2010 annual report

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MSMILESTONES COLORADO CHAPTER 2010 ANNUAL REPORT

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2010 Annual Report

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MSMileStoneSC o l o r a d o C h a p t e r

2 0 1 0 a n n u a l r e p o r t

2

The year 2010 was exceptional for the Colorado Chapter of the National MS Society. In this report we are pleased to share several major milestones that were reached as we remained steadfast in our commitment to enhance the lives of people living with MS and their families and our quest to ultimately find the cure.

It was a year of many accomplishments that included several significant ‘firsts’—the first friends and family team to reach the $1 million cumulative fundraising mark; the first year Colorado’s Bike MS ride raised more than $3 million; and the first time the Chapter was able to make a $1 million contribution to research. Additionally, in our ongoing commitment to create opportunities to engage new supporters, the Chapter literally blazed new trails by hosting the first Hike MS event in the nation.

On the national level, 2010 was also a year when the promising research that we helped fund yielded the first two oral therapies for MS—one a symptomatic treatment and the other a disease-modifying therapy. These new treatment options demonstrated the positive and ongoing progress being made.

These accomplishments were realized through the strong leadership and guidance of our Board of Trustees, and the support of our staff, donors and volunteers. We extend our appreciation and heartfelt thanks for their unwavering dedication to those we serve.

As we prepare to enter our 2011 fiscal year, Colorado and Wyoming will combine their strengths and align resources to form the Colorado-Wyoming Chapter. This decision was made to best serve the interests of the 11,000 people living with MS in the two-state region and their families. The union will help to accelerate innovation and best practices, reduce operational redundancies, increase fundraising effectiveness, enhance volunteer engagement, and expand programs, services and advocacy.

We look forward to your continuing support of our efforts to free the world of MS.

Sincerely,

Carrie H. NolanChapter President

From Our Board Chair and Chapter President

Board of TrusteesOfficers

Mary Hobson, Chair

Brandt Wilkins, Chair-Elect

Michael King, Immediate Past Chair

Michele Vaughan, Secretary

Rob Hartnett, Treasurer

Whit Conant

Elizabeth Brandon Coors

John Corboy, MD

David Cordova

George Garmany, MD

Todd Hauer

Claudia Curry Hill

John Kivimaki

Craig Lopez

Kyle Ocasek

Richard Raymond, MD

Randy Schapiro, MD

Kathryn Spritzer

Jim Stevens

Emeritus TrusteesRalph Holden

David Lord

Janet Savage

Front cover:Kimberly, diagnosed 2000Michael, diagnosed 2004

Back cover:Beverly, diagnosed 2001

Mary HobsonBoard Chair

■ An Exceptional Year

900 South BroadwaySuite 250Denver, CO 80209www.cureMSco-wy.org800 FIGHT MS (800-344-4867)

®

Colorado-Wyoming Chapter

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Board of TrusteesOfficers

Mary Hobson, Chair

Brandt Wilkins, Chair-Elect

Michael King, Immediate Past Chair

Michele Vaughan, Secretary

Rob Hartnett, Treasurer

Whit Conant

Elizabeth Brandon Coors

John Corboy, MD

David Cordova

George Garmany, MD

Todd Hauer

Claudia Curry Hill

John Kivimaki

Craig Lopez

Kyle Ocasek

Richard Raymond, MD

Randy Schapiro, MD

Kathryn Spritzer

Jim Stevens

Emeritus TrusteesRalph Holden

David Lord

Janet Savage

Front cover:Kimberly, diagnosed 2000Michael, diagnosed 2004

Back cover:Beverly, diagnosed 2001

An Amazing Ride Bike MS Surpasses $3 Million Fundraising Mark. The Great-West Life Bike MS, Colorado’s Ride 2010, Presented by Sam’s Club raised more than $3 million for the first time, making it the third largest Bike MS fundraising ride in the nation. More than 3,000 cyclists and over 700 volunteers make this annual ride a top event in Colorado every year.

