narrative medicine and hand therapy: reflecting on case examples

2
the inter-rater and intra-rater reliabil- ity of PRIME, as well as to establish normative values for intrinsic muscle strength in children. Methods: With IRB approval and parental informed consent, typically developing children in local summer day camps were recruited for the study. Four intrinsic muscle groups were tested in each hand: thumb palmar abduction (APB), thumb op- position (OP), index finger abduction (first DI) and little finger abduction (hypothenar mm). We calculated mean, standard deviation, intraclass correlation coefficient (ICC) and smallest detectable difference (SDD) using SPSS software (Chicago, Ill) for inter-rater and intra-rater reliability. Regression analysis was performed for normative values by age, gender, and hand dominance. Results: 30 children (15 boys, 15 girls), ages 7–16, participated in the study. ICCs ranged from 0.85 to 0.94 for inter-rater reliability and 0.88–0.98 for intra-rater reliability. Bland- Altman plots presented an even dis- tribution across the zero line indicat- ing minimal skew. Normative data is presented as growth curves with 10th, 50th and 95th percentiles delineated for both boys and girls. Conclusions: PRIME is a reliable tool for the quantification of intrinsic hand muscle strength. Age and gen- der specific normative values in typ- ically developing children can serve as a clinical resource for clinicians. Relevance: Intrinsic hand muscle strength is a clinically important pa- rameter for evaluation of function, surgical decision making and reha- bilitative tracking. There is a need for reliable and reproducible objective measures of pediatric hand strength in congenital, traumatic, and degen- erative neuromuscular conditions. OBJECTIVES 1. Introduce intrinsic strength measurements in children as a routine part of clinical evaluation. 2. Establish reliability of a novel device for the specific purpose of measuring intrinsic hand muscle strength. 3. Provide normative values for intrinsic hand muscle strength in typically developing chil- dren as a clinical resource for affected populations. DEVELOPMENT AND IMPLEMENTATION OF A HAND THERAPY EXTENDED SCOPE DIAGNOSTIC CLINIC FOR BOTH ELECTIVE AND TRAUMA HAND CONDITIONS TO ENHANCE PATIENT CARE Robyn-Lee Rose, Guy’s & St Thomas’ NHS Foundation Trust, United Kingdom Purpose: A changing and compet- itive health market demands the need to review existing services and de- velop new ways of working in order to improve and maintain service de- livery. Developing the role of the extended scope practitioner (ESP) and altering patient pathways through specialist hand units is one way service delivery can be im- proved to enhance patient care by providing early access to a specialist opinion and investigations. Methods: 100 General Practitioner (GP) referrals for carpal tunnel syndrome (CTS) and first Carpometacarpal osteoarthritis (CMC OA) were selected to attend an ESP clinic audit led by two special- ist occupational therapists for diag- nosis and implementation of a conservative treatment programme, which was confirmed by a consultant. The ESP clinic was audited against key performance indicators to evalu- ate ESP effectiveness and improve- ments in the patient pathway. Results: The ESP can effectively diagnose and manage CTS and CMC OA patients without increasing the demand for surgical opinion or pro- cedures. The ESP is also effective in diagnosing other conditions such as early-onset Dupuytren’s disease, de Quervain’s disease, ganglions and trigger finger. The ESP clinic has de- veloped further to include the assess- ment and management of acute wrist trauma to support Accident and Emergency in the identification and management of fractures and liga- ment injuries. Conclusions: ESP clinics have the potential to improve the patient path- way by providing earlier access to a specialist opinion for a diagnosis and management of both trauma and elective hand conditions thereby im- proving service delivery. Relevance: ESPs are clinical ex- perts who have demonstrated ad- vanced knowledge and skill who can meet the needs of a changing and competitive health care market to improve service delivery and en- hance patient care, which is in line with global health trends. OBJECTIVES 1. Describe the practical aspects of developing the ESP in terms of implementing a pi- lot study to determine the need for the role, identify training competencies, deter- mine key performance indica- tors and obtaining ratification from clinical governance to order specialist investigations such as nerve conditions, blood tests and MRI scans. 2. Present the results of pilot audited against the key perfor- mance indicators. 3. Discuss the subsequent devel- opment of the ESP role in as- sessing and managing acute wrist trauma to identify wrist fractures and ligament injuries that have been missed in the Accident & Emergency depart- ment and the resultant positive impact on patient care. NARRATIVE MEDICINE AND HAND THERAPY: REFLECTING ON CASE EXAMPLES Cynthia Cooper, Scottsdale Healthcare, United States of America Purpose: Evidence-based medi- cine is the integration of best research evidence with clinical expertise and patient values. Incorporating patient values into hand therapy is accom- plished through the use of narrative medicine. Narrative medicine is October–December 2010 e25

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Page 1: Narrative Medicine and Hand Therapy: Reflecting on Case Examples

the inter-rater and intra-rater reliabil-ity of PRIME, as well as to establishnormative values for intrinsic musclestrength in children.

