susan m. wolf curriculum vitae · profs. jeffrey p. kahn, susan m. wolf (university of minnesota)...

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SUSAN M. WOLF CURRICULUM VITAE 8/15 McKnight Presidential Professor of Law, Medicine & Public Policy Faegre Baker Daniels Professor of Law Professor of Law and Medicine University of Minnesota N218 Mondale Hall 229 19th Avenue South Minneapolis, MN 55455 (law.umn.edu/facultyprofiles/wolfs.html ) Professor of Medicine, Dept. of Medicine University of Minnesota Medical School Faculty Member, Center for Bioethics University of Minnesota Chair, Consortium on Law and Values in Health, Environment & the Life Sciences (consortium.umn.edu/ ) Founding Director, Joint Degree Program in Law, Science & Technology (jointdegree.umn.edu/ ) Tel.: 612-625-3406; 612-301-3905 FAX: 612-624-9143 E-mail: [email protected] SSRN page: http://ssrn.com/author=56032 (http://www.bioethics.umn.edu/bio/centerforbioethics/susan-wolf ) EDUCATION Princeton University, A.B. 1975 Summa Cum Laude Yale Law School, J.D. 1980 Harvard University, Ph.D. candidate 1977-78 HONORS Member (elected), American Law Institute (ALI) (2014-present) Member (elected), National Academy of Medicine (was Institute of Medicine) (2009-present) Fellow (elected), American Association for the Advancement of Science (AAAS) (2008-present) McKnight Presidential Professor of Law, Medicine & Public Policy, University of Minnesota (2006-present) Faegre Baker Daniels Professor, University of Minnesota Law School (2000-present) Julius E. Davis Professor, University of Minnesota Law School (1999-2000) Opperman Research Scholar, University of Minnesota Law School (1998-99) Board of Directors (elected), American Society for Bioethics and Humanities (ASBH) (2001-04) Fellow (elected) (1993) and Fellows Council (1998-2000), The Hastings Center McDonald-Merrill-Ketcham Award for Excellence in Law and Medicine, Indiana Univ. (2015) David Barap Brin Visiting Professor, Johns Hopkins University School of Medicine (2002) Medical School Merit Award, University of Minnesota (1996) Jonathan J. King Lectureship, Stanford University Medical Center (1994) Fellow, Program in Ethics and the Professions, Harvard University (1992-93) Visiting Professor, The Cambridge Hospital, Cambridge, MA (1990) Maclean Fellow, Princeton University (1988-89) National Endowment for the Humanities (NEH) Fellow, The Hastings Center (1984-85) Isidore Brown Thesis Award, Princeton University (1975)

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Page 1: SUSAN M. WOLF CURRICULUM VITAE · Profs. Jeffrey P. Kahn, Susan M. Wolf (University of Minnesota) & Barbara Koenig (Mayo College of Medicine), $25,000 Grants from the Donaghue Medical

SUSAN M. WOLF

CURRICULUM VITAE 8/15

McKnight Presidential Professor of Law,

Medicine & Public Policy

Faegre Baker Daniels Professor of Law

Professor of Law and Medicine

University of Minnesota

N218 Mondale Hall

229 19th Avenue South

Minneapolis, MN 55455

(law.umn.edu/facultyprofiles/wolfs.html)

Professor of Medicine, Dept. of Medicine

University of Minnesota Medical School

Faculty Member, Center for Bioethics

University of Minnesota

Chair, Consortium on Law and Values in

Health, Environment & the Life Sciences

(consortium.umn.edu/)

Founding Director, Joint Degree Program in

Law, Science & Technology

(jointdegree.umn.edu/)

Tel.: 612-625-3406; 612-301-3905

FAX: 612-624-9143

E-mail: [email protected]

SSRN page: http://ssrn.com/author=56032

(http://www.bioethics.umn.edu/bio/centerforbioethics/susan-wolf)

EDUCATION Princeton University, A.B. 1975 Summa Cum Laude

Yale Law School, J.D. 1980

Harvard University, Ph.D. candidate 1977-78

HONORS Member (elected), American Law Institute (ALI) (2014-present)

Member (elected), National Academy of Medicine (was Institute of Medicine) (2009-present)

Fellow (elected), American Association for the Advancement of Science (AAAS) (2008-present)

McKnight Presidential Professor of Law, Medicine & Public Policy, University of Minnesota

(2006-present)

Faegre Baker Daniels Professor, University of Minnesota Law School (2000-present)

Julius E. Davis Professor, University of Minnesota Law School (1999-2000)

Opperman Research Scholar, University of Minnesota Law School (1998-99)

Board of Directors (elected), American Society for Bioethics and Humanities (ASBH) (2001-04)

Fellow (elected) (1993) and Fellows Council (1998-2000), The Hastings Center

McDonald-Merrill-Ketcham Award for Excellence in Law and Medicine, Indiana Univ. (2015)

David Barap Brin Visiting Professor, Johns Hopkins University School of Medicine (2002)

Medical School Merit Award, University of Minnesota (1996)

Jonathan J. King Lectureship, Stanford University Medical Center (1994)

Fellow, Program in Ethics and the Professions, Harvard University (1992-93)

Visiting Professor, The Cambridge Hospital, Cambridge, MA (1990)

Maclean Fellow, Princeton University (1988-89)

National Endowment for the Humanities (NEH) Fellow, The Hastings Center (1984-85)

Isidore Brown Thesis Award, Princeton University (1975)

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2 EDITORIAL POSITIONS Editorial Board, NEUROETHICS (2007-present)

Executive Editor (2004-13), Faculty Advisory Board (continuing), MINNESOTA JOURNAL OF

LAW, SCIENCE & TECHNOLOGY

Editorial Board, JOURNAL OF LAW, MEDICINE & ETHICS (2002-present)

Editorial Board, AMERICAN JOURNAL OF BIOETHICS (2001-04)

Editorial Board, JOURNAL OF URBAN HEALTH (continuing)

Reviewer of manuscripts for journals including:

AMERICAN JOURNAL OF MANAGED CARE

AMERICAN JOURNAL OF PUBLIC HEALTH

GENETICS IN MEDICINE

HASTINGS CENTER REPORT

IRB: ETHICS AND HUMAN RESEARCH

JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION (JAMA)

JOURNAL OF CLINICAL ETHICS

JOURNAL OF ETHICS, LAW, AND AGING

JOURNAL OF HEALTH POLITICS, POLICY AND LAW

JOURNAL OF LAW, MEDICINE & ETHICS

KENNEDY INSTITUTE OF ETHICS JOURNAL

LANCET

MILBANK QUARTERLY

NEW ENGLAND JOURNAL OF MEDICINE

SCIENCE

SOCIAL SCIENCE AND MEDICINE

Reviewer of proposals for:

National Institutes of Health (NIH), Nat’l Human Genome Research Inst. (NHGRI)

National Institutes of Health (NIH), National Institute of Mental Health (NIMH)

National Science Foundation (NSF) (and site visit 6/07)

W.T. Grant Foundation

Oxford University Press

Cornell University Press

BAR ADMISSIONS 1982 New York State (App. Div., 1st Dept.)

1983 Southern District of New York

1991 U.S. Supreme Court

WORK EXPERIENCE 2006-present McKnight Presidential Professor of Law, Medicine & Public Policy,

University of Minnesota

2006-present Faculty Chair, Concentration in Health Law & Bioethics,

University of Minnesota Law School

2000-present Faegre Baker Daniels Professor, University of Minnesota Law School

(law.umn.edu/facultyprofiles/wolfs.html)

2000-present Professor of Medicine, University of Minnesota Medical School

2000-present Chair, Consortium on Law and Values in Health, Environment & the Life

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Sciences, University of Minnesota (consortium.umn.edu/) (2000-12; 2013-

present); Founding Chair (2012-present)

1999-present Director, Joint Degree Program in Law, Health & the Life Sciences,

University of Minnesota (1999-2012); Founding Director, Joint Degree Program

in Law, Science & Technology (jointdegree.umn.edu/) (2012-present)

1999-present Professor of Law and Medicine, University of Minnesota Law School

1999-2000 Julius E. Davis Professor, University of Minnesota Law School

1993-99 Associate Professor of Law and Medicine (awarded tenure 1996),

University of Minnesota Law School

1993-present Faculty Member, Center for Bioethics, University of Minnesota

(https://www.bioethics.umn.edu/bio/centerforbioethics/susan-wolf)

1992-94 Consultant, The Hastings Center, Briarcliff Manor, NY

1992-93 Fellow, Program in Ethics and the Professions, Harvard University

1985-92 Associate for Law, The Hastings Center

1987-92 Adjunct Associate Professor, New York University School of Law

1984-85 National Endowment for the Humanities Fellow, The Hastings Center

1984-85 Legal Assistant to Vice Chairman Morris B. Abram,

U.S. Commission on Civil Rights (part-time)

1981-84 Associate, Litigation Department,

Paul, Weiss, Rifkind, Wharton & Garrison, NYC

1980-81 Law Clerk to Judge Leonard B. Sand,

U.S. District Court, Southern District of New York

Summer ‘79 Summer Associate,

Arnold & Porter, Washington, DC

Summer ‘78 Staff Research Associate to Professor C.B. Kopp,

Project Reach, Department of Education, UCLA

Summer ‘77 Summer Intern,

American Civil Liberties Union, NYC

1976 Research Associate,

Institute of Judicial Administration, NYC

GRANTS & GIFTS

Grant from MnDRIVE Transdisciplinary Research (2014-16), on “DNA Nanotechnology:

Developing and Analyzing a New Tool for Sensing and Targeting Disease,” Profs. Efie

Kokkoli, Karen Ashe, Ted Labuza, Walter Low, Scott McIvor, Susan M. Wolf (Principal

Investigators (PIs)), $500,000

Grant from National Institutes of Health (NIH), National Institute of Biomedical Imaging

and Bioengineering (NBIB) (2014-17), on “Big Data Coursework for Computational

Medicine,” Profs. Jyotishman Pathak (Mayo), Claudia Neuhauser (Univ. of Minnesota),

Christopher Chute (Johns Hopkins Univ.) (PIs); Co-Is/Lecturers include Susan M. Wolf

Grant from National Institutes of Health (NIH), National Human Genome Research

Institute (NHGRI) (#3U01-HG007307-02S2), Administrative supplement (2014-15) to

“Evaluate the Implications of Amendments to the HIPAA Privacy Rule & CLIA

Regulations for Laboratories Offering Clinical Sequencing,” Prof. Gail P. Jarvik (Univ.

of Washington) (PI); Role: Consultant

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Grant from Robert Wood Johnson Foundation (RWJF) Investigator Award in Health Policy

Research (2012-14), on “Translating Research into Health Benefits: Returning Research

Results & Incidental Findings,” Prof. Susan M. Wolf (PI), $333,132

Grant from National Institutes of Health (NIH), National Cancer Institute (NCI) & National

Human Genome Research Institute (NHGRI) (#1-R01-CA154517) (2011-16), on

“Disclosing Genomic Incidental Findings in a Cancer Biobank: An ELSI Experiment,”

Profs. Gloria Petersen (Mayo), Barbara Koenig (UCSF) & Susan M. Wolf (PIs), $2.4

million; Administrative supplement to help support invitational workshop at the

Brocher Centre, Switzerland in 2013 on “Returning Genetic Results in Biobanks:

Opening an International Dialogue,” led by Profs. Barbara Koenig (UCSF), Susan M.

