makna introductory programme (MIP)

MISSIONMISSION

To mobilise resources in order to provide curative, To mobilise resources in order to provide curative, preventive, research and support services to cancer preventive, research and support services to cancer patients and their families, high risk groups and the patients and their families, high risk groups and the

general public, in Malaysia and the World.general public, in Malaysia and the World.

o MAKNA is a registered charity with the Registrar of Societies on 10 November 1994

o Launched on 30th March 1995o Patron : Ke Bawah Duli Yang Maha Mulia Sultan

Pahango Entity : SOCIAL ENTERPRISEo Affiliated to UICC (International Union Against

Cancer – dedicated to Global prevention and control of cancer)

Dato' Mohd Farid Arifin has vast

management, organisational

and entrepreneurship

experience , having served as a

teacher, lecturer and lawyer

and later as

Deputy Finance Minister (1987

– 1989) and

Deputy Health Minister (1989 –

1995).

MAKNA was set up from his

own family experience, and

today it is a home-grown

organisation fully focused on

cancer.

Dato’ Mohd Farid AriffinFounder and President, MAKNA

TAN SRI ZAIN HASHIMTAN SRI ZAIN HASHIM – Chairman of Amsteel Corp Bhd, Dir Lion Group

BOARD OF TRUSTEESBOARD OF TRUSTEES

People Behind MAKNAPeople Behind MAKNAPATRONPATRON KE BAWAH DULI YANG MAHA KE BAWAH DULI YANG MAHA MULIAMULIASULTAN PAHANGSULTAN PAHANG

YAM TENGKU PUTERI LELAWANGSA YAM TENGKU PUTERI LELAWANGSA TENGKU TAN SRI HAJJAH MERIAMTENGKU TAN SRI HAJJAH MERIAM

ViceVice PresidentPresident – PROF EMERITUS DR CHEONG SOON KENG PROF EMERITUS DR CHEONG SOON KENG – Lecturer IMU & Heamatologist

Honorary SecretaryHonorary Secretary ERIC LAI TUCK ERIC LAI TUCK SING SING Lawyer, Lai & Associate

Asst Asst Honorary SecretaryHonorary Secretary - DATIN FREIDA DATO - DATIN FREIDA DATO MOHD PILUSMOHD PILUS – Chairman Sek Sri Cempaka (Int)

Asst Honorary Asst Honorary TreasurerTreasurer ZAINOL TALIBZAINOL TALIB Charted Fin Consultant& Life Underwriter Training Council Fellow

Member- PUAN MIMI PUAN MIMI HAFIZANHAFIZAN ABDUL RAHMAN ABDUL RAHMAN – Director of Klinik Nina

MemberMember - MS YEO ENG - MS YEO ENG LAM LAM – MD Kemajuan Abadi

Sdn Bhd

Honorary TrHonorary Treasurereasurer - DOUGLAS TAN DOUGLAS TAN HOCK KEE HOCK KEE

- Exec Dir, Asian Business Solutions Sdn Bhd

MemberMember - PROF. DATIN PADUKA - PROF. DATIN PADUKA DR AINI IDERISDR AINI IDERIS – Deputy Vice Canselor UPM

Member – TOH PUAN SRI SAGIYAH – TOH PUAN SRI SAGIYAH SALIKIN SALIKIN

– wife to Chairman of PNB Tun Dato’ Seri Ahmad Sarji

MemberMember - PROF. DR.- PROF. DR. JAFRI MALINJAFRI MALIN

ABDULLAHABDULLAH – Head of Dept Sch of Medicine HUSM Kubang Kerian, Kelantan

Member - PROF. MADYA DR ISHAK - PROF. MADYA DR ISHAK

MATMAT– Deputy Dir Research Advance

Media & Dental Institute USM, Penang

The EXECUTIVE COMMITTEEThe EXECUTIVE COMMITTEE

Also known as Kemunting Cina – has 2 alkaloids called Vinblastine and Vincristine – used either alone or in combination with other forms of therapy for cancer

treatment (chemotherapy)

PERIWINKLEPERIWINKLE

Also known as Kemunting Cina – has 2 alkaloids called Vinblastine and Vincristine – used either alone or in combination with other forms of therapy for cancer

treatment (chemotherapy)

