facilitator guide
TRANSCRIPT
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Slide One:
Provide the Participant Guides to each individual Slide Two:
Learning outcomes can be found on pg. 4 of guide
Facilitator welcomes the group and explains session outcomes and objectives. **Have introductory PowerPoint slide showing as the group arrives** EXPLAIN:
• That this workshop is to increase the knowledge that individuals have with regards to dementia and Alzheimer’s
• Be sure to make it clear that questions and comments throughout are encouraged.
SHOW SLIDE 2 & EXPLAIN: Today’s session aims to build your knowledge on these key factors:
• Understanding dementia in the most general terms
• Understanding what exactly Alzheimer’s disease is and being able to explain how it stands out from the rest of the mental illnesses
• Be able to understand the facts and figures about the current disease.
• Know what the ten signs of Alzheimer’s are and how to determine the difference between Alzheimer’s and old age
• Know what the risk factors are and the diagnosis process that people must go through
• Be able to determine whether or not certain statements that have been made are fact or myth
ALZHEIMER’S AND YOU
! Understand dementia in general terms ! Obtain the general information about Alzheimer's Disease ! Learn the facts & figures ! Understand the stages of Alzheimer’s ! Become knowledgeable on the 10 signs of Alzheimer’s ! Understand risk factors and diagnosis associated with
Alzheimer’s ! Understand the myths of Alzheimer’s Disease & how they are
proven incorrect
LEARNING OUTCOMES
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Slide Three:
Brain Basics are found on pg. 5 of guide Slide Four:
SHOW SLIDE 3: • Tell participants that the guide that they
were given will be used as a tool to help them follow along with the presentation and that they are more than welcome to open them.
ASK Why do we need to know how the brain generally functions?
• Discuss responses Key Points:
• The brain is linked to our behavior which includes our emotions, how we feel, and why we do certain things.
• The brain is divided into different parts and have different functions and responsibilities. Messages are passed between our body and our brain and are passed by chemicals that pass these messages from one cell to another.
ACTIVITY: TELL CLASS TO TURN TO PAGE 5 OF THEIR MANUAL and answer the first question the best that they can. Question 1: The brain is divided into 4 parts (lobes) can you name them and explain their function? Allow them to take a few minutes to and let them know that the answers will be discussed shortly. SHOW & READ SLIDE 4: EXPLAIN what the point of the activity is and ask them the question on the slide to help them think ACTIVITY: Ask them to remain on the same page in their manual and to answer the last question on the page. Let them know that it will be discussed.
! Our brain is directly linked to behaviors ! It is also divided into separate parts ! Chemical messages are passed between our body and our brain.
BRAIN BASICS
BRAIN BASICS: How Did I Get Here Today?
FOR THIS ACTIVITY: • Take a moment to reflect on how you got here today.
Think about all of the activities and processes that you went through from waking up to walking out the door.
• How did you plan to get here today? Did you need to
read a map? Did you research the venue at all? How did you go about signing up for this class?
