attitudes of the german general population toward early diagnosis of dementia
TRANSCRIPT
sentations: P3 P565
P3-301 UNDERSTANDING THE SUSTAINABILITY OF
Poster Pre
INFORMAL CARE OF PEOPLEWITH DEMENTIA:
A FAMILY CARERS’ PERSPECTIVE
Prabhjot Singh, Private, Pacific Pines, Australia.
Background: The number of people with dementia is projected to increase
over the coming decades, which in turn would accentuate issues of informal
care provision, in particular care provided by the family carers of people
with dementia. Considering these projections, this study aimed to explore
the broader question of how family carers of people with dementia
living in the community successfully manage and sustain informal caring
at present, and how they will provide care in the future.Methods: The study
was conducted in Queensland, Australia, using a qualitative methodological
framework with thematic analytic technique as the research method. In
addition to thematic analysis, the constant comparison method with its
roots embedded in Grounded Theory was partially applied to understand
and give meaning to the themes and codes in a given caring situation.
Data was collected through in-depth semi-structured interviews based on
an interview guide, which contained questions developed using key
issues that emerged from a preliminary literature search relating to the
sustainability of informal care, specifically family care of people with
dementia. Results: Thematic analysis highlighted that the caring effort
(effort by carers using personal strategies and/or informal supports) and
caring capacity (factors influencing caring capacity, in particular formal
support services for carers) were the two key phenomenon that assisted
carers to proactively manage and sustain their caring responsibilities.
Results and findings of the study indicated a balance between caring effort
and caring capacity as critical for the future sustainability of informal care.
Conclusions: This study highlighted that carers consider maintaining
a “balance in caring effort and caring capacity” with support from formal
care services as the key to the future sustainability of informal care of people
with dementia. Further, the study also highlighted that the sustainability of
informal care is dependent on both the individual carer’s ability to sustain
care and on a sustainable formal care system incorporating effective and
responsive services.
P3-302 ATTITUDES OF THE GERMAN GENERAL
POPULATION TOWARD EARLY DIAGNOSIS
OF DEMENTIA
Tobias Luck, Melanie Luppa, Steffi Riedel-Heller, University of Leipzig,
Leipzig, Germany.
Background: Early diagnosis of dementia has clearly improved applying
neuropsychological, imaging and biochemical indicators. However, none
of the currently available interventions for the most common form of de-
mentia, the Alzheimer’s disease, promises a cure. Given this background,
this study aims to describe attitudes towards early diagnosis of dementia
in the German general population. Methods: A representative telephone
survey of the German population 18+ years (n ¼ 1,002) was conducted in
April 2011. Results: 91% of the study participants stated that an early
diagnosis of dementia should be offered. The vast majority (71%) also in-
clined that they would have an early diagnosis in case they are affected.
Two thirds of the respondents see their General practitioner as first source
of help, followed by neurologists, memory clinics and psychiatrists to
a much lesser extent. 62% committed that they think something could
be done against dementia. Answers to an open questions regarding what
might help showed that mainly psychosocial interventions were favoured,
only 9.4% regarded medication as helpful. Conclusions: The German
general population is very open for an early diagnosis of dementia, how-
ever this seems connected which large expectations regarding influence
on course of dementia. Although the GP is seen as first source of help, it
is known that recognition of pre-dementia and mild forms of dementia
in primary care settings is low. Implications for matching expectations
to the care actually provided and designing services more acceptable to
the consumers are discussed.
P3-303 ENHANCING CARE PRACTICES FOR RESIDENTS
WITH DEMENTIA
Alison Campbell, Sandra Davis, Flinders University, Adelaide, Australia.
Background: Residential aged care has traditionally been task oriented. In
this context, a person-centred approach to care is compromised and indeed,
difficult to even introduce. The Australian Government Department of
Health and Ageing, Encouraging Best Practice in Residential Aged Care
Program funded a two-year study involving aged care facilities in seven
locations. The project was aimed at implementing existing evidence specific
to creating dementia friendly physical and social environments, and to facil-
itate best practice in addressing behaviours of concern. This project utilised
Dementia Care Mapping (DCM) as one strategy to inform care practice and
to effect sustainable person-centred practice. Methods: This presentation
describes how DCM feedback to staff did effect changes to observable
care practices. The data from the project indicates how DCM feedback
was a vehicle for staff to be provided with an opportunity to see evidence
of the direct effect their interaction had on residents’ well-being. Two-
hour mapping period was done between mid-point and end-point (6-hour
mapping period), to provide staff with feedback on trials which had been
implemented to enhance the care environment. The feedback sessions pro-
vided structured time and discussion on their interactions with residents and
proved to be a powerful resource for empowering staff with insights they
previously did not have time to observe, let alone reflect on. Results: There
was a significant reduction in sleep recorded, along with a higher incidence
of resident activities (BCCs), which had a high potential for well-being.
Observations of positive interactions between staff and residents increased
whilst negative interactions diminished. Conclusions: The discussion will
include pre- and post-data and an analysis of outcomes for residents and
observable changes in care practices.
P3-304 COPING WELL: COUNSELING TO PROMOTE
INDIVIDUAL AND CAREGIVERWELLNESS—A
COUNSELING PROGRAM FOR MCI/DEMENTIA
PATIENTS, CAREGIVERS AND FAMILIES
Edward Shaw1, Jonathan Adams2, Joseph Wilkerson2, Kaycee Sink3,
Jeff Williamson4, Samantha Rogers4, Dana Chamberlain4, Philip Clarke2,
Julie Williams5, 1Wake Forest University and Wake Forest Baptist Health,
Winston-Salem, North Carolina, United States; 2Wake Forest University,
Winston-Salem, North Carolina, United States; 3Wake Forest Baptist
Health, Winston-Salem, North Carolina, United States; 4Wake Forest
Baptist Health, Winston-Salem, North Carolina, United States;5No Institution Submitted.
Background:Alzheimer’s disease and other dementias are largely progres-
sive and incurable, placing significant psychological, social, emotional, and
spiritual burdens on the person with dementia (PWD), primary caregiver
(PCG), and family members (FM). In October 2011, Wake Forest Baptist
Health (WFBH) initiated a counseling program as an extension of its geri-
atrician-led Memory Assessment Clinic (MAC), a comprehensive program
for evaluating patients with symptoms of dementia. The goal of the Coping
Well counseling program is to promote wellness, “a holistic approach in
which mind, body, and spirit are integrated . in a purposeful manner
with a goal of living life more fully (Myers, Sweeney, and Witmer,
2000),” for the PWD, PCG, and FM.Methods: Patients, PCG, with/without
other FM are seen in theWFBHMAC for comprehensive evaluation.Mental
health assessments for the PWD include the Geriatric Depression Scale
(GDS) and Geriatric Anxiety Scale (GAS); the PCG provides information
needed to complete the Caregiver Burden Scale (CBS) and Neuropsychiat-
ric Inventory (NPI). Assessment results that suggest moderate to severe
depression or anxiety, based on the GDS, GAS, CBS, and/or NPI, or signif-
icant individual, caregiver, or family stress in the judgment of the