Wolf, Jane Kaye (University of Oxford), Bernice Elger (University of Basel);

Administrative supplement to help support ELSI experiment and development of tools

for operationalizing return of results to family

Grant from National Institutes of Health (NIH), National Human Genome Research

Institute (NHGRI) (#2-R01-HG003178) (2009-11), on “Managing Incidental Findings

and Research Results in Genomic Biobanks & Archives,” Prof. Susan M. Wolf (PI) with

Profs. Brian Van Ness, Jeffrey Kahn & Frances Lawrenz (Co-Investigators (Co-Is)),

$911,559

Grant from National Institutes of Health (NIH), National Human Genome Research

Institute (NHGRI) (#1-RC1-HG005338) (2009-11), on “Nanodiagnostics and

Nanotherapeutics: Building Research Ethics and Oversight,” Prof. Susan M. Wolf (PI)

with Profs. Jeffrey McCullough, Jeffrey Kahn & Ralph Hall (Co-Is), $914,044

Grant from the MacArthur Foundation (2008-09), subaward from University of California,

Santa Barbara on “How Should Neuroscience Change Law? Lessons from the Impact of

Genetics and Emerging Convergence of Genomics and Neuroscience,” Prof. Susan M.

Wolf (PI), $10,000

Grant from the Greenwall Foundation (2007-08) on “Emerging Problems in Neurogenomics:

Ethical, Legal & Policy Issues at the Intersection of Genomics & Neuroscience,” Prof.

Susan M. Wolf (PI) with Prof. Harry Orr & Jordan Paradise (Co-Is), $25,000

Grant from the MacArthur Foundation (2007-10) on “Law & Neuroscience,” Prof. Michael S.

Gazzaniga (PI); Prof. Susan M. Wolf (Project Member), $10 million

Grant from National Science Foundation (NSF) (#SES-0608791) (2006-10) on “NIRT:

Evaluating Oversight Models for Active Nanostructures and Nanosystems: Learning

from Past Technologies in a Social Context,” Prof. Susan M. Wolf (PI) with Prof.

Efrosini Kokkoli, Prof. Gurumurthy Ramachandran, Prof. Jennifer Kuzma & Jordan

Paradise (Co-PIs), $1,220,765

Grant from the Greenwall Foundation for 2007 Oscar M. Ruebhausen Visiting Professor,

Profs. Jeffrey P. Kahn, Susan M. Wolf (University of Minnesota) & Barbara Koenig

(Mayo College of Medicine), $25,000

Grants from the Donaghue Medical Research Foundation and Sussman Charitable

Remainder Annuity Trust to The Hastings Center (2006-09) to revise and expand

GUIDELINES ON THE TERMINATION OF LIFE SUSTAINING TREATMENT AND THE CARE OF

THE DYING (Indiana University Press, 1987), Dr. Nancy Berlinger (Project Director);

Prof. Susan M. Wolf (Senior Consultant), $380,000

Grant from National Institutes of Health (NIH), National Human Genome Research

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Institute (NHGRI) (#1-R01-HG003178) (2005-07), on “Managing Incidental Findings

in Human Subjects Research,” Prof. Susan M. Wolf (PI) with Profs. Charles Nelson,

Jeffrey Kahn & Frances Lawrenz (Co-Is), $587,559

Gifts from Deinard family and Leonard, Street and Deinard to increase endowment for Deinard

Memorial Lecture on Law & Medicine (2005-06), $50,000

Grant from National Institutes of Health (NIH), National Human Genome Research

Institute (NHGRI) (#1-R01-HG002818) (2003-04), on “Colliding Categories:

Haplotypes, Race & Ethnicity,” Dr. Jon Kahn (PI), Profs. Susan M. Wolf & Jeffrey Kahn

(Co-Is), $208,074

Grant from National Institutes of Health (NIH), National Human Genome Research

Institute (NHGRI) (#1-R01-HG02089) (2000-04), on “Genetics & Disability Insurance:

Ethics, Law & Policy,” Prof. Jeffrey Kahn (PI) & Prof. Susan M. Wolf (Co-I), $442,410

Grant from the Office of the President, University of Minnesota, naming the Consortium on Law

and Values one of eight Interdisciplinary Academic Initiatives (award in 2003-04)

Grant from the President’s 21st Century Interdisciplinary Conference Series, University of

Minnesota (2003), $25,000

Gift from Fredrikson & Byron for an annual scholarship for a student in the Joint Degree

Program in Law, Health & the Life Sciences (2001-present), $2500/year

Grant from the President’s Sesquicentennial Conference Series Committee, University of

Minnesota (2000), $25,000

Gift from Faegre & Benson to establish the Faegre & Benson Lecture Series in Law, Health &

the Life Sciences (2000), $20,000/year for 3 years

Gifts from the Minnesota Intellectual Property Law Association for a scholarship for a student in

the Joint Degree Program in Law, Health & the Life Sciences (2000, 2003-05), $1000-

$1500/year

Grants from the Law School (and Robina Fund); Graduate School; Academic Health Center;

Medical School; School of Public Health; College of Biological Sciences; College of

Natural Resources; College of Veterinary Medicine; College of Agricultural, Food, and

Environmental Sciences; College of Pharmacy; Cancer Center; Center for Bioethics;

Biomedical Genomics Center; MD/PhD Program; Minnesota Medical Foundation,

University of Minnesota (1999-present), various amounts

Grants from the Office of the Senior Vice President for Academic Affairs and Provost,

University of Minnesota (1998-present)

Faculty Development Grant, Center for Bioethics (1997-98)

Fesler Research Fellowship (1996)

McKnight Summer Fellowship (1996), on “Rescuing Patients’ Rights: Facing a Future of

Managed Care”

University of Minnesota Graduate School Faculty Summer Research Fellowship (1996)

McKnight Summer Fellowship (1994), on “Patients’ Rights and Physicians’ Duties in the

Context of Health Care Reform”

University of Minnesota Graduate School Faculty Summer Research Fellowship (1994)

Harvard University Fellowship, Program in Ethics and the Professions (1992-93)

Grant from Shirley Katzenbach (1991-93), on “The Future of the Doctor/Patient Relationship,”

Hastings Center, Project Director

Grant from Pettus-Crowe Foundation (1990-93), on “Feminism, Communitarianism &

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Bioethics,” Hastings Center, Project Director

Grant from Donnelley Trust (1990-93), on “Feminism, Communitarianism & Bioethics,”

Hastings Center, Project Director

Grants from Greenwall Foundation (1987-90), on “Termination of Treatment” and on

“Feminism, Communitarianism & Bioethics,” Hastings Center, Project Director

Grant from Shirley Katzenbach (1985-87), on “Termination of Life-Sustaining Treatment and

the Care of the Dying,” Hastings Center, Project Director

National Endowment for the Humanities Fellowship, Hastings Center (1984-85)

GOVERNMENT AND COMMITTEE SERVICE National Science Advisory Board for Biosecurity (NSABB), appointed by Secretary of Health

and Human Services (oba.od.nih.gov/biosecurity/about_nsabb.html)

Institute of Medicine (IOM), National Academies, Member, Committee for Review of the

Appropriate Use of the Armed Forces Institute of Pathology’s (AFIP’s) Tissue

Repository Following Its Transfer to the Joint Pathology Center

Institute of Medicine (IOM), National Academies, Reviewer, Oversight and Review of Clinical

Gene Transfer Protocols: Assessing the Role of the Recombinant DNA Advisory

Committee (2013)

Institute of Medicine (IOM), National Academies, Speaker, Roundtable on Translating

Genomic-Based Research for Health

Institute of Medicine (IOM), National Academies, Speaker, Workshop on Venture Philanthropy

Strategies Used by Patient Organizations to Support Translational Research, for Forum

on Neuroscience and Nervous System Disorders

Institute of Medicine (IOM), National Academies, Workshop Participant on Ethical

Considerations in Preventive Intervention Research, for Committee on Prevention of

Mental Disorders

National Academies, Workshop on Guidelines for Returning Individual Results from Genome

Research Using Population-Based Banked Specimens, invited participant and speaker

(Washington, DC)

National Institutes of Health (NIH), National Human Genome Research Institute (NHGRI),

invited participant in retreat on the future of genomic research (Airlie, VA)

National Institutes of Health (NIH), Workshop on Scientific and Ethical Issues Related to Open

Access HeLa Genomic Data, invited participant and speaker (Bethesda, MD)

National Institutes of Health (NIH), National Human Genome Research Institute (NHGRI),

Return of Results (RoR) Consortium (now CSER ELSI Consortium)

National Institutes of Health (NIH), National Heart, Lung, and Blood Institute (NHLBI),

