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Charity of the Year 2013/2014

Screening – collaborating to save lives

Deborah Alsina Chief Executive

Bowel Cancer UK

EuropaColon Clinical meeting 26 June 2014

Charity of the Year 2013/2014

What I’m going to talk about - Context, Bowel Cancer in the UK - Screening in England - 3 examples of our work to increase screening uptake

Charity of the Year 2013/2014

Incidence 1,156 people per year

Mortality 403 people per year

Incidence 2,354 people per year

Mortality 899 people per year

Incidence 3,967 people per year Mortality 1,501 people per year

Incidence 33,218 people per year Mortality 12,905 people per year

Bowel cancer today

Charity of the Year 2013/2014

FoBT Screening uptake rates – England 2012-13

Screening Hub Invited Adequately screened

Uptake (%)

Eastern 767,696 466,903 60.82

London 404,338 194,613 48.13

Midlands and North West

956,914 543,938 56.84

North East 629,048 375,662 59.72

Southern 1,081,329 664,355 61.44

TOTAL 3,839,325 2,245,471 58.49

Charity of the Year 2013/2014

Bowel Cancer UK

Interventions to increase screening uptake

Charity of the Year 2013/2014

Train the Trainer project

• 2 year Dept of Health funded partnership project with Breast Cancer Care

• 2 day Train the Trainer course and training resources

• Delivered in 8 areas where there was low uptake of breast and bowel cancer screening, high BME populations and high levels of social deprivation.

• Trained 102 participants, who went on to speak to more than 11,000 people in target audiences within six months

Charity of the Year 2013/2014

Train the Trainer project

Participants completed a Bowel Cancer Awareness measure before and after course, then at 1, 3 and 6 months afterwards.

BOWEL Baseline 1 month

Recognised 4 or more symptoms of bowel cancer

76% 98%

At what age are people most likely to get bowel cancer?

65% 82%

At what age are people first sent the NHS Bowel Screening kit in England?

55% 80%

Confidence levels in addressing barriers to being bowel aware

54% 97%

Confidence levels in addressing barriers to seeing a doctor about a bowel problem

60% 96%

Confidence levels in addressing barriers to completing the NHS Bowel Screening kit

56% 97%

Charity of the Year 2013/2014

GP Study Days

• Aim was to improve early detection and to ensure best practice in diagnosis and management of bowel problems

The core objectives were to increase knowledge of: • Screening and the management and referral guidelines for

high risk individuals • How to differentiate patients who need further assessments

and by whom • How to differentiate minor from more serious symptoms and

their management

Charity of the Year 2013/2014

GP Study Days c. 200 GPs attended Session on bowel screening and flexisig highlighted as the session where greatest increase in knowledge and confidence to talk to patients. “When I see a patient and they turn out to be a non responder

to national screening - will now ask why”

“Have done an audit of patients who haven't done the BC screening to follow up on”

Charity of the Year 2013/2014

Learning Disability Project

• Launched in 2012 • Trained 155 carers in NHS Greater

Glasgow area and disseminated to more than 1,200 carers across Scotland

• Scottish Govt & NHS Health Scotland agreed to fund printing of resource to 2016

• Next step is to roll project out in England

Charity of the Year 2013/2014

Learning Disability Project Pre Post

1 62%

2 25%

3 11%

4 2%

5

1

2

3

4 6%

5 94%

"I wouldn't have done my own test before today but now I have been here I know how important it is and I will do my screening next time". "I am so pleased I can now help my son with his screening test, thank you, a thoroughly enjoyable and informative day".