rainbow magazine autumn 2012

8
Summer/Autumn 2012 Magazine BEYOND Read about little Rowan Todd BRAVERY “I run in memory of my daughter.” MEET THE MADE IN CHELSEA STARS An Olympic Challenge High fashion for less Little Big Cupcakes Hour Time to bake! One father’s amazing story

Upload: alison-walters

Post on 21-Mar-2016

243 views

Category:

Documents


5 download

DESCRIPTION

Welcome to Rainbow Trust Children's Charity new look magazine. Read about how Rainbow Trust helps families like Rowan's and Lewis's and how one young boy, Ben, received a standing ovation when he raced 100m in a wheelchair at the Olympic stadium.

TRANSCRIPT

Page 1: Rainbow Magazine Autumn 2012

Summer/Autumn 2012

Mag

azin

eBEYOND Read about little Rowan Todd

BRAVERY

“I run in memory of my daughter.”

MEET THE MADE IN CHELSEA STARS

An Olympic Challenge

High fashion for lessLittleBigCupcakes

Hour

Time to bake!

One father’s amazing story

Page 2: Rainbow Magazine Autumn 2012

Celebs Trustin Fashion

Clockwise from left, Made in Chelsea stars Jamie Laing, Oliver Proudlock, Francis Boulle, DJ Jesse Burgess and friends enjoy the show.

What do you get when you have a glamorous London location, add a couple of up and coming fashion designers, a sprinkling of celebrities and Rainbow Trust? It is of course, Trust in Fashion, Rainbow Trust’s answer to London Fashion Week!

Hosted by ‘Made in Chelsea’s’Jamie Laing, the show was held in association with Storm Model Management at London’s legendary Café de Paris. The event raised a wonderful £33,000 overall and was enjoyed by everyone who attended.

Rainbow Trust at Number 10

To celebrate the end of our 25 year anniversary, Rainbow

Trust held a very special reception at 10 Downing Street hosted by Mrs Samantha Cameron.

Long term Rainbow Trust supporters and patrons rubbed shoulders with celebrities and Rainbow Trust families over drinks and speeches at the Prime Minister’s official residence. The photo left shows (from left) Rainbow Trust Chief Executive Heather Wood, Actor Eddie Redmayne, Samantha Cameron, Rainbow Trust President Richard Stanley and Founder Bernadette Cleary with Ben and Emily Morris.

Events and Celebrities

All photography for Trust in Fashion taken by © Kim Rix

Rainbow Trust official Downing Street photo

Left: the sumptuous surroundings of Café de Paris in London.

If you would like more information from our press office, please email:[email protected]

Page 3: Rainbow Magazine Autumn 2012

Supporting familiesThe death of a child is every parent’s worst nightmare. For Emma West and Mark Rowe, it is something they face for the second time, with the illness of their little boy.

The Rowe Family were featured in our Raffle Appeal

in March and their moving story captured your hearts. Emma West and Mark Rowe’s daughter Megan died of a rare chromosome disorder which caused her heart to

fail. Emma later discovered in a prenatal scan that her new baby Lewis had the same condition. Lewis had major heart surgery at just 8 weeks old and now, aged 19 months has undergone many operations that have

left him dependent on oxygen 24 hours a day. It has been a very traumatic and worrying time for the family.

Thankfully, Rainbow Trust Family Support Worker Steve continues to support them every step of the way. As Megan’s condition deteriorated and in the years since her death he has continued to provide bereavement support, sharing memories with the family as well as providing practical help driving them to the hospital for Lewis’s appointments.

If you are inspired by the Rowe Family’s story and would like to sell raffle tickets to help support them and other families needing support please call 01372 363438. The closing date for the draw is 21 September 2012.

For more informationplease visit our website: rainbowtrust.org.uk or our Facebook and Twitter pages.

Alternatively email [email protected] or call Rainbow Trust on 01372 363438.

Welcome to our new look Rainbow Trust Magazine.

We listened to your feedback and have created a magazine that gives you news on the valuable work you’re helping to support and exciting ways to become involved.

Take a moment to read how your donations help families like Rowan’s and Lewis’s. Read about Ben’s 100m race at the Olympic Stadium which received a standing ovation and how the death of one supporter’s child spurs him on to complete marathons in aid of Rainbow Trust.

We’ve included ideas for fundraising as well as events and celebrity parties. Supporting Rainbow Trust is inspiring, fulfilling and challenging. Feel inspired to turn over a new leaf in Autumn and join a Rainbow Trust event!

Welcome

All photography of Lewis Rowe taken by © The Independent Appeal

Chief Executive

Page 4: Rainbow Magazine Autumn 2012

Running in Memory of my daughter46-year-old David Kennard took on the challenge of completing the Brighton, London and Milton Keynes marathons, on three consecutive weekends. David raised money for Rainbow Trust, who helped his family through the death of his daughter, Eloise. David first heard about Rainbow Trust in 1997 when his daughter Eloise was diagnosed with a terminal illness. David, from Harrow, said: “My wife went into labour 10 weeks early and our twin baby girls were born premature, Eloise weighing in at just 1b 10oz and Naomi 2lb 5oz.

