2019 ern hospital managers’ meeting€¦ · managers » there is one « network » for each ern,...
TRANSCRIPT
![Page 1: 2019 ERN Hospital Managers’ meeting€¦ · managers » There is one « network » for each ERN, for the BoMS, the ITAG, the Project managers, the ERN Hospital managers. Each «](https://reader035.vdocuments.site/reader035/viewer/2022062505/5ec9c89139add22e0b0388a0/html5/thumbnails/1.jpg)
Communication
2019 ERN Hospital Managers’ meeting 16-17 May 2019
Paris
![Page 2: 2019 ERN Hospital Managers’ meeting€¦ · managers » There is one « network » for each ERN, for the BoMS, the ITAG, the Project managers, the ERN Hospital managers. Each «](https://reader035.vdocuments.site/reader035/viewer/2022062505/5ec9c89139add22e0b0388a0/html5/thumbnails/2.jpg)
How to communicate on the ERNs to an external audience (in conferences or events)? (1)
Video testimony through the EU Protects campaign: « Meet Europe's ordinary heroes »
https://europa.eu/euprotects/content/homepage_en
![Page 3: 2019 ERN Hospital Managers’ meeting€¦ · managers » There is one « network » for each ERN, for the BoMS, the ITAG, the Project managers, the ERN Hospital managers. Each «](https://reader035.vdocuments.site/reader035/viewer/2022062505/5ec9c89139add22e0b0388a0/html5/thumbnails/3.jpg)
How to communicate on the ERNs to an external audience (in conferences or events)? (2)
ERN brochure
ERN introductory video clip
(Update planned in 2019) https://ec.europa.eu/health/ern_en
https://ec.europa.eu/health/ern/videos_en
![Page 4: 2019 ERN Hospital Managers’ meeting€¦ · managers » There is one « network » for each ERN, for the BoMS, the ITAG, the Project managers, the ERN Hospital managers. Each «](https://reader035.vdocuments.site/reader035/viewer/2022062505/5ec9c89139add22e0b0388a0/html5/thumbnails/4.jpg)
How to provide healthcare professionals with communication tools on the ERNs for their patients?
Package addressed to patients and their doctors
[Flyer + video clip + poster]
All EU languages available + NO
Clip’s dubbing planned in 2019
![Page 5: 2019 ERN Hospital Managers’ meeting€¦ · managers » There is one « network » for each ERN, for the BoMS, the ITAG, the Project managers, the ERN Hospital managers. Each «](https://reader035.vdocuments.site/reader035/viewer/2022062505/5ec9c89139add22e0b0388a0/html5/thumbnails/5.jpg)
How to remain informed on the developments of the ERNs? (1)
ERN news published on
the Europa website :
https://ec.europa.eu/health/ern_en
« Latest updates »
![Page 6: 2019 ERN Hospital Managers’ meeting€¦ · managers » There is one « network » for each ERN, for the BoMS, the ITAG, the Project managers, the ERN Hospital managers. Each «](https://reader035.vdocuments.site/reader035/viewer/2022062505/5ec9c89139add22e0b0388a0/html5/thumbnails/6.jpg)
How to remain informed on the developments of the ERNs? (2)
forthcoming (new) ERN newsletter
Published around every 4 months, from June 2019 (TBC)
Includes:
- News on the last developments of the ERN community
- An Interview to one ERN key player
- Good practices from the ERN community
- Useful links and events
Target:
- the ERN community
- External stakeholders interested in the ERNs and rare diseases field
Upon on-line subscription
![Page 7: 2019 ERN Hospital Managers’ meeting€¦ · managers » There is one « network » for each ERN, for the BoMS, the ITAG, the Project managers, the ERN Hospital managers. Each «](https://reader035.vdocuments.site/reader035/viewer/2022062505/5ec9c89139add22e0b0388a0/html5/thumbnails/7.jpg)
Connect to the ECP – collaborative platform for the ERN community
https://webgate.ec.europa.eu/ern/
How to keep in contact with other Hospital managers?
