22 at 20: a non-traditional transition story
DESCRIPTION
22 at 20: A non-traditional Transition story. SO GLAD YOU’RE HERE! Here’s what to do. DON’T. Stop listening! S ay “I couldn’t do that, there are too many obstacles” Say “this has nothing to do with me or my kid”. Keep an open mind Pick what makes sense Commit to at least one takeaway. - PowerPoint PPT PresentationTRANSCRIPT
22 at 20:
A non-traditional Transition story
SO GLAD YOU’RE HERE!Here’s what to do
22 at 20: A non-traditional Transition Story
Stop listening! Say “I couldn’t do that, there are too many obstacles”Say “this has nothing to do with me or my kid”
DON’T
DOKeep an open mindPick what makes senseCommit to at least one takeaway
20 years oldBehavioral aggressions began at age 5Maintained in public school setting through grade 6, spent one year in a day programHospitalized for 9 months at age 15 waiting for a residential placementPlaced in a restrictive setting for 5 years
A GLIMPSE AT NICKY
22 at 20: A non-traditional Transition Story
A CRITICAL DECISION
Nicky was not progressingWe were nearing 22 quicklyPlacement was not going to provide the necessary tools for successful prep for 22Without significant planning and skill building, Nicky would be in crisis at 22
22 at 20: A non-traditional Transition Story
THE APPROACH
Met with Phil Campbell, our new Director of Pupil Services…
“Why not start 22 at 20?”
22 at 20: A non-traditional Transition Story
THE DIRECTOR’S PERSPECTIVE
22 at 20: A non-traditional Transition Story
Went to observe Nicky in the placementAdvised the Superintendent, set up expectations for APSCreated open and regular communication with familyIndependent evaluation results showed concern
Commitment to create a new set of supports, with an emphasis toward transition to adult life
OK, SO NOW WHAT? (AND WHO, AND WHERE, AND HOW, AND WHEN)
Assessing our options:DAY PROGRAM
Researched local agenciesasked families, called for tours
Committed to HMEA (www.hmea.org)
RESIDENTIAL PROGRAMTraditional group home
SHARED LIVING??!! - fortuitous meeting with Nonotuck President
Committed to Nonotuck Resource Associates (www.nonotuck.com)
22 at 20: A non-traditional Transition Story
PROVIDER’S PERSPECTIVES
22 at 20: A non-traditional Transition Story
Collaboration & SupportWorking with a full team
Agency valuesDeveloping personalized service plan
Connecting through relationships
John StruthNonotuck Resource Associates
PROVIDER’S PERSPECTIVES
22 at 20: A non-traditional Transition Story
Day Services & Behavioral SupportsCollaborative Thinking
Michael MoloneyHMEA
FORMULATING THE PLAN
Family and Director agreed on who should be invited
Director’s role to facilitate the discussion (not manage)set agendas, maintain IEP paperwork
Shared the independent evaluation & recommendations
Created a timeline (back-chaining)
22 at 20: A non-traditional Transition Story
Original TIMELINE
22 at 20: A non-traditional Transition Story
Get To Know Me / Support
Assessment and Planning
Identify and Interview
Potential SLP / Meet and Greet
Residential Accommodation
s and Adjustments
Move In
Get To Know Me / Support
Assessment and Planning
Identify and Evaluate
Potential Day Programs
Day Program Accommodations and Adjustments
Rock and Roll
Residential
Day Program
June July-Aug Aug-Sept Sept-Oct
Timeline presented during kickoff meeting on 5.30.2012
Actual TIMELINE
Get To Know Me / Support
Assessment and Planning
Identify and Interview
Potential SLP / Meet and Greet
Residential Accommodation
s and Adjustments
Move In
Get To Know Me / Support
Assessment and Planning
Identify and Evaluate
Potential Day Programs
Day Program Accommodations and Adjustments
Rock and Roll
Residential
Day Program
June July-Aug Aug-Sept Sept-Oct
House Identified House Acquired Nicky Move-In
SLP Move-InLabor of Love
Weekend
Start Day Program
Evaluate Nicky House Accommodations
Complete
Final Readiness Meeting
Support Staff Interviews
Restrained Training
Complete
Day Program Defined
UnifiedBehavioral Plan
Parents-SLP initial meeting
Evaluate Nicky
SLP-Nicky meeting
Monthly Team Sync Up
55% reduction in aggressive behaviors70% reduction in self abusive behaviorSpends 50-70% of each week in the community
Educational (day) Setting:
SO HOW’S NICKY DOING NOW?
SO HOW’S NICKY DOING NOW?Residential Setting:
71% decrease in aggressive behaviors90% reduction inself abusive behaviorsVerbal language increasingUse of picture exchange
replacing aggression to communicate
Visiting community daily
22 at 20: A non-traditional Transition Story
TAKEAWAYS
TAKEAWAYS Mike
(Especially with residential services), the provider relationship can be a VERY long term relationship (decades; a lifetime) so spend lots of time vetting different organization
well before Turning 22 spend lots of time getting to know the organization(s) ask to speak with families already receiving services does the agency have a family group? can you attend a family group meeting prior to placement? consider attending an agency event to get a feel for the
culture of the organization Can you meet with the Exec or any administrator?
22 at 20: A non-traditional Transition Story
TAKEAWAYS John
22 at 20: A non-traditional Transition Story
Shared Living was not created solely for the “high functioning” Population
The idea of dignified living is not just for those who are pre-defined as “successful”
TAKEAWAYS Phil
22 at 20: A non-traditional Transition Story
Building & Maintaining a TRUST relationship
Connect with colleagues and resources
Facilitate, don’t manage
Communicate with Superintendent
24.7% decrease in cost to the school system!
TAKEAWAYS Alex & Cheryl
22 at 20: A non-traditional Transition Story
We spent a lot of time meeting people, being involved in the community, listening to the experiences of others – paid off in “connections”Asked others who know Nicky well, what they thoughtBack-chain planningFocus only forward – did not burden team with old stories, emotions to dominate meetings Turned our mindset from “educational goals” to practical skill buildingGathered the team and allowed them to do what they doRemoved the assumption that we ALWAYS know bestMaintaining respect for the relationship between SLP & NickyAsked Nonotuck not to put us at the top of the emergency listNow able to focus on improving quality of home visits for first time!
They need us, and they love us unconditionally.
So let’s STOP placing conditions on what we will do,
Rise above those who say we “can’t”,Step past those who say we “won’t”,
and show them that the value oftheir life transcends any limitationset before us.
If we can’t even come to the table together to open a dialogue and have a conversation about a single person because we are angry, defensive, or
not willing to compromise,
How can we expect to come together to affect change at the system level and make the process more effective?
PANELISTSCheryl Chan Nicky’s Mom, Agent of Change
Phil Campbell Director of Pupil Services, Martha’s Vineyard Public [email protected]
Mike Moloney President/CEO,HMEA, [email protected]
John Struth Clinical Director,Nonotuck Resource [email protected]
LET’S CONTINUE THE CONVERSATION
• http://www.successfultransitions.org
22 at 20: A non-traditional Transition Story
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• http://slideshare.com/cherylryanchan