cogknow helping people with mild dementia navigate their day anna-lena andersson susanne andersson ...
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COGKNOW Helping people with mild dementia navigate their day
Anna-Lena Andersson
Susanne Andersson
www.cogknow.eu
TTeC 2007-06-12
COGKNOW
• STREP EU:s 6:e Framework, STREP IST Call 5 (FP6-2005-IST-5)
• 2006-2009 (36 Month) - Total budget in the Project – 2,7 milion Euro
• 11 Partners in 8 countries – Hospitals, Companies, Universities
COGKNOW
• Project coordinator– Teléfonica, Spain
• Technical coordinator– University of Ulster, Northern Ireland
• Scientific coordinator – Luleå University of Technology
Aim
To develop and evaluate a user-validated remotely configurable cognitive prosthetic device with associated services for people with mild dementia
To help people to experience greater autonomy and feelings of empowerment, and to enjoy an enhanced quality of life
Focus in COGKNOW
Developing a prosthetic device to help people to
• remember
• maintain social contacts
• perform daily activities
• enhance feelings of safety
Wp1 Human Factors Analysis
• This work package intends to ascertain the functionality, performance, and obtain more insight in needs, wants and demands and conduct Human Factor Analysis in four faces of those involved from the user perspective (people with mild dementia and their carers, informal or professional).
• Users as designers
Wp1 Human Factors Analysis
• Design of material and workshops T.1.2
Dementia Coping Questionnaire
I am going to read you a number of statements. I would like to know if you recognize these statements.
It works like this: I read each statement out loud and I give you the possible answer categories. You then indicate which answer you agree with. You can choose from the
following four alternatives:
1. agree totally 2. agree somewhat 3.disagree somewhat 4.disagree totally
Instruction for interviewer
Circle the code for the alternative mentioned
agree totally agree somewhat disagree somewhat disagree totally
1.Since my memory problems were finally diagnosed, I have felt relieved
2.I do memory exercises (riddles and crossword puzzles)
3.I have a daily routine I stick to
4. I try to accomplish as much as I can on the days I feel well
5.I am getting older, so forgetfulness is normal
6.I generally try to think as little as possible about my problems
7.I avoid new situations and unfamiliar places
8.I withdraw from conversations; I am afraid I will forget what people have said
9.I am not ashamed of my illness and talk about it openly
10.I rely on others to remind me of appointments and obligations
11.I get scared when I think about my future
12.I try to laugh about my forgetfulness
13.I make lots of notes so I won’t forget anything
14.My forgetfulness often annoys me
15.I am afraid of losing myself because of my memory problems4
Wp1 Human Factors Analysis
• Design of material and workshops T.1.2• Ex Morning:
wake up, get dressed, eat breakfast, coffee, go out
Wp1 Human Factors Analysis
• Workshops and (group) interviews with (in)formal carers
• Aim: to inventory needs and wants of the users, and discuss possible qualitative solutions.
Wp1 Human Factors Analysis
• Individual interviews with persons with dementia with standardized questionnaires
• Aim: to inventory the specific cognitive disabilities, other personal and context characteristics, support network, coping, needs, received care and support, experienced autonomy and aspects of quality of life.
Wp1 Human Factors Analysis
• Individual interviews with carers with standardized questionnaires
• Aim: to inventory general personal and context characteristics of patient and carer, coping, inventory of carers opinion of patients daily functioning, support network, needs, quality of life, and use of services.
Participants in first year
Amsterdam (6) Belfast (6) Luleå (6)
Persons with dementia
Age Mean 64.0(range 56-78)
Mean 72.7 (range 65- 86)
Mean 67.8 (range 60-77)
Gender 3 female 3 male
5 female1 male
4 female2 male
Civil status 5 married1 widow
3 married2 widowed1 single
5 married
Carers
Age Mean 58.5 (range 49-78)
Mean 53.0 (range 40-72)
Mean 61.4(range 23 – 78)
Gender 4 female2 male
3 female3 male
2 female3 male
Relation to patient
5 spouses1 daughter
3 spouses2 children1 cousin
4 spouses1 son
Wp1 Human Factors Analysis
The workshops and interviews resulted in an
extensive overview of needs and a list of preferred
ICT-solutions/functionalities that could help
persons with dementia in their daily life, could
enhance their feelings of autonomy and improve
their quality of life.
Functionalities field test 1
COGKNOW area support for memory
• day and time indication
• reminders for taking meals
• reminder for brushing teeth
• mobile device location request
Functionalities field test 1
COGKNOW area support for social contacts
• picture dialling function on stationary device and mobile device
Functionalities field test 1
COGKNOW area support with daily activities
• Play music on stationary device
• Turn radio on and off
Functionalities field test 1
COGKNOW area enhance feelings of safety
• Safety warning door left open
• Easy emergency contact
WP2 – Technical Development, Services and Applications
• Objectives– Translating findings from
user analyses into technical specifications.
– Development of a suite of multi-modal interfaces to deliver reminders.
– Development of a remotely configurable mobile solution.
– Development of a home-based visual interface
Current Status
• Development of the core operating management system of the mobile device.
• Use of existing hardware solutions for the mobile device (smart phone).
• Technology: J2ME + Windows Mobile libraries
• Function establishment of the communications modules for GSM, GPRS and GPS based communications with the central facility in addition to short range mobile communications (WiFi)
• Data requirements for the user’s schedule stored on the phone
• Support of remote configuration
WP4: Field testing/Implementation & Testing
-Conduct tree field tests – built of each other – increase on the complex ability.
-Responsible for teaching users and carers in how to use the technique.
-Three Testsites:
•NLL, Luleå Sweden
•VUMC, Amsterdam, Holland
•Belfast City Hospital, Belfast, North Ireland
AIM for Field test # 1
Test/evaluation:
• Usability
• Usefulness
Home screen in field test 1
Phone screen in field test 1
Developmental and evaluation perspectives
1. Human factors • Insight into needs; evaluate the user-friendliness,
usability, usefulness and the impact in the selected COGKNOW domains, on autonomy and quality of life
2. Technical factors• Advance the state-of-the-art in e.g.: use of multi-modal
services, predicting context, deployment of we-centric services
3. Business factors• Check the viability of COGKNOW business
opportunities, and to identify critical business success factors
COGKNOW
Thanks for you attention.
www.cogknow.eu