paralyzed veterans of america, cal-diego ... › wzukusers › user-34033824...paralyzed veterans of...

PARALYZED VETERANS OF AMERICA, CAL-DIEGO CHAPTER

BEACHCOMBER MAY/JUNE 2020 1

VASDHS COVID-19 ResponseVA San Diego Healthcare System has implemented an aggressive public health response to protect and care for Veterans, their families, health care providers, and staff in the face of the COVID-19 health risk.

The VA is working directly with the CDC and other federal partners to monitor the outbreak of the virus.

Veterans with symptoms such as fever, cough, or shortness of breath should immediately contact their local VA facility. The VA urges veterans to contact them before visiting the medical center.

Upon arriving at the VA, all patients will be screened for flu-like symptoms before they enter in order to protect other patients and staff. A VA health care professional will assist you with next steps once this screening process is complete. At this time, the VA is urging all visitors who

do not feel well to please postpone their visits to VA facilities. Currently, there is no vaccine to prevent the COVID-19 infection and no medication to treat it.

CDC believes symptoms appear 2 to 14 days after exposure. Avoid exposure and avoid exposing others to this infection.

If you have any questions regarding our COVID-19 response, or about any of our programs or services, please feel free to call 858-450-1443 today for more information, or visit our website at www.caldiegopva.org.

President’s Message Things are definitely a bit different these days. This month, Duane gives us his insight into the current state of affairs. Check out what’s been on our President’s mind.Page 4

Member Survey Have a look at some of the data from our most recent survey8

On the Cover Featured on the cover of this month’s issue is now what has become an all to familiar image… that of COVID-19. More information can be found throughout this publication.Cover Shot

We Salute You

We thank our special donors who help in so many ways. Page 23

News from The Hill Wayne Landon keeps us apprised of the latest developments from the legislative perspective. Stay up to date on all governmental current affairs and their impact on you.Page 8

SCI Education Series Our Patient Education Series continues.Page 14

A Bi-Monthly Newsletter Volume 32 - Issue 3 - May/June 2020


BEACHCOMBER

https://l.facebook.com/l.php?u=http%3A%2F%2Fwww.caldiegopva.org%2F%3Ffbclid%3DIwAR12Qo4cBDUKa9SIL8bcgTsFtVpx3M2DH9O1MRSzXbVr_HP2H_L4r3fAlAc&h=AT1OlwXWBtRJ5RnsaPkb-ZYLtN-FtEmwFARvXZ88IhmjTd-siL9MP48Cfbz7vb3aJ78nSPZEXXUkO4LkJGG_a7BCfIUwXW9Z0szIA5vTOJkY0tLErn-5zhqRTXpC-8wAq-37hBKLio7I4XMKa8m70VupuxCDjqkraoeo8-UpIGk4QvKVUGxbj010JvdtGXkQBJjCWIZF0nOZx8v1jtNgf7pprdrYW5VinYdH5K4O6cBotXN4qGBBbHa76gaXs0tPr6ywF6pF4PWaz3llLPWCogwdBE-cVMjMsF0nrAvKgho13rkRbW52Q9pH4iHYxDmzxPI8OqXUj66xc-KyA2FNE61bw-IfKp9weorF4DzN14Fgx_GbCiCSSwAf6iyLPTVt23Md8FyAJqOAiUt-aQ0mm523XSLLiemNQZeOUcqLdXU5MOULPlx9U5mNsbLgADspLyoExDPcjzJbuwqozT-kVlncpRfFOo2RC1d5VkPA4wjiB3KvvKQ6GjPUU3GFmJ0jEA_9K53azsXyHgIAzVodMX_qOCzCxGsGg546Tg9lYV9DOp0QV_mgVR7SLMVI5AeQlIDbJJARJSgbqA_OkbI6xdTSbIv0VJZWQnchQgiUw9P4Doh_NxlyTZxZqpYUhPLWZ99bB6WLe78Jp20fdPYcZu7dHNzkJcnLFGtgCgyxaVVbZRtm97zi64Rb7tLxzYSp6Ob3rS_Th8nHOLitiUQ881D4mcn64PqWzxXTUkRwcBmCGjFAiAW9B_JlroD9unmarpMPAOfzuYksRDcZf3VeW_M6J7XbUIMdiWZnuDviFGpTx_1Z04ezzpB15kGZb9M4utTMpqEy2WdGT2IR-gScKA6he0dHRINBMsw

https://l.facebook.com/l.php?u=http%3A%2F%2Fwww.caldiegopva.org%2F%3Ffbclid%3DIwAR12Qo4cBDUKa9SIL8bcgTsFtVpx3M2DH9O1MRSzXbVr_HP2H_L4r3fAlAc&h=AT1OlwXWBtRJ5RnsaPkb-ZYLtN-FtEmwFARvXZ88IhmjTd-siL9MP48Cfbz7vb3aJ78nSPZEXXUkO4LkJGG_a7BCfIUwXW9Z0szIA5vTOJkY0tLErn-5zhqRTXpC-8wAq-37hBKLio7I4XMKa8m70VupuxCDjqkraoeo8-UpIGk4QvKVUGxbj010JvdtGXkQBJjCWIZF0nOZx8v1jtNgf7pprdrYW5VinYdH5K4O6cBotXN4qGBBbHa76gaXs0tPr6ywF6pF4PWaz3llLPWCogwdBE-cVMjMsF0nrAvKgho13rkRbW52Q9pH4iHYxDmzxPI8OqXUj66xc-KyA2FNE61bw-IfKp9weorF4DzN14Fgx_GbCiCSSwAf6iyLPTVt23Md8FyAJqOAiUt-aQ0mm523XSLLiemNQZeOUcqLdXU5MOULPlx9U5mNsbLgADspLyoExDPcjzJbuwqozT-kVlncpRfFOo2RC1d5VkPA4wjiB3KvvKQ6GjPUU3GFmJ0jEA_9K53azsXyHgIAzVodMX_qOCzCxGsGg546Tg9lYV9DOp0QV_mgVR7SLMVI5AeQlIDbJJARJSgbqA_OkbI6xdTSbIv0VJZWQnchQgiUw9P4Doh_NxlyTZxZqpYUhPLWZ99bB6WLe78Jp20fdPYcZu7dHNzkJcnLFGtgCgyxaVVbZRtm97zi64Rb7tLxzYSp6Ob3rS_Th8nHOLitiUQ881D4mcn64PqWzxXTUkRwcBmCGjFAiAW9B_JlroD9unmarpMPAOfzuYksRDcZf3VeW_M6J7XbUIMdiWZnuDviFGpTx_1Z04ezzpB15kGZb9M4utTMpqEy2WdGT2IR-gScKA6he0dHRINBMsw

