2012 annual report - livestrong...sarah and her husband were ready. ready to start a family, ready...

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Page 1: 2012 ANNUAL REPORT - Livestrong...Sarah and her husband were ready. Ready to start a family, ready to get back to normal life beyond cancer. Then, the second diagnosis came. Breast
Page 2: 2012 ANNUAL REPORT - Livestrong...Sarah and her husband were ready. Ready to start a family, ready to get back to normal life beyond cancer. Then, the second diagnosis came. Breast

2012 ANNUAL REPORT

Page 3: 2012 ANNUAL REPORT - Livestrong...Sarah and her husband were ready. Ready to start a family, ready to get back to normal life beyond cancer. Then, the second diagnosis came. Breast

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AFTER 15 YEARS, IT ’S OUR TIME.

THE LIVESTRONG FOUNDATION 2012 ANNUAL REPORT

Our time to rise above. Our time to renew, remake and reenergize. So let’s take a moment to remind ourselves that we bring the most needed support at the most heightened moment to those affected by cancer—from day one. Above all else, they are our priority. We fight with them to rise above the odds, the expectations and the disease. We all rise above. Together.

As one of our supporters stated, “I feel like I’m the number one priority for the Foundation. I’m above all other things to them. There are so many layers to this journey, and they help me rise to the top … where I can breathe.”

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1OUR COMMUNITY RISES

PAGE 6

5CHANGING THE WORLD BY

CHANGING MINDS

PAGE 30

3SUPPORT MEANS THE WORLD TO US

PAGE 16

7FINANCIALS, DONORS AND BOARD

PAGE 40

2THE PROOF IS IN THE PEOPLE

PAGE 8

6TURNING TALK INTO ACTION

PAGE 36

4NEXT STOP: YOUR COMMUNITY

PAGE 24

8AWARDS AND ACCOLADES

PAGE 50

9#STILLSTRONG IN 2013

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1O U R C O M M U N I T Y

R I S E S

DOUG’S LETTER

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Community. It’s the first word that comes to mind when I think about the LIVESTRONG Foundation. In 2012, I never felt more strongly about the power of community as we—together with you by our side—faced difficult headwinds and uncharted territory.

Through that and beyond, as we move with excitement into a new, prom-ising and singularly focused era for our Foundation, we have remained intently focused on what matters: people affected by cancer today and our mission to improve their lives. Last year, our 15th anniversary, we achieved several significant successes that helped us perform at the highest level and positioned us to move forward with even greater success.

First, thanks to your hard work and support, we surpassed the 2.5-million-people-served milestone by helping a record number of people in 2012 through our free, one-on-one cancer support services. Offered in person, by phone and online, these highly personalized, deeply engaged services connect people to treatment options, financial counseling, clinical trial access, fertility preservation, insurance and transportation assistance, emotional support and much more. With 14 million Americans living with cancer now and 4,500 Americans receiving new diagnoses each day, we know the need is great. Most important, we know it works. Research shows that addressing the concerns of the whole patient, alongside their medical treatment, produces measurably better outcomes in improved quality of life and prolonged survival.

Second, we worked on the front lines and across the globe to advance cancer care. We engaged in public policy matters that affect people with cancer and fought against the cancer stigmas that still exist, hampering life-saving diag-noses and treatment, in many parts of the world. Third, we continued our groundbreaking work to foster ongoing dialogue with cancer patients and survivors through Foundation research and surveys, and we gained deeper insights that inform both our programs and the wider cancer community’s treatment protocols. Fourth, we worked closely with our many program-matic and cause marketing partners to strengthen our financial future, expand our efforts and deliver first-rate services for those in need.

Our accomplishments would not be possible without the steadfast commitment of our Chairman Jeff Garvey, our Board of Directors and our millions of dedicated supporters. Our success has always been derived from people from all walks of life who meet a cancer diagnosis with hope and more than a little grit. We are inspired by you to dream bigger and reach further.

Although some things have changed, one thing remains absolutely true: This Foundation doesn’t back down from a challenge. Make no mistake that we will forge ahead boldly in 2013 and beyond to continue making a difference in the lives of people affected by cancer.

LIVESTRONG,

Doug UlmanPresident and CEO

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Sarah and her husband were ready. Ready to start a family, ready to get back to normal life beyond cancer. Then, the second diagnosis came. Breast cancer. Again. The news was devastating, and the options were few.

At 31, Sarah chose to have her ovaries removed, her best chance to survive. She thought it meant her dream of being a parent was over. She was fighting for her own life now. But when her oncologist mentioned the possibility of in vitro fertilization and connected Sarah to the LIVESTRONG Foundation, everything changed.

NAVIGATING THE

CANCER JOURNEY

THIS IS SARAH’S STORY

LIVESTRONG.org/Sarah

Sarah and her husband worked with one of our navigators to help pay for the medications and services for freezing embryos. And when her sister-in-law stepped forward to be a surrogate, their dreams came true. Lily D. was born nine months later.

Sarah sums it up, “The LIVESTRONG Foundation made what we thought was impossible … possible.”

T H E P R O O F I S I N T H E P E O P L E

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SEE OUR NAVIGATION SERVICES STORY

lvstr.ng/ar-navservices

“IT’S DIFFICULT TO HEAR STORIES

EVERY DAY WHERE YOU WISH YOU

COULD FIX IT, BUT IT’S REWARDING

TO KNOW THAT YOU ARE MAKING A

DIFFERENCE BY PROVIDING A RESOURCE,

BY PROVIDING A LISTENING EAR, BY

LETTING THEM KNOW THEY’RE NOT

ALONE AND HELPING THEM FEEL

PREPARED FOR WHATEVER THOSE

NEXT STEPS MAY BE.”— MELISSA NAVIGATION SERVICES TEAM

CANCER HAPPENS TO A PERSON, NOT A NUMBER.

EACH PERSON HAS HER JOURNEY, HIS EXPERIENCE,

HER FEELINGS, HIS ATTITUDE. FACING THAT JOURNEY

IS PRECISELY THE REASON WE PROVIDE FREE CANCER

NAVIGATION SERVICES TO HELP THOSE AFFECTED

BY CANCER. WE HELP SURVIVORS UNDERSTAND

THAT THEY CAN TAKE CONTROL OF THEIR EXPERI-

ENCE. FROM THE PHYSICAL TO THE EMOTIONAL TO

THE PRACTICAL , WE PROVIDE A WIDE RANGE OF

SUPPORT SERVICES.

