 53% 43% AL 46% 367 n/a 47% 68% 39% n/a SD 45% 260 n/a 44% 45% 42% n/a NJ 40% 325 n/a 35% 45% 47% n/a CT 39% 321 67% 32% 51% 28% n/a NH 35% 387 n/a 30% 41% 28% 41% KS 33% 313 n/a 31% 41% 29% n/a RI 33% 314 n/a 34% 35% 33% n/a UT 33% 354 75% 36% 36% 24% n/a NC 32% 453 64% 23% 41% 26% n/a OH 32% 600 21% 33% 38% 33% n/a




Group Residence


Foster or Host

WY 31% 232 n/a 36% 34% 21% n/a MO 30% 310 n/a 20% 39% 15% n/a MN 29% 1,646 23% 31% 34% 26% n/a DE 27% 330 n/a 29% n/a n/a n/a MS 27% 328 n/a 26% 34% 22% n/a NE 26% 333 n/a 20% 30% 25% n/a WI 25% 539 n/a 28% 23% 28% n/a IL 25% 260 n/a 25% 41% 21% n/a NCI Average 25% 17,176 26% 24% 31% 24% 24% TN 25% 403 n/a 24% 25% 24% n/a LA 25% 381 25% n/a 28% 24% n/a OK 25% 366 n/a 27% 41% 10% n/a AR 24% 259 n/a 42% 25% 19% n/a OR 23% 379 n/a 22% 39% 18% n/a ME 23% 353 n/a 27% 33% 14% n/a DC 23% 331 23% 22% 27% 24% n/a NY 23% 408 n/a 22% 25% 23% n/a CO 22% 378 n/a 8% 28% 23% n/a IN 22% 654 n/a n/a 20% 22% n/a




Group Residence


Foster or Host

VA 20% 637 23% 22% 27% 21% n/a TX 20% 1,240 18% 15% 29% 21% n/a MI 19% 404 n/a 13% 31% 19% n/a FL 19% 642 n/a 16% 29% 18% n/a HI 19% 373 n/a 15% 55% 24% n/a PA 18% 489 24% 16% 20% 17% n/a NV 18% 399 n/a 16% 21% 21% n/a KY 16% 331 n/a 11% 14% 16% n/a ID 15% 370 n/a n/a 14% 17% n/a GA 15% 388 n/a 9% 22% 14% n/a



Table 132. Has voted in local, state, or federal election, or had the opportunity and chose not to (‘yes’ and ‘had the opportunity to register or vote but chose not to’ responses; proxy respondents were allowed for this question)




Group Residence


Foster or Host

NV 63% 406 n/a 56% 86% 55% n/a OR 59% 398 n/a 54% 84% 51% 54% AL 59% 366 n/a 55% 77% 59% n/a NH 53% 398 n/a 56% 75% 44% 50% NE 52% 372 n/a 43% 77% 50% 58% SD 52% 283 n/a 37% 61% 61% n/a IL 50% 339 n/a 53% 69% 42% n/a KS 49% 369 n/a 48% 57% 44% n/a MS 48% 398 n/a 55% 60% 37% n/a OH 48% 645 31% 42% 60% 49% n/a ME 47% 370 n/a 44% 68% 40% 38% RI 46% 325 n/a 33% 69% 46% n/a PA 45% 656 23% 37% 60% 46% 56%




Group Residence


Foster or Host

LA 45% 397 37% n/a 57% 44% n/a DE 44% 344 n/a 43% n/a n/a 39% VT 43% 316 n/a n/a 60% 50% 33% NC 43% 609 59% 45% 73% 39% 31% CO 42% 398 n/a 28% 64% 43% 37% WY 42% 309 n/a 43% 64% 26% n/a CT 42% 341 9% 32% 60% 51% n/a FL 40% 731 n/a 36% 68% 33% n/a NCI Average 39% 19,448 26% 33% 57% 37% 37% NY 39% 503 17% 36% 62% 37% n/a IN 39% 708 n/a n/a 48% 35% 38% AR 38% 384 n/a 45% 46% 28% n/a ID 38% 400 n/a n/a 39% 40% n/a WI 37% 549 n/a 23% 58% 30% n/a MN 35% 1,962 24% 29% 65% 34% 40%

GA 34% 407 n/a 19% 66% 34% 25% UT 33% 378 4% 35% 54% 28% 19%




Group Residence


Foster or Host

VA 33% 774 32% 30% 57% 34% 28% MI 31% 481 n/a 23% 46% 29% n/a NJ 30% 367 n/a 25% 51% 35% n/a DC 28% 371 17% 25% 37% 36% n/a TN 25% 451 n/a 22% 30% 21% n/a OK 24% 385 n/a 22% 28% 27% n/a MO 23% 383 n/a 12% 28% 17% 27% HI 19% 400 n/a 16% 46% 25% 6% TX 18% 1,370 11% 7% 45% 21% 15% KY 9% 405 n/a 8% 14% 10% 10%



Safety

People are safe from abuse, neglect, and injury.



Table 133. There is at least one place where the person feels afraid or scared (in home, day program, work, walking in the community, in transport, or other place) ˇ




Group Residence


Foster or Host

UT 36% 252 n/a 38% 35% 33% n/a NE 33% 330 n/a 33% 22% 36% 33% ID 33% 316 n/a n/a 41% 29% n/a NV 33% 310 n/a 39% 22% 35% n/a CO 30% 291 n/a 28% 40% 26% 29% SD 30% 250 n/a 28% 31% 28% n/a WY 29% 227 n/a 34% 27% 26% n/a OR 28% 281 n/a 31% 29% 23% 33%




Group Residence


Foster or Host

HI 29% 182 n/a 27% 35% 30% 22% KS 26% 223 n/a 35% 19% 20% n/a AR 26% 294 n/a 44% 24% 20% n/a MS 25% 279 n/a 20% 17% 34% n/a IL 25% 252 n/a 27% 22% 26% n/a RI 25% 245 n/a 21% 24% 27% n/a ME 25% 314 n/a 33% 24% 20% 13% WI 24% 311 n/a 31% 29% 17% n/a CT 24% 266 n/a 25% 22% 23% n/a VT 24% 261 n/a n/a 21% 26% 26% NJ 23% 195 n/a 26% 24% 19% n/a LA 22% 284 26% n/a 18% 23% n/a OH 21% 468 31% 20% 20% 21% n/a NY 21% 343 n/a 20% 14% 26% n/a TX 21% 1,346 24% 25% 20% 19% 8% DE 21% 237 n/a 20% n/a n/a 29% MI 21% 312 n/a 21% 22% 19% n/a NCI Average 20% 13,841 23% 22% 18% 19% 21% NH 19% 317 n/a 17% 23% 22% 16% NC 19% 361 n/a 23% 18% 19% 13% DC 19% 137 n/a 22% 15% 21% n/a OK 19% 218 n/a 21% 15% 20% n/a VA 19% 431 21% 23% 17% 15% 12% PA 18% 442 n/a 22% 18% 16% 25% MN 18% 1,366 21% 19% 18% 15% 16%




Group Residence


Foster or Host

TN 13% 344 n/a 21% 9% 13% n/a IN 12% 573 n/a n/a 9% 13% n/a MO 10% 229 n/a 19% 10% n/a n/a AL 10% 342 n/a 11% 10% 8% n/a FL 9% 446 n/a 12% 7% 7% n/a GA 7% 269 n/a 9% 6% 5% 13% KY 5% 297 n/a 5% 3% 3% 12%

ˇA lower percentage indicates a lower proportion of people indicating that there is a place they feel afraid



Table 134. Have someone to go to for help if they ever feel scared (‘yes’ responses only)




Group Residence


Foster or Host

GA 99% 273 n/a 100% 96% 99% 100% KY 99% 301 n/a 98% 100% 100% 96% TN 98% 346 n/a 96% 98% 100% n/a AL 97% 347 n/a 95% 100% 100% n/a




Group Residence


Foster or Host

LA 97% 287 96% n/a 94% 98% n/a WI 96% 347 n/a 91% 97% 97% n/a NH 96% 321 n/a 91% 100% 98% 94% IN 96% 581 n/a n/a 93% 97% n/a MS 96% 280 n/a 97% 97% 95% n/a NC 95% 362 n/a 88% 96% 99% 98% KS 95% 272 n/a 95% 98% 91% n/a FL 95% 452 n/a 94% 96% 95% n/a ME 95% 312 n/a 95% 92% 99% 94% NJ 95% 209 n/a 94% 94% 95% n/a PA 95% 452 90% 93% 95% 97% 85% MN 95% 1,377 92% 94% 95% 96% 92% MI 94% 305 n/a 94% 95% 96% n/a RI 94% 241 n/a 96% 93% 92% n/a NCI Average 94% 14,101 91% 93% 94% 95% 92%

UT 94% 252 n/a 97% 95% 91% n/a MO 94% 235 n/a 86% 96% n/a n/a VA 94% 452 77% 98% 93% 94% 93% OH 94% 481 93% 97% 92% 94% n/a OR 94% 293 n/a 93% 93% 97% 92% CT 93% 270 n/a 94% 95% 92% n/a TX 93% 1,385 93% 92% 96% 95% 81% NY 93% 343 n/a 94% 92% 93% n/a AR 93% 297 n/a 90% 92% 96% n/a ID 93% 317 n/a n/a 91% 94% n/a OK 92% 215 n/a 91% 96% 91% n/a DC 92% 139 n/a 93% 88% 93% n/a CO 92% 290 n/a 77% 90% 95% 98% WY 91% 232 n/a 91% 91% 92% n/a SD 91% 250 n/a 87% 93% 92% n/a VT 91% 267 n/a n/a 92% 85% 92% NV 91% 316 n/a 87% 92% 94% n/a IL 90% 259 n/a 89% 95% 89% n/a DE 89% 238 n/a 90% n/a n/a 79%




Group Residence


Foster or Host

NE 87% 317 n/a 77% 84% 93% 93% HI 86% 188 n/a 78% 96% 86% 76%

Adult Consumer Survey 2016-17

Part II:

• NCI History and Activities

• Methodology

• Data Analysis

• Appendices

ii

Contents

Overview of National Core Indicators ........................................................................... 2

State Participation .............................................................................................................................................................. 3

Figure B. NCI State Participation 2016-17 ............................................................................................................................................... 3

The Core Indicators ............................................................................................................................................................ 3

Domains and Sub-Domains ............................................................................................................................................................................. 4 Figure C. Adult Consumer Survey Indicators: Domains and Sub-Domains ............................................................................... 5

How NCI Data Are Used .................................................................................................................................................... 5

Caution and Limitations ................................................................................................................................................................................... 6

Administration ............................................................................................................. 8

Proxy Respondents ............................................................................................................................................................. 8

Surveyor Training ............................................................................................................................................................... 9

Criteria for Exclusion of Responses ............................................................................................................................. 9

Responses for Section II ................................................................................................................................................................................ 10

Sampling ............................................................................................................................................................................... 10

Figure D. Valid Surveys and Response Rates by State 2016-17 .................................................................................................. 12

Data Management and Analysis ................................................................................. 14

Weighting ............................................................................................................................................................................. 14

Significance Testing ......................................................................................................................................................... 15

Technical Details ............................................................................................................................................................................................... 16

Outcome Adjustment ....................................................................................................................................................... 16

Scale Development ........................................................................................................................................................... 17

Appendix A ................................................................................................................. 19

Survey changes from 2015-16 to 2016-17 ............................................................................................................. 19

Table A1. Survey Changes 2015-16 to 2016-17 ................................................................................................................................. 20

Appendix B ................................................................................................................. 28

Rules for Recoding and Combining Variables to Compute Core Indicators ............................................... 28

Table B1. Background Information Variables Used to Adjust Outcomes ................................................................................ 29 Table B2. Outcome Variables -- Rules for Analysis............................................................................................................................ 32

Appendix C ................................................................................................................. 44

Sampling procedures ....................................................................................................................................................... 44

Table C1. State sampling information (included populations) .................................................................................................... 45 Table C2. State sampling information (excluded populations) .................................................................................................... 75

Appendix D ................................................................................................................. 78

Un-collapsed and unadjusted data by state ............................................................................................................ 78

Choice and Decision-Making (unadjusted, un-weighted and un-collapsed) .......................................................................... 79 Table D1. Who chose (or picked) the place where you live? (if not the family home) º .................................................... 79 Table D2. Did you choose (or pick) the people you live with (or did you choose to live by yourself)? (if not the family home) º .................................................................................................................................................................................................... 80 Table D3. Who chose (or picked) the place where you work? (among those with a job in the community) ............ 81 Table D4. Who chose (or picked) where you go during the day? ............................................................................................... 82

iii

Table D5. Do you choose (or pick) your staff? ..................................................................................................................................... 83 Table D6. Who decides your daily schedule? ....................................................................................................................................... 84

Table D7. Who decides how you spend your free time? ................................................................................................................. 85 Table D8. Do you choose what you buy with your spending money? ....................................................................................... 86 Table D9. Can you change your case manager/service coordinator if you want to? º ...................................................... 87 Work (un-collapsed) ....................................................................................................................................................................................... 88 Table D10. Was in community paid job (individual or group supported) ................................................................................ 88 Table D11. Bi-weekly hours and wag information among those with a paid individual community job ................. 89 Table D12. Bi-weekly hours and wage information among those with a paid group job in the community .......... 90 Table D13. How long has this person been working at his/her current job? (among those with a paid community job) .......................................................................................................................................................................................................................... 91 Table D14. Does this person receive paid time off (e.g., vacation, holiday, or sick time) at his/her job? (among those with a paid community job) .............................................................................................................................................................. 92 Table D15. Would you like to have a job in the community? (among those with no paid community job) ............... 93 Table D16. Is community employment a goal in this person's service plan? ........................................................................ 94 Table D17. Do you take classes, training, or do something to help you get a job, get a better job, or do better at the job you have now? .................................................................................................................................................................................... 95 Table D18. Do you go to a day program or sheltered workshop?............................................................................................... 96 Table D19. Do you volunteer? ..................................................................................................................................................................... 97 Self-Determination (un-collapsed) ........................................................................................................................................................... 98 Table D20. Is this person currently using a self-directed supports option? .......................................................................... 98 Table D21. Who makes decisions about how your budget for services is used? (among those using a self direction option) ................................................................................................................................................................................................ 99 Table D22. Do you hire and manage your staff? (among those using a self direction option) ...................................... 100 Table D23. Can you make changes to your budget/services if you need to? (among those using a self direction option) ................................................................................................................................................................................................................ 101 Table D24. Do you have enough help deciding how to use your budget/services? (among those using a self direction option) ............................................................................................................................................................................................. 102 Table D25. Do you get information about how much money is left in your budget/services? (among those using a self direction option) ................................................................................................................................................................................. 103 Table D26. Is the information easy to understand? (among those using a self direction option and who receive information about money left in their budget/services) ................................................................................................................ 104 Table D27. How often do you get information about how much money is left in your budget/services? (among those using a self direction option and who receive information about money left in their budget/services) ......... 105 Community Inclusion (un-collapsed and un-weighted) .............................................................................................................. 106

Table D28. How many times did you go shopping in the past month? ................................................................................. 106 Table D29. Who did you usually go shopping with? ∞ ................................................................................................................. 107 Table D30. How many times did you go out on errands or appointments in the past month .................................... 108 Table D31. Who did you usually go with when you went on errands or appointments? ∞ ........................................ 109 Table D32. How many times did you go out for entertainment in the past month? ....................................................... 110 Table D33. Who did you usually go with when you went out for entertainment? ∞ ..................................................... 111 Table D34. How many times did you go out to a restaurant or coffee shop in the past month? ............................... 112 Table D35. Who did you usually go with when you went to restaurants or coffee shops? ∞ ..................................... 113

Table D36. How many times did you go out to a religious service or spiritual practice in the past month? ....... 114 Table D37. Who did you usually go with to religious/spiritual practices? ∞ .................................................................... 115 Table D38. Do you participate as a member of community groups in your community? ............................................. 116

Table D39. Who did you participate in community groups with? ∞ ..................................................................................... 117 Table D40. In the past year, did you go away on vacation? ........................................................................................................ 118 Table D41. Who did you usually go on vacation with? ∞ ............................................................................................................ 119

Table D42. Are you able to go out and do the things you like to do? ...................................................................................... 120 Table D43. Do you get to do the things you like to do as much as you want to? ............................................................... 121

iv

Table D44. When you are at home, do you have enough things you like to do? ............................................................... 122 Relationships (un-collapsed and un-weighted) ............................................................................................................................... 123

Table D45. Do you have friends you like to talk to or do things with? .................................................................................. 123 Table D46. Do you have a best friend, or someone you are really close to? ....................................................................... 124 Table D47. Do you want more help to make or keep in contact with your friends? ....................................................... 125 Table D48. Can you see your friends when you want to? ............................................................................................................ 126 Table D49. Do you have other ways of talking, chatting or communicating with your friends when you cannot see them? ........................................................................................................................................................................................................... 127 Table D50. Can you see and/or communicate with your family when you want to? (among those who do not live in the family home) º ..................................................................................................................................................................................... 128 Table D51. Do you ever feel lonely? ...................................................................................................................................................... 129 Table D52. Can you go on a date if you want to? ............................................................................................................................. 130 Satisfaction (un-collapsed) ....................................................................................................................................................................... 131 Table D53. Do you like your home or where you live? ................................................................................................................. 131 Table D54. Would you like to live somewhere else?...................................................................................................................... 132 Table D55. Do you like where you work? (among those with a paid community job) ..................................................... 133 Table D56. Do you want to work somewhere else? (among those with a paid community job) ................................. 134

Table D57. Attends a day program or workshop and wants to go more, less, or the same amount of time º ..... 135 Table D58. Services and Supports help person live a good life................................................................................................. 136 Service Coordination (un-collapsed and un-weighted) ............................................................................................................... 137 Table D59. Have you met your case manager/service coordinator? ..................................................................................... 137 Table D60. Does your case manager/service coordinator ask what you want? ............................................................... 138 Table D61. Are you able to contact your case manager/service coordinator when you want to? ........................... 139 Table D62. Did you take part in the last service planning meeting? ...................................................................................... 140 Table D63. At the service planning meeting, did you know what was being talked about? ........................................ 141 Table D64. Did the service planning meeting include the people you wanted to be there? ........................................ 142 Table D65. Were you able to choose the services that you get as part of your service plan? ..................................... 143 Table D66. Do your staff come and leave when they are supposed to? ................................................................................ 144 Access (un-collapsed and un-weighted) ............................................................................................................................................. 145 Table D67. Do you have a way to get places you need to go? .................................................................................................... 145 Table D68. Are you able to get places when you want to do something outside your home, like going out to see friends, for entertainment, or to do something fun? ..................................................................................................................... 146 Table D69. Do you feel that your staff have the right training to meet your needs? (does not include responses from proxies who were staff) º .................................................................................................................................................................. 147 Health (un-collapsed) .................................................................................................................................................................................. 148 Table D70. Does this person have a primary care doctor or primary care practitioner? ............................................. 148 Table D71. Overall, how would you describe your health? ........................................................................................................ 149 Table D72. When was his/her last complete annual physical exam? .................................................................................... 150 Table D73. When was his/her last dentist exam? ........................................................................................................................... 151 Table D74. When was the last time this person had an eye exam/vision screening? .................................................... 152 Table D75. When was the last time this person had a hearing test? ...................................................................................... 153 Table D76. If female, when was her last Pap test screening? (among women 21 and older) º .................................... 154

Table D77. If female, when was her last mammogram? (among women age 40 and over) .......................................... 155 Table D78. When was the last time this person had a screening for colorectal cancer (among people age 50 and over) º ∞ ............................................................................................................................................................................................................ 156 Table D79. During the last 12 months, has this person had a flu vaccination?.................................................................. 157 Medications (un-collapsed and un-weighted) .................................................................................................................................. 158 Table D80. Does this person currently take medications to treat mood disorders, anxiety, and/or psychotic disorders? ......................................................................................................................................................................................................... 158

Table D81. Does this person currently take medications for behavioral challenges? .................................................... 159

v

Table D82. Does this person have a behavior plan? ...................................................................................................................... 160 Table D83. Has a behavior plan (among those who take medication for a behavior challenge) .................................. 161

Wellness (un-collapsed and un-weighted) ........................................................................................................................................ 162 Table D84. Do you exercise or do physical activity? ...................................................................................................................... 162 Table D85. Body Mass Index (BMI) category (BMI calculated using data on weight and height) .............................. 163 Table D86. Does this person use nicotine or tobacco products? .............................................................................................. 164 Respect and Rights (un-collapsed and unweighted) ..................................................................................................................... 165 Table D87. Do you have a key to your home? ................................................................................................................................... 165 Table D88. Do people let you know before they come into your home? .............................................................................. 166 Table D89. Can you lock your bedroom if you want to?............................................................................................................... 167

Table D90. Do people let you know before coming into your bedroom? ............................................................................. 168 Table D91. Do people read your mail or email without asking you first? ............................................................................ 169 Table D92. Can you use the phone and internet when you want to? ..................................................................................... 170 Table D93. Can you be alone with friends or visitors at your home? ..................................................................................... 171 Table D94. Are there rules about having friends or visitors in your home? ....................................................................... 172 Table D95. Do you have a place to be alone in your home? ........................................................................................................ 173 Table D96. Do your staff treat you with respect? ............................................................................................................................ 174 Table D97. Have you ever participated in a self-advocacy group meeting, conference, or event? ........................... 175 Table D98. Have you voted? (in local, state, or federal election) ............................................................................................... 176 Safety (un-collapsed and un-weighted) .............................................................................................................................................. 177 Table D99. Are there any places where you feel afraid or scared? ∞ .................................................................................... 177 Table D100. If you ever feel afraid, is there someone you can talk to? ................................................................................. 178


NCI History and Activities | 1

I. NCI History and Activities



Overview of National Core Indicators

In December 1996, the National Association of State Directors of Developmental Disabilities Services

(NASDDDS), in collaboration with the Human Services Research Institute (HSRI), launched the Core

Indicators Project (CIP). The aim of the project was to support state developmental disabilities

operating agencies in the development and implementation of performance and outcome

indicators—and related data collection strategies—so that they could measure service delivery

system performance. This effort, now called National Core Indicators (NCI), strives to provide states

with valid and reliable tools to help improve system performance and better serve people with

intellectual and developmental disabilities and their families. Moreover, NASDDDS’ active

sponsorship of NCI facilitates pooled knowledge, expertise, and resources among the states.

In 1997, 15 states convened to discuss the scope and content of a potential performance

measurement framework. Directors and staff from these 15 states worked to identify the major

domains and sub-domains of performance, indicators, measures, and data sources. The original 61

indicators, developed through a consensus process, were intended to provide a system-level

“snapshot” of how well each state was performing. The states were guided by a set of criteria that

was designed to select indicators that were:

1. Measurable

2. Related to issues the states had some ability to influence

3. Important to all individuals they served, regardless of level of disability or residential setting.

During this initial phase, data collection protocols were developed and field-tested, including a face-

to-face Adult Consumer Survey (for individuals age 18 and older who were receiving services) and a

mail-out Adult Family Survey (for families who have an adult family member living at home). Seven

states volunteered to pilot test the indicators. Eight additional states served on the Steering

Committee.

Since the initial field test, NCI has expanded its scope to include outcomes of services for children

with intellectual and developmental disabilities and their families. In addition, NCI continues to

develop and refine the indicators and expand state participation. For more information about NCI

states, technical reports, and other resources, please visit http://www.nationalcoreindicators.org.

http://www.nationalcoreindicators.org/



State Participation

During the 2016-17 data collection cycle, 46 states, the District of Columbia and 22 sub-state entities

participated in NCI. State participation is entirely voluntary, and the participating states are shown in

the chart below. NCI states do not participate in all surveys each year.

Figure B. NCI State Participation 2016-17

The Core Indicators

The Core Indicators are the standard measures used across states to assess the outcomes of services

provided to individuals and families. Indicators address key areas of concern, including employment,

respect/rights, service planning, community inclusion, choice, and health and safety. An example of a

Core Indicator would be, “The proportion of people who have a paid job in the community.” To see

the entire list of Core Indicators, please visit http://www.nationalcoreindicators.org/indicators.

Each survey instrument is designed to measure certain Core Indicators. While most indicators

correspond to a single survey question, a few refer to clusters of related questions. For example, the

indicator that measures Community Inclusion (the proportion of people who regularly participate in

everyday integrated activities in their communities) is measured by several survey questions that

ask about several separate community activities.

http://www.nationalcoreindicators.org/indicators



The current set of performance indicators includes approximately 100 consumer, family, system, and

health and safety outcomes—outcomes that are important to understanding the overall health of

public developmental disabilities agencies. Indicators are organized across five broad domains:

Individual Outcomes; Health, Welfare and Rights; Staff Stability and Competency; Family Outcomes;

and System Performance. Each domain is broken down into sub-domains (see Figure C on the

following page). Three data sources are used to assess outcomes: the Adult Consumer Survey, three

Family Surveys, and a Staff Stability Survey (e.g., staff turnover).

The indicators have remained generally consistent over the last several years and thus can be used to

analyze system-level trends over time. However, the NCI program is a dynamic effort that allows for

measures to be added, dropped, or changed to reflect current and future priorities of participating

states.

The data collection tools used to gather indicator data are regularly refined and tested to ensure they

remain valid, reliable, and applicable to current issues within the field. Details on the design and

testing of this tool are provided in the next section of this report.

Domains and Sub-Domains

The following table lists the domains and sub-domains covered by the NCI Adult Consumer Survey

indicators.



Figure C. Adult Consumer Survey Indicators: Domains and Sub-Domains

Domain Sub-Domain Concern Statement

Individual Outcomes

Work People have support to find and maintain community integrated employment.

Community Inclusion, Participation and Leisure

People have support to participate in everyday community activities.

Choice and Decision-Making

People make choices about their lives and are actively engaged in planning their services and supports.

Self Determination People have authority and are supported to direct and

manage their own services.

Relationships People have friends and relationships.

Satisfaction People are satisfied with the services and supports they

receive.

Health, Welfare, and Rights

Safety People are safe from abuse, neglect, and injury.

Health People secure needed health services.

Medications Medications are managed effectively and appropriately.

Wellness People are supported to maintain healthy habits.

Respect/Rights People receive the same respect and protections as

others in the community.

System Performance


Service coordinators are accessible, responsive, and support the person's participation in service planning.

Access Publicly funded services are readily available to

individuals who need and qualify for them.

How NCI Data Are Used

The Core Indicators provide information for quality management and are intended to be used in

conjunction with other state data sources, such as risk management information, regional level

performance data, results of provider monitoring processes, and administrative information

gathered at the individual service coordination level. States typically use the indicator data to inform

strategic planning, produce legislative reports, and prioritize quality improvement initiatives. Some

states use NCI as a data source for supplemental performance measures in their home and

community-based services (HCBS) waiver quality management systems and include the information



in support of evidentiary reports to the Centers for Medicare & Medicaid Services (CMS). Many states

share the indicator data with stakeholder groups such as Quality Councils and use the stakeholder

feedback to help set priorities and establish policy direction. It is also important to note that states do

not use the information in a punitive way to sanction service providers, nor do they use the results to

remediate individual issues (unless specifically requested by the participant or required by law as in

the case of suspected abuse, neglect, or mistreatment).

For more information on how to use these data for quality improvement, please see this handbook:

Using National Core Indicators for Quality Improvement Initiatives.1

Caution and Limitations

This report does not provide benchmarks for acceptable or unacceptable levels of performance.

Rather, it is up to each state to decide whether its score or percentage is an acceptable performance

level. States that fall into the “Significantly Below NCI Average” tier on any scale or indicator are not

necessarily underperforming; instead, this placement indicates only that the state’s scale score or

indicator percentage is significantly lower than the average of all states—where “significantly”

means “not due to chance.” The results tables throughout this report display states’ scores relative to

one another and show which states tend to have similar results. Notably, the difference between a

“Significantly Below NCI Average” state and the average across the other states may be very small,

and it is up to public managers, policy-makers, and other stakeholders to decide whether a state’s

result relative to the NCI Average suggests that changes or further investigation are necessary.

Moreover, the NCI Average should be interpreted as a multi-state “norm” that describes average

levels of performance or satisfaction across the participating states. In some instances there are few

significant differences among the states; this denotes that the majority of states are performing

similarly. Instances in which several states’ results are especially high (considerably above the

average level) indicate the levels of performance or satisfaction achieved in those states might define

a level of performance that may serve as a guidepost for other states.

Data from previous years are not presented in this report. Comparisons of results from year to year

should be made with caution: even slight changes in wording or response options of certain

questions may affect comparability of results from one year to the next; the mix of participating

states differs slightly each year and may affect the NCI Averages; and states draw new samples each

year rather than following the same group of individuals.

1 Located on the National Core Indicators website: www.nationalcoreindicators.org → Resources →Technical Reports

https://www.nationalcoreindicators.org/upload/core-indicators/using_data_cleanedDLH_%28003%29_1_10_18.pdf


Methodology | 7

II. Methodology


Methodology | 8

Administration

A key principle of NCI is the importance of gathering information directly from service recipients. The

indicators are meant to apply to all individuals receiving services, regardless of disability type, and NCI

administration protocols dictate that every person selected into the sample is given an opportunity to

respond and no one is prescreened or predetermined to be unable to respond. Moreover, survey

questions should not be marked “not applicable” on the basis of a person’s level of ability.

Information for the Adult Consumer Survey is collected via a direct conversation with the person

receiving services. Additionally, background information is primarily collected from the individual’s

record. Section I questions, which pertain to personal experiences and require subjective responses, may

only be answered by the individual receiving services. Section II of the survey—which consists of

objective questions on the individual’s involvement in the community, their choices, respect and rights,

and their access to services—allows for the use of “proxy” or other respondents who know the individual

well (such as a family member or friend).

Proxy Respondents

Studies have found that the greatest discrepancies between individual and proxy responses occur when

the information being collected is subjective (i.e., related to how a person feels; proxies would be aware

of the correct answers only if the individual had previously expressed his or her feelings).2 Questions

relating to observable behaviors tend to have higher levels of agreement between the proxy and the

individual. By excluding proxies, a large percentage of individuals (most of whom are unable to respond)

would be unrepresented in the data. Thus, the NCI project determined at the outset that proxy

respondents would be used, though only for specific questions and only in situations where the

individual surveyed either could not effectively communicate with the surveyor or chose to have a proxy

respondent.

As mentioned, the use of proxy respondents for the NCI tool is limited to questions in Section II, which

relates to observable and/or measurable items: Community Inclusion, Choices, Respect/Rights, and

Access to Needed Services. These questions deal with everyday occurrences on which others may reliably

report. State records are also used to report objective data on an individual’s health status and exam

history as well as employment status; this information is collected in the Background Section of the

survey.

2 Magaziner, Jay, Sheryl Zimmerman, Ann L. Gruber-Baldini, J. Richard Hebel, and Kathleen M. Fox. "Proxy Reporting in Five Areas of

Functional Status Comparison with Self-Reports and Observations of Performance." American Journal of Epidemiology 146.5 (1997): 418-28.


Methodology | 9

NCI has taken steps to ensure that the responses gathered are as accurate as possible. First, it is

important to make the questions as accessible as possible to increase participation by all individuals. NCI

attempts to make the language in the Adult Consumer Survey as easy to understand as possible and

includes suggested rephrasing for questions that may be nuanced or more difficult to understand. The

NCI surveys are also routinely revised based on feedback from states, self-advocates, families, and

surveyors who are administering the tool. Secondly, it is important to establish a set of standards for

proxy respondents. NCI aims to increase the reliability of proxy responses by allowing only those people

who know the individual well (family, friends, staff, etc.) to serve as proxy respondents. To avoid conflict,

service coordinators are not allowed to respond as proxies. Further, if both the individual and a proxy

respondent answer a question, the individual’s answer is recorded so long as his/her answer is deemed

reliable by the surveyor. Surveyors also keep track of who responds to each question—the individual or

the proxy—and the proxy’s relationship to the individual.

Surveyor Training

States employ a variety of individuals to conduct the face-to-face meetings for the NCI Adult Consumer

Survey. To avoid conflict, surveys cannot be administered by the individual’s service provider, relative,

personal case manager, staff member, or other close contact. Given this constraint, states often use

university students, state staff, private contractors, advocacy organizations, and individuals with

disabilities and their families to conduct the surveys.

HSRI and NASDDDS staff provide two sets of trainings each year: a more comprehensive training for new

states and states with mostly or all new surveyors and a web-based refresher training for surveyors who

have recently participated in the Adult Consumer Survey. Typically, instruction takes the form of a “train-

the-trainer” session, whereby staff from the state’s lead agency and/or those managing the surveyors

provide training to new hires throughout the year. The goal of trainings is to provide a standardized

training to ensure uniform application of the survey.

Trainings consist of a detailed review of the survey tool and an overview of general surveying techniques.

Trainers are given a packet of standardized materials to be used at the on-site training sessions. An

additional session reviews the process for entering survey data in the Online Data Entry Survey

Application (ODESA).

Criteria for Exclusion of Responses

All individuals selected in the survey sample are given an opportunity to participate in a face-to-face

meeting. There are no prescreening procedures. Exclusion of responses occurs at the time of data

analysis by HSRI, based on the criteria described below. There is no threshold of number of answers to be

given in order to consider a survey complete.


Methodology | 10

Surveys are excluded from analysis of questions occurring in Section I if:

1) The surveyor indicated that the individual receiving supports did not respond validly to questions

in Section I.

2) All questions in Section I were missing or marked n/a or Don’t Know.

Surveys are excluded from analysis of questions occurring in Section II if:

1) The individual receiving supports was marked as the respondent to all questions in Section II but

Section I was deemed invalid (for one of the reasons above).

2) No questions were answered in Section II.

The total number of valid adult consumer surveys administered in 2016-17 was 21,625.

Responses for Section I

Only individuals receiving services may answer questions in Section I. As shown in Figure D, 73.7% of

individuals in the total 2016-17 sample were able to respond to Section I of the direct meeting; valid

responses by state ranged from 35.9% to 96.7%.

Responses for Section II

Section II allows for multiple respondents who know the individual well (e.g., family, friend, support

worker) to provide answers. If an individual’s responses were excluded from Section I in the final

analysis, responses from Section II were also excluded if the individual was the only respondent to

Section II. For 2016-17, the valid response rate (proxies included) to Section II was 99.1%.

Sampling

Each state is instructed to attempt to complete a minimum of 400 surveys with a random sample of

individuals over the age of 18 who are receiving at least one publicly funded service besides case

management. A sample size of 400 guarantees valid comparisons to be made across states with a 95%

confidence level and a margin of error of +/- 5%, no matter how large the service population size. A 95%

confidence level and a margin of error of +/-5% is mandatory for each state’s sample to be included in

this report. Most states sample more than 400 individuals to account for refusals and surveys that may be

deemed invalid. Figure D presents the number of surveys completed by state. A more detailed description

of each state’s sampling strategy can be found in Appendix C.


Methodology | 11

Why do we ask states to collect 400 surveys?

When NCI asks states to pull a representative sample of 400 surveys, the aim is to compile a dataset that can

provide a high level of statistical accuracy. This means that the goal is to create a dataset that can be used to

make accurate inferences about the entire population of people using public services in each state. In order

to do this, we ask each participating state to pull a sample that reaches the 95% confidence level/5% margin

of error threshold; for most states, this sample size is 400.

A sample size that reaches the 95% confidence level/5% margin of error threshold means that if you

sampled that number of people from the same population several times, 95% of your responses would fall

within 5% above or below the actual percentages. So using this sample size we can assume relative accuracy.

The larger the sample size, the smaller the margin of error and the greater the accuracy.

Statistical accuracy is largely a function of sample size. The larger the sample size, the greater the statistical

accuracy of results (lower margin of error). However, gains in statistical accuracy are not proportional to

increases in sample size. There are diminishing returns. For example, for a large total population, if the

sample size increases by 100, and then by another 100, and then by another 100, the statistical accuracy

might increase by 5%, then by 3%, then by 1%.

As a result, the 400 sample size gives a statistical accuracy of ±5% and is considered the most “cost effective”

sample size for large-scale surveys. Meaning, you could sample more people, but the increase in statistical

accuracy those “extra” people would provide is minimal, and not worth the money.

To play around with this, take a look at http://www.raosoft.com/samplesize.html NCI requires a margin of

error at most 5% and a 95% confidence level. As you increase the population size (in our case, this

represents the service population), you’ll see that the recommended sample size does not increase

proportionally.

http://answersresearch.com/wp-content/uploads/2015/06/Answers-Research-Magic-400-062315.pdf

http://www.raosoft.com/samplesize.html

http://answersresearch.com/wp-content/uploads/2015/06/Answers-Research-Magic-400-062315.pdf


Methodology | 12

Figure D. Valid Surveys and Response Rates by State 2016-17

% Valid Answers to Section I

% Valid Answers to Section II

Number of Valid Surveys

Completed

% of Total Sample Size (N)

AL 90.2% 99.7% 387 1.8%

AR 75.8% 98.8% 401 1.9%

CO 96.7% 100.0% 403 1.9%

CT 82.8% 98.9% 372 1.7%

DE 35.9% 100.0% 395 1.8%

DC 67.3% 95.4% 409 1.9%

FL 61.4% 99.9% 781 3.6%

GA 64.0% 99.8% 462 2.1%

HI 54.5% 100.0% 406 1.9%

ID 95.3% 100.0% 412 1.9%

IL 72.7% 99.7% 379 1.8%

IN 82.2% 100.0% 742 3.4%

KS 72.6% 99.3% 404 1.9%

KY 71.5% 100.0% 427 2.0%

LA 73.0% 99.8% 415 1.9%

ME 88.9% 100.0% 400 1.9%

MI 64.9% 99.6% 505 2.3%

MN 93.2% 94.5% 2199 10.2%

MS 65.6% 100.0% 400 1.9%

MO 94.1% 99.0% 418 1.9%

NE 53.2% 100.0% 723 3.4%

NV 94.5% 99.8% 402 1.9%

NH 80.4% 99.8% 412 1.9%

NJ 57.8% 99.8% 402 1.9%

NY 77.3% 100.0% 437 2.0%

NC 67.9% 100.0% 530 2.5%

OH 72.7% 99.9% 704 3.3%

OK 58.8% 100.0% 400 1.9%

OR 76.0% 100.0% 412 1.9%

PA 73.7% 100.0% 708 3.3%

RI 70.2% 99.7% 366 1.7%

SD 78.2% 96.2% 342 1.6%

TN 74.4% 100.0% 496 2.3%

TX 74.5% 99.8% 2064 9.6%

UT 67.0% 99.8% 416 1.9%

VT 62.3% 100.0% 802 3.7%

VA 92.2% 100.0% 328 1.5%

WI 66.8% 99.5% 559 2.6%

WY 74.8% 99.7% 328 1.5%

Total 73.7% 99.1% 21,548 100.0%


Data Analysis | 13

III. Data Analysis


Data Analysis | 14

Data Management and Analysis

HSRI coordinates the NCI data management and analysis. States enter data into the Online Data Entry

Survey Application (ODESA) system;3 HSRI staff subsequently download the data into an SPSS data

file. This data file is then “cleaned” (reviewed for completeness and compliance with standard NCI

formats) and invalid responses are eliminated. Files from individual states are then merged into a

single SPSS file. The merged file from 2016-17 was used for all analyses in this report.

Below is a summary of the statistical procedures used to analyze the Adult Consumer Survey data.

Weighting

Statistically, the term “average” refers to a calculated central or middle value of a set of numbers. In

NCI reports, we use “NCI average” to demonstrate the typical performance of all the states that

conducted the survey. In previous years, the NCI average was calculated as the simple arithmetic

mean of all state means (an approach known as “average of averages”). This year, the approach has

been enhanced to consider the relative numbers of people receiving services through participating

states’ systems. Beginning this year, the NCI averages contained in this report are “weighted” means;

their calculations reflect the relative population sizes of participating states, as well as the sample

sizes.

Applying statistical weights to calculations of “weighted” means allows a state that provides services

to a larger number of people (but is represented in the data by a sample of the same size as other

states) to have a higher influence on the overall NCI average—that is, the state’s contribution to the

NCI average is proportional to its service population (taking into account its sample size). The

weights used in calculations for this report were developed using participating states’ number of

completed surveys and their total service population sizes—that is, the total number of people

receiving services.