BEACHCOMBER MAY/JUNE 20202

Board MembersThe PVA, Cal-Diego Chapter Board of Directors meet monthly. Minutes of the last meeting are available in the PVA, Cal-Diego Chapter office. All PVA, Cal-Diego Chapter members are invited to attend. Meetings are held on the second Thursday of each month. Please feel free to contact us about the next meeting date.PRESIDENT Duane Norman

VICE PRESIDENT Justin Ashbaugh

TREASURER Brian DeLaney

SECRETARY William McLeroy

BOARD OF DIRECTORS Bill PalmerRichard JohnsonDarius JonesAl Kovach, Jr.Buddy WachtstetterDave Smith

APPOINTMENTS:

NATIONAL DIRECTOR Richard Johnson (Interim)

SPORTS & RECREATION DIRECTOR Brian DeLaney

SHOOTING SPORTS DIRECTOR Brian DeLaney

FINANCE COMMITTEE Brian DeLaneyDarius JonesDuane NormanPeter BallantyneAl Kovach, Jr.

HOSPITAL LIAISON Justin Ashbaugh

MEMBERSHIP DIRECTOR Bill Palmer

MOTORSPORTS DIRECTOR Duane Norman

VAVS Darius JonesDon Hyslop

OFFICE STAFF:

EXECUTIVE DIRECTOR Peter Ballantyne

GOVERNMENT RELATIONS DIRECTOR Wayne Landon

MEDIA DIRECTOR Steve Shelden

SPECIAL PROJECTS COORDINATOR Abigail Cross

NEWSLETTER EDITOR Steve Shelden VOLUNTEER COORDINATOR Abigail Cross

PARALYZED VETERANS OF AMERICA, CAL-DIEGO CHAPTER 3350 La Jolla Village Drive #1A-118San Diego, CA 92161(858) 450-1443(800) 423-2778FAX: (858) 450-1852E-mail: [email protected]

PVA SERVICE OFFICE VA Regional Center 8810 Rio San Diego DriveSuite 1121San Diego, CA 92108(619) 400-5320(800) 795-3586FAX: (619) 400-0072Service Officers - Robert C. KameiEric MeekinsSecretary - Samantha Galliher

VASDHS/SCI OFFICE 3350 La Jolla Village Drive #1A-114San Diego, CA 92161(858) 552-7519Service Officer - DeMarlon Pollard

The mission of the Paralyzed Veterans of America, Cal-Diego Chapter is to improve the quality of life for Veterans of the United States Armed Forces and others who have spinal cord injury or dysfunction.

Health & Repair ServicesVA HEALTHCARE SYSTEM 858-522-8585

WHEELCHAIR REPAIR 858-642-6330

DisclaimerThe views and opinions expressed in the “Beachcomber” are not necessarily a direct representation of the views or ideals of PVA, Cal-Diego Chapter. We hereby disclaim any responsibility for opinions expressed herein.

All photography unless otherwise credited, is copyright of Steven M. Shelden.

A Word from the EditorWell… everything has changed, and I do mean everything. At the time of printing of our last issue COVID-19 was virtually unheard of. Over the course of the last two months this coronavirus has swept across the world in what is now a global pandemic. It seems as if everyone’s life has been impacted in one way or another, and chances are things will not be returning to “normal” in quite

some time. Just how long this period will be is still up for debate with new data bcoming available on a daily basis. Now more than ever it is critical that you keep apprised of all the latest information and resources in order to be able to better navigate the challenging months ahead. While our physical hours in-house at the PVA office have been decreased, we are all working remotely and are still able to respond to any questions or concerns that you may need addressed. For now… we’re all going with the flow and making adjustments wherever necessary, but always remember that we’re still here for you. Stay safe, we’ll see you again soon… promise.

If you have any questions or comments, please write to me directly at [email protected]. I greatly hope you enjoy this issue.


mailto:[email protected]



http://www.caldiegopva.org


http://www.caldiegopva.org



CONTENTS 1 VASDHS COVID-19 RESPONSE

2 A WORD FROM THE EDITOR

3 IN THIS ISSUE

4 PRESIDENT’S MESSAGE

6 EXECUTIVE DIRECTOR’S MESSAGE

8 GOVERNMENT RELATIONS

10 HEALTH EVALUATION FEEDBACK REQUEST

12 WE WILL RETURN

14 SCI EDUCATION SERIES

16 ACCESS TO CARE

18 PVACD MEMBER SURVEY UPDATE

20 TICKET REIMBURSEMENT PROGRAM

20 DONATION FORM

21 CHAPTER BIRTHDAYS

21 BECOME A VOLUNTEER

22 VEHICLE DONATION PROGRAM

22 SOCIAL MEDIA

23 WE SALUTE YOU

In This Issue...