Sweet Inspiration Team Sugar Bee Makes Chapter History. After participating in Bike MS for 17 years, Team Sugar Bee became the Chapter’s first friends and family team to reach the $1 million cumulative fundraising mark in 2010! Led by team captain Tim Walker, Jr., the team grew from an initial six cyclists to more than 160, all of whom ride or volunteer for the team’s namesake Kelly Walker-Haley who was diagnosed with MS in 1988.

Fundraising FirstChapter Surpasses $1 Million Contribution to Research. Thanks to strong community support in 2010, the Chapter was able to make its largest contribution ever—more than $1 million—to support the more than 325 research efforts funded globally by the National MS Society. Outstanding stewardship, strong community partnerships and continued community generosity made this level of research funding possible.

Research DeliversFirst Oral Medications Hit the Market. In 2010, the FDA approved Gilenya, the first oral disease-modifying medication for relapsing MS. Previously, the only therapies available for reducing the frequency of clinical relapses and delaying accumulation of physical disability in relapsing forms of MS had to be administered through injection. Ampyra was also approved as a symptom-management oral drug to improve walking.

Happy Trails Chapter Hosts First Hike MS in the Nation. In July 2010, the Chapter held its inaugural Hike MS event at Copper Mountain in Colorado’s pristine Rockies. Playing off ski run levels, hikers had the choice of three trail options—easy, intermediate and challenging. The event was so successful that four additional Hike MS events are planned for 2011.

■ A Year of Significant MilestonesEach year, the Colorado Chapter works to advance our mission, maintain momentum and ensure the best use of resources to achieve positive outcomes. The significant achievements in 2010 highlight this commitment in action.

Where Your Donations Go81% of every dollar supports our programs, services and research

The Chapter’s commitment to support promising research is a driving force each year. In 2010, the Chapter made its largest ever contribution to research, surpassing the $1 million mark. This occurred at the same time exciting advances were being made in virtually every field of MS research.

Progress toward finding new therapies to stop progression of MS was exemplified by the market availability of Gilenya, the first oral disease-modifying therapy for MS. Strides were also made in finding ways to restore function and improve specific MS symptoms through exercise, meditation, rehabilitation and medications.

The Society also launched new projects focused on discovering risk factors that lead to progressive disability, projects aimed at speeding diagnosis, research on protective mechanisms of vitamin D and estrogen, tests determining whether a new device can improve walking ability, and many more. These and many other efforts being researched around the world reflect the rapid pace of MS research today.

Hallmarks in MS Research1946 National MS Society is established with a mission to find a cure

1947 National MS Society awards first research grant

1993 Betaseron is the first FDA-approved drug to stem progression of MS

1996 FDA approves Avonex and Copaxone, injectable therapies for relapsing-remitting MS

1997 Zanaflex is approved for treatment of spasticity

2000 Novantrone approved in U.S. for worsening forms of MS

2001 Society collaborates with NIH on a $20-million research initiative on gender-based differences in immune responses

2002 FDA approves Rebif to treat relapsing-remitting MS

2005 Society invests $15.6 million to launch initiative to speed nervous system repair and protection clinical trials in MS with four international teams

2006 National MS Society establishes six Pediatric MS Centers of Excellence for comprehensive evaluation and care to children and teens with MS and other related central nervous system demyelinating disorders

2006 Tysabri approved in U.S. for treating relapsing MS

2007 Society launches Fast Forward to speed treatments to people with MS by partnering with industry to develop new drugs

2009 Extavia is approved by the FDA as a new brand of interferon beta-1b

2010 FDA approves Gilenya, the first disease-modifying oral therapy approved for relapsing forms of MS

2010 FDA approves Ampyra, the first oral therapy to treat a symptom of MS that helps improve walking

2010 Nuedexta and Botox approved to treat specific symptoms that interfere with quality of life in people with MS

2010 Society funds five research projects in Colorado at the University of Colorado Denver at Anschutz Medical Campus, in the departments of Neurology and Cell and Developmental Biology

■ Research

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Funding Progress

■ Resources

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Accessing MS Specialists: 2,800 calls were responded to through the National MS Call Center, which is staffed by master’s level professionals from 7 a.m. - 5 p.m., Monday through Friday.

