THE ICT4LIFE RESEARCH PROJECTDESIGN AND DEVELOPMENT OF A NEW INFORMATION TECHNOLOGY PLATFORM

FOR PATIENTS WITH ALZHEIMER’S DISEASE

Voros V, Osvath P, Kovacs A, Greges I, Fekete Sz,

Tenyi T, Fekete S and the ICT4Life Consortium

Department of Psychiatry and Psychotherapy, University of Pecs, Pecs, Hungary

Correspondence: Viktor Voros MD, PhD

Email: voros.viktor@pte.hu, info@ict4life.eu

Website: www.ict4life.eu

More information on: @ICT4LifeEU

This project has received funding from the European Union’s Horizon 2020

research and innovation programme under grant agreement Nº 690090.

• With an increasingly growing population in Europe, cognitive impairment and dementias are major social and health issues

• According to the World Alzheimer Report (WHO, 2014) dementia, including Alzheimer’s disease remains one of the biggest global public health challenges our generation is facing

• There are many efforts at European level to promote active and healthy ageing

Background

• 44 million people live with dementiao Will double by 2030 and triple by 2050

• 6th leading cause of deatho 1 in 3 seniors dies with Alzheimer’s or other dementia

• Alzheimer's takes a devastating tollo not just on those with the disease, but on entire families

and society

• Huge direct and indirect costso Direct costs are estimated at 0.5% of GDP

Quick Facts Burden – From The

Caregiver’s Perspective

Main Problems To Address

In Dementia

• Psychopathology (cognitive,

affective, behavioural)

• Functionality (everyday activity)

• Interpersonal problems (relatives,

caregivers, society)

• Quality of life (QoL)

Main Aims Of The Project

• Real-time monitoring in order to alarm and early intervention

• Gather data in order to follow-up and analysis

• Increase safety and reduce risk

• Prevent fall risk, chronic disease, dementia, social isolation, depression, poor well-being, and poor medication management

• Support to remain independent, safe and socially involved

• Promote independence and autonomy

• Improve confidence and quality of life

• Support to live at home for longer

• Support to maintain abilities

• Provide reassurance to carers and help them to feel less stressed

Method – Research Project

• ICT4Life platform is designed to improve situational awareness about patients at their home environments making use of advanced sensor-based analytics

• Maximize elderly empowerment and self-care abilities thanks to a reconfigurable recommendation system that will be able to exploit user-generated data

• Improve decision-making processes in care professionals’ daily activities

• All solutions are developed following a user-centred methodology and tested in real-life scenarios

Conclusions 2.

• ICT4Life proposes an innovative platform for

integrated care by the use of sensor-based

analytics for human behaviour

• This three-year project has the ambition to

provide new services for integrated care with

breakthrough research and radical innovation

by employing user-friendly ICT tools, ultimately

increasing patients’ quality-of-life and

autonomy at home

• Preliminary results are about to come soon in

2017

Conclusions 1.

• This initiative brings together nine partners representing academia, industry and users’ groups

• All committed in improving patients’ lives and advancing Europe’s leadership role in personalized services for integrated care

• ICT4Life develops a solution for individuals with early stage cognitive impairment that will permit doctors and caregivers to extract useful information about patients

• While contributing in a user-friendly way to extending their independence

Method – AssessmentsFUNCTIONS,

PARAMETERS

ASSESSMENTS

(BASELINE AND FOLLOW-UP)

MONITORING AND IMPROVING BY

ICT ASSISTIVE TECHNOLOGIES

Physiological/somatic

parameters

- Medical data - Medical Assessment Form (medical history, comorbidities)

- Medical examination

- Vital signs – WITH ALERT FUNCTION

Cognitive functions - Mini Mental State Examiner

(MMSE)

- Clock-drawing test

- Assessment, monitoring and improvement of cognitive and

memory functions (shape recognition, matching, words and

images, Memorix, gamification)

- Interactive training for the preservation of personal experiences

(family photo album, family events and stories)

Behaviour abnormalities and

daily functions

- Modified Functionality Assessment

Questionnaire (mFAQ)

- Caregiver Questionnaire (based on

BEHAVE-AD and Cornell scale)

- Brief Geriatrics Assessment Scale

- Modified Clinical Dementia Rating

(mCDR)

- Motion related parameters (movement/kinetic sensors: position,

daily motor acitivities pattern, fall-over alarm, motion detection

in and out-house, repetitions, interactive design and

implementation agenda, reminders)

- Divergence from daily activity – WITH ALERT FUNCTION

Emotional problems and

quality of life

- Beck Depression Inventory (BDI)

- Anxiety scale (HAM-A)

- Suicide Intention Scale (SIS)

- Quality of life (QoL)

- Devices to support engagement, social participation and leisure

(digital photoframes, games and apps to improve cognitive skills,

sensory stimulation, ‘brain training’ devices)

- Communication aids (telephones, video chat)

Safety and Telecare - With alert functions (call for help)

- With alarm system

- Safety features: automatic lights with sensors to prevent trips

and falls, water isolation devices, special plugs, heat sensors, fall

sensors, telephone blockers

- Remotely monitor people living in their own home, enabling

them to access support or response services when necessary

- Include community alarms, sensors and movement detectors

and video conferencing

Caregivers - Zarit caregiver burden form - Interactive psychoeducational program

- Theoretical and practical aspects (FAQ)

- Algorithms to help manage unexpected situations

- Interactive memory training together with the patient

General Concept Platform For Integrated Care Actors & Development Areas

Share InformationCooperationCommunication

SU

PP

OR

T

TO

OL

S

Home Set System User Interfaces

Server Interface

Sto

rage

Data Interface

Databases

Services

High-level modules

Low-level moduleanalysis

Capture & Preanalysis

Interface sensors

Services

Mobile InterfacesHome Scenario

Rehabilitation Scenario

Day-Centre Scenario

ICT4Life Platform

TV Interfaces

Web Interfaces