1 caregiver adaptations to reduce environmental stress (cares): the role of environmental coping...
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Caregiver Adaptations to Reduce Environmental Stress
(CARES): The Role of Environmental Coping Strategies (ECS)
Dory Sabata, OTD, OTR
Co-Author Julie Overton, MHA, MSG
AoA National Summit: Creating Healthy and Caring Communities
September 23, 2003
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Overview
Importance of ECS for Caregivers
Project Overview & Findings
Problematic Activities in the Home & Low-Tech Solutions
NFCSP and Funding for ECS
Summary and Recommendations
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Importance of ECS for Caregivers Environmental coping
strategies (ECS): changes made to the home environment
that enhance care and reduce physical stress of caregivers
Home Modifications (HM)
Assistive Devices (AD)
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Goal of CARES
To create and stimulate improved systems of support services that increase caregiver utilization of ECS to reduce physical burden
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Objectives of CARES
1. Assess caregivers
2. Educate service providers on ECS
3. Stimulate aging network activities
4. Evaluate and disseminate strategies
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Caregiver Focus Groups
Convenience sample 4 groups, N=29 (6, 5, 9, 9) Primarily live with the care
recipient (CR) CR: parent, spouse, other
relative Average 4-6 yrs. as caregiver
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Lessons from Caregivers Most physically demanding
Lifting, transferring, and bathing
Most frequent HM Grab bars Homemade strategies
Most problematic room Bathroom
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Lessons from Caregivers (cont.)
Concerns of community mobility Getting out Transportation
Limited use of ECS Cost prohibitive Benefits not understood
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Lessons from Caregivers (cont.)
Perception of financial assistance Funding only for institutional care Deplete own finances at home
Where to go? Hardware Stores Retail stores
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Problematic Activities & Low Tech Solutions Toileting Bathing
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Problematic Activities & Low Tech Solutions (cont.)
Using steps
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Problematic Activities & Low Tech Solutions (cont.)
Moving around in the home Getting in and out
Of the home Of a vehicle
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NFCSP & Funding for ECS AAA’s identify funding as #1
Informational need for ECSChallenge to caregiver services
Piece together fundingOrange County AAA and
Rebuilding Together
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NFCSP & Funding for ECS (cont.)
Sub-contract services Reimburse families Utilize community service
groups Train Care Managers
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Recommendations Utilize NFCSP Supplemental
Services for HM and AD services
Provide Caregivers information on ECS Outreach Support groups
Raise awareness of ECS benefits To Policymakers To Caregivers Through community partnerships
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Summary
We cannot ignore the physical stresses placed on CGs who provide daily assistance to their CRs. ECS can help care for the CG by making caregiving activities less stressful, more convenient, and easier.
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Contact Information
National Resource Center on Supportive Housing and Home Modification
University of Southern California Andrus Gerontology Center
Los Angeles, California 90089-0191
www.homemods.org
(213) 740-1364