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Slide Five:
Lobes of the Brain on pg. 6 of guide Slide Six:
LOBES OF THE BRAIN
http://2.bp.blogspot.com/-0ytUcP5Qytg/UYuFWvHLlwI/AAAAAAAAARo/-SOlv1-c_ns/s1600/brain.jpg
SHOW SLIDE 5: ENCOURAGE THE PARTICIPANTS TO TAKE NOTES ON PAGE 6 OF THEIR MANUAL. EXPLAIN: That the brain is extremely complex, is divided into different parts or lobes and all of them have different functions. ASK: Participants to read the purple box on page 5 and try to answer the questions the best they can, by taking into consideration the “How did I get here?” activity. Give them a few minutes to complete. EXPLAIN: During this last activity you used your: FRONTAL lobe to help you plan and organize to get training and checks that you are behaving properly. Parietal-‐to help you sequence events to enable you to get to training Temporal: or memory center, to help you remember that the training was on, where and what time you had to attend Limbic System-‐to sleep properly last night, alert you to have breakfast and to worry that arrangements work out. All parts of the brain work together to produce coordinated, purposeful actions and behaviors. The brain has a direct link to our actions and behaviors. SHOW SLIDE 6 & EXPLAIN: -‐As we age our brain ages with us and we may become a bit more confused -‐We may not remember things as quickly or as accurately and we may lose memory slowly but not enough to disrupt our lifestyle. -‐We manage life with lists and reminders but still have the ability to develop coping strategies
! Brain ages as we age ! Memory may not be as good and we may not remember things
as quickly or accurately ! Still manage our lifestyle and have the ability to think up
strategies, for example, lists and reminders, etc. ! Confusion due to dementia or major cognitive function impairment is dif ferent and is LIFE-ALTERING
NORMAL HEALTHY AGING & CONFUSION
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Normal healthy aging & confusion found on pg. 7 of manual Slide Seven:
Typical Confusion is on pg. 7 of manual
Factors that cause older people to become confused without having dementia: ! Increased sensory impairment or loss e.g. sight and/or
hearing ! Anxiety and/or depression ! Unfamiliar surroundings ! Grief or Loss (of significant person, role, ability or social
function) ! Medication-OTC, under the counter, mixing or changing ! Infection e.g. Urinary Tract Infection ! A full bladder, constipation, inconstancy ! Acute confusion-delirium
TYPICAL CONFUSION IN THE OLDER PERSON
-‐Our brain becomes a bit more vulnerable and can be affected easily by the “flu”, infections, and some types of medication. -‐In healthy aging, we do become more forgetful but it does not affect our daily living activities like the condition of dementia does. Conditions such as dementia or a major cognitive impairment is different. -‐IT DISRUPTS LIFESTYLES. ASK: Do you know what makes older people confused other than dementia? & DISCUSS. SHOW SLIDE 7 & EXPLAIN: · All these conditions or situations can result in an older people being confused. · They are usually temporary and can be treated or managed. They are not permanent. · Sometimes people think all older people who are confused have the condition of dementia. This is not true. · So never assume that an older person who is confused has the condition of dementia. · Check to see if their hearing aids work, their glasses are clean and that they do not have an infection (e.g. urinary tract infection). ASK -‐ If these conditions can make an older person temporarily confused, what happens to a person who does have a disease causing the condition of dementia? ASK -‐ If these conditions can make an older person temporarily confused, what happens to a person who does have a disease causing the condition of dementia? · Could lead to twice the confusion and twice the frustration · Never assume a confused older person ‘just has dementia’.
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Slide 8:
What is Dementia? is on pg. 8 Slide 9:
Alzheimer’s Disease is on pg. 9 of manual
! General term for a decline in mental ability severe enough to interfere with daily life.
! Considered to be an umbrella term for a large group of illnesses
! Brain slowly becomes damaged ! Can be caused by one illness or a mixture of illnesses ! Several dif ferent illnesses considered to be a form of
dementia ! No known cure
WHAT IS DEMENTIA?
! Definition: Most common type of dementia; accounting for 50-80% of dementia cases and causes problems with memory, thinking, and behavior.
! Early On-Set Alzheimer's: Individuals who are as young as 30 years old can be diagnosed with Alzheimer’s. This number continues to rise.
! Effects on the Brain ! Current Research
ALZHEIMER’S DISEASE
SHOW SLIDE 8 & EXPLAIN: We have now covered the basics of the human brain so we are going to move into the next section about what dementia is and how it affects and individual. Please flip to page 8 of the packet. READ: Definition: Dementia is not a specific disease. The term describes a group of symptoms affecting thinking and social abilities severe enough to interfere with daily functioning. What happens to person: A person with dementia will progressively lose the ability to remember, to think and to deal with more than one piece of information at a time. Typically communication becomes lost, relating to people become nearly impossible, and they lose the ability to care for themselves ASK: For volunteers to read and explain what each of the common diseases are and discuss them. SHOW SLIDE 9 & EXPLAIN: Now that dementia is understood, we are going to focus on Alzheimer’s disease and all of the criteria that goes into it. READ: Definition: Alzheimer’s disease is the most common type of dementia, accounting for 50-‐80% of dementia cases and causes problems with memory, thinking, and behavior. Alzheimer’s is a progressive disease that gradually worsen overtime and typically effects adults who are 65 years of age and older but early-‐onset Alzheimer’s is definitely possible. Early On-‐Set Alzheimer’s: Many people with early-‐onset Alzheimer’s are in their 40’s and 50’s. Typically they have families, careers, or are even caregivers themselves when Alzheimer’s strikes. Typically, health care providers don’t look for Alzheimer’s disease in younger people and getting an accurate diagnosis can become a long and frustrating process.
