Swiss public health 2013 Wilbanks

Download Swiss public health 2013 Wilbanks

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Keynote presentation for the Swiss Public Health Conference 2014. Details at http://sph13.organizers-congress.ch/french/programOverview.php

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  • 1. every age has its own lever.

2. ours is data. 3. 1. how do we change the way we gather data? 4. centered around authenticated individuals at authenticated institutions 5. gathering pre-determined data from pre-determined phenotypes 6. there is no center, and what is authentication? 7. just record everything and gure out signicance later 8. 2. its about cheap data, not big data. 9. cheap data changes the way we justify our beliefs. 10. OPS = AB(H + BB + HBP) + TB(AB + BB + SF + HBP) / AB(AB + BB + SF + HBP) 11. cheap data = better decisions 12. 21 13. 22 14. 23 15. 24 16. assume 1,000,000 downloads assume 10% false positive rate 100,000 doctor visits $1000 per biopsy 17. $900,000,000 per app? 18. 3. how might we connect cheap data, research, and health systems? 19. sharing by small but coherent groups can create asymmetrically valuable resources. 20. When Campos contacted the company for the rst time, Medtronic spokesman Steve Cragle said that the patient services rep didnt understand that Campos wanted the raw data. 21. if i want to give it away, i have to understand the gift. 22. terms in blue pop up denitions 23. volunteer must click to proceed all boxes must be checked 24. volunteer cannot skip video 25. real-time genotype sharing: 26. http://opensnp.org/users/615 27. http://les.snpedia.com/reports/promethease_data/genome_jtw_ui2.html 28. Also there is no suggestion of consanguinity in your pedigree. http://www.ianlogan.co.uk/ 29. a relief, but no insight. 30. 4. cheap data to insight via open systems. 31. 47 32. 48 33. accessibility adaptability leverage ease of mastery 34. accessibility adaptability leverage ease ofmastery 0 25 25 25 25 THREEOPTIONSTODOWNLOAD NOCLEARLICENSE PRIVACYRESTRICTIONS METADATA 35. which patients have tumor and normal samples amidst a group of celles? 36. accessibility adaptability leverage ease ofmastery IMPACTOFPRIVATEINTERVENTION 37. free as in speech or free as in beer? 38. john.wilbanks@sagebase.gov wilbanks@nitrd.gov @wilbanks