When a state’s sampling strategy is to identify and interview survey participants using simple

random sampling or proportional stratified random sampling, each completed survey in the state

gets assigned the same weight. In some cases, when a state’s sampling strategy departs markedly

from simple random or proportional (e.g., Texas; see Appendix C for more information on Texas’

sampling strategy), it may be necessary for completed surveys in the state to be assigned different

weights based on which sampling strata they correspond to. For example, if a state intentionally

oversampled one or more of its sub-populations or geographical regions to be disproportionately

represented in the survey sample, it may be necessary to develop and apply different weights for

3 Beginning in 2013-14, all states are required to enter NCI data into ODESA.


Data Analysis | 15

surveys completed in those sub-populations or regions. The procedure for calculating weights is

similar but uses the number of completed surveys and service population sizes in each stratum (i.e.,

sub-population or region) separately.

Please note that MN’s sample was not weighted for oversampling.

Significance Testing

Starting this survey cycle (2016-17), for each of the non-adjusted items, each state’s percentage was

compared to the weighted NCI average (described above), and the differences between the two were

tested for both statistical significance as well as effect sizes. Effect sizes are used in addition to

statistical significance because statistical significance of a state’s result depends, in part, on the size

of the state’s sample: the larger the sample, the more likely it is that even a small difference will be

found statistically significant. A statistically significant difference for a state with a large sample size,

in and by itself, does not necessarily mean there is a practically significant difference. The inclusion

of effect sizes as a new criterion allows us to present “meaningfully significant” results, which take

into consideration the magnitude or size of the differences.

The state percentages in this report are categorized into one of the three classes:

1. Significantly above the NCI average, where the difference between the state’s

percentage and the weighted NCI average a) was in favor of the state, b) was statistically

significant (i.e., p <.01), and c) met the effect size criterion (i.e., Cohen’s d > 0.2, see below

for details);

2. Within the NCI average range, where the difference between the state’s percentage and

the weighted NCI average was a) not statistically significant (i.e., p ≥.01), or b) did not

meet the effect size criterion (i.e., Cohen’s d ≤ 0.2);

3. Significantly below the NCI average, where the difference between the state’s

percentage and the weighted NCI average a) was in favor of the NCI average, b) was

statistically significant (i.e., p <.01), and c) met the effect size criterion

(i.e., Cohen’s d > 0.2);

For all unadjusted outcome data, tables are formatted so that all states are listed in descending order

of percentage and are categorized as statistically significantly above the NCI Average, within the

range of the NCI Average, and significantly below the NCI Average. No symbol was used for the state’s

percentage being “within” the NCI average range due to lack of statistical significance (i.e., p ≥.01).


Data Analysis | 16

Technical Details

The comparisons were done through one sample T-tests using the weighted NCI average as the

benchmark. A conservative cut-off point (alpha) of p < .01 was used to detect statistically significant

differences. Effect sizes are calculated using the formula: Cohen's d= 2𝑡

√𝑑𝑓 . A cutoff point of Cohen’s

d= 0.2 was chosen for the effect size to be considered “meaningfully significant,” following the

standard interpretation offered by Cohen (1988) that Cohen’s d of 0.8 = large, 0.5= moderate, and

0.2= at least a small effect.

Outcome Adjustment

Outcome adjustment or “risk adjustment” is a statistical process used to control for differences in the

individual characteristics of people who completed the NCI Survey across states. This procedure

allows for more legitimate state comparisons by effectively “leveling the playing field.” This analysis

helps account for the fact that states have different eligibility definitions for services and may have

samples with different characteristics. Only those indicators that are likely to be affected by

individual characteristics were adjusted (e.g., indicators in the Choice sub-domains). For example, a

person who has limited mobility and is older may be less likely to choose where they live. On the

other hand, such characteristics should not affect whether a person has friends or staff who are

respectful.

The indicators are risk-adjusted using the following characteristics: age, level of intellectual

disability, level of mobility, and whether any behavioral supports are needed to prevent self-injury,

disruptive, or destructive behavior. Risk adjustment was only done on Choice items for this report.

In prior years, Community Inclusion items were also risk adjusted; however, due to the change in

reporting structure, those items are no longer risk adjusted. Beginning in 2014-15, primary means of

expression, health, and mental illness/psychiatric diagnosis were not used as risk-adjustors since

they were not significant predictors of outcomes in the survey questions. In this report, results for

indicators that were adjusted are labeled as such, and unadjusted results for these indicators are

presented in Appendix D.

Outcome adjustment was performed using logistic regression for the choice indicators and linear

regression for the choice indicators. This statistical analysis produces a predicted value that one

would expect to observe given the individual’s characteristics. The state’s average observed rate (i.e.,

the state average prior to risk-adjustment) was adjusted by the average predicted rate to produce the

risk-adjusted rate. As a result of this procedure, state differences in adjusted values reflect true state

differences rather than differences due to the demographic or characteristic makeup of state service

populations.


Data Analysis | 17

Scale Development

Scales are used to combine responses from multiple similar questions into one variable. In this way

we can measure an overarching concept rather than specific elements of the concept. For the Adult

Consumer Survey, scales are used for the Choice and Decision-Making sub-domain. To create a scale,

statistical tests are required to ensure that the multiple items share common properties. Scales were

created using factor analysis.

The Choice and Decision-Making sub-domain was divided into two scales: Life Decisions and

Everyday Choices; additionally, one Community Inclusion scale was produced by adding four of the

items. Scales were created by averaging the items within each category.4

Higher scale scores represent higher levels of choice. The scales were also risk-adjusted. Each scale’s

reliability was assessed using Cronbach’s alpha. The scales had an adequate level of internal

consistency and reliability.

Collapsing Data

For many of the indicators in this report, only “yes” responses are analyzed and reported for state to

state comparisons and significance testing. However, there are several indicators for which the “yes”

response was collapsed with the middle response (for example, a “sometimes” response, or a “some

input” response) to form the “yes” indicator category which was then analyzed and subsequently

reported. For example, for choice indicators, responses “person chose” and “person had some input”

were collapsed into one “yes, person chose” category. For those indicators, the two responses were

considered to be equally indicative of a positive outcome. Appendix B contains the collapsing and

recoding rules for all indicators and risk-adjustment variables.

4 Indicators used for scales are listed in the corresponding sections.


Appendices | 18

IV. Appendices

• A: Survey changes from 2015-16 to 2016-17

• B: Recoding instructions

• C: Sampling procedures

• D: Unadjusted and un-collapsed data


Appendices | 19

Appendix A

Survey changes from 2015-16 to 2016-17


Appendices | 20

Table A1. Survey Changes 2015-16 to 2016-17

Question Question in 15-16 Question in 16-17 Explanation of change Additional information

BI-3 Zip code (where person resides)

Zip Code (where person resides) *note that the zip code is not stored in database, it is converted into a rural/urban designation

Added the ability to convert to median income and added a note that zip code will not be stored.

Wanted the ability to look at median income based on where people live.

BI-4 Date of Birth (mm/dd/yyyy) Date of Birth (mm/yyyy) Only asking for month and year of birth

Minimizes PII

BI-5 Gender 1. Male 2. Female

Gender 1. Male 2. Female 3. Other

Added “Other” as a response option

Not everyone identifies as male or female; this gives everyone an opportunity to respond in the way they identify

BI-13 If yes, what level of ID? NA-No ID Diagnosis Mild ID Moderate ID Severe ID Profound ID Unspecified Level of ID (diagnosis of ID, but level of ID is unknown) ID diagnosis unknown

If yes, what level of ID? NA-No ID Diagnosis Mild ID Moderate ID Severe ID Profound ID Unspecified Level of ID (Individual has been diagnosed with ID, but level of ID is unknown) ID diagnosis unknown (only use this response option if BI-12 is marked “99 Don’t Know”)

Added language to Unspecified level and ID diagnosis unknown; Clarifying instructions

BI-15 What health conditions are noted in this person’s record?

What health conditions are noted in this person’s record? Added responses: -Oral health or dental problems that cause ongoing pain or difficulty eating -Sleep apnea

Added response options:

BI-28 If female, when was her last Pap test screening? (A Pap test is used to check women for cancer of the cervix.) Check ONE. Will be reported for females age 18 and over.

If female, when was her last Pap test screening? (A Pap test is used to check women for cancer of the cervix.) Check ONE. Will be reported for females age 21 and over.

Age changed from 18 to 21


Appendices | 21


BI-30 When was the last time this person had a screening for colorectal cancer (either sigmoidoscopy or colonoscopy)?

When was the last time this person had a screening for colorectal cancer (sigmoidoscopy, colonoscopy, or fecal occult blood test (FOBT) on the schedule below)?

Added fecal occult blood test; changed the schedule; and made this question a check all that apply

BI-37 How long has this person lived in his/her current home?

How long has this person lived in his/her current residence?

Changed “home” to “residence”; added a Not applicable-homeless response option

BI-38 How would you characterize the place where this person lives?

How would you characterize the place where this person lives?

Changed ICF/ID to ICF/IID; Added or “spouse” to option 9; Added “or crisis bed placement” to option 13

BI-39 Is the person’s residence owned or controlled by a provider agency? (‘Controlled’ means the agency providing services is also connected to the property by lease or ownership. This includes foster care or host home settings as defined in BI-33.)

Is the person’s residence owned or controlled by a service provider? (‘Controlled’ means the service provider is also connected to the property by lease or ownership. This includes foster care or host home settings as defined in BI-38.If the person changed their service provider agency, would they need to move? If they would respond “YES” to this question, as the residence is considered provider owned or controlled.)

Provider agency was changed to service provider and definitions were expanded upon.

BI-40 If this person lives in an Intermediate Care Facility for persons with ID/DD (ICF/ID), a specialized institutional facility or a group home, is it publicly or privately operated?

If this person lives in a group home, an Intermediate Care Facility for persons with ID/DD (ICF/IID) or specialized institutional facility, is it publicly or privately operated?

Group home was added to the question; Definition was added to “public” response option

BI-41 Is the person named on the lease?

Is the person named on the lease, deed, or other legally enforceable rental agreement?

Added deed, or other legally enforceable agreement; Changed responses to reflect lease or deed; other legally enforceable rental agreement


Appendices | 22


BI-43 Has this person ever lived (longer than a year) in an institutional setting such as a nursing home or ICF?

Has this person ever lived (longer than a year) in an

institutional setting (for example a nursing home or

large ICF)?

Slight wording changes. Response option changes: “ICF, Public” changed to “State hospital or state developmental center for people with IDD” Added: “Other (such as children’s residential settings, psychiatric facility)”

BI-51 Is this person enrolled in school?

Is this person enrolled in school?

Added a “No” response

BI-55 What type of job does this person have?

What type of job does this person have?

Changed from a check one to a check all responses that describe work done regularly by the individual

BI-56 Which of the following services/supports funded by the state (or county) agency does this person receive?

Which of the following services/supports funded by the state (or county) agency does this person receive?

Definitions added to response options

BI-57 Does this person receive either ICF/ID or Medicaid HCBS Waiver or State plan funding?

What is the funding source for supports for this person?

Response options changed

BI-59 Is this person currently using a self-directed supports option? “Self-directed” or “participant-directed” supports options offer individuals (and their representatives, including family members) the opportunity to manage some or all of their services. They may hire and fire their own support workers and/or control how their budget is spent.

Is this person currently using a self-directed supports option? Is this person currently using a self-directed/participant-directed supports option and has a financial management service (also called a fiscal agent, fiscal intermediary, intermediary service organization, etc.)? These options offer individuals (and their representatives) the opportunity to manage some or all of their services. For example, they may hire and fire their own support workers and/or have control over their budget or services.

Changed/added to description

BI-64 Whose responsibility was it to obtain the Background Information for this survey?

Who provided information for the Background Information for this survey?

Wording changed and added “support coordinator” to response option 1

Q1 Do you like your home or where you live? (Do you like living here?)

Do you like your home or where you live? (Do you like living here?)

Added instructions about how to code Q2


Appendices | 23


Q7 Do you have a paid job in the community?

A community job refers to paid work - either

competitive or supported employment (includes both

individual and group employment, such as a work crew or enclave). It does not include work done in facility-based settings like sheltered workshops. It also does not

include volunteer work.

Do you have a paid job in the community? A community job refers to paid work - either competitive or supported employment (includes both individual and group employment, such as a work crew or enclave). It does not include work done in facility-based settings like sheltered workshops. It also does not include volunteer (unpaid) activities.

Wording changed from “volunteer work” to “volunteer (unpaid) activities”; added direction to response option

Q11 Do you go to a program or workshop (program or

center where other people with disabilities work)?

Do you go to a day program or sheltered workshop (program or center where other people with disabilities spend their days)?

Wording changed; definitions for interviewer were added

Q12 Would you like to go more or less to the workshop (program or center)?

I’d like to know about the amount of time you spend at the day program or sheltered workshop. We have 4 choices to choose from: (Interviewer reads options)

Wording and response options changed.

Q13 Do you take classes, training, or do something to help you get a job or a better job?

Do you take classes, training, or do something to help you get a job, get a better job or

do better at the job you have now?

Wording changed

Q18 Do you have a best friend, or someone you are really close to? (Is there someone you can talk to about personal things?) Can include staff or family member

ADDED QUESTION

Q20 Can you see your friends when you want to? (Can you make plans with your friends when you want to?)

Can you see your friends when you want to? (Can you meet-up with your friends when you want to?)

Wording change and directions added on how to code Q21

Q21 If no, why can’t you see your friends when you want to?

If no, why can’t you see your friends when you want to?

NA response changed to does not have friends or can see friends when s/he wants to (or does not want to)

Q22 Do you have other ways of communicating with your friends when you cannot see them? (Like over the phone and through email?)

Do you have other ways of talking, chatting or communicating with your friends when you cannot see them? (Like over the phone, and through email, texting, messaging, etc.?)

Wording changed; NA response changed to say does not have friends


Appendices | 24


Q25 Can you see and/or communicate with your

family when you want to? (Can you pick the times you

see them? Does someone help you make plans to see

them?)

Can you see and/or communicate with your

family when you want to? (Can you pick the times you

see them? Does someone help you make plans to see

them?)

Instructions for interviewer were added; NA option changed to add lives with family

Q26 Are you able to go out and do the things you like to do?

Are you able to go out and do the things you like to do?

Instructions added to the don’t know response on how to code Q27

Q27 Do you get to do the things you like to do as much as you like?

Do you get to do the things you like to do as much as you want to?

Wording changed

Q30 Can you be alone with friends or visitors, or no friends visit your home?

Can you be alone with friends or visitors, or no friends visit your home?

NA response option changed to add instructions on how to code Q31

Q31 Are there rules about having friends or visitors in your home?

Are there rules about having friends or visitors in your home?

Changes in response option 2

Q33 Have you met your case manager/service coordinator?

Have you met your case manager/service coordinator?

NA Response changed to provide instructions to code Q34

Q35 Are you able to contact your case manager/service coordinator when you want to? (If you call or email, do they get back to you?)

Are you able to contact your case manager/service coordinator when you want to? (If you call or email, do they get back to you?)

Question was moved

Q36 Do you have a service plan? (Do you have a list of services your case manager/service coordinator will help you get?)

Do you have a service plan? (Do you have a list of services your case manager/service coordinator will help you get?)

Don’t know response changed to provide instructions on how to answer Q37-40

Q37 Usually, people have the services they get reviewed every year. This usually happens at a service planning meeting with your case manager/service coordinator. Did you take part in the last service planning meeting?

Usually, people’s services get reviewed or looked over once a year people have the services they get reviewed every year. This usually happens at a service planning meeting with your case manager/service coordinator. Did you take part in the last service planning meeting?

Wording changed; NA response changed to provide instruction on how to code Q38; Don’t know response changed to provide instruction on how to code Q38-39

Q41 Do you have staff who help you? (For example, at your home, job, or day program)

Do you have staff who help you? (For example, at your home, job, or day program)

Don’t know response changed to provide instructions on how to code Q42-43


Appendices | 25


Q43 Do your staff come and leave when they are supposed to? (Do they show up on time? Do they show up when they say they will?)

Do your staff come and leave when they are supposed to? (Do they show up on time? Do they show up when they say they will? Do they leave when they are supposed to?)

Changed text to add do they leave when they are supposed to

Q48 How often did you go shopping in the past month?

How many times did you go shopping in the past month?

Wording changed; response options changed; instructions on how to code Q49 added

Q49 Who did you usually go with?

Who did you usually go shopping with?

Wording changed

Q50 How often did you go out on errands or appointments in the past month? (Examples: bank, post office, hairdressers or barber)

How many times did you go out on errands or appointments in the past month? (Examples: bank, post office, hairdressers or barber)

Wording changed; response options changed; instructions on how to code Q51 added


Who did you usually go with when you went on errands or appointments?

Wording changed

Q52 Do you participate in community groups or other activities in your community? (This includes church groups or any other formal or informal community group.)

Do you participate as a member of community groups in your community? (This includes church groups, book clubs, knitting groups or any other formal or informal community group in an inclusive setting.)

Wording changed. Question moved

Q53 Who did you go with? Who did you participate in community groups with?

Wording changed

Q54 How often did you go out for entertainment in the past month? (Examples: go to the movies or attend plays, concerts, sporting events)

How many times did you go out for entertainment in the past month? (Examples: go to the movies or attend plays, concerts, sporting events, going out dancing)

Wording changed; response options changed to provide instructions on how to code Q55


Who did you usually go with when you went out for entertainment?

Wording changed

Q56 How often did you go out to a restaurant or coffee shop in the past month?

How many times did you go to a restaurant or coffee shop in the past month?



Who did you usually go with when you went to restaurants or coffee shops?

Wording changed


Appendices | 26


Q58 How often did you go out to a religious service or spiritual practice in the past month? (Examples: church, synagogue, study, or other place of worship)

How many times did you go out to a religious service or spiritual practice in the past month? (Examples: church, synagogue, study, or other place of worship)


Q59 Who did you go with? Who did you usually go with to religious or spiritual practices?

Wording changed

Q60 In the past year, did you go away on vacation?

In the past year, did you go away on vacation?

Response options changed to provide instructions on how to code Q61

Q61 Who did you go with? Who did you usually go on vacation with?

Wording changed

Q66 Who chose (or picked) the place you work? (Did you help make the choice?)

Who chose (or picked) the place you work? (Did you help make the choice?)


Q69 Did you choose (or pick) your case manager/service coordinator?

Can you change your case manager/service coordinator if you want to?

Wording changed; response options changed

Q70 Do you choose (or pick) your staff? (Do you get to interview them? Did you get to meet different people or was someone assigned to you? Could you request someone different?)

Do you choose (or pick) your staff? (Do you get to interview them? Did you get to meet different people or was someone assigned to you? Could you request ask to change to someone different?)

Wording changed

Q71 Do you have a key to your home?

Do you have a key to your home? Other Respondent: Does this person have a key to his/her home?

Added question for other respondent; removed NA as a response option

Q72 Can you lock your bedroom if you want to?

Can you lock your bedroom if you want to? Other respondent: Can this person lock his/her bedroom if he/she wants to?

Added question for other respondent

Q74 Have you voted? (In a local, state, or federal election?)

Have you voted? (In a local, state, or federal election?) Other respondent: Has this person ever voted in a local, state or federal election?


Q75 Do you need any of these additional services? Please note type of service or support below.

Do you need any of these additional services? Please note type of service or support below. Other Respondent: Does this person need any of these additional services?

Added question for other respondent; Response options changed


Appendices | 27


Q76 Do you feel that your staff have the right training to meet your needs?

Do you feel that your staff have the right training to meet your needs?


Q78 Do you exercise or do physical activity? (Moderate physical activity is an activity that causes some increase in breathing or heart rate. Examples include but are not limited to brisk walking, swimming, bicycling, cleaning, and gardening.)

Do you exercise or do physical activity? (Moderate physical activity is an activity that causes some increase in breathing or heart rate. Examples include but are not limited to brisk walking, swimming, bicycling, cleaning, and gardening.) Other respondent: Does this person exercise or do moderate physical activity?


Q79 From Pre-Survey Form and Background Info: Does person use self-directed supports?

From Pre-Survey Form and Background Info: Does person use self-directed supports?

Response options changed to provide instructions on how to answer Questions 80-87

Q81 Do you participate in decisions about how to use your supports budget, hiring staff, or managing the services you get? (Do you self-direct your supports?)

Do you participate in decisions about how to use your supports budget, hiring staff, or managing the services you get? (Do you self-direct your supports?)

Response options changed to add instructions on how to code Q82-88

Q85 Do you get information about how much money is left in your budget/services?

Do you get information about how much money is left in your budget/services?

Response options to add instructions on how to code Q86

Q86 If yes, is the information easy to understand?

If yes, is the information easy to understand?

Added respondent

Q87 How often do you get information about the how much money is left in your budget/services?

Added question


Appendices | 28

Appendix B

Rules for Recoding and Combining Variables to Compute Core Indicators

Please note, an expanded guide for variable reporting (including information on how data are

filtered) is available upon request through HSRI. Please email Dorothy at [email protected] for

more info.

mailto:[email protected]


Appendices | 29

Table B1. Background Information Variables Used to Adjust Outcomes

Table label in body of report Updated for 16-17 Variable name used in calculation

Demographics

Urban/Rural BIZIP

Age (Variable used for risk adjustment)

AGE Survey asks for month and year of birth. Age calculated.

Age Category

Age_categ Categorical variable created for the following categories:

• 18 thru 22

• 23 thru 34

• 35 thru 54

• 55 thru 74

• 75 and above.

• Unknown

Gender

GENDER In 16-17 added “other” response option

Marital Status MARSTAT

Person is a parent

PARENT15_1 PARENT15_2 PARENT15_3 PARENT15_99

Race

RACE Categorical variable created using variables: RACE151 RACE152 RACE153 RACE154 RACE155 RACE156 RACE157 RACE1599 “Two or more races” variable created by identifying the cases that have at least two races reported

Type of Residence

16-17: Changed ICF/ID to ICF/IID; Added or “spouse” to option 9; Added “or crisis bed placement” to option 13

TYPEHOME16

Length of residence 16-17: Changed “home” to “residence”; added a Not applicable-homeless response option

RESIDLEN16

Person’s residence owned or controlled by provider agency

16-17: Provider agency was changed to service provider and definitions were expanded upon.

CONTPROV16


Appendices | 30


Person named on lease

Added deed, or other legally enforceable agreement; Changed responses to reflect lease or deed; other legally enforceable rental agreement

LEASE16

Person owns his or her own home OWNHOME15

Diagnosis of ID DIAGMR

Level of ID (Variable used for risk adjustment)

16-17 added language to clarify the “unspecified” and “unknown” response options.

LEVELMR08

Other Disabilities

DXMIPDMD13 DXMIPDAD13 DXMIPDBC13 DXMIPDPD13 DXMIPDOTH13 DXAUTISM0813 DXCP13 DXBI13 DXNEURO13 DXCHEMDP13 DXDOWN0813 PRWISYND13 DXFETALALCH15 DXVISION15 DXHEARING15 DXNONE13

Health variables 16-17 added Sleep Apnea and Oral Health or Dental problems

HCCARVAS HCDIAB HCCANCER HCHIBP HCHICHL HCDYSPH15 HCPRESULC HCALZHEIM15 HCORALDENTAL16 HCSLEEPAPNEA16 HCOTHER

Preferred Means of Expression EXPRESS15

Language LANGUAGE

Mobility (Variable used for risk adjustment)

MOBILITY08

Support to Manage Self Injurious Behavior (Variable used for risk adjustment)

SELFINJ08

Support to Manage Disruptive Behavior (Variable used for risk adjustment)

DISBEH08

Support to Manage Destructive Behavior (Variable used for risk adjustment)

UNCPBEH08


Appendices | 31


Guardianship LGLSTAT15

Relationship of guardian GUARDRELAT15


Appendices | 32

Table B2. Outcome Variables -- Rules for Analysis


Sub-domain: Choice and Decision-making

Proportion of people who reported they chose or had some input in choosing where they live if not living in the family home (Adjusted Variable)

CHOSHOME2 Recoded variable in which response options are: 0 no 1 had at least some input

Proportion of people who reported they chose or had some input in choosing their roommates if not living in the family home (Adjusted Variable)

HOUSEMATES2 Recoded variable in which response options are: 0 no 1 had at least some input

Proportion of people reported to have a job in the community and who reported they chose or had some input in choosing their job* (Adjusted Variable) * reported for those who were determined to have a paid community job from Background section

16-17: Response options changed CHOSJOB2 Recoded variable in which response options are: 0 no 1 had at least some input

Proportion of people who reported they have a day program or activity and chose or had some input in choosing their day program or activity (Adjusted Variable)

CHOOSDAY2 Recoded variable in which response options are: 0 no 1 had at least some input

Proportion of people who reported they choose or help decide their daily schedule (Adjusted Variable)

SCHEDULE2 Recoded variable in which response options are: 0 no 1 had at least some input

Proportion of people who reported they choose or help decide how to spend free time (Adjusted Variable)

FREETIME2 Recoded variable in which response options are: 0 no 1 had at least some input

Proportion of people who reported they chose or help decide what to buy with their spending money (Adjusted Variable)

CHOOSBUY2 Recoded variable in which response options are: 0 no 1 had at least some input

Proportion of people who reported they can change their case manager/service coordinator

16-17: Wording changed; response options changed

CHANGECM2 Recoded variable in which response options are: 0 no 1 had at least some input

Proportion of people who reported they chose or were aware they could request to change their staff

16-17: Wording changed CHOOSSTAF2 Recoded variable in which response options are: 0=no 1 chose staff or were aware they could request to change staff


Appendices | 33


Sub-domain: Work

Proportion of people who were reported to have a job in the community* * reported for those who were determined to have a paid community job from Background section

PAIDCOMMJOB2 Variable created indicating those who have at least one of the following marked “yes”

1) PAIDCOMMJOBIND15 2) PAIDCOMMJOBGRP15

Creates and makes DK missing

Proportion of people who were reported to have a job in the community by type of employment support* * reported for those who were determined to have a paid community job from Background section

commwork_type_Individual commwork_type_Group Variables created to identify types of paid jobs in the community and whether public support is received for that job. Variables created using 1) PAIDCOMMJOBIND15 and PCJISERV15 2) PAIDCOMMJOBGRP15

Average number of bi-weekly hours by type of community employment support

Filter separately for commwork_type_Individual=1 commwork_type_Individual=2 and commwork_type_Group=1 Then compare means with the variable PCJIHOURS15 or PCJGHOURS15 (for commwork_type_group=1)

Average bi-weekly gross wages by type of community employment support

Filter separately for commwork_type_Individual=1, commwork_type_Individual=2 and commwork_type_Group=1 Then compare means with the variable PCJIWAGES15 or PCJGWAGES15 (for commwork_type_group=1)

Average bi-weekly hourly wage by type of community employment support

Filter separately for commwork_type_Individual=1, commwork_type_Individual=2 and commwork_type_Group=1 Then compare means with the variable PCJIHWAGE or PCJGHWAGE (for commwork_type_group=1) PCJIHWAGE and PCJGHWAGE were computed by dividing the wage in two-week period by the hours earned in two-week period

Average length of employment in current job for people who were reported to have a job in the community

Calculated variable using JOBYRS and JOBMOS to equal total months


Appendices | 34


Proportion of people who were reported to have a job in the community and received paid time off

PDTIMEOFF2 Recoded variable in which response options are: 0 'no' 1 'receives paid time off.

Proportion of people who were reported to have a job in the community in the four most common types of employment

16-17: Changed from a check one to a check all responses that describe work done regularly by the individual

JOBTYPE

Proportion of people who were reported not to have a job in the community and who reported they would like a job in the community* (“yes” responses only) *reported for those who were determined to not have a community job from Background section

LIKEAJOB2 Recoded variable in which response options are: 0 no, in-between 1 yes.

Proportion of people who were reported to have community employment as a goal in their service plan

IEGOAL2 Recoded variable in which response options are: 0 'no' 1 'integrated employment in service plan'.

Proportion of people who report taking classes or training to help get a job, or get a better job

16-17: Wording changed TRAINING2 Recoded variable in which response options are: 0 'no' 1 ‘yes'.

Proportion of people who reported going to a day program or regular activity

Wording changed; definitions for interviewer were added

HAVEDAYACT2 Recoded variable in which response options are: 0 'no' 1 ‘yes'.

Proportion of people who reported doing volunteer work

VOLUNT2 Recoded variable in which response options are: 0 'no' 1 ‘yes'.

Sub-domain: Self Determination

Proportion of people who were reported to be using a self-directed supports option

16-17: Changed/added to description SELFDRCT2 Recoded variable in which response options are: 0 'no' 1 ‘yes'.

Proportion of people self-directing who reported participates in decisions about using budget, hiring staff or managing services (“yes” responses only)

16-17: Response options changed to add instructions on how to code Q82-88

BUDGDEC2 Recoded variable in which response options are: 0 no 1 yes.


Appendices | 35


Proportion of people self-directing who reported they make decisions about how budget for services is used

WHOBUDDEC16

Proportion of people self-directing who reported they hire and manage their staff

HIRESTAFF2 Recoded variable in which response options are: 1 Yes 0 No, maybe

Proportion of people self-directing who reported they have enough help deciding how to use their budget/services

ENUFHELP2 Recoded variable in which response options are: 1 Yes, have enough help 0 No, want more help or maybe, not sure.

Proportion of people self-directing who reported they receive information about money that’s left in budget

ENUFINFO2 Recoded variable in which response options are: 1 Yes No, maybe, not sure.

Proportion of people self-directing who report they get enough information about their budget/services and information is easy to understand

INFOUNDERST2 Recoded variable in which response options are: 1 Yes 0 No, maybe, not sure.

Proportion of people who regularly get information about their budgets

16-17: ADDED QUESTION HOWOFTENINFO16

Sub-domain: Community Inclusion, Participation and Leisure

Proportion of people who report being able to go out and do the things they like to do (yes responses only)

GOOUT2 Recoded variable in which response options are: 0 No, in-between 1 Yes.

Proportion of people who report being able to go out and do the things they like to do enough (yes responses only)

16-17: Wording changed GOOUTENOUGH2 Recoded variable in which response options are: 0 No 1 Yes.

Proportion of people who report that they have enough things to do at home (yes only)

HOMETODO2 Recoded variable in which response options are: 0 Not enough, in the middle 1 Yes

Proportion of people who reported going shopping at least once in the past month

16-17: Wording changed SHOPPING15_2 Recoded variable in which response options are: 0 no, 0 times 1 at least once in past month.

Proportion of people who reported going errands at least once in the past month

16-17: Wording changed ERRANDS15_2 Recoded variable in which response options are: 0 no, 0 times 1 at least once in past month.


Appendices | 36


Proportion of people who reported going entertainment at least once in the past month

16-17: Wording changed ENTERTAN15_2 Recoded variable in which response options are: 0 no, 0 times 1 at least once in past month.

Proportion of people who reported going out to eat at least once in the past month

16-17: Wording changed EATOUT15_2 Recoded variable in which response options are: 0 no, 0 times 1 at least once in past month.

Proportion of people who reported going to religious services or spiritual practice at least once in the past month

16-17: Wording changed RELIGION15_2 Recoded variable in which response options are: 0 no, 0 times 1 at least once in past month.

Proportion of people who reported participating in community groups (yes response only)

16-17: Wording changed; question moved

Commact2 Recoded variable in which response options are: 0 no 1 yes

Proportion of people who reported having gone on vacation in the past year (yes only)

VACATION2 Recoded variable in which response options are: 0 no 1 yes

Sub-domain: Relationships

Proportion of people who reported they have friends who are not staff or family members (“yes, not staff or family” only)

HASFRNDS2 Recoded variable in which response options are: 0 no, only staff or family 1 yes, not staff or family.

Proportion of people who reported they have a best friend (may be staff or family)

Back in survey 16-17

BESTFRIEND2 Recoded variable in which response options are: 0 No, does not have a best friend 1 Yes, has a best friend.

Proportion of people who reported they have family they see and the support needed to see their family when they want to (“yes” responses only)

16-17: Instructions for interviewer were added; NA option changed to add lives with family

SEEFAMLY2 Recoded variable in which response options are: 0 no, sometimes 1 yes, whenever wants to, or chooses not to see family.

Proportion of people who reported they have friends (may be staff or family) and the support needed to see their friends when they want to (“yes” responses only)

16-17: Wording change SEEFRNDS2 Recoded variable in which response options are: 0 No, often unable to see friends, Sometimes cannot see friends when wants 1 Yes.


Appendices | 37


Proportion of people who want more help to keep in contact with friends

FRNDSHELP2 Recoded variable in which response options are: 0 No, 1 Yes, maybe.

Reasons why can’t see friends 16-17: NA response changed to does not have friends or can see friends when s/he wants to (or does not want to)

WHYSEEFRNDS15

Proportion of people who reported they had other ways of communicating with friends (‘yes, but not often’ and ‘yes, often’ responses)

16-17: Wording changed; NA response changed to say does not have friends

FRNDSCOMM2 Recoded variable in which response options are: 0 No, Sometimes 1 Yes

Proportion of people who reported they can go on a date if they want to or can date with some restriction (“yes, can date” responses)

CANDATE2 Recoded variable in which response options are: 0 No, Yes but with restrictions 1 Yes or is married living with partner

Proportion of people who reported they feel lonely at least half the time (“often” responses)

LONELY2_15 Recoded variable in which response options are: 0 no, not often, or sometimes 1 yes, often.

Sub-domain: Satisfaction

Proportion of people who reported they like their home (“yes” responses only)

LIKEHOME2 Recoded variable in which response options are: 0 no, in-between 1 yes.

Proportion of people who report disliking where they live for reasons indicated.

DONTLIKE15_1 DONTLIKE15_2 DONTLIKE15_3 DONTLIKE15_4 DONTLIKE15_5 DONTLIKE15_6 DONTLIKE15_7 DONTLIKE15_10 DONTLIKE15_11 DONTLIKE15_OTHER DONTLIKE15_99

Proportion of people who reported they would like to live somewhere else (“yes” responses only)

HOMEELSE2 Recoded variable in which response options are: 0 no, in-between 1 yes.

Proportion of people who were reported to have a job in the community and who reported they like where they work (“yes” responses only)* * reported for those who were

LIKEJOB2 Recoded variable in which response options are: 0 no, in-between 1 yes.


Appendices | 38


determined to have a paid community job from Background section

Proportion of people who were reported to have a job in the community and who reported they want to work somewhere else* (“yes” responses only) * reported for those who were determined to have a paid community job from Background section

JOBELSE2 Recoded variable in which response options are: 0 no, in-between 1 yes.

Proportion of people who reported that they want to go to their day program less (“less” responses only)

16-17: Wording and response options changed.

LESSDAYACT16

Proportion of people who reported that services and supports were helping them live a good life (“yes” responses only)

GOODLIFE2 Recoded variable in which response options are: 0 No, in between 1 Yes.

Sub-domain: Service Coordination

Proportion of people who reported they met their service coordinator/case manager (“yes” responses only)

KNOWSCM2 Recoded variable in which response options are: 0 maybe, no 1 yes.

Proportion of people who reported their service coordinator/case manager asks them what they want (“yes” responses only)

ASKIMPOR2 Recoded variable in which response options are: 0 sometimes, no 1 yes.

Proportion of people who reported their service coordinator/case manager gets back to them right away (”yes” responses only)

16-17: Question was moved GETSBACK2 Recoded variable in which response options are: 0 No, sometimes 1 Yes.

Proportion of people who reported taking part in the last service planning meeting (“yes” responses only)

16-17: Wording changed MSPLAN2 Recoded variable in which response options are: 0 No 1 Yes, or had option but chose not to.

Proportion of people who reported that they understood what was discussed in last service planning meeting (“yes” responses only)

PLANUNDRSTND2 Recoded variable in which response options are: 0 No, in-between 1 Yes.

Proportion of people who reported that service planning meeting included people the person wanted to be there (“yes” responses only)

PEOPLEWANT2 Recoded variable in which response options are: 0 No, in-between 1 Yes.

Proportion of people who reported that they were able to choose the services that were received as part of service plan (“yes” responses only)

PLANCHOOSE2 Recoded variable in which response options are: 0 No, had some input 1 Yes


Appendices | 39


Proportion of people who reported support workers come and leave when they are supposed to (“yes” responses only)

16-17: Changed text to add “do they leave when they are supposed to?”

SWORKCOME2 Recoded variable in which response options are: 0 No, maybe not sure 1 Yes.

Sub-domain: Service Coordination

Proportion of people who reported they always they have a way to get places when they need to go somewhere (“yes” responses only)

TRANSPORT2 Recoded variable in which response options are: 0 No almost never, sometimes 1 Yes, almost always.

Proportion of people who reported they always they have a way to get places when they want to do something for fun (“yes” responses only)

GETPLACES2 Recoded variable in which response options are: 0 No almost never, sometimes 1 Yes, almost always.

Proportion of people who reported their staff have adequate training to meet their needs (“yes” responses only)

16-17: Response options changed STFTRN2 Recoded variable in which response options are: 1 yes 0 no, maybe.

Proportion of people who report needing additional services

ADDSERVEDSCCM ADDSERVEDRESFAM ADDSERVEDTR ADDSERVEDJOBS13 ADDSERVEDDAY ADDSERVEDEDU ADDSERVEDHC ADDSERVEDDC13 ADDSERVEDHOUS ADDSERVEDRES ADDSERVEDSOC ADDSERVEDCOMM ADDSERVEDENV ADDSERVEDBENE ADDSERVEDOTH

Sub-domain: Health

Proportion of people who were reported to have a primary care doctor

PRIMDOC2_woDK Removes DK responses and Recoded variable in which response options are: 0 'doesn’t have a primary doc' 1 'has a primary doc'.

Proportion of people who were reported to be in poor health (“poor health” response only)

Health_poor Recoded variable in which 0 ‘excellent or very good’ or ‘fairly good’ 1 poor


Appendices | 40


Proportion of people who were reported to have had a complete physical exam in the past year (“within the past year” responses)

physexam2 Recoded variable in which response options are: 0 'not in past year' 1 'in past year'.

Proportion of people who were reported to have had a dental exam in the past year (“within the past year” or “within the past six months” responses)

dentvis2 Recoded variable in which response options are: 0 'not in past year' 1 'in past year'.

Proportion of people who were reported to have had an eye exam in the past year (“within the past year” responses)

EYEEXAM2 Recoded variable in which response options are: 0 'not in past year' 1 'in past year'.

Proportion of people who were reported to have had a hearing test in the past five years (“within the past five years” responses)

HEARTEST2 Recoded variable in which response options are: 0 'not in the past 5 years' 1 'hearing test in the past 5 years'.

Proportion of women who were reported to have had a Pap test in the past three years (“within the past three years” or less responses)

New for 16-17: only analyzed for females over age 21

PAPTEST2 Recoded variable in which response options are: 0 more than 3 years 1 in past 3 years.

Proportion of women over 40 who were reported to have had a mammogram test in the past two years (“within the past two years” or “within past year” responses)

MAMMO2 Recoded variable in which response options are: 1 'in last 2 years' 0 'more than 2 years'.

Proportion of people 50 or over who were reported to have had a colorectal cancer screening in the past year (“within the past year” responses)

16-17 changed how question is asked. Added fecal occult blood test; changed the schedule; and made this question a check all that apply

CCSCREEN161 CCSCREEN162 CCSCREEN163 CCSCREEN165

Proportion of people who were reported to have had a flu vaccine in the past year (“within the past year “responses)

FLUVACC2 Recoded variable in which response options are: 0 'not in the past year' 1 'flu vaccine in the past year'.

Sub-domain: Wellness

Proportion of people who take at least one med for mood disorder, anxiety, psychotic disorder, behavioral challenges

Totmeds Recoded variable using MEDS15 and MEDBEHAV 0 'No meds' 1 'At least one kind'.


Appendices | 41


Proportion of people who were reported to take medication for at least one of the following: mood disorders, anxiety, psychotic disorders

meds_mood Recoded variable in which response options are: 0 'No meds for mood, anxiety, psychotic' 1 'Takes meds for mood, anxiety, psychotic'.

