2012 annual report - livestrong...sarah and her husband were ready. ready to start a family, ready...
TRANSCRIPT
2012 ANNUAL REPORT
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AFTER 15 YEARS, IT ’S OUR TIME.
THE LIVESTRONG FOUNDATION 2012 ANNUAL REPORT
Our time to rise above. Our time to renew, remake and reenergize. So let’s take a moment to remind ourselves that we bring the most needed support at the most heightened moment to those affected by cancer—from day one. Above all else, they are our priority. We fight with them to rise above the odds, the expectations and the disease. We all rise above. Together.
As one of our supporters stated, “I feel like I’m the number one priority for the Foundation. I’m above all other things to them. There are so many layers to this journey, and they help me rise to the top … where I can breathe.”
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TAB
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TEN
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1OUR COMMUNITY RISES
PAGE 6
5CHANGING THE WORLD BY
CHANGING MINDS
PAGE 30
3SUPPORT MEANS THE WORLD TO US
PAGE 16
7FINANCIALS, DONORS AND BOARD
PAGE 40
2THE PROOF IS IN THE PEOPLE
PAGE 8
6TURNING TALK INTO ACTION
PAGE 36
4NEXT STOP: YOUR COMMUNITY
PAGE 24
8AWARDS AND ACCOLADES
PAGE 50
9#STILLSTRONG IN 2013
PAGE 51
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1 | DO
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’S LETT
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1O U R C O M M U N I T Y
R I S E S
DOUG’S LETTER
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Community. It’s the first word that comes to mind when I think about the LIVESTRONG Foundation. In 2012, I never felt more strongly about the power of community as we—together with you by our side—faced difficult headwinds and uncharted territory.
Through that and beyond, as we move with excitement into a new, prom-ising and singularly focused era for our Foundation, we have remained intently focused on what matters: people affected by cancer today and our mission to improve their lives. Last year, our 15th anniversary, we achieved several significant successes that helped us perform at the highest level and positioned us to move forward with even greater success.
First, thanks to your hard work and support, we surpassed the 2.5-million-people-served milestone by helping a record number of people in 2012 through our free, one-on-one cancer support services. Offered in person, by phone and online, these highly personalized, deeply engaged services connect people to treatment options, financial counseling, clinical trial access, fertility preservation, insurance and transportation assistance, emotional support and much more. With 14 million Americans living with cancer now and 4,500 Americans receiving new diagnoses each day, we know the need is great. Most important, we know it works. Research shows that addressing the concerns of the whole patient, alongside their medical treatment, produces measurably better outcomes in improved quality of life and prolonged survival.
Second, we worked on the front lines and across the globe to advance cancer care. We engaged in public policy matters that affect people with cancer and fought against the cancer stigmas that still exist, hampering life-saving diag-noses and treatment, in many parts of the world. Third, we continued our groundbreaking work to foster ongoing dialogue with cancer patients and survivors through Foundation research and surveys, and we gained deeper insights that inform both our programs and the wider cancer community’s treatment protocols. Fourth, we worked closely with our many program-matic and cause marketing partners to strengthen our financial future, expand our efforts and deliver first-rate services for those in need.
Our accomplishments would not be possible without the steadfast commitment of our Chairman Jeff Garvey, our Board of Directors and our millions of dedicated supporters. Our success has always been derived from people from all walks of life who meet a cancer diagnosis with hope and more than a little grit. We are inspired by you to dream bigger and reach further.
Although some things have changed, one thing remains absolutely true: This Foundation doesn’t back down from a challenge. Make no mistake that we will forge ahead boldly in 2013 and beyond to continue making a difference in the lives of people affected by cancer.
LIVESTRONG,
Doug UlmanPresident and CEO
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Sarah and her husband were ready. Ready to start a family, ready to get back to normal life beyond cancer. Then, the second diagnosis came. Breast cancer. Again. The news was devastating, and the options were few.
At 31, Sarah chose to have her ovaries removed, her best chance to survive. She thought it meant her dream of being a parent was over. She was fighting for her own life now. But when her oncologist mentioned the possibility of in vitro fertilization and connected Sarah to the LIVESTRONG Foundation, everything changed.
NAVIGATING THE
CANCER JOURNEY
THIS IS SARAH’S STORY
LIVESTRONG.org/Sarah
Sarah and her husband worked with one of our navigators to help pay for the medications and services for freezing embryos. And when her sister-in-law stepped forward to be a surrogate, their dreams came true. Lily D. was born nine months later.
Sarah sums it up, “The LIVESTRONG Foundation made what we thought was impossible … possible.”
T H E P R O O F I S I N T H E P E O P L E
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SEE OUR NAVIGATION SERVICES STORY
lvstr.ng/ar-navservices
“IT’S DIFFICULT TO HEAR STORIES
EVERY DAY WHERE YOU WISH YOU
COULD FIX IT, BUT IT’S REWARDING
TO KNOW THAT YOU ARE MAKING A
DIFFERENCE BY PROVIDING A RESOURCE,
BY PROVIDING A LISTENING EAR, BY
LETTING THEM KNOW THEY’RE NOT
ALONE AND HELPING THEM FEEL
PREPARED FOR WHATEVER THOSE
NEXT STEPS MAY BE.”— MELISSA NAVIGATION SERVICES TEAM
CANCER HAPPENS TO A PERSON, NOT A NUMBER.
EACH PERSON HAS HER JOURNEY, HIS EXPERIENCE,
HER FEELINGS, HIS ATTITUDE. FACING THAT JOURNEY
IS PRECISELY THE REASON WE PROVIDE FREE CANCER
NAVIGATION SERVICES TO HELP THOSE AFFECTED
BY CANCER. WE HELP SURVIVORS UNDERSTAND
THAT THEY CAN TAKE CONTROL OF THEIR EXPERI-
ENCE. FROM THE PHYSICAL TO THE EMOTIONAL TO
THE PRACTICAL , WE PROVIDE A WIDE RANGE OF
SUPPORT SERVICES.