President’s MessageBy: Duane Norman

I hope this finds all of you well. As everyone is aware, we are operating in uncharted territory. Hopefully by now you will have received two phone calls minimum, one from PVA, Cal- Diego Chapter and the other

from a representative from the SCI team doing wellness checks.

As you are aware the unit and the hospital is on lockdown and all normal operation concerning appointments and such has been suspended where possible. I'm pleased to report that these measures have been extremely successful in controlling the exposure to the hospital. It further appears that the County of San Diego is doing well also with a minimal number of infected patients given our population of 4 million.

It does appear that for the foreseeable future this is our new normal and as the governor of the state begins to reopen the state, the hospital will be considering a reopening of the facilities available to our fellow veterans. It is important at this time that you maintain contact with the SCI unit if you are experiencing difficulties.

Even though we are in an unprecedented pandemic, if you are suffering from a medical concern please bring it to someone's attention. Emergency admissions to the unit are available based on need. It is critical that you do not allow something to go unaddressed and that turns into a much bigger avoidable medical complication. If

you're experiencing difficulties getting through to the unit please call the office and leave a message, we will return your call as soon as we retrieve the message. You can also leave an email on our website in the event of an emergency.

Not all news is bleak and there is a light at the end of this tunnel, we will come through this. As the governor of the state has been reporting, California has flattened its curve in regards to the pandemic. Information is being gathered and evaluated to seeing when we can return to work and what that lifestyle will look like. It's obvious to all of us that changes will be required until a viable vaccine has been implemented. I trust with the number of scientists and labs around the world working on this that we may see this occur within the next year. Our schedule is extremely limited at the present time. Peter and Abigail are continuing to do the business of the chapter and we continue to research and develop grant opportunities to continue to advance the mission of the chapter. In addition we are working closely with DeMarlon, our NSO, to make sure that no one is falling through the gaps. Steve Shelden continues to actively check and upgrade our website and social media contacts daily.

Once again, if you're experiencing difficulty by all means reach out to us. We will do everything within our power to help you through these trying times. All of our programs remain postponed until further notice and we will keep you informed as things change.

Please stay safe, continue your social distancing, it seems to be working. I look forward to seeing all of you in the future and the chapter getting back to normal ASAP.





PVA, CAL-DIEGO CHAPTER BOWLING LEAGUE Wheelchair Bowling

1st and 3rd Thursday of Each Month - 1:00pm

Kearny Mesa Bowl

7585 Clairemont Mesa Blvd., San Diego, CA 92111



Executive Director’s MessageBy: Peter Ballantyne

One of our friends said to me, ‘we went to switch our clocks backward, and boy did time ever change after that!’ Within days of the time change, our city and state were in a shut down

mode… schools closed, events canceled, flights empty. It’d usually be an April newsletter filled with information on upcoming activities for the summer, like deep sea fishing and the freshwater evening fishing and BBQ, sailing, and of course, the National Veterans Wheelchair Games. I was planning on attending my first ever Games, this year. I always hear about how uplifting and competitive these games are. I was excited to be attending and to be a part of the event this year. Upcoming was also the Board of Directors National Convention where PVA business is done face to face with directors from across the nation.

We would also have a report on the Russell Memorial Trapshoot, as well as some great photos from the three day event. Poof. We were soon away from all these events, and really, almost all people. Meetings by computers are what we are all trying to figure how to make happen these days. It really is Star Trek in a way, “On screen, Jordy!” And suddenly appears an image of another ship’s captain, friend or foe, as Picard and the captain chat an any number of topics. Zoom, or whatever platform we use, is just too ‘1984’-ish. And then someone bombs in on your presentation...

One of the tasks we undertook once we moved our ‘offices’ to home, was to call all members for a wellness

check. Some numbers are now no longer in service, some calls went to people other than those we sought to reach, yet, we made lots of contact with members. It was fun sharing some of the ways each of us has been able to handle the new way of doing things. It was also important to hear some of the challenges members faced, and we were able to help some folks that needed it. Several volunteers helped with the calls, with special thanks to Wayne Landon, Buddy Wachtstetter, Al Kovach and Duane Norman for calls and follow up information.

For upcoming activities—I don’t know what to say. We are ready when you are. As we are able to re-invigorate our programs, we will let you know. It is likely that some of the outdoor programs will be the first back online, as it will allow us proper spacing.

With all the time off, I have been able to catch up on some reading. I am a National Geographic-phile, with all covers going back to 1974. I finally read my 2018 October issue (I was a bit behind...) and Ann Lamont had a great article, “Despite Perils, Decide to Hope.” In it she states, ‘Hope is a sometimes cranky optimism, trust and confidence that those I love will be OK; Hope is not usually the...fingers of light slanting through the clouds...it’s more like a sturdy garment, like an old chamois shirt: a reminder that I’ve been here before, in circumstances just as frightening, and I came through...all I have to do is stay grounded in the truth.’ ‘The truth is that—through the workings of love, science, community, time and what I dare to call grace—some elemental shift will occur and we will find we are semi-OK again. And even semi-OK can be a miracle.’

We will be OK. And I look forward to seeing you all again soon.





Connect With What Matters

Certified Mobility Consultants Provide Comprehensive Needs Analysis

Scooter lifts, turning seats, and driving accessories

Being there makes a di!erenceIt could be a simple trip to the mall, a ride to the movies or just a visit to friend’s home. The little things in life can make a big di!erence. It’s why MobilityWorks® has been helping veterans connect with who and what matters most since 1997. Veteran have unique needs so we treat each of them as individuals. First of all, we listen. Then, we work together to "nd the best solution.

MobilityWorks considers it a privilege to help our nation’s veterans. Every day we work with local VISNs and service organizations to make the process of securing accessible vehicles, lifts and driving equipment for veterans as easy as possible.