Number of meds taken for at least one of the following: mood disorders, anxiety, psychotic disorders

NUMMEDS

Proportion of people who were reported to take medication for behavior challenges

meds_behav Recoded variable in which response options are: 0 'No meds for behavior challenges' 1 'Takes meds for behavior challenges'.

Number of meds taken for behavior challenges

NUMBEMEDS

Proportion of people who were reported to engage in regular physical activity at least sometimes

PhysAct_yes Recoded variable in which response options are: 1 yes, regularly at least 3 times per week or sometimes 1 or 2 times per week 0 no.

Proportion of people in each BMI category

BMI_categ BMI variable created using formula: BMI=(Weight/(height in inches*height in inches))*703 Creates categories for BMI 1 'underweight' 2 'normal' 3 'overweight' 4 'obese'.

Proportion of people who were reported to chew or smoke tobacco

TOBACCO2 Recoded variable in which response options are: 0 'no' 1 'uses tobacco products'.

Proportion of people reported to have a behavior plan

BehPlan_yes Recoded variable in which response options are: 0 'No' 1 'Yes'.

Proportion of people who take meds for behavior challenges who have a behavior plan

New 15-16 BehPlan_yes Recoded variable in which response options are: 0 'No' 1 'Yes'.


Appendices | 42


Sub-domain: Relationships

Proportion of people who reported people always knock before entering home (“yes” responses only)

ENTERHM2 Recoded variable in which response options are: 1 yes 0 sometimes, no.

Proportion of people who reported people always knock before entering bedroom (“yes” responses only)

ENTERBRM2 Recoded variable in which response options are: 1 yes 0 sometimes, no.

Proportion of people who reported they could be alone at home with visitors (“yes” responses only)

ALONEGST2 Recoded variable in which response options are: 1 yes 0 no.

Proportion of people who reported they have enough privacy at home

BEALONE2 Recoded variable in which response options are: 1 yes 0 no.

Proportion of people who reported people never read their mail without permission (“no” responses only)

MAILOPEN2 Recoded variable in which response options are: 1 yes 0 no.

Proportion of people who reported they can use phone and internet without restriction (“yes without restriction” response only)

USEPHONE2 Recoded variable in which response options are: 1 yes 0 no.

Proportion of people who have a place to be alone (can have time to self) (yes responses only)

BEALONE2 Recoded variable in which response options are: 1 yes 0 no.

Proportion of people who reported their staff treat them with respect (“yes” responses only)

STAF2 Recoded variable in which response options are: 1 yes 0 no, sometimes, some staff.

Proportion of people who reported they have attended a self-advocacy event, or chose not to (“yes” and “chose not to” responses)

SELFADVO2 Recoded variable in which response options are: 0 no 1 had opportunity, yes.


Appendices | 43


Proportion of people who report having a key to their home (“yes” responses only)

16-17: Removed NA as a response option

KEY2 Recoded variable in which response options are: 1 Yes 0 No, maybe not sure.

Proportion of people who report they can lock their bedroom (“yes” responses only)

LOCK2 Recoded variable in which response options are: 1 Yes 0 No, maybe not sure.

Proportion of people who report having voted (“Yes” and “had opportunity” only)

VOTE2 Recoded variable in which response options are: 1 Yes or had opportunity to register to vote but chose not to 0 No.

Proportion of people who report that there are rules about having friends or visitors (“yes” responses only)

16-17: Changes in response option 2 VISITRULES2 Recoded variable in which response options are: 0 No 1 Yes

Sub-domain: Safety

Proportion of people who report that there is at least one place where he/she feels afraid.

Afraid_yes Recoded variable in which response options are: 0 'No' 1 'Yes, either in home, day program, work, community, transport, or other'.

Proportion of people who reported they have someone to go to for help if they feel scared (“yes” responses only)

AFRAIDHELP2 Recoded variable in which response options are: 0 no, maybe 1 yes.


Appendices | 44

Appendix C

Sampling procedures

Please note, Table C2 includes detailed sample information regarding populations states excluded

from the sample.


Appendices | 45

Table C1. State sampling information (included populations)

State Sampling procedure Name of program

included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the

population served by the

program

Total number of

people served in

this program waiver

Total population

AL A random sample of 600 is

pulled from our ID and LAH

waivers.

ID Waiver HCBS 1915 (c) Over 18 5500

6,000 LAH Waiver HCBS 1915 (c) Over 18 500

AR Proportional stratified sample

based on CM provider

Waiver HCBS 1915 (c) Adults over age 18 with

ID/DD

4000

4,000

CO Colorado is using a stratified

random sample of all adults 18

and over, enrolled in the

Developmental Disabilities

Waiver, the Supported Living

Services Waiver or receiving

Supported Living Services

through state funding, who

receive at least one service not

including case management.

The sample will be stratified by

the data team at HCPF based

on the total number of clients

served by each

agency/Community Center

Board (CCB).

HCBS-DD HCBS 1915 (c) All adults age 18 and over,

enrolled in HCBS-DD who

receive at least one service

other than case

management.

3247

6,658

HCBS-SLS HCBS 1915 (c) All adults age 18 and over,

enrolled in HCBS-SLS who


other than case

management.

2769

State-SLS State General

Fund

All adults age 18 and over,

enrolled in State-SLS who


other than case

management.

642

CT CT DDS does a random sample

pull from all individuals

meeting the criteria of age 18

or over as of June 30, 2016 and

DDS Waiver Population HCBS 1915 (c) Individuals in one of the

three HCBS adult waivers

DDS manages

10,145

10,145


Appendices | 46


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

receiving at least one funded

service in addition to Case

Management. All individuals

meeting these criteria are

pulled from our central

database (CAMRIS) and then

we use Excel to assign each a

random number. The records

are then sorted by that random

number and the first 2400 are

used for the randomly selected

survey recipients, from which

we try to interview at least 400.

Non-Waivered

(including ICF)

DDS Funding Individuals who are not

enrolled in an HCBS waiver

but are receiving at least

one funded service in

addition to Case

Management

DE Sample was randomly pulled

from individuals receiving

services from the Delaware

Division of Developmental

Disabilities. Sample included

HCBS waiver participants

receiving case management

services.

HCBS Waiver HCBS 1915 (c) Adults age 21 and older who

are receiving residential

support services

1,070

1,070

DC Random sample of people who

receive service coordination

and at least one service.

Waiver HCBS People who receive service

coordination and at least

one service

Approx. 1687

Approx. 2,008


Appendices | 47


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

People must also affirmatively

consent to participate in NCI.

ICF ICF People who receive service

coordination and live in an

ICF.

Approx. 321

FL We obtain the most current list

of all Support Coordinators

working in the state and their

caseloads. We sample at least

two individuals per Support

Coordinator, including both

CDC+ and the DD Waiver. The

list of individuals is stratified by

type, so that we sample at least

20% of the CDC+ population.

iBudget Waiver CDC

and DD are included

HCBS 1915 (c) Age 3 and up for the

processes but NCI is only

completed for individuals

age 18 and over

30,000

30,000

GA Randomly sample 175

providers from across the state,

stratified by size (caseload),

sampled proportionately. Then

randomly sample 400

individuals, stratified by region

and selected proportionately

from the list of providers.

New Options Waiver

(NOW)

HCBS 1915 (c) Adults over age 18 with

ID/DD

About 28% of total

11,000 3080

Comprehensive

Supports Waiver

(COMP)


ID/DD

About 60% of total

6,600

State Funded Services

(SFS)--

State Funds Adults over age 18 with

ID/DD

About 12% of total

1,320

HI A random sample of 25% per

island/ county of all adults 18

years and over receiving at

HCBS Waiver HCBS 1915 (c) Adults over age 18 with

ID/DD

2,406 in the state

2,406


Appendices | 48


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

least once service in addition to

case management.

ID Stratified sample selection of

1200 individuals

HCBS Waiver HCBS 1915 (c) Adults over age 18 with

ID/DD

4700 in the state

4,700 State Plan

IL Using payment requests for the

1st half of the fiscal year prior to

the survey year, unduplicated

count of individuals served in

the adult waiver is identified.

From that list of individuals

receiving services, a random

group of 400 is selected for

participation in the NCI

process. This is the same

sample of individuals for whom

data is gathered for reporting

as part of our waiver

performance measures.

Adults with

Developmental

Disabilities Waiver

HCBS 1915 (c) Adults over the age of 18

with ID/DD

20,263

20,263

IN

The actual sample size will vary

throughout the course of a

year, as waiver participation

changes with additions and

departures from the waiver

Community Integration

and Habilitation Waiver

HCBS 1915 (c) Individuals 18 years and

older actively receiving

waiver services in

accordance with Indiana’s

capped waiver support

program.

8,834

21,622


Appendices | 49


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

program. On a quarterly basis,

Indiana shall calibrate the

targeted sample size with

actual waiver participation

numbers and adjust the sample

size accordingly. Indiana shall

select Individuals for survey

solicitation in a manner

stratified by waiver type and

applied to the waiver

population as of July 1, 2016.

Surveys shall be apportioned

based on the total number of

Individuals who reside in each

District. The stratification of

the 742 surveys shall be

determined by applying the

CMS approved Raosoft®

sampling calculator (5% margin

of error, 95% confidence level,

50% response distribution)

independently to the Family

Supports (FS) waiver and

Community Integration and

Habilitation (CIH) waiver

populations. The percentage of

waiver participants by waiver

type residing in each BDDS

District shall be multiplied by

Family Supports Waiver HCBS 1915 (c) Individuals 18 years and

older actively receiving

waiver services in

accordance with Indiana’s

uncapped waiver support

program.

12,788


Appendices | 50


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

the total number of targeted

surveys to establish a

proportioned sample

population. Indiana shall

eliminate those selected for

prior NCI survey from the

potential pool of Individuals,

then randomly select

Individuals for survey

solicitation from each BDDS

District.

Indiana shall conduct its

selection based on the relative

population of CIH and FS

waivers as of June 30, 2016.

Specifically, Indiana shall:

1. Stratify the surveys by waiver

type: CIH waivers (369

Individuals); FS waivers (373

Individuals); based on the

number of “Active” waivers as

of June 30, 2016.

2. Allocate a proportionate

percentage of the total 369 CIH

waivers to be included to each

BDDS district based on each

district’s active CIH waivers.

3. Allocate a proportionate

percentage of the total 373 FS


Appendices | 51


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

waivers to be included to each

BDDS district based on each

district’s active FS waivers.

4. Calculations in steps 2 and 3

above shall be rounded up or

down so the total project does

not exceed 742 surveys.

5. Gross up numbers for fallout

and anticipated unsuccessful

contact attempts.

KS Stratified sample by CDDO

(there are 27). CDDO sample is

proportional.

IDD/DD HCBS 1915(c) Adults over age 18 with

ID/DD

9,000

9,000

KY Data source: State data system

by funding stream. Sampling

procedure: stratification

determined by proportion of

funding streams represented.

Random number generation

determines selection.

SCL- HCBS 1915 (c) 4279

9,654 Michelle P – HCBS 1915 (c) 4577

State General Funds 430

ICF ICF/ID 368

LA Total raw statewide census is

determined based on age

(adult/18 or older). Random

sample is drawn from

statewide census.

New Opportunities

Waiver

HCBS 1915 (c) Individuals with ID/DD age

18 and older

7905

14,818

Supports Waiver HCBS 1915 (c) Individuals with ID/DD age

18 and older

1682


Appendices | 52


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

Residential Options

Waiver

HCBS 1915 (c) Individuals with ID/DD age

18 and older

13

ICF/DD (Public/private

large and small)

ICF/DD Individuals with ID/DD age

18 and older

4273

Individual & Family

Supports

State-funded Individuals with ID/DD age

18 and older

945

ME Random selection of 1,600

consumers to produce a final

sample of 400 surveys. Person

needs to receive one other


Management services.

includes the 2 DD

waivers plus an

estimate of people

receiving “other”.

5500

5,500

MI A random sample of all adults

18 and over, Medicaid and

Non-Medicaid, receiving at

least one service in addition to

case management (service

outside of respite).

A sample of 2500 will be drawn

from which we anticipate

collecting 500 completed

surveys.

All Medicaid and state-

funded I/DD services

(includes waiver

services and Medicaid

State Plan)

HCBS 1915 (c),

HCBS 1915 (i),

State Plan

Adults over age 18 with

ID/DD

Approximately

34,000

34,000


Appendices | 53


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

MN Random sample of people with

I/DD – receiving case

management and one other

home or community-based

service including state plan

home care services

DD Waiver HCBS 1915 (c) } Have DD or a related

condition Choose home and

community-based service }

Meet MA income and asset

requirements } Have a plan

of care that ensures health

and safety } Have

anticipated costs through

the HCBS waiver program

that do not exceed the cost

of services that are or would

be provided in an institution

or health care facility } Meet

all other program

requirements

16,770

65,574

ICF/DD State plan } Have a developmental

disability or a related

condition; } Require a 24-

hour plan of care; } Require

active treatment; } Meet MA

income and asset

requirements; and } Request

ICF/DD services.

1715

Home Care State plan Assessed need 23,900


Appendices | 54


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

CAC HCBS 1915 (c) } Be under age 65 } Be

certified disabled } Choose

home and community-based

service } Meet MA income

and asset requirements }

Have a plan of care that

ensures health and safety }

Have anticipated costs

through the HCBS waiver

program that do not exceed

the cost of services that are

or would be provided in an

institution or health care

facility } Meet all other

program requirements

442


Appendices | 55


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

CADI HCBS 1915 (c) } Be under age 65 } Be















21,277


Appendices | 56


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

Brain Injury HCBS 1915 (c) } Be under age 65 } Be















1470

MS IMPAQ International will draw

a random sample of 1,200

adults apart of the 1915(c) IDD

Mississippi Medicaid Waiver

from eLTSS. These adults will

be 21 years or older, according

to Mississippi’s definition of an

“adult.”

IDD Waiver HCBS 1915 (c) Adults over age 21 with IDD 2,400

2,400


Appendices | 57


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

MO A simple random sample of 400

Comprehensive Waiver

participants age 18 or older

who receive at least one

authorized service in addition

to support coordination

Comprehensive Waiver HCBS 1915 (c) The participant must meet

ICF/ID level of care and must

be at risk of needing ICF/ID

services if waiver services

are not provided.

Population of those served

in this waiver is varied-many

receive residential services,

some live with their families

and receive support

services, some are

supported in individualized

support living, and others

are supported in a group

home setting.

8,000 in the state

8,000

NE The State will randomly select

an initial sample size of 800

adult consumers. The sample

will be drawn by proportion of

the consumer population by

geographic area of the State of

Nebraska i.e. percent of

consumers in Central, Eastern,

Northern, Southeast,

Southwest and Western

Nebraska.

If the initial sample of 800 does

Adult Comprehensive

Waiver


ID/DD

3487

4,283

Adult Day Waiver HCBS 1915 (c) Adults over age 21 with

ID/DD

796

The individuals

surveyed that resided

in ICFs moved from

EFHs into ICFs after the

randomized sample

was drawn.


Appendices | 58


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

not yield the necessary 400

completed adult consumer

surveys, an additional sample

will be drawn in increments of

200 consumers determined by

percentage from the

geographic districts0 noted in

paragraph 1.

NV I/T staff created a random

sampling system, stratified by

regional center to reflect our

population. We are still

sampling consumers who

receive service coordination

from the state plus a service,

either Jobs and Day Training

(JDT) and/or Supportive Living

Arrangements (SLA).

Supportive Living

Arrangement

HCBS 1915 (c)

and some state

funding if

applicable


ID/DD

2149

6,683

Jobs and Day Training HCBS 1915 (c)

and some state

funding if

applicable


ID/DD

2466

TOTAL

UNDUPLICATED

2068

NH Proportional sample by region

of those 21 and over in the DD

waiver and the ABD waiver.

Developmental

Disability Waiver

HCBS 1915 (C) Adults over age 21 with

ID/DD

Approximately

5,500

5,850

Acquired Brain

Disorder Waiver

HCBS 1915 (C) Adults over age 22 with ABD Approximately 350


Appendices | 59


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

NJ Random sample of all adults 21

and over receiving at least one

service in addition to case

management/Support

Coordination during the prior

12 months.

Supports Program HCBS 1115 (i) Adults over age 21 with

ID/DD who are DDD eligible,

Medicaid eligible, and not

enrolled on any other DDD

waiver, who have received

at least one service in

addition to Support

Coordination in the last 12

months.

3,800

16,350

Community Care

Waiver


IDD/DD who are DDD

eligible and meet the

specified level of care for

ICF/ID and specific Medicaid

requirements regarding

income and resources, who

have received at least one


Management in the last 12

months.

10,800


Appendices | 60


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

Supports-Program

Ready/Interim


ID/DD who are DDD eligible,

Medicaid eligible, and are

eligible for the Supports

Program but have not been

enrolled yet because their

providers are still in the

process of becoming

Medicaid eligibility, who

have received at least one

service in addition to

Support Coordination/ Case

Management in the last 12

months.

1,750

NY Random sample of the entire

service population of adults

over 18 receiving at least one

service besides case

management. The sample

includes people getting

residential, day and family

support services as well as

people who are self-directing

their services. Individuals must

bill for services within the last 6

months.

Supported

Employment (SEMP)

HCBS Waiver 10815

102,707

Work-Related Services HCBS Waiver 16843

Day Habilitation HCBS Waiver 50538

Respite HCBS Waiver 41386

Housing Supports HCBS

Waiver/ICF

40722


Appendices | 61


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

NC Proportional stratified random

sampling by LME-MCO and

Developmental Center of adults

18 and over who received at

least one I/DD service in

previous fiscal year

All Medicaid and state-

funded I/DD services

(includes ICF; waiver

services, Medicaid

State Plan Personal

Care; and state funded

services)

Approx. 18,000

adults

18,000

OH Anyone over 18 years old who

is receiving at least one service

in addition to case

management (excluding family

support case management)

administered by a county

board, or lives in an ICF, has the

potential to be part of the

random sample.

The first 700 individuals will be

part of the random sample.

Waiver HCBS 1915 (c) 27,126

42,304 ICFID HCBS 1915 (c) App 6,000

Local supports Local supports Adults who are receiving at

least one service in addition

to case management

(excluding family

support and case

management) administered

by a county board

9178

OK A representative random

sample of 400 is pulled from

state provided spreadsheet of

Community Waiver HCBS 1915 (c) Adults and Children with 2943

5,079

ID/DD


Appendices | 62


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

all adults receiving HCBS

services in Oklahoma. This

includes a representative

sample of individuals from the

following five waiver groups:

In-Home Supports Waiver

(IHSW); Community Waiver-

Residential, Community

Waiver-Nonresidential,

Homeward Bound Waiver

(HBW), and individuals recently

transitioning from state-run

institutions. In addition to the

random sample of 400, the

FY17 NCI Adult Consumer

Survey will also be

administered to all Transitions.

Beginning in FY2017 HBW will

be divided into two groups:

Group A or B (Odd Years =

Group A; Even Years = Group B)

with approximately 335 per

group. It is anticipated that

Transition and HBW Group A

list will overlap with the

random sample.

Homeward Bound HCBS 1915 (c) Adults over age 18 with 626

ID/DD

In-Home Supports HCBS 1915 (c) Adults over age 18 with 1510

ID/DD


Appendices | 63


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

OR Drew 1200 names of eligible

individuals living in Oregon,

with I/DD and receiving case

management through either a

Brokerage or a Community

Developmental Disability

Program (CDDPS) and one

other Medicaid service. Service

options include:

• In home Supports for Adults

case managed by CDDPs

• In home Supports for Adults

case managed by Brokerages

• 24 Hour Residential Services

for Adults

• Supported Living Services for

Adults

• Adult Foster Care

• Stabilization and Crisis Unit

• Employment Services

The total for all eligible I/DD

adult Oregonians in these

service settings is 17,398.

Percentages of each service

setting to the total population

were calculated.

From that pool, a randomized

sample of 1200 adults were

In home supports for

Adults case managed

by a Community

Developmental

Disability Program

(CDDP)

Waiver and/or

state plan for

case

management

Adults 18 years and older


from a CDDP and living in

theirs or family members

home.

1805

17,398

In home supports for

Adults case managed

by a Brokerage

Waiver and/or

state plan for

case

management

Adults 18 years and older


from a Brokerage and living

in theirs or family members

home.

7084

24 Hour Residential

Services for Adults

Community First

Choice State

Plan

Adults living in group home

setting, generally 5 or fewer

in a home

2839

Supported Living

Services for Adults

Community First

Choice State

Plan

Adults living in the residence

of choice within their

community with The levels

of support based on needs

and preferences which may

include up to 24 hours per

day of paid supports

708


Appendices | 64


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

drawn, using the above

percentages to identify names

of people from the service

settings.

Stratified sample based on

service element.

Adult Foster Care Community First

Choice State

Plan

Adults living in a safe and

secure home in which

services and supports are

provided

3202

Stabilization and Crisis

Unit

Community First

Choice State

Plan

95

Employment Services Waiver and/or

state plan for

case

management

Competitive Integrated

Employment; Employment

Path Services; Individual

Employment Support; Job

coaching; Job Development;

Small Group Employment

Support;

1665

PA • registered with the county ID

office for six months• not have

a finalized consumer pre-survey

in HCSIS for the previous two

fiscal years; counties with

fewer people receiving services

may reduce it to the previous

fiscal year• listed as being on

active status at the time of

sample draw• if not receiving

Consolidated Waiver HCBS 1915 (c) Adults over age 18 with

ID/DD

17389

45,067

Person/Family-Directed

Supports (P/FDS)

Waiver


ID/DD

12,439

Base Funds State Adults over age 18 with

ID/DD

12,398

ICF/ID 932 (state)


Appendices | 65


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

supports coordination, be a

resident of a state or non-state

ICF/ID plus receiving one other

service

ICF/ID(state-operated

and privately-operated)


ID/DD

1909 (private)

RI Random sample of 500 drawn

from total population of adults

who receive services or

supports funded through RI

Division of DD. The sample has

been sorted by primary agency

and by those who self-direct.

Total Population

Served

1915 Waiver Adults (18+) who have IDD 3800

3,800

SD Proportional random sample

based on the population at

each of our provider

organizations.

SDDC ICF Adults over age 18 with

ID/DD who receive services

at the South Dakota

Developmental Center

122 (oversample

was pulled for

separate internal

report)

3,241

CHOICES/Community

Training Services

(conflict free)

HCBS Adults over the age of 18

with ID/DD who receive

services though

2773

FS 360 HCBS Adults over the age of 18

with ID/DD who receive

services though the Family

Support 360 program

346

TN A list of everyone receiving

1915c waiver services in

Main waiver HCBS 1915 (c) Adults over 18 with ID/DD 5076


Appendices | 66


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

Tennessee is shared with the

Director. The members of this

population are then divided

into subgroups among the

three grand regions in

Tennessee—East, Middle and

West. Then a random number

generator is used to assign

each individual a number, and a

proportion of numbers are

assigned to be surveyed. The

process is a stratified simple

random sample

CAC waiver HCBS 1915 (c) Adults over 18 with ID/DD 1753

8,280

Self Determination

waiver

HCBS 1915 (c) Adults over 18 with ID/DD 1217

ICF 234

TX We use PPS sampling,

stratifying on program and

region, and then randomly

sampling the subjects in the

stratum. We collect sufficient

numbers for each program to

achieve a 95% CI and =/- 5%

margin of error.

Home and Community-

Based Services (HCS)


ID/DD

21,135

35,028

Community Living

Assistance and Support

Services (CLASS)


ID/DD

2,749

Texas Home Living

(TxHmL)


ID/DD

4,311

Deaf Blind with

Multiple Disabilities

(DBMD)


ID/DD

155


Appendices | 67


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

Private Intermediate

Care Facilities for

Individuals with

Intellectual Disability

(ICF/IID)

Title XIX

Medicaid funds

and state funds.


ID/DD

4,293

State Supported Living

Centers (SSLC)

Title XIX

Medicaid funds

and state funds.


ID/DD

2,385

UT Utah will pull a random sample

of 450 adults 18 and over who

receive home and community

based services and receive at

least one service other than

support coordination. Utah will

also pull a random sample of 25

adults 18 and over at our state

operated immediate care

facility (ICF/ID). The sample size

for the ICF/ID is consistent with

approximately 5% of our total

population of people served. To

account for survey fatigue,

people who were randomly

selected for the sample the

previous year, will be excluded

from the sample pool prior to

random selection. No other

exclusions to the sample will be

Community Supports

Waiver, Acquired Brain

Injury Waiver

HCBS 1915 (c) Adults over the age of 18

with ID/DD

Approx. 5,000

people

5,200

Utah State

Developmental Center

ICF/ID Adults over the age of 18

with ID/DD

Approx. 200


Appendices | 68


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

made. We anticipate a 90%

participation rate with face to

face surveys.

VT Starting this year, we are

surveying 50% of the providers

(with the plan to survey

consumers at the other 50%

next year). The providers were

divided with the goal of having

a representative sample for

each year based on an even

distribution across the years of

designation status, size

(numbers served), geographic

distribution and urban/rural

nature (area includes large

urban center(s) vs. a

predominately rural area). (Aim

is to have a representative

sample each year) We will take

a complete list of adults age 18

and over receiving HCBS, who

have received services for at

least one year and who are out

of high school, and pull a

random sample of 25% at each

agency (with the exception of

the largest provider for which

Waiver HCBS – Global

Commitment for

Health (1115)

Adults with developmental

disabilities (ID and/or ASD)

age 18 and over, in services

for one year or more, no

longer in high school.

3,001 (FY 16) 2,647

age 18 and over, as

of 6/30/16, and in

services for a

minimum of one

year

3,001


Appendices | 69


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

we will pull a 20% sample).

Case managers may be used as

proxy for Section II

VA

Provides day support,

personal assistance,

prevocational, residential

support, respite, supported

employment, consumer

directed services facilitation,

assistive technology,

companion services, crisis

stabilization, crisis

supervision, environmental

mods, PERS, skilled nursing,

therapeutic consultation,

transition for individuals

w/ID ages 0 - no max age

DD Waiver HCBS 1915 (c) VA Individual & Family DD

Support (0358.R03.00)

~ 1053 in state


Appendices | 70


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

Provides day support, in-

home residential, personal

care, prevocational, respite

care, supported

employment -

group/individual, services

facilitation, adult

companion, assistive

technology, crisis

stabilization, crisis

supervision, environmental

mods, family/caregiver

training, PERS, skilled

nursing, therapeutic

consultation, transition for

individuals w/autism and DD

ages 6 - no max age

DS Waiver HCBS 1915 (c) VA Day Support HCBW for

Persons w/ID (0430.R02.00)

~300 in state

Provides day support,

prevocational, supported

employment for individuals

w/ID ages 6 - no max age


Appendices | 71


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

Community ICF/ID ICF/ID Intermediate Care Facilities

for Individuals with

Intellectual Disability

(ICF/ID)

~48 in state

Provides comprehensive

and individualized health

care and rehabilitation

services to individuals to

promote their functional

status and independence.

Nursing Facility with Dx SNF ~850 in state

State Training Center

Residents

ICF/ID Provides comprehensive

and individualized health

care and rehabilitation

services to individuals to

promote their functional

status and independence.

<480 in state


Appendices | 72


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

WI Wisconsin will sample HCBS

Medicaid 1915(c)/(i) Waiver

participants in the Family Care

(FAMCR), Include, Respect, I

Self-Direct (IRIS), Community

Integrated Program (CIP-

Legacy), and Program of All-

Inclusive Care for the Elderly

(PACE)/Partnership Programs.

NCI team-Wisconsin will

complete 400 interviews to be

included in the national

comparison. There are 25,886

people with IDD in Wisconsin

Adult Long Term Supports

Programs. Using a confidence

level of 95% and a confidence

interval of 5. The sample will

be pulled at point-in-time every

August for new sampling while

conducting ACS and individuals

will be un-duplicated by

program.

Any participants who were

surveyed last year, 2015-16,

will be excluded from the

sample pull. Also excluded will

be the participants who were

Family Care/

PACE/Partnership

Family Care/

PACE

* HCBS

1915(b/c)

Partnership

*1932(a) state

plan program

including

1915(c) waiver

services

Adults 18 and up with a

functional screen level of

care with IDD/DD who are

living in allowable waiver

settings

*18,605

25,886

IRIS IRIS

* HCBS 1915(c);

enrollees may

also self-direct

personal care

through a

1915(j) state

plan

amendment





settings

*5,090

Legacy/CIP Waiver Legacy/CIP

Waiver*1915c





settings

Legacy/CIP Waiver

*2,191


Appendices | 73


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

identified and tracked as ‘hard

no refusal’. Hard no refusal

means the participant

requested to be excluded from

the project in the current and

future years. The combined

number for participation in

2015-16 + ‘hard no” = 772.

The sample will be refreshed 6

months after the first pull to

remove any persons deceased,

dis-enrolled, or agreed to

participate/identified as a ‘hard

no’.

WY The state of Wyoming will

sample adults age 18+ in the

three waiver programs

administered by the Behavioral

Health Division (the Acquired

Brain Injury Waiver, the

Comprehensive Waiver, and

the Supports Waiver). The

number of adults needed to

meet CMS requirements (95%

confidence interval and +/- 5%)

is 317. The Division plans on

randomly selecting 520 adults

Acquired Brain Injury

Waiver

HCBS 1915 (c) Adults 18+ with an ABI 142

2,441

Comprehensive Waiver HCBS 1915 (c) People with ID/DD 18+ 1783

Supports Waiver HCBS 1915 (c) People with ID/DD 18+ 516


Appendices | 74


included in sample

(Community Supports

Waiver, Homeward

Bound Waiver, etc.)

Funding Source

(i.e., ICF/ID,

HCBS 1915(c),

1915 (i), State

Plan, etc.)

Description of the


program

Total number of

people served in

this program waiver

Total population

to sample to ensure that a

minimum of 330 surveys can be

completed. Current adult,

active participants from all

three waiver populations will

be combined into one sampling

frame.


Appendices | 75

Table C2. State sampling information (excluded populations)

Excluded programs

Name of program excluded from sample Funding Source (i.e., ICF/ID) Description of the population served by the program

AL Rainbow Omega Private ICF/ID Adults over 18

AR ICF/ID ICF/ID Adults over age 18 with ID/DD

CO ICF/ID ICF/ID

HCBS-CES 1915 c Children with intellectual and developmental disabilities that are under the age of 18

DE HCBS receiving only FSS supports HCBS 1915 (c) Individuals who only receive FSS

DC State Plan Only Medicaid People who receive service coordination and state plan services only.

FL

State Plan General Revenue These are individuals who have applied for services but are on the waiting list

Institutions including ICF’s/ID ICF/ID Anyone residing in Florida’s state or privately-operated institution and ICF’s. Non waiver people.

GA

ICF/ID

HI ICF/ID ICF/ID Individuals with ID/DD living in a facility that provides active treatment.

ID ICF/ID Facility participants ICF/ID fed & state funds


Appendices | 76

Excluded programs

Name of program excluded from sample Funding Source (i.e., ICF/ID) Description of the population served by the program Individuals in facility based institutional settings

IL

Private ICF/ID ICF/ID Adults with ID/DD

Grant programs State revenue Adults with ID/DD

All children’s programs Grant, HCBS 1915C Children receiving funding from the division

ICF not included because difficulties and resistance. Felt like data was helpful for waiver performance measurement.

IN Money Follows the Person

Money Follows the Person Rebalancing Demonstration Grant

Individuals 18 years and older actively receiving MFP services in accordance with Indiana’s Community Integration & Habilitation Waiver.

ICF

MS

State Funded Only IDD

Persons living in ICF-IDD Medicaid/CMH IDD

1915(i) Medicaid IDD

MO

Support Waiver, Autism Waiver, Lopez Waiver, and Partnership for Hope Waiver. Excluded because comprehensive waiver—NCI is written in QR process. Resources are slim.

HCBS 1915(c)

NE

ICF/ID

NV Clients only receiving service coordination All

ICF/ID Medicaid


Appendices | 77

Excluded programs

Name of program excluded from sample Funding Source (i.e., ICF/ID) Description of the population served by the program Consumers housed in the 48 bed Intermediate Care Facility.

NJ Developmental Centers ICF/ID Individuals residing in Developmental Centers.

NC Those interviewed last year

OH

Family support case management

UT People included in last year’s Adult Consumer Survey Sample

VT people interviewed last year

WI -Exclusions for people who have participated in last data cycle or identified as a hard no refusal to participate in previous cycle.

WY Wyoming Life Resource Center ICF/ID People with ID


Appendices | 78

Appendix D

Un-collapsed and unadjusted data by state


Appendices | 79

Choice and Decision-Making (unadjusted, un-weighted and un-collapsed)

Table D1. Who chose (or picked) the place where you live? (if not the family home) º

Person made

the choice Person had some input

Someone else chose

N

AL 28.1% 23.0% 48.9% 235

AR 33.9% 35.7% 30.3% 221

CO 27.0% 31.2% 41.8% 189

CT 18.6% 25.7% 55.8% 226

DE 28.8% 28.5% 42.7% 309

DC 7.1% 22.5% 70.4% 267

FL 34.8% 35.7% 29.5% 325

GA 33.5% 36.4% 30.1% 209

HI 7.7% 11.0% 81.3% 182

ID 36.1% 30.3% 33.6% 122

IL 22.9% 32.4% 44.7% 170

IN 41.9% 34.4% 23.7% 215

KS 24.2% 45.8% 30.0% 273

KY 27.6% 37.1% 35.3% 232

LA 26.8% 29.8% 43.4% 205

ME 32.5% 34.5% 32.9% 249

MI 20.1% 26.1% 53.8% 329

MN 14.3% 31.2% 54.6% 1,361

MS 42.0% 16.0% 42.0% 188

MO 23.0% 30.8% 46.2% 331

NE 20.7% 40.4% 38.9% 198

NV 32.8% 27.9% 39.3% 244

NH 21.6% 46.7% 31.7% 227

NJ 5.7% 27.3% 67.0% 227

NY 20.9% 27.5% 51.6% 287

NC 16.4% 33.2% 50.4% 274

OH 28.7% 29.8% 41.6% 356

OK 18.3% 29.5% 52.2% 278

OR 27.3% 27.8% 44.9% 245

PA 26.2% 28.6% 45.2% 294

RI 29.4% 31.1% 39.4% 180

SD 30.9% 35.2% 33.9% 233

TN 20.1% 40.9% 38.9% 298

TX 6.7% 16.0% 77.4% 884

UT 31.2% 28.4% 40.4% 218

VT 22.7% 41.8% 35.5% 220

VA 21.0% 35.9% 43.1% 510

WI 27.7% 24.1% 48.2% 191

WY 30.2% 42.6% 27.2% 202

Total 22.5% 30.4% 47.1% 11,404

º Question changed from previous years, no longer applicable for people living in family home


Appendices | 80

Table D2. Did you choose (or pick) the people you live with (or did you choose to live by yourself)? (if not the family home) º

Person made


Someone else chose

N

AL 16.5% 12.7% 70.8% 236

AR 41.5% 21.2% 37.3% 217

CO 27.0% 25.4% 47.6% 185

CT 20.2% 14.6% 65.3% 213

DE 28.2% 39.6% 32.3% 316

DC 4.8% 23.8% 71.4% 269

FL 36.4% 23.7% 39.9% 321

GA 27.8% 30.7% 41.5% 212

HI 7.1% 9.3% 83.5% 182

ID 29.9% 29.9% 40.2% 117

IL 14.9% 26.9% 58.3% 175

IN 49.5% 20.5% 30.0% 210

KS 27.1% 32.3% 40.5% 269

KY 15.8% 19.2% 65.0% 234

LA 27.8% 25.3% 47.0% 198

ME 29.1% 23.5% 47.4% 251

MI 18.1% 12.3% 69.6% 326

MN 11.9% 10.2% 77.9% 1,387

MS 44.3% 15.1% 40.5% 185

MO 23.3% 25.2% 51.5% 330

NE 25.8% 33.0% 41.1% 209

NV 35.7% 20.1% 44.2% 249

NH 24.8% 33.9% 41.3% 230

NJ 7.2% 15.2% 77.6% 223

NY 17.5% 18.6% 63.9% 291

NC 15.4% 21.1% 63.5% 266

OH 28.4% 17.3% 54.3% 359

OK 24.7% 20.4% 54.8% 279

OR 30.2% 16.5% 53.3% 255

PA 25.3% 16.3% 58.3% 300

RI 29.0% 19.3% 51.7% 176

SD 35.4% 19.8% 44.8% 212

TN 20.0% 36.2% 43.8% 290

TX 6.0% 7.4% 86.6% 868

UT 37.0% 18.5% 44.5% 211

VT 27.7% 17.8% 54.5% 191

VA 9.6% 18.1% 72.3% 513

WI 34.9% 10.2% 54.8% 186

WY 41.3% 24.9% 33.8% 201

Total 22.0% 19.3% 58.7% 11,342



Appendices | 81

Table D3. Who chose (or picked) the place where you work? (among those with a job in the community)

Person made


Someone else chose

N

AL 58.3% 33.3% 8.3% 24

AR 44.8% 41.4% 13.8% 29

CO 38.7% 43.5% 17.7% 62

CT 40.3% 34.9% 24.8% 129

DE 50.7% 34.7% 14.7% 75

DC 33.3% 62.5% 4.2% 24

FL 71.6% 22.4% 6.0% 67

GA 67.7% 30.6% 1.6% 62

HI 41.2% 29.4% 29.4% 34

ID 38.8% 47.5% 13.8% 80

IL 45.2% 48.4% 6.5% 31

IN 56.3% 36.5% 7.1% 126

KS 74.5% 23.6% 1.8% 55

KY 81.3% 15.6% 3.1% 32

LA 64.5% 30.6% 4.8% 62

ME 54.3% 40.0% 5.7% 70

MI 43.8% 39.6% 16.7% 48

MN 37.5% 40.5% 22.0% 627

MS 44.3% 28.6% 27.1% 70

MO 64.5% 35.5% 0.0% 31

NE 29.5% 60.0% 10.5% 105

NV 41.5% 41.5% 17.0% 53

NH 30.3% 55.2% 14.5% 145

NJ 9.1% 63.6% 27.3% 22

NY 52.6% 32.9% 14.5% 76

NC 48.3% 36.7% 15.0% 60

OH 55.0% 37.4% 7.6% 131

OK 45.5% 33.3% 21.2% 66

OR 26.3% 43.9% 29.8% 57

PA 48.9% 39.4% 11.7% 94

RI 49.3% 36.0% 14.7% 75

SD 45.9% 50.6% 3.5% 85

TN 67.7% 21.0% 11.3% 62

TX 31.4% 52.9% 15.7% 70

UT 58.2% 31.6% 10.1% 79

VT 34.9% 51.2% 14.0% 129

VA 45.8% 47.9% 6.3% 48

WI 35.7% 49.6% 14.8% 115

WY 57.0% 39.0% 4.0% 100

Total 45.4% 40.3% 14.3% 3,310


Appendices | 82

Table D4. Who chose (or picked) where you go during the day?

Person made


Someone else chose

N

AL 29.1% 25.9% 45.0% 340

AR 32.1% 34.2% 33.7% 243

CO 24.4% 41.9% 33.8% 308

CT 27.8% 32.5% 39.7% 277

DE 36.6% 23.9% 39.5% 238

DC 8.0% 27.7% 64.3% 350

FL 50.5% 31.6% 17.9% 497

GA 41.0% 39.5% 19.5% 385

HI 16.8% 18.3% 64.9% 339

ID 29.9% 45.9% 24.2% 231

IL 27.7% 40.4% 31.8% 292

IN 34.7% 34.2% 31.1% 418

KS 37.5% 42.7% 19.8% 363

KY 41.5% 32.4% 26.2% 340

LA 28.7% 33.0% 38.3% 230

ME 34.8% 37.0% 28.2% 227

MI 26.4% 35.8% 37.7% 318

MN 20.0% 33.7% 46.4% 1,233

MS 31.3% 21.0% 47.7% 300

MO 34.3% 41.0% 24.7% 271

NE 22.2% 48.5% 29.2% 342

NV 31.2% 31.8% 37.0% 324

NH 23.6% 54.4% 22.0% 318

NJ 9.8% 30.1% 60.1% 366

NY 23.7% 31.8% 44.5% 409

NC 15.9% 37.6% 46.4% 433

OH 31.1% 32.8% 36.1% 488

OK 25.5% 32.2% 42.3% 149

OR 42.2% 23.7% 34.1% 173

PA 35.7% 31.4% 32.9% 484

RI 36.8% 25.7% 37.5% 296

SD 46.3% 34.2% 19.6% 240

TN 38.5% 41.1% 20.4% 275

TX 14.1% 25.8% 60.1% 1,183

UT 38.2% 30.6% 31.2% 314

VT 48.8% 31.7% 19.5% 82

VA 23.1% 39.4% 37.4% 540

WI 22.2% 25.7% 52.1% 311

WY 39.3% 37.0% 23.7% 262

Total 28.1% 33.4% 38.5% 14,189


Appendices | 83

Table D5. Do you choose (or pick) your staff?

