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Generating Healthcare Data for Transformation through Crowds

Dr. Adam CHEEChief Advocacy Officer

9 Apr 2014

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Selamat Datang

ke Singapura சிங்கப்பூர்

வரவேவற்கிவே ாம்

Welcome to欢迎来到新加坡

Very quick Introduction

• Adam is a Health Informatician by profession and serves as the Chief Advocacy Officer of binaryHealthCare

• binaryHealthCare is a ‘purpose-driven’ (social enterprise) boutique consulting firm offering training, technical and marketing strategy solutions / advisory, specifically addressing the eHealth domains within (but not limited to) the ASEAN region while serving to “Bridge the eHealth Divide” by empowering stakeholders in both developed & LAMI counties on effective, sustainable adoption of Health IT as an enabler for “better patient care at lower cost”

• For more information on Adam and binaryHealthCare, please visit our web portal @http://www.binaryHealthCare.com

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Question(s)

• Who is involved in Health and/or Healthcare here?

• Do you use and/or generate data?• What are the data used for?

• Note: I am not going to advocate on “why Crowdsourcing for healthcare” but instead, go straight into the subject.The topic involved is a big one and I only have 20 minutes.

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Basic Concept – Interoperability

• Interoperability (in this context) refers to;

Information exchange between different health/healthcare entities (people or organizations)

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Basic Concept – Interoperability (cont.)

• Physical Interoperability • Medium of connectivity or the physical connection• E.g. Ethernet cable, a Thumb Drive or Wireless network

• Syntactic Interoperability• The standard formatting adopted to enable machine-to-machine

exchange of data

• Semantic Interoperability• The ubiquitous use of standardized vocabularies so data can be

exchanged and the meaning kept intact

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Basic Concept – Interoperability (cont.)

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• To quote Charles Mead; “syntactic interoperability guarantees the exchange of the structure of the data, but carries no assurance that the meaning will be interpreted identically by all parties”

Plant

Real Life “Boo Boos”

• In 1999, NASA lost a $125 million Mars climate orbiter because a Lockheed Martin engineering team used English/Imperial units of measurement while the agency's team used the more metric system for the spacecraft operationhttp://edition.cnn.com/TECH/space/9909/30/mars.metric.02/index.html

• Clinical Classification & Terminologies can be is pretty confusing• Problem list, Procedure List & results, Progress Notes, Diagnosis, Medication

etc.

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Mitigation

• To mitigate interoperability issues, Health IT Standards are created

• However, there is a small problem when it comes to Standards….

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To put things into Perspective

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But its not that simple in Healthcare

• Many SDOs release multiple standards(sometimes in different domains)

• There is also harmonization& cross-referencing

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Some Challenges

• Even after identifying and adopting the correct standard(s), there are some industry challenges;

• Non-compliance / customization of Standards• Very common for HL7 v2.x, DICOM, Snomed etc• Both intentional and non-intentional

• Hence it is important for the interested audience to “get it right the first time”

• Other challenges includes “Data Ownership”• Not just Personal Privacy and/or Data protection but also

organizational policies (retention of external data? Period? Liability?)

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In Addition

• (some) factors of consideration when developing your platform/ solution for crowd sourcing• Data Granularity

• Always go down to the most granular level possible

• Data Fluidity• Depending on the intent of your platform/solution, it is important to

ensure the data is captured at the right “stage”• E.g. Is it meant for “diagnosis”, research, analytics or even clinical

decision support

• Sources of Truth• Multiple sources means possible data attenuation (due to Data Fluidity”,

how do you know which source is the relevant one for you?

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binaryHealthCare, a ‘purpose-driven’ (social enterprise) boutique consulting firm offering training, technical and marketing strategy solutions / advisory, specifically addressing the eHealth domains within (but not limited to) the ASEAN region while serving to “Bridge the eHealth Divide” by empowering stakeholders in both developed & LAMI counties on effective, sustainable adoption of Health IT as an enabler for “better patient care at lower cost”

For further information, please contact;Name Dr. Adam CHEE Email adamchee@binaryhealthcare.com

Thought Leadership Education Consultancy Collaboration

Content, Conferences, Awareness Raising & Media Engagements

Online, Onsite & Collaboration towards

courses in eHealth

Consultancy as a Service, SME as a Service, Consulting

Workshops

Optimization by eliminating replication. Striving for a win-win

resolution for all

binaryHealthCareBridging the eHealth Divide