MEET MELISSA FROM OUR NAVIGATION SERVICES TEAM
lvstr.ng/ar-melissa
I N S U R A N C E C H A L L E N G E S
T R E AT M E N T C O N C E R N S
E M O T I O N A L A N D P E E R S U P P O RT
F E RT I L I T Y P R E S E R VAT I O N
C L I N I CA L T R I A L M AT C H I N G
LIVESTRONG NAVIGATION SERVICES
ASSIST WITH:
MELISSA
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WE SAW AN 11% INCREASE
IN NEW CLIENT INTAKE OVER 2011.
WE SAVED OUR CLIENTS NEARLY $6,000,000 IN PERSONAL
COSTS BY NEGOTIATING DISCOUNTS, MAXIMIZING
AVAILABLE MEDICATION PROGRAMS AND OVERTURNING
DENIALS FROM INSURANCE COMPANIES.
2 0 1 12 0 1 2
11%
INCREASE
$6 ,000 ,000
IN 2012, OUR NAVIGATION SERVICES MADE A CLEAR IMPACT:
WE DIRECTLY SUPPORTED
MORE THAN 15,000 PEOPLE AFFECTED BY CANCER
IN PERSON, BY PHONE AND ONLINE.
x 1 0 0
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“AS CANCER PATIENTS, IT’S
IMPORTANT TO UNDERSTAND
THAT WE CAN AND SHOULD HELP
CONTRIBUTE TO THE UNDER-
STANDING AND ERADICATION
OF THIS DISEASE. HOPEFULLY, CLIN-
ICAL TRIALS WILL HELP ME DEFEAT
CANCER AND MOVE ON WITH MY
LIFE. UNDOUBTEDLY, THE RESEARCH
WILL PAVE A ROAD FOR OTHERS WHO
HAVE YET TO BE DIAGNOSED.”
Brian Rose didn’t mince words, and neither will we. He was an inspiration.
Brian was a baseball coach, a husband, a friend, but more than anything, he was a man on a mission to spread the word about cancer education and awareness. When Brian was diagnosed with Stage 4 melanoma, he found help through the LIVESTRONG Foundation, and we found a hero. Working with our navigation services, Brian received support with insurance, fertility and especially clinical trials. In turn, Brian became an outspoken advocate for not only the Foundation’s work, but for all those affected by cancer, championing his “Fight Like Hell” mantra.
In January of 2013, the world lost Brian Rose, but it did not lose his unforgettable spirit and inspiration. Thank you, Brian. We miss you.
THE JOURNEY WITH THE FOUNDATION BEGINS
AT LIVESTRONG.ORG/WECANHELP.
BRIAN ROSEFOR US, THE PROOF IS ALWAYS IN THE PEOPLE. NEVER
A NUMBER, BUT A NAME. NEVER A STATISTIC, BUT A
VOICE. MEET IRAM AND BRIAN.
“I WAS AFRAID CANCER
MEANT I PUSHED SOMEONE
I LOVED AWAY.”
IN HIS WORDS
“At the time of my diagnosis, I’d been married to my high school sweetheart for nine years. We had a daughter who was about to turn four. In my head, I thought by not talking to my wife about cancer, I was protecting her. My wife filed for divorce shortly after my brain surgery. Sometimes I worry that the way I handled my emotions and ideas about dying, cancer and finances pushed someone I love away.
The LIVESTRONG Cancer and Relationships class gave me some perspective. The Foundation connected me with other people who under-stand what I’m going through.”
WATCH IRAM’S STORY AT
LIVESTRONG.org/Iram
WATCH BRIAN’S STORY AT
LIVESTRONG.org/Brian
IRAM
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Barbara Simmons took on one of the biggest challenges of her life in 2012—a LIVESTRONG Foundation challenge known as RAGBRAI. Seven consecutive days of cycling, each day longer than the next, in 100-plus degree heat across Iowa. And, in her opinion, she’s not even a cyclist. Pretty incredible, to say the least, but it’s not the biggest challenge she’s ever faced.
She faces her biggest challenge every morning. Day after day. Month after month. Year after year. Surviving almost nine years since cancer stole her husband, Brian, the father of her three children.
That’s why Barbara stays motivated every day to take on more and more Foundation events. From running to cycling, fundraising to advo-cating, Barbara is one of the Foundation’s most passionate supporters. She has single-handedly raised more than $45,000 to help cancer patients today and has spread the Foundation’s mission to thousands of people.
BARBARA SIMMONS TEAM LIVESTRONG
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“THEY FUNDRAISE. THEY TALK TO THEIR
ELECTED OFFICIALS ABOUT CANCER-RELATED
POLICIES. THEY TALK TO THEIR LOCAL HOSPI-
TALS ABOUT THE IMPORTANT NAVIGATION
SERVICES WE OFFER. THEY EDUCATE THEIR
COMMUNITY AND NEIGHBORS ABOUT WHAT
WE DO, WHAT OUR MISSION IS AND WHAT WE
CAN DO TO HELP ANYBODY WHO IS AFFECTED
BY CANCER.”
— TARA GRASSROOTS ENGAGEMENT TEAM
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THE POWER OF A GRASSROOTS MOVEMENT THAT
TRULY HARNESSES THE PASSION OF ITS ADVOCATES IS
AN INSPIRING THING. AS THE NUMBER OF GRASSROOTS
SUPPORTERS INCREASED IN 2012, THE LIVESTRONG
LEADER PROGRAM ALSO EXPANDED.
The Leader program engages volunteers around the world to serve and inspire cancer survivors. Within their local communities, Leaders promote the Foundation’s navigation services, resources and other key programs; support our advocacy work with important policy and legislation; and fundraise. By supporting our priorities, developing relationships with community leaders and initiating their own activi-ties, more communities and individuals are impacted by our mission and services.
GROWING GLOBAL
ADVOCATES FROM THE
GROUND UP
LEARN MORE ABOUT OUR GRASSROOTS VOLUNTEERS
lvstr.ng/ar-lsleaders
$500 MIL L I ON
SINCE OUR INCEPTION, WE HAVE
RAISED OVER $500 MILLION DOLLARS
FOR THE FIGHT AGAINST CANCER.