Helping Gain Knowledge and Tools: 704 people attended 19 educational programs that covered topics ranging from cognitive fitness and yoga to healthy cooking and caregiving.

Building Community: 27 self-help and support groups were held throughout Colorado serving 373 people.

Providing a Hand Up: $153,866 was provided for direct financial assistance for 260 people with MS for urgent needs such as medical equipment, ramps, cooling units, life lines, home or auto modifications, utility assistance, home health care, respite care and transportation. These dollars were leveraged 3:1 providing a total of $450,000 in support.

Offering One-on-One Support with MS Experts: 400 people diagnosed with MS received assistance with navigating complex health and community resource systems to access services and become more empowered to live with their MS.

Meeting the Needs of People Living with Progressed MS: Collaboration continued with North Star and Rowan Communities, which feature skilled-care units specializing in the needs and lifestyle interests of younger people living with MS. The Chapter also does additional outreach and support to other skilled nursing facilities where people living with MS reside, to provide information to assist them in serving this younger and more progressed population.

Increasing Awareness and Understanding: 19,407 people learned more about MS through public education and awareness presentations at venues such as special events, service clubs and health fairs.

Working Together to Find Solutions: 3,287 MS activists supported the health care provider fee to expand Medicaid benefits to adults without dependent children at the state level. Nationally, Chapter MS activists advocated for federal funding for MS research and continued funding for lifespan respite care.

Supporting People Affected by MSIn support of our mission—to mobilize people and resources to drive research for a cure and to address the challenges of everyone affected by MS—the Chapter provided a wide range of significant resources to address the needs of the 76,000 Coloradans affected by MS. Highlights for 2010 included:

“Thank you for helping get my chair lift. I no longer dread going to the grocery store. I am able to enjoy outdoor activities with my family. Thank you for increasing the quality of my life in living with MS.”

—Client thank you

Client: Jonathan Harries, diagnosed 2007

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Corporations & Foundations

40+ Motorcycle Club of Fort CollinsAdvanced Flooring SolutionsAlpha GraphicsAmgen FoundationAnadarko PetroleumApplied Control EquipmentArapahoe Sertoma Club BingoAustin’s Homestead Bar & GrillBacon Family FoundationBall CorporationBank of the WestBank of AmericaBanner Health ArizonaBayer HealthCare Pharmaceuticals IncBhasin Enterprises IncBiogen IdecBlumberg Foundation IncBohemian Event FundBrand Juice Consulting Inc*Bristol-Myers SquibbBrownstein Hyatt Farber Schreck LLPFrances W. Burton FoundationCallahan Edfast MortuaryCBIZ IncCenter For Neurorehabilitation Services

CBS4Charles SchwabChevronChrisman Construction IncCity of AspenCity of WestminsterClif BarThe Clorox Company FoundationThe Colorado Health FoundationColorado Association of RealtorsColorado Business BankColorado Business ConnectionsColorado Community BankColorado State University FoundationColoradoanCommunity Foundation of Northern ColoradoCommunity Health Charities of ColoradoCoors Distributing CompanyCOPIC Medical FoundationCoram IncCourtyard by Marriott DenverCTD’Augustine FoundationDCW Intuit FoundationDel TacoDellenbach Family FundDenver FoundationThe Denver Post

DeRoy Testamentary FoundationDigilog ElectronicsDirecTVDouglas County Thrivent Financial for LutheransDroplet Measurement TechnologieEma CorporationEMD Serono IncEnCana Oil & Gas IncEnergy Outreach ColoradoEOG ResourcesEpilogFire Alarm Services IncFirst Data FoundationFirst Bank Holding CompanyFirst National Bank Fort CollinsFoothills United WayForest Oil CorpFraternal Order of Eagles Aspen #184Freddie Mac FoundationFront Range SnacksGE FoundationGlobal ImpactGraingerGrand Mesa Medical SupplyGrannyma’s LLCGreat-West Life Annuity Insurance CoGreenlee Family Foundation*The Griffin Foundation