MobilityWorks has more than �� locations across the country with the largest selection of accessible vehicles and adaptive solutions:

• Converted�minivans, full-size vans, BOE�SUVs — Chrysler, Dodge, Ford, Honda and Toyota

• Pre-owned accessible vehicles• The latest in adaptive technology including transfer and turning

seats, scooter lifts and hand controls• Complete maintenance and service on adaptive driving equipment,

lifts and conversions• Daily, weekly and long term rental vans• Financing options to fit your personal needs• 24-hour roadside assistance with wheelchair transportation

MobilityWorks is committed to serving you. Contact us today so we can evaluate your needs and "nd a solution that best "ts your lifestyle.

MobilityWorks8130 Parkway Dr.La Mesa, CA 91942619-567-3118www.mobilityworks.com

MW Ad_PVA_La Mesa CA-7.25 x 9.75.indd 1 12/20/18 3:07 PM



Government RelationsBy: Wayne Landon

Medicaid home and community-based services (HCBS) As we all take measures to keep ourselves safe at home from the threat of COVID-19, our policymakers in Congress need to understand that people with disabilities require

additional resources in order to stay safe at home, rather than be forced into a nursing home or other group living facility, where COVID-19 spreads rapidly. Congress needs to provide additional funding for Medicaid home and community-based services (HCBS), and needs to take further steps to incentivize and protect caregivers. Congress needs to:

• Provide states additional Medicaid funding so people with disabilities can have the resources they need to remain at home.

• Pass the Coronavirus Relief for Seniors and People with Disabilities Act (H.R. 6305/S. 3544) to increase funding and provide job protection for personal care attendants and home care workers that our community relies on.

• Deem home care workers such as personal care attendants as essential workers, in order to make sure they can get the personal protective equipment (PPE) and medical supplies needed to do their jobs safely and protect the people with disabilities they are caring for.

• Lift the restrictions preventing legally responsible family members, such as spouses and parents, from being paid caregivers for their loved ones, so they don't have to choose between a paycheck and caring for their loved one.

Coronavirus Relief Bill Includes Provisions Impacting Veterans with DisabilitiesPresident Trump signed into law a bill which includes provisions impacting veterans with disabilities, $2 trillion H.R. 748, the “Coronavirus Aid, Relief, and Economic Security Act,” or CARES Act. The CARES Act is the third piece of legislation passed by Congress to address the COVID-19 pandemic.

The legislation provided VA with nearly $20 billion to respond to the coronavirus. Of that amount, approximately $14.4 billion was provided for VA medical services to address increased demand for health care at VA facilities. $2.1 billion was provided for community care to meet emergency room and urgent care demands related to the virus.

Also included in the bill were several authorities to assist VA in meeting veterans’ needs:

• Telemental Health Services for Isolated Veterans: Expands telehealth services for veterans to provide them with mental health services during this time. This provision gives VA the ability to enter into agreements with telecommunications companies to provide temporary, complimentary fixed and mobile broadband services.

• Treatment at State Homes During Public Health Emergency: Continues payments and provides resources to State Homes during this public health emergency.

• Modifications to Veteran Directed Care Program: Modifies the veteran directed care program by temporarily waiving the in-person home visit requirements to enroll in the program and permits veterans to receive telephone and telehealth visits as an alternative.

• Prosthetic Appliances through Non-Department Providers: Ensures veterans with limb loss can utilize community-based prosthetic providers.

• Waivers of Pay Caps for VA Employees During Public Health Emergencies: Waives federal pay caps for VA employees responding during COVID-19 emergencies, so they can be compensated for all hours worked.

• Personal Protective Equipment for VA Home Health Workers: Requires VA to provide personal protective equipment to VA community-based home health workers.

• Clarification of Treatment of Payments for Purposes of Eligibility for Veterans Pension and other Veterans Benefits: Ensures that veterans receiving a 2020 Recovery Rebate under the CARES Act do not suffer a loss or reduction of any VA benefits.

continues on Page 9…




Government Relations continued from Page 8…

• Telehealth for Case Managers and Homeless Veterans: Expands telehealth capabilities for case managers and homeless veterans participating in the HUD-VASH program.

• Financial Assistance for Supportive Services for Very Low-Income Veteran Families: Waives any limits on grant amounts and rates for Per Diem payments for temporary housing to maximize social distancing within the vulnerable homeless veteran population.

• Modifications to Comprehensive Service Programs for Homeless Veterans: Waives funding limits for financial assistance for supportive services for very low-income veteran families in permanent housing during the public health emergency.

• Grants for Construction of State Extended Care Facilities: Supports modifications or alterations to existing care facilities in state homes to help respond to the coronavirus.

The legislation also contained a number of provisions important to people with disabilities and their families.

Departments of Labor, Health and Human Services, Education – $172.1 billion for additional investments in healthcare, state and local government prevention efforts, purchasing medical supplies, vaccine development and supports for a host of education and social services programs.

Policy changes within the bill included a section allowing payment for direct support professionals to aid individuals with disabilities in hospital settings in order to reduce lengths of stay, extension of the Money Follows the Person program through November 30, 2020 and a requirement that Medicare Part D plans provide up to a 90-day supply of prescription medications, if requested, by a beneficiary during the emergency period.

Fair Housing Lawsuit: Stories Needed

PVA will be joining a lawsuit currently underway in the U.S. Court of Appeals for the Second Circuit. The case is Francis v. Kings Park Manor, Inc., et al., and involves the

enforcement of the civil rights of tenants in protected classes, including those with spinal cord injury or disease and other disabilities, to occupy their rented homes in quiet enjoyment without being harassed by other tenants on the basis of their having a disability.

Mr. Francis had been repeatedly harassed by a neighbor tenant on the basis of his race and complained to the landlord several times about it.