Working Group on Ethical and Practical Guidelines for Reporting Genetic Research

Results to Study Participants

National Institutes of Health (NIH), Trans-NIH/Stanford University Meeting on incidental

findings in neuroimaging research

National Institutes of Health (NIH), National Center for Human Genome Research (NHGRI), ad

hoc study section member

National Institutes of Health (NIH), SEIR (Societal and Ethical Issues in Research) Study

Section, ad hoc study section member

Office of Technology Assessment (OTA), U.S. Congress, Panel on Institutional Protocols for

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Making Decisions About Life-Sustaining Treatment

Association of American Law Schools (AALS), Chair, Section on Law, Medicine & Health Care

American Society for Bioethics and Humanities (ASBH), Board of Directors

American Bar Association (ABA), Coordinating Group on Bioethics and the Law

American Medical Association (AMA), Medical Ethics Video Advisory Panel

American Medical Association (AMA), Working Group on Organizational Ethics

American Society for Reproductive Medicine (ASRM), Ethics Committee

American Academy of Pediatrics, Legal Consultant to Committee on Bioethics

Association of Schools & Programs of Public Health (ASPPH), Health in All Professions Expert

Panel

National Center for State Courts, Coordinating Council on Life-Sustaining Decision Making by

the Courts

New York City AIDS Review Panel

New Jersey Citizens' Committee on Biomedical Ethics, Advisory Committee

Memorial Sloan-Kettering Cancer Center, Ethics Committee

Bronx Municipal Hospital Center, Institutional Ethics Committee

Association of the Bar of the City of New York, Committee on Medicine and Law

Association of the Bar of the City of New York, Ad Hoc Comm. on Surrogate Motherhood

American Society of Law, Medicine & Ethics, Working Group on HIV Testing After Rape

American Civil Liberties Union, Committee for the Formation of a Surrogacy Policy

Blake School, Board of Trustees

UNIVERSITY COMMITTEE SERVICE

Member, University of Minnesota Research Compliance Advisory Committee (2015-present)

Member, Clinical and Translational Science Institute (CTSI) Multidisciplinary Advisory

Committee (MAC) (2014-present)

Member, Center for Bioethics Search Committee, Faculty Hire (2007)

Member, Law School Robina Retreat Committee (2006)

Member, Distinguished McKnight Professorship Committee (2005-07)

Member, National Academies Nomination Committee (2005-06)

Member, Task Force on Collegiate Design for the College of Liberal Arts (2005-06)

Member, Law School Promotion and Tenure Committee (2004-08)

Member, Ethics Committee, Minnesota Partnership for Biotechnology and Medical Genomics,

University of Minnesota/Mayo Clinic (2003-05)

Member, Stem Cell Ethics Advisory Committee (2002-08)

Member, Search Committee, Law School Dean (2001-02)

Chair, Law School Committee on Interdisciplinary Appointments & Joint Degree Programs

(1997-2011), Member (2011-12; 2013-present)

Chair, Law School Appointments Committee (1996-97)

Member, Law School Appointments Committee (1995-99)

Member, Law School Educational Policy Committee (1995-96)

Member, Law School Consultative Committee (1993-95)

Member, Law School Honor Code Council (1993-94)

Member, Search Committee, Center for Bioethics, Faculty Hire (1998)

Member, Search Committee, Center for Biomedical Ethics, Faculty Hire (1996-97)

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Member, Search Committee, Center for Biomedical Ethics Director (1994-96)

Member, University Public-Private Partnership Committee (1994-95)

Law School delegate, University Senate, Faculty Senate & Twin Cities Assembly (1994-96)

TEACHING Health Law & Policy

Law, Biomedicine & Bioethics

Genetics and Assisted Reproduction: Law & Ethics

Human Subjects Research: Law & Ethics

Public Health Law and Ethics: From Prevention and Emergencies to Bioterrorism

Essentials of Clinical Medicine (Medical School)

Independent Study

PUBLICATIONS (many may be found at http://ssrn.com/author=56032)

I. Books 1. Nancy Berlinger, Bruce Jennings & Susan M. Wolf, THE HASTINGS CENTER GUIDELINES

FOR DECISIONS ON LIFE-SUSTAINING TREATMENT AND CARE NEAR THE END OF LIFE (New

York: Oxford University Press, revised & expanded 2d edition, 2013).

2. Institute of Medicine, Committee on the Review of the Appropriate Use of AFIP's Tissue

Repository Following Its Transfer to the Joint Pathology Center, FUTURE USES OF THE

DEPARTMENT OF DEFENSE JOINT PATHOLOGY CENTER BIOREPOSITORY (Washington, DC:

National Academies Press, 2012), committee member.

3. Susan M. Wolf, ed., FEMINISM AND BIOETHICS: BEYOND REPRODUCTION (New York:

Oxford University Press, 1996). [Reviews at: 276 JAMA 1526 (1996); 25 JOURNAL OF

LAW, MEDICINE & ETHICS 58 (1997); 11 MEDICAL HUMANITIES REVIEW 76 (1997); 19

THEORETICAL MEDICINE AND BIOETHICS 411 (1998); Oxford Univ. Press website:

oup.com/us/catalog/general/subject/Medicine/Ethics/?view=usa&ci=9780195095562.]

4. COORDINATING COUNCIL ON LIFE-SUSTAINING MEDICAL TREATMENT DECISION MAKING

BY THE COURTS, GUIDELINES FOR STATE COURT DECISION MAKING IN LIFE-SUSTAINING

MEDICAL TREATMENT CASES (St. Paul, MN: West Publishing Co., 2d expanded edition,

1992), Council member.

5. COORDINATING COUNCIL ON LIFE-SUSTAINING MEDICAL TREATMENT DECISION MAKING

BY THE COURTS, GUIDELINES FOR STATE COURT DECISION MAKING IN LIFE-SUSTAINING

MEDICAL TREATMENT CASES (St. Paul, MN: West Publishing Co., 1991), Council

member.

6. GUIDELINES ON THE TERMINATION OF LIFE-SUSTAINING TREATMENT AND THE CARE OF

THE DYING: A REPORT OF THE HASTINGS CENTER (Bloomington, IN: Indiana University

Press & The Hastings Center, 1987), principal author and project director. [Excerpted in:

MICHAEL H. SHAPIRO ET AL., BIOETHICS AND LAW: CASES, MATERIALS AND PROBLEMS

(Thomson West, American Casebook Series, 2d ed. 2003).]

II. Edited Symposia 7. Susan M. Wolf, Barbara A. Koenig, Gloria Petersen, eds., Return of Genomic Research

Results to a Participant’s Family, Including After Death, JOURNAL OF LAW, MEDICINE &

ETHICS (forthcoming Fall 2015).

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8. Susan M. Wolf et al., eds., Nanodiagnostics and Nanotherapeutics: Building Research

Ethics & Oversight, 40 JOURNAL OF LAW, MEDICINE & ETHICS 712- 864 (2012).

9. Susan M. Wolf, Brian Van Ness, Frances Lawrenz, eds., Managing Incidental Findings

and Research Results in Genomic Research with Biobanks & Archived Datasets, 14

GENETICS IN MEDICINE 355-496 (2012).

10. Leili Fatehi, Susan M. Wolf, Gurumurthy Ramachandran & Jennifer Kuzma, eds.,

Governance of Nanobiotechnology, 13(4) JOURNAL OF NANOPARTICLE RESEARCH 1341-

556 (2011).

11. Susan M. Wolf, Gurumurthy Ramachandran, Jennifer Kuzma & Jordan Paradise, eds.,

Developing Oversight Approaches to Nanobiotechnology: The Lessons of History, 37

JOURNAL OF LAW, MEDICINE & ETHICS 543-789 (2009).

12. Susan M. Wolf, Jeffrey P. Kahn, Frances Lawrenz & Charles A. Nelson, eds., Managing

Incidental Findings in Human Subjects Research: From Imaging to Genomics, 36

JOURNAL OF LAW, MEDICINE & ETHICS 216-383 (2008).

13. Jeffrey P. Kahn & Susan M. Wolf, eds., Genetic Testing and Disability Insurance, 35

JOURNAL OF LAW, MEDICINE & ETHICS 5-89 (2007).

14. Susan M. Wolf, ed., The Responsible Use of Racial and Ethnic Categories in Biomedical

Research: Where Do We Go From Here?, 34 JOURNAL OF LAW, MEDICINE & ETHICS 483-

558 (2006).

III. Major Articles & Book Chapters 15. Susan M. Wolf, Wylie Burke, Barbara A. Koenig, Mapping the Ethics of Translational

Genomics: Situating Return of Results and Navigating the Research-Clinical Divide,

JOURNAL OF LAW, MEDICINE & ETHICS (forthcoming Fall 2015).

16. Susan M. Wolf et al., Returning a Research Participant’s Genomic Results to Relatives:

Analysis & Recommendations, JOURNAL OF LAW, MEDICINE & ETHICS (forthcoming Fall

2015).

17. Rebecca Branum & Susan M. Wolf, International Policies on Sharing Genomic Research

Results with Relatives: Approaches to Balancing Privacy with Access, JOURNAL OF LAW,

MEDICINE & ETHICS (forthcoming Fall 2015).

18. Carmen Radecki Breitkopf, Gloria M. Petersen, Susan M. Wolf, et al., Preferences

Regarding Return of Genomic Results to Family Members of Research Participants,

Including After Participant Death: Empirical Results from a Cancer Biobank, JOURNAL

OF LAW, MEDICINE & ETHICS (forthcoming Fall 2015).

19. Susan M. Wolf, Nancy Berlinger, Bruce Jennings, 40 Years of Work on End-of-Life Care:

From Patients’ Rights to Systemic Reform, 372 NEW ENGLAND JOURNAL OF MEDICINE

678-82 (2015).

20. Gail P. Jarvik,… Susan M. Wolf, et al., Return of Results to Research Participants: The

Floor, the Ceiling, and Choices In-Between, 94 AMERICAN JOURNAL OF HUMAN

GENETICS 818-26 (2014).

21. Gail E. Henderson, Susan M. Wolf, et al., Current Approaches to Informed Consent and

Return of Results in Exome & Genome Sequencing Studies: An Analysis of Consent

Forms, 42 JOURNAL OF LAW, MEDICINE & ETHICS 344-55 (2014).