MEET MELISSA FROM OUR NAVIGATION SERVICES TEAM

lvstr.ng/ar-melissa

I N S U R A N C E C H A L L E N G E S

T R E AT M E N T C O N C E R N S

E M O T I O N A L A N D P E E R S U P P O RT

F E RT I L I T Y P R E S E R VAT I O N

C L I N I CA L T R I A L M AT C H I N G

LIVESTRONG NAVIGATION SERVICES

ASSIST WITH:

MELISSA

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WE SAW AN 11% INCREASE

IN NEW CLIENT INTAKE OVER 2011.

WE SAVED OUR CLIENTS NEARLY $6,000,000 IN PERSONAL

COSTS BY NEGOTIATING DISCOUNTS, MAXIMIZING

AVAILABLE MEDICATION PROGRAMS AND OVERTURNING

DENIALS FROM INSURANCE COMPANIES.

2 0 1 12 0 1 2

11%

INCREASE

$6 ,000 ,000

IN 2012, OUR NAVIGATION SERVICES MADE A CLEAR IMPACT:

WE DIRECTLY SUPPORTED

MORE THAN 15,000 PEOPLE AFFECTED BY CANCER

IN PERSON, BY PHONE AND ONLINE.

x 1 0 0

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“AS CANCER PATIENTS, IT’S

IMPORTANT TO UNDERSTAND

THAT WE CAN AND SHOULD HELP

CONTRIBUTE TO THE UNDER-

STANDING AND ERADICATION

OF THIS DISEASE. HOPEFULLY, CLIN-

ICAL TRIALS WILL HELP ME DEFEAT

CANCER AND MOVE ON WITH MY

LIFE. UNDOUBTEDLY, THE RESEARCH

WILL PAVE A ROAD FOR OTHERS WHO

HAVE YET TO BE DIAGNOSED.”

Brian Rose didn’t mince words, and neither will we. He was an inspiration.

Brian was a baseball coach, a husband, a friend, but more than anything, he was a man on a mission to spread the word about cancer education and awareness. When Brian was diagnosed with Stage 4 melanoma, he found help through the LIVESTRONG Foundation, and we found a hero. Working with our navigation services, Brian received support with insurance, fertility and especially clinical trials. In turn, Brian became an outspoken advocate for not only the Foundation’s work, but for all those affected by cancer, championing his “Fight Like Hell” mantra.

In January of 2013, the world lost Brian Rose, but it did not lose his unforgettable spirit and inspiration. Thank you, Brian. We miss you.

THE JOURNEY WITH THE FOUNDATION BEGINS

AT LIVESTRONG.ORG/WECANHELP.

BRIAN ROSEFOR US, THE PROOF IS ALWAYS IN THE PEOPLE. NEVER

A NUMBER, BUT A NAME. NEVER A STATISTIC, BUT A

VOICE. MEET IRAM AND BRIAN.

“I WAS AFRAID CANCER

MEANT I PUSHED SOMEONE

I LOVED AWAY.”

IN HIS WORDS

“At the time of my diagnosis, I’d been married to my high school sweetheart for nine years. We had a daughter who was about to turn four. In my head, I thought by not talking to my wife about cancer, I was protecting her. My wife filed for divorce shortly after my brain surgery. Sometimes I worry that the way I handled my emotions and ideas about dying, cancer and finances pushed someone I love away.

The LIVESTRONG Cancer and Relationships class gave me some perspective. The Foundation connected me with other people who under-stand what I’m going through.”

WATCH IRAM’S STORY AT

LIVESTRONG.org/Iram

WATCH BRIAN’S STORY AT

LIVESTRONG.org/Brian

IRAM

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Barbara Simmons took on one of the biggest challenges of her life in 2012—a LIVESTRONG Foundation challenge known as RAGBRAI. Seven consecutive days of cycling, each day longer than the next, in 100-plus degree heat across Iowa. And, in her opinion, she’s not even a cyclist. Pretty incredible, to say the least, but it’s not the biggest challenge she’s ever faced.

She faces her biggest challenge every morning. Day after day. Month after month. Year after year. Surviving almost nine years since cancer stole her husband, Brian, the father of her three children.

That’s why Barbara stays motivated every day to take on more and more Foundation events. From running to cycling, fundraising to advo-cating, Barbara is one of the Foundation’s most passionate supporters. She has single-handedly raised more than $45,000 to help cancer patients today and has spread the Foundation’s mission to thousands of people.

BARBARA SIMMONS TEAM LIVESTRONG

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“THEY FUNDRAISE. THEY TALK TO THEIR

ELECTED OFFICIALS ABOUT CANCER-RELATED

POLICIES. THEY TALK TO THEIR LOCAL HOSPI-

TALS ABOUT THE IMPORTANT NAVIGATION

SERVICES WE OFFER. THEY EDUCATE THEIR

COMMUNITY AND NEIGHBORS ABOUT WHAT

WE DO, WHAT OUR MISSION IS AND WHAT WE

CAN DO TO HELP ANYBODY WHO IS AFFECTED

BY CANCER.”

— TARA GRASSROOTS ENGAGEMENT TEAM

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THE POWER OF A GRASSROOTS MOVEMENT THAT

TRULY HARNESSES THE PASSION OF ITS ADVOCATES IS

AN INSPIRING THING. AS THE NUMBER OF GRASSROOTS

SUPPORTERS INCREASED IN 2012, THE LIVESTRONG

LEADER PROGRAM ALSO EXPANDED.

The Leader program engages volunteers around the world to serve and inspire cancer survivors. Within their local communities, Leaders promote the Foundation’s navigation services, resources and other key programs; support our advocacy work with important policy and legislation; and fundraise. By supporting our priorities, developing relationships with community leaders and initiating their own activi-ties, more communities and individuals are impacted by our mission and services.

GROWING GLOBAL

ADVOCATES FROM THE

GROUND UP

LEARN MORE ABOUT OUR GRASSROOTS VOLUNTEERS

lvstr.ng/ar-lsleaders

$500 MIL L I ON

SINCE OUR INCEPTION, WE HAVE

RAISED OVER $500 MILLION DOLLARS

FOR THE FIGHT AGAINST CANCER.