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CAUSE MARKETING AND LICENSING $ 10,311,941 21.5 %
CONTRIBUTIONS 8,285,697 17.2 %
EVENT REVENUE 17,984,188 37.4 %
MERCHANDISE SALES 2,233,956 4.6 %
DIVIDENDS AND INTEREST 5,606,874 11.7 %
IN-KIND REVENUES 3,648,107 7.6 %
$ 48,070,763 100.0 %
PROGRAMS $ 37,706,967 84.2 %
FUNDRAISING 5,340,622 11.9 %
MANAGEMENT AND GENERAL 1,749,174 3.9 %
$ 44,796,763 100.0 %
EDUCATION, PROGRAMS AND POLICY $ 19,251,695 51.1 %
GRANTS 12,450,888 33.0 %
ADVOCACY 6,004,384 15.9 %
$ 37,706,967 100.0 %
2012 REVENUES
2012 FUNCTIONAL EXPENSES
2012 PROGRAM ACTIVITIES
The figures on these pages depict the finan-cial activities of the LIVESTRONG Foundation for the 2012 calendar year. Complete copies of the audited financial statements are avail-able upon request from the LIVESTRONG Foundation, 2201 East Sixth Street, Austin, TX 78702, or on our website at LIVESTRONG.org.
IN 2012, WE ADDED MORE THAN
830,000 NEW ADVOCATES WHO
ASSISTED IN HEIGHTENING AWARE-
NESS AND ENGAGED IN PUBLIC
POLICY MATTERS IMPACTING
THE CANCER COMMUNITY.
IN 2012, WE RAISED $48 MILLION
TO SUPPORT PROGRAMS THAT
SERVE PEOPLE AFFECTED BY
CANCER; $23.4 MILLION WERE
CONTRIBUTIONS FROM MORE THAN
116,000 DONORS WORLDWIDE.
IN 2012, 84 CENTS OF EVERY
DOLLAR RAISED WENT DIRECTLY
TO PROGRAMMATIC ACTIVITIES.
8 30 ,000 $ 4 8 MIL L I ON
Activism not only inspires more advocates; it also fuels donations. We are humbled by the impressive number of individual donors who give and the support we received from a community united by our mission.
This tremendous generosity allows us to provide all of our free services and resources like the LIVESTRONG Guidebook, cancer navigation services and LIVESTRONG at School, among many others. Since our inception, we have raised more than $500 million dollars for the fight against cancer, and 82% of those funds have gone directly to support our programs and services for survivors.
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40 MARATHONS
IN 40 DAYS
1 , 037 M IL ESThe most impressive number from 2012 might have come in the form of miles. Steve Cannon loves to run like nobody else you know. So much so that he decided to take on 40 marathons in 40 days, but not just for any reason. For those battling cancer today.
When Steve began his 1,000-plus-mile journey around Lake Michigan, he had no idea just how personally he would be affected during the process. On day 20, his mother called him to deliver the news that Steve’s Uncle Mike had stomach cancer. She passed along Uncle Mike’s words of encouragement and Steve continued. But only seven days later, Steve’s uncle passed away. His instinct was to stop and go home to be with his family, but his mother said, “Absolutely not! Uncle Mike runs with you now. You finish this.”
THE IMPACT OF ONE MAN RUNNING
Steve describes the rest of the 40-day event as a “journey within a journey.”
“Uncle Mike ran the rest of that day and many others with me. I ran much of the day on his legs, knowing he was free from pain and with me, smiling every step.”
On July 5, 2012, after becoming the first person to run around Lake Michigan, Steve returned to family and friends having raised $33,000 to help people affected by cancer. He also returned with even more passion and drive to continue the fight. In 2013, he has organized the Million Dollar Marathon. His team of more than 100 runners will run across the country, coast to coast, to raise awareness about cancer. STEVE CANNON FINISHES HIS JOURNEY AROUND
LAKE MICHIGAN ALONGSIDE FRIENDS AND FAMILY
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Sam and his wife, Sandy, love playing golf together. The fresh air, the exercise, the views. Sam is especially good at chipping from just off the green. But when Sam found out that a swollen lymph gland was cancerous, he didn’t realize just how quickly the treatment would bring his life, and Sandy’s, to a halt.
After the radiation, Sam found himself losing weight, coordination, balance and energy. Sandy knew he needed something to start him back on the road to recovery. When she saw a story in the local paper that the LIVESTRONG Foundation was working with cancer survivors at the YMCA, she knew the program could change their life.
Sam described the experience beautifully, “I could achieve things much more with a personal trainer who understands the effect of chemo and radiation than I was ever going to do on my own. You don’t have to tough it out on your own. There’s a program there to help you regain your confidence and zest for life and to help you know that there is quality life ahead of you.” And based on what Sam and Sandy have been up to, some quality rounds of golf, too.
Sam is just one of the many people we’ve helped through important programs in local communi-ties. With our continually growing partnerships and the Community Impact Project (CIP), we have been able to expand our reach and help raise already successful programs to the next level.
SAM
SAM AND SANDY ON THE GOLF COURSE4N E X T S T O P : Y O U R C O M M U N I T Y
INVESTING, EXPANDING
AND HAVING AN
IMPACT THROUGH
LOCAL PARTNERSHIPS
WATCH SAM AND SANDY’S STORY AND THEIR EXPERIENCE WITH LIVESTRONG AT THE YMCA
lvstr.ng/ar-lsymca
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S I N C E O U R C O M M U N I T Y, E D U CAT I O N
A N D M A R K E T I N G PA RT N E R S H I P S
B E G A N , M O R E T H A N 2 5 0
P R O G R A M S H AV E B E E N L AU N C H E D
I N 47 S TAT E S A N D M O R E T H A N $ 4 . 5
M I L L I O N H AS B E E N D I S T R I B U T E D .
T H E C O M M U N I T Y I M PAC T
P RO J EC T O F F E R S F U N D I N G TO
ORGANIZATIONS TO RECREATE
PROGRAMS THAT HAVE DEMON-
STRATED SUCCESS IN SUPPORTING
PEOPLE AFFECTED BY CANCER
WITHIN ONE CITY, STATE OR
REGION OF THE UNITED STATES.