We are trusted by… PATIENTSPATIENTSDONORSDONORS

MINISTRY OF HEALTHMINISTRY OF HEALTHMINISTRY OF FINANCEMINISTRY OF FINANCE

MINISTRY OF EDUCATIONMINISTRY OF EDUCATIONMINISTRY OF HIGHER EDUCATIONMINISTRY OF HIGHER EDUCATION

CORPORATE SPONSORSCORPORATE SPONSORS

We are audited by…

We are tax exempted…

*Dikecualikan cukai pendapatan menurut seksyen 44 (6) Akta Cukai Pendapatan 1967 :RUJ: LHDN. 01/35/42/51/179-6.4232 Nombor Warta Kerajaan 2153 bertarikh 30 Mac

1995

TREATMENT

RESEARCH

CANCER AWARENESS & EDUCATION

SUPPORT SERVICES

FUNDRAISING

MAKNAMAKNA CORECORE ACTIVITIESACTIVITIES

YEAR INCOME EXPENDITURE

1995 3,611,682 247,954

1996 22,428,867 696,346

1997 2,816,682 1,431,106

1998 3,530,298 576,932

1999 2,769,835 1,203,054

2000 1,797,910 3,924,489

2001 2,533,504 4,087,888

2002 2,156,684 4,474,615

2003 8,758,452 6,662,388

2004 14,857,936 9,035,665

2005 16,994,315 10,354,002

2006 18,237,697 14,139,424

2007 20,828,134 20,464,291

2008 22,987,110 21,962,846

2009 25,063,910 23,146,604

2010 25,326,083 23,870,812

Your long Term supportis essential• RM85.5 million is needed to fund all MAKNA

cancer projects for 5 years

• An average patients needs 5 years for full recovery

• An average patient’s treatment cost is RM50,000

Pusat Kanser PPUKM – MAKNA (since 19 April, 1999)Pusat Perubatan Universiti Kebangsaan Malaysia (PPUKM)

Oncology Ward – 28 bedded Male & Female Ward

Bone Marrow Transplant Unit – 12 bedded

Radiotherapy Unit

Over 150,000 cases treated

Over 200 bone marrow transplant conducted

Divided into paying & non-paying patients

Nurse to patient ratio 1:7

Operational costs:RM 3 million a year

(approx)

Pusat Kanser PPUKM - MAKNA

Pusat Kanser PPUKM - MAKNA

PATIENT FRANCO TAN, SABAH

PATIENT HELDEEN DONNY 14 YEARS,KENINGAU SABAH – 100TH TRANSPLANT AUG 2007

MAKNA Cancer Research Collaboration aims to promote and enhance cancer research among local scientists.

Research topics covered:-

1.Basic Research

2.Preclinical Research

3.Clinical Research

4.Epidemiology Research

5.Health policy & outcomes Research

Since 2001 MAKNA has invested in 17 collaborative efforts where 30 research topics have been initiated.

RM 9.3 million RM 9.3 million INVESTEDINVESTED

Areas of Research:

1.Development of New Drugs – 6 projects

2.Study on Food – 4 projects

3.Survey (cancer screening / poverty) – 2 projects

4.Developments of screening tools – 1 project (cervical cancer

5.Bone Marrow Donor Registry – Institute Medical Research (IMR)

6.MAKNA Cancer Research Award (Academy of Science Malaysia)

Collaboration with Higher Learning Institutions (IPTA & IPTS) & Research Institutions - IMR

Projects are evaluated by a technical committee and approved by MAKNA EXCO before dispersal of funds

7 projects undergoing pre-clinical trials (animal studies)

Produced 13 Ph.D & 53 Master

LUMINEX MACHINELUMINEX MACHINE

Automated HLA typing of samplesHuman Leukocyte Antigen (HLA) typing, determines whether a patient has a suitable donor for stem cell transplant. These tests are performed on several tubes of blood drawn from the arm.

Capabilities : 40 samples a dayPurpose : to increase the chances of a match from a non-related donorPossibilities : linked to international registriesTotal capital costs : RM 265 000

BONE MARROW DONOR BONE MARROW DONOR REGISTRYREGISTRYThe Malaysian Marrow Donor Registry is dedicated to compiling a database of volunteers who have registered to become bone marrow donors. This database offers a chance to patients who are suffering from life-threatening blood disorders and are unable to find a suitable donor from their siblings.