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CAUSE MARKETING AND LICENSING $ 10,311,941 21.5 %

CONTRIBUTIONS 8,285,697 17.2 %

EVENT REVENUE 17,984,188 37.4 %

MERCHANDISE SALES 2,233,956 4.6 %

DIVIDENDS AND INTEREST 5,606,874 11.7 %

IN-KIND REVENUES 3,648,107 7.6 %

$ 48,070,763 100.0 %

PROGRAMS $ 37,706,967 84.2 %

FUNDRAISING 5,340,622 11.9 %

MANAGEMENT AND GENERAL 1,749,174 3.9 %

$ 44,796,763 100.0 %

EDUCATION, PROGRAMS AND POLICY $ 19,251,695 51.1 %

GRANTS 12,450,888 33.0 %

ADVOCACY 6,004,384 15.9 %

$ 37,706,967 100.0 %

2012 REVENUES

2012 FUNCTIONAL EXPENSES

2012 PROGRAM ACTIVITIES

The figures on these pages depict the finan-cial activities of the LIVESTRONG Foundation for the 2012 calendar year. Complete copies of the audited financial statements are avail-able upon request from the LIVESTRONG Foundation, 2201 East Sixth Street, Austin, TX 78702, or on our website at LIVESTRONG.org.

IN 2012, WE ADDED MORE THAN

830,000 NEW ADVOCATES WHO

ASSISTED IN HEIGHTENING AWARE-

NESS AND ENGAGED IN PUBLIC

POLICY MATTERS IMPACTING

THE CANCER COMMUNITY.

IN 2012, WE RAISED $48 MILLION

TO SUPPORT PROGRAMS THAT

SERVE PEOPLE AFFECTED BY

CANCER; $23.4 MILLION WERE

CONTRIBUTIONS FROM MORE THAN

116,000 DONORS WORLDWIDE.

IN 2012, 84 CENTS OF EVERY

DOLLAR RAISED WENT DIRECTLY

TO PROGRAMMATIC ACTIVITIES.

8 30 ,000 $ 4 8 MIL L I ON

Activism not only inspires more advocates; it also fuels donations. We are humbled by the impressive number of individual donors who give and the support we received from a community united by our mission.

This tremendous generosity allows us to provide all of our free services and resources like the LIVESTRONG Guidebook, cancer navigation services and LIVESTRONG at School, among many others. Since our inception, we have raised more than $500 million dollars for the fight against cancer, and 82% of those funds have gone directly to support our programs and services for survivors.

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40 MARATHONS

IN 40 DAYS

1 , 037 M IL ESThe most impressive number from 2012 might have come in the form of miles. Steve Cannon loves to run like nobody else you know. So much so that he decided to take on 40 marathons in 40 days, but not just for any reason. For those battling cancer today.

When Steve began his 1,000-plus-mile journey around Lake Michigan, he had no idea just how personally he would be affected during the process. On day 20, his mother called him to deliver the news that Steve’s Uncle Mike had stomach cancer. She passed along Uncle Mike’s words of encouragement and Steve continued. But only seven days later, Steve’s uncle passed away. His instinct was to stop and go home to be with his family, but his mother said, “Absolutely not! Uncle Mike runs with you now. You finish this.”

THE IMPACT OF ONE MAN RUNNING

Steve describes the rest of the 40-day event as a “journey within a journey.”

“Uncle Mike ran the rest of that day and many others with me. I ran much of the day on his legs, knowing he was free from pain and with me, smiling every step.”

On July 5, 2012, after becoming the first person to run around Lake Michigan, Steve returned to family and friends having raised $33,000 to help people affected by cancer. He also returned with even more passion and drive to continue the fight. In 2013, he has organized the Million Dollar Marathon. His team of more than 100 runners will run across the country, coast to coast, to raise awareness about cancer. STEVE CANNON FINISHES HIS JOURNEY AROUND

LAKE MICHIGAN ALONGSIDE FRIENDS AND FAMILY

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Sam and his wife, Sandy, love playing golf together. The fresh air, the exercise, the views. Sam is especially good at chipping from just off the green. But when Sam found out that a swollen lymph gland was cancerous, he didn’t realize just how quickly the treatment would bring his life, and Sandy’s, to a halt.

After the radiation, Sam found himself losing weight, coordination, balance and energy. Sandy knew he needed something to start him back on the road to recovery. When she saw a story in the local paper that the LIVESTRONG Foundation was working with cancer survivors at the YMCA, she knew the program could change their life.

Sam described the experience beautifully, “I could achieve things much more with a personal trainer who understands the effect of chemo and radiation than I was ever going to do on my own. You don’t have to tough it out on your own. There’s a program there to help you regain your confidence and zest for life and to help you know that there is quality life ahead of you.” And based on what Sam and Sandy have been up to, some quality rounds of golf, too.

Sam is just one of the many people we’ve helped through important programs in local communi-ties. With our continually growing partnerships and the Community Impact Project (CIP), we have been able to expand our reach and help raise already successful programs to the next level.

SAM

SAM AND SANDY ON THE GOLF COURSE4N E X T S T O P : Y O U R C O M M U N I T Y

INVESTING, EXPANDING

AND HAVING AN

IMPACT THROUGH

LOCAL PARTNERSHIPS

WATCH SAM AND SANDY’S STORY AND THEIR EXPERIENCE WITH LIVESTRONG AT THE YMCA

lvstr.ng/ar-lsymca

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S I N C E O U R C O M M U N I T Y, E D U CAT I O N

A N D M A R K E T I N G PA RT N E R S H I P S

B E G A N , M O R E T H A N 2 5 0

P R O G R A M S H AV E B E E N L AU N C H E D

I N 47 S TAT E S A N D M O R E T H A N $ 4 . 5

M I L L I O N H AS B E E N D I S T R I B U T E D .

T H E C O M M U N I T Y I M PAC T

P RO J EC T O F F E R S F U N D I N G TO

ORGANIZATIONS TO RECREATE

PROGRAMS THAT HAVE DEMON-

STRATED SUCCESS IN SUPPORTING

PEOPLE AFFECTED BY CANCER

WITHIN ONE CITY, STATE OR

REGION OF THE UNITED STATES.