Methods: With IRB approval andparental informed consent, typicallydeveloping children in local summerday camps were recruited for thestudy. Four intrinsic muscle groupswere tested in each hand: thumbpalmar abduction (APB), thumb op-position (OP), index finger abduction(first DI) and little finger abduction(hypothenar mm). We calculatedmean, standard deviation, intraclasscorrelation coefficient (ICC) andsmallest detectable difference (SDD)using SPSS software (Chicago, Ill) forinter-rater and intra-rater reliability.Regression analysis was performedfor normative values by age, gender,and hand dominance.

Results: 30 children (15 boys, 15girls), ages 7–16, participated in thestudy. ICCs ranged from 0.85 to 0.94for inter-rater reliability and 0.88–0.98for intra-rater reliability. Bland-Altman plots presented an even dis-tribution across the zero line indicat-ing minimal skew. Normative data ispresented as growth curveswith 10th,50th and 95th percentiles delineatedfor both boys and girls.

Conclusions: PRIME is a reliabletool for the quantification of intrinsichand muscle strength. Age and gen-der specific normative values in typ-ically developing children can serveas a clinical resource for clinicians.

Relevance: Intrinsic hand musclestrength is a clinically important pa-rameter for evaluation of function,surgical decision making and reha-bilitative tracking. There is a need forreliable and reproducible objectivemeasures of pediatric hand strengthin congenital, traumatic, and degen-erative neuromuscular conditions.

OBJECTIVES

1. Introduce intrinsic strengthmeasurements in children asa routine part of clinicalevaluation.

2. Establish reliability of a noveldevice for the specific purposeof measuring intrinsic handmuscle strength.

3. Provide normative values forintrinsic hand muscle strength

in typically developing chil-dren as a clinical resource foraffected populations.

DEVELOPMENTANDIMPLEMENTATION OFAHAND THERAPYEXTENDED SCOPEDIAGNOSTIC CLINICFOR BOTH ELECTIVEAND TRAUMA HANDCONDITIONS TOENHANCE PATIENTCARE

Robyn-Lee Rose, Guy’s & StThomas’ NHS Foundation Trust,United Kingdom

Purpose: A changing and compet-itive healthmarket demands the needto review existing services and de-velop new ways of working in orderto improve and maintain service de-livery. Developing the role of theextended scope practitioner (ESP)and altering patient pathwaysthrough specialist hand units is oneway service delivery can be im-proved to enhance patient care byproviding early access to a specialistopinion and investigations.

Methods: 100 General Practitioner(GP) referrals for carpal tunnelsyndrome (CTS) and firstCarpometacarpal osteoarthritis(CMC OA) were selected to attendan ESP clinic audit led by two special-ist occupational therapists for diag-nosis and implementation of aconservative treatment programme,whichwas confirmed by a consultant.The ESP clinic was audited againstkey performance indicators to evalu-ate ESP effectiveness and improve-ments in the patient pathway.

Results: The ESP can effectivelydiagnose and manage CTS and CMCOA patients without increasing thedemand for surgical opinion or pro-cedures. The ESP is also effective indiagnosing other conditions such asearly-onset Dupuytren’s disease, deQuervain’s disease, ganglions andtrigger finger. The ESP clinic has de-veloped further to include the assess-ment and management of acute wristtrauma to support Accident andEmergency in the identification andmanagement of fractures and liga-ment injuries.

Conclusions: ESP clinics have thepotential to improve the patient path-way by providing earlier access to aspecialist opinion for a diagnosis andmanagement of both trauma andelective hand conditions thereby im-proving service delivery.

Relevance: ESPs are clinical ex-perts who have demonstrated ad-vanced knowledge and skill whocan meet the needs of a changingand competitive health care marketto improve service delivery and en-hance patient care, which is in linewith global health trends.

OBJECTIVES

1. Describe the practical aspectsof developing the ESP interms of implementing a pi-lot study to determine theneed for the role, identifytraining competencies, deter-mine key performance indica-tors and obtaining ratificationfrom clinical governance toorder specialist investigationssuch as nerve conditions,blood tests and MRI scans.

2. Present the results of pilotaudited against the key perfor-mance indicators.

3. Discuss the subsequent devel-opment of the ESP role in as-sessing and managing acutewrist trauma to identify wristfractures and ligament injuriesthat have been missed in theAccident & Emergency depart-ment and the resultant positiveimpact on patient care.

NARRATIVE MEDICINEAND HAND THERAPY:REFLECTING ON CASEEXAMPLES

Cynthia Cooper, ScottsdaleHealthcare, United States ofAmericaPurpose: Evidence-based medi-

cine is the integration of best researchevidence with clinical expertise andpatient values. Incorporating patientvalues into hand therapy is accom-plished through the use of narrativemedicine. Narrative medicine is

October–December 2010 e25

Page 2: Narrative Medicine and Hand Therapy: Reflecting on Case Examples

practice that includes professional-ism, empathy, trustworthiness, andreflection. A narrative approach inhand therapy requires the ability toabsorb, interpret, recognize, and bemoved by patients’ stories.

