IDA SIM, CO-FOUNDERDEBORAH ESTRIN, CO-FOUNDER

DAVID HADDAD, PROGRAM MANAGERDecember 5, 2011

#openmhealth

Sponsored by the Robert Wood Johnson Foundation and the California Health Care Foundation

A project of the Tides Center

data driven feedback loops

2

without better sensemaking to drive

these feedback loops…

Plateau of Diminished Promise

outline for remainder of talk

1. OPEN INFOVIS FOR SENSEMAKING (DEBORAH)

2. PERSONAL EVIDENCE ARCHITECTURE (IDA)

3. OPENMHEALTH.ORG (DAVID)

open infovis for sensemaking

infovis architecture

INFOVIS IS A SET OF TOOLS FOR ANALYSIS AND VISUALIZATION OF INFORMATION

ARCHITECTURE IMPLIES SYSTEMIC, STRUCTURAL, AND ORDERLY PRINCIPLES TO MAKE SOMETHING WORK (SAUL WURMAN)

BY DRIVING THE INFOVIS ARCHITECTURE THROUGH CONCRETE APPLICATIONS WE’RE ABLE TO CATALYZE RAPID EVOLUTION, VALIDATION, AND SHARING OF SENSEMAKING TECHNIQUES

data processing units (DPU)

DPU: WEB SERVICE THAT PERFORMS DATA TRANSFORMATION • EACH DPU EXECUTES ONE TASK (E.G., SMOOTHING,

FEATURE EXTRACTION, …)• APIS DEFINE DATA INPUT AND OUTPUT FORMATS• STANDARDIZED META-DATA IDENTIFY COMMON

PARAMETERS

CAN BE CHAINED TO CREATE PROCESSING PIPELINE

REFERENCE IMPLEMENTATIONS IN PROGRESS USING R AND JAVA (HTTP://OPENCPU.ORG)

data visualization units (DVU)

DVU: BROWSER RENDERED CLIENT SOFTWARE • MODULAR, REUSABLE VISUALIZATION COMPONENTS• WELL-DOCUMENTED INTERFACES• TAILOR USER EXPERIENCE WITH SPECIAL INFOGRAPHIC

UNITS

REFERENCE IMPLEMENTATION USING HTML5 AND JAVASCRIPT• INTERFACE TO DPUS WITH JSON OVER HTTP

why open?

personal evidence architecture

rephrasing ‘does it work?’

(Complexes of) Exposures

Outcomestrength of association?individual

population

Increased breastfeedin

g

Text4Baby

‘does it work on average?’

50 people population

100 people

PTSD Coach

PTSD symptoms

PTSD symptoms

50 people

Usual care

‘does it work for me?’

PTSD sx

PTSD Coach

Usual care

Usual care

PTSD Coach

PTSD Coach

Usual care

PTSD sx

individual

me

N-of-1 study design

flipping direction of research inference

population

priority components• N-OF-1 SCRIPTING AND ANALYSIS

– CHRONIC PAIN MANAGEMENT PILOT (WITH R KRAVITZ, UC DAVIS)

•LIBRARIES OF SHARED, VALIDATED MEASURES– E.G., PROMIS MEASURES

• METADATA TO SUPPORT DATA AGGREGATION- …ABOUT VARIABLES (E.G., DATATYPE, CODE SYSTEM AND

VALUE)- …ABOUT CONTEXT (E.G., OS AND VERSION, ACTIVITY

STATE, DEMOGRAPHICS)

5

mission of open mHealth

1. catalytic convener

2. scale

3. flip the direction of research inference

an integrated approachFOCUS ON DEVELOPERS AND HEALTH INNOVATORS FOR THE NEXT 7 MONTHS TO BUILD CODE AND CO-DEVELOP MANY MORE USE CASES

users

developers

health innovators

moving forward

what is open mHealth doing?

building

engaging• PARTNERSHIPS WITH RESEARCH INSTITUTIONS, TECH

STARTUPS, ETC.

• DEVELOPER AND HEALTH INNOVATOR COMMUNITIES

• SECURING RESOURCES THROUGH SPONSORSHIPS AND GRANTS

• FORMING WORKING GROUPS ON TOPICS IN THE OPEN MHEALTH ARCHITECTURE

timeline

get involved

developers• CODE AVAILABLE AT

HTTP://GITHUB.COM/OMHEALTH , FEBRUARY 2012

• GOOGLE+ HANGOUTS• WORKING GROUPS• EMAIL: DEVELOPERS@OPENMHEALTH.ORG

health innovators• SIGN UP TO CO-DEVELOP WITH OMH, HEALTH

INNOVATOR APPLICATION, http://bit.ly/codevelop• GOOGLE+ HANGOUTS• EMAIL HEALTHINNOVATORS@OPENMHEALTH.ORG TO

PARTICIPATE IN WORKING GROUPS

connect with us• WEB: www.openmhealth.org • TWITTER: @open_mhealth• email@openmhealth.org