RECREATING PROGRAMS THAT

ARE PROVEN TO BE EFFECTIVE

HAS ALLOWED US TO ELIMINATE

THE COST OF DEVELOPING

NEW PROGRAMS AND ALLOWS

FOR MORE IMMEDIATE IMPLE-

MENTATION TO HELP CANCER

SURVIVORS AND THEIR FAMILIES

TODAY—DIRECTLY SUPPORTING

OUR MISSION.

The 2012 Community Impact Project offered nearly $1.4 million in implementation awards to 90 selected applicants. This is the largest number of financial awards we have granted in a single year in the 15-year history of the Foundation. The four chosen community programs were:

LIVESTRONG AT THE YMCA

We continued to expand LIVESTRONG at the YMCA, a research-based program that offers people affected by cancer a safe, supportive environment to participate in physical and social activities focused on strengthening the whole person. Participants work with YMCA staff trained in supportive cancer care to achieve their goals such as building muscle mass and strength; increasing flexibility and endurance; and improving confidence and self-esteem.

PILLARS4LIFE

Pillars4Life is a patient/caregiver support program that has been proven to enhance quality of life for cancer patients and allows hospitals and their social workers to more efficiently triage and attend to the psychosocial needs of a much greater number of patients.

THE CREATIVE CENTER—HOSPITAL

ARTIST-IN-RESIDENCE PROGRAM

Since 1994, The Creative Center has been dedicated to bringing the arts to people with cancer, chronic illness and through all stages of life. This helps them discover their own creative resources while meeting the challenges of diag-nosis, treatment and survivorship.

ADVANCED CERTIFICATION

FOR PALLIATIVE CARE

Every cancer patient, from the day of diagnosis, has palliative care needs that focus on providing relief from the symptoms, pain and stress of the cancer journey. The goal of palliative care is not only to improve the quality of life for the patient but for the patient’s family as well. Palliative care integrated into cancer care has been shown to improve physical and psychological symptoms, improve caregiver well-being and even prolong survival. Simply put, it’s the kind of care that can make a difference in a patient’s life today. The Joint Commission’s Advanced Certification for Palliative Care is designed to set standards and acknowledge hospitals providing state-of-the-art palliative care services.

INVESTED $1.4 MILLION TO BRING

PROVEN CANCER SUPPORT PROGRAMS

TO 90 SITES ACROSS THE U.S. THROUGH

THE COMMUNITY IMPACT PROJECT.

AFFECTED MORE THAN 184,000

STUDENTS AND TEACHERS WITH THE

LIVESTRONG AT SCHOOL PROGRAM.

EXPANDED THE LIVESTRONG AT

THE YMCA PROGRAM TO NEARLY

300 COMMUNITIES SERVING 16,000

CANCER SURVIVORS SINCE INCEPTION.

DEVELOPED NEW CAUSE MARKETING

PARTNERSHIPS WITH CAR2GO, UMB/

VISA, FACEBOOK AND FTD.

MEET DEVON FROM THE COMMUNITY PROGRAMS AND ENGAGEMENT TEAM

lvstr.ng/ar-program

LEARN MORE ABOUT THE COMMUNITY IMPACT PROJECT

lvstr.ng/ar-community

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CAR2GO CAUSE

MARKETING PARTNERSHIP

In addition to expanding our programs, our cause marketing partnerships grew in 2012 as well. One in particular made a big impact with just a tiny car. car2go is an international car-sharing program that sponsored the Team LIVESTRONG Challenge Austin. Because of sponsors like car2go, 100% of the funds raised

through our Challenge Series go directly to our programs and services. And if you’re in the Austin area, be sure to track down one of the car2go Team LIVESTRONG Challenge-branded vehicles and take a ride in it to benefit the Foundation.

LIVESTRONG AT SCHOOL

lvstr.ng/ar-school

LIVESTRONG AT SCHOOL

“IT’S PROBABLY THE BEST

TWO DAYS OF CLASS

INSTRUCTION THAT

I’VE HAD IN A LONG

TIME, BECAUSE MY KIDS

WERE FOCUSED, THEY

WERE INTERESTED, THEY

SHARED OF THEMSELVES

AND THEY BONDED. I

COULDN’T ASK FOR A

BETTER RESPONSE.”

Stephanie Myers found out she had cancer in the 8th grade. She felt isolated. She felt alone at school. And when she lost her hair from chemo, students laughed at her.

Andy Miller of the Foundation notes, “Cancer affects a large percentage of the American population. It affects their hopes, their dreams, their relationships. But no one ever teaches you about that.”

Enter the LIVESTRONG at School program to help students cope with and learn about cancer and understand the impact it has on individuals like Stephanie. We touched more than 184,000 students and teachers in 2012. With one in three women and one in two men in the U.S. facing a cancer diagnosis in their lifetime, children in classrooms everywhere are likely to be dealing with cancer right now. The LIVESTRONG at School curriculum offers online lessons for grades K–12 to help students learn about cancer in a way that is age- appropriate, inspiring and empowering.

— BARBARA WOLANSKI TEACHER

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To this day, Clara Guzman still posts to her daughter’s Facebook page to share information about cancer. It’s part of a mission that her daughter, Karen, started by being one of the bravest teenagers you’d ever meet. When Karen found out she had cancer, she chose to fight. And share. And speak. And teach. And inspire. And she did it in Mexico, where the stigma of cancer causes many people to do just the opposite.

Karen was one of the first public storytellers of Comparte tu Historia, a program launched by the LIVESTRONG Foundation in 2011. Though Karen lost her fight with cancer in 2012, she still battles the stigma of cancer in Mexico today. Her mother has started a foundation in Karen’s memory that educates teenagers against the stigma and misperceptions of cancer and encourages them to spread the word so the silence of cancer can be overcome.

This is why we do it. Not only in Mexico, but also in South Africa and now beyond. We continue to strive to create a better global understanding of the disease to help patients today.

TACKLING CANCER STIGMAS

ACROSS THE GLOBEGLOBAL ANTI-STIGMA AND PATIENT EMPOWERMENT

lvstr.ng/ar-global

CLARA GUZMAN

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OF PEOPLE EXPOSED TO THE

CAMPAIGN LEARNED SOMETHING

NEW ABOUT CANCER.

