child health support group … review of tertiary services

Download Child Health Support Group … Review of Tertiary Services

Post on 21-Nov-2014

1.438 views

Category:

Documents

0 download

Embed Size (px)

DESCRIPTION

 

TRANSCRIPT

  • 1. Paediatric Gastroenterology, Hepatology and Nutrition Services in ScotlandA report commissioned by the Child Health Support Group, Scottish Executive as part of their Review of Specialist Paediatric Services Authors: The Scottish Paediatric Gastroenterology Hepatology and Nutrition Group May 2004
  • 2. Contributors: Dr W M Bisset Prof S Forsyth Dr P N Gillet Dr K Hassam Dr G MahdiDr P McGrogan Ms P Rogers Miss K RossSpRs in training Prof L Weaver Dr D C Wilson SPGHANG, 2004 2
  • 3. ContentsINTRODUCTION AND OVERVIEW................................................................................................................ 5DEFINITION AND SCOPE................................................................................................................................. 5INCIDENCE AND PREVALENCE OF COMMON CONDITIONS .............................................................. 7 INFLAMMATORY BOWEL DISEASE ...................................................................................................................... 7 COELIAC DISEASE ............................................................................................................................................... 8 NUTRITIONAL SUPPORT ...................................................................................................................................... 8 HEPATITIS B AND C ............................................................................................................................................ 8 NEONATAL HEPATITIS ........................................................................................................................................ 8CURRENT SERVICES...................................................................................................................................... 11 BRIEF HISTORY ................................................................................................................................................. 11 CONSULTANT POSTS ......................................................................................................................................... 11 DEVELOPMENT OF SERVICES............................................................................................................................. 11 EDINBURGH ...................................................................................................................................................... 11 GLASGOW ......................................................................................................................................................... 12 ABERDEEN, DUNDEE AND THE NORTH OF SCOTLAND PGHN NETWORK.......................................................... 13 PAEDIATRIC HEPATOLOGY SERVICES ............................................................................................................... 13 REFERRAL PATHWAYS AND GAPS IN PRESENT SERVICES ................................................................................. 14 Inflammatory Bowel Disease....................................................................................................................... 14 Complex Disabilities ................................................................................................................................... 15 Transitional Services ................................................................................................................................... 15 Information Technology .............................................................................................................................. 16REVIEW OF CURRENT PRACTICE ............................................................................................................. 16WORKFORCE PLANNING AND TRAINING .............................................................................................. 17QUALITY STANDARDS / OUTCOME INDICATORS ............................................................................... 18 STANDARDS OF TRAINING ................................................................................................................................. 18 Medical Staff................................................................................................................................................ 18 Dietitians ..................................................................................................................................................... 19 Nursing Staff................................................................................................................................................ 19 STANDARDS OF SERVICE ................................................................................................................................... 19 AUDIT ............................................................................................................................................................... 20 Edinburgh.................................................................................................................................................... 20 Aberdeen...................................................................................................................................................... 21 Glasgow....................................................................................................................................................... 21 PARENT PARTICIPATION.................................................................................................................................... 21EDUCATION AND INFORMATION .............................................................................................................. 21RESEARCH ........................................................................................................................................................ 22 NATIONAL ......................................................................................................................................................... 22 EDINBURGH ...................................................................................................................................................... 22 GLASGOW ......................................................................................................................................................... 23 ABERDEEN ........................................................................................................................................................ 23 DUNDEE ............................................................................................................................................................ 23INVOLVEMENT OF STAKEHOLDERS........................................................................................................ 23 DIETETICS ......................................................................................................................................................... 23 Working Practices ....................................................................................................................................... 23 Supporting colleagues ................................................................................................................................. 24 3
  • 4. GI AND NUTRITION NURSES ............................................................................................................................. 24 Working Practices ....................................................................................................................................... 24 Supporting Colleagues ................................................................................................................................ 24OPTIONS FOR IMPROVED SERVICE DELIVERY.................................................................................... 24 PROBLEMS ........................................................................................................................................................ 24 FUTURE SERVICE MODEL.................................................................................................................................. 25OPTIMAL CONFIGURATION OF PGHN SERVICES FOR SCOTLAND................................................ 25REFERENCES.................................................................................................................................................... 27APPENDIX 1....................................................................................................................................................... 29 4
  • 5. Paediatric Gastroenterology, Hepatology and Nutrition Services in ScotlandIntroduction and OverviewPaediatric gastroenterology, hepatology and nutrition (PGHN) represent a major subspecialtydedicated to the care of children with gut, liver and nutritional diseases and problems.Services for children in Scotland are patchy, uncoordinated, and have developed piecemeal.The principle unmet tertiary clinical needs in Scotland are in the care of children withinflammatory b