ldiag news summer 2012 easy read
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Easy Read Summer 2012 edition of the Learning Disability Implementation Advisory Group (LDIAG) newsletterTRANSCRIPT
LDIAG NewsLDIAG NewsLDIAG News
New group will meet soon
Summer 2012
The Learning Disability Implementation Advisory
Group or LDIAG has not met for nearly 2 years.
The group decided they needed a new group with
new people and new things to work on.
Deputy Minister Gwenda Thomas said she would
set up a new group to give her advice about
learning disabilities.
It has taken a long time to set up the new group.
The new group is called the Learning Disability
Advisory Group or LDAG.
Welsh Government asked 12 people to be part of
the new group.
There are 2 new co-Chairs called Roger Banks
and Sophie Hinksman.
The new group met for the first time on 3
September 2012 in Cardiff.
They talked about the rules of the new group and
the work it will do.
Samantha Williams is the Information Officer for
the group and went to the meeting.
www.ldiag.org.uk
Gwenda
Thomas
Roger
Banks
Sophie
Hinksman
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Page 2 LDIAG News
What has the CB CoP been doing?
The Challenging Behaviour Community of
Practice or CB CoP had a meeting on 20 June.
Special Support
Clare Trudgeon and Sara Bassett from Aneurin
Bevan Health Board talked about how they give
special support to people with challenging
behaviour.
They both work in a special team to support
people that other services cannot help.
The team helps people with life skills like eating
and talking, or getting out in the community.
There are lots of different people on the team
who all work together to help the person they
support.
The team talks to families about what the person
needs.
They also talk to people working in education and
day services so that they can find different ways
to support people.
Clare and Sara showed some videos of the
people they support and how it has helped them.
Touch Trust
Next, Dilys Price talked about the Touch Trust.
(More on page 3)
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Page 3 Date
Touch Trust runs workshops for people with
learning disabilities.
The workshops help people to communicate and
express themselves through touch. This means
showing how they feel and what they are
thinking.
Touch Trust can also teach staff how to
communicate through touch.
There is also a Touch Trust College of the Arts for
young people aged 19 to 25 at the Millennium
Centre in Cardiff Bay.
You can find out more about Touch Trust on the
website www.touchtrust.co.uk.
Special therapy
Maria Leahy has a son with autism.
She spoke to the CB CoP about how a special
therapy called Applied Behaviour Analysis had
helped her son.
Therapy is a way of helping people to feel better
or to live a better life.
She showed videos of her son before the therapy,
when he was having the therapy and after the
therapy.
(From page 2)
(More on page 4)
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Page 4 LDIAG News
The videos showed how much the therapy had
helped him.
Winterbourne View
After lunch, Professor Eric Emerson from
Improving Health and Lives: Learning Disabilities
Observatory talked about Winterbourne View.
He talked about the reports that had been written
after what happened at Winterbourne View.
Winterbourne View was a care home for people
with learning disabilities and challenging
behaviour.
A BBC television programme filmed inside
Winterbourne View.
It showed people being abused by the staff
working there.
People who saw the programme wanted to know
how this could happen.
Some organisations looked into what happened
to try to make sure it does not happen again.
The Care Quality Commission, the Department of
Health and the Learning Disabilities Observatory
have all written reports about what happened at
Winterbourne View.
(From page 3)
(More on page 5)
Prof Eric
Emerson
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Page 5 Date
The Care Quality Commission are supposed to
check all care services in England to make sure
they are good enough.
They did an extra check of all the hospitals and
care homes for people with learning disabilities
after what happened at Winterbourne View.
The report showed that lots of the hospitals and
care homes were not good enough.
The Department of Health’s report said that too
many people were sent to live in hospitals and for
too long.
This is not good.
People should get the support and services they
need in their local community.
The report also found:
poor care planning
some people were not doing anything
interesting or useful
too much use of restraint. This means
holding people down to stop them hurting
themselves or others.
Things will only change if people and
organisations help to make things better.
(From page 4)
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Page 6 LDIAG News
This includes:
Commissioners. These are people who buy
services.
Providers. These are the services like
hospitals and care homes.
Workforce. These are all the people who
work in services.
Regulators. These are the people who check
services like Care Quality Commission.
Government.
The report has a list of actions to make things
better.
The Learning Disabilities Observatory report
showed that:
6 out of 7 people were living in hospitals or
care homes where the care was not good
enough.
Too many people were living in hospitals or
care homes for a very long time.
Services run by the National Health Service
or NHS were usually better than services run
by other independent organisations.
Prof Emerson talked about what we had learnt
from Winterbourne View
(From page 5)
(More on page 7)
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Page 7 Date
Nobody really needs to live in these sort of
hospitals or care homes.
So why do we keep sending people to live there?