RECREATING PROGRAMS THAT
ARE PROVEN TO BE EFFECTIVE
HAS ALLOWED US TO ELIMINATE
THE COST OF DEVELOPING
NEW PROGRAMS AND ALLOWS
FOR MORE IMMEDIATE IMPLE-
MENTATION TO HELP CANCER
SURVIVORS AND THEIR FAMILIES
TODAY—DIRECTLY SUPPORTING
OUR MISSION.
The 2012 Community Impact Project offered nearly $1.4 million in implementation awards to 90 selected applicants. This is the largest number of financial awards we have granted in a single year in the 15-year history of the Foundation. The four chosen community programs were:
LIVESTRONG AT THE YMCA
We continued to expand LIVESTRONG at the YMCA, a research-based program that offers people affected by cancer a safe, supportive environment to participate in physical and social activities focused on strengthening the whole person. Participants work with YMCA staff trained in supportive cancer care to achieve their goals such as building muscle mass and strength; increasing flexibility and endurance; and improving confidence and self-esteem.
PILLARS4LIFE
Pillars4Life is a patient/caregiver support program that has been proven to enhance quality of life for cancer patients and allows hospitals and their social workers to more efficiently triage and attend to the psychosocial needs of a much greater number of patients.
THE CREATIVE CENTER—HOSPITAL
ARTIST-IN-RESIDENCE PROGRAM
Since 1994, The Creative Center has been dedicated to bringing the arts to people with cancer, chronic illness and through all stages of life. This helps them discover their own creative resources while meeting the challenges of diag-nosis, treatment and survivorship.
ADVANCED CERTIFICATION
FOR PALLIATIVE CARE
Every cancer patient, from the day of diagnosis, has palliative care needs that focus on providing relief from the symptoms, pain and stress of the cancer journey. The goal of palliative care is not only to improve the quality of life for the patient but for the patient’s family as well. Palliative care integrated into cancer care has been shown to improve physical and psychological symptoms, improve caregiver well-being and even prolong survival. Simply put, it’s the kind of care that can make a difference in a patient’s life today. The Joint Commission’s Advanced Certification for Palliative Care is designed to set standards and acknowledge hospitals providing state-of-the-art palliative care services.
INVESTED $1.4 MILLION TO BRING
PROVEN CANCER SUPPORT PROGRAMS
TO 90 SITES ACROSS THE U.S. THROUGH
THE COMMUNITY IMPACT PROJECT.
AFFECTED MORE THAN 184,000
STUDENTS AND TEACHERS WITH THE
LIVESTRONG AT SCHOOL PROGRAM.
EXPANDED THE LIVESTRONG AT
THE YMCA PROGRAM TO NEARLY
300 COMMUNITIES SERVING 16,000
CANCER SURVIVORS SINCE INCEPTION.
DEVELOPED NEW CAUSE MARKETING
PARTNERSHIPS WITH CAR2GO, UMB/
VISA, FACEBOOK AND FTD.
MEET DEVON FROM THE COMMUNITY PROGRAMS AND ENGAGEMENT TEAM
lvstr.ng/ar-program
LEARN MORE ABOUT THE COMMUNITY IMPACT PROJECT
lvstr.ng/ar-community
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CAR2GO CAUSE
MARKETING PARTNERSHIP
In addition to expanding our programs, our cause marketing partnerships grew in 2012 as well. One in particular made a big impact with just a tiny car. car2go is an international car-sharing program that sponsored the Team LIVESTRONG Challenge Austin. Because of sponsors like car2go, 100% of the funds raised
through our Challenge Series go directly to our programs and services. And if you’re in the Austin area, be sure to track down one of the car2go Team LIVESTRONG Challenge-branded vehicles and take a ride in it to benefit the Foundation.
LIVESTRONG AT SCHOOL
lvstr.ng/ar-school
LIVESTRONG AT SCHOOL
“IT’S PROBABLY THE BEST
TWO DAYS OF CLASS
INSTRUCTION THAT
I’VE HAD IN A LONG
TIME, BECAUSE MY KIDS
WERE FOCUSED, THEY
WERE INTERESTED, THEY
SHARED OF THEMSELVES
AND THEY BONDED. I
COULDN’T ASK FOR A
BETTER RESPONSE.”
Stephanie Myers found out she had cancer in the 8th grade. She felt isolated. She felt alone at school. And when she lost her hair from chemo, students laughed at her.
Andy Miller of the Foundation notes, “Cancer affects a large percentage of the American population. It affects their hopes, their dreams, their relationships. But no one ever teaches you about that.”
Enter the LIVESTRONG at School program to help students cope with and learn about cancer and understand the impact it has on individuals like Stephanie. We touched more than 184,000 students and teachers in 2012. With one in three women and one in two men in the U.S. facing a cancer diagnosis in their lifetime, children in classrooms everywhere are likely to be dealing with cancer right now. The LIVESTRONG at School curriculum offers online lessons for grades K–12 to help students learn about cancer in a way that is age- appropriate, inspiring and empowering.
— BARBARA WOLANSKI TEACHER
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To this day, Clara Guzman still posts to her daughter’s Facebook page to share information about cancer. It’s part of a mission that her daughter, Karen, started by being one of the bravest teenagers you’d ever meet. When Karen found out she had cancer, she chose to fight. And share. And speak. And teach. And inspire. And she did it in Mexico, where the stigma of cancer causes many people to do just the opposite.
Karen was one of the first public storytellers of Comparte tu Historia, a program launched by the LIVESTRONG Foundation in 2011. Though Karen lost her fight with cancer in 2012, she still battles the stigma of cancer in Mexico today. Her mother has started a foundation in Karen’s memory that educates teenagers against the stigma and misperceptions of cancer and encourages them to spread the word so the silence of cancer can be overcome.
This is why we do it. Not only in Mexico, but also in South Africa and now beyond. We continue to strive to create a better global understanding of the disease to help patients today.
TACKLING CANCER STIGMAS
ACROSS THE GLOBEGLOBAL ANTI-STIGMA AND PATIENT EMPOWERMENT
lvstr.ng/ar-global
CLARA GUZMAN
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OF PEOPLE EXPOSED TO THE
CAMPAIGN LEARNED SOMETHING
NEW ABOUT CANCER.
OF PEOPLE EXPOSED TO THE
CAMPAIGN SAID IT INFLUENCED
THEM TO TALK MORE OPENLY
ABOUT CANCER.