Bone Marrow Donor Registry - IMR Jalan Ampang KL Tel: 03-2616 2790 E-mail: mmdr@imr.gov.my

The MMDR was setup in December 1999. It is a joint project of the MAKNA, the Ministry of Health and the Institute of Medical Research.

As at 20 June 2010 we have more than 16,432 registered donors from 14,823 in 2009.

Eligibility to donate – between 18 to 50 years old

Luminex machine

Development of Cancer Vaccine from Newcastle Disease Virus (NDV)Newcastle Disease Virus (NDV)

Principal ResearcherProf. Datuk Paduka Dr. Aini Ideris (UPM) - BreastProf. Dr. Jafri Malin Dato’ Haji Abdullah (HUSM) - Brain

Team MembersProf. Dr. Manaf Ali - LeukemiaProf. Dr. Fauziah OthmanProf. Datin Paduka Dr. Khatijah YusoffProf. Dr. Abd Rahman Omar

Induce tumor to nude mice

Induce NDV virus from chicken

Cost per nude mice: RM2,000 – AustraliaRM200 – local e.g. IMRNude Mice life span: 6 months

Note: Utusan Malaysia, 12 April, 2007

After 10 days tumor disappears

Amount Allocated RM2,125,500

Project Duration 2001-2011

Research Findings:NDV Virus can be used as an anti-canceragent (Breast Cancer / Brain Tumor & Leukemia)

Stage: Pre-clinical End

MAKNA is continuously undertaking nationwide education and awareness programmes to address the

lack of cancer knowledge in our community.

RM500,000 a year RM500,000 a year (approximately)(approximately)

Booklets WebsiteCalendars Display PanelsAnnual Report Human AnatomyBanner & Buntings Newspaper Articles Exhibitions Materials Newsletter & EditorialsFlyers, Leaflets & PostersRadio & TV Community Announcements

Pusat Kanser PPUKM – MAKNA Nurses

MAKNA-Parkson Grand-Pathlab Blood

glucose Test Campaign

MAKNA has initiated numerous programmes to support cancer sufferers and their families.

Service to the

community

BURSARY PROGRAMME – Financial ServicesBURSARY PROGRAMME – Financial Services

The Bursary Programme provides monthly financial assistance of RM 150- RM 500, purchasing of surgical equipment and expensive drugs to needy cancer patients upon referral from Hospital Medical Welfare Departments. Yearly, MAKNA aids over 4,000 patients through this programme.

Interventions are in the form of:- urostomy / colostomy bags for 6 months to 1 year chemoports used in delivery of chemotherapy drugs liquid food (special diet) & palliative care prosthesis (cornea/breasts/femur etc) non-formulary drugs hearing aid suction machine metallic stent diapers ripple mattress oxygen concentrator Petty cash to Welfare Departments in emergency cases

crutches / walking sticks portable / mobile toilet Wheelchairs total body irradiation Funeral Expenses

MAKNAMAKNA

Jabatan Kerja Sosial

Perubatan

Doctor

refer

Government Hospital

notify patient

Private Hospital

refer to

notify jabatankerja sosialperubatan

MAKNA process- 2 weeks

refer toMAKNA

Expenditure: RM 9 million a year (approx)

Referrals received from 75 hospitals through out Malaysia (general & district hospitals). Majority of cases are from the public poor; earning an income of less than RM 500 a month.

Weekly applications received and processed within 2 weeks

Applications received: 90 cases a weekNote: Early 2008, 50 cases per week

Covers adult and pediatric

a urostomy involves diverting urine through

a stoma when the bladder has been

blocked or removed

a valve is inserted into the opening.

voice prosthesis

a colostomy is when the colon

is cut in half and the end leading to the stomach

is brought through the wall of the abdomen and attached to

the skin colostomy bag

hearing aid

Bursary ProgrammeBursary Programme

Metallic Stentbypass obstruction

a port inserted in your upper chest wall (the space between your collarbone and your breast) to make chemotherapy easier and more comfortable