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Slide 10:
Symptoms & Early Detection on pg. 10 of guide
Symptoms: ! Progress slowly and become worse over time ! May lose abilities to complete daily tasks
Early Detection: ! Get the maximum benefit from available treatments ! More time to plan for the future ! Help for you and loved ones
**IMPORTANT THAT PEOPLE UNDERSTAND THE DIFFERENCE BETWEEN ALZHEIMER’S & OLD AGE**
SYMPTOM AND EARLY DETECTION
How the brain is affected: The brain has 100 billion nerve cells (neurons). Each nerve cell connects with many others to form communication networks. To do their work, brain cells operate like tiny factories. They receive supplies, generate energy, construct equipment and get rid of waste. Cells also process and store information and communicate with other cells. Keeping everything running requires coordination as well as large amounts of fuel and oxygen. Scientists believe Alzheimer's disease prevents parts of a cell's factory from running well. They are not sure where the trouble starts. But just like a real factory, backups and breakdowns in one system cause problems in other areas. As damage spreads, cells lose their ability to do their jobs and, eventually die, causing irreversible changes in the brain. POINT OUT: the diagram of the brain and the differences between a healthy brain and a brain with Alzheimer’s SHOW SLIDE 10 & EXPLAIN: Symptoms: The symptoms of Alzheimer’s disease progress slowly and become worse over time until it becomes so severe that individuals who become diagnosed may lose their ability to complete daily tasks, communicate, and may not be capable of living on their own anymore. **TELL CLASS THAT WE WILL GO OVER THE SYMPTOMS/WARNING SIGNS MORE** Early Detection: Will allow individuals to get the maximum benefit from available treatments, have more time to plan for the future, and get the help that is necessary for you or your loved one. EMPHASIZE: that is it important that people become aware of the differences between alzheimer’s and old age.
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Slide 11:
Top 10 Warning Signs is on pg. 11-‐12 of guide Slide 12:
1. Memory loss that disrupts daily life 2. Challenges in planning or solving problems 3. Difficulty completing familiar tasks at home, work, or
leisure 4. Confusion with time or place 5. Trouble understanding visual images and spatial
relationships 6. New problems with words in speaking or writing 7. Misplacing things and losing the ability to retrace steps 8. Decreased or poor judgment 9. Withdrawal from work or social activities 10. Changes in mood and personality
TOP 10 WARNING SIGNS
1. Sometimes forgetting names or appointments, but remembering them later
2. Making occasional errors when balancing a checkbook 3. Occasionally needing help to use the settings on a microwave
or to record a television show 4. Getting confused about the day of the week but figuring it out
later 5. Vision changes related to cataracts 6. Sometimes having trouble finding the right word 7. Misplacing things from time to time and retracing steps to find
them 8. Making a bad decision once in awhile 9. Sometimes feeling weary of work, family, and social
obligations 10. Developing specific ways of doing things and becoming irritable
when a routine is disrupted.