OF PEOPLE EXPOSED TO THE
CAMPAIGN DID SOMETHING
DIFFERENTLY BECAUSE OF WHAT
THEY LEARNED.
76% 70% 42%
IN 2012, SIGNIFICANT EFFORTS WERE FOCUSED IN FOUR MEXICAN CITIES
TO REACH THE PUBLIC. TELEVISION MEDIA REACHED MORE THAN 104
MILLION PEOPLE, SOCIAL MEDIA REACHED OVER 850 THOUSAND MONTHLY,
RADIO REACHED 93 MILLION, NEARLY 250 PEOPLE WERE TRAINED AND
SPECIAL EVENTS WERE HELD. ON WORLD CANCER DAY, ONE EVENT GATH-
ERED MORE THAN SEVEN THOUSAND PEOPLE IN MEXICO CITY’S ZÓCALO.
OVERALL, THE RESULTS WERE ASTOUNDING:
WATCH JOSE “CHEMA” MARTI’S STORY AND HIS EXPERIENCE WITH COMPARTE TU HISTORIA
lvstr.ng/ar-comparte
JOSE “CHEMA” MARTI
“TO BE ABLE TO SHARE YOUR EXPERIENCE
THROUGH SONGS IS GETTING CLOSER
TO PEOPLE YOU DON’T KNOW WHO ARE
GOING THROUGH A SIMILAR SITUATION.
INDIVIDUALLY, WE’LL FIGHT OUR OWN
FIGHT, BUT WE’RE NOT ALONE.”
— JOSE “CHEMA” MARTI LYMPHOMA CANCER SURVIVOR, MUSICIAN AND COMPARTE TU HISTORIA STORYTELLER
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“I AM A CHILDHOOD CANCER SURVIVOR.
I WANT TO MAKE USE OF MY EXPERI-
ENCES FOR OTHER CANCER SURVIVORS.
I HAVE BEEN LOOKING FOR THE OPPOR-
TUNITY, AND THE CANCER SURVIVORS’
FORUM WOULD BE AN IDEAL PLACE
TO SHARE MY STORY WITH MANY
OTHER PEOPLE.”
PATIENT EMPOWERMENT
PROJECT IN JAPAN
With the success seen in South Africa and Mexico, the Foundation announced plans to expand its patient empowerment work to Japan. Along with partner American Cancer Society (ACS) and lead agency Health and Global Policy Institute (HGPI), the Patient Empowerment Project in Japan was born. The announcement was made at the World Cancer Congress during the session, “Innovative Strategies to Empower Survivors in the Global Fight Against Cancer.”
The Patient Empowerment Project formally launched in November 2012 with a two-day roundtable in Tokyo that included survivors, health care providers and NGOs. It was designed to amplify the cancer patient’s voice by allowing people to share their stories through testimony in a forum in front of policy makers, media and the public. The goal is to build a grassroots movement that will bring visibility to gaps in cancer control and highlight the need for cancer to be a stronger priority on the country’s health agenda.
In December 2013 in Tokyo, the project will reach its pinnacle when a Patient Forum will bring together families, health care providers, govern-ment representatives, NGOs and media to listen to patient stories and engage in dialogue about key cancer issues facing patients in Japan. The Forum will be followed by a national call to action on cancer—informed by these patient voices and needs.
— KEITA CHILDHOOD CANCER SURVIVOR/NURSING STUDENT
KEITA
BINZEE GONZALVOADVOCATE/LEADER
With the leadership of people like Binzee Gonzalvo, the “Over Cancer Together” campaign and Patient Empowerment Project are raising awareness of patients’ needs in Japan.
The goal of the Foundation’s work in Japan is to ultmately create a patient-informed national call to action to grow the cancer patient advocacy movement.
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6T U R N I N G T A L KI N T O A C T I O N
RAISING THE
BAR FOR CANCER
COMMUNITY
DIALOGUE, NEAR
AND FAR
ACTING ON OUR
SURVIVORSHIP RESEARCH
A special member of the Foundation’s family is our Director of Research, Ruth Rechis, a cancer survivor herself. She knows just how critical our mission is to help improve the lives of people affected by cancer. And she knows how to do something about it.
Ruth notes, “We do research to understand what people need, and then we create programs to help them. The work that we do is immediately translated into people’s lives.” Our flagship survey was conducted from June to December of 2012, results of which will help us to determine our plans moving forward.
This direct approach to research helped us lead the way in the cancer community’s conversation about survivorship care. There are approximately 14 million cancer survivors alive in the United States today, and that number is expected to grow to more than 18 million by 2020. As a result of innovative research, improved detection, access to care and treatment, and a focus on life after treatment ends, more people are surviving cancer than ever before. However, it has become clear
MEET RUTH RECHIS, DIRECTOR OF RESEARCH
lvstr.ng/ar-research
LEARN MORE ABOUT ESSENTIAL ELEMENTS
lvstr.ng/ar-care
that when primary treatment ends, the cancer journey does not. After treatment, many cancer survivors experience physical, emotional and practical concerns, but they don’t always receive the help they need. That’s why throughout 2012, the LIVESTRONG
Foundation continued advancing the Essential Elements of Survivorship Care initiative. After the Foundation worked to build consensus among key stakeholders on the essential elements of survivorship care in 2011, in 2012 the Foundation and the LIVESTRONG Survivorship Center of Excellence Network refined the definitions of the 20 Essential Elements. Included were specific recommenda-tions and examples of basic and enriched levels of survivorship care. Additionally, the Foundation awarded Network Directors at the Fred Hutchinson Cancer Research Center to lead the Network in a collaborative research project to develop a cohort of young adult cancer survivors and test the impact of providing the essential elements of care to them.
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REDUCING PAIN IN HAITI
Haiti has experienced more than its fair share of tragedies over time, making it one of the least developed countries in most need of community-based programs and services. Recent disasters have only compounded local health emergencies.