The Group IncHachHarmony Surgery CenterHarrison Resource GroupHarvey Operating Production CompanyHeska CorpHewlett Packard Company FoundationHillside Commercial Group IncHolly Medicinal Services LLCHome Buyers Warranty CorporationHyatt Hotels & ResortsIstonish IncJeppesenJohns Manville Fund IncKaiser Permanente FoundationKBCOKennedy/Jenkins Consultants IncKennedy Childs & FoggKeyBank Foundation Kroll Factual DataL P Brown Foundation*Ladies Auxiliary No 595Laramie GM Auto Center IncLeft Hand BrewingLifeStyle Kitchen & Bath CenterLincoln Financial Foundation IncLincoln Heritage Life Insurance Co

Little People’s Landing Learning CenterLoveland Reporter-HeraldMandelbaum Family Charitable Foundation*Markley Motors IncMarusi Family FoundationMCAD Technologies IncThe McGraw Hill CompaniesMcKesson Foundation IncMcWhinney FoundationMDC Holdings IncMellow A LLCMerck Partnership for GivingMicrosoftMiddle West Mfg. CorpMile High United WayMillerCoors LLCMorgan Stanley Smith BarneyNelnet IncNew West Management Service OrganizationNewmont Mining CorporationNora Roberts Foundation*Novartis Pharmaceuticals CorporationOmni Pro Cleaning CompanyOrthopaedic Center of the RockiesPeak One Sports Marketing LLCPearl Street GrillThe Phyllis M Coors Foundation

Statement of Financial PositionAssetsCurrent Assets . . . . . . . . . . . . . . . . . . . . . . . . . . $2,379,194 Noncurrent Assets . . . . . . . . . . . . . . . . . . . . . . . . $115,767 Total Assets . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $2,494,961

liabilities and net AssetsCurrent Liabilities . . . . . . . . . . . . . . . . . . . . . . . . . $610,683 Total Long-Term Liabilities . . . . . . . . . . . . . . . . $111,227 Total Liabilities. . . . . . . . . . . . . . . . . . . . . . . . . . . . $721,910

net AssetsTotal Net Assets (unrestricted) . . . . . . . . . . $1,773,051 total liabilities and net Assets . . . $2,494,961

Statement of ActivitiesRevenueSpecial Events. . . . . . . . . . . . . . . . . . . . . . . . . . . .$4,162,151 Individual Contributions . . . . . . . . . . . . . . . . . . $513,776 Corporate Contributions . . . . . . . . . . . . . . . . . . $100,766 Foundation Contributions. . . . . . . . . . . . . . . . . . $19,490 Other . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $259,390 total Revenue . . . . . . . . . . . . . . . . . $5,055,573

expensesResearch . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $1,001,227 Programs . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $3,096,233 Fundraising . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $793,503 Management and General. . . . . . . . . . . . . . . . . $160,300 total expenses . . . . . . . . . . . . . . . . $5,051,263 Change in net assets . . . . . . . . . . . . . . . . $4,310

■ Financial Statements

■ Our Sincere Gratitude

Year Ending September 30, 2010

Recognizing gifts of $1,000+ from October 1, 2009 to September 30, 2010 * Indicates Inaugural Golden Circle Members

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Pikes Peak United WayPinnacle Consulting Group IncPoudre Valley Hospital FoundationPuja Memorial FundRaytheon Charitable GivingRed Robin International IncRegis UniversityRocky Mountain Healthcare Options IncRosco’s IncSam’s ClubSara LeeSchrader Oil CompanySchuster Family Foundation*Scream ScramSES Americom IncSisters of Charity of LeavenworthDonald W. Spiro FoundationSt. Anthony’sStaples CECSundance ImagesT W C Foundation Inc*T. Rowe Price TeleTechTeva Neuroscience IncThree Tomatoes CateringTimothy and Bernadette Marquez FoundationThe Toney Family Foundation*Truist Altruism ConnectedTurner Construction CompanyTwelve Twenty One Fund*United Parcel ServiceUnited Way of Larimer CountyUnited Western BankUniversal StylzUS Figure SkatingUtility Trailer Sales of WashingtonValley View HospitalVenoco IncVictory Energy CorporationWalmart FoundationWaters CorporationWells Fargo Bank West N.A.West Star AviationWet Paint Communication LLC*The Williams Companies IncThe Wilson Family FoundationXcel EnergyXL Global ServicesxpedxYourCauseSports