OF PEOPLE EXPOSED TO THE

CAMPAIGN SAID IT INFLUENCED

THEM TO TALK MORE OPENLY

ABOUT CANCER.

OF PEOPLE EXPOSED TO THE

CAMPAIGN DID SOMETHING

DIFFERENTLY BECAUSE OF WHAT

THEY LEARNED.

76% 70% 42%

IN 2012, SIGNIFICANT EFFORTS WERE FOCUSED IN FOUR MEXICAN CITIES

TO REACH THE PUBLIC. TELEVISION MEDIA REACHED MORE THAN 104

MILLION PEOPLE, SOCIAL MEDIA REACHED OVER 850 THOUSAND MONTHLY,

RADIO REACHED 93 MILLION, NEARLY 250 PEOPLE WERE TRAINED AND

SPECIAL EVENTS WERE HELD. ON WORLD CANCER DAY, ONE EVENT GATH-

ERED MORE THAN SEVEN THOUSAND PEOPLE IN MEXICO CITY’S ZÓCALO.

OVERALL, THE RESULTS WERE ASTOUNDING:

WATCH JOSE “CHEMA” MARTI’S STORY AND HIS EXPERIENCE WITH COMPARTE TU HISTORIA

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JOSE “CHEMA” MARTI

“TO BE ABLE TO SHARE YOUR EXPERIENCE

THROUGH SONGS IS GETTING CLOSER

TO PEOPLE YOU DON’T KNOW WHO ARE

GOING THROUGH A SIMILAR SITUATION.

INDIVIDUALLY, WE’LL FIGHT OUR OWN

FIGHT, BUT WE’RE NOT ALONE.”

— JOSE “CHEMA” MARTI LYMPHOMA CANCER SURVIVOR, MUSICIAN AND COMPARTE TU HISTORIA STORYTELLER

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“I AM A CHILDHOOD CANCER SURVIVOR.

I WANT TO MAKE USE OF MY EXPERI-

ENCES FOR OTHER CANCER SURVIVORS.

I HAVE BEEN LOOKING FOR THE OPPOR-

TUNITY, AND THE CANCER SURVIVORS’

FORUM WOULD BE AN IDEAL PLACE

TO SHARE MY STORY WITH MANY

OTHER PEOPLE.”

PATIENT EMPOWERMENT

PROJECT IN JAPAN

With the success seen in South Africa and Mexico, the Foundation announced plans to expand its patient empowerment work to Japan. Along with partner American Cancer Society (ACS) and lead agency Health and Global Policy Institute (HGPI), the Patient Empowerment Project in Japan was born. The announcement was made at the World Cancer Congress during the session, “Innovative Strategies to Empower Survivors in the Global Fight Against Cancer.”

The Patient Empowerment Project formally launched in November 2012 with a two-day roundtable in Tokyo that included survivors, health care providers and NGOs. It was designed to amplify the cancer patient’s voice by allowing people to share their stories through testimony in a forum in front of policy makers, media and the public. The goal is to build a grassroots movement that will bring visibility to gaps in cancer control and highlight the need for cancer to be a stronger priority on the country’s health agenda.

In December 2013 in Tokyo, the project will reach its pinnacle when a Patient Forum will bring together families, health care providers, govern-ment representatives, NGOs and media to listen to patient stories and engage in dialogue about key cancer issues facing patients in Japan. The Forum will be followed by a national call to action on cancer—informed by these patient voices and needs.

— KEITA CHILDHOOD CANCER SURVIVOR/NURSING STUDENT

KEITA

BINZEE GONZALVOADVOCATE/LEADER

With the leadership of people like Binzee Gonzalvo, the “Over Cancer Together” campaign and Patient Empowerment Project are raising awareness of patients’ needs in Japan.

The goal of the Foundation’s work in Japan is to ultmately create a patient-informed national call to action to grow the cancer patient advocacy movement.

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6T U R N I N G T A L KI N T O A C T I O N

RAISING THE

BAR FOR CANCER

COMMUNITY

DIALOGUE, NEAR

AND FAR

ACTING ON OUR

SURVIVORSHIP RESEARCH

A special member of the Foundation’s family is our Director of Research, Ruth Rechis, a cancer survivor herself. She knows just how critical our mission is to help improve the lives of people affected by cancer. And she knows how to do something about it.

Ruth notes, “We do research to understand what people need, and then we create programs to help them. The work that we do is immediately translated into people’s lives.” Our flagship survey was conducted from June to December of 2012, results of which will help us to determine our plans moving forward.

This direct approach to research helped us lead the way in the cancer community’s conversation about survivorship care. There are approximately 14 million cancer survivors alive in the United States today, and that number is expected to grow to more than 18 million by 2020. As a result of innovative research, improved detection, access to care and treatment, and a focus on life after treatment ends, more people are surviving cancer than ever before. However, it has become clear

MEET RUTH RECHIS, DIRECTOR OF RESEARCH

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LEARN MORE ABOUT ESSENTIAL ELEMENTS

lvstr.ng/ar-care

that when primary treatment ends, the cancer journey does not. After treatment, many cancer survivors experience physical, emotional and practical concerns, but they don’t always receive the help they need. That’s why throughout 2012, the LIVESTRONG

 Foundation continued advancing the Essential Elements of Survivorship Care initiative. After the Foundation worked to build consensus among key stakeholders on the essential elements of survivorship care in 2011, in 2012 the Foundation and the LIVESTRONG Survivorship Center of Excellence Network refined the definitions of the 20 Essential Elements. Included were specific recommenda-tions and examples of basic and enriched levels of survivorship care. Additionally, the Foundation awarded Network Directors at the Fred Hutchinson Cancer Research Center to lead the Network in a collaborative research project to develop a cohort of young adult cancer survivors and test the impact of providing the essential elements of care to them.

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REDUCING PAIN IN HAITI

Haiti has experienced more than its fair share of tragedies over time, making it one of the least developed countries in most need of community-based programs and services. Recent disasters have only compounded local health emergencies.