The partnership between the Foundation, PIH and GAPRI is expanding the ongoing cancer initiative to further address pain management and palliative care for underserved cancer patients in the country. The Pain-Free Hospital Initiative is providing education for patients and staff, raising motivation and awareness, documenting pain levels, improving access to essential pain medicines and communicating the impact of these efforts. The focus is on motivating clinicians to evaluate and treat pain by using campaign-style materials and routine pain assessments by staff nurses. Project staff offer continuing medical education programs for clinicians and nurses and distribute reference and training materials, including pain treat-ment guides and prescribing information, to equip each clinician with the tools to effectively apply standard treatment guidelines for pain treatment.
The staff of the first two hospitals involved, St. Marc’s and Cange, have already noted significant improvement in patient experiences, and the initiative is building a case for replicating the model across the country.
EXPANDING ACCESS TO CARE
Hand in hand with barriers like stigma come lack of access to quality medical care and pain relief for many of the 28 million people affected by cancer throughout the world. The Foundation has worked tirelessly at the national and global levels to help promote a shift in policy and funding—away from the traditional disease-centric approach and towards strength-ening health systems that serve all the people.
In August 2012, the Foundation announced a $500,000 commitment and entered into a three-year joint initiative with the Union for International Cancer Control (UICC)—Expanding Global Access to Essential Medicines and Technologies. The Foundation and UICC set ambitious, but achievable, targets for essential medicines. We have developed a replicable, cost- effective model for improving access to pain relief in collaboration with Partners in Health (PIH) and the Global Access to Pain Relief Initiative (GAPRI), beginning with two hospitals in Haiti.
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CASH AND CASH EQUIVALENTS $ 29,990,299
INVESTMENT SECURITIES 18,694,052
ENDOWMENT FUNDS AND INVESTMENTS 37,744,046
ACCOUNTS RECEIVABLE 9,407,430
DEPOSITS, PREPAIDS AND INTANGIBLE ASSETS 1,924,515
INVENTORY 2,259,901
PROPERTY AND EQUIPMENT, NET 11,857,247
TOTAL ASSETS $ 106,703,912
LIABILITIES
ACCOUNTS PAYABLE AND ACCRUED EXPENSES $ 1,704,837
GRANTS PAYABLE 2,231,821
DEFERRED REVENUE 1,236,920
TOTAL LIABILITIES $ 5,173,578
NET ASSETS
UNRESTRICTED $ 87,023,297
TEMPORARILY RESTRICTED 8,376,416
PERMANENTLY RESTRICTED 11,304,199
TOTAL NET ASSETS $ 106,703,912
TOTAL LIABILITIES AND NET ASSETS $ 111,877,490
ASSETS LIABILITIES AND NET ASSETS
LIVESTRONG FOUNDATION STATEMENT OF FINANCIAL POSITION
The figures on these pages depict the finan-cial activities of the LIVESTRONG Foundation for the 2012 calendar year. Complete copies of the audited financial statements are avail-able upon request from the LIVESTRONG Foundation, 2201 East Sixth Street, Austin, TX 78702, or on our website at LIVESTRONG.org.
F I N A N C I A L S , D O N O R S
A N D B O A R D
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KAWAJA/HOLCOMBE FUND $ 66,287
KAYA KNERLY LIVESTRONG FOUNDATION ENDOWMENT FUND 30,455
KEIZO SHIMANO MEMORIAL FUND 30,983
KENNEDY/MARSHALL ENDOWMENT FUND 138,386
LARRY AND DR. NANCY O’REILLY, LAURAN, LEIGH, RAGAN FAMILY FUND 1,612,325
LEANNE JONES LIVESTRONG MEMORIAL FUND 30,883
LYDIA HUNTER-REAY MEMORIAL FUND 27,577
MARSHALL G. LUTZ ENDOWMENT FUND 55,888
MARTHA SOUTHERN HIRSCH MEMORIAL FUND 30,883
MCKINNON FAMILY FUND 29,468
MCPHAIL FAMILY ENDOWMENT 26,502
MICHAEL W. LOTZ MEMORIAL FUND 105,545
NIKE ENDOWMENT FUND 110,764
OAKLEY ENDOWMENT FUND 576,095
PLEDGED AND UNDESIGNATED 63,050
PLEDGED, PAID AND UNDESIGNATED 8,343
RADIOSHACK ENDOWMENT FUND 110,764
RISE ABOVE IT (RAI), IN MEMORY OF COLIN O’DONOGHUE $ 26,156
RONETTE ESPINOZA MEMORIAL FUND 29,083
RYAN PHUA MEMORIAL FUND 556,064
STEPHANIE ROBINS MEMORIAL FUND 673,978
SUSAN E. KUHN, CYRUS T. WINGATE AND SEVILLA M. TREVISANI AND THOMAS P. TREVISANI, II FAMILY FUND 26,645
THE ARMSTRONG FAMILY FUND 1,206,286
THE BILL PASSEY FAMILY FUND 30,523
THE HAMILTON JORDAN FUND 108,090
THE LEE FAMILY FUND 75,653
THE ROLLINS FAMILY FUND 207,887
THE SOPHIA KOLEVICH REMEMBRANCE FUND 32,210
THE ULMAN FAMILY ENDOWMENT 36,769
THE WADE F. B. THOMPSON ENDOWMENT FUND 110,764
THE WOOD/BRAUNSTEIN FAMILY FUND 25,480
UNDESIGNATED ENDOWMENT FUNDS 224,371
NAMED AND ENDOWED SPECIAL PURPOSE FUNDS
AMERICAN CENTURY INVESTMENTS ENDOWMENT FUND $ 490,060
ANDREA LEIGH TOMLINSON—PLANET CANCER FUND 333,240
BARBARA DUNGEY MEMORIAL FUND 27,142
BETSY H. SCHOFIELD MEMORIAL FUND 956,119
CHRISTINE PRATT MEMORIAL FUND 30,025
COXE FAMILY FUND 1,196,521
CVCCA—PARKER’S TEAM 61,765
DAN L. JONES AND JANET GIFFORD NORTH ENDOWMENT 30,224
DANA JAY LESNEVER MEMORIAL FUND 44,908
DAVID KNAGGS ENDOWMENT 54,964
DELL CHILDREN’S HOSPITAL GIFT IN HONOR OF SANDRA ARAGONA 299,954
DICK DYHRMAN MEMORIAL 37,252
ELIZABETH LAUSMANN JACOBS MEMORIAL FUND 27,902
GUPTA FAMILY FUND 29,083
HAMMER FAMILY FUND 42,417
HECHT FUND 26,960
IN HONOR OF BETTY OTTER-NICKERSON 59,112
IN HONOR OF JAMES “JIMMY” BAUMOEL $ 34,388
IN HONOR OF KATHLEEN B. AND JAMES N. SHERWIN 41,336
IN HONOR OF KEVIN “K2” KERWIN 27,563
IN HONOR OF LAWRENCE “LARRY” S. DOLIN 27,930
IN HONOR OF MICHAEL R. HENRY 30,883
IN HONOR OF RAINBOW BABIES AND CHILDREN’S HOSPITAL, CLEVELAND, OH 31,605
IN HONOR OF RENEE NICHOLAS 40,710
IN HONOR OF SHARON MOONEY 34,323
IN HONOR OF STEPHEN M. O’LEARY 247,062
IN HONOR OF THE STAFF OF THE LIVESTRONG FOUNDATION 106,400
IN HONOR OF THOMAS F. SLATER 33,971
IN HONOR OF WESLEY EDWARDS 31,595
JEANNETTE J. JEHL MEMORIAL FUND 109,036
JENNIFER SMITH COLLISON AND WARD SMITH MEMORIAL FUND 31,347
KAREN AND EVERETT COOK ENDOWMENT FUND 304,246
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FOUNDER’S CIRCLE 7 SOCIETY
Closed on December 31, 2002, the Founder’s Circle brought together entrepreneurial stewards who understood our passion and made a differ-ence through donations of $500,000 or more. The LIVESTRONG Foundation honors these individuals in perpetuity for their generosity and continued support.