CHECK YOUR ANSWERS: TOP 10 SIGNS & SYMPTOMS
SHOW SLIDE 11 & EXPLAIN: The Alzheimer’s Association has come up with ten warning signs and symptoms of Alzheimer’s disease. READ: the ten signs and symptoms as they are presented on the slide ASK participants to turn to page 11 of their manual if they have not already done so. ACTIVITY: It is vital that people understand the difference between Alzheimer’s and symptoms of old age. Ask the class to work in a small group or on their own and read through each sign and symptom with their explanations. Ask them to fill in the answer to the question: “What’s a typical age related change?” to test their understanding of the differences. Give them an example of how to do so by using #1 and explaining that Alzheimer’s has memory loss that disrupts daily life whereas a typical age related change would be sometimes forgetting names of people they have just met. Let them know that the answers will be discussed and that they have 10 minutes to work. SHOW SLIDE 12 & DISCUSS: What the class came up and discuss how their answers may be right or wrong compared to the actual answers on the slide. Be sure that everybody has a clear understanding of each one of the symptoms
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Slide 13:
Slide 14:
Facts & Figures located on pg. 13 of guide Slide 15:
Risk Factors on pg. 16 of guide
Alzheimer's Association Facts & Figures
DISEASE FACTS AND FIGURES
FACTS AND FIGURES
More than 5 million Americans are living with the disease.
Every 67 seconds someone in the U.S. develops Alzheimer’s
Alzheimer’s disease is the 6th leading cause of death in the United States
There are approximately 500,000 people dying each year because they have Alzheimer’s
1 in 3 seniors dies with Alzheimer’s or another dementia
In 2013, 15.5 million caregivers provided an estimated 17.7 billion hours of unpaid care valued at more than $220 billion
NON-PREVENTABLE: ! Age ! Family History ! Genetics
INFLUENTIAL FACTORS: ! Head Trauma ! Heart-Head Connection ! General Health
RISK FACTORS
SHOW SLIDE 13 & CLICK: on the hyperlink that is connected to the slide. EXPLAIN that this video is going to show the most current facts and data that the government has about Alzheimer’s disease in the U.S. SHOW SLIDE 14 & ASK: the class to turn to pg. 13 of their manuals if they have not done so already and encourage them to take notes from the slides that describe the 6 quick facts of Alzheimer’s EXPLAIN that the rates of Alzheimer’s have been climbing steadily and read the 6 facts that are located on the slide. TELL class that on pages 14 & 15 of their notes packet is the 2014 Fact Sheet from the Alzheimer’s Association. Give them a few minutes to read these pages on their own. SHOW SLIDE 15 & EXPLAIN: That scientists have identified factors that increase the risk of Alzheimer’s. Many of them cannot be changed but new emerging evidence suggests that there are some factors that can influence. EXPLAIN: Age: The greatest known risk factor for Alzheimer’s is advancing age. Most individuals who get the disease are over the age of 65 and above. When individuals turn 65, the likelihood of developing Alzheimer’s doubles about every 5 years and at the age of 85, the risk increases to about 50%. There is still no answer as to why the risk rises so dramatically as we grow older.
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Family History: Individuals who have parents, brothers, or sisters are more likely to develop the disease. Those who have more than one first degree relative are at an even higher risk. Genetics: Research has shown that when it comes to early onset Alzheimer’s, mutations on certain chromosomes will impact diseases. Children whose father or mother carry the genetic mutation for Alzheimer’s has a 50/50 shot of inheriting the mutation. If they do inherit it, they are extremely likely to develop the disease. Scientists have found that there are two types of genes that can play a role in affecting whether or not a person develops a disease. Risk genes increase the likelihood of developing a disease but do not guarantee that it will happen. Scientists have so far identified several risk genes and the one with the biggest influence is the APOE-‐4 which may result in 20-‐25% of Alzheimer’s cases. Deterministic genes cause a disease, guaranteeing that anyone who inherits them will develop the disorder. Scientists have discovered variations that directly cause Alzheimer’s disease in the genes coding three proteins Factors that you may be able to influence: Head Trauma-‐ Research has proven that after several head injuries, the risk of developing Alzheimer’s increases by 50% compared to those who have not had any head injuries in their lives. Those who have had traumatic head injuries increase their risk by 4.5 times. Heart-‐head connection-‐ Research has shown that brain health and heart health are very much related. The risk of developing Alzheimer’s is greatly increased by factors such as high blood pressure, heart disease, stroke, diabetes and high cholesterol. It is important to keep in contact with your doctor about factors such as these. the community.
