michael koenig, president lori smetanka, interim executive ... · michael koenig, president lori...

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Michael Koenig, President Lori Smetanka, Interim Executive Director Ph: 202.332.2275 Fax: 866.230.9789 www.theconsumervoice.org The National Consumer Voice for Quality Long-Term Care (formerly NCCNHR) is a 501(c)(3) nonprofit membership organization founded in 1975 by Elma L. Holder that advocates for quality care and quality of life for consumers in all long-term-care settings. 1001 Connecticut Avenue, NW • Suite 425 • Washington, DC 20036 November 11, 2015 Kathy Greenlee, Administrator and Assistant Secretary Administration for Community Living Administration on Aging U.S. Department of Health and Human Services Washington, DC 20201 RE: Comments on Draft Consensus Guidelines for State Adult Protective Services Systems Dear Administrator Greenlee: The National Consumer Voice for Quality Long-Term Care (Consumer Voice) thanks you for the opportunity to provide comments on the Draft Consensus Guidelines for State Adult Protective Services (APS) Systems. The Consumer Voice fully supports the development of these guidelines, as well as ACL being the Federal home of the Office of Elder Justice and APS. Considering the integral relationship of the Office and APS with other partners in the Aging Network makes ACL the appropriate place for them to be located. We also are pleased at the efforts expended to develop a data collection system for APS, recognizing the importance of data in establishing goals and priorities for the APS program. As a comparison, the National Ombudsman Reporting System has been an invaluable tool at both the state and national levels in identifying trends, setting priorities, and managing ombudsman program activities. We believe an APS data system will be equally useful, plus will provide information to begin filling in the gaps that currently exist related to the type and prevalence of elder abuse. 1. Program Administration: We support the development of a Code of Ethics for APS Practice, as we believe it will provide foundational guidance for response in challenging situations; and agree that the key concepts of Least Restrictive Alternative, Person-centered service, Trauma-informed approach, and Supported decision-making be incorporated into the ethical principles. We do incorporate here the suggestion by the National Association of State LTC Ombudsman Programs (NASOP) to re-define Person-centered service and recommend that you incorporate their revised definition into the Guidelines.

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Page 1: Michael Koenig, President Lori Smetanka, Interim Executive ... · Michael Koenig, President Lori Smetanka, Interim Executive Director Ph: 202.332.2275 Fax: 866.230.9789 The National

Michael Koenig, President Lori Smetanka, Interim Executive Director

Ph: 202.332.2275

Fax: 866.230.9789 www.theconsumervoice.org

The National Consumer Voice for Quality Long-Term Care (formerly NCCNHR) is a 501(c)(3) nonprofit membership organization founded in 1975 by Elma L. Holder that advocates for quality care and quality of life for consumers in all long-term-care settings.

1001 Connecticut Avenue, NW • Suite 425 • Washington, DC 20036

November11,2015KathyGreenlee,AdministratorandAssistantSecretaryAdministrationforCommunityLivingAdministrationonAgingU.S.DepartmentofHealthandHumanServicesWashington,DC20201

RE:CommentsonDraftConsensusGuidelinesforStateAdultProtectiveServicesSystems

DearAdministratorGreenlee:TheNationalConsumerVoiceforQualityLong-TermCare(ConsumerVoice)thanksyoufortheopportunitytoprovidecommentsontheDraftConsensusGuidelinesforStateAdultProtectiveServices(APS)Systems.TheConsumerVoicefullysupportsthedevelopmentoftheseguidelines,aswellasACLbeingtheFederalhomeoftheOfficeofElderJusticeandAPS.ConsideringtheintegralrelationshipoftheOfficeandAPSwithotherpartnersintheAgingNetworkmakesACLtheappropriateplaceforthemtobelocated.WealsoarepleasedattheeffortsexpendedtodevelopadatacollectionsystemforAPS,recognizingtheimportanceofdatainestablishinggoalsandprioritiesfortheAPSprogram.Asacomparison,theNationalOmbudsmanReportingSystemhasbeenaninvaluabletoolatboththestateandnationallevelsinidentifyingtrends,settingpriorities,andmanagingombudsmanprogramactivities.WebelieveanAPSdatasystemwillbeequallyuseful,pluswillprovideinformationtobeginfillinginthegapsthatcurrentlyexistrelatedtothetypeandprevalenceofelderabuse.1.ProgramAdministration:WesupportthedevelopmentofaCodeofEthicsforAPSPractice,aswebelieveitwillprovidefoundationalguidanceforresponseinchallengingsituations;andagreethatthekeyconceptsofLeastRestrictiveAlternative,Person-centeredservice,Trauma-informedapproach,andSupporteddecision-makingbeincorporatedintotheethicalprinciples.WedoincorporateherethesuggestionbytheNationalAssociationofStateLTCOmbudsmanPrograms(NASOP)tore-definePerson-centeredserviceandrecommendthatyouincorporatetheirreviseddefinitionintotheGuidelines.