The partnership between the Foundation, PIH and GAPRI is expanding the ongoing cancer initiative to further address pain management and palliative care for underserved cancer patients in the country. The Pain-Free Hospital Initiative is providing education for patients and staff, raising motivation and awareness, documenting pain levels, improving access to essential pain medicines and communicating the impact of these efforts. The focus is on motivating clinicians to evaluate and treat pain by using campaign-style materials and routine pain assessments by staff nurses. Project staff offer continuing medical education programs for clinicians and nurses and distribute reference and training materials, including pain treat-ment guides and prescribing information, to equip each clinician with the tools to effectively apply standard treatment guidelines for pain treatment.

The staff of the first two hospitals involved, St. Marc’s and Cange, have already noted significant improvement in patient experiences, and the initiative is building a case for replicating the model across the country.

EXPANDING ACCESS TO CARE

Hand in hand with barriers like stigma come lack of access to quality medical care and pain relief for many of the 28 million people affected by cancer throughout the world. The Foundation has worked tirelessly at the national and global levels to help promote a shift in policy and funding—away from the traditional disease-centric approach and towards strength-ening health systems that serve all the people.

In August 2012, the Foundation announced a $500,000 commitment and entered into a three-year joint initiative with the Union for International Cancer Control (UICC)—Expanding Global Access to Essential Medicines and Technologies. The Foundation and UICC set ambitious, but achievable, targets for essential medicines. We have developed a replicable, cost- effective model for improving access to pain relief in collaboration with Partners in Health (PIH) and the Global Access to Pain Relief Initiative (GAPRI), beginning with two hospitals in Haiti.

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CIA

LS, DO

NO

RS A

ND

BO

AR

D

CASH AND CASH EQUIVALENTS $ 29,990,299

INVESTMENT SECURITIES 18,694,052

ENDOWMENT FUNDS AND INVESTMENTS 37,744,046

ACCOUNTS RECEIVABLE 9,407,430

DEPOSITS, PREPAIDS AND INTANGIBLE ASSETS 1,924,515

INVENTORY 2,259,901

PROPERTY AND EQUIPMENT, NET 11,857,247

TOTAL ASSETS $ 106,703,912

LIABILITIES

ACCOUNTS PAYABLE AND ACCRUED EXPENSES $ 1,704,837

GRANTS PAYABLE 2,231,821

DEFERRED REVENUE 1,236,920

TOTAL LIABILITIES $ 5,173,578

NET ASSETS

UNRESTRICTED $ 87,023,297

TEMPORARILY RESTRICTED 8,376,416

PERMANENTLY RESTRICTED 11,304,199

TOTAL NET ASSETS $ 106,703,912

TOTAL LIABILITIES AND NET ASSETS $ 111,877,490

ASSETS LIABILITIES AND NET ASSETS

LIVESTRONG FOUNDATION STATEMENT OF FINANCIAL POSITION

The figures on these pages depict the finan-cial activities of the LIVESTRONG Foundation for the 2012 calendar year. Complete copies of the audited financial statements are avail-able upon request from the LIVESTRONG Foundation, 2201 East Sixth Street, Austin, TX 78702, or on our website at LIVESTRONG.org.

F I N A N C I A L S , D O N O R S

A N D B O A R D

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KAWAJA/HOLCOMBE FUND $ 66,287