![Page 8: 2019 ERN Hospital Managers’ meeting€¦ · managers » There is one « network » for each ERN, for the BoMS, the ITAG, the Project managers, the ERN Hospital managers. Each «](https://reader035.vdocuments.site/reader035/viewer/2022062505/5ec9c89139add22e0b0388a0/html5/thumbnails/8.jpg)
1) Sign in to continue
or create an EU login account
![Page 9: 2019 ERN Hospital Managers’ meeting€¦ · managers » There is one « network » for each ERN, for the BoMS, the ITAG, the Project managers, the ERN Hospital managers. Each «](https://reader035.vdocuments.site/reader035/viewer/2022062505/5ec9c89139add22e0b0388a0/html5/thumbnails/9.jpg)
2) Select the « network » you want to enroll in: « ERN Hospital managers »
There is one « network » for each ERN, for the BoMS, the ITAG, the Project managers, the ERN Hospital managers.
Each « network » offered a reserved space for internal exchange among the members of that network.
All the "Networks" have the same functionalities.
"Plaza" is a common space to all the « networks »: you automatically access to it if you are registered under one of the other networks.
![Page 10: 2019 ERN Hospital Managers’ meeting€¦ · managers » There is one « network » for each ERN, for the BoMS, the ITAG, the Project managers, the ERN Hospital managers. Each «](https://reader035.vdocuments.site/reader035/viewer/2022062505/5ec9c89139add22e0b0388a0/html5/thumbnails/10.jpg)
To select the network « ERN Hospital managers »:
• From the Homepage, select the network by clicking on the Request access button.
• The second page act as a confirmation to access the network. Choose Yes or No then Submit.
The administrator of this network (DG SANTE) will accept your request for access.
![Page 11: 2019 ERN Hospital Managers’ meeting€¦ · managers » There is one « network » for each ERN, for the BoMS, the ITAG, the Project managers, the ERN Hospital managers. Each «](https://reader035.vdocuments.site/reader035/viewer/2022062505/5ec9c89139add22e0b0388a0/html5/thumbnails/11.jpg)
3) Start using the functionalities of the platform
You can: - post news under "All activities" - create a discussion under "Forum" (created only by the Administrator) - upload/download documents under "Library" (only the Administrator can create sub-folders, all members can upload or download) - create an event under "Agenda"
Library
![Page 12: 2019 ERN Hospital Managers’ meeting€¦ · managers » There is one « network » for each ERN, for the BoMS, the ITAG, the Project managers, the ERN Hospital managers. Each «](https://reader035.vdocuments.site/reader035/viewer/2022062505/5ec9c89139add22e0b0388a0/html5/thumbnails/12.jpg)
« Plaza »:
- it is a "network" like the others, with the same functionalities
- you can access it if you are already member of one other "Network"
- the content is visible for all "Networks" (all ERNs and BoMS)
- you are invited to publish content which is relevant to all or a majority of the ERNs/BoMS
![Page 13: 2019 ERN Hospital Managers’ meeting€¦ · managers » There is one « network » for each ERN, for the BoMS, the ITAG, the Project managers, the ERN Hospital managers. Each «](https://reader035.vdocuments.site/reader035/viewer/2022062505/5ec9c89139add22e0b0388a0/html5/thumbnails/13.jpg)
Weekly summary of main news
- It is automatically generated by the IT system
- It is published each Monday and flags all the posts published the week before
![Page 14: 2019 ERN Hospital Managers’ meeting€¦ · managers » There is one « network » for each ERN, for the BoMS, the ITAG, the Project managers, the ERN Hospital managers. Each «](https://reader035.vdocuments.site/reader035/viewer/2022062505/5ec9c89139add22e0b0388a0/html5/thumbnails/14.jpg)
https://ec.europa.eu/health/ern_en
http://ec.europa.eu/health/ern/toolkit_en
@EU_Health
#ernEU