Oxygen therapy increases the

amount of oxygen that flows into your

lungs and your bloodstream. Oxygen may

increase comfort for people who have

lung cancer, but it does not treat the

cancer

oxygen concentrator

chemo port

Bursary ProgrammeBursary Programme

RM860

RM3,500

to prevent and treat pressure sores a ripple mattress is used beneath the patient to relieve the pressure on the tissue and allow blood flow in the tissue

rippleMattressRM420

adult diapers

wheel chair – RM280on loan

crutches

portable / mobiletoilet

suctionmachine

Bursary ProgrammeBursary Programme

• Ensure Milk Powder

RM31.20/tin 400grams x 60 tins (6 months) = RM1,872

• Enercal Plus Liquid

RM62/tin 900grams x 12tins (3 months) = RM2,232

• Adult Diapers Size M

RM22/box (120 pieces / 3months) x 36 = RM790

• Esophageal Stent

1 unit = RM3,500

• Chemoport

1 unit = RM860

• Surgical Stapler = RM1,500 to RM2,439 GIA 8038S – Single Use Staplet (1pc) – RM700

GIA 8038L(SULU) – Single Use Loading Unit (2pcs) – RM800

• Endoprosthesis (GMRS Proximal Femur) – RM20,000 Giant Cell Tumors - usually found in the long bones, most often the distal femur, proximal tibia, and distal

radius.

Bursary ProgrammeBursary Programme

Surgical Stapler

• Ballon Compression – RM5,025

• Chemotherapy Topotecan Inj (Hycantin) 4mg RM2,584/cycle x 6 cycle = RM15,504

• DRUG - Femara 2.5mg (long term medication treatment required) 6 months supply - daily oral intake = RM3,213.60 (Femara help reduce risk of Breast Cancer returning in early stage of Breast Cancer. It helps to starve cancer cells)

• Hearing Aid (NPC) – RM6,409

• Oxygen Concentrator – RM5,150

• UniLOCK Reconstruction Plate 2.4 (Titanium) – RM4,516

• Total Body Irradiation – RM23,000 is a form of radiotherapy used primarily as part of the preparative regimen for haematopoietic stem cell or bone marrow transplantation

• Total Hip Replacement – RM12,800 Chondrosarcoma (malignant mesenchymal tumor, cartilage tumor) - occurs in age 50’s or 60’s, most common in the femur, humerus, ribs and on the surface of the pelvis

Bursary ProgrammeBursary Programme

Bursary ProgrammeBursary Programme

• PEG Tube – RM750 Percutaneous Endoscopic Gastrostomy (PEG) - A feeding tube is a medical device used to provide nutrition to patients who cannot obtain nutrition by swallowing.

•

YEAR YEAR ADULT ADULT PEDIATRIC PEDIATRIC TOTAL TOTAL

PATIENT PATIENT TOTAL DISBURSED TOTAL DISBURSED

(RM) (RM) 1995 1 1 2 6,000.00

1996 0 0 0 0

1997 4 24 28 60,310.00

1998 13 22 35 72,350.00

1999 4 0 4 7,943.00

2000 13 3 16 41,006.00

2001 46 8 54 123,565.40

2002 63 19 82 132,565.40

2003 78 75 153 327,450.67

2004 211 107 318 699,649.53

2005 438 136 574 1,969,125.30

2006 1,057 321 1,378 5,303,037.00

2007 1,753 388 2,141 7,615,037.82

2008 2,709 474 3,183 8,726,699.69

2009 3,763 452 4,215 8,969,839.00

2010 3,586 417 4,003 8,038,987.00

TOTAL TOTAL 13,73913,739 2,4472,447 16,18616,186 42,093,365.8142,093,365.81

Bursary Programme – FUND DISPERSEMENT Bursary Programme – FUND DISPERSEMENT (since 1995)(since 1995)

HOME VISITHOME VISIT

All patients under the Bursary Program are visited at home by the MAKNA Home Visit Team, Volunteers and Staff to evaluate their treatment progress and socio-economic status.

MICRO CREDITMICRO CREDIT

Implemented to provide small unsecured loans to cancer patients, survicors and their families for income improvement through business activities, are interest free and require no collateral.

Young Cancer SURVIVOR SCHOLARSHIP ProgrammeYoung Cancer SURVIVOR SCHOLARSHIP Programme

This programme aims to support young cancer survivors wishing to further their tertiary studies. Underprivileged cancer survivors aged 25 or younger, with the right potential and interest, will be given assistance for a better future through education.