KAYA KNERLY LIVESTRONG FOUNDATION ENDOWMENT FUND 30,455

KEIZO SHIMANO MEMORIAL FUND 30,983

KENNEDY/MARSHALL ENDOWMENT FUND 138,386

LARRY AND DR. NANCY O’REILLY, LAURAN, LEIGH, RAGAN FAMILY FUND 1,612,325

LEANNE JONES LIVESTRONG MEMORIAL FUND 30,883

LYDIA HUNTER-REAY MEMORIAL FUND 27,577

MARSHALL G. LUTZ ENDOWMENT FUND 55,888

MARTHA SOUTHERN HIRSCH MEMORIAL FUND 30,883

MCKINNON FAMILY FUND 29,468

MCPHAIL FAMILY ENDOWMENT 26,502

MICHAEL W. LOTZ MEMORIAL FUND 105,545

NIKE ENDOWMENT FUND 110,764

OAKLEY ENDOWMENT FUND 576,095

PLEDGED AND UNDESIGNATED 63,050

PLEDGED, PAID AND UNDESIGNATED 8,343

RADIOSHACK ENDOWMENT FUND 110,764

RISE ABOVE IT (RAI), IN MEMORY OF COLIN O’DONOGHUE $ 26,156

RONETTE ESPINOZA MEMORIAL FUND 29,083

RYAN PHUA MEMORIAL FUND 556,064

STEPHANIE ROBINS MEMORIAL FUND 673,978

SUSAN E. KUHN, CYRUS T. WINGATE AND SEVILLA M. TREVISANI AND THOMAS P. TREVISANI, II FAMILY FUND 26,645

THE ARMSTRONG FAMILY FUND 1,206,286

THE BILL PASSEY FAMILY FUND 30,523

THE HAMILTON JORDAN FUND 108,090

THE LEE FAMILY FUND 75,653

THE ROLLINS FAMILY FUND 207,887

THE SOPHIA KOLEVICH REMEMBRANCE FUND 32,210

THE ULMAN FAMILY ENDOWMENT 36,769

THE WADE F. B. THOMPSON ENDOWMENT FUND 110,764

THE WOOD/BRAUNSTEIN FAMILY FUND 25,480

UNDESIGNATED ENDOWMENT FUNDS 224,371

NAMED AND ENDOWED SPECIAL PURPOSE FUNDS

AMERICAN CENTURY INVESTMENTS ENDOWMENT FUND $ 490,060

ANDREA LEIGH TOMLINSON—PLANET CANCER FUND 333,240

BARBARA DUNGEY MEMORIAL FUND 27,142

BETSY H. SCHOFIELD MEMORIAL FUND 956,119

CHRISTINE PRATT MEMORIAL FUND 30,025

COXE FAMILY FUND 1,196,521

CVCCA—PARKER’S TEAM 61,765

DAN L. JONES AND JANET GIFFORD NORTH ENDOWMENT 30,224

DANA JAY LESNEVER MEMORIAL FUND 44,908

DAVID KNAGGS ENDOWMENT 54,964

DELL CHILDREN’S HOSPITAL GIFT IN HONOR OF SANDRA ARAGONA 299,954

DICK DYHRMAN MEMORIAL 37,252

ELIZABETH LAUSMANN JACOBS MEMORIAL FUND 27,902

GUPTA FAMILY FUND 29,083

HAMMER FAMILY FUND 42,417

HECHT FUND 26,960

IN HONOR OF BETTY OTTER-NICKERSON 59,112

IN HONOR OF JAMES “JIMMY” BAUMOEL $ 34,388

IN HONOR OF KATHLEEN B. AND JAMES N. SHERWIN 41,336

IN HONOR OF KEVIN “K2” KERWIN 27,563

IN HONOR OF LAWRENCE “LARRY” S. DOLIN 27,930

IN HONOR OF MICHAEL R. HENRY 30,883

IN HONOR OF RAINBOW BABIES AND CHILDREN’S HOSPITAL, CLEVELAND, OH 31,605

IN HONOR OF RENEE NICHOLAS 40,710

IN HONOR OF SHARON MOONEY 34,323

IN HONOR OF STEPHEN M. O’LEARY 247,062

IN HONOR OF THE STAFF OF THE LIVESTRONG FOUNDATION 106,400

IN HONOR OF THOMAS F. SLATER 33,971

IN HONOR OF WESLEY EDWARDS 31,595

JEANNETTE J. JEHL MEMORIAL FUND 109,036

JENNIFER SMITH COLLISON AND WARD SMITH MEMORIAL FUND 31,347

KAREN AND EVERETT COOK ENDOWMENT FUND 304,246

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FOUNDER’S CIRCLE 7 SOCIETY

Closed on December 31, 2002, the Founder’s Circle brought together entrepreneurial stewards who understood our passion and made a differ-ence through donations of $500,000 or more. The LIVESTRONG Foundation honors these individuals in perpetuity for their generosity and continued support.

The 7 Society recognizes individuals and organizations who have made an extraordinary financial commitment to the LIVESTRONG Foundation. Each member of this group has a cumulative giving commitment totaling $1 million or more to the global fight against cancer.

ANONYMOUS

ARAGONA FAMILY FOUNDATION

THE ARMSTRONG FAMILY

TENCH COXE AND SIMONE OTUS-COXE

MRS. JANE FRAZIER

JEFF AND BONITA GARVEY

STEVE HICKS AND DONNA

STOCKTON-HICKS

JAMES C. KENNEDY

KRAMER FOUNDATION

ANONYMOUS

NIKE

AMERICAN CENTURY INVESTMENTS

AMD

LANCE ARMSTRONG

O’REILLY FAMILY FOUNDATION

EVE AND ELLIS SHORT

OAKLEY

SANDRA AND JOE ARAGONA

ENCH COXE AND SIMONE OTUS-COXE

BONITA AND JEFF GARVEY

CAROL AND MIKE SHERWIN

NAV SOOCH

CRAIG G. MALLOY

JEAN M. SCHULER

ANDREW T. SHEEHAN

MIKE AND CAROL SHERWIN

BRAD A. SILVERBERG

ANGELA AND MORTON TOPFER

E. LEE WALKER AND JENNIFER

VICKERS

THOMAS WEISEL

WINDFALL FOUNDATION

LAURA AND CASEY WASSERMAN

ANONYMOUS

ELIZABETH AND BLAINE ROLLINS

GENENTECH

RADIOSHACK

MOVEMBER

24 HOURS OF BOOTY

SCOTT AND KATIE SCHOFIELD

DEMAND MEDIA

JOHNSON HEALTH TECH

TREK

4 YELLOW FOUNDATION

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PRESIDENT’S CIRCLE

The President’s Circle is a unique giving society that capitalizes on the Foundation’s mission-focused opportunities. Members of the President’s Circle give unrestricted “venture funds” which will be targeted at opportunities where other funding is not always readily avail-able. Unrestricted gifts, which may be used at the discretion of the president, are especially effective in helping to promote our mission and position the LIVESTRONG Foundation as a global leader in the fight against cancer.

CANDICE AND BRENT AARON

APRIL, JEREMY AND JAKE ANDERSON

JUDD APATOW AND LESLIE MANN

THE ARMSTRONG FAMILY

RICHARD C. BARKER

MARLA BOMMARITO-CROUCH

DOUG AND MARY BOWDEN

JEFF CASTELAZ AND JO ANN THRAIKILL

DENNIS AND CHRIS CAVNER

WENDY CHIOJI

PATRICK CONNELL

TIFFANY CRAVEN

CHRIS AND CARA DODSON

SCOTT AND JENNIFER DONALDSON

THE DONZIGER FAMILY

RYAN DUNGEY

JAMES W. AND RICHELLE FATHEREE

THE KELLY BROTHERS

JERRY AND ANGIE KELLEY

BOB KIESENDAHL

BART AND BARBARA KNAGGS

JOSIE E. KNIGHT

SUSAN AND MARK KOLMAN

LAURA AND STUART LITWIN

KIMI LOTZ AND LISA GOYNE

SPENCER AND SUSAN LUEDERS

REBECCA L. AND JOHN F. LUMANN IIIBRUCE LUTZ

THE MALLOY FAMILY

DRS. MARCY AND PETER MANN FAMILY

MARK AND ANNIE MCKINNON

MILEPOINT

ANDY MILLER AND BRIAN STEPHENS

ADAM AND CAMILLE MOORE

FITZGIBBON FAMILY FUND

WILL AND LAURENS FLANAGAN

MARIA AND SANDY FLESCHMAN

AMY AND JERRY FROSTICK

THE GAROFALO FAMILY

MICHAEL GOLDBERG

GOOCH FAMILY

LAURA AND MORRIS GOTTESMAN

CINDY AND BILL GRAF

THE GRIFFETH FAMILY

BOB, KIM, SHAYNA, AND JOSH HAMMER

THE HAYES-LATTIN FAMILY

SCOTT HENDLER AND LULU FLORES

PHILIPPE G. HILLS AND DAVID W. HANSON

LYDIA HUNTER-REAY

TOM AND ELIZABETH KAPLAN

KAWAJA/HOLCOMBE FAMILY FUND

JEFF AND JERI MULDER

DR. CRAIG AND ELLEN NICHOLS

CHARLIE AND MARY BETH O’REILLY

BETTY OTTER-NICKERSON

KATIE AND KYLE OUDT

AMBER AND TONY PAQUETTE

BILL PASSEY

MONA PATEL

RISE ABOVE IT (RAI)

