barbara sharp, reablement workshop nov 2013

22
Alzheimer Scotland Barbara Sharp Practice Development Manager

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Page 1: Barbara Sharp, Reablement workshop nov 2013

Alzheimer Scotland Barbara Sharp

Practice Development Manager

Page 2: Barbara Sharp, Reablement workshop nov 2013

Living Well with Dementia: A training programme for staff supporting people

with dementia at home

• What are we setting out to do?

• What have we based our ideas on?

• What is our proposal?

Page 3: Barbara Sharp, Reablement workshop nov 2013

What are we setting out to do?

• To support staff to work in a reciprocal partnership with people with dementia and their families, contributing to meaningful outcomes for them

• To motivate and equip staff as to how to enable people with dementia to live life to their full potential

• To enhance the confidence and competence of staff in this supporting role

Page 4: Barbara Sharp, Reablement workshop nov 2013

What have we based our ideas on? Voices of the experts ...

‘Some of us need to be re-abled ... to re-learn that they have the right and the ability, albeit sometimes with your support, to be in charge, as best they can be, of themselves. To be responsible for their own actions’

Richard Taylor 2009

Page 5: Barbara Sharp, Reablement workshop nov 2013

Voices of the experts ...

‘A reciprocal learning and teaching partnership ... work with us – so that we can continue to cope ...

Andrew is more stable because he is involved and enabled – we take risks ...

Find staff who really care and are compassionate’

Ann (wife and carer)

Page 6: Barbara Sharp, Reablement workshop nov 2013

Philosophy and models of care

• Person centred ethics and care (Baldwin, 2008;

Brooker 2006; Kitwood, 1997)

• Relationship centred care (Nolan et al. 2008; 2006;

2003)

• Rights based care (Cross-Party Group on Alzheimer's

2009)

• Concepts of ‘Recovery’ (Martin, 2009; Gavan, 2011)

• Personal adaptation (Repper and Perkins 2003)

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Rights based care

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Relationship Centred Exchange Model

Person with dementia

Support staff

Family

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Theoretical Framework

• Shaped by a strong commitment to the personal outcomes approach to care

‘In a climate of limited resources, being clear about what makes a difference to people is more important than ever’ (Cook and Miller, 2012).

Page 10: Barbara Sharp, Reablement workshop nov 2013

Policy frameworks

• Scotland’s Dementia Strategy (Scottish Government,

2010)

• Dementia Strategy 2013-16 Proposition Paper (Scottish Government, 2013)

• Promoting Excellence Skills and Knowledge Framework (Scottish Government 2011)

• Standards of Care for Dementia in Scotland (Scottish Government 2011)

Page 11: Barbara Sharp, Reablement workshop nov 2013

Key documents for practice

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Dementia Standards

I

• A diagnosis

• Be regarded as a unique individual

have

• Be treated with dignity and respect

• Be as independent as possible

the

• Included

• Access treatment, care and support

right

• Have support from carers who are educated and supported

• End of life care that reflects my wishes

Page 13: Barbara Sharp, Reablement workshop nov 2013

Keeping

Well,

Prevention

and

Finding out

its Dementia

Living Well

with

Dementia

Living Well

with

increasing

help and

support

End of Life

and Dying

Well

Dementia is a journey

Page 14: Barbara Sharp, Reablement workshop nov 2013

The 5

pillars of

post-

diagnostic

support

Page 15: Barbara Sharp, Reablement workshop nov 2013

8 Pillars

Model

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Approaches to learning

• Appreciative enquiry

• Confirmatory experience

• Modelling experience

• Interactive

• Experiential

• Practically relevant

• Positive and involving

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Structure

• Directed pre-course learning - Promoting Excellence

• Gathering of baseline data for evaluation/research purposes

• Two days of taught content in a peer group setting and one day half day in joint skilled/enhanced level group

• Course work applied to practice

• Assessed components

• Post course evaluation – immediate and longer term

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Experiential Learning

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‘I have dementia but it does not define me. My action and hopes and dreams define me’

Page 21: Barbara Sharp, Reablement workshop nov 2013

The Training team

• Barbara Sharp: Practice Development Manager, Alzheimer Scotland and Research Fellow, Alzheimer Scotland Centre for Policy and Practice

• Margaret Brown: Senior Lecturer, Institute for the Health and Well-being of Older People, University of West of Scotland (UWS)

• Alexandra Simpson: Consultant, Alzheimer Scotland

• Dr. Karen Watchmen: Lecturer, Alzheimer Scotland Centre for Policy and Practice, UWS

• Sandra Shafii: AHP dementia consultant

Page 22: Barbara Sharp, Reablement workshop nov 2013

www.alzscot.org

Making sure no-one goes through dementia on their own