On appeal of a denial of his lawsuit to enforce a Department of Housing and Urban Development regulation (HUD rule) that holds landlords accountable for harassment of a tenant by another tenant where the harassment is based on the tenant’s being a member of a protected class, the Second Circuit upheld the HUD rule and found that a landlord must take reasonable steps to stop harassment of a tenant based on that tenant’s being in a protected class when the landlord knows, or should have known, about the harassment.

Then, in a surprising move, the court withdrew that decision and issued a new decision finding that the landlord had not violated the HUD rule and questioned whether the HUD rule even applied. The court has now set the case for another review before all 13 judges, which is extremely rare.

PVA hopes to educate the court about the importance of enforcing the HUD rule in cases of neighbor-on-neighbor harassment on the basis of disability, in addition to race and other protected classes.

In order to do this, we will need to provide the court with examples of such harassment. We are asking PVA members to spread the word and let us know if you have experienced disability-based harassment from a neighbor in your apartment or condo.

Please send your responses to either PVA General Counsel Len Selfon ([email protected]) or AED, Government Relations Heather Ansley ([email protected]).





Annual Health Evaluation Feedback RequestBy: DeMarlon Pollard

Please see myself or your NSO before, or right when you start AND when you finish your Comprehensive Annual Health Evaluation so that we can track the timeliness and completeness of your evaluation.

We wrote an article in the March 2012 Beachcomber which details what comprises a thorough examination per the VHA Handbook 1176.01. Stop by and I’ll gladly make a copy for you.

Also, please let me know when you are getting a new wheelchair, bed or any prosthetic item which may cost more than $3,000.

We are tracking the timeliness of the orders on your behalf, as the VA has implemented a new order process which we need to keep an eye on to ensure there continues to be no delays in providing the proper equipment.

If you have any concerns or questions on any matter, always remember we are here to serve you.

DeMarlon PollardNational Service OfficerParalyzed Veterans of America(858) 552-7519



��%FBSCPSO�1M��1PXBZ�$"��XXX�(PMEFO#PZ.PCJMJUZ�DPN

8F�BSF�QSPVE�UP�IBWF�CFFO�QSPWJEJOH�NPCJMJUZ�TPMVUJPOT�UP�WFUFSBOT�TJODF��0VS�GSFFEPN�BOE�JOEFQFOEFODF�JT�JNQPSUBOU�UP�VT��:PV�IBWF�EFGFOEFE�PVST �BMMPX�VT�UP�IFMQ�ZPV�LFFQ�ZPVST�CZ�QSPWJEJOH�ZPV�UIF�SJHIU�NPCJMJUZ�TPMVUJPO�GPS�ZPVS�OFFET��8F�PòFS�IBOEJDBQ�BDDFTTJCMF�WBOT �USVDLT �TFBUJOH�TPMVUJPOT �BOE�ESJWJOH�DPOUSPMT��.FFU�XJUI�B�$FSUJöFE�.PCJMJUZ�4QFDJBMJTU�4QFDJBMJTU�UP�IFMQ�EFUFSNJOF�XIBU�FRVJQNFOU�JT�SJHIU�GPS�ZPV��



It’s true… the world as we knew it has been through some tremendous changes over the last few months and will continue to evolve and take shape into our “New Normal” over the many months to come. In keeping with guidances set by the CDC as well as the State of California, our PVA chapter continues to practice whatever steps are necessary to protect and safeguard our members as well as the general community of SCI patients.

For the time being, most of our activities and events have been temporarily suspended until such time as we are assured of the safety of every individual involved with our programs and services. Typically at this time of year our thoughts would be turning towards the long summer days filled with fun and various outings and activities.

Our hopes are the same as many others… that before long we will be able to enjoy the many activities that we as a chapter are fortunate to enjoy. I’m not sure when its happening, but I can guarantee that it will happen… We Will Return! It may start off slowly, but before long we will once again have the chance to join together and enjoy our events and gatherings.

Until such time, I’m asking all our members to use this pause to evaluate our current programs and your involvement in those programs. If there is something you’d like to see us offer, now is the perfect time to make these suggestions to your chapter. When we return, our goal is not just to be the same as we were, our goal is to be better than we ever have been in the past. We look forward to seeing you all again soon.

We Will ReturnStory & Photos by: Steve Shelden




Tuesday, May 5, 2020 Preventing Pressure Injuries, Part I

Will Davis, PTA

Why do we worry about pressure ulcers? What causes pressure ulcers? Why are they a

problem for people with SCI? How can I prevent pressure ulcers? What other factors

other than pressure can cause skin problems?

Thursday, May 7, 2020 Bowel Management

Dennise Baun, BSN, RN

How does a SCI change bowel function? How can I avoid accidents? How do I manage

bowel problems at home? What medications and foods will affect my bowels? What

techniques can I use for long term bowel management?

Friday, May 8, 2020 Bladder Management, Part II

Rey Puentespina, MSN, RN

What are the common bladder and kidney tests I need to have on a regular basis? What can be done if I start to develop kidney or bladder complications?

Tuesday, May 12, 2020 Getting Back to Work

DeMarlon Pollard, PVA National Service Officer

Can I go back to work after an SCI? Why should I consider working or volunteering? What resources are available to me through the VA, the PVA, and community to help me

meet my goals in this area?

Thursday, May 14, 2020 Sexuality and SCI

Greg Fong, BSN, RN

Am I still a sexual person? What is “sexuality”? What are the effects of SCI on

sexual functioning? Can I still have children? What are my options? What do I do about

erection or lubrication problems? How can I still give pleasure to my partner and myself?

Friday, May 15, 2020 Pain Management in SCI

Jeri Muse, PhD

What causes pain after SCI? What types of pain are common after SCI? Other than pain

medications, what can be done about this pain? What resources are there at the

VASDHS to help me with my pain?

Tuesday, May 19, 2020 Taking Charge of Your Life

Henrietta Padilla, OTR

Can I be “well” again after SCI? What can I do to keep control over my life? What can I

do to keep fit? What are my legal rights with a disability? What do I do if I think I have been discriminated against because of my

disability?