ALEXANDRA AND ROBBIE ROBINETTE

JOE C. ROSS

DR. AND MRS. COREY ROTHROCK

CHRISOPHER SACCA

BOB AND CATHIE SALIPANTE

STEPHEN SAUNDERS

SCOTT AND KATIE SCHOFIELD

THE SEACH FAMILY

KOZO SHIMANO HOUSEHOLD

ALEXANDER AND IRENE SHOGHI

SILVER OAK CELLARS/TWOMEY CELLARS

LYDIA AND MICHAEL SLABY

SPAW FAMILY FOUNDATION

THE STAPLETON FAMILY

SURVIVOR SUMMIT 2012

PETER TAPSCOTT AND PATT BAENEN-TAPSCOTT

ANTHONY S. TORTORELLI

THE TRONSTEIN FAMILY

DOUG ULMAN

UROLOGY AUSTIN

SUZANNE AND MARC WINKELMAN

STEVEN AND HEATHER WOLF

JACK AND CARI WOOD

JULIAN YAP

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LIVESTRONG FOUNDATION BOARD OF DIRECTORS

OFFICERS

CHAIRMAN AND FOUNDING CHAIR

JEFFERY C. GARVEY, AUSTIN, TX

VICE CHAIR

MICHAEL SHERWIN, CLEVELAND, OH

SECRETARY

BLAINE P. ROLLINS, DENVER, CO

TREASURER

AMELIE G. RAMIREZ, DR. P.H., SAN ANTONIO, TX

EXECUTIVE COMMITTEE MEMBERS

JOSEPH C. ARAGONA, AUSTIN, TX

DAVID JOHNSON, M.D., DALLAS, TX

BOARD MEMBERS

CANDICE AARON,* CHICAGO, IL

J. DENNIS CAVNER, AUSTIN, TX

JULIAN DAY, FORT WORTH, TX

HAROLD P. FREEMAN, M.D., NEW YORK, NY

SANJAY GUPTA, M.D., ATLANTA, GA

MARK MCKINNON, AUSTIN, TX

CRAIG NICHOLS, M.D., PORTLAND, OR

JEREMIAH ROBINS,* SAN DIEGO, CA & SHANGHAI, CHINA

MITCHELL STOLLER, WASHINGTON, DC

E. LEE WALKER, AUSTIN, TX

* Elected December 2012

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IN 2013

At the LIVESTRONG Foundation, our mission is to inspire and empower people affected by cancer today. We do this by striving to fundamentally change the expectations and experience of living with cancer. As an organi-zation, we don’t believe in doing things the way they’ve always been done. We approach our mission from more than one angle: we develop and deploy programs that provide direct service to those who need it while advocating at the global, federal and state levels for legislation that will improve the lives of cancer survivors.

9# S T I L L S T R O N GI N 2 0 1 3

2013 and beyond are no different. Over the course of the next three years, we will focus on the following priorities:

ENSURE ANYONE AFFECTED BY CANCER HAS ACCESS TO

PATIENT-CENTERED NAVIGATION SERVICES

ELEVATE THE PATIENT ’S VOICE TO FUNDAMENTALLY CHANGE

THE WAY CANCER IS EXPERIENCED AND UNDERSTOOD

ENGAGE COMMUNITIES TO COLLABORATIVELY AND COMPREHENSIVELY

IMPLEMENT PATIENT-CENTERED APPROACHES THAT POSITIVELY IMPACT

PEOPLE AFFECTED BY CANCER

CREATE THE FOREMOST BRAND ASSOCIATION WITH LIVING

LIFE TO THE FULLEST IN THE FACE OF CANCER

ONE OF THE NONPROFIT TIMES’ “50 BEST NONPROFITS TO WORK

FOR IN 2012”

4/4 STAR RATING FROM CHARITY NAVIGATOR

INVITED TO PARTICIPATE IN THE CRITICAL POLICY DISCUSSIONS OF

THE INSTITUTE OF MEDICINE’S NATIONAL CANCER POLICY FORUM

NATIONAL HEALTH INFORMATION AWARDS—GOLD AWARD

HONORING THE NATION’S BEST CONSUMER HEALTH PROGRAMS

AND MATERIALS

WEB HEALTH AWARDS—SILVER AWARD HONORING THE BEST

DIGITAL HEALTH RESOURCES

PUBLIC RELATIONS SOCIETY OF AMERICA PR PROFESSIONAL OF

THE YEAR*

NOMINATED FOR PUBLIC RELATIONS SOCIETY OF AMERICA SILVER

ANVIL AWARD*

FINALIST FOR URBAN LAND INSTITUTE GLOBAL AWARDS

FOR EXCELLENCE

* Awarded in 2013 for work completed in 2012

8A W A R D S A N DA C C O L A D E S

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IN 2013

THANK YOU

Thank you so much for taking the time to learn about the Foundation’s progress and our continued focus on our mission to help those affected by cancer today. Your partnership, investment and support inspire us and allow us to change the world as a community. We look forward to updating you regularly on our accomplishments which simply would not be possible without you. Mission. Above all else.

Y O U R F R I E N D S AT T H E

L I V E S T R O N G F O U N D AT I O N

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Mike Amann led the design of the Annual Report you’re reading right now. And he screen printed the cover, with its layers of meaning. Mike is not just a graphic designer but also a new father, a husband, a son, a brother, a friend, a warrior and an inspiration. Mike is fighting a vicious neuroendocrine cancer right now and was doing so throughout the entire design process of this book. Chemo on Mondays, hospital visits far too often, surgeries scheduled for after this book is printed. Didn’t matter. He showed up to his studio in Covington, Kentucky, every day he could, with Juno the Doberman by his side. His passion for telling LIVESTRONG stories through his art rose to the top. His craftsman-ship outdueled cancer every day of the week. And his drive doesn’t stop there, as Mike will be taking on his cancer with a breakthrough surgical approach that will help educate the cancer medical community for the future.

This is Mike Amann. And this is what LIVESTRONG is all about.

MIKE AMANN

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