Connecticut State Team

Regional Champions

Community Champions

Other State Agency Champions

Overview of the ALL in CT

29% (16,293)

66%(38,399)

Active in DDS

Waiting for DDS

4%(2,140)

*Based on 1.58% prevalence of 3.597 citizens, US Census (2014)

56,832 individuals estimated to have Developmental Disabilities*

4,084 under 21 yrs.12,209 22 yrs. +

Inside the State System

Individuals in Integrated Employment 4,748 (49%)

Comprehensive Waiver 4,968

Individual & Family Support Waiver 4,005

Employment & Day Support Waiver 580

ASD Waiver 97

Current Influences In Connecticut

• Legislative cuts

• Waitlists

• New State Developmental Disability Services Director

• DSS Autism State Plan Services• No Wrong Door Activities• CMS Rule Setting Guidelines• CMS Balanced Incentive Program• Aging PCP Project

THEN and NOW: Our State CoP Stakeholders and Partners

Year One Partners Additional/Enhanced Partnerships

100+ stakeholders who volunteered to be part of the COP

300+ stakeholders who volunteer to be part of COP committees and activities

DD Council Assistive Tech Act Project staff, SDE, DSS, Department of Aging, UCEDD, OPA, DOL, Private Agency Providers

Family Support Network

+30 plus family groups-including cross-disability, behavioral health, school, and autism family groupsCommunity and faith-based groups

Overview of Core Team Activities

COP COMMITTEES

Employment Family to Family Healthy Living Housing

Information Navigation Person-Centered Planning

Positive Behavior Support Self Directed Supports Social & Respite Supports Technology

THEN and NOW: Our State CoPVision, Goals and Priorities

Year One Goals Year Two Goals

Year 1: Assist COP Committees to become “Community-Based Learning Communities”

Year 2: Assist COP Committees to develop “marketing” materials on important things they’ve learned

Major Priority OneDiscovery & Navigation

What’s Different?

LIFESPAN APPROACH

SUPPORT OPTIONS

COLLABORATION OPTIONS

Major Priority OneDiscovery & Navigation

SUSTAINABILITY• What do individuals and families want to know?

SA/Family/Community Leadership

• What current Discovery and Navigation processes are working?

SA/Family/CommunitySA & Family Partnerships211 and other generic lifespan websites Town Social Workers

Disability Community/DDS StakeholdersAlliance, DDS website, COP Brochures/Materials, DDS mailings,

Stakeholder Partnerships

• What Discovery and Navigation processes need to change?Focus Area: Social Media (TYZE, FACEBOOK, OTHER?)

DDS ITDDS Communication

• What system change needs to occur to sustain the desired Discovery and Navigation improvements?

Major Priority TwoConnection and Networking

What’s Different?

FAMILY LEADERSHIP

FAMILY ADVOCACY COLLABORATIVE and TRAINING SUPPORTS

SIBLINGS

PARENTS WITH COGNITIVE DISABILITIES

Major Priority TwoConnection and Networking

SUSTAINABILITYWhat do individuals and families want to know about PCP/Life Course Planning? SA/Family/Community Leadership

How well are we currently getting PCP/Life Course information to individuals and families?

individuals, families, siblings, grandparents, family groups

How well are we training individuals and family members to be PCP/Life Course mentors?

How well are we helping family members to partner with providers and other stakeholders to implement PCP/Life Course concepts?

What system change needs to occur to sustain enhanced implementation of PCP/Life Course processes?

Major Priority ThreeGoods and Services

What’s Different?

TECH ACT PARTNERS

SAFE AND SMART AT CAMPAIGN

TECHNOLOGY ENTHUSIASM!

Major Priority ThreeGoods and Services

SUSTAINABILITYWhat do individuals and families want to know about technology? SA/Family/Community Leadership

How well are we currently getting technology information to individuals and families?

individuals, families, siblings, grandparents, family groups

How well are we helping family members to partner with providers and other stakeholders to ensure greater use of technology as a support for people with IDD?

What system change needs to occur to sustain greater use of technology to support people with IDD?

Major Priority ThreeGoods and Services

• What else is Different?

COP COMMUNITY COMMITTEES• Employment• Healthy Living• Housing• In-Home Supports• Positive Behavior Supports• Respite• Social/Recreation

Self Advocates, Families, Providers, DDS Staff, Other State Agency Staff

and Community Members All Working Together

What needs to occur to sustain these improvements?

Biggest Lessons Learned So Far

• What were the big lessons learned so far?

System change takes time

It is really easy to revert to old behavior

Communities are rich in resources- sometimes you just have to ask.

Can’t make decisions without self advocates and family members at the table

Flexibility is key.

Vision for Next Year

• If next year goes exactly as planned, what will your state team achieve?

Life Course Principles and Practices Embedded in DDS IPs and in School Planning Processes because it is demanded by families

More Individuals and Families Use Technology as a Valued Support

Use of Social Networking Strategies (Tyze and Other Innovation Communication Strategies) is the New Norm

More Goods and Services Options Are Available for the Provision of High Quality Employment, Housing, Out-of-Home Respite, In-Home Supports, Positive Behavior Supports and Peer Supports, etc.

Culture of creative and effective family/community partnerships continues to grow and get better and better

Vision for Next Year

End Result Caregivers take care of themselves and they feel supported by others.