Because there are often not enough good local
services to support people with challenging
behaviour.
Most people with challenging behaviour would
not choose to live with other people with
challenging behaviour.
So why do we keep making people with
challenging behaviour live together?
Because services think it is cheaper and safer.
But research shows that people have less
challenging behaviour when they live with others
who do not have challenging behaviour.
There are usually reasons for people’s
challenging behaviour.
It is often a way of showing how someone is
feeling about their life.
Making people’s lives better usually makes the
challenging behaviour better too.
(From page 6)
(More on page 8)
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Page 8 LDIAG News
Most challenging behaviour starts when people
are very young.
This means it is very important to help children
with challenging behaviour as early as possible.
He then talked about what we needed to do next
to stop it happening again.
We need real stories to show how good support
can help make people’s lives better.
We also need to show how giving people good
support can save money in the future.
Problems with senses
The last presentation was by Dee-Arn Holzl from
Merthyr Tydfil.
It was about sensory processing. This means
the way people’s senses work.
Senses are seeing, hearing, smelling, tasting and
touching.
Dee-Arn said that the way people’s senses work
can change the way they behave.
Some people have problems with their senses
and this can lead to challenging behaviour.
Dee-Arn then talked about some of the ways she
helps people who have problems with their
senses.
(From page 7)
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Page 9 Date
Real Opportunities is a project that helps young
people with transition.
Transition is when you change from children’s
services to adult services.
The Real Opportunities project had its first annual
conference on 3 July 2012 in Cardiff.
More than 100 people came to the conference.
Lots of different people spoke at the conference.
They talked about what the project does and how
it helps young people.
Young people themselves talked about how the
project had helped them.
Real Opportunities helps young people aged
between 14 and 19 who have a learning disability
or autism.
The project has staff teams in 9 parts of Wales:
Bridgend
Caerphilly
Carmarthenshire
Merthyr
Neath Port Talbot
(More on page 10)
Real Opportunities Conference
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Page 10 LDIAG News
Pembrokeshire
Rhondda Cynon Taf
Swansea
Torfaen.
The teams work with young people and their
families to help them reach their goals in life.
Staff support the young people in lots of different
ways:
Transition planning
Person centred planning
Getting ready for work
Skills for daily life
Joining in and making friends
Special help with thoughts, feelings and
behaviour.
Young people also get support from peer
mentors.
Peer mentors are young people who have had
training on how to support others. They help with
joining in and taking part at work, college or in the
community.
(From page 9)
(More on page 11)
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Page 11 Date
The project wants to make transition better for all
young people in Wales.
The Welsh Centre for Learning Disabilities is
looking at how well the project works.
It will look at how young people who have been
helped by the project get on after transition.
It will compare these young people to other
young people who did not get help from the
project.
It will ask staff, families and the young people
themselves what they think about the project.
The aim is to find out how well the different types
of support work.
This will help to make transition services better.
A young person from Caerphilly called Kyle Fox
sang at the conference.
Matthew Devinett from Rhondda Cynon Taf did
the New Zealand rugby dance called the haka.
Marcus Prowbert and his mum talked about how
the project had made Marcus’s life better.
There is a new website for the Real Opportunities
project.
(From page 10)
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Page 12 LDIAG News
The English website address is
www.realopportunities.org.uk.
The Welsh website address is
www.cyfleoeddgwirioneddol.org.uk.
The website has 3 sections:
1 section for young people
1 section for parents and carers
1 section for people who work with young
people.
There is lots of useful information on the website.
There is also a toolkit on the website.
The toolkit has lots of the different tools that have
been used to support young people on the
project.
If you want to see the toolkit and other
information in ‘Resources’ on the website you will
need to speak to Laura Davies.
You can ring Laura on 01639 635650 or you can
send her an e-mail to
Laura will give you a username and password so
that you can look at all the information in
‘Resources’.
(From page 11)
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Page 13 Date
You can find out more about the project and join
in on Facebook RealOpportunitiesProject or on
Twitter @Real_Opps.
(From page 12)
Learning Disability Wales Annual Conference 2012
Tuesday 13 and Wednesday 14 November 2012
Newport, South Wales
This year our annual conference will be looking at housing for
people with a learning disability. On day 1 we will be looking at
where you live, the roof over your head and some of the choices
you can make. On day 2 we will be looking at how you live, like
personalised technology, safety in the home and ways to take part
in the community. There will also be lots of interesting workshops on
both days.
For more information or to book your place please email Harriett [email protected] or phone her on 029 2068 1160.
Key to Your Home
Unlocking information about where you live and how you live
To find out more or let us know what you think, please
phone Sam Williams on 029 20681160 or e-mail:
You can also have a look at the website:
www.ldiag.org.uk