Person chose staff Staff are assigned but

can be changed if requested by person

Someone else chose N

AL 2.0% 76.5% 21.5% 353

AR 35.4% 50.1% 14.4% 367

CO 14.2% 62.0% 23.7% 337

CT 16.9% 33.4% 49.7% 302

DE 13.0% 69.4% 17.6% 346

DC 14.4% 25.7% 59.9% 374

FL 44.2% 36.6% 19.2% 661

GA 9.1% 67.7% 23.3% 430

HI 13.4% 22.7% 64.0% 322

ID 21.8% 53.8% 24.4% 303

IL 15.7% 52.1% 32.3% 313

IN 29.7% 56.7% 13.6% 623

KS 21.0% 72.7% 6.4% 362

KY 17.3% 18.0% 64.8% 400

LA 21.2% 61.0% 17.7% 372

ME 13.4% 78.7% 8.0% 352

MI 22.5% 29.7% 47.7% 417

MN 10.4% 35.8% 53.8% 1,851

MS 10.5% 62.0% 27.5% 371

MO 13.4% 64.7% 21.9% 374

NE 15.8% 50.3% 33.9% 342

NV 16.3% 69.7% 14.0% 363

NH 20.2% 55.0% 24.8% 371

NJ 4.9% 44.7% 50.5% 329

NY 11.3% 46.5% 42.1% 432

NC 21.2% 37.0% 41.8% 589

OH 16.3% 52.3% 31.4% 539

OK 10.6% 71.4% 18.1% 360

OR 25.6% 34.0% 40.4% 344

PA 12.1% 47.6% 40.3% 546

RI 20.7% 50.0% 29.3% 304

SD 19.6% 55.2% 25.2% 250

TN 19.3% 70.7% 10.0% 461

TX 7.1% 21.0% 71.8% 1,165

UT 27.6% 47.3% 25.1% 370

VT 14.8% 63.0% 22.2% 243

VA 14.1% 43.9% 42.0% 745

WI 18.0% 34.2% 47.9% 401

WY 33.1% 37.1% 29.8% 299

Total 17.0% 47.3% 35.7% 17,683


Appendices | 84

Table D6. Who decides your daily schedule?

Person made


Someone else chose

N

AL 65.6% 27.3% 7.1% 381

AR 49.6% 35.0% 15.4% 383

CO 48.5% 36.3% 15.2% 375

CT 43.7% 32.7% 23.6% 343

DE 47.7% 37.4% 14.9% 377

DC 31.5% 32.3% 36.2% 384

FL 57.4% 33.5% 9.1% 735

GA 63.7% 31.7% 4.6% 432

HI 22.3% 27.6% 50.1% 399

ID 54.4% 31.8% 13.8% 406

IL 45.5% 37.2% 17.3% 358

IN 69.8% 23.2% 7.0% 719

KS 45.7% 37.7% 16.6% 385

KY 62.2% 32.2% 5.6% 410

LA 52.0% 30.7% 17.3% 404

ME 59.9% 30.2% 9.9% 394

MI 46.8% 36.1% 17.1% 498

MN 51.6% 34.7% 13.7% 2,029

MS 59.7% 17.3% 23.0% 404

MO 54.6% 37.5% 7.9% 392

NE 45.4% 42.0% 12.5% 383

NV 63.2% 24.3% 12.4% 419

NH 50.3% 35.5% 14.3% 400

NJ 27.2% 47.7% 25.1% 394

NY 49.3% 30.0% 20.7% 517

NC 34.3% 42.1% 23.6% 632

OH 58.4% 27.3% 14.3% 666

OK 39.5% 36.8% 23.7% 397

OR 61.2% 25.9% 12.9% 402

PA 54.3% 30.9% 14.9% 680

RI 53.4% 25.6% 21.0% 324

SD 60.1% 29.2% 10.8% 288

TN 43.1% 40.6% 16.3% 471

TX 27.7% 29.4% 42.9% 1,421

UT 51.2% 29.7% 19.2% 391

VT 71.4% 20.3% 8.3% 325

VA 41.7% 38.3% 19.9% 793

WI 48.4% 27.7% 23.9% 545

WY 58.6% 30.1% 11.3% 309

Total 49.5% 32.3% 18.1% 19,965


Appendices | 85

Table D7. Who decides how you spend your free time?

Person made


Someone else chose

N

AL 79.7% 16.9% 3.4% 379

AR 75.0% 15.9% 9.1% 384

CO 65.3% 24.7% 10.0% 401

CT 63.8% 24.2% 12.0% 351

DE 77.7% 15.6% 6.6% 377

DC 31.8% 33.1% 35.1% 393

FL 66.8% 27.6% 5.6% 735

GA 71.7% 25.3% 3.0% 438

HI 29.2% 28.4% 42.4% 394

ID 79.0% 16.8% 4.2% 404

IL 63.2% 27.8% 9.0% 356

IN 84.0% 13.4% 2.6% 719

KS 62.5% 28.9% 8.6% 384

KY 72.0% 25.4% 2.7% 414

LA 72.0% 19.9% 8.2% 403

ME 72.8% 23.9% 3.3% 394

MI 76.5% 17.3% 6.2% 498

MN 77.1% 16.7% 6.2% 2,027

MS 72.0% 12.9% 15.1% 403

MO 68.3% 26.1% 5.6% 391

NE 59.9% 35.0% 5.1% 389

NV 70.8% 22.9% 6.3% 415

NH 63.2% 32.2% 4.6% 394

NJ 39.8% 45.2% 15.1% 392

NY 66.9% 22.5% 10.6% 520

NC 62.3% 26.9% 10.8% 628

OH 74.9% 18.0% 7.1% 661

OK 79.4% 13.3% 7.3% 398

OR 78.2% 15.6% 6.2% 404

PA 68.8% 23.2% 8.1% 682

RI 66.5% 21.9% 11.7% 334

SD 71.4% 22.3% 6.3% 287

TN 73.7% 21.7% 4.6% 475

TX 55.0% 25.1% 19.9% 1,418

UT 71.4% 20.9% 7.7% 392

VT 79.5% 16.5% 4.0% 322

VA 66.2% 25.3% 8.5% 791

WI 75.0% 15.1% 9.8% 549

WY 76.2% 17.1% 6.7% 315

Total 68.5% 22.2% 9.3% 20,011


Appendices | 86

Table D8. Do you choose what you buy with your spending money?

Person made the choice

Person has help choosing what to

buy or has set limits

Someone else chose

N

AL 78.0% 14.4% 7.6% 381

AR 50.6% 38.5% 10.9% 387

CO 39.3% 42.1% 18.6% 397

CT 51.6% 34.0% 14.4% 341

DE 41.2% 45.6% 13.2% 371

DC 26.3% 19.6% 54.1% 388

FL 43.9% 39.9% 16.2% 722

GA 61.1% 36.4% 2.5% 437

HI 31.2% 26.9% 42.0% 398

ID 61.7% 31.4% 6.9% 405

IL 42.5% 45.0% 12.4% 362

IN 62.1% 29.4% 8.5% 715

KS 56.2% 39.4% 4.5% 381

KY 63.9% 32.4% 3.6% 413

LA 58.9% 27.2% 14.0% 401

ME 80.2% 12.9% 6.9% 389

MI 58.3% 29.1% 12.6% 499

MN 51.5% 37.1% 11.4% 2,019

MS 66.4% 16.0% 17.5% 399

MO 51.3% 36.6% 12.1% 396

NE 36.9% 50.9% 12.2% 377

NV 57.4% 30.0% 12.6% 406

NH 50.1% 41.3% 8.6% 397

NJ 30.1% 49.6% 20.3% 389

NY 55.0% 30.5% 14.6% 515

NC 48.6% 38.6% 12.8% 625

OH 59.9% 29.2% 10.9% 653

OK 58.4% 26.2% 15.4% 397

OR 62.9% 28.3% 8.8% 407

PA 61.3% 29.0% 9.7% 670

RI 56.9% 28.6% 14.5% 318

SD 57.0% 35.0% 8.0% 286

TN 45.5% 37.9% 16.6% 470

TX 48.7% 30.1% 21.2% 1,387

UT 51.5% 31.5% 16.9% 390

VT 48.9% 42.4% 8.7% 321

VA 46.4% 40.7% 12.9% 789

WI 55.2% 28.9% 15.9% 547

WY 64.6% 28.3% 7.0% 314

Total 52.8% 33.3% 13.9% 19,859


Appendices | 87

Table D9. Can you change your case manager/service coordinator if you want to? º

Yes No N

AL 80.5% 19.5% 359

AR 91.0% 9.0% 354

CO 85.9% 14.1% 341

CT 69.7% 30.3% 274

DE 76.7% 23.3% 292

DC 53.0% 47.0% 364

FL 94.0% 6.0% 684

GA 89.4% 10.6% 339

HI 87.4% 12.6% 341

ID 92.5% 7.5% 348

IL 72.2% 27.8% 277

IN 95.2% 4.8% 666

KS 94.8% 5.2% 329

KY 93.7% 6.3% 380

LA 84.8% 15.2% 343

ME 88.4% 11.6% 328

MI 87.8% 12.2% 419

MN 80.7% 19.3% 1,520

MS 82.5% 17.5% 268

MO 88.3% 11.7% 332

NE 86.3% 13.7% 211

NV 87.4% 12.6% 356

NH 91.9% 8.1% 321

NJ 64.6% 35.4% 342

NY 91.8% 8.2% 465

NC 82.4% 17.6% 488

OH 89.8% 10.2% 571

OK 90.0% 10.0% 359

OR 91.3% 8.7% 335

PA 79.8% 20.2% 526

RI 86.2% 13.8% 247

SD 91.8% 8.2% 245

TN 98.5% 1.5% 454

TX 76.5% 23.5% 1,202

UT 87.4% 12.6% 366

VT 88.2% 11.8% 271

VA 78.6% 21.4% 687

WI 93.7% 6.3% 473

WY 88.2% 11.8% 297

Total 85.1% 14.9% 16,774

º Question changed from previous year


Appendices | 88

Work (un-collapsed)

Table D10. Was in community paid job (individual or group supported)

Yes No N

AL 7.6% 92.4% 382

AR 8.3% 91.7% 385

CO 20.8% 79.2% 366

CT 45.0% 55.0% 327

DE 20.7% 79.3% 405

DC 9.2% 90.8% 380

FL 9.6% 90.4% 759

GA 16.3% 83.7% 453

HI 10.2% 89.8% 393

ID 20.1% 79.9% 407

IL 10.5% 89.5% 362

IN 17.9% 82.1% 737

KS 18.3% 81.7% 361

KY 11.9% 88.1% 412

LA 20.3% 79.7% 404

ME 24.1% 75.9% 386

MI 13.8% 86.3% 480

MN 35.0% 65.0% 2,023

MS 20.8% 79.2% 408

MO 7.9% 92.1% 392

NE 30.2% 69.8% 377

NV 18.4% 81.6% 402

NH 39.2% 60.8% 383

NJ 8.9% 91.1% 280

NY 16.3% 83.7% 497

NC 12.6% 87.4% 668

OH 24.8% 75.2% 650

OK 21.0% 79.0% 400

OR 100.0% 0.0% 84

PA 19.6% 80.4% 607

RI 26.8% 73.2% 328

SD 33.1% 66.9% 332

TN 17.5% 82.5% 479

TX 8.8% 91.2% 1,958

UT 23.4% 76.6% 410

VT 41.5% 58.5% 328

VA 10.1% 89.9% 791

WI 23.7% 76.3% 540

WY 33.6% 66.4% 318

Total 20.0% 80.0% 20,054


Appendices | 89

Table D11. Bi-weekly hours and wage information among those with a paid individual community job

Number of

hours worked Number of

hours worked (N)

Amount of gross wages

earned


earned (N)

Hourly wage Hourly wage (N)

AL n/a n/a n/a n/a n/a n/a

AR 23.07 27 $218.20 26 $9.65 26

CO 20.41 44 $211.49 42 $9.84 42

CT 28.71 41 $322.61 34 $12.20 34

DC n/a n/a n/a n/a n/a n/a

DE 30.68 52 $260.71 51 $8.61 52

FL 25.83 65 $245.29 55 $10.05 55

GA 28.28 49 $202.35 43 $8.36 42

HI n/a n/a n/a n/a n/a n/a

ID 23.32 71 $179.48 52 $8.33 52

IL 28.61 27 $220.92 26 $8.18 26

IN 31.68 85 $256.52 75 $8.49 75

KS 21.15 41 $212.53 26 $9.10 26

KY 14.67 43 $103.80 36 $8.17 33

LA 39.13 24 $308.25 21 $8.73 20

ME 14.51 70 $141.78 52 $10.36 52

MI 22.79 29 $241.98 24 $10.23 24

MN 34.09 430 $273.51 326 $8.13 324

MO 24.45 22 $192.50 21 $8.79 21

MS 26.17 69 n/a n/a n/a n/a

NC 18.41 70 $161.74 55 $8.85 54

NE 22.21 87 $211.96 85 $9.81 85

NH 17.50 113 $161.28 93 $9.45 90

NJ n/a n/a n/a n/a n/a n/a

NV 41.42 24 $341.64 21 $8.73 21

NY 29.73 59 $343.63 53 $12.08 53

OH 36.15 90 $320.10 66 $8.91 66

OK 31.78 38 $241.04 37 $7.82 37

OR n/a n/a n/a n/a n/a n/a

PA 30.90 73 $264.56 34 $8.70 34

RI 18.39 69 $183.87 63 $9.95 64

SD 27.61 61 $214.56 35 $9.45 36

TN 21.86 53 $206.84 36 $8.98 37

TX 27.60 136 $209.19 99 $8.33 99

UT 19.94 70 $180.53 60 $9.19 60

VA 20.08 24 $117.71 20 n/a n/a

VT 21.04 136 $217.72 135 $10.33 135

WI 33.00 42 n/a n/a $8.82 20

WY 27.30 87 $272.75 79 $9.49 84

Total 26.67 2,469 $229.53 1,949 $9.12 1,945


Appendices | 90

Table D12. Bi-weekly hours and wage information among those with a paid group job in the community

Number of

hours worked Number of

hours worked (N)


earned


earned (N)

Hourly wage Hourly wage (N)

AL n/a n/a n/a n/a n/a n/a

AR n/a n/a n/a n/a n/a n/a

CO 22.30 31 $142.20 28 $7.55 28

CT 30.62 71 $198.87 58 $7.42 58

DE n/a n/a n/a n/a n/a n/a

DC n/a n/a n/a n/a n/a n/a

FL n/a n/a n/a n/a n/a n/a

GA n/a n/a n/a n/a n/a n/a

ID n/a n/a n/a n/a n/a n/a

IL n/a n/a n/a n/a n/a n/a

IN n/a n/a n/a n/a n/a n/a

KS n/a n/a n/a n/a n/a n/a

KY n/a n/a n/a n/a n/a n/a

LA 38.61 26 $195.50 28 $4.87 25

ME n/a n/a n/a n/a n/a n/a

MI 25.60 31 $144.23 26 $6.87 25

MN 37.37 266 $168.94 187 $4.95 185

MO n/a n/a n/a n/a n/a n/a

MS n/a n/a n/a n/a n/a n/a

NC n/a n/a n/a n/a n/a n/a

NE 15.85 27 $133.52 27 $8.85 27

NE n/a n/a n/a n/a n/a n/a

NH n/a n/a n/a n/a n/a n/a

NJ n/a n/a n/a n/a n/a n/a

NV 32.59 47 $197.26 47 $6.35 47

NY n/a n/a n/a n/a n/a n/a

OH 29.33 55 $209.17 41 $8.04 41

OK 38.37 46 $211.07 46 $5.40 46

OR n/a n/a n/a n/a n/a n/a

PA n/a n/a n/a n/a n/a n/a

RI n/a n/a n/a n/a n/a n/a

SD n/a n/a n/a n/a n/a n/a

TN n/a n/a n/a n/a n/a n/a

TX n/a n/a n/a n/a n/a n/a

UT 29.42 22 $179.45 22 $6.23 22

VA 30.31 37 $152.91 32 $5.19 31

VT n/a n/a n/a n/a n/a n/a

WI n/a n/a n/a n/a n/a n/a

WY n/a n/a n/a n/a n/a n/a

Total 30.09 896 $170.17 727 $6.48 716


Appendices | 91

Table D13. How long has this person been working at his/her current job? (among those with a paid community job)

Months N

AL 54.6 26

AR 65.1 27

CO 68.9 63

CT 87.4 97

DE 60.4 33

DC n/a n/a

FL 75.8 68

GA 72.3 58

HI 36.5 20

ID 64.6 79

IL 57.8 28

IN 105.6 124

KS 55.0 53

KY 41.7 40

LA 102.1 36

ME 81.3 70

MI 61.6 57

MN 102.6 684

MS 77.5 59

MO 62.3 26

NE 50.7 100

NV 49.4 62

NH 58.7 139

NJ n/a n/a

NY 60.6 65

NC 58.1 67

OH 53.9 123

OK 68.9 83

OR n/a n/a

PA 72.3 86

RI 68.1 82

SD 57.8 87

TN 43.4 61

TX 66.4 158

UT 62.6 88

VT 64.5 135

VA 59.1 63

WI n/a n/a

WY 48.0 95

Total 73.6 3,166


Appendices | 92

Table D14. Does this person receive paid time off (e.g., vacation, holiday, or sick time) at his/her job? (among those with a paid community job)

Yes No N

AL 18.2% 81.8% 22

AR 19.2% 80.8% 26

CO 25.4% 74.6% 59

CT 58.4% 41.6% 89

DE 31.4% 68.6% 35

DC n/a n/a n/a

FL 28.1% 71.9% 64

GA 27.0% 73.0% 63

HI n/a n/a n/a

ID 24.4% 75.6% 78

IL 16.7% 83.3% 24

IN 23.0% 77.0% 122

KS 26.4% 73.6% 53

KY 19.4% 80.6% 36

LA 31.0% 69.0% 42

ME 22.5% 77.5% 71

MI 25.5% 74.5% 51

MN 27.4% 72.6% 647

MS 31.0% 69.0% 58

MO 10.0% 90.0% 20

NE 8.8% 91.2% 91

NV 15.9% 84.1% 63

NH 14.4% 85.6% 132

NJ n/a n/a n/a

NY 29.3% 70.7% 58

NC 6.3% 93.7% 63

OH 43.4% 56.6% 113

OK 15.7% 84.3% 83

OR n/a n/a n/a

PA 25.3% 74.7% 79

RI 32.4% 67.6% 71

SD 30.6% 69.4% 72

TN 27.9% 72.1% 43

TX 18.0% 82.0% 139

UT 6.0% 94.0% 84

VT 12.2% 87.8% 131

VA 17.9% 82.1% 56

WI n/a n/a n/a

WY 25.0% 75.0% 88

Total 24.0% 76.0% 2,962


Appendices | 93

Table D15. Would you like to have a job in the community? (among those with no paid community job)

Yes In-between No N

AL 53.1% 6.2% 40.7% 305

AR 51.4% 7.7% 41.0% 222

CO 33.8% 13.8% 52.5% 160

CT 51.1% 6.5% 42.4% 92

DE 67.5% 0.6% 31.8% 154

DC 61.5% 11.0% 27.5% 91

FL 39.1% 10.5% 50.4% 353

GA 42.8% 8.2% 49.0% 194

HI 34.8% 19.3% 45.9% 135

ID 50.9% 11.0% 38.2% 228

IL 50.6% 10.9% 38.5% 156

IN 40.0% 6.2% 53.8% 390

KS 41.7% 11.5% 46.8% 156

KY 30.1% 6.4% 63.6% 236

LA 38.3% 7.2% 54.4% 180

ME 61.5% 6.3% 32.3% 192

MI 57.4% 8.4% 34.2% 190

MN 47.4% 7.9% 44.6% 466

MS 49.1% 5.8% 45.1% 173

MO 43.9% 7.4% 48.7% 189

NE 48.2% 17.9% 33.9% 168

NV 49.0% 11.5% 39.5% 200

NH 70.7% 5.7% 23.6% 140

NJ 55.2% 10.4% 34.4% 96

NY 45.2% 8.1% 46.6% 221

NC 54.0% 6.2% 39.8% 211

OH 42.7% 7.5% 49.8% 239

OK 46.3% 7.4% 46.3% 121

PA 40.2% 4.3% 55.6% 234

RI 63.2% 6.8% 29.9% 117

SD 52.3% 9.0% 38.7% 111

TN 33.9% 1.8% 64.3% 227

TX 46.8% 6.7% 46.6% 1,052

UT 46.8% 4.6% 48.6% 109

VT 50.0% 6.9% 43.1% 144

VA 43.8% 7.4% 48.7% 349

WI 49.7% 7.6% 42.7% 185

WY 44.8% 8.8% 46.4% 125

Total 46.9% 7.8% 45.2% 8,311


Appendices | 94

Table D16. Is community employment a goal in this person's service plan?

Yes No N

AL 26.3% 73.7% 377

AR 19.3% 80.7% 367

CO 22.5% 77.5% 365

CT 35.0% 65.0% 363

DE 38.0% 62.0% 366

DC 35.4% 64.6% 333

FL 20.7% 79.3% 749

GA 16.4% 83.6% 456

HI 18.5% 81.5% 399

ID 43.8% 56.2% 265

IL 16.5% 83.5% 358

IN 21.5% 78.5% 717

KS 27.3% 72.7% 374

KY 18.0% 82.0% 411

LA 25.1% 74.9% 394

ME 35.0% 65.0% 386

MI 24.4% 75.6% 492

MN 42.8% 57.2% 1,894

MS 40.4% 59.6% 401

MO 19.6% 80.4% 392

NE 73.0% 27.0% 345

NV 22.4% 77.6% 393

NH 45.9% 54.1% 392

NJ 20.2% 79.8% 377

NY 26.4% 73.6% 492

NC 19.4% 80.6% 695

OH 38.7% 61.3% 662

OK 29.0% 71.0% 400

OR n/a n/a n/a

PA 27.4% 72.6% 654

RI 71.6% 28.4% 352

SD 37.0% 63.0% 322

TN 32.6% 67.4% 478

TX 20.7% 79.3% 1,977

UT 32.9% 67.1% 410

VT 48.3% 51.7% 327

VA 23.5% 76.5% 750

WI 35.8% 64.2% 477

WY 33.4% 66.6% 311

Total 30.2% 69.8% 19,673


Appendices | 95

Table D17. Do you take classes, training, or do something to help you get a job, get a better job, or do better at the job you have now?

Yes No N

AL 30.6% 69.4% 346

AR 31.2% 68.8% 295

CO 33.7% 66.3% 288

CT 19.9% 80.1% 261

DE 20.5% 79.5% 229

DC 43.8% 56.2% 137

FL 21.5% 78.5% 451

GA 31.3% 68.7% 265

HI 21.3% 78.7% 188

ID 19.7% 80.3% 310

IL 27.5% 72.5% 251

IN 12.3% 87.7% 575

KS 15.3% 84.7% 248

KY 7.3% 92.7% 300

LA 19.8% 80.2% 278

ME 18.4% 81.6% 309

MI 22.5% 77.5% 315

MN 21.5% 78.5% 1,371

MS 24.6% 75.4% 276

MO 11.3% 88.7% 248

NE 29.9% 70.1% 335

NV 16.1% 83.9% 316

NH 17.2% 82.8% 309

NJ 19.8% 80.2% 207

NY 21.1% 78.9% 341

NC 18.9% 81.1% 355

OH 18.4% 81.6% 477

OK 8.5% 91.5% 223

OR 21.3% 78.7% 291

PA 15.9% 84.1% 447

RI 32.4% 67.6% 247

SD 26.4% 73.6% 239

TN 13.3% 86.7% 345

TX 32.2% 67.8% 1,377

UT 36.5% 63.5% 241

VT 10.5% 89.5% 267

VA 15.0% 85.0% 440

WI 17.5% 82.5% 361

WY 16.3% 83.7% 233

Total 21.8% 78.2% 13,992


Appendices | 96

Table D18. Do you go to a day program or sheltered workshop?

Yes No N

AL 93.1% 6.9% 347

AR 57.7% 42.3% 300

CO 68.2% 31.8% 296

CT 56.2% 43.8% 276

DE 75.9% 24.1% 249

DC 82.3% 17.7% 141

FL 44.7% 55.3% 461

GA 77.1% 22.9% 280

HI 67.9% 32.1% 209

ID 40.2% 59.8% 321

IL 80.0% 20.0% 265

IN 54.7% 45.3% 587

KS 80.1% 19.9% 276

KY 71.9% 28.1% 303

LA 54.6% 45.4% 293

ME 66.4% 33.6% 333

MI 51.1% 48.9% 323

MN 51.2% 48.8% 1,399

MS 76.4% 23.6% 284

MO 50.8% 49.2% 256

NE 73.0% 27.0% 370

NV 71.3% 28.7% 324

NH 59.8% 40.2% 321

NJ 90.9% 9.1% 209

NY 61.6% 38.4% 349

NC 60.2% 39.8% 372

OH 62.7% 37.3% 501

OK 41.7% 58.3% 228

OR 31.7% 68.3% 300

PA 57.2% 42.8% 470

RI 72.9% 27.1% 251

SD 56.1% 43.9% 253

TN 40.5% 59.5% 351

TX 77.5% 22.5% 1,459

UT 66.0% 34.0% 268

VT 20.7% 79.3% 276

VA 64.6% 35.4% 480

WI 41.2% 58.8% 362

WY 54.5% 45.5% 235

Total 61.4% 38.6% 14,578


Appendices | 97

Table D19. Do you volunteer?

Yes No N

AL 34.8% 65.2% 348

AR 37.8% 62.2% 294

CO 30.1% 69.9% 292

CT 34.5% 65.5% 267

DE 28.8% 71.2% 229

DC 33.1% 66.9% 136

FL 28.4% 71.6% 451

GA 37.7% 62.3% 273

HI 41.2% 58.8% 204

ID 38.0% 62.0% 316

IL 34.6% 65.4% 254

IN 32.6% 67.4% 579

KS 29.0% 71.0% 279

KY 12.1% 87.9% 298

LA 25.2% 74.8% 282

ME 41.4% 58.6% 319

MI 34.3% 65.7% 315

MN 31.0% 69.0% 1,385

MS 24.4% 75.6% 279

MO 28.8% 71.2% 250

NE 43.8% 56.2% 324

NV 24.1% 75.9% 315

NH 50.6% 49.4% 322

NJ 42.6% 57.4% 209

NY 42.7% 57.3% 344

NC 46.3% 53.7% 365

OH 25.7% 74.3% 479

OK 25.2% 74.8% 218

OR 30.0% 70.0% 293

PA 28.4% 71.6% 458

RI 36.8% 63.2% 250

SD 39.8% 60.2% 254

TN 26.4% 73.6% 349

TX 32.2% 67.8% 1,392

UT 39.0% 61.0% 251

VT 32.1% 67.9% 271

VA 41.7% 58.3% 453

WI 34.5% 65.5% 359

WY 33.9% 66.1% 233

Total 33.3% 66.7% 14,189


Appendices | 98

Self-Determination (un-collapsed)

Table D20. Is this person currently using a self-directed supports option?

Yes No N

AL 0.5% 99.5% 384

AR 10.5% 89.5% 382

CO 0.0% 100.0% 403

CT 13.1% 86.9% 366

DE 0.0% 100.0% 403

DC 0.0% 100.0% 391

FL 19.7% 80.3% 752

GA 2.9% 97.1% 455

HI 17.8% 82.2% 399

ID 23.8% 76.2% 412

IL 27.0% 73.0% 359

IN 0.0% 100.0% 729

KS 19.0% 81.0% 379

KY 24.6% 75.4% 415

LA 5.4% 94.6% 408

ME 0.0% 100.0% 388

MI 17.2% 82.8% 493

MN 5.6% 94.4% 2,199

MS 0.0% 100.0% 418

MO 3.3% 96.7% 398

NE 1.5% 98.5% 336

NV 0.0% 100.0% 423

NH 29.1% 70.9% 361

NJ 26.5% 73.5% 381

NY 5.5% 94.5% 511

NC 0.9% 99.1% 705

OH 1.9% 98.1% 646

OK 1.5% 98.5% 400

OR 43.9% 56.1% 412

PA 8.6% 91.4% 650

RI 13.5% 86.5% 342

SD 5.9% 94.1% 305

TN 7.2% 92.8% 460

TX 9.1% 90.9% 1,896

UT 23.6% 76.4% 403

VT 8.6% 91.4% 324

VA 15.9% 84.1% 759

WI 70.2% 29.8% 178

WY 7.2% 92.8% 321

Total 10.3% 89.7% 20,346


Appendices | 99

Table D21. Who makes decisions about how your budget for services is used? (among those using a self-direction option)

Individual mostly

controls/makes decisions

Individual has input; family or

friends also help with decisions

Someone else makes decisions

(family member or close friend)

Decisions about what services are received

are made by a case manager or another

professional employed by the state

N

AL n/a n/a n/a n/a n/a

AR n/a n/a n/a n/a n/a

CO n/a n/a n/a n/a n/a

CT 8.6% 37.1% 48.6% 5.7% 35

DE n/a n/a n/a n/a n/a

DC n/a n/a n/a n/a n/a

FL 7.7% 37.1% 54.5% 0.7% 143

GA n/a n/a n/a n/a n/a

HI 4.5% 13.4% 68.7% 13.4% 67

ID 6.4% 41.5% 41.5% 10.6% 94

IL 8.0% 36.0% 54.0% 2.0% 50

IN n/a n/a n/a n/a n/a

KS 4.2% 41.7% 54.2% 0.0% 24

KY 1.4% 16.9% 73.2% 8.5% 71

LA n/a n/a n/a n/a n/a

ME n/a n/a n/a n/a n/a

MI 10.0% 38.6% 35.7% 15.7% 70

MN 6.1% 36.6% 52.4% 4.9% 82

MS n/a n/a n/a n/a n/a

MO n/a n/a n/a n/a n/a

NE n/a n/a n/a n/a n/a

NV n/a n/a n/a n/a n/a

NH 7.0% 45.3% 43.0% 4.7% 86

NJ 0.0% 32.5% 65.1% 2.4% 83

NY 13.0% 69.6% 13.0% 4.3% 23

NC n/a n/a n/a n/a n/a

OH n/a n/a n/a n/a n/a

OK n/a n/a n/a n/a n/a

OR 23.0% 28.0% 32.0% 17.0% 100

PA 9.5% 42.9% 42.9% 4.8% 21

RI 4.9% 46.3% 43.9% 4.9% 41

SD n/a n/a n/a n/a n/a

TN 13.0% 30.4% 52.2% 4.3% 23

TX 11.3% 64.2% 18.9% 5.7% 53

UT 5.6% 19.4% 72.2% 2.8% 72

VT 4.8% 19.0% 76.2% 0.0% 21

VA n/a n/a n/a n/a n/a

WI 5.9% 17.8% 70.3% 5.9% 118

WY n/a n/a n/a n/a n/a

Total 7.9% 33.1% 52.5% 6.5% 1,361


Appendices | 100

Table D22. Do you hire and manage your staff? (among those using a self-direction option)

Yes Maybe not

sure No N

AL n/a n/a n/a n/a

AR n/a n/a n/a n/a

CO n/a n/a n/a n/a

CT 80.0% 0.0% 20.0% 30

DE n/a n/a n/a n/a

DC n/a n/a n/a n/a

FL 86.4% 4.9% 8.7% 103

GA n/a n/a n/a n/a

HI 60.0% 0.0% 40.0% 20

ID 75.0% 5.8% 19.2% 52

IL 72.2% 2.8% 25.0% 36

IN n/a n/a n/a n/a

KS n/a n/a n/a n/a

KY n/a n/a n/a n/a

LA n/a n/a n/a n/a

ME n/a n/a n/a n/a

MI 86.7% 0.0% 13.3% 45

MN 79.6% 4.1% 16.3% 49

MS n/a n/a n/a n/a

MO n/a n/a n/a n/a

NE n/a n/a n/a n/a

NV n/a n/a n/a n/a

NH 78.9% 6.6% 14.5% 76

NJ 32.5% 7.5% 60.0% 40

NY 85.0% 5.0% 10.0% 20

NC n/a n/a n/a n/a

OH n/a n/a n/a n/a

OK n/a n/a n/a n/a

OR 85.9% 6.4% 7.7% 78

PA n/a n/a n/a n/a

RI 87.0% 0.0% 13.0% 23

SD n/a n/a n/a n/a

TN n/a n/a n/a n/a

TX 30.0% 2.5% 67.5% 40

UT 82.0% 4.0% 14.0% 50

VT n/a n/a n/a n/a

VA n/a n/a n/a n/a

WI 62.8% 5.3% 31.9% 94

WY n/a n/a n/a n/a

Total 75.1% 4.3% 20.6% 893


Appendices | 101

Table D23. Can you make changes to your budget/services if you need to? (among those using a self-direction option)

Yes Maybe, not

sure No N

AL n/a n/a n/a n/a

AR n/a n/a n/a n/a

CO n/a n/a n/a n/a

CT 80.8% 7.7% 11.5% 26

DE n/a n/a n/a n/a

DC n/a n/a n/a n/a

FL 91.3% 6.7% 1.9% 104

GA n/a n/a n/a n/a

HI 60.0% 10.0% 30.0% 20

ID 78.3% 15.0% 6.7% 60

IL 88.9% 5.6% 5.6% 36

IN n/a n/a n/a n/a

KS n/a n/a n/a n/a

KY n/a n/a n/a n/a

LA n/a n/a n/a n/a

ME n/a n/a n/a n/a

MI 58.7% 19.6% 21.7% 46

MN 81.6% 12.2% 6.1% 49

MS n/a n/a n/a n/a

MO n/a n/a n/a n/a

NE n/a n/a n/a n/a

NV n/a n/a n/a n/a

NH 81.6% 15.8% 2.6% 76

NJ 71.1% 28.9% 0.0% 45

NY 90.0% 5.0% 5.0% 20

NC n/a n/a n/a n/a

OH n/a n/a n/a n/a

OK n/a n/a n/a n/a

OR 90.4% 7.2% 2.4% 83

PA n/a n/a n/a n/a

RI 72.7% 13.6% 13.6% 22

SD n/a n/a n/a n/a

TN n/a n/a n/a n/a

TX 97.6% 0.0% 2.4% 41

UT 92.0% 6.0% 2.0% 50

VT n/a n/a n/a n/a

VA n/a n/a n/a n/a

WI 86.9% 3.0% 10.1% 99

WY n/a n/a n/a n/a

Total 82.5% 11.0% 6.4% 915


Appendices | 102

Table D24. Do you have enough help deciding how to use your budget/services? (among those using a self-direction option)

Yes, have

enough help Maybe, not

sure No, want

more help N

AL n/a n/a n/a n/a

AR n/a n/a n/a n/a

CO n/a n/a n/a n/a

CT 96.2% 0.0% 3.8% 26

DE n/a n/a n/a n/a

DC n/a n/a n/a n/a

FL 94.3% 5.7% 0.0% 105

GA n/a n/a n/a n/a

HI n/a n/a n/a n/a

ID 90.0% 1.7% 8.3% 60

IL 100.0% 0.0% 0.0% 34

IN n/a n/a n/a n/a

KS n/a n/a n/a n/a

KY n/a n/a n/a n/a

LA n/a n/a n/a n/a

ME n/a n/a n/a n/a

MI 91.3% 4.3% 4.3% 46

MN 92.0% 6.0% 2.0% 50

MS n/a n/a n/a n/a

MO n/a n/a n/a n/a

NE n/a n/a n/a n/a

NV n/a n/a n/a n/a

NH 84.4% 9.1% 6.5% 77

NJ 63.0% 28.3% 8.7% 46

NY n/a n/a n/a n/a

NC n/a n/a n/a n/a

OH n/a n/a n/a n/a

OK n/a n/a n/a n/a

OR 85.4% 7.3% 7.3% 82

PA n/a n/a n/a n/a

RI 87.5% 4.2% 8.3% 24

SD n/a n/a n/a n/a

TN n/a n/a n/a n/a

TX 97.6% 2.4% 0.0% 41

UT 85.7% 6.1% 8.2% 49

VT n/a n/a n/a n/a

VA n/a n/a n/a n/a

WI 87.1% 6.9% 5.9% 101

WY n/a n/a n/a n/a

Total 88.7% 6.3% 5.0% 918


Appendices | 103

Table D25. Do you get information about how much money is left in your budget/services? (among those using a self-direction option)

Yes Maybe, not

sure No N

AL n/a n/a n/a n/a

AR n/a n/a n/a n/a

CO n/a n/a n/a n/a

CT 72.4% 13.8% 13.8% 29

DE n/a n/a n/a n/a

DC n/a n/a n/a n/a

FL 91.2% 6.9% 2.0% 102

GA n/a n/a n/a n/a

HI n/a n/a n/a n/a

ID 86.4% 5.1% 8.5% 59

IL 97.0% 0.0% 3.0% 33

IN n/a n/a n/a n/a

KS n/a n/a n/a n/a

KY n/a n/a n/a n/a

LA n/a n/a n/a n/a

ME n/a n/a n/a n/a

MI 80.4% 6.5% 13.0% 46

MN 90.2% 0.0% 9.8% 51

MS n/a n/a n/a n/a

MO n/a n/a n/a n/a

NE n/a n/a n/a n/a

NV n/a n/a n/a n/a

NH 89.0% 6.8% 4.1% 73

NJ 57.1% 40.5% 2.4% 42

NY 90.0% 10.0% 0.0% 20

NC n/a n/a n/a n/a

OH n/a n/a n/a n/a

OK n/a n/a n/a n/a

OR 61.3% 5.0% 33.8% 80

PA n/a n/a n/a n/a

RI 87.0% 0.0% 13.0% 23

SD n/a n/a n/a n/a

TN n/a n/a n/a n/a

TX 82.9% 0.0% 17.1% 41

UT 84.0% 8.0% 8.0% 50

VT n/a n/a n/a n/a

VA n/a n/a n/a n/a

WI 94.1% 1.0% 4.9% 102

WY n/a n/a n/a n/a

Total 83.8% 7.0% 9.2% 902


Appendices | 104

Table D26. Is the information easy to understand? (among those using a self-direction option and who receive information about money left in their budget/services)

Yes Maybe, Not

Sure No

AL n/a n/a n/a n/a

AR n/a n/a n/a n/a

CO n/a n/a n/a n/a

CT 79.2% 12.5% 8.3% 24

DE n/a n/a n/a n/a

DC n/a n/a n/a n/a

FL 82.1% 14.7% 3.2% 95

GA n/a n/a n/a n/a

HI n/a n/a n/a n/a

ID 85.2% 9.3% 5.6% 54

IL 90.9% 6.1% 3.0% 33

IN n/a n/a n/a n/a

KS n/a n/a n/a n/a

KY n/a n/a n/a n/a

LA n/a n/a n/a n/a

ME n/a n/a n/a n/a

MI 66.7% 17.9% 15.4% 39

MN 87.0% 8.7% 4.3% 46

MS n/a n/a n/a n/a

MO n/a n/a n/a n/a

NE n/a n/a n/a n/a

NV n/a n/a n/a n/a

NH 79.4% 11.8% 8.8% 68

NJ 57.9% 28.9% 13.2% 38

NY 65.0% 15.0% 20.0% 20

NC n/a n/a n/a n/a

OH n/a n/a n/a n/a

OK n/a n/a n/a n/a

OR 78.8% 15.4% 5.8% 52

PA n/a n/a n/a n/a

RI n/a n/a n/a n/a

SD n/a n/a n/a n/a

TN n/a n/a n/a n/a

TX 91.2% 2.9% 5.9% 34

UT 63.6% 22.7% 13.6% 44

VT n/a n/a n/a n/a

VA n/a n/a n/a n/a

WI 69.8% 13.5% 16.7% 96

WY n/a n/a n/a n/a

Total 76.8% 14.5% 8.7% 801


Appendices | 105

Table D27. How often do you get information about how much money is left in your budget/services? (among those using a self-direction option and who receive information about money left in their budget/services)

At least

every three months

Once a year or less

About twice a year

N

AL n/a n/a n/a n/a

AR n/a n/a n/a n/a

CO n/a n/a n/a n/a

CT 85.7% 4.8% 9.5% 21

DE n/a n/a n/a n/a

DC n/a n/a n/a n/a

FL 94.7% 1.1% 4.3% 94

GA n/a n/a n/a n/a

HI n/a n/a n/a n/a

ID 90.4% 7.7% 1.9% 52

IL 83.3% 0% 16.7% 30

IN n/a n/a n/a n/a

KS n/a n/a n/a n/a

KY n/a n/a n/a n/a

LA n/a n/a n/a n/a

ME n/a n/a n/a n/a

MI 75.7% 13.5% 10.8% 37

MN 88.6% 0.0% 11.4% 44

MS n/a n/a n/a n/a

MO n/a n/a n/a n/a

NE n/a n/a n/a n/a

NV n/a n/a n/a n/a

NH 81.5% 6.2% 12.3% 65

NJ 60.7% 28.6% 10.7% 28

NY n/a n/a n/a n/a

NC n/a n/a n/a n/a

OH n/a n/a n/a n/a

OK n/a n/a n/a n/a

OR 53.1% 38.8% 8.2% 49

PA n/a n/a n/a n/a

RI n/a n/a n/a n/a

SD n/a n/a n/a n/a

TN n/a n/a n/a n/a

TX 82.4% 8.8% 8.8% 34

UT 97.6% 0.0% 2.4% 42

VT n/a n/a n/a n/a

VA n/a n/a n/a n/a

WI 96.7% 2.2% 1.1% 90

WY n/a n/a n/a n/a

Total 83.9% 8.8% 7.4% 731


Appendices | 106

Community Inclusion (un-collapsed and un-weighted)

Table D28. How many times did you go shopping in the past month?