22. Ellen Wright Clayton, …, Susan M. Wolf, Addressing the Ethical Challenges in Genetic

Testing and Sequencing of Children: Recent Statements by the American Academy of

Pediatrics and the American College of Medical Genetics and Genomics, 14(3) AJOB:

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AMERICAN JOURNAL OF BIOETHICS 3-9 (2014).

23. Susan M. Wolf, Return of Individual Research Results and Incidental Findings: Facing

the Challenges of Translational Science, 14 ANNUAL REVIEW OF GENOMICS AND HUMAN

GENETICS 557-77 (2013).

24. Wylie Burke,…Susan M. Wolf et al. Recommendations for Returning Genomic Incidental

Findings? We Need to Talk! 15 GENETICS IN MEDICINE 854-59 (2013).

25. Susan M. Wolf, George J. Annas & Sherman Elias, Patient Autonomy and Incidental

Findings in Clinical Genomics, 340 SCIENCE 1049-50 (2013).

26. Michael L. Etheridge, Stephen A. Campbell, Arthur G. Erdman, Christy Haynes, Susan

M. Wolf, Jeffrey McCullough, The Big Picture on Small Medicine: Analyzing the

Landscape of Approved and Clinical Nanomedicine Products, 9(1) NANOMEDICINE:

NANOTECHNOLOGY, BIOLOGY AND MEDICINE 1-14 (2013).

27. Leili Fatehi, Susan M. Wolf et al., Recommendations for Nanomedicine Human Subjects

Research Oversight: An Evolutionary Approach for an Emerging Field, 40 JOURNAL OF

LAW, MEDICINE & ETHICS 716-50 (2012).

28. Susan M. Wolf et al., Managing Research Results and Incidental Findings in Genomic

Research Involving Biobanks & Archived Datasets, 14 GENETICS IN MEDICINE 361-84

(2012).

29. Susan M. Wolf, The Past, Present and Future of the Debate over Return of Research

Results & Incidental Findings, 14 GENETICS IN MEDICINE 355-57 (2012).

30. Heather R. Bemmels, Susan M. Wolf & Brian Van Ness, Mapping the Inputs, Analyses,

and Outputs of Biobank Research Systems To Identify Sources of Incidental Findings and

Individual Research Results for Potential Return, 14 GENETICS IN MEDICINE 385-92

(2012).

31. Susan M. Wolf, The Role of Law in the Debate over the Return of Research Results and

Incidental Findings: The Challenge of Developing Law for Translational Science, 13

MINNESOTA JOURNAL OF LAW, SCIENCE & TECHNOLOGY 435-48 (2012).

32. Susan M. Wolf & Cortney Jones, Designing Oversight for Nanomedicine Research in

Human Beings: Systemic Analysis of Exceptional Oversight for Emerging Technologies,

13 JOURNAL OF NANOPARTICLE RESEARCH 1449-65 (2011).

33. Gurumurthy Ramachandran, Susan M. Wolf, Jordan Paradise, Jennifer Kuzma, Ralph

Hall, Efrosini Kokkoli & Leili Fatehi, Recommendations for Oversight of

Nanobiotechnology: Dynamic Oversight for Complex and Convergent Technology, 13

JOURNAL OF NANOPARTICLE RESEARCH 1345-71 (2011).

34. Susan M. Wolf, Incidental Findings in Neuroscience Research: A Fundamental

Challenge to the Structure of Bioethics and Health Law, in THE OXFORD HANDBOOK OF

NEUROETHICS 623-34 (Judy Illes & Barbara J. Sahakian eds., Oxford University Press,

2011).

35. Richard R. Fabsitz,…Susan M. Wolf et al., Ethical and Practical Guidelines for

Reporting Genetic Research Results to Study Participants: Updated Guidelines from an

NHLBI Working Group, 3 CIRCULATION: CARDIOVASCULAR GENETICS 574-80 (2010).

36. Nicholas M. Orme…Susan M. Wolf, Incidental Findings in Imaging Research:

Evaluating Incidence, Benefit and Burden, 170 ARCHIVES OF INTERNAL MEDICINE 1525-

32 (2010).

37. Susan M. Wolf, Rishi Gupta & Peter Kohlhepp, Gene Therapy Oversight: Lessons for

Nanobiotechnology, 37 JOURNAL OF LAW, MEDICINE & ETHICS 659-84 (2009).

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38. Jordan Paradise, Susan M. Wolf, Jennifer Kuzma, Aliya Kuzhabekova, Alison W.

Tisdale, Efrosini Kokkoli & Gurumurthy Ramachandran, Developing U.S. Oversight

Strategies for Nanobiotechnology: Learning from Past Oversight Experiences, 37

JOURNAL OF LAW, MEDICINE & ETHICS 688-705 (2009).

39. Jennifer Kuzma, Jordan Paradise, Gurumurthy Ramachandran, Jee-Ae Kim, Adam

Kokotovich & Susan M. Wolf, An Integrated Approach to Oversight Assessment for

Emerging Technologies, 28 RISK ANALYSIS 1197-220 (2008).

40. Susan M. Wolf, Confronting Physician-Assisted Suicide and Euthanasia: My Father’s

Death, 38(5) HASTINGS CENTER REPORT 23-26 (2008).

41. Susan M. Wolf, Neurolaw: The Big Question, 8(1) AMERICAN JOURNAL OF BIOETHICS,

AJOB NEUROSCIENCE 21-22 (2008).

42. Susan M. Wolf et al., Managing Incidental Findings in Human Subjects Research:

Analysis and Recommendations, 36 JOURNAL OF LAW, MEDICINE & ETHICS 219-48

(2008).

43. Susan M. Wolf, Jordan Paradise & Charlisse Caga-anan, The Law of Incidental Findings

in Human Subjects Research: Establishing Researchers’ Duties, 36 JOURNAL OF LAW,

MEDICINE & ETHICS 361-83 (2008).

44. Hassan Siddiki, J.G. Fletcher, Beth McFarland, Nora Dajani, Nicholas Orme, Barbara

Koenig, Marguerite Strobel & Susan M. Wolf, Incidental Findings in CT Colonography:

Literature Review and Survey of Current Research Practice, 36 JOURNAL OF LAW,

MEDICINE & ETHICS 320-31 (2008).

45. Jordan Paradise, Susan M. Wolf, Gurumurthy Ramachandran, Efrosini Kokkoli, Ralph

Hall & Jennifer Kuzma, Developing Oversight Frameworks for Nanobiotechnology, 9

MINNESOTA JOURNAL OF LAW, SCIENCE & TECHNOLOGY 399-415 (2008).

46. J. Illes…Susan M. Wolf et al., Practical Approaches to Incidental Findings in Brain

Imaging Research, 70 NEUROLOGY 384-90 (2008).

47. Susan M. Wolf & Jeffrey P. Kahn, with input from the Working Group on Genetic

Testing in Disability Insurance, Genetic Testing and the Future of Disability Insurance:

Ethics, Law & Policy, 35 JOURNAL OF LAW, MEDICINE & ETHICS 6-32 (2007).

48. J. Illes…Susan M. Wolf, and the Working Group on Incidental Findings in Brain Imaging

Research, Incidental Findings in Brain Imaging Research, 311 SCIENCE 783-84 (2006).

49. Susan M. Wolf, Doctor and Patient: An Unfinished Revolution, 6 YALE JOURNAL OF

HEALTH POLICY, LAW, AND ETHICS 485-500 (2006).

50. Susan M. Wolf, Assessing Physician Compliance with the Rules for Euthanasia and

Assisted Suicide, 165 ARCHIVES OF INTERNAL MEDICINE 1677-79 (2005).

51. Susan M. Wolf, Physician-Assisted Suicide, 21 CLINICS IN GERIATRIC MEDICINE 179-92

(Linda L. Emanuel ed., 2005).

52. Susan M. Wolf, Law & Bioethics: From Values to Violence, 32 JOURNAL OF LAW,

MEDICINE & ETHICS 293-306 (2004).

53. Ethics Committee of the American Society for Reproductive Medicine, Informing

Offspring of their Conception by Gamete Donation, 81 FERTILITY & STERILITY 527-31

(2004), Committee member.

54. Susan M. Wolf, Jeffrey P. Kahn & John E. Wagner, Using Preimplantation Genetic

Diagnosis to Create a Stem Cell Donor: Issues, Guidelines & Limits, 31 JOURNAL OF

LAW, MEDICINE & ETHICS 327-39 (2003). [Excerpted in: JANET L. DOLGIN & LOIS L.

SHEPHERD, BIOETHICS AND THE LAW (Aspen Publishers, 2d ed. 2009).]

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55. Susan M. Wolf & Thomas G. Horejsi, Should We Offer Predictive Tests for Fatal

Inherited Diseases and, If So, How?, in ETHICAL DILEMMAS IN NEUROLOGY 22-40 (Adam

Zeman & Linda L. Emanuel eds., W.B. Saunders, 2000).

56. Susan M. Wolf, Toward a Systemic Theory of Informed Consent in Managed Care, 35

HOUSTON LAW REVIEW 1631-81 (1999).

57. Susan M. Wolf, Advocating for Patients in Managed Care: Commentary, in ETHICAL

CHALLENGES IN MANAGED CARE: A CASEBOOK 219-26 (Karen Gervais et al. eds.,

Routledge, 1999).

58. Susan M. Wolf, Pragmatism in the Face of Death: The Role of Facts in the Assisted

Suicide Debate, 82 MINNESOTA LAW REVIEW 1063-1101 (1998).

59. Susan M. Wolf, Foreword: Facing Death, 82 MINNESOTA LAW REVIEW 885-93 (1998).

60. Susan M. Wolf, Erasing Difference: Race, Ethnicity, and Gender in Bioethics, in

EMBODYING BIOETHICS: RECENT FEMINIST ADVANCES 65-81 (Laura M. Purdy & Anne

Donchin eds., Rowman and Littlefield, 1999).

61. Susan M. Wolf, Facing Assisted Suicide and Euthanasia in Children and Adolescents, in

REGULATING HOW WE DIE: THE ETHICAL, MEDICAL, AND LEGAL ISSUES SURROUNDING

PHYSICIAN-ASSISTED SUICIDE 92-119, 274-94 (Linda L. Emanuel ed., Harvard University

Press, 1998).