individuals

Martha and Carlos AbelloJodie and Howard AdlerThe Albo FamilyDavid AlexanderRoss AlexanderThe Allison FamilyWayne AllredBernece Anderson Memorial FundDianna AndersonThe Anderson FamilyJennifer AndrewBrett and Jodi ArcherAmber Arndt and Shawn GreenSheila Aud

The Bacon FamilyJune Baker*The Ballenger FamilyTroy Michael Baranek Frank BarrySuzanne and Jeff BeerGreg BelforLee and Samuel BenignoDonald and Kathryn BerthiaumeJudith Birnbaum*Tim Blach John and Carolyn Bliley*Dolores Blue*Judy Bogaard Mark Bonkowski Wendy Booth*Tom Bradbury Jr.Bart and Margie BrownJerrold and Kathy Brown*LaRay and Tracy BrownThe Brown FamilySharon and Frederick Brubaker Jerry and Carmen BryantSusan Burke*Robert BurrowsThe Butcher FamilySusan and Douglas Butler*Matt and Erica CainJack and Meredith CallisonKelly CampbellApril CarltonKevin CartinWilliam Carter*Chris CaseboltJennifer CaskeyPhillip and Laura CathlinaKurt CellarWilliam ChaneyHaynes ChidseyPhillip and Marje Clark*Myron and Joanne Clayton Eric and Sherene ClowersShawn ColasuonnoRichard and Marsha Cole*Steven ColeEstate of Ruth Combs*The Coningsby FamilyTravis CooperWilliam and Vollie Cotton*Carl and Ondine CraigNancy CurtinGlenn Curtis*Harald Dahms*Robert and Lenore Damrauer*Don and Barbara DayPamela DeckerJulie DeGroff*The Dejong FamilyAnn DelatourRobert DellacroceCorinne DiNardoChuck and Penny DonelanJames DonnanJudee Donner*Susan Doughty*Andrew DoyleTerri DrapalCarolyn and Brent DreverScott DumpertSusan DuncanThe Durant Family

The Dyke FamilyMichael EberhardSissel EckenhausenDavid and Paula EdwardsJanet B. ElwayTimothy FarnhamPaul FecteauEstate of Eva FeldThe Figge FamilyKevin and Susan Fink*Jill FordCherylyn FossMark and Nancy Foster*The Friedman FamilyKristin Froehlich Jim FuquaGeorge and Beverly GarmanyJulie GibsonPamela Lane Glodney Kent and Carol GodfreyDouglas GuionBradley and Melissa GustafsonIra HaberDaya HaddockArlene Ham-BurrJack HarrisonEstate of Jack and Joan Hartman*Rob and Melissa Hartnett*Nancy HastingsTodd and Marie Hauer Earnest HeardDean Heizer IIHelen HideshimaMark HigginsBenjamin Daniel Hirschfeld Mary and Owen Hobson*Gerald and Lauren HohensteinRalph Holden*Robert Holland James HolmesJohn HopkinsChristopher S HortonDirk Howell Josephine HubchikStanley HuffShirley HurtaBarbara IglesiasChristina IsenbergJohn JancikNonie JohnsonDee JonesMatthew and Maria KennedyEthel Kessler*Mike and Elizabeth King*Douglas and Joanne KirbergJohn Kivimaki and Lauren Lehman*The Knox FamilyR. B. KolbeJames Kratofil Mary Ann Kuklinski and Thomas MerrillBrian P. KurzRichard Lake Jack LandonJohn and Judith LanningNancy LawSusan LehmanCharles and Chari LeleckStuart and Arlene Lerman*