Thursday, May 21, 2020 Preventing Pressure Ulcers, Part II

Stephanie Alexander, BSN, RN

How can I prevent pressure ulcers? Why do some people with SCI get pressure ulcers and

others do not? What can I do at home to manage skin problems? How will my SCI

team manage a pressure ulcer in clinic or in the hospital?

Friday, May 22, 2020 Medical Complications in SCI

Sharlyn Ruhe, PA

What are the possible medical complications for my breathing, digestion, heart and blood

vessels, muscles, bones and nerves? How can I avoid these complications? How can I help my doctor detect problems early? What

other medications may I need to take?

All classes are 12:30PM-1:15PM Call (858) 552-7453 or 1-800-331-VETS (8387) ext. 7453, for future class schedules or for more information.

Spinal Cord Injury Patient Education SeriesThe VA San Diego Healthcare System is proud to present a series of classes designed to help spinal cord injury/disease veterans become more knowledgeable about caring for themselves and becoming active in the community. The classes are mandatory for all newly injured or Rehabilitation SCI inpatients. Members of your team may assign you to attend certain classes. Classes are held in the VA San Diego HS SCI Center Conference Room (1B123).




Tuesday, May 26, 2020 Managing your Attendant

Phil Dozier, PCA Coordinator

How do I find, hire and supervise a good personal care attendant (PCA)? How do I pay for attendant care? How do I keep good attendants and avoid problems? How can I learn to be an employer?

Thursday, May 28, 2020 Autonomic Dysreflexia

Anneliese Nanquil, BSN, RN

What is autonomic dysreflexia? Why is it so dangerous? How will I know if I have it? What can I do to prevent and manage AD at home? When do I need to call my doctor or go to the emergency room with AD?

Friday, May 29, 2020 Psychosocial Issues Dr. Jeri Muse, PhD

How do I learn to cope with the changes that SCI has caused in my life? How do I know if I need help with this process? What types of therapy are available to me should I need help adjusting to life with SCI?

Tuesday, June 2, 2020 Safety in the Home and Community

John Colaneri, DPT What are the safety hazards I may find in my home or community as a person with a SCI? How can I modify my home for better safety

and accessibility? What do I do for fire safety at home? How can I be better prepared for a disaster such as an

earthquake?

Thursday, June 4, 2020 What is Spinal Cord Injury?

Hayley Howells, PT How does a spinal cord injury affect my whole body? What does my injury level mean? What is a reflex? What kind of

functional outcome can I expect? What research is being done on regeneration and

healing?

Friday, June 5, 2020 Bladder Management, Part I

Heris Santos, BSN, RN How does a SCI affect my bladder and kidneys? What are my options for bladder management? What are the common bladder and kidney complications I need to know about?

Tuesday, June 9, 2020 Recreation and Sports

Kelli Kaliszewski, CTRS What is leisure and why is it important?

What are the benefits to me of leisure activities, sports, staying active and having

personal goals?

Tuesday, June 11, 2020 Benefits/Resources for SCI Veterans

Mo Shirvani, LCSW What resources, VA benefits, and community benefits are available to me and my family

as a Veteran with a spinal cord injury?

Friday, June 12, 2020 Eating Right for Health

Katelyn Mazza What do I need to eat for skin, muscle, healing and general health? What is a

balanced diet? How do I keep my weight down or gain weight? How can I eat “heart smart”? What are good sources of fiber for

my bowels?

Tuesday, June 16, 2020 Spirituality and SCI

Chaplain What is spirituality and how can I use it to deal with SCI? Can I find meaning/purpose for my life as an SCI veteran? What spiritual resources are available to me or my family?

Thursday, June 18, 2020 Bowel Management

Dennise Baun, BSN, RN How does a SCI change bowel function? How can I avoid accidents? How do I manage bowel problems at home? What medications and foods will affect my bowels? What techniques can I use for long term bowel management?

Friday, June 19, 2020 Staying Healthy with SCI

Carol Johnson, MSN, RN, CNS-BC What do I need to do to stay healthy and be sure that any problems are caught early?

What tests and evaluations should I have on a regular basis? How can I best use the VA

SCI system of care to my advantage?

Spinal Cord Injury Patient Education SeriesPARALYZED VETERANS OF AMERICA, CAL-DIEGO CHAPTER

All classes are 12:30PM-1:15PM Call (858) 552-7453 or 1-800-331-VETS (8387) ext. 7453, for future class schedules or for more information.




Access to CareBy: DeMarlon Pollard - NSO San Diego

When comparing Veteran Service Organizations, Paralyzed Veterans of America (PVA) leads the way not only by assisting Veterans with

Compensation and Pension benefits, but also in ensuring that all SCI/D Veterans are receiving timely and proper medical care within the VA Spinal Cord Injury/Disease System of Care.

With that being said, PVA is requesting feedback from our members in regards to any access to care issues you may be having.

We would like to hear from you if you are experiencing any restrictions to receiving access to care at the SCI/D Center of SCI/D Clinic.

This would include issues such as your ability to receive timely quality health care, delays in obtaining an appointment, delays in appointments for a particular procedure, delays in obtaining specific prosthetic

equipment and supplies, delays that resulted in you having to use the Choice Act, and /or denial of care from the VA facility.

If you are experiencing any of the following issues please contact your local PVA National Service Officer (NSO) or Veterans Health & Benefits Specialist, who is compiling a database of reported issues and working to resolve them on your behalf.

Please be ready to give specific details about your experience such as the time, date, request that was made, and person you spoke with if possible.

We thank you for your time and involvement with this matter. You can reach your local service officer at [email protected] (858) 552-7519.