62. Susan M. Wolf, Ban Cloning? Why NBAC is Wrong, HASTINGS CENTER REPORT, Sept.-

Oct. 1997, at 12-15.

63. Susan M. Wolf, Physician-Assisted Suicide, Abortion, and Treatment Refusal: Using

Gender to Analyze the Difference, in PHYSICIAN-ASSISTED SUICIDE 167-201 (Robert Weir

ed., Indiana University Press, 1997).

64. Susan M. Wolf, Physician-Assisted Suicide in the Context of Managed Care, 35

DUQUESNE LAW REVIEW 455-79 (1996).

65. Susan M. Wolf, Foreword: Bioethics – From Mirror to Window, 15 ST. LOUIS

UNIVERSITY PUBLIC LAW REVIEW 183-89 (1996).

66. Susan M. Wolf, Introduction: Gender and Feminism in Bioethics, in FEMINISM &

BIOETHICS: BEYOND REPRODUCTION 3-43 (Susan M. Wolf ed., Oxford University Press,

1996).

67. Susan M. Wolf, Gender, Feminism, and Death: Physician-Assisted Suicide and

Euthanasia, in FEMINISM & BIOETHICS: BEYOND REPRODUCTION 282-17 (Susan M. Wolf

ed., Oxford University Press, 1996). [Reprinted/excerpted in: APPLYING ETHICS: A TEXT

WITH READINGS, INTERNATIONAL EDITION (Julie C. Van Camp et al., eds., Wadsworth,

10th

ed. 2011); APPLIED ETHICS: A MULTICULTURAL APPROACH (Larry May et al., eds.,

Pearson Education, 5th

ed. 2010); CONTEMPORARY BIOETHICS: A READER WITH CASES

(Jessica Pierce & George Randels, eds., Oxford Univ. Press, 2009); BIOMEDICAL ETHICS:

A CANADIAN FOCUS (Johnna Fisher, ed., Oxford Univ. Press, 2009); BARRY R. FURROW

ET AL., HEALTH LAW: CASES, MATERIALS AND PROBLEMS (Thomson West, American

Casebook Series, 6th

ed. 2008; abridged 6th

ed. 2008; 5th

ed. 2004; 4th

ed. 2001; 3d ed.

1997); ANALYZING MORAL ISSUES (Judith A. Boss, ed., McGraw Hill, 3d ed. 2004; 2d ed.

2002); READINGS IN HEALTH CARE ETHICS (Elisabeth Airini Boetzkes, Wilfrid J.

Waluchow, eds., Broadview Press, 2000).]

68. Linda L. Emanuel for the Working Group on Accountability, Members:...Susan M.

Wolf..., A Professional Response to Demands for Accountability: Practical

Recommendations Regarding Ethical Aspects of Patient Care, 124 ANNALS OF INTERNAL

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MEDICINE 240-49 (1996).

69. Susan M. Wolf, Beyond “Genetic Discrimination:” Toward the Broader Harm of

Geneticism, 23 JOURNAL OF LAW, MEDICINE & ETHICS 345-53 (1995).

70. Susan M. Wolf, Iatrogenic Illness and Injury, in 3 ENCYCLOPEDIA OF BIOETHICS 1187-91

(Warren T. Reich ed., Macmillan Publishing Co., 2d ed., 1995).

71. Susan M. Wolf, Shifting Paradigms in Bioethics and Health Law: The Rise of a New

Pragmatism, 20 AMERICAN JOURNAL OF LAW & MEDICINE 395-415 (1994).

72. Susan M. Wolf, Quality Assessment of Ethics in Health Care: The Accountability

Revolution, 20 AMERICAN JOURNAL OF LAW & MEDICINE 105-28 (1994).

73. Susan M. Wolf, Health Care Reform and the Future of Physician Ethics, HASTINGS

CENTER REPORT, Mar.-Apr. 1994, at 28-41. [Excerpted in: JUDITH AREEN ET AL., LAW,

SCIENCE AND MEDICINE (Foundation Press, University Casebook Series, 2d ed. 1996).]

74. Susan M. Wolf, Toward a Theory of Process, 20 LAW, MEDICINE & HEALTH CARE 278-

90 (1993).

75. Susan M. Wolf, Beyond the Double Agent: Moving Toward an Ethics of Case

Management, in ETHICAL CONFLICTS IN THE MANAGEMENT OF HOME CARE: THE CASE

MANAGER'S DILEMMA 59-68 (Rosalie A. Kane & Arthur L. Caplan eds., Springer

Publishing Co., 1993).

76. Susan M. Wolf, Final Exit: The End of Argument, HASTINGS CENTER REPORT, Jan.-Feb.

1992, at 30-33.

77. Susan M. Wolf et al., Sources of Concern About the Patient Self-Determination Act, 325

NEW ENGLAND JOURNAL OF MEDICINE 1666-71 (1991).

78. Susan M. Wolf, Ethics Committees and Due Process: Nesting Rights in a Community of

Caring, 50 MARYLAND LAW REVIEW 798-858 (1991). [Excerpted in: BARRY R. FURROW

ET AL., HEALTH LAW: CASES, MATERIALS AND PROBLEMS (West Group, American

Casebook Series, 4th

ed. 2001; 3d ed. 1997).]

79. Susan M. Wolf, “Near Death” -- In the Moment of Decision, 322 NEW ENGLAND

JOURNAL OF MEDICINE 208-10 (1990).

80. Susan M. Wolf, Nancy Beth Cruzan: In No Voice At All, HASTINGS CENTER REPORT,

Jan.-Feb. 1990, at 38-41.

81. Susan M. Wolf, Holding the Line on Euthanasia, HASTINGS CENTER REPORT, Jan.-Feb.

1989, at 13-15.

82. Susan M. Wolf, Conflict Between Doctor and Patient, 16 LAW, MEDICINE & HEALTH

CARE 197-203 (1988).

83. Susan M. Wolf, Enforcing Surrogate Motherhood Agreements: The Trouble with Specific

Performance, 4 N.Y. LAW SCHOOL HUMAN RIGHTS ANNUAL 375-412 (1987).

84. Susan M. Wolf, Trying Not to Talk Forever: A Tool for Change, 15 LAW, MEDICINE &

HEALTH CARE 248-53 (1987/88).

85. Susan M. Wolf, Ethics Committees in the Courts, HASTINGS CENTER REPORT, June 1986,

at 12-15.

86. Mildred Z. Solomon...Susan M. Wolf et al., Decisions Near the End of Life: Professional

Views on Life-Sustaining Treatments, 83 AMERICAN JOURNAL OF PUBLIC HEALTH 14-23

(1993).

87. Mildred Z. Solomon...Susan M. Wolf et al., Toward an Expanded Vision of Clinical

Ethics Education: From the Individual to the Institution, 1 KENNEDY INSTITUTE OF

ETHICS JOURNAL 225-45 (1991).

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88. Bruce Jennings, Daniel Callahan & Susan M. Wolf, The Professions: Public Interest and

Common Good, HASTINGS CENTER REPORT, Feb. 1987, at 3-11.

89. Ronald Bayer, Carol Levine & Susan M. Wolf, HIV Antibody Screening: An Ethical

Framework for Evaluating Proposed Programs, 256 JOURNAL OF THE AMERICAN

MEDICAL ASSOCIATION (JAMA) 1768-74 (1986).

90. Morris B. Abram & Susan M. Wolf, Public Involvement in Medical Ethics, A Model for

Government Action, 310 NEW ENGLAND JOURNAL OF MEDICINE 627-32 (1984).

IV. Other Articles 91. Susan M. Wolf, Return of Research Results: What About the Family?, JOURNAL OF LAW,

MEDICINE & ETHICS (forthcoming Fall 2015).

92. Susan M. Wolf, The New World of Genomic Testing, Families and Privacy, MINNESOTA

MEDICINE, June 2015, at 32-34.

93. Susan M. Wolf, What Adrienne Knew: Living Bioethics, HASTINGS CENTER REPORT,

Mar.-Apr. 2014, at 17-19.

94. Susan M. Wolf, The Challenge of Nanomedicine Human Subjects Research: Protecting

Participants, Workers, Bystanders, and the Environment, 40 JOURNAL OF LAW, MEDICINE

& ETHICS 712-15 (2012).

95. Leili Fatehi, Susan M. Wolf, Gurumurthy Ramachandran & Jennifer Kuzma,

Introduction: Designing Nanobiotechnology Oversight, 13 JOURNAL OF NANOPARTICLE

RESEARCH 1341-43 (2011).

96. Susan M. Wolf, Introduction: MJLST at 5 Years, the Consortium at 10, 11(1)

MINNESOTA JOURNAL OF LAW, SCIENCE & TECHNOLOGY 1-5 (2010).

97. Jordan Paradise, Susan M. Wolf, Jennifer Kuzma, Gurumurthy Ramachandran & Efrosini

Kokkoli, Introduction: The Challenge of Developing Oversight Approaches to

Nanobiotechnology, 37 JOURNAL OF LAW, MEDICINE & ETHICS 543-45 (2009).

98. Susan M. Wolf, Introduction: The Challenge of Incidental Findings, 36 JOURNAL OF

LAW, MEDICINE & ETHICS 216-18 (2008).

99. Jordan Paradise & Susan M. Wolf, Risks Posed By New Biomedical Technologies: How

Do We Analyze, Communicate and Regulate Risk?, LAHEY CLINIC MEDICAL ETHICS, Fall

2006, at 5-8.

100. Susan M. Wolf, Euthanasia, in THE WORLD BOOK ENCYCLOPEDIA (World Book, Inc.,

2008 ed.).

101. Susan M. Wolf, Living Will, in THE WORLD BOOK ENCYCLOPEDIA (World Book, Inc.,

2007 ed.).

102. Susan M. Wolf, Introduction: Debating the Use of Racial and Ethnic Categories in

Research, 34 JOURNAL OF LAW, MEDICINE & ETHICS 483-86 (2006).