0 times 1-2 times 3-4 times More than

5 times N

AL 15.0% 44.2% 34.7% 6.1% 380

AR 5.7% 24.0% 31.3% 39.1% 384

CO 60.2% 29.1% 9.5% 1.2% 402

CT 7.1% 28.5% 36.4% 28.0% 354

DE 17.4% 33.5% 26.5% 22.5% 373

DC 10.2% 47.0% 39.0% 3.9% 362

FL 9.2% 29.9% 34.1% 26.8% 750

GA 2.1% 41.3% 33.0% 23.6% 436

HI 6.9% 38.2% 30.8% 24.1% 403

ID 4.9% 14.8% 24.1% 56.2% 406

IL 6.3% 40.2% 36.1% 17.4% 363

IN 5.5% 19.2% 28.8% 46.6% 715

KS 7.6% 35.2% 37.0% 20.2% 381

KY 4.8% 50.4% 32.3% 12.6% 421

LA 19.0% 29.2% 26.9% 24.9% 401

ME 5.8% 10.6% 21.8% 61.8% 395

MI 14.1% 26.7% 30.3% 28.9% 495

MN 7.7% 27.1% 36.3% 29.0% 1,996

MS 9.2% 26.9% 36.8% 27.1% 402

MO 8.1% 22.9% 32.2% 36.8% 397

NE 25.6% 22.8% 30.2% 21.5% 391

NV 11.3% 23.1% 31.0% 34.6% 416

NH 4.5% 15.3% 21.8% 58.4% 399

NJ 9.0% 30.2% 37.0% 23.8% 387

NY 9.2% 33.3% 31.5% 26.0% 520

NC 10.5% 20.5% 31.0% 38.0% 629

OH 10.7% 29.3% 36.0% 23.9% 661

OK 9.1% 15.9% 33.7% 41.3% 395

OR 8.1% 18.4% 23.3% 50.2% 408

PA 7.7% 28.4% 32.2% 31.7% 662

RI 5.6% 26.0% 28.7% 39.6% 338

SD 3.1% 29.9% 45.8% 21.2% 288

TN 8.1% 22.3% 39.1% 30.4% 470

TX 15.4% 33.1% 26.9% 24.6% 1,381

UT 11.8% 23.1% 35.2% 29.9% 398

VT 9.9% 13.6% 18.5% 58.0% 324

VA 14.5% 21.7% 27.1% 36.8% 794

WI 11.5% 20.7% 27.7% 40.1% 546

WY 2.5% 19.0% 38.6% 39.9% 316

Total 10.7% 27.3% 31.2% 30.8% 19,939


Appendices | 107

Table D29. Who did you usually go shopping with? ∞

Alone Family or friends

Housemates or co-workers

Staff Others

AL 0.5% 46.8% 31.3% 57.4% 4.5%

AR 3.7% 44.2% 7.9% 75.7% 0.0%

CO 0.5% 25.5% 6.3% 15.8% 0.5%

CT 6.1% 42.2% 23.2% 65.6% 1.4%

DE 4.4% 5.7% 35.5% 75.3% 0.3%

DC 2.3% 22.9% 2.3% 64.1% 0.5%

FL 6.1% 55.1% 14.6% 47.7% 0.3%

GA 5.5% 54.3% 24.5% 74.4% 5.5%

HI 5.5% 51.2% 3.2% 60.7% 0.5%

ID 4.9% 60.7% 6.8% 53.7% 0.7%

IL 6.7% 57.1% 24.0% 37.2% 1.1%

IN 6.5% 74.3% 1.4% 53.9% 0.3%

KS 4.7% 38.1% 21.0% 64.0% 0.5%

KY 3.6% 46.4% 3.3% 61.9% 0.5%

LA 2.8% 42.1% 16.3% 58.9% 0.0%

ME 14.8% 42.2% 13.2% 73.3% 12.7%

MI 6.5% 42.8% 20.6% 59.6% 2.0%

MN 9.3% 32.9% 24.7% 69.9% 0.2%

MS 1.2% 45.8% 30.1% 72.6% 0.0%

MO 3.0% 20.2% 40.7% 83.8% 1.0%

NE 11.3% 45.9% 17.9% 46.4% 0.5%

NV 12.5% 42.2% 22.7% 59.3% 0.7%

NH 7.5% 49.2% 10.6% 70.6% 0.0%

NJ 3.1% 45.7% 37.1% 65.8% 2.9%

NY 11.5% 46.3% 25.8% 55.2% 1.2%

NC 2.9% 55.7% 12.3% 69.1% 1.0%

OH 6.8% 49.2% 13.2% 53.6% 0.6%

OK 2.5% 30.9% 23.0% 68.6% 0.5%

OR 15.7% 44.4% 6.9% 66.4% 0.7%

PA 5.6% 51.5% 7.7% 53.3% 1.5%

RI 7.2% 49.9% 20.0% 74.0% 0.6%

SD 18.5% 40.4% 17.8% 68.6% 0.3%

TN 0.2% 31.1% 32.3% 79.4% 0.6%

TX 1.7% 43.0% 27.0% 51.8% 0.7%

UT 4.0% 43.4% 16.4% 62.1% 1.0%

VT 11.2% 29.3% 2.2% 70.4% 0.3%

VA 1.9% 37.7% 33.5% 69.6% 0.3%

WI 12.7% 63.6% 7.4% 39.5% 0.7%

WY 9.5% 52.5% 15.8% 74.4% 0.6%

Total 6.1% 43.9% 18.7% 61.6% 1.1%

∞ Categories are not mutually exclusive


Appendices | 108

Table D30. How many times did you go out on errands or appointments in the past month

0 times 1-2 times 3-4 times More than 5 times

N

AL 17.7% 66.1% 14.1% 2.1% 384

AR 8.4% 45.5% 25.5% 20.5% 380

CO 25.1% 35.6% 20.3% 19.0% 399

CT 6.2% 37.1% 32.0% 24.6% 353

DE 5.2% 33.6% 32.5% 28.7% 366

DC 13.2% 72.3% 11.8% 2.7% 364

FL 16.2% 48.3% 21.2% 14.3% 747

GA 18.6% 56.7% 18.1% 6.6% 409

HI 44.3% 26.4% 14.4% 14.9% 397

ID 8.6% 26.7% 21.9% 42.8% 397

IL 9.6% 53.1% 26.8% 10.5% 354

IN 16.3% 37.9% 23.3% 22.4% 704

KS 15.5% 45.6% 28.3% 10.7% 375

KY 4.5% 50.5% 40.7% 4.3% 420

LA 16.7% 47.2% 22.9% 13.3% 407

ME 12.8% 29.1% 29.3% 28.8% 392

MI 15.9% 42.7% 22.8% 18.7% 492

MN 11.0% 41.7% 27.8% 19.6% 1,989

MS 17.3% 39.6% 32.1% 11.0% 399

MO 16.1% 41.3% 20.7% 21.9% 392

NE 18.8% 47.1% 21.4% 12.7% 393

NV 17.9% 50.7% 17.2% 14.2% 402

NH 7.3% 23.8% 24.6% 44.3% 395

NJ 9.5% 44.1% 28.8% 17.7% 379

NY 10.9% 46.4% 23.2% 19.5% 513

NC 12.7% 38.1% 24.0% 25.2% 624

OH 12.2% 48.1% 25.6% 14.2% 657

OK 7.8% 26.5% 30.5% 35.3% 400

OR 9.7% 35.1% 20.0% 35.1% 404

PA 7.1% 49.3% 23.7% 20.0% 651

RI 7.0% 42.2% 23.2% 27.5% 327

SD 7.4% 44.0% 34.2% 14.4% 284

TN 10.4% 39.7% 28.8% 21.1% 473

TX 15.4% 43.6% 22.4% 18.6% 1,400

UT 16.0% 41.0% 24.9% 18.1% 393

VT 4.8% 19.2% 18.2% 57.8% 313

VA 17.4% 40.2% 23.7% 18.8% 789

WI 15.6% 37.5% 21.0% 25.9% 544

WY 6.3% 33.0% 29.0% 31.7% 300

Total 13.4% 42.0% 24.4% 20.2% 19,761


Appendices | 109

Table D31. Who did you usually go with when you went on errands or appointments? ∞



Staff Others

AL 1.0% 35.6% 14.4% 51.6% 1.6%

AR 2.2% 36.9% 3.5% 72.2% 0.5%

CO 9.5% 48.0% 11.4% 31.1% 0.5%

CT 7.3% 39.1% 15.1% 62.6% 0.6%

DE 4.7% 2.8% 16.8% 85.5% 0.3%

DC 4.8% 22.9% 1.3% 61.1% 0.0%

FL 5.3% 47.4% 9.1% 43.9% 0.1%

GA 4.4% 36.1% 14.0% 52.8% 1.2%

HI 6.7% 36.6% 1.5% 29.0% 0.0%

ID 4.9% 58.3% 3.9% 44.1% 0.2%

IL 6.5% 52.2% 19.0% 35.6% 0.3%

IN 4.7% 63.9% 0.6% 35.8% 0.1%

KS 3.7% 34.8% 13.1% 58.6% 0.8%

KY 2.9% 46.4% 2.6% 61.0% 1.0%

LA 3.2% 40.1% 13.8% 61.1% 0.5%

ME 9.8% 29.3% 6.9% 59.6% 2.1%

MI 6.0% 40.0% 16.6% 54.4% 0.0%

MN 10.3% 29.9% 16.9% 66.1% 0.1%

MS 2.0% 36.6% 24.1% 60.4% 0.3%

MO 3.6% 17.3% 29.1% 75.5% 0.5%

NE 8.2% 46.9% 14.1% 49.2% 0.8%

NV 11.6% 35.2% 14.3% 50.5% 0.8%

NH 5.6% 43.3% 7.3% 64.3% 0.0%

NJ 2.4% 41.8% 28.3% 60.6% 2.4%

NY 12.3% 40.0% 16.8% 52.0% 0.4%

NC 2.9% 54.0% 7.5% 62.0% 0.3%

OH 8.5% 43.8% 9.2% 48.9% 0.6%

OK 2.3% 30.3% 20.6% 70.2% 0.8%

OR 14.1% 35.7% 2.7% 63.3% 0.5%

PA 7.5% 48.7% 5.3% 47.9% 0.9%

RI 9.0% 43.0% 12.7% 72.1% 0.6%

SD 18.8% 33.3% 12.8% 68.1% 0.4%

TN 0.4% 26.5% 26.3% 77.1% 0.6%

TX 1.3% 39.4% 18.6% 50.8% 0.6%

UT 4.4% 43.7% 9.3% 52.4% 0.5%

VT 12.1% 27.2% 1.3% 78.3% 0.0%

VA 1.4% 35.6% 18.6% 60.2% 1.0%

WI 12.9% 58.5% 3.1% 31.2% 0.6%

WY 14.2% 48.0% 9.5% 61.8% 0.7%

Total 6.3% 39.5% 12.6% 56.3% 0.5%



Appendices | 110

Table D32. How many times did you go out for entertainment in the past month?


5 times N

AL 24.2% 50.8% 19.0% 6.0% 384

AR 18.9% 28.8% 32.4% 19.9% 386

CO 24.8% 38.3% 22.8% 14.0% 399

CT 18.5% 36.1% 29.0% 16.5% 352

DE 24.9% 41.6% 17.0% 16.4% 377

DC 12.5% 48.8% 31.7% 7.0% 385

FL 20.1% 40.8% 22.7% 16.5% 753

GA 14.6% 43.9% 26.9% 14.6% 424

HI 28.2% 48.7% 14.0% 9.1% 394

ID 20.7% 26.9% 23.7% 28.6% 405

IL 21.8% 50.6% 20.9% 6.8% 354

IN 27.6% 29.1% 19.1% 24.1% 717

KS 17.4% 38.5% 28.6% 15.5% 374

KY 12.6% 42.0% 35.6% 9.7% 421

LA 29.6% 42.0% 18.5% 9.9% 405

ME 44.0% 34.1% 12.7% 9.2% 393

MI 30.4% 36.7% 19.1% 13.8% 493

MN 18.4% 34.8% 26.9% 19.9% 2,010

MS 31.8% 41.8% 16.8% 9.8% 400

MO 19.8% 37.6% 22.6% 20.1% 394

NE 20.4% 39.7% 23.2% 16.8% 393

NV 16.2% 36.6% 23.7% 23.5% 413

NH 25.3% 34.1% 23.2% 17.4% 396

NJ 12.9% 35.8% 32.7% 18.6% 388

NY 30.0% 41.7% 15.7% 12.6% 516

NC 27.2% 33.0% 20.4% 19.4% 633

OH 21.7% 39.2% 22.5% 16.5% 653

OK 14.3% 27.1% 25.8% 32.7% 391

OR 17.0% 26.6% 16.3% 40.1% 399

PA 24.5% 42.9% 19.5% 13.1% 665

RI 20.0% 30.0% 20.6% 29.4% 330

SD 15.5% 43.7% 25.7% 15.1% 284

TN 12.9% 29.1% 27.2% 30.8% 474

TX 12.5% 38.5% 26.9% 22.1% 1,410

UT 18.1% 32.8% 28.2% 20.9% 393

VT 38.2% 26.6% 11.3% 23.8% 319

VA 26.4% 27.6% 23.1% 23.0% 793

WI 28.7% 28.9% 18.0% 24.3% 543

WY 12.7% 40.3% 24.8% 22.2% 315

Total 21.5% 36.7% 23.1% 18.6% 19,928


Appendices | 111

Table D33. Who did you usually go with when you went out for entertainment? ∞



Staff Others

AL 0.3% 49.5% 28.6% 52.1% 7.3%

AR 2.1% 37.8% 5.2% 65.4% 0.5%

CO 5.5% 53.5% 18.4% 34.3% 0.7%

CT 3.6% 43.1% 26.1% 56.6% 0.8%

DE 3.9% 9.8% 37.2% 66.1% 0.3%

DC 5.3% 26.4% 2.5% 73.9% 1.5%

FL 3.0% 47.6% 18.7% 45.5% 0.4%

GA 3.3% 46.9% 27.1% 65.1% 5.4%

HI 2.2% 40.0% 3.0% 44.3% 1.0%

ID 2.9% 58.8% 5.4% 39.0% 0.7%

IL 3.8% 48.8% 22.7% 29.0% 2.2%

IN 4.1% 53.7% 1.7% 43.5% 1.0%

KS 1.9% 42.6% 24.9% 55.8% 1.1%

KY 1.9% 40.4% 4.8% 58.0% 1.4%

LA 2.0% 41.3% 16.5% 45.3% 0.0%

ME 3.1% 23.9% 7.7% 37.0% 4.1%

MI 1.6% 37.6% 19.6% 46.1% 1.8%

MN 6.0% 39.0% 27.5% 57.4% 0.3%

MS 1.3% 34.3% 27.5% 47.3% 0.5%

MO 2.8% 28.1% 37.8% 68.1% 0.8%

NE 1.5% 51.3% 26.5% 50.5% 2.8%

NV 12.7% 47.2% 30.8% 47.4% 1.2%

NH 2.5% 45.7% 5.1% 48.0% 0.5%

NJ 2.1% 45.4% 39.4% 63.3% 5.0%

NY 5.0% 34.5% 24.0% 43.8% 1.9%

NC 1.3% 42.5% 14.3% 55.4% 1.3%

OH 4.8% 46.3% 14.0% 47.7% 1.1%

OK 2.1% 34.6% 26.7% 64.4% 0.8%

OR 8.8% 47.2% 10.1% 56.8% 0.8%

PA 3.6% 41.7% 10.9% 44.8% 2.9%

RI 4.7% 48.6% 19.9% 64.2% 0.3%

SD 11.0% 53.5% 24.5% 54.3% 1.1%

TN 0.4% 30.3% 34.3% 75.0% 0.2%

TX 1.1% 44.8% 34.9% 58.0% 1.5%

UT 1.5% 46.2% 16.3% 57.9% 1.5%

VT 4.1% 26.1% 2.2% 45.9% 0.0%

VA 0.1% 34.1% 36.7% 59.4% 0.9%

WI 3.7% 53.6% 10.4% 29.4% 0.9%

WY 4.2% 53.4% 16.0% 57.5% 1.6%

Total 3.4% 41.9% 20.7% 52.8% 1.4%



Appendices | 112

Table D34. How many times did you go out to a restaurant or coffee shop in the past month?


5 times N

AL 7.0% 36.1% 50.9% 6.0% 385

AR 11.2% 21.6% 24.5% 42.7% 384

CO 11.8% 30.1% 23.8% 34.3% 399

CT 11.5% 28.9% 26.4% 33.1% 356

DE 18.2% 32.2% 27.2% 22.4% 379

DC 17.2% 41.3% 34.7% 6.8% 383

FL 13.4% 29.0% 30.1% 27.4% 751

GA 4.5% 33.6% 40.6% 21.2% 443

HI 7.3% 39.0% 35.8% 17.9% 397

ID 7.6% 21.3% 26.7% 44.5% 409

IL 6.9% 42.5% 36.9% 13.6% 360

IN 10.4% 22.1% 23.5% 43.9% 719

KS 9.8% 32.3% 38.8% 19.1% 387

KY 8.3% 36.0% 43.3% 12.4% 420

LA 14.7% 39.8% 25.3% 20.1% 407

ME 17.0% 21.9% 26.0% 35.1% 393

MI 19.0% 32.3% 25.5% 23.2% 499

MN 11.0% 33.6% 30.9% 24.5% 2,015

MS 15.1% 28.2% 37.1% 19.6% 404

MO 12.0% 24.6% 30.6% 32.8% 399

NE 23.3% 27.9% 20.0% 28.7% 390

NV 13.6% 36.2% 22.6% 27.6% 420

NH 9.3% 20.1% 14.8% 55.9% 399

NJ 12.0% 31.7% 32.2% 24.1% 382

NY 20.6% 35.4% 23.3% 20.8% 520

NC 12.2% 21.9% 28.8% 37.1% 631

OH 11.9% 30.3% 31.2% 26.6% 657

OK 10.6% 19.6% 30.7% 39.0% 397

OR 14.9% 27.6% 19.7% 37.8% 402

PA 10.0% 36.1% 29.5% 24.4% 671

RI 6.1% 23.2% 24.5% 46.2% 327

SD 11.2% 40.3% 29.9% 18.7% 278

TN 8.9% 21.6% 37.6% 31.9% 473

TX 19.4% 29.3% 27.2% 24.1% 1,404

UT 12.7% 35.9% 25.7% 25.7% 393

VT 12.1% 24.0% 19.0% 44.9% 321

VA 15.5% 24.3% 22.3% 38.0% 795

WI 14.7% 25.1% 24.9% 35.3% 546

WY 6.3% 28.2% 25.9% 39.6% 316

Total 12.7% 29.8% 28.9% 28.6% 20,011


Appendices | 113

Table D35. Who did you usually go with when you went to restaurants or coffee shops? ∞



Staff Others

AL 1.3% 56.6% 36.4% 64.4% 7.5%

AR 2.9% 44.1% 8.4% 73.5% 0.5%

CO 7.5% 67.9% 19.9% 39.6% 1.0%

CT 6.7% 46.8% 26.9% 61.1% 2.0%

DE 3.9% 9.8% 47.0% 75.5% 0.3%

DC 5.3% 28.2% 3.1% 69.7% 1.0%

FL 3.3% 57.3% 18.3% 47.8% 0.3%

GA 4.1% 52.0% 29.9% 79.2% 5.9%

HI 4.4% 50.0% 3.0% 54.4% 0.7%

ID 3.2% 74.4% 6.8% 42.4% 1.0%

IL 7.4% 61.0% 26.4% 36.5% 2.2%

IN 5.6% 71.6% 2.1% 49.1% 0.6%

KS 2.9% 49.5% 23.2% 59.1% 0.5%

KY 2.2% 44.3% 6.5% 60.0% 1.2%

LA 2.0% 47.4% 22.0% 61.5% 0.0%

ME 6.6% 40.8% 10.7% 55.6% 11.5%

MI 4.8% 44.8% 23.4% 54.0% 1.2%

MN 5.8% 45.5% 28.8% 64.1% 0.4%

MS 0.5% 50.4% 31.5% 60.3% 0.2%

MO 2.3% 32.2% 45.0% 78.9% 1.0%

NE 9.7% 55.1% 22.8% 43.3% 1.5%

NV 12.4% 54.2% 30.3% 45.3% 0.7%

NH 5.3% 56.5% 7.8% 67.1% 0.3%

NJ 4.0% 50.3% 38.6% 60.3% 4.5%

NY 8.3% 44.3% 24.5% 48.0% 1.3%

NC 1.9% 56.1% 17.2% 67.7% 0.8%

OH 5.7% 57.5% 16.5% 49.5% 0.3%

OK 3.3% 38.3% 27.0% 65.0% 1.0%

OR 9.0% 46.5% 9.8% 54.5% 0.3%

PA 5.3% 53.5% 10.2% 48.9% 1.5%

RI 9.0% 57.0% 22.3% 76.2% 0.9%

SD 16.4% 55.5% 21.5% 52.6% 1.8%

TN 0.4% 36.0% 33.9% 77.3% 0.8%

TX 1.0% 47.1% 30.5% 49.5% 1.1%

UT 2.6% 51.2% 19.2% 57.3% 2.0%

VT 7.2% 39.6% 2.5% 62.9% 0.0%

VA 1.3% 44.2% 39.8% 65.0% 0.5%

WI 7.3% 69.2% 8.2% 31.9% 0.7%

WY 6.0% 58.9% 16.1% 65.2% 1.9%

Total 4.7% 50.0% 21.9% 57.7% 1.4%



Appendices | 114

Table D36. How many times did you go out to a religious service or spiritual practice in the past month?


5 times N

AL 34.5% 12.2% 41.9% 11.4% 377

AR 46.9% 13.5% 21.5% 18.0% 377

CO 57.9% 12.0% 19.5% 10.7% 401

CT 63.6% 12.7% 16.2% 7.5% 346

DE 61.4% 16.3% 19.7% 2.6% 381

DC 32.9% 24.5% 39.3% 3.3% 331

FL 50.4% 16.9% 24.2% 8.5% 740

GA 28.4% 23.1% 40.3% 8.3% 412

HI 70.4% 11.8% 13.1% 4.8% 398

ID 49.8% 8.6% 27.2% 14.5% 408

IL 49.0% 16.8% 28.1% 6.1% 345

IN 49.4% 11.0% 28.0% 11.6% 718

KS 43.8% 20.9% 28.1% 7.2% 349

KY 71.4% 8.4% 16.6% 3.6% 416

LA 42.1% 18.5% 31.5% 7.9% 406

ME 70.2% 6.6% 20.5% 2.8% 396

MI 61.9% 10.7% 21.4% 6.0% 496

MN 53.0% 16.6% 24.8% 5.6% 2,024

MS 31.6% 21.9% 38.8% 7.7% 402

MO 54.3% 14.0% 24.6% 7.1% 394

NE 48.3% 8.1% 32.6% 10.9% 393

NV 68.4% 7.7% 13.4% 10.4% 402

NH 70.1% 7.8% 12.3% 9.8% 398

NJ 56.6% 17.7% 21.4% 4.3% 373

NY 61.2% 16.0% 18.3% 4.5% 513

NC 36.5% 19.0% 29.1% 15.4% 636

OH 58.1% 13.1% 25.1% 3.7% 654

OK 54.3% 8.5% 29.1% 8.0% 398

OR 69.1% 5.4% 13.7% 11.8% 408

PA 56.1% 16.9% 21.6% 5.4% 652

RI 63.3% 11.9% 14.4% 10.3% 319

SD 51.9% 15.2% 24.7% 8.1% 283

TN 42.7% 19.0% 30.8% 7.5% 468

TX 37.3% 19.8% 32.9% 9.9% 1,379

UT 48.4% 11.4% 32.9% 7.3% 395

VT 78.1% 7.5% 10.6% 3.8% 320

VA 50.8% 16.9% 23.3% 9.1% 782

WI 59.7% 13.8% 19.5% 6.9% 549

WY 57.9% 9.4% 25.5% 7.2% 318

Total 52.5% 14.6% 25.0% 7.9% 19,757


Appendices | 115

Table D37. Who did you usually go with to religious/spiritual practices? ∞



Staff Others

AL 4.8% 41.4% 12.2% 27.1% 1.9%

AR 4.3% 33.0% 2.7% 27.1% 0.5%

CO 4.2% 32.6% 8.7% 10.4% 0.0%

CT 3.7% 22.0% 7.1% 13.3% 0.3%

DE 2.6% 8.3% 9.0% 28.7% 0.3%

DC 4.6% 21.0% 1.8% 38.5% 0.3%

FL 3.0% 33.5% 8.5% 15.2% 0.8%

GA 2.9% 43.3% 14.1% 29.7% 1.0%

HI 2.0% 20.7% 0.7% 6.9% 1.0%

ID 2.9% 41.5% 1.7% 9.0% 0.2%

IL 3.6% 35.8% 8.3% 11.0% 0.8%

IN 3.5% 43.4% 0.6% 7.4% 0.6%

KS 5.8% 37.3% 6.4% 20.5% 0.3%

KY 2.4% 14.7% 1.7% 14.4% 0.2%

LA 1.7% 31.5% 12.6% 31.3% 0.2%

ME 2.8% 16.7% 3.3% 12.9% 0.3%

MI 3.6% 24.8% 7.5% 12.9% 0.2%

MN 5.5% 27.7% 9.1% 22.1% 0.0%

MS 0.5% 44.1% 16.0% 28.7% 0.2%

MO 4.1% 21.9% 14.2% 28.2% 0.8%

NE 2.8% 43.0% 2.0% 9.2% 6.1%

NV 7.5% 20.0% 1.0% 6.0% 0.8%

NH 3.5% 16.9% 3.5% 12.1% 0.3%

NJ 1.1% 23.6% 15.7% 22.0% 0.3%

NY 4.9% 22.7% 7.8% 13.7% 0.2%

NC 1.9% 44.8% 9.6% 26.4% 0.3%

OH 3.5% 28.2% 4.3% 13.5% 0.2%

OK 1.8% 21.9% 7.5% 24.4% 1.3%

OR 4.7% 18.5% 4.4% 10.3% 0.7%

PA 3.4% 28.7% 4.0% 12.9% 1.1%

RI 5.0% 22.4% 4.7% 13.6% 0.6%

SD 8.9% 29.4% 5.7% 11.7% 2.5%

TN 0.9% 28.6% 12.0% 34.8% 0.2%

TX 1.5% 35.1% 22.8% 33.1% 0.5%

UT 4.4% 34.6% 5.4% 13.6% 2.3%

VT 2.8% 11.9% 0.0% 8.4% 0.3%

VA 2.2% 24.9% 17.3% 28.2% 0.8%

WI 4.4% 33.2% 1.3% 5.8% 0.7%

WY 4.4% 31.2% 3.2% 12.6% 2.2%

Total 3.5% 29.3% 8.2% 19.2% 0.7%



Appendices | 116

Table D38. Do you participate as a member of community groups in your community?

Yes No N

AL 15.5% 84.5% 380

AR 35.7% 64.3% 359

CO 24.9% 75.1% 394

CT 46.6% 53.4% 348

DE 12.5% 87.5% 376

DC 33.8% 66.2% 373

FL 45.8% 54.2% 746

GA 51.2% 48.8% 430

HI 29.6% 70.4% 395

ID 39.3% 60.7% 405

IL 41.7% 58.3% 348

IN 33.2% 66.8% 710

KS 50.3% 49.7% 326

KY 12.3% 87.7% 416

LA 28.4% 71.6% 401

ME 23.5% 76.5% 392

MI 29.9% 70.1% 498

MN 42.8% 57.2% 2,011

MS 35.3% 64.7% 397

MO 38.5% 61.5% 395

NE 32.8% 67.2% 393

NV 36.2% 63.8% 417

NH 38.1% 61.9% 399

NJ 36.4% 63.6% 387

NY 25.8% 74.2% 519

NC 38.3% 61.7% 629

OH 29.3% 70.7% 661

OK 25.8% 74.2% 399

OR 28.7% 71.3% 407

PA 41.4% 58.6% 652

RI 41.7% 58.3% 326

SD 38.8% 61.2% 278

TN 25.1% 74.9% 471

TX 31.0% 69.0% 1,384

UT 50.0% 50.0% 392

VT 15.5% 84.5% 317

VA 41.3% 58.7% 784

WI 31.7% 68.3% 552

WY 32.8% 67.2% 311

Total 34.5% 65.5% 19,778


Appendices | 117

Table D39. Who did you participate in community groups with? ∞



Staff Others

AL 1.1% 11.8% 2.4% 3.7% 0.8%

AR 2.8% 21.7% 2.3% 22.5% 0.3%

CO 5.0% 15.2% 3.2% 7.5% 2.2%

CT 6.5% 24.4% 11.5% 25.3% 1.7%

DE 1.8% 3.1% 2.3% 7.8% 0.5%

DC 2.3% 9.6% 1.0% 23.6% 0.3%

FL 3.5% 28.3% 9.0% 21.9% 1.4%

GA 3.7% 25.5% 9.3% 31.1% 2.6%

HI 3.3% 20.1% 1.0% 13.3% 0.8%

ID 4.1% 32.4% 1.7% 10.2% 1.0%

IL 3.8% 26.2% 12.5% 15.3% 3.0%

IN 4.8% 23.5% 1.1% 13.1% 1.7%

KS 2.5% 27.6% 13.3% 29.7% 0.9%

KY 2.2% 7.9% 1.9% 4.6% 0.5%

LA 1.3% 15.3% 3.8% 15.3% 1.3%

ME 5.4% 9.5% 2.0% 11.8% 0.8%

MI 3.6% 17.1% 6.4% 14.9% 2.2%

MN 5.4% 19.2% 13.3% 25.5% 1.0%

MS 0.8% 21.4% 11.1% 18.6% 0.5%

MO 3.3% 15.2% 13.9% 28.1% 1.0%

NE 4.6% 25.3% 3.3% 13.0% 4.8%

NV 9.6% 17.5% 11.5% 16.8% 0.5%

NH 4.0% 23.2% 1.3% 22.2% 1.3%

NJ 1.6% 22.0% 11.0% 19.7% 1.8%

NY 5.8% 12.9% 4.1% 9.1% 0.6%

NC 1.0% 25.5% 5.7% 21.7% 3.2%

OH 3.2% 18.5% 4.9% 11.2% 0.8%

OK 0.5% 12.8% 7.3% 17.3% 1.5%

OR 7.7% 16.3% 1.5% 10.9% 0.2%

PA 3.1% 26.1% 4.2% 15.8% 2.7%

RI 3.4% 22.1% 10.4% 30.1% 0.6%

SD 8.6% 23.4% 7.2% 18.0% 1.8%

TN 0.6% 10.6% 4.9% 17.0% 1.1%

TX 2.0% 20.2% 9.5% 14.2% 1.1%

UT 4.1% 30.4% 8.2% 25.8% 1.0%

VT 3.5% 5.4% 0.0% 7.6% 0.3%

VA 2.4% 19.7% 15.1% 28.3% 2.6%

WI 5.7% 23.2% 2.2% 9.3% 0.5%

WY 3.2% 20.6% 4.8% 13.9% 3.9%

Total 3.6% 19.6% 6.9% 17.6% 1.4%



Appendices | 118

Table D40. In the past year, did you go away on vacation?

Yes No N

AL 38.0% 62.0% 382

AR 48.7% 51.3% 382

CO 54.0% 46.0% 400

CT 53.7% 46.3% 354

DE 33.8% 66.2% 373

DC 80.9% 19.1% 367

FL 46.8% 53.2% 758

GA 43.5% 56.5% 414

HI 29.6% 70.4% 402

ID 63.0% 37.0% 408

IL 49.2% 50.8% 358

IN 48.3% 51.7% 722

KS 35.7% 64.3% 378

KY 27.1% 72.9% 417

LA 35.0% 65.0% 403

ME 52.2% 47.8% 393

MI 38.5% 61.5% 494

MN 48.4% 51.6% 2,015

MS 48.0% 52.0% 398

MO 33.2% 66.8% 386

NE 37.3% 62.7% 397

NV 42.3% 57.7% 418

NH 58.1% 41.9% 396

NJ 46.6% 53.4% 386

NY 40.1% 59.9% 514

NC 56.9% 43.1% 622

OH 42.6% 57.4% 664

OK 35.7% 64.3% 398

OR 57.5% 42.5% 407

PA 47.8% 52.2% 670

RI 44.0% 56.0% 323

SD 53.6% 46.4% 278

TN 31.2% 68.8% 465

TX 38.7% 61.3% 1,391

UT 58.9% 41.1% 392

VT 56.2% 43.8% 322

VA 47.2% 52.8% 786

WI 56.8% 43.2% 548

WY 61.8% 38.2% 317

Total 46.3% 53.7% 19,898


Appendices | 119

Table D41. Who did you usually go on vacation with? ∞



Staff Others

AL 0.3% 25.5% 7.4% 14.5% 4.7%

AR 0.8% 35.4% 2.4% 17.7% 0.0%

CO 2.5% 46.3% 6.2% 9.2% 0.5%

CT 2.5% 33.0% 10.1% 19.3% 1.7%

DE 2.6% 16.3% 3.9% 14.5% 0.8%

DC 1.0% 21.8% 4.1% 60.8% 0.3%

FL 1.7% 37.4% 6.1% 8.6% 0.1%

GA 0.2% 31.4% 6.5% 13.8% 0.2%

HI 0.2% 25.9% 1.0% 4.7% 1.5%

ID 1.2% 57.6% 1.7% 7.3% 0.0%

IL 1.6% 42.1% 4.1% 4.6% 1.1%

IN 1.1% 45.0% 0.3% 3.8% 0.7%

KS 0.3% 28.0% 3.4% 4.8% 0.8%

KY 0.0% 16.4% 2.4% 12.8% 0.2%

LA 0.0% 31.7% 1.0% 6.5% 0.0%

ME 5.5% 31.8% 3.6% 22.1% 4.2%

MI 1.6% 30.9% 3.9% 8.1% 0.0%

MN 3.3% 31.6% 8.2% 16.1% 1.2%

MS 1.0% 37.9% 7.8% 11.1% 0.3%

MO 1.3% 17.4% 10.1% 19.9% 1.8%

NE 0.5% 33.2% 1.5% 6.5% 1.5%

NV 5.8% 32.1% 2.9% 6.0% 0.7%

NH 2.5% 41.5% 4.3% 15.2% 1.5%

NJ 2.4% 33.8% 11.3% 13.7% 0.5%

NY 1.0% 29.2% 7.6% 9.7% 0.6%

NC 0.5% 46.2% 5.0% 16.2% 0.2%

OH 0.3% 32.9% 3.9% 10.0% 0.5%

OK 0.5% 26.1% 2.8% 11.6% 0.5%

OR 3.5% 39.5% 4.7% 21.7% 1.2%

PA 0.8% 37.6% 1.8% 11.3% 0.6%

RI 1.2% 34.6% 4.0% 12.1% 0.6%

SD 2.5% 40.1% 9.0% 18.1% 0.7%

TN 0.0% 23.7% 3.2% 11.8% 0.0%

TX 0.4% 34.7% 2.8% 5.2% 0.4%

UT 0.5% 46.5% 4.1% 17.2% 1.5%

VT 6.2% 31.2% 1.2% 21.8% 0.6%

VA 0.8% 28.2% 14.4% 23.4% 0.6%

WI 5.1% 50.3% 1.3% 5.5% 0.7%

WY 1.6% 51.6% 4.1% 15.2% 1.9%

Total 1.7% 34.3% 5.0% 13.1% 0.8%



Appendices | 120

Table D42. Are you able to go out and do the things you like to do?

Yes In-

between No N

AL 76.2% 19.5% 4.4% 344

AR 90.7% 7.3% 2.1% 289

CO 68.9% 28.7% 2.4% 289

CT 85.6% 11.5% 2.9% 278

DE 84.8% 10.4% 4.8% 230

DC 95.7% 4.3% 0.0% 140

FL 85.8% 11.8% 2.4% 451

GA 87.4% 11.9% 0.7% 270

HI 83.8% 13.5% 2.7% 185

ID 79.7% 18.0% 2.2% 316

IL 86.6% 12.3% 1.1% 261

IN 92.0% 6.0% 2.1% 584

KS 81.9% 15.1% 3.0% 271

KY 93.3% 5.3% 1.3% 300

LA 84.4% 13.2% 2.4% 288

ME 90.9% 6.3% 2.8% 318

MI 81.6% 14.5% 3.9% 310

MN 87.5% 11.0% 1.5% 1,400

MS 85.9% 10.9% 3.3% 276

MO 85.8% 11.3% 2.8% 247

NE 73.4% 17.3% 9.3% 323

NV 78.6% 15.7% 5.7% 318

NH 77.9% 19.3% 2.8% 326

NJ 88.7% 8.9% 2.3% 213

NY 86.5% 9.6% 3.8% 342

NC 86.4% 9.8% 3.8% 369

OH 88.4% 8.7% 2.8% 493

OK 92.4% 5.7% 1.9% 210

OR 84.7% 14.2% 1.1% 281

PA 93.7% 5.4% 0.9% 447

RI 87.0% 10.9% 2.0% 247

SD 84.6% 12.7% 2.7% 259

TN 87.9% 10.6% 1.4% 348

TX 80.0% 15.1% 4.9% 1,380

UT 85.3% 10.0% 4.8% 251

VT 75.1% 21.0% 3.9% 233

VA 84.6% 10.0% 5.4% 462

WI 85.8% 11.6% 2.6% 346

WY 80.0% 17.0% 3.0% 235

Total 84.8% 12.2% 3.0% 14,130


Appendices | 121

Table D43. Do you get to do the things you like to do as much as you want to?