James and Janine LeupoldValerie LohnesMike LongDavid Lord*Hugh and Paula LoudJoLynn and Harry Love*John LummisDennis LynchLisa MacAllisterAnthony MalinowskiAlison Mangan William ManiatisThe Markisohn FamilyGene MarkleyTim MarquezChristopher MarsicoJohn McBride*Katie McClureMatt and Lauren McConnellKathleen MeadowsPhilip and Marty MeinertCharles MerrillThe Merrill FamilyThe Milgrom Family*Ellen MillerScott MillsGlen Mizenko James and Ellie Mohler*Debie and Paul Monax*J F MonkAxson and Bryan MorganRussel and Kelley MorganEdmond MorseRussel and Sandra MowrerDeb MunleyMichael MurrayJill and David Myers*Charles Nail Jr.Joyce M. NelsonCarrie and Matt NolanStacy OhlssonThe Oliver FamilyHerbert OwensCharles PaulPeggy PaulsonRichard and Christine PeeblesJan and Joel PhillipsMarjorie PhyeThe Polidori FamilyJane Quinette*Kathleen Quinn-Dea*James Rasmuson Richard and Jane Raymond*Linda ReidMonroe and Rella Rifkin*Mary RobertsonJesse Rodriguez David RoitmanHoward RomanowMichael Ross*Donna and Joseph Routzon*Edmund RuffinMark and Susan RuhlLinda SaarnijokiChristina SalasJennifer Sales and Greg LyonRay and Beverly LyonJohn SalomoneAnn Sandquist*Janet Savage and Ed GodinChuck and Judy Schowalter

Bethany and Wayne SchultzMary SchultzThom and Joani Schultz*Tim SchulzThe Schwalm FamilyKathryn and Howard SchwartzEstate of Maureen K. ScottAmy SeneshenJeffrey SepichEstate of Mary Jean ShuttsLou and Lori Sigman*Virgil and Joan Simon*Rod and Betty SnowMichelle and Eric SpicerLori and Tom SpikerLinda SpringsteadKaty and Marc Spritzer*The Staller Family*Douglas Jeffrey StatesSusan and Larry SteffenLeonard and Angela StegmanBob and Jan SteiertLynette and Bradley SteiningerLee SteinkeJim Stevens*Catherine and Coy StewartGary StewartMichael StewartThe Stone FamilyEstate of Walker H. StrausThe Stroh FamilyConrad and Cheryl SwansonMary TackettDonald TarantoBeth TatemDavid Taylor Joellen TaylorThe Thompson FamilyAlice TolenJane and Bob ToneyPegi and Michael TouffWilliam Robert TreshamBill and Sarah TrimarcoRocci and Marla TrumperLynne Van CleavePhilip Vaughan Harry Vaupel Jr.*Bekim VeseliLance VierraDarline Vosper*Joseph and Linda Vumbaco*Tim and Betty WalkerSelden WassonKathryn WatsonDave and Susie WehrfritzBarry WiederholtBrandt Wilkins*Douglas Wills*Dave WilsonJacob WilsonJeff and Rosemary WilsonSam and Leigh Anne WinegradW F. WinklerCaroline WittenJulie and Marc WoodardArthur and Janet WorrallPhil and Ellen YastrowKevin YoderAlison Zellner*George Zimmerman*

Denver Metro Office900 South BroadwaySuite 250Denver, CO 80209303-698-7400

Northern Office1525 Riverside Ave Suite AFort Collins, CO 80524970-482-5016

Southern Office616 North Tejon StColorado Springs, CO 80903719-634-2984

Western Slope Office2232 North 7th StSuite 14Grand Junction, CO 81501970-241-8975

Wyoming Office525 Randall AveCheyenne, WY 82001307-433-8664

www .cureMSco-wy .org800 FiGHt MS (800-344-4867)