At the time Naomi seemed the most sick of the two,

suffering from a stomach infection. However, at one week old Eloise became seriously ill and was rushed to Great Ormond Street Hospital where she was diagnosed with Necrotising Enterocolitis - a disease that affects the intestines.

She had many operations, each one removing more and more of her intestines, and suffered two brain haemorrhages from all the operations, medication and treatments. It got to a stage where we just thought, enough is enough, no more. Eloise’s condition was terminal and we just wanted to take her home and look after her as much as we could, rather than see her spend her whole, short life in hospital.”

During this time David describes Rainbow Trust’s support as a ‘God send’. Great Ormond Street Hospital recommended the services of Rainbow Trust and David, his wife and daughters soon met Christina from the Surrey Care Team.

Christina visited the family once or twice a week overnight and watched over Eloise and her twin sister Naomi while their parents got some much needed sleep.

In September 1997, when she was 15 months old, Eloise died at home. David said:

I was trying to hold down a full time job and Eloise needed our constant attention. We learnt how to administer her medication and the complicated process

Page 5: Rainbow Magazine Autumn 2012

of feeding her, but she needed care through the night. Just by enabling us to get a few nights rest a week, Christina’s help was immeasurable.

When David turned 40 in 2006, he signed up for his first marathon in aid of Rainbow Trust, and in memory of Eloise, as a way to fundraise for the charity which provided much needed emotional and practical support to his family. The family have also organised many fundraising events including cake sales, car washes, arranging horse racing nights and golf days, helping spread awareness of Rainbow’s work.

Over the last six years, David and his family have raised over

£20,000 for the charity – enough to cover over five continuous months of support for a family in need.

Each year David tries to come up with new challenges to keep the money coming in for Rainbow Trust aiming to raise £2k a year and said: “I’ve asked my friends and family for support so many times over the last seven years that I’m sure they must be getting tired of me! But I just keep plodding away, trying to come up with ideas and new challenges to inspire their continued support so the money doesn’t dry up.”

David’s daughters Naomi (Eloise’s twin who is now 15 years old) and Sinead, who was born just a month after Eloise died, are always there, cheering their dad on during his marathon efforts. And David will continue to support Rainbow Trust in memory of Eloise.

If David’s story has inspired you to dig out your running shoes and get fundraising for Rainbow, please visit rainbowtrust.org.uk/events for the latest list of sporting events you can get involved in.

Tweets of the season

Real Life Story

If you would like to donate to Rainbow Trust in memory of a loved one, please visit: rainbowtrust.org.uk/inmemory

Being part of the nation’s biggest cake sale is easy – simply bake a cake, muffins, flapjacks or bread and sell them to people at work, school or to your friends during October to raise money for Rainbow Trust.

The Big Hour will run from 22 October to 28 October and you can use the extra hour when clocks go back for winter to bake or sell your goodies. The money raised from The Big Hour Cake Sale will go towards giving the families we support the time and space they need to cope. Here’s a recipe to get you started.

The Big Hour

RainbowTrustCharity @RainbowTrustCCCalling all workers in the Paddington area. Lock your boss up for half an hour with Jack! It’s £50 to get them out or £100 to keep them in!

Rebecca Dickinson @Beckydee1986Cupcakes iced, ready to be sold at street fair tomorrow. All proceeds going to @RainbowTrustCC

Erica Cook @EricaCook1984@RainbowTrustCC you helped my best friend before he died in 2005 - my fiancé and I did GNR in his memory. Thank you xx

Inst. of Fundraising @ioftweetsCongratulations to @rainbowtrustcc for winning best fundraising organisation to work for!! #iofnc#iofncawards#iofawards

BigCupcakes

HourLittle

Ingredients for 12 cupcakes:

• 120g (4oz) soft margarine• 120g (4oz) caster sugar• 120g (4oz) self-raising flour• 2 eggs• Jazz them up with treats and

Rainbow colours!

Put all ingredients into a bowl and beat with a wooden spoon until the mixture is combined. Alternatively, process in an electric mixer or food processor until smooth.

Divide the mixture between a 12-hole muffin tray lined with cake cases.

Bake in a pre-heated oven, 180 degrees Celsius, (350F) for 15-18 minutes.

22 October to 28 October 2012

Page 6: Rainbow Magazine Autumn 2012

An Olympic

Ben Morris is a bright, engaging 11 year old with a big smile and lots to say. He loves science lessons at school and cracking jokes.

Ben also has Spinal Muscular Atrophy, which means that his muscles don’t receive signals from his brain. The only part of his body he can move is his left thumb. Despite this he races around in his wheelchair – which he controls with his thumb and attends the same mainstream school as his eight year old sister Emily.