Yes No N

AL 46.6% 53.4% 324

AR 78.5% 21.5% 279

CO 69.5% 30.5% 272

CT 84.3% 15.7% 261

DE 67.4% 32.6% 215

DC 89.8% 10.2% 137

FL 83.8% 16.2% 421

GA 82.4% 17.6% 256

HI 79.4% 20.6% 170

ID 71.0% 29.0% 290

IL 86.6% 13.4% 246

IN 85.6% 14.4% 547

KS 81.4% 18.6% 253

KY 93.2% 6.8% 294

LA 79.5% 20.5% 278

ME 47.8% 52.2% 297

MI 67.7% 32.3% 285

MN 76.9% 23.1% 1,320

MS 82.8% 17.2% 261

MO 80.8% 19.2% 229

NE 65.2% 34.8% 273

NV 79.2% 20.8% 283

NH 55.4% 44.6% 303

NJ 82.7% 17.3% 197

NY 80.8% 19.2% 318

NC 76.1% 23.9% 343

OH 75.2% 24.8% 456

OK 78.8% 21.2% 203

OR 62.5% 37.5% 259

PA 89.2% 10.8% 418

RI 79.5% 20.5% 234

SD 74.9% 25.1% 239

TN 87.0% 13.0% 339

TX 77.5% 22.5% 1,246

UT 78.5% 21.5% 228

VT 60.3% 39.7% 219

VA 80.1% 19.9% 417

WI 67.3% 32.7% 321

WY 69.4% 30.6% 219

Total 76.1% 23.9% 13,150


Appendices | 122

Table D44. When you are at home, do you have enough things you like to do?

Yes In the

middle Not enough N

AL 71.1% 21.1% 7.8% 346

AR 81.8% 12.5% 5.7% 296

CO 72.9% 23.6% 3.4% 292

CT 86.5% 8.7% 4.7% 275

DE 57.0% 20.0% 23.0% 230

DC 87.1% 6.4% 6.4% 140

FL 85.9% 11.7% 2.4% 453

GA 84.2% 11.7% 4.0% 273

HI 81.4% 13.4% 5.2% 194

ID 82.0% 12.1% 5.9% 322

IL 84.7% 13.4% 1.9% 261

IN 92.5% 5.1% 2.4% 584

KS 85.7% 10.4% 3.9% 279

KY 94.7% 5.0% 0.3% 301

LA 83.4% 13.8% 2.8% 289

ME 69.9% 21.5% 8.5% 316

MI 81.5% 11.3% 7.2% 319

MN 85.8% 10.0% 4.3% 1,407

MS 84.9% 6.3% 8.8% 285

MO 80.6% 12.0% 7.4% 242

NE 72.2% 16.9% 10.9% 331

NV 73.3% 15.9% 10.8% 315

NH 86.3% 7.8% 5.9% 322

NJ 77.1% 18.1% 4.8% 210

NY 84.3% 9.7% 6.0% 350

NC 83.4% 11.1% 5.4% 368

OH 83.3% 9.6% 7.1% 492

OK 84.9% 7.1% 8.0% 212

OR 75.5% 16.9% 7.6% 290

PA 88.5% 5.7% 5.9% 459

RI 82.7% 11.2% 6.0% 249

SD 83.0% 10.8% 6.2% 259

TN 88.3% 6.3% 5.4% 350

TX 83.7% 8.4% 7.9% 1,389

UT 86.0% 7.0% 7.0% 257

VT 69.0% 25.7% 5.4% 261

VA 90.6% 5.2% 4.1% 459

WI 88.7% 6.2% 5.1% 354

WY 85.2% 11.0% 3.8% 236

Total 83.0% 11.1% 6.0% 14,267


Appendices | 123

Relationships (un-collapsed and un-weighted)

Table D45. Do you have friends you like to talk to or do things with?

Yes, has friends

who are not staff or family

Yes, all friends are staff or family or

cannot determine

No, does not have friends

N

AL 91.6% 2.9% 5.5% 346

AR 80.2% 11.6% 8.2% 293

CO 75.5% 13.3% 11.2% 294

CT 70.1% 18.3% 11.5% 278

DE 70.2% 18.2% 11.6% 242

DC 79.7% 9.4% 10.9% 138

FL 75.6% 16.5% 7.9% 455

GA 83.5% 8.6% 7.9% 266

HI 75.4% 17.9% 6.8% 207

ID 81.1% 5.9% 13.0% 323

IL 86.4% 9.1% 4.5% 265

IN 77.8% 12.7% 9.5% 590

KS 84.1% 10.9% 5.1% 276

KY 65.7% 32.7% 1.7% 300

LA 80.3% 8.2% 11.6% 294

ME 89.2% 4.5% 6.4% 314

MI 71.4% 14.9% 13.7% 322

MN 82.2% 11.2% 6.6% 1,403

MS 75.8% 18.6% 5.6% 285

MO 80.7% 9.6% 9.6% 249

NE 70.5% 22.3% 7.2% 349

NV 64.6% 19.6% 15.8% 316

NH 75.8% 16.8% 7.5% 322

NJ 84.0% 7.5% 8.5% 212

NY 69.2% 8.0% 22.8% 351

NC 75.8% 13.4% 10.8% 372

OH 84.5% 7.5% 8.1% 496

OK 69.5% 20.9% 9.5% 220

OR 76.7% 11.3% 12.0% 300

PA 78.7% 12.5% 8.8% 464

RI 79.1% 12.9% 8.0% 249

SD 81.5% 15.1% 3.5% 259

TN 87.5% 9.0% 3.5% 344

TX 71.8% 21.5% 6.7% 1,415

UT 75.1% 17.6% 7.3% 261

VT 73.8% 8.5% 17.7% 260

VA 81.1% 10.6% 8.3% 470

WI 82.6% 7.6% 9.8% 356

WY 80.6% 13.8% 5.6% 232

Total 77.9% 13.5% 8.7% 14,388


Appendices | 124

Table D46. Do you have a best friend, or someone you are really close to?

Yes, has a best friend

No, does not have a best friend

N

AL 84.1% 15.9% 346

AR 79.5% 20.5% 288

CO 70.1% 29.9% 291

CT 70.3% 29.7% 273

DE 78.8% 21.2% 236

DC 74.8% 25.2% 139

FL 74.5% 25.5% 428

GA 76.5% 23.5% 264

HI 70.4% 29.6% 203

ID 65.3% 34.7% 314

IL 78.4% 21.6% 259

IN 72.2% 27.8% 551

KS 72.1% 27.9% 269

KY 71.0% 29.0% 293

LA 68.4% 31.6% 291

ME 75.1% 24.9% 293

MI 70.4% 29.6% 307

MN 74.9% 25.1% 1,372

MS 79.4% 20.6% 281

MO 74.4% 25.6% 234

NE 67.6% 32.4% 321

NV 67.8% 32.2% 304

NH 72.2% 27.8% 309

NJ 74.0% 26.0% 208

NY 60.0% 40.0% 345

NC 68.9% 31.1% 367

OH 78.6% 21.4% 482

OK 76.5% 23.5% 217

OR 72.2% 27.8% 291

PA 79.3% 20.7% 434

RI 81.7% 18.3% 241

SD 81.8% 18.2% 253

TN 67.2% 32.8% 332

TX 75.9% 24.1% 1,401

UT 80.6% 19.4% 252

VT 63.6% 36.4% 253

VA 73.6% 26.4% 443

WI 74.6% 25.4% 351

WY 76.5% 23.5% 226

Total 73.9% 26.1% 13,962


Appendices | 125

Table D47. Do you want more help to make or keep in contact with your friends?

Yes Maybe No N

AL 38.8% 12.9% 48.2% 340

AR 29.7% 8.1% 62.2% 283

CO 33.3% 17.4% 49.3% 288

CT 33.5% 7.1% 59.4% 266

DE 57.7% 1.8% 40.5% 220

DC 41.4% 12.1% 46.4% 140

FL 30.3% 7.5% 62.2% 426

GA 28.2% 7.5% 64.3% 255

HI 35.5% 11.4% 53.0% 166

ID 42.4% 7.1% 50.5% 309

IL 32.6% 12.4% 55.0% 258

IN 37.2% 4.9% 57.9% 551

KS 29.4% 5.1% 65.4% 272

KY 11.7% 6.4% 81.9% 298

LA 34.4% 9.3% 56.3% 279

ME 37.6% 3.2% 59.2% 282

MI 39.9% 7.0% 53.0% 298

MN 28.0% 8.0% 64.0% 1,334

MS 32.5% 2.6% 65.0% 274

MO 28.3% 5.8% 65.9% 226

NE 40.6% 11.9% 47.4% 310

NV 52.1% 10.0% 37.9% 309

NH 45.8% 8.5% 45.8% 306

NJ 33.2% 9.0% 57.8% 199

NY 34.1% 6.4% 59.5% 328

NC 42.3% 8.5% 49.1% 352

OH 35.1% 5.1% 59.8% 473

OK 54.2% 2.5% 43.3% 201

OR 45.2% 4.4% 50.4% 272

PA 20.5% 5.4% 74.1% 424

RI 50.8% 7.1% 42.0% 238

SD 39.1% 8.6% 52.3% 243

TN 23.2% 5.8% 71.0% 345

TX 44.9% 7.5% 47.6% 1,279

UT 48.2% 4.5% 47.3% 245

VT 25.4% 9.3% 65.3% 248

VA 32.3% 8.8% 59.0% 434

WI 33.0% 2.7% 64.3% 333

WY 31.8% 6.4% 61.8% 220

Total 35.8% 7.4% 56.8% 13,524


Appendices | 126

Table D48. Can you see your friends when you want to?

Yes Sometimes

can't see friends

No, often unable to

see friends

N

AL 72.9% 24.6% 2.5% 325

AR 83.3% 11.8% 4.9% 263

CO 72.5% 20.8% 6.8% 265

CT 78.5% 13.3% 8.2% 233

DE 76.7% 14.4% 8.9% 202

DC 86.0% 12.4% 1.7% 121

FL 80.6% 13.9% 5.5% 403

GA 81.4% 15.0% 3.6% 247

HI 81.7% 13.1% 5.1% 175

ID 65.4% 22.5% 12.1% 289

IL 83.7% 13.1% 3.3% 245

IN 84.7% 9.2% 6.1% 522

KS 82.8% 12.6% 4.6% 262

KY 93.6% 5.4% 1.0% 295

LA 81.6% 14.2% 4.2% 261

ME 54.7% 37.9% 7.4% 256

MI 70.1% 20.5% 9.3% 268

MN 81.3% 14.4% 4.4% 1,282

MS 87.3% 9.0% 3.7% 268

MO 79.7% 14.2% 6.1% 212

NE 61.8% 31.6% 6.6% 304

NV 70.7% 19.5% 9.8% 266

NH 59.2% 31.3% 9.5% 294

NJ 82.4% 13.7% 3.8% 182

NY 77.7% 14.8% 7.6% 264

NC 75.7% 15.8% 8.5% 317

OH 81.7% 12.4% 5.9% 437

OK 80.4% 12.9% 6.7% 194

OR 74.7% 19.8% 5.5% 253

PA 86.5% 10.4% 3.0% 394

RI 81.7% 12.2% 6.1% 230

SD 83.1% 10.5% 6.3% 237

TN 86.8% 12.3% 0.9% 333

TX 76.7% 14.6% 8.7% 1,140

UT 80.6% 14.0% 5.4% 242

VT 56.3% 32.7% 11.1% 208

VA 83.6% 12.9% 3.5% 403

WI 74.1% 18.4% 7.5% 320

WY 79.5% 13.2% 7.3% 220

Total 78.1% 15.9% 6.0% 12,632


Appendices | 127

Table D49. Do you have other ways of talking, chatting or communicating with your friends when you cannot see them?

Yes Sometimes No N

AL 88.7% 3.7% 7.7% 326

AR 78.6% 6.8% 14.7% 266

CO 69.1% 12.3% 18.6% 269

CT 82.0% 4.8% 13.2% 228

DE 81.2% 0.0% 18.8% 197

DC 83.6% 4.1% 12.3% 122

FL 88.2% 6.2% 5.7% 406

GA 82.4% 4.1% 13.5% 245

HI 66.5% 8.5% 25.0% 176

ID 75.6% 4.5% 19.9% 291

IL 81.4% 9.9% 8.7% 242

IN 83.7% 2.6% 13.7% 504

KS 91.0% 3.1% 5.9% 256

KY 79.7% 11.0% 9.3% 291

LA 87.5% 5.5% 7.0% 256

ME 71.1% 7.2% 21.7% 277

MI 75.3% 5.4% 19.4% 279

MN 83.3% 3.7% 12.9% 1,285

MS 81.9% 4.1% 14.1% 270

MO 87.7% 2.5% 9.8% 204

NE 64.5% 16.4% 19.2% 287

NV 82.3% 5.1% 12.6% 277

NH 80.7% 8.1% 11.2% 295

NJ 74.7% 8.4% 16.9% 178

NY 84.5% 3.0% 12.5% 265

NC 72.6% 7.0% 20.4% 314

OH 80.9% 2.7% 16.4% 446

OK 88.0% 4.2% 7.8% 192

OR 81.3% 3.5% 15.2% 257

PA 84.0% 2.5% 13.5% 393

RI 86.1% 4.9% 9.0% 223

SD 86.9% 5.3% 7.8% 244

TN 77.0% 10.9% 12.1% 331

TX 76.6% 7.7% 15.7% 1,124

UT 87.9% 3.3% 8.8% 240

VT 72.8% 6.6% 20.7% 213

VA 75.6% 6.7% 17.7% 401

WI 84.8% 3.2% 12.0% 316

WY 81.2% 8.9% 9.9% 213

Total 80.6% 5.8% 13.7% 12,599


Appendices | 128

Table D50. Can you see and/or communicate with your family when you want to? (among those who do not live in the family home) º

Yes, sees family whenever wants,

or chooses not to see family

Sometimes No N

AL 69.7% 25.0% 5.3% 208

AR 84.0% 8.3% 7.7% 181

CO 71.9% 15.1% 13.0% 146

CT 82.7% 10.7% 6.5% 168

DE 82.2% 10.2% 7.6% 225

DC 83.0% 7.0% 10.0% 100

FL 75.8% 18.4% 5.8% 223

GA 86.4% 12.7% 0.8% 118

HI 57.6% 31.8% 10.6% 66

ID 76.6% 18.0% 5.4% 111

IL 76.9% 20.3% 2.8% 143

IN 88.8% 6.6% 4.6% 196

KS 82.1% 10.7% 7.1% 196

KY 52.2% 41.7% 6.1% 180

LA 74.8% 20.0% 5.2% 155

ME 57.9% 35.5% 6.6% 183

MI 73.3% 15.7% 11.0% 210

MN 87.5% 9.2% 3.3% 1,029

MS 90.0% 5.3% 4.7% 170

MO 86.5% 9.2% 4.3% 207

NE 55.8% 30.5% 13.6% 154

NV 86.1% 7.2% 6.7% 209

NH 80.2% 17.3% 2.5% 197

NJ 78.7% 10.3% 11.0% 136

NY 77.0% 17.1% 5.9% 187

NC 77.1% 15.1% 7.8% 179

OH 82.9% 10.2% 6.9% 246

OK 84.0% 6.0% 10.0% 150

OR 79.5% 14.7% 5.8% 190

PA 86.0% 10.5% 3.5% 171

RI 85.8% 7.1% 7.1% 141

SD 81.2% 13.5% 5.3% 207

TN 87.9% 7.0% 5.1% 214

TX 79.8% 13.7% 6.5% 924

UT 82.6% 11.4% 6.0% 167

VT 61.9% 28.1% 10.0% 160

VA 79.2% 14.4% 6.4% 312

WI 87.4% 7.9% 4.6% 151

WY 81.1% 14.8% 4.1% 169

Total 79.7% 14.1% 6.2% 8,479



Appendices | 129

Table D51. Do you ever feel lonely?

Yes, often Sometimes No, not

often N

AL 12.5% 37.4% 50.1% 345

AR 8.8% 28.4% 62.8% 296

CO 12.7% 40.9% 46.4% 291

CT 10.5% 24.3% 65.2% 267

DE 16.9% 23.8% 59.3% 231

DC 10.6% 42.3% 47.2% 142

FL 7.2% 33.6% 59.2% 446

GA 8.6% 26.8% 64.7% 269

HI 8.4% 27.7% 63.9% 191

ID 9.7% 39.2% 51.1% 319

IL 12.0% 31.8% 56.2% 258

IN 10.7% 25.1% 64.1% 577

KS 11.3% 37.5% 51.3% 275

KY 3.0% 34.8% 62.2% 299

LA 10.4% 28.4% 61.2% 289

ME 10.6% 37.9% 51.4% 311

MI 13.6% 37.1% 49.3% 302

MN 10.0% 32.1% 57.9% 1,384

MS 11.0% 33.9% 55.1% 283

MO 7.5% 35.4% 57.1% 226

NE 11.9% 31.8% 56.3% 311

NV 13.7% 34.5% 51.8% 307

NH 15.5% 30.1% 54.3% 322

NJ 8.4% 35.0% 56.7% 203

NY 11.6% 40.4% 48.0% 344

NC 8.8% 27.5% 63.6% 363

OH 13.4% 32.4% 54.2% 485

OK 15.0% 33.8% 51.2% 213

OR 15.5% 34.5% 50.0% 290

PA 5.1% 28.2% 66.7% 433

RI 12.2% 31.0% 56.7% 245

SD 9.9% 35.2% 54.9% 253

TN 9.2% 30.5% 60.2% 347

TX 12.6% 37.7% 49.7% 1,365

UT 13.6% 32.8% 53.6% 250

VT 9.2% 33.5% 57.4% 251

VA 7.9% 29.9% 62.2% 445

WI 14.3% 26.0% 59.7% 350

WY 15.1% 43.5% 41.4% 232

Total 10.9% 33.0% 56.1% 14,010


Appendices | 130

Table D52. Can you go on a date if you want to?

Yes, can date or is married or

living with partner

Yes, but there are some restrictions

or rules about dating

No N

AL 79.5% 2.7% 17.8% 332

AR 66.9% 21.4% 11.7% 248

CO 57.0% 16.0% 27.0% 244

CT 54.3% 16.4% 29.2% 219

DE 60.3% 27.5% 12.3% 204

DC 64.8% 13.3% 21.9% 128

FL 74.8% 12.3% 12.9% 341

GA 82.5% 9.6% 7.9% 240

HI 56.5% 20.4% 23.1% 108

ID 74.6% 13.4% 12.1% 224

IL 69.0% 12.7% 18.3% 213

IN 75.5% 11.1% 13.4% 441

KS 80.2% 11.5% 8.3% 252

KY 56.1% 33.2% 10.8% 223

LA 69.9% 16.9% 13.1% 236

ME 81.6% 15.1% 3.4% 179

MI 68.3% 16.7% 15.1% 252

MN 78.7% 12.0% 9.3% 1,099

MS 66.5% 17.9% 15.6% 218

MO 76.8% 13.2% 10.0% 190

NE 72.0% 20.1% 7.9% 254

NV 55.7% 31.2% 13.1% 282

NH 84.3% 9.6% 6.1% 293

NJ 59.3% 28.4% 12.3% 162

NY 69.8% 16.8% 13.4% 268

NC 61.8% 14.2% 23.9% 309

OH 80.5% 8.9% 10.6% 416

OK 78.2% 6.6% 15.2% 197

OR 85.7% 7.1% 7.1% 252

PA 81.8% 11.2% 6.9% 347

RI 74.5% 9.5% 15.9% 220

SD 78.5% 10.7% 10.7% 214

TN 86.4% 4.8% 8.8% 250

TX 60.6% 16.7% 22.7% 1,071

UT 75.1% 12.9% 12.0% 225

VT 89.0% 2.6% 8.4% 191

VA 66.1% 12.4% 21.5% 372

WI 74.1% 12.6% 13.3% 293

WY 73.4% 18.2% 8.4% 203

Total 72.0% 14.1% 13.9% 11,410


Appendices | 131

Satisfaction (un-collapsed)

Table D53. Do you like your home or where you live?

Yes In-between

No N

AL 87.4% 6.9% 5.7% 348

AR 91.5% 3.4% 5.1% 295

CO 88.5% 7.8% 3.7% 296

CT 89.6% 4.6% 5.7% 280

DE 83.3% 9.1% 7.6% 264

DC 90.1% 3.5% 6.3% 142

FL 88.8% 7.1% 4.1% 464

GA 92.1% 5.4% 2.5% 280

HI 92.5% 4.7% 2.8% 212

ID 91.6% 5.6% 2.8% 323

IL 88.5% 7.4% 4.1% 270

IN 96.1% 1.7% 2.2% 593

KS 88.1% 5.3% 6.7% 285

KY 95.7% 1.7% 2.6% 302

LA 91.0% 5.0% 4.0% 299

ME 83.6% 9.1% 7.3% 330

MI 87.9% 5.9% 6.2% 322

MN 87.5% 8.2% 4.3% 1,419

MS 90.9% 3.8% 5.2% 286

MO 89.5% 6.6% 3.9% 257

NE 88.4% 7.5% 4.0% 371

NV 84.2% 5.8% 10.0% 329

NH 86.5% 7.7% 5.8% 326

NJ 90.7% 2.3% 7.0% 215

NY 88.0% 6.3% 5.7% 351

NC 94.1% 2.4% 3.5% 376

OH 89.5% 6.0% 4.6% 503

OK 87.9% 6.9% 5.2% 232

OR 89.3% 5.2% 5.5% 309

PA 91.2% 5.8% 3.0% 466

RI 91.7% 4.4% 4.0% 252

SD 84.6% 7.7% 7.7% 259

TN 94.3% 2.6% 3.1% 351

TX 90.3% 4.4% 5.3% 1,529

UT 88.7% 5.6% 5.6% 266

VT 90.8% 4.8% 4.4% 294

VA 89.4% 5.3% 5.3% 492

WI 88.6% 7.9% 3.5% 368

WY 90.7% 6.8% 2.5% 237

Total 89.6% 5.7% 4.7% 14,793


Appendices | 132

Table D54. Would you like to live somewhere else?

Yes In-between

No N

AL 25.4% 4.0% 70.5% 346

AR 33.7% 6.9% 59.5% 291

CO 19.9% 13.4% 66.8% 292

CT 26.0% 5.8% 68.2% 277

DE 42.1% 2.8% 55.2% 252

DC 27.9% 11.4% 60.7% 140

FL 22.0% 8.5% 69.6% 460

GA 18.8% 11.1% 70.1% 271

HI 18.5% 4.6% 76.9% 195

ID 32.6% 11.6% 55.8% 319

IL 27.0% 10.0% 62.9% 259

IN 26.8% 4.3% 68.9% 575

KS 20.4% 15.4% 64.2% 279

KY 10.1% 2.7% 87.2% 296

LA 40.2% 10.2% 49.6% 264

ME 28.1% 11.4% 60.5% 324

MI 32.8% 8.3% 58.9% 314

MN 26.1% 11.8% 62.1% 1,360

MS 23.2% 5.4% 71.4% 280

MO 26.7% 7.2% 66.1% 251

NE 26.6% 10.1% 63.3% 346

NV 37.0% 9.9% 53.1% 322

NH 24.8% 20.8% 54.4% 318

NJ 29.2% 6.6% 64.2% 212

NY 25.4% 5.9% 68.6% 338

NC 26.6% 8.4% 64.9% 368

OH 30.1% 9.9% 60.0% 485

OK 37.1% 6.7% 56.3% 224

OR 33.7% 10.4% 55.9% 297

PA 19.6% 5.1% 75.4% 455

RI 26.7% 9.2% 64.2% 240

SD 36.1% 12.4% 51.4% 249

TN 16.0% 3.4% 80.5% 349

TX 29.7% 6.9% 63.4% 1,443

UT 34.7% 5.7% 59.5% 262

VT 25.7% 13.8% 60.5% 276

VA 28.2% 6.4% 65.4% 454

WI 31.0% 5.9% 63.1% 355

WY 26.8% 11.5% 61.7% 235

Total 27.4% 8.6% 64.1% 14,273


Appendices | 133

Table D55. Do you like where you work? (among those with a paid community job)

Yes In-between

No N

AL 95.5% 0.0% 4.5% 22

AR 92.9% 3.6% 3.6% 28

CO 89.8% 8.5% 1.7% 59

CT 91.5% 7.7% 0.9% 117

DE 88.8% 5.0% 6.3% 80

DC 91.7% 4.2% 4.2% 24

FL 89.2% 6.2% 4.6% 65

GA 93.1% 5.2% 1.7% 58

HI 97.0% 3.0% 0.0% 33

ID 85.5% 13.0% 1.4% 69

IL 96.4% 3.6% 0.0% 28

IN 94.3% 5.7% 0.0% 123

KS 95.9% 4.1% 0.0% 49

KY 100.0% 0.0% 0.0% 36

LA 94.6% 5.4% 0.0% 56

ME 85.7% 11.7% 2.6% 77

MI 91.1% 4.4% 4.4% 45

MN 89.0% 8.4% 2.6% 535

MS 91.8% 3.3% 4.9% 61

MO 96.8% 3.2% 0.0% 31

NE 89.8% 7.4% 2.8% 108

NV 85.7% 14.3% 0.0% 49

NH 86.3% 11.5% 2.3% 131

NJ n/a n/a n/a n/a

NY 78.4% 20.3% 1.4% 74

NC 94.4% 5.6% 0.0% 54

OH 91.4% 7.8% 0.9% 116

OK 96.1% 3.9% 0.0% 51

OR 88.0% 8.0% 4.0% 50

PA 93.3% 5.6% 1.1% 89

RI 92.1% 6.6% 1.3% 76

SD 93.9% 4.9% 1.2% 82

TN 96.8% 1.6% 1.6% 63

TX 94.0% 4.7% 1.3% 150

UT 85.5% 7.2% 7.2% 69

VT 93.9% 3.8% 2.3% 132

VA 97.8% 2.2% 0.0% 46

WI 97.9% 2.1% 0.0% 94

WY 89.5% 8.4% 2.1% 95

Total 91.1% 6.9% 2.0% 3,138


Appendices | 134

Table D56. Do you want to work somewhere else? (among those with a paid community job)

Yes In-

between No N

AL 13.6% 4.5% 81.8% 22

AR 21.4% 17.9% 60.7% 28

CO 20.7% 19.0% 60.3% 58

CT 29.1% 9.4% 61.5% 117

DE 40.0% 3.8% 56.3% 80

DC 17.4% 17.4% 65.2% 23

FL 23.8% 3.2% 73.0% 63

GA 22.8% 14.0% 63.2% 57

HI 15.2% 9.1% 75.8% 33

ID 31.9% 8.7% 59.4% 69

IL 22.2% 7.4% 70.4% 27

IN 25.4% 13.1% 61.5% 122

KS 17.0% 14.9% 68.1% 47

KY 5.7% 5.7% 88.6% 35

LA 33.9% 10.7% 55.4% 56

ME 24.7% 15.1% 60.3% 73

MI 25.0% 9.1% 65.9% 44

MN 28.0% 13.8% 58.2% 514

MS 29.5% 8.2% 62.3% 61

MO 17.9% 7.1% 75.0% 28

NE 21.9% 10.5% 67.6% 105

NV 42.9% 20.4% 36.7% 49

NH 29.8% 22.6% 47.6% 124

NJ n/a n/a n/a n/a

NY 33.8% 14.1% 52.1% 71

NC 23.5% 9.8% 66.7% 51

OH 28.4% 6.9% 64.7% 116

OK 42.0% 10.0% 48.0% 50

OR 36.2% 14.9% 48.9% 47

PA 18.3% 4.9% 76.8% 82

RI 24.0% 9.3% 66.7% 75

SD 21.0% 16.0% 63.0% 81

TN 25.8% 9.7% 64.5% 62

TX 23.6% 13.9% 62.5% 144

UT 34.8% 10.1% 55.1% 69

VT 31.2% 10.4% 58.4% 125

VA 28.3% 10.9% 60.9% 46

WI 28.7% 10.6% 60.6% 94

WY 25.8% 15.1% 59.1% 93

Total 27.1% 12.0% 60.9% 3,054


Appendices | 135

Table D57. Attends a day program or workshop and wants to go more, less, or the same amount of time º

More Time Same Amount of

Time

Less Time Does Not Want to

Spend Time There

N

AL 15.6% 69.8% 12.1% 2.5% 321

AR 19.3% 64.5% 15.7% 0.6% 166

CO 28.3% 59.6% 8.1% 4.0% 198

CT 25.2% 66.2% 5.8% 2.9% 139

DE 31.5% 42.0% 17.7% 8.8% 181

DC 41.6% 52.2% 5.3% 0.9% 113

FL 7.1% 84.3% 6.6% 2.0% 198

GA 4.0% 82.6% 13.4% 0.0% 201

HI 25.0% 68.8% 6.3% 0.0% 128

ID 18.9% 66.4% 10.7% 4.1% 122

IL 25.7% 59.9% 12.4% 2.0% 202

IN 15.7% 70.3% 13.4% 0.7% 306

KS 13.2% 65.7% 20.1% 1.0% 204

KY 4.1% 83.4% 12.0% 0.5% 217

LA 17.9% 62.8% 13.8% 5.5% 145

ME 11.7% 78.4% 9.4% 0.5% 213

MI 18.8% 63.6% 12.3% 5.2% 154

MN 19.9% 63.0% 13.6% 3.4% 682

MS 23.9% 60.5% 12.2% 3.4% 205

MO 10.0% 80.0% 8.3% 1.7% 120

NE 6.8% 69.2% 18.8% 5.1% 234

NV 28.2% 54.2% 15.3% 2.3% 216

NH 30.0% 58.9% 11.1% 0.0% 190

NJ 22.5% 64.3% 11.5% 1.6% 182

NY 10.3% 79.3% 7.4% 3.0% 203

NC 23.8% 62.4% 10.0% 3.8% 210

OH 19.5% 67.3% 11.4% 1.7% 297

OK 18.9% 54.4% 21.1% 5.6% 90

OR 27.4% 56.0% 15.5% 1.2% 84

PA 16.8% 75.2% 5.6% 2.4% 250

RI 25.1% 63.1% 10.6% 1.1% 179

SD 14.8% 63.7% 18.5% 3.0% 135

TN 16.8% 76.6% 6.6% 0.0% 137

TX 23.4% 57.3% 14.5% 4.8% 1,047

UT 20.5% 64.0% 9.9% 5.6% 161

VT 21.4% 69.6% 5.4% 3.6% 56

VA 13.0% 76.8% 7.4% 2.8% 285

WI 26.8% 56.4% 14.1% 2.7% 149

WY 15.6% 59.8% 22.1% 2.5% 122

Total 19.3% 65.6% 12.3% 2.8% 8,442

º Question changed from previous years


Appendices | 136

Table D58. Services and Supports help person live a good life

Yes In-

between No N

AL 95.1% 3.8% 1.2% 346

AR 94.2% 3.7% 2.0% 295

CO 78.4% 21.0% 0.7% 291

CT 92.7% 4.7% 2.5% 275

DE 87.7% 6.6% 5.7% 227

DC 89.4% 9.9% 0.7% 141

FL 92.0% 6.9% 1.1% 450

GA 93.7% 5.9% 0.4% 269

HI 92.1% 6.3% 1.6% 189

ID 87.6% 9.9% 2.5% 314

IL 91.5% 6.9% 1.5% 259

IN 96.0% 3.8% 0.2% 574

KS 90.2% 7.9% 1.9% 265

KY 94.3% 5.4% 0.3% 299

LA 89.3% 9.3% 1.4% 289

ME 87.1% 10.7% 2.3% 309

MI 87.3% 10.5% 2.2% 314

MN 92.2% 6.5% 1.4% 1,391

MS 94.0% 4.6% 1.4% 281

MO 93.0% 5.8% 1.2% 242

NE 76.7% 13.0% 10.4% 347

NV 85.2% 12.5% 2.3% 311

NH 89.8% 8.3% 1.9% 324

NJ 89.6% 7.1% 3.3% 211

NY 85.4% 11.7% 2.9% 349

NC 93.7% 5.2% 1.1% 366

OH 93.0% 4.9% 2.1% 485

OK 91.1% 8.0% 0.9% 213

OR 86.5% 12.1% 1.4% 289

PA 91.9% 6.3% 1.8% 442

RI 92.7% 5.7% 1.6% 246

SD 89.0% 9.1% 2.0% 254

TN 98.0% 1.1% 0.9% 350

TX 92.8% 4.4% 2.8% 1,360

UT 92.0% 6.4% 1.6% 251

VT 88.6% 9.7% 1.7% 236

VA 91.7% 5.0% 3.3% 457

WI 92.9% 5.4% 1.7% 350

WY 89.5% 8.9% 1.7% 237

Total 90.9% 7.1% 2.0% 14,098


Appendices | 137

Service Coordination (un-collapsed and un-weighted)

Table D59. Have you met your case manager/service coordinator?

Yes Maybe No N

AL 97.7% 0.9% 1.4% 346

AR 93.8% 4.5% 1.7% 290

CO 91.3% 2.8% 5.9% 289

CT 95.0% 2.5% 2.5% 278

DE 89.7% 2.8% 7.5% 214

DC 92.2% 5.0% 2.8% 141

FL 99.1% 0.7% 0.2% 461

GA 94.4% 4.1% 1.5% 266

HI 84.8% 13.6% 1.6% 191

ID 93.9% 2.3% 3.9% 309

IL 94.2% 5.4% 0.4% 260

IN 95.9% 2.0% 2.1% 564

KS 98.9% 0.4% 0.7% 277

KY 98.7% 1.0% 0.3% 300

LA 97.1% 1.8% 1.1% 275

ME 97.7% 1.0% 1.3% 302

MI 96.8% 1.9% 1.3% 314

MN 93.8% 1.7% 4.6% 1,377

MS 91.9% 4.2% 3.9% 259

MO 96.7% 1.7% 1.7% 241

NE 97.0% 1.6% 1.4% 365

NV 90.5% 4.1% 5.4% 315

NH 95.3% 1.6% 3.1% 321

NJ 88.6% 4.5% 7.0% 201

NY 93.6% 2.6% 3.8% 346

NC 94.9% 1.9% 3.2% 314

OH 93.8% 2.1% 4.2% 481

OK 91.9% 1.0% 7.2% 209

OR 95.7% 1.1% 3.2% 279

PA 97.8% 0.4% 1.8% 451

RI 93.0% 5.2% 1.7% 230

SD 92.8% 2.8% 4.4% 249

TN 99.7% 0.0% 0.3% 342

TX 95.9% 1.2% 2.8% 1,371

UT 98.8% 1.2% 0.0% 258

VT 99.2% 0.4% 0.4% 259

VA 94.3% 3.3% 2.4% 458

WI 97.4% 0.9% 1.7% 349

WY 99.1% 0.9% 0.0% 233

Total 95.2% 2.1% 2.7% 13,985


Appendices | 138

Table D60. Does your case manager/service coordinator ask what you want?

Yes Sometimes No N

AL 93.5% 3.8% 2.7% 339

AR 90.6% 4.9% 4.5% 286

CO 84.8% 12.6% 2.6% 269

CT 88.0% 8.1% 3.9% 259

DE 76.5% 5.3% 18.2% 187

DC 83.9% 12.4% 3.6% 137

FL 96.7% 2.0% 1.3% 453

GA 88.0% 8.4% 3.6% 249

HI 79.5% 13.0% 7.5% 161

ID 87.1% 7.5% 5.4% 294

IL 88.4% 7.2% 4.4% 251

IN 96.5% 2.2% 1.3% 536

KS 85.9% 9.6% 4.4% 270

KY 94.3% 5.1% 0.7% 296

LA 94.1% 4.4% 1.5% 270

ME 80.3% 11.3% 8.5% 284

MI 84.3% 8.8% 6.9% 306

MN 84.3% 8.4% 7.3% 1,294

MS 87.4% 5.3% 7.3% 247

MO 88.1% 7.1% 4.9% 226

NE 84.4% 11.4% 4.2% 308

NV 75.3% 14.2% 10.4% 288

NH 77.9% 11.2% 10.9% 294

NJ 86.2% 5.3% 8.5% 188

NY 86.4% 6.8% 6.8% 323

NC 87.8% 6.3% 5.9% 304

OH 87.7% 8.3% 4.0% 447

OK 80.0% 8.9% 11.1% 190

OR 81.3% 8.0% 10.8% 251

PA 92.1% 5.0% 2.9% 417

RI 89.1% 7.2% 3.6% 221

SD 83.3% 11.1% 5.6% 234

TN 97.9% 1.8% 0.3% 340

TX 87.1% 7.1% 5.8% 1,319

UT 88.8% 5.0% 6.2% 241

VT 76.2% 13.4% 10.4% 231

VA 90.6% 6.2% 3.2% 434

WI 85.5% 6.6% 7.9% 331

WY 87.7% 8.9% 3.4% 235

Total 87.2% 7.4% 5.4% 13,210


Appendices | 139

Table D61. Are you able to contact your case manager/service coordinator when you want to?

Yes Sometimes No N

AL 82.7% 5.4% 11.9% 336

AR 94.4% 3.1% 2.4% 286

CO 88.2% 11.1% 0.8% 262

CT 84.1% 6.7% 9.1% 252

DE 67.3% 4.8% 27.9% 165

DC 81.0% 9.5% 9.5% 137

FL 92.4% 4.8% 2.8% 434

GA 81.7% 6.1% 12.2% 213

HI 81.3% 7.3% 11.3% 150

ID 85.8% 4.4% 9.8% 296

IL 88.1% 8.1% 3.8% 235

IN 97.2% 0.6% 2.2% 498

KS 83.2% 11.2% 5.6% 268

KY 93.6% 5.4% 1.0% 299

LA 90.8% 6.5% 2.7% 262

ME 86.7% 6.9% 6.4% 218

MI 81.9% 9.6% 8.5% 293

MN 89.0% 5.2% 5.8% 1,186

MS 86.2% 5.5% 8.3% 218

MO 83.3% 5.3% 11.5% 209

NE 89.2% 8.5% 2.3% 259

NV 74.3% 11.5% 14.2% 288

NH 81.0% 10.0% 9.0% 289

NJ 84.6% 6.3% 9.1% 175

NY 86.2% 7.7% 6.1% 311

NC 87.8% 6.1% 6.1% 296

OH 87.9% 6.5% 5.6% 447

OK 90.3% 1.5% 8.2% 195

OR 84.4% 6.2% 9.3% 257

PA 90.3% 3.5% 6.2% 341

RI 91.7% 5.1% 3.2% 216

SD 87.6% 5.6% 6.9% 233

TN 95.2% 3.6% 1.2% 335

TX 85.3% 7.2% 7.5% 1,323

UT 88.4% 4.1% 7.4% 242

VT 78.4% 10.0% 11.6% 190

VA 79.4% 5.2% 15.4% 422

WI 92.2% 2.4% 5.4% 332

WY 83.6% 8.9% 7.6% 225

Total 86.8% 6.1% 7.1% 12,593


Appendices | 140

Table D62. Did you take part in the last service planning meeting?

Yes Had option

but chose not to

No N

AL 98.2% 0.3% 1.5% 338

AR 97.2% 1.6% 1.2% 246

CO 88.7% 7.0% 4.3% 257

CT 98.0% 0.4% 1.6% 245

DE 94.5% 0.0% 5.5% 128

DC 96.7% 1.7% 1.7% 120

FL 99.5% 0.0% 0.5% 426

GA 98.1% 1.6% 0.4% 257

HI 76.3% 19.9% 3.8% 156

ID 95.8% 0.8% 3.4% 265

IL 97.6% 1.6% 0.8% 251

IN 96.0% 0.6% 3.4% 501

KS 95.8% 1.1% 3.1% 262

KY 97.2% 2.4% 0.3% 287

LA 98.8% 0.8% 0.4% 249

ME 99.2% 0.0% 0.8% 256

MI 96.7% 0.0% 3.3% 276

MN 96.7% 1.1% 2.2% 1,145

MS 94.9% 1.7% 3.4% 176

MO 97.8% 0.9% 1.3% 224

NE 98.2% 1.1% 0.7% 278

NV 95.6% 1.2% 3.2% 250

NH 98.1% 1.1% 0.8% 265

NJ 97.3% 1.6% 1.1% 186

NY 97.6% 0.3% 2.1% 286

NC 96.4% 0.7% 2.9% 277

OH 96.2% 0.9% 2.8% 423

OK 98.0% 0.5% 1.5% 198

OR 97.4% 0.4% 2.2% 227

PA 98.9% 0.3% 0.8% 374

RI 97.6% 0.0% 2.4% 210

SD 97.9% 0.5% 1.6% 189

TN 95.8% 2.4% 1.8% 334

TX 93.2% 2.4% 4.4% 1,018

UT 95.9% 0.9% 3.2% 220

VT 95.9% 0.0% 4.1% 172

VA 97.5% 0.3% 2.3% 400

WI 97.8% 0.0% 2.2% 322

WY 98.6% 0.5% 0.9% 217

Total 96.4% 1.3% 2.2% 11,911


Appendices | 141

Table D63. At the service planning meeting, did you know what was being talked about?

