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Biomedical Informatics Program Douglas S. Bell, MD, PhD Leader, Biomedical Informatics Program Access to UCLA Clinical Data for Research

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Access to UCLA Clinical Data for Research Douglas S. Bell, MD, PhD Leader, Biomedical Informatics Program

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Page 1: Access to UCLA Clinical Data for Research

Biomedical Informatics Program

Douglas S. Bell, MD, PhD Leader, Biomedical Informatics Program

Access to UCLA Clinical Data for Research

Page 2: Access to UCLA Clinical Data for Research

UCLA’s Clinical Data Ecosystem

OHIA: Office of Health Informatics and Analytics

http://www.ctsi.ucla.edu/
Page 3: Access to UCLA Clinical Data for Research

ucrex.ctsi.ucla.edu

UC-ReX Demo

http://www.ctsi.ucla.edu/
Page 4: Access to UCLA Clinical Data for Research

UC-ReX Data Summary

  PATIENT DIMENSION OBSERVATION_FACT

UCSD 2,156,004 21,013,128

UCI 1,426,986 25,130,449

UCSF  2,974,048  56,721,257

UCD  1,935,972  37,048,141

UCLA 4,028,242  120,295,787

http://www.ctsi.ucla.edu/
Page 5: Access to UCLA Clinical Data for Research

ucrex.org

More Information

http://www.ctsi.ucla.edu/
Page 6: Access to UCLA Clinical Data for Research

LADR

http://www.ctsi.ucla.edu/
Page 7: Access to UCLA Clinical Data for Research

Getting Patient-level Data

• Request CTSI BIP assistance

• Obtain IRB approval

• Human subjects protection

• Obtain Compliance review

• Data security and privacy

• Set up location for receiving the data

• REDCap

• Other secure database or file server

• Respond to evaluation survey

http://www.ctsi.ucla.edu/
Page 8: Access to UCLA Clinical Data for Research

ctsi.ucla.edu

Request a service on CTSI portal

http://www.ctsi.ucla.edu/

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