Methods: This paper reviews theliterature on narrative medicine andapplies narrative themes to handtherapy intervention in order to max-imize the integration of patientvalues into clinical care. Case exam-ples will demonstrate how narrativemedicine may look like casual con-versation between the therapist andpatient, but what is occurring is ac-tually quite powerful and poignant.This paper teaches specific commu-nication techniques that elicit per-sonal and meaningful informationfrom the patient. Case examples willshow how both the patient and theprovider participate in the exchange,with the provider listening actively,providing eye contact, reflecting,avoiding interruptions, and askingopen-ended questions. Patients feellistened-to when they have opportu-nities reflect on emotional aspects ofthe upper extremity problem forwhich they were referred. The caseexamples illustrate how use of narra-tive in hand therapy improves theircare.

Results: Narrative medicineteaches us that patients’ stories arenot trivial; that hand therapistsshould treat the patient’s illness ex-perience, not just the disease or im-pairment; and that patients’ medicalhistories represent only a part of theirrelevant stories. Hand therapy caseexamples will portray a scenario foreach of these themes and the narra-tive message of these examples willbe clearly explained.

Conclusions: The medical modeladvocates that therapists maintainobjectivity and professional distance.Hand therapists need to be structure-specific in order to treat diseases andinjuries safely and accurately. But wemaximize hand therapy’s relevanceand meaning to patients by acknowl-edging and incorporating the subjec-tive aspects of their experiences andstories. The practice of narrativemedicine in hand therapy allows pa-tients’ stories to unfold so that theirhand therapy care can incorporatetheir values and thus be more per-sonalized and meaningful to them.

e26 JOURNAL OF HAND THERAPY

Relevance: Narrative medicine ex-emplifies how much richness is illu-minated in the revealing of aparticular detail. When we listen topatients’ stories, we in effect collabo-rate with them to create new lifestories. Use of a narrative approachuncovers details that reflect patientvalues, thereby contributing to thepractice of evidence-based medicinein hand therapy.

OBJECTIVES

1. Define narrative medicine as itapplies to hand therapy.

2. Identify three ways to promotestorytelling in hand therapypatients.

3. Name three open-ended ques-tions to elicit patients’ stories.

INNOVATION INPRACTICE: ONE-STOPCARPAL TUNNELCLINIC

Donna Kennedy, ImperialCollege Healthcare NHS Trust,Cathy Ball, Jagdeep Nanchahal,United Kingdom

Purpose: Carpal tunnel syndrome(CTS) is the most common compres-sion neuropathy and in the UnitedKingdom in 2000, operative treat-ment was undertaken for 31% ofnew cases. In 2008, the NationalHealth Service Improvement Planstated that no patient should waitlonger than 18 weeks from referralto hospital treatment. In response, aOne-Stop Carpal Tunnel Clinic (CTC)was developed to provide timely,quality care.

Methods: The CTC is a treatmentand research clinic, investigating theoutcomes of the management of CTS.Prior to attending, patients receivepatient information sheet and com-plete questionnaires. At the clinic, aSurgeon completes an examinationand provocative tests and HandTherapist completes evaluation andnerve conduction studies. Nerve con-duction studies are performed utilis-ing portable electrodiagnostic device.Assessment findings and nerve studyresults are reviewed, a diagnosismade, and treatment administered

on the day. The CTC is innovative;conducted bi-weekly on Saturdaymornings, accommodating patients’schedules; assessment and treatmentprovided in one appointment, mini-mising visits and delays; treatmentand research clinic; hand therapistswork in extended scope role, performnerve conduction studies

Results: Patient satisfaction withthe CTC is evaluated with a ques-tionnaire with a high degree of satis-faction reported. Clinical outcome isassessed at three months with theBoston Carpal Tunnel Questionnaire(BCTQ), and at one year with theBCTQ, Michigan Hand OutcomesMeasure (MHQ), strength and sensi-bility. The BCTQ is a disease-specificquestionnaire for evaluating symp-tom severity and functional impair-ment (Levine et al 1993). Items arerated on a scale of 1 to 5, with lowerscores implying milder symptomsand less functional impairment. Apaired-samples t-test was conductedto evaluate the impact of treatmenton BCTQ scores. In the surgery group(n 5 43) there was a statisticallysignificant decrease in symptomscores from pre-surgery (M 5 3.10,SD 5 0.98)) to 3 months postsurgery(M 5 1.99, SD 5 0.94, t (42) 5 7.73,p , .0005). There was a large effectsize for symptoms (.587) and a mod-erate effect size (.35) for function. Inthe injection group (n 5 5), there wasa decrease in symptom and functionscores but this did not approach sta-tistical significance.

Conclusions: Results of a patientsatisfaction questionnaire and theBCTQ indicate a high level of patientsatisfaction and excellent clinical out-comes at three months post-surgery.

Relevance: Evidence of the effec-tiveness of hand therapists in ex-tended scope role; Increasedunderstanding of clinical outcomerelative to pretreatment symptom se-verity; Evidence of patient satisfac-tion with innovative service.

OBJECTIVES

1. To report on and increaseawareness of innovation inpractice.

2. To report evidence of handtherapists working in an ex-tended scope fashion, with