Yes In-

between No N

AL 91.9% 4.2% 3.9% 333

AR 84.6% 12.5% 2.9% 240

CO 72.4% 23.1% 4.4% 225

CT 82.8% 12.9% 4.3% 233

DE 85.6% 4.8% 9.6% 104

DC 75.0% 18.1% 6.9% 116

FL 91.1% 6.7% 2.2% 417

GA 89.8% 9.4% 0.8% 244

HI 63.4% 24.1% 12.5% 112

ID 75.0% 20.5% 4.5% 244

IL 87.9% 10.5% 1.6% 247

IN 83.3% 10.6% 6.1% 472

KS 81.7% 16.3% 2.0% 251

KY 93.1% 5.8% 1.1% 277

LA 91.3% 7.9% 0.8% 241

ME 75.5% 20.5% 4.0% 249

MI 73.3% 19.0% 7.8% 258

MN 82.6% 13.3% 4.1% 1,076

MS 75.5% 14.7% 9.8% 163

MO 84.4% 11.4% 4.3% 211

NE 82.4% 14.9% 2.7% 261

NV 81.8% 12.6% 5.6% 231

NH 79.5% 17.4% 3.1% 258

NJ 87.2% 10.6% 2.2% 180

NY 88.4% 8.0% 3.6% 276

NC 85.9% 10.6% 3.5% 255

OH 79.2% 15.3% 5.5% 399

OK 75.1% 15.7% 9.2% 185

OR 81.7% 14.4% 4.0% 202

PA 84.4% 10.9% 4.7% 358

RI 85.3% 12.2% 2.5% 197

SD 86.3% 10.4% 3.3% 182

TN 82.7% 16.7% 0.6% 312

TX 68.9% 18.1% 13.0% 915

UT 87.5% 8.7% 3.8% 208

VT 78.9% 18.0% 3.1% 161

VA 83.1% 12.7% 4.2% 379

WI 74.5% 18.6% 6.9% 306

WY 79.0% 18.1% 2.9% 210

Total 81.7% 13.5% 4.8% 11,188


Appendices | 142

Table D64. Did the service planning meeting include the people you wanted to be there?

Yes In-

between No N

AL 95.4% 2.4% 2.1% 329

AR 89.8% 7.7% 2.6% 235

CO 91.1% 8.0% 0.9% 224

CT 94.4% 2.6% 3.0% 234

DE 74.5% 12.7% 12.7% 110

DC 85.2% 11.3% 3.5% 115

FL 95.7% 2.2% 2.2% 414

GA 96.8% 1.6% 1.6% 248

HI 88.1% 10.1% 1.8% 109

ID 95.1% 2.9% 2.1% 243

IL 94.2% 2.9% 2.9% 241

IN 95.5% 3.0% 1.5% 469

KS 94.8% 4.4% 0.8% 248

KY 96.7% 3.3% 0.0% 276

LA 94.2% 3.3% 2.5% 242

ME 90.2% 6.9% 2.9% 245

MI 91.1% 2.7% 6.2% 259

MN 96.2% 2.9% 0.9% 1,078

MS 97.0% 1.2% 1.8% 165

MO 94.3% 4.8% 1.0% 209

NE 92.8% 5.3% 1.9% 263

NV 89.4% 5.5% 5.1% 236

NH 90.2% 6.3% 3.5% 255

NJ 92.0% 5.7% 2.3% 175

NY 92.5% 3.8% 3.8% 266

NC 92.6% 5.1% 2.3% 257

OH 93.3% 3.3% 3.3% 389

OK 86.5% 6.7% 6.7% 193

OR 90.8% 5.3% 3.9% 207

PA 95.3% 2.2% 2.5% 359

RI 92.5% 6.0% 1.5% 201

SD 96.1% 2.2% 1.7% 180

TN 96.2% 3.2% 0.6% 314

TX 93.9% 3.3% 2.8% 904

UT 89.9% 6.3% 3.9% 207

VT 82.1% 7.7% 10.3% 156

VA 94.5% 2.9% 2.6% 380

WI 95.2% 2.3% 2.6% 310

WY 90.3% 6.8% 2.9% 206

Total 93.3% 4.1% 2.6% 11,151


Appendices | 143

Table D65. Were you able to choose the services that you get as part of your service plan?

Yes Had some

input No N

AL 76.0% 19.6% 4.4% 341

AR 79.5% 15.7% 4.8% 249

CO 60.2% 31.0% 8.8% 261

CT 78.6% 15.8% 5.6% 234

DE 76.5% 9.6% 13.9% 115

DC 73.8% 21.3% 4.9% 122

FL 91.5% 7.6% 0.9% 423

GA 88.2% 11.0% 0.8% 246

HI 51.1% 37.0% 11.9% 135

ID 77.2% 18.5% 4.2% 259

IL 75.6% 20.7% 3.7% 246

IN 76.9% 12.8% 10.3% 476

KS 79.3% 19.2% 1.5% 261

KY 88.5% 10.4% 1.0% 288

LA 86.8% 11.1% 2.1% 243

ME 88.4% 8.9% 2.7% 225

MI 71.4% 19.8% 8.8% 273

MN 70.3% 25.0% 4.7% 1,074

MS 75.7% 19.1% 5.2% 173

MO 77.7% 18.8% 3.6% 197

NE 66.7% 29.6% 3.7% 270

NV 72.4% 16.3% 11.3% 239

NH 63.8% 28.3% 7.9% 254

NJ 63.8% 31.1% 5.1% 177

NY 72.8% 18.1% 9.1% 276

NC 73.3% 22.7% 4.0% 251

OH 79.2% 12.2% 8.7% 403

OK 76.7% 16.6% 6.7% 193

OR 77.3% 18.2% 4.4% 203

PA 80.9% 15.3% 3.8% 346

RI 81.5% 14.6% 3.9% 205

SD 75.1% 23.8% 1.0% 193

TN 81.5% 16.5% 2.0% 346

TX 60.8% 31.0% 8.1% 973

UT 89.6% 6.1% 4.2% 212

VT 63.3% 31.4% 5.3% 169

VA 82.3% 13.0% 4.7% 385

WI 72.6% 18.5% 8.9% 292

WY 74.7% 22.6% 2.8% 217

Total 75.1% 19.5% 5.4% 11,445


Appendices | 144

Table D66. Do your staff come and leave when they are supposed to?

Yes Maybe,

not sure No N

AL 94.4% 4.7% 1.0% 301

AR 96.8% 2.2% 1.1% 278

CO 89.1% 9.7% 1.2% 247

CT 93.6% 4.7% 1.7% 236

DE 89.2% 4.4% 6.4% 204

DC 93.9% 5.3% 0.8% 131

FL 95.3% 3.0% 1.7% 406

GA 89.4% 10.2% 0.4% 254

HI 91.3% 4.7% 4.0% 149

ID 95.1% 3.7% 1.2% 245

IL 94.9% 3.8% 1.3% 234

IN 95.0% 3.1% 1.9% 484

KS 88.3% 11.3% 0.4% 248

KY 95.5% 3.8% 0.7% 287

LA 95.4% 3.8% 0.8% 263

ME 93.7% 5.9% 0.4% 270

MI 92.0% 6.5% 1.5% 261

MN 92.8% 5.9% 1.2% 1,244

MS 97.7% 1.9% 0.4% 265

MO 92.7% 5.5% 1.8% 218

NE 82.8% 15.2% 2.0% 296

NV 87.6% 5.8% 6.6% 259

NH 90.7% 7.3% 2.0% 301

NJ 85.0% 11.2% 3.7% 187

NY 91.5% 7.0% 1.5% 271

NC 96.5% 2.5% 0.9% 317

OH 92.6% 3.9% 3.4% 380

OK 92.6% 2.1% 5.3% 188

OR 92.3% 4.5% 3.2% 222

PA 94.6% 4.5% 0.9% 331

RI 93.4% 6.2% 0.4% 227

SD 90.5% 5.9% 3.6% 221

TN 98.3% 0.9% 0.9% 343

TX 90.0% 8.1% 1.9% 1,091

UT 91.6% 6.7% 1.7% 239

VT 90.4% 6.7% 2.9% 208

VA 91.2% 7.1% 1.7% 420

WI 90.6% 5.3% 4.1% 244

WY 90.7% 5.6% 3.7% 216

Total 92.4% 5.7% 1.9% 12,186


Appendices | 145

Access (un-collapsed and un-weighted)

Table D67. Do you have a way to get places you need to go?

Yes, almost

always Sometimes No, almost

never N

AL 89.9% 9.6% 0.6% 345

AR 97.3% 2.7% 0.0% 294

CO 88.5% 11.1% 0.3% 296

CT 94.6% 4.7% 0.7% 277

DE 96.0% 3.1% 0.9% 225

DC 82.1% 14.3% 3.6% 140

FL 88.1% 10.8% 1.1% 455

GA 88.4% 10.9% 0.7% 267

HI 93.6% 5.9% 0.5% 202

ID 93.1% 5.6% 1.2% 321

IL 80.8% 19.2% 0.0% 260

IN 96.2% 3.8% 0.0% 579

KS 91.7% 8.0% 0.4% 276

KY 91.3% 8.0% 0.7% 300

LA 90.7% 8.7% 0.7% 289

ME 96.8% 2.9% 0.3% 315

MI 86.6% 11.2% 2.2% 322

MN 96.4% 3.2% 0.4% 1,412

MS 94.0% 4.9% 1.1% 285

MO 92.1% 7.0% 0.8% 242

NE 75.2% 22.4% 2.3% 343

NV 93.9% 4.8% 1.3% 314

NH 92.9% 6.5% 0.6% 323

NJ 86.3% 13.7% 0.0% 211

NY 93.7% 6.0% 0.3% 351

NC 93.6% 5.9% 0.5% 373

OH 94.3% 5.3% 0.4% 492

OK 97.6% 1.4% 1.0% 209

OR 93.2% 5.7% 1.1% 280

PA 95.6% 3.9% 0.4% 456

RI 94.2% 4.1% 1.7% 242

SD 93.3% 5.5% 1.2% 255

TN 96.6% 2.6% 0.9% 349

TX 94.2% 4.5% 1.3% 1,390

UT 93.7% 3.9% 2.4% 254

VT 96.1% 3.9% 0.0% 257

VA 95.0% 4.1% 0.9% 458

WI 96.3% 3.1% 0.6% 355

WY 90.8% 7.4% 1.7% 229

Total 92.9% 6.3% 0.8% 14,243


Appendices | 146

Table D68. Are you able to get places when you want to do something outside your home, like going out to see friends, for entertainment, or to do something fun?

Yes, almost

always Sometimes No, almost

never N

AL 85.7% 13.5% 0.9% 342

AR 84.7% 13.2% 2.0% 295

CO 74.9% 22.0% 3.1% 291

CT 84.6% 11.8% 3.6% 280

DE 82.6% 14.2% 3.2% 219

DC 76.5% 20.6% 2.9% 136

FL 80.6% 17.0% 2.4% 453

GA 79.4% 19.1% 1.5% 262

HI 89.7% 7.7% 2.6% 195

ID 81.4% 13.4% 5.3% 322

IL 72.7% 25.4% 1.9% 260

IN 90.3% 9.0% 0.7% 575

KS 79.8% 15.1% 5.1% 272

KY 91.2% 8.1% 0.7% 297

LA 84.7% 14.6% 0.7% 288

ME 66.2% 28.0% 5.8% 311

MI 74.9% 19.7% 5.4% 315

MN 86.3% 11.9% 1.9% 1,405

MS 81.4% 12.5% 6.1% 280

MO 88.0% 10.8% 1.2% 241

NE 55.3% 33.4% 11.2% 338

NV 79.3% 15.9% 4.9% 309

NH 66.3% 29.4% 4.4% 320

NJ 79.7% 18.9% 1.4% 212

NY 84.6% 12.3% 3.1% 350

NC 83.7% 13.3% 3.0% 368

OH 86.6% 10.3% 3.0% 493

OK 88.9% 10.6% 0.5% 208

OR 80.5% 16.0% 3.5% 282

PA 91.8% 7.3% 0.9% 453

RI 79.4% 16.2% 4.5% 247

SD 83.6% 14.4% 2.0% 250

TN 95.2% 4.6% 0.3% 351

TX 83.5% 11.9% 4.6% 1,359

UT 86.5% 7.5% 6.0% 252

VT 67.8% 26.4% 5.9% 239

VA 84.6% 9.9% 5.5% 455

WI 85.8% 9.8% 4.3% 346

WY 81.4% 14.8% 3.8% 237

Total 82.4% 14.3% 3.3% 14,108


Appendices | 147

Table D69. Do you feel that your staff have the right training to meet your needs? (does not include responses from proxies who were staff) º

Yes Maybe,

not sure No N

AL 94.8% 4.5% 0.6% 309

AR 96.5% 2.1% 1.4% 284

CO 74.5% 22.2% 3.4% 325

CT 89.3% 8.6% 2.1% 243

DE 84.9% 8.3% 6.8% 192

DC 95.0% 3.5% 1.4% 141

FL 91.4% 7.2% 1.4% 571

GA 93.4% 6.6% 0.0% 272

HI 84.0% 12.5% 3.5% 200

ID 78.1% 16.7% 5.2% 324

IL 94.2% 4.5% 1.2% 242

IN 91.6% 6.4% 2.1% 580

KS 92.6% 7.1% 0.4% 283

KY 94.4% 2.8% 2.8% 323

LA 94.2% 4.4% 1.4% 293

ME 91.6% 6.6% 1.8% 274

MI 90.2% 7.8% 2.0% 295

MN 89.6% 8.7% 1.6% 1,410

MS 89.4% 7.9% 2.7% 368

MO 90.7% 6.2% 3.1% 225

NE 73.5% 24.0% 2.5% 283

NV 80.4% 12.3% 7.3% 317

NH 88.4% 8.4% 3.1% 320

NJ 86.6% 11.3% 2.1% 194

NY 84.2% 11.9% 3.9% 310

NC 88.8% 8.0% 3.2% 465

OH 93.4% 4.5% 2.1% 426

OK 91.9% 5.2% 2.8% 211

OR 83.3% 12.7% 4.0% 252

PA 92.6% 5.9% 1.5% 408

RI 90.9% 8.1% 1.0% 209

SD 87.7% 10.3% 2.1% 195

TN 97.2% 1.4% 1.4% 354

TX 89.2% 6.7% 4.1% 585

UT 90.1% 7.2% 2.7% 293

VT 90.5% 8.6% 1.0% 210

VA 88.0% 8.6% 3.4% 526

WI 85.1% 10.7% 4.2% 383

WY 89.7% 7.7% 2.7% 261

Total 89.2% 8.3% 2.5% 13,356

º Question changed from previous years – data no longer include staff who served as proxy


Appendices | 148

Health (un-collapsed)

Table D70. Does this person have a primary care doctor or primary care practitioner?

Yes No N

AL 99.2% 0.8% 384

AR 96.7% 3.3% 396

CO 98.9% 1.1% 372

CT 98.9% 1.1% 369

DE 99.2% 0.8% 387

DC 100.0% 0.0% 379

FL 98.2% 1.8% 761

GA 96.7% 3.3% 449

HI 98.5% 1.5% 400

ID 100.0% 0.0% 410

IL 98.1% 1.9% 372

IN 97.3% 2.7% 734

KS 97.7% 2.3% 384

KY 96.9% 3.1% 417

LA 97.8% 2.2% 412

ME 97.2% 2.8% 396

MI 98.2% 1.8% 503

MN 96.6% 3.4% 2,026

MS 94.3% 5.8% 400

MO 99.0% 1.0% 398

NE 97.4% 2.6% 389

NV 95.7% 4.3% 419

NH 98.5% 1.5% 400

NJ 98.5% 1.5% 398

NY 97.7% 2.3% 526

NC 98.2% 1.8% 713

OH 96.9% 3.1% 669

OK 98.5% 1.5% 400

OR 95.2% 4.8% 397

PA 96.6% 3.4% 680

RI 97.7% 2.3% 351

SD 96.4% 3.6% 334

TN 99.4% 0.6% 487

TX 98.4% 1.6% 2,028

UT 98.8% 1.3% 400

VT 98.8% 1.2% 328

VA 98.6% 1.4% 775

WI 88.8% 11.3% 80

WY 98.5% 1.5% 326

Total 97.8% 2.2% 20,449


Appendices | 149

Table D71. Overall, how would you describe your health?

Excellent Very Good Fairly

Good Poor N

AL 16.2% 64.9% 18.1% 0.8% 382

AR 17.5% 46.0% 33.9% 2.6% 383

CO 16.4% 48.8% 29.1% 5.7% 402

CT 20.8% 55.5% 21.1% 2.5% 355

DE 24.9% 45.2% 25.7% 4.2% 378

DC 26.1% 54.3% 18.9% 0.8% 387

FL 22.8% 48.1% 26.4% 2.8% 755

GA 21.7% 59.0% 18.1% 1.1% 442

HI 9.2% 35.3% 54.0% 1.5% 402

ID 19.9% 40.4% 32.8% 6.9% 408

IL 23.3% 52.1% 22.5% 2.2% 365

IN 21.1% 47.9% 29.2% 1.8% 726

KS 13.7% 35.1% 48.2% 3.1% 388

KY 4.5% 32.9% 51.0% 11.7% 420

LA 19.2% 46.4% 31.0% 3.4% 407

ME 23.5% 46.5% 27.9% 2.1% 387

MI 18.2% 46.8% 32.8% 2.2% 494

MN 20.3% 51.7% 25.1% 2.9% 2,015

MS 13.9% 52.6% 30.0% 3.5% 403

MO 18.4% 46.8% 32.7% 2.0% 391

NE 12.8% 38.3% 36.7% 12.2% 392

NV 23.5% 46.7% 26.5% 3.3% 422

NH 24.2% 47.6% 25.4% 2.8% 397

NJ 9.2% 64.9% 25.1% 0.8% 390

NY 19.5% 52.3% 26.6% 1.5% 522

NC 21.5% 46.8% 29.4% 2.4% 637

OH 19.0% 48.1% 29.0% 3.9% 663

OK 19.1% 49.9% 25.4% 5.5% 397

OR 18.4% 48.6% 29.7% 3.2% 407

PA 19.9% 47.9% 29.9% 2.2% 678

RI 21.1% 48.0% 27.8% 3.0% 331

SD 15.8% 49.1% 32.3% 2.8% 285

TN 19.2% 49.1% 30.3% 1.5% 475

TX 21.1% 51.8% 24.6% 2.4% 1,414

UT 23.3% 47.9% 24.8% 4.0% 399

VT 17.9% 52.8% 24.5% 4.7% 318

VA 19.1% 45.7% 32.0% 3.1% 796

WI 17.0% 50.0% 29.0% 4.0% 552

WY 17.1% 37.8% 40.6% 4.4% 315

Total 19.1% 48.6% 29.0% 3.2% 20,080


Appendices | 150

Table D72. When was his/her last complete annual physical exam?

In the past year

One year ago or

more

N

AL 96.1% 3.9% 382

AR 96.3% 3.7% 379

CO 88.0% 12.0% 350

CT 92.9% 7.1% 339

DE 84.8% 15.2% 388

DC 75.5% 24.5% 376

FL 92.7% 7.3% 755

GA 89.2% 10.8% 437

HI 76.8% 23.2% 396

ID 49.8% 50.2% 253

IL 83.5% 16.5% 352

IN 89.1% 10.9% 708

KS 81.2% 18.8% 362

KY 92.4% 7.6% 394

LA 96.2% 3.8% 398

ME 89.0% 11.0% 390

MI 90.0% 10.0% 459

MN 61.4% 38.6% 2,009

MS 82.2% 17.8% 359

MO 95.3% 4.7% 386

NE 77.5% 22.5% 365

NV 87.8% 12.2% 409

NH 92.1% 7.9% 390

NJ 91.2% 8.8% 387

NY 86.6% 13.4% 479

NC 90.2% 9.8% 672

OH 88.3% 11.7% 547

OK 97.3% 2.8% 400

OR 85.5% 14.5% 386

PA 93.5% 6.5% 657

RI 95.3% 4.7% 317

SD 95.8% 4.2% 312

TN 89.5% 10.5% 474

TX 93.3% 6.7% 1,933

UT 90.4% 9.6% 376

VT 83.5% 16.5% 322

VA 83.0% 17.0% 748

WI 91.7% 8.3% 72

WY 78.4% 21.6% 320

Total 85.8% 14.2% 19,438


Appendices | 151

Table D73. When was his/her last dentist exam?

Within the last six months

Within the past year

One year ago or

more

N

AL 53.4% 25.8% 20.8% 337

AR 43.5% 38.9% 17.6% 301

CO 33.5% 36.9% 29.5% 325

CT 66.4% 29.1% 4.5% 330

DE 39.8% 55.4% 4.8% 372

DC 15.3% 61.9% 22.8% 320

FL 45.5% 37.1% 17.3% 738

GA 43.2% 35.7% 21.1% 403

HI 21.4% 34.5% 44.1% 365

ID 57.9% 23.8% 18.2% 390

IL 36.4% 39.7% 23.9% 305

IN 58.5% 25.2% 16.2% 702

KS 46.9% 33.4% 19.6% 326

KY 36.4% 50.6% 13.1% 360

LA 42.2% 32.3% 25.5% 322

ME 44.9% 28.3% 26.9% 361

MI 41.4% 31.8% 26.8% 377

MN 57.6% 18.7% 23.7% 2,087

MS 34.0% 26.8% 39.2% 347

MO 45.4% 40.9% 13.7% 372

NE 51.2% 27.9% 20.9% 344

NV 42.2% 28.6% 29.2% 360

NH 44.0% 31.0% 25.0% 348

NJ 44.1% 46.3% 9.6% 376

NY 55.9% 28.1% 16.0% 424

NC 57.2% 26.5% 16.3% 649

OH 35.0% 46.3% 18.6% 488

OK 58.9% 20.3% 20.8% 399

OR 55.3% 22.5% 22.2% 378

PA 51.2% 34.7% 14.1% 582

RI 56.0% 37.4% 6.6% 273

SD 81.3% 15.1% 3.6% 304

TN 53.2% 34.4% 12.4% 459

TX 70.1% 23.2% 6.8% 1,947

UT 35.3% 44.0% 20.7% 334

VT 54.9% 26.6% 18.4% 304

VA 37.3% 28.7% 34.0% 635

WI 43.7% 29.6% 26.8% 71

WY 43.1% 34.4% 22.5% 320

Total 50.3% 30.8% 19.0% 18,435


Appendices | 152

Table D74. When was the last time this person had an eye exam/vision screening?

Within past year

Within past 2 years

Within past 3 years

Within past 5 years

5 or more years ago

Has never had a vision

screening

N

AL 53.8% 28.0% 8.2% 4.4% 4.7% 0.9% 318

AR 71.5% 13.8% 2.4% 4.3% 5.5% 2.4% 253

CO 65.7% 19.5% 7.5% 4.1% 2.5% 0.6% 318

CT 62.8% 29.9% 5.1% 0.4% 1.5% 0.4% 274

DE 60.5% 32.5% 6.4% 0.6% 0.0% 0.0% 329

DC 63.9% 29.6% 5.9% 0.0% 0.6% 0.0% 169

FL 45.9% 31.8% 5.1% 6.1% 8.1% 3.0% 704

GA 61.2% 23.5% 1.8% 1.8% 6.1% 5.5% 327

HI 42.5% 22.6% 11.6% 5.6% 8.0% 9.6% 301

ID 55.0% 20.0% 6.6% 3.9% 10.0% 4.5% 380

IL 60.4% 24.7% 6.2% 2.5% 4.7% 1.5% 275

IN 53.4% 28.3% 6.7% 2.2% 7.0% 2.4% 674

KS 61.0% 26.6% 3.9% 2.3% 5.2% 1.0% 305

KY 71.1% 17.9% 3.2% 1.6% 4.9% 1.3% 308

LA 67.5% 13.6% 4.1% 4.1% 9.8% 1.0% 295

ME 42.4% 34.2% 11.6% 4.2% 6.5% 1.1% 354

MI 43.9% 28.8% 8.0% 4.5% 11.5% 3.2% 312

MN 59.8% 21.8% 6.4% 4.9% 7.2% 0.0% 1,933

MS 52.8% 21.3% 5.5% 3.3% 12.7% 4.4% 362

MO 71.4% 22.5% 2.2% 1.1% 1.9% 0.8% 360

NE 34.8% 21.7% 9.3% 9.9% 22.0% 2.2% 322

NV 60.4% 20.8% 6.3% 2.2% 5.7% 4.7% 318

NH 42.4% 33.0% 5.0% 5.6% 11.5% 2.5% 321

NJ 73.2% 17.8% 1.9% 1.0% 4.1% 1.9% 314

NY 71.3% 16.9% 2.6% 2.3% 4.9% 2.1% 390

NC 50.5% 24.1% 6.2% 5.1% 11.1% 3.1% 551

OH 53.5% 34.0% 4.9% 1.9% 4.9% 0.9% 430

OK 61.5% 10.9% 6.2% 2.8% 12.7% 5.9% 387

OR 48.9% 22.0% 7.7% 3.7% 11.1% 6.6% 350

PA 70.8% 21.1% 3.3% 2.9% 1.8% 0.2% 513

RI 69.7% 20.3% 2.6% 2.2% 4.8% 0.0% 231

SD 78.2% 19.0% 1.4% 0.3% 1.0% 0.0% 289

TN 68.0% 21.2% 5.3% 2.0% 1.5% 2.0% 397

TX 72.7% 17.1% 2.6% 1.5% 3.6% 2.5% 1,812

UT 54.0% 20.4% 9.0% 6.2% 9.0% 1.4% 211

VT 43.8% 38.7% 6.3% 3.5% 7.4% 0.4% 256

VA 55.2% 21.3% 6.2% 4.3% 10.0% 3.1% 422

WI 50.0% 14.1% 7.8% 7.8% 17.2% 3.1% 64

WY 61.8% 28.5% 4.2% 3.2% 1.9% 0.3% 309

Total 59.6% 23.1% 5.3% 3.3% 6.5% 2.1% 16,438


Appendices | 153

Table D75. When was the last time this person had a hearing test?

Within past 5 years

5 years ago or

more

Has never had a

hearing test

N

AL 65.5% 12.4% 22.0% 177

AR 58.3% 31.5% 10.1% 168

CO 66.1% 23.0% 10.9% 183

CT 80.7% 12.7% 6.6% 181

DE 78.2% 21.0% 0.8% 124

DC 95.3% 4.7% 0.0% 128

FL 42.4% 40.4% 17.2% 564

GA 52.2% 23.7% 24.1% 249

HI 60.8% 18.0% 21.2% 245

ID 31.6% 38.8% 29.6% 335

IL 70.5% 24.5% 5.0% 200

IN 33.6% 44.3% 22.1% 614

KS 53.1% 37.8% 9.1% 143

KY 64.2% 23.5% 12.3% 179

LA 64.0% 24.3% 11.7% 214

ME 48.8% 36.1% 15.1% 205

MI 49.3% 31.6% 19.1% 215

MN 57.2% 42.8% 0.0% 1,125

MS 34.3% 33.7% 32.0% 341

MO 52.0% 19.7% 28.3% 254

NE 25.8% 54.4% 19.9% 287

NV 37.1% 23.2% 39.7% 237

NH 37.3% 42.1% 20.6% 252

NJ 44.4% 36.8% 18.8% 239

NY 75.6% 15.5% 8.9% 349

NC 43.4% 40.6% 16.0% 401

OH 64.1% 25.9% 10.0% 320

OK 35.8% 32.5% 31.7% 360

OR 33.7% 34.4% 31.9% 288

PA 86.1% 10.4% 3.6% 338

RI 53.8% 27.6% 18.6% 156

SD 57.5% 35.1% 7.5% 174

TN 86.7% 7.8% 5.5% 346

TX 75.9% 12.4% 11.7% 1,637

UT 61.6% 29.7% 8.7% 138

VT 55.3% 33.6% 11.2% 152

VA 41.6% 35.2% 23.2% 267

WI 45.9% 32.8% 21.3% 61

WY 38.3% 46.6% 15.0% 206

Total 55.9% 28.9% 15.2% 12,052


Appendices | 154

Table D76. If female, when was her last Pap test screening? (among women 21 and older) º

Within past year

Within past 2 years

Within past 3 years

Within past 5 years

5 or more years ago

Has never had a pap

test

N

AL 50.8% 17.8% 7.6% 3.4% 11.0% 9.3% 118

AR 50.0% 13.4% 4.9% 0.0% 12.2% 19.5% 82

CO 35.8% 23.9% 9.0% 10.4% 3.0% 17.9% 67

CT 51.2% 17.1% 8.5% 2.4% 9.8% 11.0% 82

DE 54.7% 26.4% 10.4% 5.7% 0.9% 1.9% 106

DC 37.0% 30.4% 21.7% 6.5% 4.3% 0.0% 46

FL 38.8% 12.2% 5.0% 3.6% 5.0% 35.3% 278

GA 54.0% 16.1% 1.6% 1.6% 5.6% 21.0% 124

HI 29.2% 24.8% 7.1% 8.0% 10.6% 20.4% 113

ID 28.0% 9.1% 6.8% 8.3% 9.1% 38.6% 132

IL 37.9% 25.3% 5.7% 8.0% 6.9% 16.1% 87

IN 29.7% 14.9% 6.2% 4.1% 8.2% 36.9% 195

KS 19.4% 19.4% 11.8% 11.8% 12.9% 24.7% 93

KY 47.3% 23.0% 1.4% 1.4% 13.5% 13.5% 74

LA 50.9% 22.8% 6.1% 4.4% 4.4% 11.4% 114

ME 26.4% 20.7% 6.9% 4.6% 17.2% 24.1% 87

MI 30.4% 13.9% 11.3% 5.2% 15.7% 23.5% 115

MN 18.1% 14.2% 14.2% 15.6% 37.8% 0.0% 576

MS 41.0% 11.8% 2.8% 4.2% 6.9% 33.3% 144

MO 40.1% 17.6% 12.7% 4.2% 9.2% 16.2% 142

NE 22.6% 8.5% 4.7% 6.6% 24.5% 33.0% 106

NV 52.8% 12.0% 2.8% 0.9% 3.7% 27.8% 108

NH 37.3% 17.3% 9.1% 8.2% 9.1% 19.1% 110

NJ 61.9% 12.4% 4.4% 1.8% 0.9% 18.6% 113

NY 49.6% 18.2% 2.5% 5.8% 6.6% 17.4% 121

NC 33.3% 14.5% 5.4% 5.4% 9.7% 31.7% 186

OH 40.0% 15.7% 14.3% 4.3% 9.3% 16.4% 140

OK 25.6% 10.7% 8.3% 8.3% 15.5% 31.5% 168

OR 35.2% 16.7% 5.6% 3.7% 3.7% 35.2% 54

PA 51.0% 18.3% 8.5% 6.5% 5.2% 10.5% 153

RI 41.6% 13.5% 9.0% 9.0% 5.6% 21.3% 89

SD 30.8% 14.3% 14.3% 12.1% 23.1% 5.5% 91

TN 44.1% 11.0% 7.6% 9.3% 14.4% 13.6% 118

TX 45.5% 18.1% 7.4% 5.9% 5.2% 18.0% 679

UT 33.9% 14.5% 4.8% 11.3% 12.9% 22.6% 62

VT 32.3% 12.9% 11.8% 6.5% 10.8% 25.8% 93

VA 32.1% 21.2% 2.2% 6.6% 15.3% 22.6% 137

WI n/a n/a n/a n/a n/a n/a n/a

WY 37.5% 14.4% 7.7% 5.8% 9.6% 25.0% 104

Total 37.7% 16.2% 7.9% 6.7% 12.0% 19.5% 5,410

º Question changed from previous years – age range changed


Appendices | 155

Table D77. If female, when was her last mammogram? (among women age 40 and over)

Within past year

Within past 2 years

Within past 3 years

Within past 5 years

5 or more years ago

Has never had a

mammogram

N

AL 59.5% 24.1% 5.1% 2.5% 6.3% 2.5% 79

AR 53.8% 17.3% 5.8% 0.0% 3.8% 19.2% 52

CO 61.8% 8.8% 2.9% 2.9% 2.9% 20.6% 34

CT 71.4% 22.2% 3.2% 0.0% 3.2% 0.0% 63

DE 72.6% 16.4% 5.5% 4.1% 0.0% 1.4% 73

DC 48.6% 37.8% 5.4% 2.7% 0.0% 5.4% 37

FL 54.9% 23.9% 2.7% 0.9% 2.7% 15.0% 113

GA 64.4% 12.3% 1.4% 1.4% 1.4% 19.2% 73

HI 32.8% 26.2% 6.6% 4.9% 3.3% 26.2% 61

ID 45.5% 11.4% 6.8% 9.1% 0.0% 27.3% 44

IL 60.3% 22.4% 3.4% 5.2% 0.0% 8.6% 58

IN 46.8% 12.6% 5.4% 3.6% 3.6% 27.9% 111

KS 35.2% 27.8% 5.6% 7.4% 9.3% 14.8% 54

KY 47.6% 21.4% 4.8% 4.8% 7.1% 14.3% 42

LA 65.2% 21.2% 1.5% 3.0% 0.0% 9.1% 66

ME 57.1% 17.1% 1.4% 0.0% 12.9% 11.4% 70

MI 44.3% 23.9% 3.4% 2.3% 8.0% 18.2% 88

MN 56.7% 17.0% 6.7% 8.5% 11.0% 0.0% 446

MS 59.5% 9.5% 3.6% 2.4% 2.4% 22.6% 84

MO 63.8% 12.8% 2.1% 4.3% 3.2% 13.8% 94

NE 28.6% 10.2% 8.2% 8.2% 0.0% 44.9% 49

NV 66.1% 14.5% 1.6% 1.6% 1.6% 14.5% 62

NH 60.5% 16.3% 4.7% 4.7% 4.7% 9.3% 43

NJ 57.9% 23.7% 6.6% 1.3% 0.0% 10.5% 76

NY 64.4% 21.9% 2.7% 2.7% 2.7% 5.5% 73

NC 47.1% 14.1% 8.2% 7.1% 7.1% 16.5% 85

OH 60.2% 13.6% 6.8% 2.3% 6.8% 10.2% 88

OK 53.9% 12.7% 4.9% 2.0% 3.9% 22.5% 102

OR 48.1% 18.5% 3.7% 0.0% 0.0% 29.6% 27

PA 69.9% 16.8% 7.1% 0.0% 0.9% 5.3% 113

RI 67.9% 15.1% 1.9% 7.5% 1.9% 5.7% 53

SD 74.1% 12.1% 5.2% 1.7% 3.4% 3.4% 58

TN 59.5% 17.9% 9.5% 4.8% 2.4% 6.0% 84

TX 66.8% 16.6% 4.9% 2.9% 1.0% 7.8% 385

UT 51.4% 18.9% 8.1% 2.7% 5.4% 13.5% 37

VT 58.3% 15.0% 3.3% 5.0% 3.3% 15.0% 60

VA 54.0% 14.0% 5.0% 6.0% 9.0% 12.0% 100

WI n/a n/a n/a n/a n/a n/a n/a

WY 42.9% 14.3% 6.1% 6.1% 10.2% 20.4% 49

Total 57.8% 17.3% 5.1% 4.0% 4.5% 11.4% 3,287


Appendices | 156

Table D78. When was the last time this person had a screening for colorectal cancer (among people age 50 and over) º ∞

Colonoscopy, past 10 years

Flexible sigmoidoscopy, past 5 years and Fecal Occult

Blood Test, past 3 years

Fecal Occult Blood Test, past year

Has never had a screening for

colorectal cancer

AL 40.5% 0.7% 0.0% 17.0%

AR 24.5% 1.9% 1.9% 18.9%

CO 20.2% 0.0% 2.5% 10.9%

CT 62.3% 2.0% 6.6% 0.7%

DE 38.3% 0.5% 0.0% 2.2%

DC 30.5% 0.5% 0.0% 1.0%

FL 45.1% 2.2% 1.1% 28.0%

GA 28.0% 0.0% 0.0% 27.2%

HI 13.6% 1.4% 6.8% 23.1%

ID 30.7% 0.0% 2.7% 26.7%

IL 27.8% 1.7% 2.6% 14.8%

IN 35.5% 0.9% 1.8% 33.6%

KS 27.4% 2.6% 3.4% 18.8%

KY 18.2% 0.8% 2.5% 14.9%

LA 26.0% 2.4% 0.8% 20.5%

ME 34.1% 1.2% 2.9% 17.9%

MI 30.9% 1.4% 2.9% 24.2%

MN 47.9% 0.0% 2.5% 0.0%

MS 36.8% 2.2% 1.5% 28.7%

MO 52.7% 4.7% 8.0% 18.7%

NE 27.1% 5.2% 1.0% 32.3%

NV 23.2% 2.4% 2.4% 35.4%

NH 52.9% 3.9% 1.0% 24.5%

NJ 51.0% 1.9% 1.3% 8.4%

NY 54.6% 1.1% 2.7% 5.9%

NC 39.7% 1.3% 3.2% 16.7%

OH 33.3% 2.8% 6.0% 7.9%

OK 46.7% 0.7% 1.5% 38.0%

OR 21.6% 0.0% 1.7% 7.8%

PA 28.3% 1.7% 1.3% 6.3%

RI 47.7% 2.3% 5.5% 3.1%

SD 45.7% 3.4% 0.9% 11.2%

TN 34.8% 3.2% 2.7% 10.0%

TX 46.4% 3.7% 5.9% 18.3%

UT 30.0% 0.0% 1.1% 10.0%

VT 51.4% 2.8% 1.8% 22.0%

VA 24.5% 1.8% 1.5% 15.0%

WI 1.9% 0.0% 0.6% 1.3%

WY 35.0% 0.0% 0.0% 19.0%

Total 37.2% 1.7% 2.7% 14.2%

º Question changed from previous years – response options and screening schedules changed ∞ Categories are not mutually exclusive


Appendices | 157

Table D79. During the last 12 months, has this person had a flu vaccination?

Yes No N

AL 73.2% 26.8% 265

AR 83.1% 16.9% 284

CO 76.1% 23.9% 393

CT 92.2% 7.8% 231

DE 93.9% 6.1% 247

DC 42.9% 57.1% 119

FL 58.5% 41.5% 689

GA 69.1% 30.9% 366

HI 68.5% 31.5% 238

ID 57.5% 42.5% 393

IL 72.0% 28.0% 218

IN 59.9% 40.1% 700

KS 83.3% 16.7% 293

KY 75.9% 24.1% 232

LA 78.6% 21.4% 248

ME 83.3% 16.7% 281

MI 74.8% 25.2% 321

MN n/a n/a n/a

MS 65.6% 34.4% 390

MO 91.5% 8.5% 354

NE 70.8% 29.2% 312

NV 50.2% 49.8% 277

NH 75.4% 24.6% 289

NJ 84.0% 16.0% 257

NY 81.8% 18.2% 358

NC 69.5% 30.5% 534

OH 80.8% 19.2% 354

OK 74.8% 25.2% 397

OR 70.5% 29.5% 380

PA 78.8% 21.2% 339

RI 90.4% 9.6% 271

SD 87.0% 13.0% 253

TN 79.9% 20.1% 303

TX 84.6% 15.4% 1,743

UT 89.0% 11.0% 218

VT 76.2% 23.8% 248

VA 85.5% 14.5% 516

WI 70.8% 29.2% 72

WY 71.5% 28.5% 267

Total 75.7% 24.3% 13,650


Appendices | 158

Medications (un-collapsed and un-weighted)

Table D80. Does this person currently take medications to treat mood disorders, anxiety, and/or psychotic disorders?