Cancer Support GroupCancer Support Group

Our team of well-trained staff comprising volunteers and cancer survivors are constantly on hand to counsel cancer patients and their family members on coping with the emotional suffering of cancer.

Half Way HomeHalf Way Home

It is a house which allows patients and their caretakers who are from afar to stay for a short while waiting to receive treatment from the hospital.  It makes it easy for the patient to travel back and forth if it is required for him or her to undergo treatment for certain duration.  The current halfway house is located in Taman Mount Austin, Johor.

MAKNA Cancer Helpline MAKNA Cancer Helpline (MCH)(MCH)

Toll-free helpline and infoline for cancer patients, their families and general public. Can be contacted at 1-800-88-MAKNA (62562).

2011 Expected launch- first mobile cancer screening unit

1994 set up and registered under Registrar of Societies 1995 Received tax exemption status 1995, 30 March officially launched 1999, 19 April opened IKM PPUKM 1999, Malaysian Marrow Donor Registry (MMDR) + HLA Typing joint project MOH & IMR 2001 Research collaborations 2005 Introduced Young Survivors Scholarship Programme 2006 Introduced Micro Credit 2008 Launched MAKNA Cancer Information Service 1-800-88-MAKNA (62562)

Reference Note:-

2005 - an idea, work in progress2007 - mobile unit was builtLicense to - Set up Mobile UnitLicence to - Installation & Operations of the Mammogram machine

onto Mobile Unit14 Oct 2010 - viewed by Ministry of Health at Putrajaya, unit under

Bahagian Amalan (Best Practice) for final assessment & approval

7 Nov 2010 - Approved

2011 - set to be on the road- roadshow schedule- launch

Pusat Kanser PPUKM - MAKNA - 55 - staff nurses (37) , head nurses (2), nurse manager (1), research officers (3), research assistant (1), scientific officers (4), ward clerk (2), counselor (1), data officer (1), coordinator (1), admin assistant (2) Research Team - 23 Halfway House Coordinator (johor) - 1 MAKNA HQ - 71

TOTAL

150

This reserve will allow the services to continue to serve cancer patients especially those from the public poor to gain access to the latest in cancer treatment even after 50 years .

Research can be conducted with continued funding.

Some of the projects are displayed herewith.

MAKNA conducts an average of 2 events a day.

Without a constant flow of Funds, all of MAKNA’s services would cease.

Patients, families, researches and public alike will not be able to benefit.

Hence, MAKNA is always in the top gear towards creating a sustainable income.

PAYROLL GIVING

DIRECT DEBIT DONOR PROGRAMME (DDDP)

DIRECT MAIL

MAKNA MAS LOOSE CHANGE CAMPAIGN

SENS SAVES LIVES (SSL)

E-CHARITY http://www.makna.org.my/donate.asp

KEMPEN KUTIP SYILING / Kempen Satu Sen

WILLS & TRUST

TELEMARKETING – May 2009

MSIG MAKNA Student Insurance SchemeRM10/RM20 per annum covers RM50,000 Permanent Disablement & RM10,000 to cancer.MSIG donates 5% of gross premium from the policy.

VOLUNTEER Management VOLUNTEER Management

Volunteerism is vital to a non-profit organisation like MAKNA. Every year, more people realise the essential services that volunteers provide and seek to be a part of this noble calling.

By registering as volunteers they offer invaluable contributions and assistance in MAKNA’s mission to help cancer sufferers and combat the disease.

Basic Nursing Care 1 & 2

MAKNA Introductory Programme

Home Visit

VOLUNTEER VOLUNTEER ManagementManagement

community outreach programme

VOLUNTEER ManagementVOLUNTEER Management

cancer awareness & fundraising

give away books home visit

VOLUNTEER ManagementVOLUNTEER Management

coin / cash sorting patch work

MAKNA (Majlis Kanser Nasional /

National Cancer Council)

BG 03A & 05, Ground Floor

Megan Ambassy, 225 Jalan Ampang

50450 Kuala Lumpur

Malaysia

Tel: 03-2162 9178

Fax: 03-2162 9203

E-mail: makna@makna.org.my

www.makna.org.my

THANK THANK YOU!YOU!