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Slide 16:
Diagnosis/Treatment on pg. 17 of guide Slide 17:
DIAGNOSIS: ! Alzheimer’s is diagnosed through a complete medical
assessment that must be completed by a certified medical professional.
! Steps to a diagnosis ! Finding the right doctor
TREATMENT: ! Currently no cure for Alzheimer’s disease ! Some drugs & non-drug treatments are available to help with
both cognitive & behavioral symptoms but they are not highly effective and cannot prevent progression.
DIAGNOSIS/TREATMENT
General health-‐ In relation to the mind-‐body connection, when a person has generally good health physically, their overall mental health is going to be positively influenced as well. It is important to maintain a healthy lifestyle, with diet and exercise, as well as keeping socially active with individuals. SHOW SLIDE 16 & EXPLAIN: Steps to diagnosis: Currently there is no single test that can show whether a person has Alzheimer’s disease. Physicians can typically determine if a person has dementia but may be difficult to determine the exact cause which may become rather frustrating. In order to diagnosis the disease a medical evaluation must be conducted which includes:
• A thorough medical exam • Mental status testing • A physical and neurological exam
Tests (such as blood tests and brain imaging) to rule out other causes of dementia-‐like symptoms Find the right doctor for you and be sure that you can trust this person and feel comfortable contacting them for any reason pertaining to the illness. Treatment: With Alzheimer’s being such a huge issue in the United States, some may assume that there is some type of cure but that is not the case. There are certain treatment options that may slow or assist in the behavioral and cognitive symptoms but will not stop the progression. Some of these treatment options include:
• Medication for memory loss • Social & Mental treatment for behavioral
changes • Non-‐Drug recommendations for sleep
changes SHOW SLIDE 17 & EXPLAIN: Activity: Ask class to turn to page 18 of their manual and explain to them that we are near the end of the workshop. Ask them to please read through these statements about Alzheimer’s and try to determine whether or not they are real or fake. Let them work for 10 minutes. EXPLAIN: that all of the answers are on Page 19
Is it a Myth? Maybe a Fact? You Choose!
MYTHS ABOUT ALZHEIMER’S
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EDUCATE OTHERS. GET INVOLVED.
BE PART OF THE CURE.
LASTING WORDS… SHOW SLIDE 18 & EXPLAIN: That the class has successfully completed the workshop. Leave them with the big ideas that they should have gotten out of the class today: -‐Alzheimer’s disease is NOT a normal part of aging -‐Pay special attention to any symptoms that may be progressing and get screened. Alzheimer’s does not currently have a cure so we neeed to work together in order to support the cause and find a cure. Leave them with the final words of: Educate others, get involved, be part of the cure. Hopefully this will keep them motivated to continue to work towards a better future for themselves and the community. Thank the class once more for their participation and end workshop.
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Basic Brain Activities Templates In order to understand dementia, we must first understand how the brain works under normal circumstances. Basically…
• Our brain is linked to our behaviors • It is also divided into separate parts • Chemical messages are passed between our body and our brain
What do you already know about how the brain works? Test your knowledge by answering the questions below:
The answers will be revealed shortly, but first, your facilitator will now guide you through an activity that will help you experience your brain in action. Please use the space below to take notes.
The brain is divided into 4 separate parts (lobes) can you name them and what their function is?
What did I have to do to get here today? List your actions. ‘ Hint: Think about what you had to plan. Did you have to drive here? Did you have to set an alarm
clock for an earlier start, etc.?
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Lobes of the Brain Template: The Lobes of the Brain and What They Do…
Lets analyze the task you just did in the last activity. It will give you an understanding of some of the functions of these different parts of the brain.
Different parts of the brain have different functions, but all have to work together to produce coordinated, purposeful ACTIONS and BEHAVIORS. The brain has a direct link to our actions and behavior
Consider the “How Did I Get Here Activity?”: What did you use your temporal lobe for?