Ben’s parents, Doug and Sandra, have their work cut out looking after him. Ben’s condition means he needs lots of attention and stimulation. He can’t swallow most foods, so he has to be tube

fed and at bedtime he needs to be carried up the stairs, given oxygen and then turned several times during the night. In addition to regular hospital check-ups, two or three times a year Ben develops a lung infection which means he has to spend a couple of weeks in hospital each time. The support of Family Support Worker Jayne, who comes to see the family once or twice each week, means so much to the family.

On Sunday 1 April, Ben took part in a 100m race on the track at the Olympic Stadium in Stratford with eight other supporters to celebrate Rainbow Trust’s involvement with Olympic programme the Gold Challenge. Lining up against rugby star Austin Healey, Ben received a standing ovation from the crowd as he made it over the finish line in his wheelchair.

CHALLENGE

Picture photography taken by © Andy Newbold. Edited by Rainbow Trust.

Family Story

Feeling motivated to take up a challenge in this Olympic year? To find out more visit rainbowtrust.org.uk/events for some sporting inspiration or call Anna in our sports team on 01372 220022.

Page 7: Rainbow Magazine Autumn 2012

New ShopRainbow Trust’s shop in Leatherhead specialises in high-end clothes, donated by the fashion industry and supporters. Many items are new end of

lines donated by companies such as Fenn Wright Manson.

The shop gratefully accepts all donations and is a treasure-trove of designer and high street bargains. You can find our new shop at 33/35 High Street, Leatherhead, KT22 8AB. For donations of clothes or queries please contact 01372 363438. Opening hours are 9am-5pm, Monday to Saturday.

NewShop

Read about how your generous response to our Spring Appeal has directly supported families in need.

Thank you for your support. We get next to no government funding, so without kind people like you we simply couldn’t help as many families who have children with a life threatening or terminal illness. Without you, we couldn’t help children like Rowan. Family Support Worker, Janet

For children going through chemotherapy,

bravery is second nature. Months and sometimes years of medical tests, painful treatment and rehabilitation is something that most of us can not comprehend, and yet, for many of the children Rainbow Trust supports, this is their reality.

Our Bravery Badge appeal in June told the story of brave Rowan Todd. Rowan was just three when she was diagnosed with a brain tumour in 2009. The tumour had grown and was cutting off optical nerves, causing her to lose her sight. The appeal asked supporters to donate money and send in stickers of support to children like Rowan, on hospital wards and at home, to let them know how proud you are of them. Rainbow Trust supporters

responded with compassion and generosity and so far have raised £6,600. This has paid for 330 hours of Family Support Worker hospital and home support. Rowan is in remission and back at school doing well. Her family continue to receive

support and they know Rainbow Trust will be there for them as long as they are needed. From all the children we support, thank you.

Bravery BadgesThe Spring appeal has raised £6,600 so far and paid for 330 hours of hospital and home support.

Beyond Bravery

Picture photography taken by © Andy Newbold. Edited by Rainbow Trust.

Appeal Update

”Rowan’s family are trying to to raise £10,000 to help other families like theirs. If you would like to donate to their appeal or read more about Rowan’s touching story visit rainbowtrust.org.uk/helpingrowan orcall Dave on 01372 220086.

Please visit:rainbowtrust.org.uk/charityshopsto find out more about our new shop or how to volunteer.

Page 8: Rainbow Magazine Autumn 2012

Kilimanjaro TrekMount Kilimanjaro is Africa’s highest mountain as well as one of the world’s largest freestanding volcanoes. Our trip takes you along the Machame route, which is widely regarded as the most beautiful

and although longer, provides an excellent opportunity for you to acclimatise to the altitude. This is a tough but immensely rewarding challenge of a lifetime.

Challenge yourself: Climb Africa’s highest mountain

Sign up to our e-news From everyone here at Rainbow Trust and the

families we help 24 hours a day, seven days a week, thank you for your ongoing support and generous donations.

”Don’t want to miss out on the latest Rainbow Trust news? Passionate about saving paper and reducing your carbon footprint? Why not sign up to our monthly Rainbow Trust e-newsletter and keep abreast of the latest goings on of your favourite charity. Email [email protected] to sign up today!

Head Office: 6 Cleeve Court, Cleeve RoadLeatherhead, Surrey, KT22 7UDTel: 01372 [email protected] Charity Number 1070532

30 August 2012 Hampshire Golf Day

5-7 September 2012 Salon PrivéLondon

12-16 September 2012 London to Paris Bike Ride

15 October 2012 Van Morrison ConcertLondon

28 October 2012 Run to the BeatLondon

December 2012 Carol ConcertsLondon, Surrey and Sunderland

9 December 2012 Santa RunLondon

11-20 January 2013 Kilimanjaro Trek

19-28 April 2013 China Trek

3-12 May 2013Peru Trek

7 October 2012 Royal Parks Half MarathonLondon

Coming up

For more information about us or any of our events visit: rainbowtrust.org.uk