103. Susan M. Wolf, Are We Making Progress in the Debate Over Racial and Ethnic

Categories in Biomedical Research?, 37 NATURE GENETICS 789-90 (2005).

104. Susan M. Wolf & Jeffrey P. Kahn, Bioethics Matures: The Field Faces the Future,

HASTINGS CENTER REPORT, July-Aug. 2005, at 6-8.

105. Susan M. Wolf, Death and Dying in America: Schiavo’s Implications, MINNESOTA

MEDICINE, June 2005, at 34-35.

106. Susan M. Wolf, The Minnesota Journal of Law, Science & Technology: A New Kind of

Interdisciplinarity, 6 MINNESOTA JOURNAL OF LAW, SCIENCE & TECHNOLOGY i-vi (2004).

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107. Susan M. Wolf, Discrimination Against the Infertile: The Supreme Court Speaks,

MINNESOTA MEDICINE, Oct. 1998, at 49-52.

108. Susan M. Wolf, Should There Be an Age Limit for Recipients of Donor Oocytes? No,

OB/GYN NEWS, Aug. 15, 1997, at 12.

109. Susan M. Wolf, The Ethical Challenge of Managed Care: A Critique of the AMA's

Stance, MINNESOTA MEDICINE, June 1996, at 29-32.

110. Susan M. Wolf, Constitutional Controversy over Physician-Assisted Suicide and

Euthanasia, CENTER FOR BIOMEDICAL ETHICS NEWSLETTER (University of Minnesota),

Summer 1995, at 1-2.

111. Susan M. Wolf, Discussion: Euthanasia and the Care of Dying Patients (W. Bradford

Patterson and Ezekiel J. Emanuel eds.), 7 JOURNAL OF CLINICAL ONCOLOGY 1516-21

(1994).

112. Susan M. Wolf, Dreams, HASTINGS CENTER REPORT, July-Aug. 1992, At the Center.

113. Susan M. Wolf, Due Process in Ethics Committee Case Review, 4 HEC FORUM 83-96

(1992).

114. Susan M. Wolf, Honoring Broader Directives, HASTINGS CENTER REPORT, Sept.-Oct.

1991, at 58-59.

115. Susan M. Wolf, After Cruzan: Preserving the Right to Refuse Unwanted Treatment, 15

AMERICAN ACADEMY OF PSYCHIATRY AND THE LAW NEWSLETTER 82-84 (1990).

116. Susan M. Wolf, La Promulgazione di Norme Giuridiche per Regolamentare le

Tecnologie Riproduttive (The Creation of Legal Standards to Govern Reproductive

Technologies), in SCIENZA ED ETICA NELLA CENTRALITA DELL'UOMO 244-47 (Paolo

Cattorini ed., FrancoAngeli, 1990).

117. Susan M. Wolf, On the Road, HASTINGS CENTER REPORT, Nov.-Dec. 1989, At the

Center.

118. Susan M. Wolf, “Maybe Together...:” A Lawyer Among Allies, HASTINGS CENTER

REPORT, Mar.-Apr. 1989, At the Center.

119. Susan M. Wolf, The Evolution of the Right to Refuse Treatment, 1 DECISIONS NEAR THE

END OF LIFE 10 (Newton, MA: Education Development Center, 1989).

120. Susan M. Wolf, When Doctors Dissent: The Limits of Objection and Withdrawal, 2

DECISIONS NEAR THE END OF LIFE 20 (Newton, MA: Education Development Center,

1989).

121. Susan M. Wolf, The Law, Too, Urges Planning, 3 DECISIONS NEAR THE END OF LIFE 22

(Newton, MA: Education Development Center, 1989).

122. Susan M. Wolf, For Lack of a Crystal Ball and a Second Self: The Real World of

Surrogate Decisions, 5 DECISIONS NEAR THE END OF LIFE 18 (Newton, MA: Education

Development Center, 1989).

123. Susan M. Wolf, Trying to Work it Out, 6 DECISIONS NEAR THE END OF LIFE 6 (Newton,

MA: Education Development Center, 1989).

124. Susan M. Wolf, The Persistent Problem of PVS, HASTINGS CENTER REPORT, Mar. 1988,

at 26.

125. Susan M. Wolf, Whose Decision? The Case of Roy Gantos -- Commentary, in CASEBOOK

ON THE TERMINATION OF LIFE-SUSTAINING TREATMENT AND THE CARE OF THE DYING 4-7

(Cynthia B. Cohen ed., Indiana University Press & The Hastings Center, 1988).

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126. Susan M. Wolf, Life Versus Religious Liberty: The Case of Jamal Burke -- Commentary,

in CASEBOOK ON THE TERMINATION OF LIFE-SUSTAINING TREATMENT AND THE CARE OF

THE DYING 52-54 (Cynthia B. Cohen ed., Indiana University Press & The Hastings

Center, 1988).

127. Susan M. Wolf & Strachan Donnelley, Doing Ethics in Italy, HASTINGS CENTER REPORT,

Aug.-Sept. 1988, at 132.

128. Susan M. Wolf, Reaching Judges, HASTINGS CENTER REPORT, June 1987, At the Center.

V. Abstracts, Book Reviews & Letters 129. Carmen Radecki Breitkopf, Gloria Petersen, Susan M. Wolf, Kari Rabe, Marguerite

Robinson, Laney Lindor & Barbara Koenig, Abstract, Should return of genomic

“incidental findings” include family members of deceased research participants? Survey

findings from a cancer biobank, American Society of Bioethics & Humanities (ASBH)

Annual Meeting (2014).

130. Carmen Radecki Breitkopf, Barbara Koenig, Susan M. Wolf, Marguerite Robinson, Kari

Rabe, Noralane Lindor & Gloria Petersen, Abstract, Should return of genomic incidental

findings include family members of deceased research participants?, American Society

of Human Genetics (ASHG) Annual Meeting (2014)

131. Susan M. Wolf, Return of Results in Genomic Biobank Research: Ethics Matters, 15

GENETICS IN MEDICINE 157-59 (2013), Letter.

132. Rebecca Boxhorn & Susan M. Wolf, Abstract, International Governance Approaches to

Whole Genome Sequencing: Who Governs Return of Results & Incidental Findings,

Conference on Governance of Emerging Technologies: Law, Ethics & Policy, Arizona

State University (2013).

133. Barbara A. Koenig, Gloria Petersen & Susan M. Wolf, Abstract, Return of Actionable

Results to Kin in a Pancreatic Cancer Biorepository: Views of Probands and Family

Members, American Society of Human Genetics Annual Meeting (2012).

134. Brian Van Ness, Susan M. Wolf et al., Abstract, Managing Individual Research Results

of Health Importance, 4th

National Conference on Genomics and Public Health (2010).

135. Jennifer Kuzma, Jordan Paradise, Jee-Ae Kim, Adam Kokotovich, Gurumurthy

Ramachandran & Susan M. Wolf, An Integrated Approach to Oversight for Emerging

Technologies, Gordon Conference on New Frontiers in Science and Technology Policy

(2008).

136. Susan M. Wolf, Book Review of BIOETHICS IN LAW by Bethany Spielman, 357 NEW

ENGLAND JOURNAL OF MEDICINE 426-27 (2007).

137. Susan M. Wolf, Jeffrey P. Kahn, Frances Lawrenz & Charles A. Nelson, The

Incidentalome, 296 JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION (JAMA) 2800-

01 (2006), Letter.

138. John E. Wagner, Jeffrey P. Kahn, Susan M. Wolf & Jeffrey M. Lipton, Preimplantation

Testing to Produce an HLA-Matched Donor Infant, 292 JOURNAL OF THE AMERICAN

MEDICAL ASSOCIATION (JAMA) 803-04 (2004), Letter.

139. Susan M. Wolf, Creating Embryos for Research, NEW YORK TIMES, June 2, 2002, Letter.

140. Susan M. Wolf, Negative Outcomes of Infant Home Apnea Monitoring, 286 JOURNAL OF

THE AMERICAN MEDICAL ASSOCIATION (JAMA) 304 (2001), Letter.

141. Susan M. Wolf, Book Review of F.M. Kamm, Creation and Abortion: A Study in Moral

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and Legal Philosophy, 10 CONSTITUTIONAL COMMENTARY 502-9 (1993).

142. Susan M. Wolf, A Right to Exit?, HASTINGS CENTER REPORT, Nov.-Dec. 1992, at 45,

Reply to Letters.

143. Susan M. Wolf, Book Review of Surrogate Motherhood: Politics and Privacy (Larry

Gostin ed.), 102 ETHICS 671-72 (1992).

144. Susan M. Wolf et al., The Patient Self-Determination Act, 326 NEW ENGLAND JOURNAL

OF MEDICINE 1502-3 (1992), Reply to Letters.

145. Susan M. Wolf, Decision-Making in “Near Death,” 322 NEW ENGLAND JOURNAL OF

MEDICINE 1606 (1990), Reply to Letters.

146. Susan M. Wolf, The Health Care Needs of Homeless and Runaway Youths, 263 JOURNAL

OF THE AMERICAN MEDICAL ASSOCIATION (JAMA) 811 (1990), Letter.

147. Susan M. Wolf, The Right to Die, 109 ANNALS OF INTERNAL MEDICINE 79 (1988), Letter.

148. Ronald Bayer, Carol Levine & Susan M. Wolf, Mandatory Screening for HIV Antibody,

257 JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION (JAMA) 625 (1987), Reply to

Letter.

149. Morris B. Abram & Susan M. Wolf, Public Involvement in Medical Ethics, 311 NEW

ENGLAND JOURNAL OF MEDICINE 264 (1984), Reply to Letters.

VI. Newspaper Commentary 150. Susan M. Wolf, What To Do About Too Much Medical Information?, MINNEAPOLIS STAR

TRIBUNE, Dec. 13, 2013, Commentary.

151. Susan M. Wolf, Let’s Talk About Science, MINNEAPOLIS STAR TRIBUNE, Jan. 26, 2009,

Commentary.

152. Susan M. Wolf, Court Ruling Doesn’t Answer Assisted Suicide Questions, ST. PAUL

PIONEER PRESS, Jan. 29, 2006, Op-ed.

