>>> npf overview kathleen gallant national psoriasis foundation trustee secretary, ifpa...
TRANSCRIPT
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NPF OVERVIEW
Kathleen Gallant
National Psoriasis Foundation Trustee
Secretary, IFPA
National Psoriasis Foundation
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Mission – To find a cure for psoriasis and psoriatic arthritis
and to eliminate their devastating effects through research, advocacy and education
Who We Are
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▪ Founded in 1968 - Portland, Oregon 40 employees
▪ Governed by Board of Trustees & Medical Advisory Board Funded by individuals and corporations
▪ Patient advocacy organization:– Voice of the patient– Nation’s leading authority on psoriatic disease– Help patients overcome physical and emotional barriers
▪ Focus: Research, Education and Advocacy
Who We Are
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▪ To increase the Foundation’s development capacity
▪ To increase the Foundation's role as a catalyst for scientific discovery
▪ To accelerate the Foundation’s ability to change conditions and policies that pose barriers to the Mission
Strategic PrioritiesStrategic Priorities
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▪ To increase the capacity to effectively manage and treat psoriasis/psoriatic arthritis
▪ To expand the capacity of the Foundation
through integrated community-based
Divisions
Strategic PrioritiesStrategic Prioritiescont’d.
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▪ Advocacy
▪ Access to Care□ Reform health plan policies□ Catalyst for appealing denials□ Policy intervention on emerging trends
▪ Legislation □ PPARCCA Bill □ CDC Patient Registry □ State legislation – phototherapy co-pays
Partnering with Health Care Providers and
Patients
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Discovery Grants: Basic science on disease origins and pathways
- Immunology- Genetics- Pathways of tissue damage- Co-morbidities
Translational Grants: Bridge to clinical applications
Fellowships: To promote research as a career
= funding the “best science”
Research Mechanisms:
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How We Partner with Healthcare ProvidersKey Products
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How We Partner with Healthcare ProvidersKey Products
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How We Partner with Healthcare ProvidersKey Products
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How We Partner with Healthcare ProvidersKey Products
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How We Partner with Healthcare ProvidersKey Products
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Key Products
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Key Products
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Key Products
Since 2007:• Raised $3 million USD • Over 10,000 participants• FY 2011 = 21 cities
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Key Products
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Thank you