anita macdonald. liquid protein substitute substitute
TRANSCRIPT
Anita MacDonaldAnita MacDonald
Liquid Liquid proteinprotein
substitutesubstitute
Liquid Liquid proteinprotein
substitutesubstitute
NaffNaff
ProblemsProblems
preparation timepreparation timeneed waterneed waterdirty containersdirty containers
too much efforttoo much effort
makes peoplemakes people look differentlook different
New liquid protein New liquid protein substitutesubstitute
Cooler130 ml pouches> 8 yearsaverage dose: 4
pouches daily
How goodHow good is liquid Cooler?is liquid Cooler?
do people prefer it?
does it affect blood phenylalanine control?
is it easier than powder?
are people embarrassed when taking it?
Who did we study?Who did we study?
26 people26 peopleaged: 8y – 49yaged: 8y – 49y14 female14 female12 male12 malemost took PKU most took PKU
Express powderExpress powder
What did we do?What did we do?
3 parts: 6 weeks3 parts: 6 weeks
compared liquid protein compared liquid protein substitute with substitute with powdered equivalentpowdered equivalent
Part 1/2Part 1/2 Part 1/2Part 1/2
2 weeks2 weeks 2 weeks2 weeks
Part 1/2Part 1/2 Part 1/2Part 1/2
Part 1/2Part 1/2 Part 1/2Part 1/2 Part 3Part 3
2 weeks2 weeks 2 weeks2 weeks2 weeks2 weeks
What did we study?What did we study?
preference wastage self
consciousness phenylalanine
levels
EvaluationEvaluation
0
20
40
60
80
100
120
1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26
% of either product chosen in part 3
Subjects
%
Liquid
Powder
Ph
en
yla
lan
ine
(u
mo
l/l)
LiquidPowder
1400
1200
1000
800
600
400
200
0
p=0.027p=0.027
Blood phenylalanine controlBlood phenylalanine control
0
20
40
60
80
100
120
1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26
Subjects
%
%
Wastage
0
20
40
60
80
100
120
1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26
p=0.001p=0.001
0
10
20
30
40
50
60
70
80
90
100
%%
9292
3838
How easy was it to take?How easy was it to take?
liquidliquid powderpowder
p<0.001p<0.001
Feeling self consciousFeeling self conscious
0
5
10
15
20
25
30
35
40
45
50
%
liquid
powder
50
21 2125 25
No self consciousnessNo self consciousness on liquid but with powderon liquid but with powder
No self consciousnessNo self consciousness on eitheron either
Self conscious on bothSelf conscious on both
p=0.003p=0.003
LiquidLiquidmore convenient: more convenient: p=0.002p=0.002
easier to take outside the home: easier to take outside the home: p=0.001p=0.001
Friends don’t notice!
less bullying
at school
Don’t need to hide in toilet
friends
say
powder
is like sick
ConclusionsConclusions
Liquid CoolerLiquid Cooler
popular
easy
convenient
ConclusionsConclusions
Liquid CoolerLiquid Cooler
popular
easy
convenient
It It rocksrocks
!!!!
Cooking 4 FunCooking 4 Fun
lovedlovedfajitas fajitas
Helped me Helped me trytry
new thingsnew things
Other children Other children watch….and want to watch….and want to
make thingsmake things
Easy and simpleEasy and simple
……loves makingloves makingRainbow dropsRainbow drops