153. Susan M. Wolf, What “Million Dollar Baby” Says About Disability and Death, ST. PAUL

PIONEER PRESS, Feb. 13, 2005, Op-ed.

154. Susan M. Wolf, Supreme Court Decision Rightly Forces More Talk About Life's End,

MINNEAPOLIS STAR TRIBUNE, July 6, 1997, Op-ed.

155. Susan M. Wolf, Why the Bioethics Commission Is Wrong to Seek a Ban on Cloning,

MINNEAPOLIS STAR TRIBUNE, June 19, 1997, Commentary.

156. Susan M. Wolf, Key to Clinton Health Plan Is Choice that Works at Every Level,

MINNEAPOLIS STAR TRIBUNE, Oct. 27, 1993, Commentary.

157. Susan M. Wolf, More Women Doctors Will Make Doctors' Lives More Human,

NEWSDAY, Feb. 16, 1990, Op-Ed.

158. Susan M. Wolf, Progress on Three Fronts, NEW JERSEY LAW JOURNAL, July 16, 1987, at

23.

159. Susan M. Wolf, Humane Rules on Surrogate Motherhood, MORRISTOWN DAILY RECORD,

Jan. 25, 1987, Op-Ed.

160. Susan M. Wolf, New York Avoids Dealing With Death, NEW YORK TIMES, Nov. 30, 1985,

Op-Ed.

161. Jennifer Trahan & Susan M. Wolf, Rights of State and Family Clash in Forced-

Immunization Cases, NATIONAL LAW JOURNAL, May 13, 1991, at 28.

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VII. Testimony and Published Transcript 162. Susan M. Wolf, Returning Incidental Findings & Research Results in Genetic & Imaging

Research: A Fundamental Challenge to Law & Bioethics, Testimony before the

Presidential Commission for the Study of Bioethical Issues, Feb. 28, 2011.

163. Susan M. Wolf, Broadening the Bioethics Agenda, in The Role of Bioethics in Health

Care Policy: Transcript Proceedings, Center for Biomedical Ethics, University of

Minnesota, 1995, at 41-43.

164. Susan M. Wolf, The Obstacles to Ethical Decisions in Medicine: The Case of Life-

Sustaining Treatment, Testimony before the U.S. Congress, Joint Economic Committee,

Subcommittee on Education and Health, June 21, 1988.

165. Susan M. Wolf, Testimony on AIDS and the Care of the Dying, Presidential Commission

on the HIV Epidemic, Mar. 17, 1988.

166. Susan M. Wolf, Testimony on Surrogate Motherhood, New York State Senate, Child

Care Committee, Apr. 10, 1987.

VIII. Other 167. Susan M. Wolf, Consent in Whole Genome Sequencing: The Debate Over

Return of Results & Incidental Findings, Genetic Alliance Webinar Series: What About

Privacy and Progress in Whole Genome Sequencing? (June 2013), available at

geneticalliance.org/webinars.privacy.

168. Susan M. Wolf & Elizabeth Stuva, Model “Women’s Infertility Act” (Feb. 2003).

169. Susan M. Wolf & Stacy Hauer, Selected and Annotated Bibliography on Public Health

Responses to Bioterrorism (Consortium on Law and Values in Health, Environment &

the Life Sciences, Dec. 2001).

170. Susan M. Wolf, The Termination of Life-Sustaining Treatment and the Care of the

Dying, The Hastings Center Audiotapes on Bioethics, 1993.

SELECTED CONFERENCES ORGANIZED (many archived at consortium.umn.edu/newsevents/conferences/home.html)

“Research with Human Participants: The National Debates” Consortium on Law and Values, sponsored by University of Minnesota Office of Vice

President for Research, Dec. 2015 (with faculty planning committee)

“Should We Offer Genomic Research Results to a Participant’s Family, Including After

the Participant’s Death?” Consortium on Law and Values, sponsored by National Institutes of Health (NIH),

National Cancer Institute (NCI) and National Human Genome Research Institute

(NHGRI) grant #1-R01-CA154517, University of Minnesota, 2014 (with Profs. Gloria

Petersen (Mayo Clinic), Barbara Koenig (UCSF))—symposium to be published in

JOURNAL OF LAW, MEDICINE & ETHICS (Fall 2015)

“Returning Genetic Results in Biobanks: Opening an International Dialogue”

Invitational workshop at the Brocher Centre in Switzerland, funded by the Brocher

Foundation, an administrative supplement from the National Human Genome Research

Institute (NHGRI) to NIH/NHGRI/NCI grant #1-R01-CA154517, the Wellcome Trust

(U.K.), and the Swiss Academy of Medical Sciences, 2013 (with Prof. Barbara Koenig

(UCSF), Prof. Jane Kaye (Univ. of Oxford), Dr. Bernice Elger (Univ. of Basel)

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“Revamping the Law & Policy of Reproductive Technologies: Children First?”

Invitational workshop co-sponsored by the University of Minnesota Law School Robina

LaPPS Fund and the University’s Center for Bioethics, 2013

“Nanodiagnostics and Nanotherapeutics: Building Research Ethics & Oversight,”

Consortium on Law and Values, sponsored by National Institutes of Health (NIH),

National Human Genome Research Institute (NHGRI) grant #1-RC1-HG005338,

University of Minnesota, 2011 (with Profs. Jeffrey McCullough, Jeffrey Kahn, Ralph

Hall, Leili Fatehi)—symposium published in 40 JOURNAL OF LAW, MEDICINE & ETHICS

712-864 (2012)

“Managing Incidental Findings and Return of Research Results in Genomic Biobanks &

Archives,” Consortium on Law and Values, sponsored by National Institutes of Health

(NIH), National Human Genome Research Institute (NHGRI) grant #2-R01-HG003178,

Bethesda, MD, 2011 (with Profs. Brian Van Ness, Frances Lawrenz, Jeffrey Kahn)—

symposia published in 14(4) GENETICS IN MEDICINE 355-496 (2012) and 13(2)

MINNESOTA JOURNAL OF LAW, SCIENCE & TECHNOLOGY 435-736 (2012)

“Governing Nanobiotechnology: Reinventing Oversight in the 21st Century,” Consortium on

Law and Values, sponsored in part by National Science Foundation (NSF) grant #SES-

0608791, University of Minnesota, 2010 (with Profs. Ralph Hall, Efrosini Kokkoli,

Jennifer Kuzma, Jordan Paradise, Gurumurthy Ramachandran)—symposium published in

13(4) JOURNAL OF NANOPARTICLE RESEARCH 1341-556 (2011)

“What’s Next in Law, Health & the Life Sciences? Debating Openness, Access &

Accountability,” Consortium on Law and Values, University of Minnesota, sponsored in

part by a grant from the Robina Fund, University of Minnesota Law School, 2009 (with

Consortium Executive Committee)—selected articles published in 11(1) MINNESOTA

JOURNAL OF LAW, SCIENCE & TECHNOLOGY (2010)

“Emerging Problems in Neurogenomics: Ethical, Legal & Policy Issues at the Intersection

of Genomics & Neuroscience,” Consortium on Law and Values, Institute for

Translational Neuroscience, and Academic Health Center, sponsored in part by a grant

from The Greenwall Foundation, University of Minnesota, 2008 (with Prof. Harry Orr &

Jordan Paradise)—article by Illes & Lombera published in 10 MINNESOTA JOURNAL OF

LAW, SCIENCE & TECHNOLOGY 71-94 (2009)

“Managing Incidental Findings in Human Subjects Research: From Imaging to Genomics”

Consortium on Law and Values, sponsored in part by National Human Genome Research

Institute, National Institutes of Health (NIH) grant #1-R01-HG003178-01A1, University

of Minnesota, 2007 (with Prof. Jeffrey Kahn, Prof. Charles Nelson, Prof. Frances

Lawrenz, Jordan Paradise et al.)—symposium published in 36 JOURNAL OF LAW,

MEDICINE & ETHICS 216-383 (2008)

“Creating Stem Cells by Research Cloning: Scientific, Ethical, Legal & Policy Challenges,”

Consortium on Law and Values, Joint Degree Program, Academic Health Center, and

Stem Cell Institute, University of Minnesota, 2007 (with Prof. Dan Kaufman, Prof. Meri

Firpo, Prof. Jeffrey Kahn, Jordan Paradise et al.)—symposium published in 9

MINNESOTA JOURNAL OF LAW, SCIENCE & TECHNOLOGY 125-256 (2008)

“Terrorist Threats to our Food Supply: Food Protection and Defense--Science, Ethics &

Law,” Consortium on Law and Values, Joint Degree Program, National Center for Food

Protection and Defense, Center for Animal Health & Food Safety, and Center for

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Infectious Disease Research & Policy, University of Minnesota, 2006 (with Prof. Frank

Busta, Sean Kennedy, Julie Ostrowsky et al.)--symposium published in 8 MINNESOTA

JOURNAL OF LAW, SCIENCE & TECHNOLOGY 175-247 (2007)

“Understanding, Communicating, and Regulating the Risks Posed by New Biomedical

Technologies,” Consortium on Law and Values and Joint Degree Program, University of

Minnesota, 2006 (with Jordan Paradise)—summary article published in LAHEY CLINIC

MEDICAL ETHICS, Fall 2006, at 5-8

“Proposals for the Responsible Use of Racial & Ethnic Categories in Biomedical

Research,” Consortium on Law and Values and Center for Bioethics, University of

Minnesota, 2005 (with Prof. Jeffrey Kahn)--symposium published in 34 JOURNAL OF

LAW, MEDICINE & ETHICS 483-558 (2006); summary article published in 37 NATURE

GENETICS 789-90 (2005)

“Where Are Law, Ethics & the Life Sciences Headed? Frontier Issues,” Consortium on Law

and Values, University of Minnesota, 2005 (with Prof. Jim Chen)--selected articles

published in 6 & 7 MINNESOTA JOURNAL OF LAW, SCIENCE & TECHNOLOGY

“The Future of the Field of Bioethics,” Center for Bioethics and Consortium on Law and

Values, University of Minnesota, 2005 (with Prof. Jeffrey Kahn)--summary article

published in HASTINGS CENTER REPORT, July-Aug. 2005, at 6-8

“Intellectual Property Rights for the Public Good: Obligations of U.S. Universities to

Developing Countries,” Center for Microbial and Plant Genomics and Consortium on

Law and Values, University of Minnesota, 2004 (with Prof. Ronald Phillips et al.)--

symposium published in 6 MINNESOTA JOURNAL OF LAW, SCIENCE & TECHNOLOGY 177-

371 (2004)

“Environmental Threats to Children’s Health: Legal and Policy Challenges,” Consortium

on Law and Values, University of Minnesota, 2004 (with Prof. Jim Chen)--article

published in 7 MINNESOTA JOURNAL OF LAW, SCIENCE & TECHNOLOGY 147-60 (2005)

“Genetic Testing and the Future of Disability Insurance: Ethics, Law & Policy,” Center for

Bioethics and Joint Degree Program, University of Minnesota, 2003 (with Prof. Jeffrey

Kahn)--symposium published in 35 JOURNAL OF LAW, MEDICINE & ETHICS 5-89 (2007)

“The Limits of Personal Privacy: Biomedical Information in Public Health, Population

Genomics, and Mass Disasters,” Consortium on Law and Values, University of

Minnesota, 2003 (with Prof. Jeffrey Kahn et al.)