The 7 Society recognizes individuals and organizations who have made an extraordinary financial commitment to the LIVESTRONG Foundation. Each member of this group has a cumulative giving commitment totaling $1 million or more to the global fight against cancer.
ANONYMOUS
ARAGONA FAMILY FOUNDATION
THE ARMSTRONG FAMILY
TENCH COXE AND SIMONE OTUS-COXE
MRS. JANE FRAZIER
JEFF AND BONITA GARVEY
STEVE HICKS AND DONNA
STOCKTON-HICKS
JAMES C. KENNEDY
KRAMER FOUNDATION
ANONYMOUS
NIKE
AMERICAN CENTURY INVESTMENTS
AMD
LANCE ARMSTRONG
O’REILLY FAMILY FOUNDATION
EVE AND ELLIS SHORT
OAKLEY
SANDRA AND JOE ARAGONA
ENCH COXE AND SIMONE OTUS-COXE
BONITA AND JEFF GARVEY
CAROL AND MIKE SHERWIN
NAV SOOCH
CRAIG G. MALLOY
JEAN M. SCHULER
ANDREW T. SHEEHAN
MIKE AND CAROL SHERWIN
BRAD A. SILVERBERG
ANGELA AND MORTON TOPFER
E. LEE WALKER AND JENNIFER
VICKERS
THOMAS WEISEL
WINDFALL FOUNDATION
LAURA AND CASEY WASSERMAN
ANONYMOUS
ELIZABETH AND BLAINE ROLLINS
GENENTECH
RADIOSHACK
MOVEMBER
24 HOURS OF BOOTY
SCOTT AND KATIE SCHOFIELD
DEMAND MEDIA
JOHNSON HEALTH TECH
TREK
4 YELLOW FOUNDATION
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PRESIDENT’S CIRCLE
The President’s Circle is a unique giving society that capitalizes on the Foundation’s mission-focused opportunities. Members of the President’s Circle give unrestricted “venture funds” which will be targeted at opportunities where other funding is not always readily avail-able. Unrestricted gifts, which may be used at the discretion of the president, are especially effective in helping to promote our mission and position the LIVESTRONG Foundation as a global leader in the fight against cancer.
CANDICE AND BRENT AARON
APRIL, JEREMY AND JAKE ANDERSON
JUDD APATOW AND LESLIE MANN
THE ARMSTRONG FAMILY
RICHARD C. BARKER
MARLA BOMMARITO-CROUCH
DOUG AND MARY BOWDEN
JEFF CASTELAZ AND JO ANN THRAIKILL
DENNIS AND CHRIS CAVNER
WENDY CHIOJI
PATRICK CONNELL
TIFFANY CRAVEN
CHRIS AND CARA DODSON
SCOTT AND JENNIFER DONALDSON
THE DONZIGER FAMILY
RYAN DUNGEY
JAMES W. AND RICHELLE FATHEREE
THE KELLY BROTHERS
JERRY AND ANGIE KELLEY
BOB KIESENDAHL
BART AND BARBARA KNAGGS
JOSIE E. KNIGHT
SUSAN AND MARK KOLMAN
LAURA AND STUART LITWIN
KIMI LOTZ AND LISA GOYNE
SPENCER AND SUSAN LUEDERS
REBECCA L. AND JOHN F. LUMANN IIIBRUCE LUTZ
THE MALLOY FAMILY
DRS. MARCY AND PETER MANN FAMILY
MARK AND ANNIE MCKINNON
MILEPOINT
ANDY MILLER AND BRIAN STEPHENS
ADAM AND CAMILLE MOORE
FITZGIBBON FAMILY FUND
WILL AND LAURENS FLANAGAN
MARIA AND SANDY FLESCHMAN
AMY AND JERRY FROSTICK
THE GAROFALO FAMILY
MICHAEL GOLDBERG
GOOCH FAMILY
LAURA AND MORRIS GOTTESMAN
CINDY AND BILL GRAF
THE GRIFFETH FAMILY
BOB, KIM, SHAYNA, AND JOSH HAMMER
THE HAYES-LATTIN FAMILY
SCOTT HENDLER AND LULU FLORES
PHILIPPE G. HILLS AND DAVID W. HANSON
LYDIA HUNTER-REAY
TOM AND ELIZABETH KAPLAN
KAWAJA/HOLCOMBE FAMILY FUND
JEFF AND JERI MULDER
DR. CRAIG AND ELLEN NICHOLS
CHARLIE AND MARY BETH O’REILLY
BETTY OTTER-NICKERSON
KATIE AND KYLE OUDT
AMBER AND TONY PAQUETTE
BILL PASSEY
MONA PATEL
RISE ABOVE IT (RAI)
ALEXANDRA AND ROBBIE ROBINETTE
JOE C. ROSS
DR. AND MRS. COREY ROTHROCK
CHRISOPHER SACCA
BOB AND CATHIE SALIPANTE
STEPHEN SAUNDERS
SCOTT AND KATIE SCHOFIELD
THE SEACH FAMILY
KOZO SHIMANO HOUSEHOLD
ALEXANDER AND IRENE SHOGHI
SILVER OAK CELLARS/TWOMEY CELLARS
LYDIA AND MICHAEL SLABY
SPAW FAMILY FOUNDATION
THE STAPLETON FAMILY
SURVIVOR SUMMIT 2012
PETER TAPSCOTT AND PATT BAENEN-TAPSCOTT
ANTHONY S. TORTORELLI
THE TRONSTEIN FAMILY
DOUG ULMAN
UROLOGY AUSTIN
SUZANNE AND MARC WINKELMAN
STEVEN AND HEATHER WOLF
JACK AND CARI WOOD
JULIAN YAP
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LIVESTRONG FOUNDATION BOARD OF DIRECTORS
OFFICERS
CHAIRMAN AND FOUNDING CHAIR
JEFFERY C. GARVEY, AUSTIN, TX
VICE CHAIR
MICHAEL SHERWIN, CLEVELAND, OH
SECRETARY
BLAINE P. ROLLINS, DENVER, CO
TREASURER
AMELIE G. RAMIREZ, DR. P.H., SAN ANTONIO, TX
EXECUTIVE COMMITTEE MEMBERS