%QPVCEV�WU�VQFC[�VQ�ƒPF�QWV�KH�[QW�CTG�GNKIKDNG� VQ�TGEGKXG�CP�+PFGIQ�GZQUMGNGVQP'OCKN��UWRRQTV�KPFGIQ"RCTMGT�EQO�2JQPG��844-846-3346

What is Indego?A robotic device that enables veterans to walk again.Indego is an FDA-approved exoskeleton worn around the waist and legs that enables individuals paralyzed from spinal cord injuries to stand and walk, offering a new level of independence.

Indego can currently be used with spinal cord injury levels of T3 to L5 in community or home settings. The device offers:

• Lightweight, modular designŵ� 7PMQ�TVSƤPI�GSQTEXMFPI�[MXL�QSWX�[LIIPGLEMVW• Rapid setup and breakdown for easy transportation• Can be used with forearm crutches or walker

PROU

DLY

DESIGNED AND ASSEMBLED

IN THE USA

Getting Paralyzed Veterans Walking Again with Indego®

New VA Program offers eligible veterans an Indego® Exoskeleton at no cost.




PVACD Member Survey UpdateBy: Abigail Cross

I truly appreciate all of the time and attention spent on the Member Experience Survey. The survey is now closed. Our survey was open from February, 2020 until April, 2020 and the information gathered will be used to make better management decisions at PVA, Cal-Diego Chapter.

We want to make sure we are creating the most positive impact on your life, through the use of programs, events, advocacy, communication, and more. We are glad to be able to gauge what you see as valuable, and what motivates you to get involved in our chapter.

Of course, please feel free to submit feedback at any time--no need to wait for a survey. We work to offer relevant and innovative information and programs to our members, and we can do better when we know if what we’re doing is helping you.

Our survey totaled 20 questions, was made available by mail and electronically, and included questions regarding healthcare to leadership roles.

Final results showed that almost all, 92% of respondents, confirmed that the healthcare they receive meets their

needs. Those members with concerns, had those concerns forwarded to our National Service Officer to be addressed.

Of responses gathered so far, 38% indicated that they had volunteered with PVA, Cal-Diego Chapter in the past (thank you!). Many members who answered the survey also read the Beachcomber, with some offering suggestions for content. The holiday party was by far the most popular event of the year, with 53% selecting it as their favorite event. Members were also asked the likelihood of their participation in the future year, and 45% chose that they were likely or very likely to participate in 2020.

We were also curious to discover some reasons why members do not participate. Is it distance? Illness? Lack of interest? We want to help overcome these obstacles as much we can. If you don’t want to participate, that is also ok! We just want you to be comfortable with whatever you do (although we will try to persuade you to get involved!).

Although the survey is now closed, we always value your input. We hope you were able to take a more detailed look at our organization and offer whatever suggestions you might have had. Thank you again for taking the time to be a part of this year’s Membership Experience Survey.




The ReWalk Exoskeleton-Suited for Your Mission

What is Your Mission?Whether your goals include experiencing the proven health-related bene! ts of exoskeleton assisted walking, standing to hug a loved one or completing an entire marathon, ReWalk can you help you achieve them.

®

Did You Know That Paralyzed US Veterans

May be Eligible For a ReWalk Exoskeleton?

Contact ReWalk for More Information

rewalk.com/contact or 508.251.1154 Option 2

Retired Army Sergeant Terry Vereline crosses the ! nish line of the 2019 New York City

Marathon after walking 26.2 miles in

her ReWalk Exoskeleton. She received this device in 2014 and has used it

to take nearly 1,000,000 steps in the past

! ve years.

ReWalk Robotics200 Donald Lynch Boulevard,

Marlborough, MA 01752www.rewalk.com


------------------------------------------------------------------------------------------------

Ticket Reimbursement Program

Donation Form - We Thank YouPlease take this chance to give back to the Programs & People at PVA, Cal-Diego Chapter.

Your valued donations will help support local programs, activities, and events that directly and positively impact our members and their families, making their lives active and enjoyable.

Name:______________________________________________________________________________________________

Address:____________________________________________________________________________________________

City:_____________________________________________ State_______________ Zip:______________

Phone:___________________________________________

Donation Amount: $__________________________

We gladly accept Checks, Money Orders, & Credit Cards

Card#___________________________________________ Exp. Date_____________ CVV#_____________

Please Mail to: PVA, Cal-Diego Chapter3350 La Jolla Village Drive, Suite 1A-118

The Ticket Reimbursement Program is available for members. Receive $50.00 from PVA, Cal-Diego Chapter for attending fun events such as: Museums, Padres Games, SeaWorld, Plays, Movies, & Concerts. It’s important to get out!Please submit your original ticket stubs (showing dollar amount) to PVA, Cal-Diego Chapter for reimbursement of up to $50.00 for the six-month period of January 1, 2020 - June 30, 2020.




Earl W. Walke

Howard Boyer

Moses J. Burke

Michael L. Jackson

William T. Kafka

Wesley J. Bergin

Daniel M. Litzenberg

Greg J. Roderick

Ildefonso L. Alamo

Jeffrey D. Dlapa

Charles A. Shaffer

Isaac P. Lopez

Dwight Odmark

Lawrence W. Ward

Johnnie B. Booth

William L. Striegel

Anita N. Herron

Ronald D. Costa

Michael C. Brown

Houston M. Burnside Jr.

Peter Cieslewski

Lucy A. Pollard

Norman D. Giffin

Chris S. Jensen

Riley J. Barney

Ralph D. Shadowens

Gregory D. Stickney

Doug Ebersole

William J. England

Gregory F. Smith

Michael A. Foster

John W. Pou III

Liam P. Ballantyne

Barry J. Flynn

Mark I. Maghran

Richard P. Haynie

Raymond G. Price

David O. Greta

Daniel J. Cronin

Richard H. Constantine

Anthony Leonardi

Antonio A. O’Campo

John D. Martin

John J. Addario

Timothy P. Curtner

William K. Smith

Amos Davis Jr.

