Regional Challenges & Opportunities

White House Office of National AIDS Policy Meeting on HIV in the Southern United StatesJen Kates, PhD

June 18, 2014

Vice President; Director, Global Health & HIV PolicyKaiser Family Foundationjkates@kff.orghttp://kff.org/hivaids

Figure 2

SOURCE: United States Census Bureau. http://www.census.gov/geo/maps-data/maps/pdfs/reference/us_regdiv.pdf

Census Regions and Divisions of the United States

WI SD

OH

ND

NE

MO

MN

MI

KS

IA IN IL

WY

WA

UT

OR

NM

NV

MT

ID

HI

CO CA

AZ

AK

VT

RI PA

NY

NJ

NHMA

ME

CT

WV VA

TX

TN SC OK

NC

MS

MD

LA

KY

GA

FL

DC

DE

AR AL

South (17 states, including DC)

West(13 states)

Midwest(12 states)

Northeast(9 states)

Figure 3

Leading role

The Southern Region of the United States: Broader Considerations & Context Beyond HIV

Major role, but not leading

100%

82%

• The southern region represents more than a third (37%) of the U.S. population:– Largest share of any census region– Its population is growing rapidly– Its population is racially/ethnically diverse

• The South has faced longstanding disparities in health coverage, health status, and health care. Relative to the rest of the United States, Southerners are:– More likely to be poor– More likely to be uninsured– Less likely to have access to needed health services (e.g., no usual

source of care, postponing care due to cost)– More likely to report poor health and experience a number of chronic

health conditions– More likely to live in areas with a shortage of primary care providers

SOURCE: Stephens J, Artiga S, Paradise J, Health Coverage and Care in the South in 2014 and Beyond, Kaiser Family Foundation, April 2014.

Figure 4

Figure 5

CONSUMER PROTECTIONS

HEALTH CARE MARKETPLACES IN EVERY STATE

BENEFITS STANDARDS, INCLUDING PREVENTION

Key ACA Provisions for People with HIV

MEDICAID EXPANSION

Figure 6

Most Southern States (11 of 17) are Not Implementing Medicaid Expansion in 2014

WV VA

TX

TN SC OK

NC

MS

MD

LA

KY

GA

FL

DC

DE

AR

AL

Implementing Expansion (6 states, including DC)

Not Expanding (11 States)

NOTES: Eligibility as of January 2014 and Medicaid expansion data as of March 26, 2014..SOURCES: States implementing in 2014 and not moving forward at this time are based on data from CMS here.

36% PLWHALive in the 11

Southern States Not Expanding

In These 11 States, There is

no Medicaid Coverage of

Childless Adults, Regardless of

Income

Figure 7

TX FL LA GA AR OK NC SC MS WV KY AL TN VA MD DE DC

27%25%

22% 22% 21%20% 20% 19%

18% 17% 17%16% 16% 15% 15%

12%

9%

NOTE: Uninsured rates among nonelderly southerners, 2011-2012.SOURCE: KCMU/Urban Institute analysis of 2013 and 2012 ASEC Supplements to the CPS.

Uninsured Rates in the South Vary by State; Half Had Rates at or Above the U.S. Average (Pre-2014)

United States: 18%The South: 21%

Figure 8

TX FL LA GA AR OK NC SC MS WV KY AL TN VA MD DE DC

27%25%

22% 22% 21%20% 20% 19%

18% 17% 17%16% 16% 15% 15%

12%

9%

ExpandingNot Expanding

NOTE: Uninsured rates among nonelderly southerners, 2011-2012.SOURCE: KCMU/Urban Institute analysis of 2013 and 2012 ASEC Supplements to the CPS; States implementing in 2014 and not moving forward at this time are based on data from CMS here.

And, Most Southern States Not Expanding Medicaid Have Higher than Average Uninsured Rates

Figure 9

<100% FPL51%

100-138% FPL16%

139-399% FPL29%

400% FPL+4%

FPL=Federal Poverty Level. The FPL in 2009 was $10,830 for an individual. NOTES: May not total 100% due to rounding. Non-elderly people with HIV in care, 2009. N = 69,720.SOURCE: Kates J, Garfield R, Young K, Quinn K, Frazier E, Skarbinski J, Assessing the Impact of the Affordable Care Act on Health Insurance Coverage of People with HIV, Kaiser Family Foundation, January 2014.

Most Uninsured Individuals with HIV are Low Income; Half Have Incomes < 100% FPL

Figure 10

<100% FPL51%

100-138% FPL16%

139-399% FPL29%

400% FPL+4%

FPL=Federal Poverty Level. The FPL in 2009 was $10,830 for an individual. NOTES: May not total 100% due to rounding. Non-elderly people with HIV in care, 2009. N = 69,720.SOURCE: Kates J, Garfield R, Young K, Quinn K, Frazier E, Skarbinski J, Assessing the Impact of the Affordable Care Act on Health Insurance Coverage of People with HIV, Kaiser Family Foundation, January 2014.

Most Uninsured Individuals with HIV are Low Income; Half Have Incomes < 100% FPL

“Coverage Gap”

in Non-Expansion

States

Figure 11

Leading role

Looking Ahead: Challenges & Opportunities

Major role, but not leading

100%

82%

• The South is a populous, diverse region, but one that has faced historical barriers to access, including for people with HIV• ACA offers new opportunities for insurance coverage and access

– New consumer protections and benefit standards nationwide– Health care marketplaces in all 17 southern states– Medicaid expansion in 6 southern states

• Yet, in the 11 southern states not expanding Medicaid, uninsured, low income, people with HIV likely to be in the “coverage gap”• In all health care marketplaces, it will be important to monitor

qualified health plans for:– Benefit packages and costs, including drug tiering – Provider networks

• Ryan White will continue to be critical in all 17 southern states, particularly in those not expanding Medicaid• This is a work in progress…