“Revamping the Law on Assisted Reproduction: From IVF to Surrogate Motherhood,” Consortium on Law and Values, University of Minnesota, 2003 (with Prof. Jeffrey Kahn

et al.)

“The Law and Ethics of Public Health Responses to Bioterrorism,” Consortium on Law and

Values, University of Minnesota, 2002 (with Prof. Michael Osterholm)

“Pharmacogenomics: The Legal, Ethical, and Clinical Challenges,” Consortium on Law and

Values, University of Minnesota, 2002 (with Prof. Jeffrey Kahn)

“Governing GMOs: Developing Policy in the Face of Scientific & Public Debate,” Consortium on Law and Values, University of Minnesota, 2001 (with Prof. Ron Phillips)

“Patenting Life: Genes, Private Property & Public Policy,” Joint Degree Program, University

of Minnesota, 2000

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SELECTED LECTURES AND APPEARANCES (named lectures indicated in bold)

I. International Wellcome Trust Sanger Institute (Hinxton, England), on return of results & incidental findings

International Society for Biological and Environmental Repositories (ISBER) (Washington, DC),

on return of research results and incidental findings

Israeli Ministry of Health and E-Rare, the European Research Area Network for Research on

Rare Diseases (Tel Aviv, Israel), on return of research results and incidental findings

First International Conference on Bioethics and Biolaw (Copenhagen, Denmark), on law and

biomedical technologies

The Second Raymond and Beverly Sackler U.S.A.-U.K. Scientific Forum: Neuroscience and the

Law, sponsored by The National Academy of Sciences and The Royal Society (Irvine,

CA), on neuroscience in criminal law decisions

Bulgarian Medical Academy, Institute of Social Medicine (Sofia, Bulgaria), on law and medicine

Ian Ramsey Centre/Hastings Center Consultation (Windsor Castle, England), on end-of-life care

Instituto Scientifico H San Raffaele, International Colloquium on Science and Ethics (Milan,

Italy), on law and reproduction

International Workshop on Ethics and Bioethical Problems in Contemporary Society (Siena,

Italy), on the termination of treatment

“Bioethics and the Health Professions” Conference (Lake Louise, Canada), on “Nutrition,

Hydration, and Antibiotics”

East-West Conference on Bioethics (Pecs, Hungary), on termination of treatment

Westminster Institute (London, Ontario, Canada), on physician-assisted suicide

AIDS & Ethics: First International Conference (San Francisco, CA), on protections for

hospitalized persons with AIDS

III World Congress of Bioethics (San Francisco, CA), on race and gender in bioethics

II. United States Presidential Commission for the Study of Bioethical Issues (Washington, DC), on incidental

findings and return of research results

Smithsonian Institution (Washington, DC), on “Is Genetic Information Different?”

NIH (Bethesda, MD), Workshop on Scientific and Ethical Issues Related to Open Access HeLa

Genomic Data

NIH/NHGRI (Bethesda, MD), eMERGE workshop & Steering Committee meeting, on return of

results and incidental findings

NIH/NHGRI (Potomac, MD), CSER ELSI meeting, on international approaches to return of

results and incidental findings

NIH/NHLBI (Bethesda, MD), on managing incidental findings in research

NIH/NIAID (Bethesda, MD), on return of results and incidental findings

NIH Clinical Center (Bethesda, MD), on managing incidental findings in research

2010 Biology of Genomes Meeting, Cold Spring Harbor Laboratory (Long Island, NY), on

return of research results

2011 ELSI Congress, sponsored by NIH/NHGRI, University of North Carolina (Chapel Hill,

NC), on managing incidental findings and return of research results

Institute of Medicine (Washington, DC), on ACMG recommendations on incidental findings

Institute of Medicine (Newport Beach, CA), on managing incidental findings in research

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Institute of Medicine (Washington, DC), on termination of treatment

National Academies (Washington, DC), Workshop on Guidelines for Returning Individual

Results from Genome Research Using Population-Based Banked Specimens

Harvard Law School (Cambridge, MA), on managing incidental findings in research

Harvard Medical School (Boston, MA), on termination of treatment

Harvard Medical School, Division of Medical Ethics (Boston, MA), on euthanasia

Harvard Medical School, Division of Medical Ethics (Boston, MA), on law and medicine

Harvard Medical School, Division on Aging (Boston, MA), on medical futility

Johns Hopkins Medical School (Baltimore, MD), David Barap Brin Lecture on

preimplantation genetic diagnosis

Stanford Medical School (Stanford, CA), Jonathan J. King Lecture on end-of-life treatment

Stanford Law School (Stanford, CA), on return of results and incidental findings

Princeton University (Princeton, NJ), Maclean Lecture on termination of treatment

Princeton University (Princeton, NJ), on physician-assisted suicide

Yale Law School (New Haven, CT), on the doctor-patient relationship

Yale Law School (New Haven, CT), on managing incidental findings in research

Columbia Law School (New York, NY), on physician-assisted suicide

New York University School of Law (New York, NY), on surrogate motherhood

University of Texas School of Law (Austin, TX), on euthanasia

University of Texas School of Law (Austin, TX), on managing incidental findings in research

Indiana University (Indianapolis, IN), McDonald-Merrill-Ketcham Memorial Lecture on

return of results and the challenge of translational science

Boston College Law School (Newton, MA), on termination of treatment

University of Maryland School of Law (Baltimore, MD), on ethics committees & due process

Boston University School of Public Health (Boston, MA), on killing versus letting die

Boston University School of Public Health (Boston, MA), on incidental findings in research

University of California, San Francisco (San Francisco, CA), on euthanasia

University of Virginia (Charlottesville, VA), on return of results and incidental findings

Ohio State University (Columbus, OH), on return of results and incidental findings

New York Academy of Medicine (New York, NY), Lilianna Sauter Lecture on reprogenetics

New York Academy of Medicine (New York, NY), on euthanasia

Kennedy Institute, Georgetown University (Washington, DC), on death and dying

American College of Medical Genetics and Genomics (ACMG) Annual Meeting (Nashville,

TN), on managing incidental findings in clinical genomic sequencing

Association of American Law Schools (AALS) Annual Meeting (New York, NY), on biosecurity

Association of American Law Schools (AALS) Annual Meeting (Washington, DC), on Cruzan

Association of American Law Schools (AALS) Annual Meeting (Washington, DC), on

physician-assisted suicide

National Judicial College (Reno, NV), faculty member, symposium on bioethics & the judiciary

Institute of Judicial Administration, Appellate Judges Seminar (New York, NY), on bioethics

State of New York Judicial Seminar (Rochester, NY), on surrogate motherhood

Association of the Bar of the City of New York (New York, NY), on physician-assisted suicide

American Society for Bioethics & Humanities (ASBH) annual meetings, on multiple topics

Society for Health & Human Values and Society for Bioethics Consultation (Cleveland, OH), on

feminism and bioethics

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American Public Health Association (Washington, DC), on feminism and bioethics

American Association for Cancer Research (AACR) (Chicago, IL), on genomic research ethics

National Health Policy Forum (Washington, DC), on termination of treatment

American Nurses' Association, Second National Institute on Nursing Ethics (Chicago, IL), on

termination of treatment

American Society of Law & Medicine (Boston, MA), on euthanasia

American Society of Law, Medicine & Ethics (ASLME) (Cambridge, MA), on managed care

PRIM&R (Public Responsibility in Medicine & Research) (San Diego, CA), on return of results

and incidental findings

Group Health Association of America, Annual Medical Directors Conference (Washington, DC),

on termination of treatment

Cambridge Hospital (Cambridge, MA), Fraiman Lecture on termination of treatment

Dana-Farber Cancer Institute (Boston, MA), on euthanasia

Children's Hospital (Boston, MA), on ethics committees

Memorial Sloan-Kettering Cancer Center (New York, NY), on termination of treatment

Mayo Clinic (Rochester, MN), on return of results and incidental findings

Kaiser Permanente Intensive Seminar in Bioethics (Costa Mesa, CA), on end-of-life care

New York Public Library, Celeste Bartos Forum (New York, NY), on ethics in medicine

III. Selected Media Appearances Face the Nation, CBS

Nightline, ABC

McNeil/Lehrer Newshour, PBS

Today, NBC

Nightwatch, CBS

National Public Radio (NPR), including “Science Friday”

Minnesota Public Radio (MPR), multiple topics

MEMBERSHIPS National Academy of Medicine (was Institute of Medicine) (elected Member, 2009)

American Association for the Advancement of Science (AAAS) (elected Fellow, 2008)

American Law Institute (ALI) (elected Member, 2014)

American Society for Bioethics & Humanities (ASBH) (elected to Board of Directors, 2001-04)

American Society of Law, Medicine & Ethics (ASLME)

Association of Bioethics Program Directors (ABPD)

American Society of Human Genetics (ASHG)

American Bar Association (ABA)