JOSEPH C. ARAGONA, AUSTIN, TX
DAVID JOHNSON, M.D., DALLAS, TX
BOARD MEMBERS
CANDICE AARON,* CHICAGO, IL
J. DENNIS CAVNER, AUSTIN, TX
JULIAN DAY, FORT WORTH, TX
HAROLD P. FREEMAN, M.D., NEW YORK, NY
SANJAY GUPTA, M.D., ATLANTA, GA
MARK MCKINNON, AUSTIN, TX
CRAIG NICHOLS, M.D., PORTLAND, OR
JEREMIAH ROBINS,* SAN DIEGO, CA & SHANGHAI, CHINA
MITCHELL STOLLER, WASHINGTON, DC
E. LEE WALKER, AUSTIN, TX
* Elected December 2012
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IN 2013
At the LIVESTRONG Foundation, our mission is to inspire and empower people affected by cancer today. We do this by striving to fundamentally change the expectations and experience of living with cancer. As an organi-zation, we don’t believe in doing things the way they’ve always been done. We approach our mission from more than one angle: we develop and deploy programs that provide direct service to those who need it while advocating at the global, federal and state levels for legislation that will improve the lives of cancer survivors.
9# S T I L L S T R O N GI N 2 0 1 3
2013 and beyond are no different. Over the course of the next three years, we will focus on the following priorities:
ENSURE ANYONE AFFECTED BY CANCER HAS ACCESS TO
PATIENT-CENTERED NAVIGATION SERVICES
ELEVATE THE PATIENT ’S VOICE TO FUNDAMENTALLY CHANGE
THE WAY CANCER IS EXPERIENCED AND UNDERSTOOD
ENGAGE COMMUNITIES TO COLLABORATIVELY AND COMPREHENSIVELY
IMPLEMENT PATIENT-CENTERED APPROACHES THAT POSITIVELY IMPACT
PEOPLE AFFECTED BY CANCER
CREATE THE FOREMOST BRAND ASSOCIATION WITH LIVING
LIFE TO THE FULLEST IN THE FACE OF CANCER
ONE OF THE NONPROFIT TIMES’ “50 BEST NONPROFITS TO WORK
FOR IN 2012”
4/4 STAR RATING FROM CHARITY NAVIGATOR
INVITED TO PARTICIPATE IN THE CRITICAL POLICY DISCUSSIONS OF
THE INSTITUTE OF MEDICINE’S NATIONAL CANCER POLICY FORUM
NATIONAL HEALTH INFORMATION AWARDS—GOLD AWARD
HONORING THE NATION’S BEST CONSUMER HEALTH PROGRAMS
AND MATERIALS
WEB HEALTH AWARDS—SILVER AWARD HONORING THE BEST
DIGITAL HEALTH RESOURCES
PUBLIC RELATIONS SOCIETY OF AMERICA PR PROFESSIONAL OF
THE YEAR*
NOMINATED FOR PUBLIC RELATIONS SOCIETY OF AMERICA SILVER
ANVIL AWARD*
FINALIST FOR URBAN LAND INSTITUTE GLOBAL AWARDS
FOR EXCELLENCE
* Awarded in 2013 for work completed in 2012
8A W A R D S A N DA C C O L A D E S
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IN 2013
THANK YOU
Thank you so much for taking the time to learn about the Foundation’s progress and our continued focus on our mission to help those affected by cancer today. Your partnership, investment and support inspire us and allow us to change the world as a community. We look forward to updating you regularly on our accomplishments which simply would not be possible without you. Mission. Above all else.
Y O U R F R I E N D S AT T H E
L I V E S T R O N G F O U N D AT I O N
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Mike Amann led the design of the Annual Report you’re reading right now. And he screen printed the cover, with its layers of meaning. Mike is not just a graphic designer but also a new father, a husband, a son, a brother, a friend, a warrior and an inspiration. Mike is fighting a vicious neuroendocrine cancer right now and was doing so throughout the entire design process of this book. Chemo on Mondays, hospital visits far too often, surgeries scheduled for after this book is printed. Didn’t matter. He showed up to his studio in Covington, Kentucky, every day he could, with Juno the Doberman by his side. His passion for telling LIVESTRONG stories through his art rose to the top. His craftsman-ship outdueled cancer every day of the week. And his drive doesn’t stop there, as Mike will be taking on his cancer with a breakthrough surgical approach that will help educate the cancer medical community for the future.
This is Mike Amann. And this is what LIVESTRONG is all about.
MIKE AMANN