What did you use your frontal lobe for?
What did you use your parietal lobe for?
What did you use your limbic system for?
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Early Signs Activity Template 10 Early Signs & Symptoms of Alzheimer’s Disease 1. Memory loss that disrupts daily life One of the most common signs of Alzheimer's is memory loss, especially forgetting recently learned information. Others include forgetting important dates or events; asking for the same information over and over; increasingly needing to rely on memory aids (e.g., reminder notes or electronic devices) or family members for things they used to handle on their own. What’s a typical age related change? 2. Challenges in planning or solving problems Some people may experience changes in their ability to develop and follow a plan or work with numbers. They may have trouble following a familiar recipe or keeping track of monthly bills. They may have difficulty concentrating and take much longer to do things than they did before. What’s a typical age related change? 3. Difficulty completing familiar tasks at home, at work or at leisure People with Alzheimer's often find it hard to complete daily tasks. Sometimes, people may have trouble driving to a familiar location, managing a budget at work or remembering the rules of a favorite game. What’s a typical age related change? 4. Confusion with time or place People with Alzheimer's can lose track of dates, seasons and the passage of time. They may have trouble understanding something if it is not happening immediately. Sometimes they may forget where they are or how they got there. What’s a typical age related change? 5. Trouble understanding visual images and spatial relationships For some people, having vision problems is a sign of Alzheimer's. They may have difficulty reading, judging distance and determining color or contrast, which may cause problems with driving. What’s a typical age related change?
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6. New problems with words in speaking or writing People with Alzheimer's may have trouble following or joining a conversation. They may stop in the middle of a conversation and have no idea how to continue or they may repeat themselves. They may struggle with vocabulary, have problems finding the right word or call things by the wrong name (e.g., calling a "watch" a "hand-‐clock"). What’s a typical age related change? 7. Misplacing things and losing the ability to retrace steps A person with Alzheimer's disease may put things in unusual places. They may lose things and be unable to go back over their steps to find them again. Sometimes, they may accuse others of stealing. This may occur more frequently over time. What’s a typical age related change? 8. Decreased or poor judgment People with Alzheimer's may experience changes in judgment or decision-‐making. For example, they may use poor judgment when dealing with money, giving large amounts to telemarketers. They may pay less attention to grooming or keeping themselves clean. What’s a typical age related change? 9. Withdrawal from work or social activities A person with Alzheimer's may start to remove themselves from hobbies, social activities, work projects or sports. They may have trouble keeping up with a favorite sports team or remembering how to complete a favorite hobby. They may also avoid being social because of the changes they have experienced. What’s a typical age related change? 10. Changes in mood and personality The mood and personalities of people with Alzheimer's can change. They can become confused, suspicious, depressed, fearful or anxious. They may be easily upset at home, at work, with friends or in places where they are out of their comfort zone. What’s a typical age related change?
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Quick Facts and Figures Template: Quick Facts about Alzheimer’s The facts will be presented on the PowerPoint, please fill in the following boxes with the statistics.
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Myth or Reality Template: 1. FREQUENT MEMORY LOSS IS A NATURAL PART OF GROWING UP.
MYTH OR REALITY? 2. ALZHEIMER’S DISEASE IS FATAL.
MYTH OR REALITY? 3. SILVER DENTAL FILLINGS INCREASE THE RISK OF ALZHEIMER’S DISEASE.
MYTH OR REALITY?
4. PEOPLE AS YOUNG AS THIRTY CAN GET ALZHEIMERS. MYTH OR REALITY?
5. DRINKING OUT OF ALUMINUM CANS OR COOKING IN ALUMINUM POTS AND PANS CAN LEAD TO ALZHEIMERS DISEASE.
MYTH OR REALITY?
6. ASPARTAME (ARTIFICIAL SWEETENER) CAUSES MEMORY LOSS. MYTH OR REALITY?
7. FLU SHOTS DO NOT INCREASE THE RISK OF ALZHEIMERS DISEASE.
MYTH OR REALITY?