Dion V. Long

Debra Linder

Charles D. Romero

Anthony P. Mezzadri

Tom F. Gunn

Darren G. Westervelt

Shannon L. Snowhill

Efrain Davila

John E. Wagner

Pernell M. Cooper

Faraj A. Haddad

Harrison G. Butler

Michael G. Beuoy

Jhoonar A. Barrera

Miguel A. Sarellano

Howell H. Smith

PVA, Cal-Diego Chapter Birthdays - May/June 2020

Become A Volunteer Today!Give back to the Programs & People at PVA, Cal-Diego Chapter.

Call our office at 858-450-1443 today to find out how you can best support our local programs, activities, and events that directly and positively impact our members and their families. We need you!

Simply call 1-855-744-0782

or go to the following link: www.wheelshelpingwarriors.org


http://www.wheelshelpingwarriors.org

http://www.wheelshelpingwarriors.org



Social MediaThe best way to get the latest, most up to date information on all things related to programs and activities sponsored by the Paralyzed Veterans of America, Cal-Diego Chapter is to explore all four of our websites listed to the right.

These sites are updated on a daily basis, so please check back often in order to make sure you don’t miss any of the exciting and greatly varied program and recreational activities coming up over the months ahead.

To show your support, please make sure you click the “Like” button when visiting our Facebook pages.

https://www.facebook.com/pvacaldiego

http://www.caldiegopva.org/

http://www.pvamotorsports.com/

https://www.facebook.com/pvamotorsports


Call 1-877-900-VETS (8387) or visit PVA.careasy.org today for more information.

http://pva.careasy.org/HOME.html

http://caldiegopvamotorsports.com/Cal_Diego_PVA_MotorSports

http://caldiegopvamotorsports.com/Cal_Diego_PVA_MotorSports

http://pva.careasy.org/HOME.html


We Salute You.A very special thank you to all of our donors who continue to make the

programs at PVA, Cal-Diego Chapter thrive and grow.

Crane Fund for Widows and ChildrenScaled Agile, Inc.

Dr. Seuss FoundationPhilip and Kimberly Ann Schultz

San Diego Lions ClubGeorge Oswell

Walter O’Neill JrEasterday Foundation

Rancho Land CompanyNorth Coast Corvette Club

Schwab CharitableGolden Boy Mobility

Combined Federal CampaignRobert Shaw

Thrivent FinancialRon Eisenhutt

Network for GoodRobert Gallardo

The Ability CenterJim Schoenemann Charitable

Torrey Pines Kiwanis FoundationKroger

Las PatronasGloria Desmond

Ken ForceRon Bacon

Richard and Sheila JohnsonMichael Smyth

Praisner Family FoundationMichael Loge

Mobility WorksRuth Kurisu

Scott and Donna White Charitable Fund

Francis Parker High School Military Outreach Club

Mr. & Mrs. Victor JaramilloHarold DemasGerald Barton

Susan Adler FoundationDisabled Services Advisory Council

James and Andrea GoetzOperation Desert Fun

Angela CookGreg and Carole Mottino

Aleta and Marc LaFontaineShelly and Steven Dunn

Desert Side-TracsVFW Post 3783Blu-in RV ParkTrisha Johnson

Richard JohnsonKaren and Alan Bauer

Diane RivoWilliam and Jeanne Barlow, (in memory of Connie and Buck

Ballantyne)Larry and Vicki Houghton

Ghazarossian Charitable FundThe Lyons Family

J. R. MiddletonRichard Constantine

Glen PetersonJames Goetz

Maria ArroyoEstate of Ian Bissinger

Alan JohnsonMichael Empizo

Jerry LippettRichard Harris

Frederico ScarelliDon & Eileen Hyslop

Jim and Judy Rockenbach Charitable Gift Fund

Greg and Carol SmithGeorge Crockett

Daniel LitzenbergEstate of Margot EtzlerValor Lending Group

Cox CharitiesDaniel Henry

Rancho Land Co.Irwin Gisler

Kevin LemontRuo Steensma

Mike Niemiec Giving FundTony and Sue Godfrey, (in memory of

Jim Russell)Chuck and Suzanne Knight, (in

memory of Jim Russell)Jessica Turner and friends, (in memory

of Jim Russell)Anheuser Busch

The Gilbert Foundation


PARALYZED VETERANS OF AMERICA, CAL-DIEGO CHAPTER Volume 30 - Issue 2- March/April 2018

NonprofitOrganizationU.S. Postage

PAIDSan Diego, CAPermit #3446

3350 La Jolla Village Dr. #1A-118San Diego, CA 92161

ADDRESS SERVICE REQUESTED


PARALYZED VETERANS OF AMERICA, CAL-DIEGO CHAPTER Volume 32 - Issue 3 - May/June 2020

Moving YourLife Forwardwww.AbilityCenter.com

• Six month free inspections with reminders • Free 43 point twice a year mobility inspection, including cleaning

& lube on all mobility equipment, as long as you own the vehicle• Certified Mobility Specialists at your service• Factory Trained & Certified Technicians• Preferred service appointments scheduling• 24-hour emergency hot line• All DMV and title paperwork submitted• Accessible Van Rental program with preferred rental rates

OUR EXCLUSIVE GUARDIAN PROGRAM FREE WITH EVERY VEHICLE WE SELL.

PROUDLY SERVINGTHE SAN DIEGOCOMMUNITY FOROVER 25 YEARS

CALL (858) 541-0552

WE HAVE HUNDREDS

OF ACCESSIBLE VEHICLES!

paralyzed veterans of america, cal-diego ... › wzukusers › user-34033824...paralyzed veterans of...

Documents