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ConsumerVoicerecommendsthattheGuidelinesclarifythatallvulnerableadultsbeeligiblerecipientsofservicesfromAPS,regardlessofwhethertheyliveinaninstitutionalsettingorinacommunitybasedsetting.Therecurrentlyislackofclarity,aswellaswideinconsistency,withinandamongstates,astothepopulationtobeservedbyAPS.ConsumerVoicethinksitisimportantthatAPSrecognizethatombudsmanarenotmandatoryreportersandaresubjecttostrictconfidentialityrequirementsestablishedinfederallawandregulation.Assuch,werecommendthattheGuidelineread,“…Exemptionstomandatoryreportingrequirementsshouldbeconsistentwithprofessionalethicalprinciples,aswellasestablishedlawsandregulations.”WewouldalsoencouragethedevelopmentofMemorandaofUnderstandingbetweenAPSandLTCOPsinordertofurthercollaborativeworkonbehalfofeldervictims.WesupporttheinclusionofAPSinbothformalandinformalcollaborations,includingmulti-disciplinaryteams.ConsumerVoicesupportsAPSaccesstoadequatelegalcounselforsupport,technicalassistance,andadvice.ConsumerVoicerecommendsthatAPSworkershaveaccesstoexpertspecialistsasneededtosupportaninvestigationorassistwithaclient.Examplesofexpertswouldinclude,butnotbelimitedto,financial,legal,mentalhealth,forensic,medical,dementia,substanceabuse,andsocialwork.2.TimeFrames:Consistentguidelinesforresponsetoanallegationofabuse,orreferraltoanappropriateentityoragencyareencouraged.3.ReceivingReportsofMaltreatmentConsumerVoicesupportstherecommendationthatAPShaveasystemforreceivingreportsofmaltreatment24hoursaday.WebelievethatAPShasaroleininvestigationofmaltreatmentincongregatesettings,andunderstandthatsufficientresourceswouldneedtobeallocatedtosupportthisrole.Residentsoflong-termcarefacilitiescontinuetobevulnerableandvictimsofabuse,neglect,andexploitation,andthusshouldbeaffordedtheprotectionsandservicesavailabletovulnerableeldersinthecommunity.5.ServicePlanningandIntervention

Page 3: Michael Koenig, President Lori Smetanka, Interim Executive ... · Michael Koenig, President Lori Smetanka, Interim Executive Director Ph: 202.332.2275 Fax: 866.230.9789 The National

ConsumerVoicerecommendsthatuponclosingacaseinvestigation,APScommunicatewiththeindividualwhofiledtheallegationofabusewiththedispositionofthecase.Withoutthiscommunication,individualsfilingcomplaintshavenoideaifAPSrespondedorfollowedupinanyway.Wehaveheardfromseveralaboutfrustrationswithnotgettinganysortofresponse.6.TrainingConsumerVoicesupportsthedevelopmentofcorecompetenciesforAPSworkers,includinginitialandon-goingtraining,includingin-the-fieldtrainingandsupervision.Wealsobelievethattrainingstandardsshouldbeconsistentacrossstates.ConsumerVoicealsosupportsthecommentssubmittedontheAPSGuidelinesbyNASOPandtheMarylandStateLong-TermCareOmbudsmanProgram.Wecommendyou,AdministratorGreenlee,onyourleadershipinraisingthevisibilityofelderabuseandtheneedforincreasedsupportofElderJusticeprograms,includingAdultProtectiveServices.Pleasedon’thesitatetoreachoutifwecanassistinanyway.Sincerely,

LoriSmetanka RobynGrantInterimExecutiveDirector Director,PublicPolicy&Advocacy