Yes No N

AL 52.1% 47.9% 380

AR 53.1% 46.9% 382

CO 48.2% 51.8% 365

CT 52.3% 47.7% 363

DE 65.1% 34.9% 361

DC 44.7% 55.3% 369

FL 40.5% 59.5% 754

GA 45.9% 54.1% 444

HI 23.7% 76.3% 401

ID n/a n/a n/a

IL 45.6% 54.4% 371

IN 39.0% 61.0% 729

KS 59.7% 40.3% 387

KY 52.8% 47.2% 392

LA 48.4% 51.6% 407

ME 47.6% 52.4% 380

MI 55.6% 44.4% 493

MN 47.8% 52.2% 1,999

MS 48.5% 51.5% 412

MO 64.1% 35.9% 395

NE 40.5% 59.5% 370

NV 50.9% 49.1% 393

NH 57.1% 42.9% 389

NJ 45.3% 54.7% 393

NY 45.1% 54.9% 495

NC 48.1% 51.9% 705

OH 46.1% 53.9% 648

OK 57.3% 42.8% 400

OR n/a n/a n/a

PA 45.0% 55.0% 660

RI 55.7% 44.3% 332

SD 53.5% 46.5% 312

TN 59.3% 40.7% 445

TX 48.9% 51.1% 1,971

UT 60.0% 40.0% 403

VT 53.8% 46.2% 325

VA 57.3% 42.7% 752

WI 59.7% 40.3% 67

WY 48.9% 51.1% 319

Total 49.5% 50.5% 19,163


Appendices | 159

Table D81. Does this person currently take medications for behavioral challenges?

Yes No N

AL 21.0% 79.0% 376

AR 33.1% 66.9% 384

CO 23.8% 76.2% 361

CT 29.8% 70.2% 356

DE 47.8% 52.2% 360

DC 40.8% 59.2% 355

FL 19.8% 80.2% 754

GA 15.9% 84.1% 453

HI 18.4% 81.6% 396

ID n/a n/a n/a

IL 30.1% 69.9% 365

IN 15.8% 84.2% 726

KS 30.9% 69.1% 376

KY 20.8% 79.2% 385

LA 24.6% 75.4% 398

ME 18.7% 81.3% 369

MI 29.0% 71.0% 490

MN 26.0% 74.0% 1,978

MS 23.1% 76.9% 398

MO 29.4% 70.6% 388

NE 27.1% 72.9% 361

NV 30.3% 69.7% 389

NH 19.9% 80.1% 391

NJ 24.5% 75.5% 392

NY 29.6% 70.4% 483

NC 32.0% 68.0% 696

OH 18.5% 81.5% 642

OK 31.0% 69.0% 400

OR n/a n/a n/a

PA 16.9% 83.1% 656

RI 30.9% 69.1% 327

SD 18.9% 81.1% 307

TN 27.4% 72.6% 424

TX 27.2% 72.8% 1,974

UT 33.1% 66.9% 402

VT 26.2% 73.8% 325

VA 29.4% 70.6% 744

WI 30.3% 69.7% 66

WY 14.0% 86.0% 321

Total 25.7% 74.3% 18,968


Appendices | 160

Table D82. Does this person have a behavior plan?

Yes No N

AL 21.2% 78.8% 382

AR 43.9% 56.1% 394

CO 32.0% 68.0% 362

CT 44.4% 55.6% 363

DE 65.7% 34.3% 394

DC 44.9% 55.1% 365

FL 16.1% 83.9% 762

GA 7.8% 92.2% 450

HI 22.9% 77.1% 401

ID n/a n/a n/a

IL 36.7% 63.3% 368

IN 34.0% 66.0% 727

KS 56.9% 43.1% 383

KY 27.1% 72.9% 421

LA 22.8% 77.2% 408

ME 9.3% 90.7% 389

MI 20.6% 79.4% 500

MN 32.8% 67.2% 1,974

MS 2.2% 97.8% 401

MO 15.0% 85.0% 393

NE 28.4% 71.6% 359

NV 41.1% 58.9% 397

NH 15.2% 84.8% 401

NJ 14.5% 85.5% 387

NY 34.3% 65.7% 508

NC 18.8% 81.2% 714

OH 10.1% 89.9% 684

OK 37.5% 62.5% 400

OR 23.9% 76.1% 322

PA 27.5% 72.5% 673

RI 33.8% 66.2% 352

SD 24.3% 75.7% 329

TN 22.2% 77.8% 482

TX 35.2% 64.8% 2,004

UT 37.2% 62.8% 411

VT 37.1% 62.9% 326

VA 22.3% 77.7% 757

WI 29.9% 70.1% 67

WY 25.0% 75.0% 324

Total 28.3% 71.7% 19,734


Appendices | 161

Table D83. Has a behavior plan (among those who take medication for a behavior challenge)

Yes No N

AL 21.2% 78.8% 382

AR 43.9% 56.1% 394

CO 32.0% 68.0% 362

CT 44.4% 55.6% 363

DE 65.7% 34.3% 394

DC 44.9% 55.1% 365

FL 16.1% 83.9% 762

GA 7.8% 92.2% 450

HI 22.9% 77.1% 401

ID n/a n/a n/a

IL 36.7% 63.3% 368

IN 34.0% 66.0% 727

KS 56.9% 43.1% 383

KY 27.1% 72.9% 421

LA 22.8% 77.2% 408

ME 9.3% 90.7% 389

MI 20.6% 79.4% 500

MN 32.8% 67.2% 1,974

MS 2.2% 97.8% 401

MO 15.0% 85.0% 393

NE 28.4% 71.6% 359

NV 41.1% 58.9% 397

NH 15.2% 84.8% 401

NJ 14.5% 85.5% 387

NY 34.3% 65.7% 508

NC 18.8% 81.2% 714

OH 10.1% 89.9% 684

OK 37.5% 62.5% 400

OR 23.9% 76.1% 322

PA 27.5% 72.5% 673

RI 33.8% 66.2% 352

SD 24.3% 75.7% 329

TN 22.2% 77.8% 482

TX 35.2% 64.8% 2,004

UT 37.2% 62.8% 411

VT 37.1% 62.9% 326

VA 22.3% 77.7% 757

WI 29.9% 70.1% 67

WY 25.0% 75.0% 324

Total 28.3% 71.7% 19,734


Appendices | 162

Wellness (un-collapsed and un-weighted)

Table D84. Do you exercise or do physical activity?

Yes, at least 3 time per week

Yes, 1-2 times per week

No N

AL 39.3% 45.1% 15.6% 384

AR 38.9% 31.5% 29.7% 391

CO 32.1% 39.1% 28.8% 399

CT 49.7% 33.0% 17.3% 358

DE 49.3% 24.1% 26.5% 377

DC 57.8% 37.4% 4.8% 393

FL 33.7% 38.6% 27.7% 757

GA 41.7% 42.8% 15.5% 446

HI 49.9% 46.1% 4.0% 401

ID 55.2% 24.9% 19.9% 402

IL 46.2% 39.6% 14.3% 364

IN 38.2% 33.4% 28.4% 722

KS 43.0% 42.5% 14.5% 379

KY 15.3% 29.4% 55.4% 419

LA 37.0% 33.8% 29.2% 408

ME 50.3% 27.8% 21.9% 392

MI 42.5% 30.6% 26.9% 494

MN 53.9% 26.1% 20.0% 2,025

MS 37.4% 26.7% 35.9% 401

MO 48.7% 24.1% 27.2% 394

NE 33.9% 38.3% 27.8% 392

NV 43.6% 33.4% 23.0% 422

NH 60.2% 27.1% 12.8% 399

NJ 41.2% 38.7% 20.1% 393

NY 39.0% 36.7% 24.2% 520

NC 53.9% 33.1% 12.9% 634

OH 39.6% 35.4% 25.0% 659

OK 46.4% 24.1% 29.6% 399

OR 49.6% 22.9% 27.4% 401

PA 43.7% 30.4% 25.9% 671

RI 54.8% 24.7% 20.5% 336

SD 49.6% 35.6% 14.8% 284

TN 49.7% 34.5% 15.9% 473

TX 48.4% 28.2% 23.3% 1,416

UT 53.6% 31.2% 15.2% 401

VT 40.9% 28.0% 31.1% 325

VA 43.9% 29.6% 26.5% 795

WI 53.7% 24.5% 21.8% 546

WY 46.7% 35.3% 18.0% 317

Total 45.5% 31.8% 22.7% 20,089


Appendices | 163

Table D85. Body Mass Index (BMI) category (BMI calculated using data on weight and height)

Underweight Healthy Overweight Obese N

AL 6.5% 23.4% 25.2% 44.9% 385

AR 3.6% 24.2% 26.2% 46.0% 385

CO 4.8% 35.2% 31.5% 28.6% 378

CT 3.8% 33.5% 29.2% 33.5% 236

DE 4.4% 34.3% 26.7% 34.6% 367

DC 7.2% 34.5% 29.9% 28.4% 348

FL 6.8% 34.1% 31.2% 27.9% 631

GA 4.5% 27.5% 31.6% 36.4% 374

HI 8.6% 38.1% 23.2% 30.1% 396

ID 6.1% 30.4% 28.9% 34.7% 329

IL 6.6% 34.2% 23.4% 35.9% 351

IN 6.0% 28.3% 27.4% 38.3% 697

KS 2.6% 22.9% 33.7% 40.8% 341

KY 4.9% 21.2% 26.1% 47.8% 391

LA 6.1% 32.1% 27.1% 34.7% 377

ME 3.3% 30.3% 34.2% 32.2% 307

MI 5.7% 29.1% 27.6% 37.5% 453

MN 4.0% 32.4% 30.8% 32.7% 1,758

MS 6.1% 22.4% 29.1% 42.5% 313

MO 5.4% 31.7% 26.8% 36.0% 369

NE 4.8% 50.5% 21.9% 22.7% 374

NV 4.6% 30.7% 30.7% 34.0% 394

NH 2.9% 26.0% 30.9% 40.3% 350

NJ 7.2% 27.2% 34.1% 31.5% 279

NY 4.1% 33.5% 30.7% 31.6% 462

NC 8.4% 33.3% 26.2% 32.1% 619

OH 4.4% 28.1% 29.2% 38.3% 480

OK 6.0% 31.8% 23.3% 39.0% 400

OR 5.0% 28.9% 32.7% 33.5% 343

PA 6.3% 32.3% 25.5% 35.9% 396

RI 5.9% 28.4% 27.5% 38.3% 324

SD 3.2% 26.7% 25.7% 44.4% 315

TN 5.8% 29.5% 27.8% 37.0% 414

TX 5.4% 33.5% 27.6% 33.5% 1,879

UT 8.1% 33.8% 25.5% 32.6% 396

VT 4.0% 29.8% 28.8% 37.4% 326

VA 3.8% 29.9% 30.1% 36.2% 572

WI 8.5% 22.0% 27.1% 42.4% 59

WY 9.2% 35.8% 25.7% 29.4% 327

Total 5.4% 31.2% 28.3% 35.1% 17,895


Appendices | 164

Table D86. Does this person use nicotine or tobacco products?

Yes No N

AL 7.9% 92.1% 381

AR 7.8% 92.2% 386

CO 11.6% 88.4% 398

CT 5.2% 94.8% 365

DE 7.5% 92.5% 387

DC 3.9% 96.1% 330

FL 4.7% 95.3% 749

GA 6.0% 94.0% 447

HI 1.9% 98.1% 372

ID 5.9% 94.1% 409

IL 4.8% 95.2% 353

IN 5.4% 94.6% 725

KS 8.5% 91.5% 375

KY 12.8% 87.2% 406

LA 8.0% 92.0% 377

ME 5.7% 94.3% 388

MI 6.7% 93.3% 495

MN 6.3% 93.7% 2,034

MS 5.6% 94.4% 408

MO 8.7% 91.3% 393

NE 6.3% 93.8% 352

NV 4.3% 95.8% 400

NH 8.4% 91.6% 394

NJ 4.9% 95.1% 385

NY 5.9% 94.1% 505

NC 4.7% 95.3% 705

OH 7.7% 92.3% 653

OK 7.5% 92.5% 400

OR 10.4% 89.6% 386

PA 4.5% 95.5% 639

RI 2.3% 97.7% 351

SD 8.4% 91.6% 333

TN 8.3% 91.7% 480

TX 6.3% 93.7% 2,008

UT 7.5% 92.5% 412

VT 11.4% 88.6% 325

VA 5.4% 94.6% 740

WI 9.7% 90.3% 371

WY 10.4% 89.6% 316

Total 6.7% 93.3% 20,333


Appendices | 165

Respect and Rights (un-collapsed and unweighted)

Table D87. Do you have a key to your home?

Yes Maybe, not sure

No N

AL 66.0% 2.1% 31.8% 374

AR 68.3% 1.6% 30.2% 378

CO 44.4% 1.7% 53.9% 401

CT 45.2% 1.1% 53.7% 356

DC 45.7% 1.9% 52.4% 372

DE 65.4% 0.3% 34.3% 382

FL 56.2% 2.3% 41.5% 735

GA 41.4% 3.4% 55.2% 415

HI 27.5% 0.5% 72.0% 396

ID 54.1% 1.5% 44.4% 403

IL 39.9% 1.7% 58.4% 361

IN 59.3% 0.3% 40.5% 724

KS 55.7% 4.8% 39.5% 377

KY 44.2% 1.9% 53.9% 412

LA 41.8% 1.2% 57.0% 402

ME 63.6% 0.5% 35.9% 393

MI 39.3% 0.4% 60.3% 499

MN 40.9% 0.7% 58.4% 2,023

MO 34.9% 0.8% 64.4% 393

MS 53.1% 0.2% 46.7% 405

NC 38.5% 0.2% 61.4% 637

NE 67.9% 0.5% 31.6% 386

NH 57.5% 0.8% 41.8% 395

NJ 29.5% 2.0% 68.4% 393

NV 61.1% 0.7% 38.2% 411

NY 45.2% 0.4% 54.4% 520

OH 52.9% 0.8% 46.3% 665

OK 38.6% 0.3% 61.2% 399

OR 47.9% 0.7% 51.4% 403

PA 45.3% 1.0% 53.7% 669

RI 51.5% 0.3% 48.2% 330

SD 69.2% 3.5% 27.3% 286

TN 47.1% 2.1% 50.7% 473

TX 24.5% 0.6% 74.9% 1,402

UT 43.9% 1.3% 54.8% 385

VA 41.1% 0.6% 58.3% 789

VT 45.3% 0.9% 53.7% 322

WI 57.0% 0.9% 42.1% 549

WY 58.7% 1.6% 39.7% 312

Total 46.9% 1.1% 52.0% 19,927


Appendices | 166

Table D88. Do people let you know before they come into your home?

Yes Sometimes No N

AL 89.6% 6.6% 3.8% 346

AR 92.2% 3.4% 4.4% 293

CO 85.5% 9.3% 5.2% 289

CT 90.3% 5.4% 4.3% 277

DC 90.1% 6.4% 3.5% 141

DE 83.2% 7.1% 9.7% 238

FL 94.7% 3.3% 2.0% 451

GA 86.3% 10.6% 3.0% 263

HI 90.3% 2.6% 7.2% 195

ID 88.1% 8.8% 3.1% 319

IL 91.5% 5.8% 2.7% 259

IN 94.1% 3.5% 2.4% 578

KS 87.4% 9.4% 3.2% 278

KY 96.6% 2.7% 0.7% 298

LA 78.1% 7.1% 14.8% 283

ME 80.8% 15.8% 3.5% 317

MI 92.7% 5.4% 1.9% 314

MN 93.7% 3.6% 2.7% 1,378

MO 86.7% 9.3% 4.0% 248

MS 89.1% 6.0% 4.9% 285

NC 90.4% 4.9% 4.7% 365

NE 88.6% 8.5% 2.8% 316

NH 90.1% 5.1% 4.8% 314

NJ 85.6% 7.2% 7.2% 209

NV 87.9% 6.2% 5.9% 306

NY 85.7% 8.0% 6.3% 349

OH 92.8% 3.1% 4.1% 489

OK 90.4% 4.8% 4.8% 230

OR 91.0% 5.0% 4.0% 300

PA 93.1% 4.3% 2.7% 447

RI 89.9% 5.2% 4.8% 248

SD 88.0% 7.3% 4.6% 259

TN 96.0% 2.3% 1.7% 350

TX 91.8% 3.6% 4.6% 1,408

UT 89.1% 5.8% 5.0% 258

VA 88.8% 5.3% 5.9% 457

VT 81.3% 9.5% 9.2% 273

WI 94.1% 3.9% 2.0% 358

WY 87.4% 7.4% 5.2% 231

Total 90.2% 5.6% 4.2% 14,217


Appendices | 167

Table D89. Can you lock your bedroom if you want to?

Yes Maybe, not sure

No N

AL 66.9% 9.5% 23.7% 359

AR 67.8% 2.3% 29.9% 348

CO 35.5% 7.0% 57.5% 369

CT 44.8% 4.4% 50.8% 315

DC 21.9% 4.3% 73.9% 375

DE 58.1% 0.5% 41.4% 370

FL 69.7% 3.4% 26.9% 702

GA 73.4% 6.3% 20.3% 394

HI 37.6% 3.1% 59.3% 388

ID 46.9% 2.9% 50.3% 384

IL 48.5% 7.1% 44.4% 340

IN 52.9% 3.2% 43.9% 679

KS 55.6% 9.1% 35.3% 351

KY 74.8% 3.3% 21.9% 389

LA 38.0% 6.6% 55.4% 395

ME 36.6% 6.1% 57.3% 328

MI 34.7% 3.0% 62.4% 473

MN 45.3% 3.5% 51.2% 1,859

MO 44.3% 3.3% 52.4% 368

MS 61.7% 2.3% 35.9% 384

NC 47.8% 4.2% 48.1% 624

NE 49.7% 2.8% 47.5% 356

NH 38.0% 3.6% 58.4% 361

NJ 41.1% 6.6% 52.3% 350

NV 54.2% 2.5% 43.2% 354

NY 39.6% 3.8% 56.5% 497

OH 41.7% 3.0% 55.3% 629

OK 39.6% 0.8% 59.6% 391

OR 61.8% 2.7% 35.5% 377

PA 44.8% 3.4% 51.8% 589

RI 36.3% 4.6% 59.2% 306

SD 61.1% 4.4% 34.5% 229

TN 53.5% 6.3% 40.3% 462

TX 30.0% 1.5% 68.4% 1,236

UT 46.9% 1.6% 51.5% 367

VA 53.5% 2.9% 43.6% 770

VT 36.3% 1.4% 62.3% 284

WI 39.6% 2.7% 57.7% 482

WY 54.9% 4.3% 40.8% 277

Total 47.5% 3.7% 48.8% 18,511


Appendices | 168

Table D90. Do people let you know before coming into your bedroom?

Yes Sometimes No N

AL 83.7% 9.9% 6.4% 343

AR 83.7% 6.1% 10.2% 294

CO 83.2% 9.3% 7.5% 280

CT 84.8% 7.4% 7.8% 270

DC 85.7% 8.6% 5.7% 140

DE 77.6% 9.4% 13.1% 245

FL 90.0% 5.4% 4.5% 442

GA 91.0% 3.4% 5.6% 267

HI 88.5% 6.8% 4.7% 192

ID 85.3% 8.2% 6.5% 292

IL 82.3% 10.0% 7.7% 260

IN 83.7% 7.7% 8.6% 521

KS 72.6% 15.6% 11.9% 270

KY 93.0% 4.7% 2.3% 300

LA 83.0% 9.0% 8.0% 289

ME 75.8% 14.7% 9.6% 293

MI 83.4% 7.1% 9.4% 308

MN 87.9% 6.4% 5.7% 1,321

MO 86.3% 6.3% 7.5% 240

MS 82.1% 6.9% 10.9% 274

NC 83.4% 5.2% 11.4% 367

NE 81.5% 13.0% 5.5% 308

NH 83.1% 7.6% 9.3% 301

NJ 81.3% 7.4% 11.3% 203

NV 84.6% 6.5% 8.8% 306

NY 81.0% 10.8% 8.1% 332

OH 83.4% 7.6% 9.1% 463

OK 84.6% 6.5% 8.9% 214

OR 82.4% 9.3% 8.2% 279

PA 89.8% 5.3% 4.9% 430

RI 88.1% 6.4% 5.5% 236

SD 78.6% 9.2% 12.2% 229

TN 83.3% 13.6% 3.1% 353

TX 79.4% 9.6% 11.0% 1,424

UT 84.5% 6.7% 8.7% 252

VA 86.7% 7.3% 6.0% 466

VT 71.6% 7.3% 21.1% 232

WI 81.7% 7.3% 11.0% 344

WY 83.9% 5.8% 10.3% 224

Total 83.7% 8.1% 8.3% 13,804


Appendices | 169

Table D91. Do people read your mail or email without asking you first?

Yes No N

AL 11.6% 88.4% 301

AR 12.3% 87.7% 276

CO 5.8% 94.2% 243

CT 17.6% 82.4% 233

DC 25.2% 74.8% 103

DE 15.2% 84.8% 198

FL 10.6% 89.4% 398

GA 12.3% 87.7% 243

HI 9.0% 91.0% 145

ID 11.2% 88.8% 258

IL 22.5% 77.5% 227

IN 12.9% 87.1% 566

KS 12.3% 87.7% 252

KY 7.8% 92.2% 296

LA 8.2% 91.8% 282

ME 2.7% 97.3% 296

MI 10.4% 89.6% 288

MN 7.3% 92.7% 1,308

MO 12.0% 88.0% 216

MS 6.7% 93.3% 268

NC 13.4% 86.6% 335

NE 17.5% 82.5% 268

NH 9.2% 90.8% 303

NJ 18.7% 81.3% 187

NV 12.4% 87.6% 283

NY 19.5% 80.5% 303

OH 14.5% 85.5% 462

OK 11.7% 88.3% 206

OR 11.7% 88.3% 273

PA 8.4% 91.6% 418

RI 15.0% 85.0% 234

SD 8.9% 91.1% 247

TN 1.0% 99.0% 306

TX 14.3% 85.7% 1,182

UT 22.6% 77.4% 230

VA 14.0% 86.0% 414

VT 2.4% 97.6% 245

WI 13.9% 86.1% 330

WY 13.2% 86.8% 220

Total 11.7% 88.3% 12,843


Appendices | 170

Table D92. Can you use the phone and internet when you want to?

Yes No N

AL 89.1% 10.9% 338

AR 93.4% 6.6% 273

CO 91.6% 8.4% 261

CT 87.2% 12.8% 242

DC 94.7% 5.3% 133

DE 76.8% 23.2% 220

FL 87.5% 12.5% 432

GA 92.3% 7.7% 260

HI 88.5% 11.5% 165

ID 89.4% 10.6% 292

IL 91.5% 8.5% 246

IN 90.7% 9.3% 546

KS 92.0% 8.0% 249

KY 94.0% 6.0% 300

LA 90.8% 9.2% 283

ME 84.6% 15.4% 279

MI 91.0% 9.0% 290

MN 92.4% 7.6% 1,355

MO 89.2% 10.8% 232

MS 91.5% 8.5% 260

NC 90.2% 9.8% 356

NE 67.9% 32.1% 287

NH 88.6% 11.4% 316

NJ 87.3% 12.7% 197

NV 89.0% 11.0% 308

NY 92.4% 7.6% 328

OH 94.0% 6.0% 467

OK 90.9% 9.1% 209

OR 90.0% 10.0% 280

PA 91.0% 9.0% 420

RI 90.4% 9.6% 240

SD 90.4% 9.6% 251

TN 89.9% 10.1% 308

TX 88.6% 11.4% 1,265

UT 83.3% 16.7% 246

VA 91.1% 8.9% 436

VT 84.4% 15.6% 250

WI 92.6% 7.4% 337

WY 87.1% 12.9% 233

Total 89.5% 10.5% 13,390


Appendices | 171

Table D93. Can you be alone with friends or visitors at your home?

Yes No N

AL 86.4% 13.6% 324

AR 80.9% 19.1% 267

CO 82.7% 17.3% 249

CT 75.0% 25.0% 240

DC 86.3% 13.7% 131

DE 68.0% 32.0% 200

FL 86.1% 13.9% 411

GA 92.8% 7.2% 236

HI 78.3% 21.7% 138

ID 79.4% 20.6% 272

IL 78.8% 21.2% 241

IN 66.6% 33.4% 527

KS 86.4% 13.6% 257

KY 90.8% 9.2% 294

LA 72.9% 27.1% 273

ME 85.4% 14.6% 233

MI 88.3% 11.7% 281

MN 84.6% 15.4% 1,302

MO 86.4% 13.6% 220

MS 85.9% 14.1% 270

NC 73.9% 26.1% 341

NE 63.6% 36.4% 242

NH 79.0% 21.0% 295

NJ 69.1% 30.9% 175

NV 73.5% 26.5% 272

NY 85.7% 14.3% 308

OH 86.9% 13.1% 443

OK 83.8% 16.2% 191

OR 79.7% 20.3% 251

PA 89.8% 10.2% 402

RI 82.4% 17.6% 233

SD 87.9% 12.1% 247

TN 88.7% 11.3% 344

TX 80.0% 20.0% 1,274

UT 79.8% 20.2% 243

VA 89.1% 10.9% 431

VT 71.3% 28.7% 157

WI 86.2% 13.8% 318

WY 82.8% 17.2% 221

Total 81.8% 18.2% 12,754


Appendices | 172

Table D94. Are there rules about having friends or visitors in your home?

Yes No N

AL 13.0% 87.0% 324

AR 42.4% 57.6% 257

CO 49.0% 51.0% 245

CT 40.3% 59.7% 221

DC 37.7% 62.3% 130

DE 57.4% 42.6% 176

FL 18.4% 81.6% 396

GA 9.9% 90.1% 233

HI 45.5% 54.5% 132

ID 43.9% 56.1% 264

IL 34.6% 65.4% 231

IN 42.8% 57.2% 502

KS 32.5% 67.5% 255

KY 13.4% 86.6% 292

LA 40.7% 59.3% 263

ME 18.3% 81.7% 229

MI 36.7% 63.3% 267

MN 35.3% 64.7% 1,261

MO 23.3% 76.7% 215

MS 44.5% 55.5% 263

NC 52.2% 47.8% 312

NE 64.9% 35.1% 248

NH 38.7% 61.3% 282

NJ 53.5% 46.5% 172

NV 52.4% 47.6% 275

NY 38.5% 61.5% 301

OH 31.5% 68.5% 425

OK 40.9% 59.1% 186

OR 38.3% 61.7% 240

PA 25.1% 74.9% 386

RI 36.8% 63.2% 223

SD 34.1% 65.9% 232

TN 25.1% 74.9% 339

TX 52.7% 47.3% 1,219

UT 37.6% 62.4% 237

VA 31.3% 68.7% 406

VT 37.7% 62.3% 151

WI 25.1% 74.9% 303

WY 37.2% 62.8% 215

Total 37.0% 63.0% 12,308


Appendices | 173

Table D95. Do you have a place to be alone in your home?

Yes No N

AL 98.5% 1.5% 344

AR 97.6% 2.4% 295

CO 97.3% 2.7% 294

CT 95.7% 4.3% 282

DC 92.0% 8.0% 138

DE 93.2% 6.8% 235

FL 96.3% 3.7% 455

GA 99.6% 0.4% 273

HI 93.5% 6.5% 200

ID 95.3% 4.7% 319

IL 94.3% 5.7% 261

IN 97.8% 2.2% 588

KS 96.5% 3.5% 283

KY 95.3% 4.7% 300

LA 96.2% 3.8% 293

ME 97.2% 2.8% 320

MI 94.1% 5.9% 321

MN 97.8% 2.2% 1,391

MO 97.2% 2.8% 254

MS 97.2% 2.8% 281

NC 95.4% 4.6% 371

NE 94.6% 5.4% 317

NH 95.7% 4.3% 322

NJ 93.2% 6.8% 207

NV 96.3% 3.8% 320

NY 93.0% 7.0% 343

OH 97.7% 2.3% 488

OK 94.7% 5.3% 226

OR 96.7% 3.3% 304

PA 98.5% 1.5% 464

RI 94.4% 5.6% 248

SD 97.3% 2.7% 256

TN 98.6% 1.4% 366

TX 91.9% 8.1% 1,436

UT 97.7% 2.3% 263

VA 94.7% 5.3% 471

VT 97.8% 2.2% 277

WI 97.8% 2.2% 361

WY 97.0% 3.0% 237

Total 96.0% 4.0% 14,404


Appendices | 174

Table D96. Do your staff treat you with respect?

Yes Sometimes or

some staff No N

AL 93.9% 5.8% 0.3% 311

AR 98.2% 1.5% 0.4% 272

CO 90.5% 9.1% 0.4% 253

CT 92.6% 7.0% 0.4% 256

DC 95.5% 3.0% 1.5% 133

DE 85.7% 11.6% 2.7% 224

FL 92.5% 6.3% 1.2% 413

GA 97.4% 2.6% 0.0% 273

HI 92.4% 6.4% 1.3% 157

ID 91.7% 7.9% 0.4% 266

IL 93.8% 5.4% 0.8% 241

IN 95.6% 3.8% 0.6% 504

KS 88.7% 10.1% 1.2% 257

KY 95.5% 4.5% 0.0% 289

LA 93.2% 6.4% 0.4% 266

ME 88.3% 11.3% 0.4% 283

MI 89.9% 9.7% 0.4% 268

MN 92.1% 7.5% 0.4% 1,325

MO 89.5% 9.7% 0.8% 237

MS 95.9% 4.1% 0.0% 269

NC 94.8% 4.6% 0.6% 329

NE 80.7% 18.4% 0.9% 321

NH 91.3% 7.8% 1.0% 309

NJ 88.3% 10.7% 1.0% 197

NV 87.3% 10.9% 1.8% 276

NY 90.3% 9.0% 0.7% 277

OH 94.3% 5.7% 0.0% 389

OK 93.8% 4.7% 1.6% 192

OR 89.0% 10.6% 0.4% 246

PA 96.0% 3.8% 0.3% 373

RI 92.1% 7.5% 0.4% 241

SD 84.3% 14.8% 0.9% 229

TN 98.3% 0.8% 0.8% 355

TX 93.4% 5.4% 1.2% 1,172

UT 90.3% 8.9% 0.8% 248

VA 93.8% 5.7% 0.5% 438

VT 89.1% 9.5% 1.4% 221

WI 89.1% 10.9% 0.0% 274

WY 87.6% 11.5% 0.9% 218

Total 92.1% 7.2% 0.7% 12,802


Appendices | 175

Table D97. Have you ever participated in a self-advocacy group meeting, conference, or event?

Yes Had the opportunity

but chose not to participate

No N

AL 35.7% 10.4% 54.0% 367

AR 20.5% 3.1% 76.4% 259

CO 16.4% 5.3% 78.3% 378

CT 31.8% 7.5% 60.7% 321

DC 19.6% 3.3% 77.0% 331

DE 24.2% 2.7% 73.0% 330

FL 14.5% 4.7% 80.8% 642

GA 10.8% 3.9% 85.3% 388

HI 16.1% 2.7% 81.2% 373

ID 13.2% 2.2% 84.6% 370

IL 18.5% 6.9% 74.6% 260

IN 21.6% 0.0% 78.4% 654

KS 15.0% 18.2% 66.8% 313

KY 10.6% 5.4% 84.0% 331

LA 22.8% 2.1% 75.1% 381

ME 22.7% 0.6% 76.8% 353

MI 18.3% 1.0% 80.7% 404

MN 27.2% 2.0% 70.8% 1,646

MO 17.4% 12.6% 70.0% 310

MS 22.0% 4.6% 73.5% 328

NC 27.6% 4.4% 68.0% 453

NE 19.2% 7.2% 73.6% 333

NH 30.5% 4.7% 64.9% 387

NJ 32.3% 7.4% 60.3% 325

NV 15.5% 2.8% 81.7% 399

NY 18.1% 4.7% 77.2% 408

OH 25.7% 6.2% 68.2% 600

OK 23.8% 0.8% 75.4% 366

OR 19.8% 3.7% 76.5% 379

PA 16.2% 2.2% 81.6% 489

RI 30.3% 2.9% 66.9% 314

SD 38.1% 6.9% 55.0% 260

TN 22.3% 2.7% 74.9% 403

TX 17.8% 0.6% 81.6% 1,240

UT 28.8% 4.2% 66.9% 354

VA 17.6% 2.8% 79.6% 637

VT 41.7% 6.9% 51.4% 319

WI 23.6% 1.9% 74.6% 539

WY 27.6% 3.0% 69.4% 232

Total 22.2% 3.9% 74.0% 17,176


Appendices | 176

Table D98. Have you voted? (in local, state, or federal election)

Yes Had the opportunity

but chose not to

No N

AL 54.4% 4.6% 41.0% 366

AR 33.3% 4.9% 61.7% 384

CO 36.9% 5.3% 57.8% 398

CT 36.1% 5.9% 58.1% 341

DC 26.4% 1.6% 72.0% 371

DE 41.6% 2.6% 55.8% 344

FL 32.8% 7.4% 59.8% 731

GA 27.5% 6.6% 65.8% 407

HI 18.5% 0.8% 80.8% 400

ID 35.5% 2.8% 61.8% 400

IL 42.2% 8.0% 49.9% 339

IN 36.2% 2.5% 61.3% 708

KS 27.4% 21.4% 51.2% 369

KY 7.4% 2.0% 90.6% 405

LA 41.8% 3.0% 55.2% 397

ME 47.0% 0.3% 52.7% 370

MI 26.8% 4.2% 69.0% 481

MN 32.0% 3.2% 64.9% 1,962

MO 18.0% 4.7% 77.3% 383

MS 40.2% 8.0% 51.8% 398

NC 38.6% 4.4% 57.0% 609

NE 41.1% 11.3% 47.6% 372

NH 50.8% 2.5% 46.7% 398

NJ 26.2% 4.1% 69.8% 367

NV 34.7% 28.3% 36.9% 406

NY 33.6% 5.2% 61.2% 503

OH 40.0% 8.1% 51.9% 645

OK 21.8% 2.6% 75.6% 385

OR 42.2% 16.8% 41.0% 398

PA 32.5% 12.0% 55.5% 656

RI 41.8% 4.3% 53.8% 325

SD 43.1% 8.5% 48.4% 283

TN 22.4% 2.2% 75.4% 451

TX 13.1% 2.7% 84.2% 1,370

UT 29.4% 3.4% 67.2% 378

VA 27.1% 5.8% 67.1% 774

VT 40.5% 2.5% 57.0% 316

WI 34.4% 2.2% 63.4% 549

WY 37.5% 4.5% 57.9% 309

Total 32.3% 5.6% 62.2% 19,448


Appendices — 177

Safety (un-collapsed and un-weighted)

Table D99. Are there any places where you feel afraid or scared? ∞

Home Day program Work Walking in community

Transport Other N

AL 6.4% 3.8% 0.0% 0.9% 1.2% 0.6% 346

AR 7.0% 3.7% 0.7% 8.7% 7.7% 4.0% 298

CO 4.0% 3.0% 1.3% 9.8% 11.1% 10.1% 297

CT 7.2% 4.0% 3.6% 6.9% 2.9% 8.7% 277

DC 5.0% 1.4% 0.0% 9.9% 3.5% 2.8% 141

DE 6.5% 4.0% 1.6% 8.5% 2.8% 6.1% 247

FL 2.8% 0.9% 0.0% 1.5% 0.4% 2.6% 465

GA 2.5% 1.4% 0.0% 0.7% 0.4% 2.5% 276

HI 2.7% 1.4% 0.5% 8.2% 3.7% 12.3% 219

ID 6.2% 2.8% 0.6% 6.2% 4.3% 17.6% 324

IL 8.9% 4.1% 0.4% 7.1% 0.0% 7.8% 269

IN 1.7% 1.5% 0.8% 2.4% 1.0% 5.2% 593

KS 8.0% 6.5% 2.9% 9.1% 5.8% 2.9% 276

KY 0.7% 0.3% 0.0% 3.3% 0.0% 0.7% 300

LA 4.7% 1.0% 0.0% 4.7% 1.7% 14.5% 297

ME 7.0% 2.4% 0.3% 7.3% 4.0% 9.1% 328

MI 4.6% 1.2% 0.9% 5.5% 3.1% 7.4% 325

MN 3.6% 0.8% 1.7% 5.3% 2.9% 6.4% 1,421

MO 2.3% 0.8% 0.4% 2.3% 0.8% 3.5% 256

MS 3.5% 2.4% 1.0% 7.3% 1.0% 11.9% 286

NC 5.5% 2.1% 0.3% 3.1% 1.0% 10.2% 381

NE 3.2% 2.4% 1.9% 13.5% 10.1% 12.2% 378

NH 3.0% 1.8% 2.4% 3.4% 1.2% 11.6% 328

NJ 8.3% 3.9% 0.0% 4.9% 1.0% 8.3% 205

NV 8.5% 1.2% 1.2% 10.6% 7.9% 9.1% 330

NY 4.2% 1.7% 0.0% 6.2% 2.5% 9.6% 355

OH 3.2% 4.2% 1.0% 6.3% 3.0% 6.3% 504

OK 3.5% 0.0% 1.7% 1.7% 0.4% 11.4% 229

OR 4.5% 1.3% 2.2% 10.2% 4.5% 11.5% 313

PA 6.1% 1.9% 1.1% 4.4% 1.7% 5.1% 472

RI 6.3% 3.2% 0.8% 8.7% 6.3% 8.7% 253

SD 10.4% 2.3% 1.5% 7.7% 2.7% 10.8% 260

TN 3.5% 0.0% 0.3% 0.5% 0.8% 7.3% 369

TX 5.4% 3.4% 0.7% 2.6% 1.9% 9.2% 1,525

UT 9.7% 5.2% 1.9% 9.0% 5.2% 12.7% 268

VA 4.0% 3.4% 1.0% 3.4% 2.2% 7.6% 497

VT 6.2% 0.0% 0.3% 3.8% 0.7% 12.1% 289

WI 4.8% 0.6% 1.1% 7.0% 2.5% 7.3% 355

WY 5.0% 2.5% 1.7% 8.8% 1.3% 12.1% 239

Total 4.9% 2.2% 1.0% 5.4% 2.8% 8.0% 14,791



Appendices — 178

Table D100. If you ever feel afraid, is there someone you can talk to?

Yes Maybe,

not sure No N

AL 97.4% 1.2% 1.4% 347

AR 92.9% 3.7% 3.4% 297

CO 91.7% 5.5% 2.8% 290

CT 93.3% 4.1% 2.6% 270

DC 92.1% 2.9% 5.0% 139

DE 89.1% 2.1% 8.8% 238

FL 94.9% 1.8% 3.3% 452

GA 98.9% 0.0% 1.1% 273

HI 85.6% 9.6% 4.8% 188

ID 92.7% 2.8% 4.4% 317

IL 90.3% 6.2% 3.5% 259

IN 95.9% 1.7% 2.4% 581

KS 95.2% 1.8% 2.9% 272

KY 98.7% 1.3% 0.0% 301

LA 96.5% 0.7% 2.8% 287

ME 94.9% 1.6% 3.5% 312

MI 94.4% 1.6% 3.9% 305

MN 94.6% 2.7% 2.7% 1,377

MO 94.0% 2.6% 3.4% 235

MS 95.7% 1.8% 2.5% 280

NC 95.3% 1.1% 3.6% 362

NE 87.4% 7.3% 5.4% 317

NH 96.0% 2.5% 1.6% 321

NJ 94.7% 1.4% 3.8% 209

NV 90.5% 4.7% 4.7% 316

NY 93.0% 2.6% 4.4% 343

OH 93.8% 2.7% 3.5% 481

OK 92.1% 1.4% 6.5% 215

OR 93.5% 2.7% 3.8% 293

PA 94.7% 1.8% 3.5% 452

RI 94.2% 3.3% 2.5% 241

SD 90.8% 4.4% 4.8% 250

TN 98.0% 1.2% 0.9% 346

TX 93.1% 2.2% 4.7% 1,385

UT 94.0% 1.6% 4.4% 252

VA 94.0% 2.2% 3.8% 452

VT 90.6% 3.4% 6.0% 267

WI 96.3% 1.4% 2.3% 347

WY 91.4% 6.5% 2.2% 232

Total 93.9% 2.6% 3.5% 14,101

adult consumer survey · 2018-05-02 · adult consumer survey highlights ... presentation of...

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